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Uno Mas! Archives
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| Name: | Cindy | ||
| Child: | Kaylee-9 Emma-7-Sam-11 1weeks | ||
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Sam will be 3 months on the 4th. He's so cute, can I post a pic anywhere? I guess I can email them to you if anyone wants one.. Steff-worried about your bro and saying prayers for him. Kaylee turns 10 on the 6th. Having a party with kids from school on Friday and trying to think of an easy craft to do with them? For Emma's we bought little denim aprons and stamped and painted stencils on them. Was thinking of just doing a make up and hair kinda party for Kaylee's though. (They have a huge glamour kids make up set on sale at Costco for $20-was thinking of just buying that and letting the girls go crazy with it??) Any ideas?? |
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| Name: | Susan/Robin Email: | ||
| Child: | Emily, and Chase | ||
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~ Chase is home with new meds and so far, so good. He and his daddy have really been missed here! We are already beginning to discuss plans for next year's get together. How about Niagra Falls???? Or Cedar Point? Or Orlando? Or Myrtle Beach??? Hmmmmmmm what about TENNESSEE??? I hear IT was beautiful and sunny this weekend!!! ~ ALICE, BARB, SUZI, PAT, and everyone else who wasn't able to be here....you are missed MUCHLY!!! And, Deborah...your message was SO sweet! Glad to have you here in spirit. HUGS, Susan and Robin |
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| Name: | Pat Email: | ||
| Child: | John-John 4 | ||
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Steff....Is your baby bro. out of ICU and back in peds?LOL What a polite little girl you have:^) wanting to call Grandma. Jeff doing any better? Can't wait to hear stories from the reunion. |
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| Name: | Adam Email: | ||
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| Name: | steff | ||
| Child: | olivia(5) | ||
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I gotta tell ya something. Olivia has been TERRIFIC for the last few days..I am sooo HAPPY...We've had lots of fun. This morning I tell her let's look in the giant hefty bag granny gave us yesterday???WELL my sweet mom bought the kids each a pair of shoes backpacks socks undies (LOADS OF EM) and an outfit each. SO Olivia gets the shoes and I have been only getting her the velcro over shoes cause she can do those by herself.(and BTW NEVER gets her right and left wrong even when ya ask her like wheres you right arm??? (too much EI LOLOL she knows em better than Kyle )These are cute and nice and light (not her usual payless kind but those really LIGHT avias. Liv put one on I showed her how to pull the velcro a bit tighter than her others and man she GLOWED and ttok it off and said .MOM I GOTTA CALL GRAN and say THANK YOU FOR THE SHOES (the child is really polite) I say wait lets look for more each pair of panties or socks she would light up PURPLE SOCKS YAY WHITE PANTIES. ADORED her new tinkerbell backpack and as a matter of fact she won't take the darned thing off.Then puts on the new outfit and I tell her the T-shirt says GLAMOUR GIRL she looks down at it(she HAD to TRY IT ON) and for God's sake this child does this walk around the floor like trying to emulate I dunno what a movie star I guesss and looks at me as she passes by and says WELL LA DE DAAA.. Then I crack up and unfortunately I couldn't help laughing when she gave me th funniest booty shake and rolled over back on me and laughed our butts off .Then she got sooo sweet and says MOMMY I LOVE YOU and I LIKE YOU TOO.. Just matter of fact. Child makes me melt sometimes.Well so long for now HOPE YOUR ALL HAVING FUN WITHOUT ME!!!;/ LOL Seriously fill mein I wanna know details and if ya get a puter I wanna call you guys so you can talk to the girl so someone send me the # K???? HUGS Steff |
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| Name: | Suzi | ||
| Child: | Merideth 2 | ||
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Well, glad to hear Steff's lil bro will be ok soon. Kathleen in jail? Robin the lush?~Nah Ok, I'm going off to sulk.I did leave a message on Susan's cell phone but it hurts to talk too. Suzi |
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| Name: | Tammy Email: | ||
| Child: | Lewis the Menace | ||
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Steff.... I (at areally long shot) would go for a West coast get together.... Airfares from here are nearly $500 cheaper to L.A. than to N.Y. And now... getting down to the home truths.... Hubby... is not actually my hubby yet... and we have always said when we get married we will honeymoon in Disneyland.... Without Kids..... At this point in time... the way we are saving...(not) and as time goes... We reckon we can make it around...the year 2065... when we retire. Is that OK with everyone??... I mean... It gives us all plenty of time to save and plan doesnt it?? I hope everyone is having fun... although I KONOW YOU ARE... AND... I DONT want to hear about it for weeks on end when you get back.... KIDDING.... I WANT TO KNOW EVERYTHING !! Where is Linda?? Last year she gave us a Blow by Blow account of the whole weekend...it was almost like being there... well...actually it didnt even come close to being there.. but it was really really good.. OK... enough of my whingeing and whining...just because I am all alone this weekend, and cant afford to be where the action is.... Alright alright ... I will stop..... Love you all.... Tammy... |
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| Name: | Alice | ||
| Child: | Luke | ||
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We planed to go on get together (I still have all info in front of me), but my husband is on-call today (which mean he can be called from work any time), so we can not meet Unomasers. So sorrry.................. Hope every one is getting LOTs of FUN over there. Can not wait for stories and would be nice to see pictures too. Alice |
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| Name: | steff | ||
| Child: | olivia(5) | ||
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steff |
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| Name: | steff | ||
| Child: | olivia(5) | ||
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Well here I sit typing all alone and there are no west coasters here. I'm bummed cause we could have a west coast get together one day but I need all you who are west coasters to SPEAK LOUDLY.I went to the Ohio one a couple years back and they are fun...dang just can't travel so far with kids..would be nice to have a west coast meeting place and DEFINATELY in the summer. San Diego?? Disneyland? and my personal favorite the BEACH ...Ladies and Gentlemen...would any of you westcoasters consider getting together next summer? I would just can't handle the hefty plane fars to go to Ohio or Chicago etc..:( C'mon I know there has to be west coasters who read here so OPEN YOU MOUTH and SPEAK.. I wanna meet ya too..Maybe its my jealousy kicking in...WAAAAAA...... Took 5 kids to see freaky friday . then wwe swam at my moms. My brother hasn't eaten for over 1 week I am gonna ask his nurse tomorrow to take him off the vicodens till he eats.not only are they addicting but they make ya nauseous. ((HUGS)))) to you all wanna read soon Steff |
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| Name: | Emily's Dad Email: | ||
| Child: | Emily , age 12 | ||
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Everyone made it safe, except for Kathleen. Susan didn't give details, but said it was something about Kathleen being in jail! Will get details on that tomorrow. She may need help with bail. The plans for tomorrow are uncertain due to a 90% chance of rain. There are approximately 63 members present & more arriving tomorrow. Wish everyone could be there to share in the BIG FUN! |
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| Name: | Alyssa Email: | ||
| Child: | brother of Justin | ||
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Alyssa |
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| Name: | chuck Email: | ||
| Child: | Mr.Justin | ||
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| Name: | Jennifer Email: | ||
| Child: | Courtney 9 | ||
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We are headed to the beach early in the morning....Hopefully I can remember to call some locals in the morning. Thanks for all the birthday wishes for Courtney! She loved them!! Oh BTW....New Orleans Six Flags doesn't hold a candle to Texas!! Dallas is ten times bigger...Now we know. But it is good for when we are passing through to Florida. See yall later! |
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| Name: | steff | ||
| Child: | kylivsma@yahoo.com | ||
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THANKS again MB you are truly a GIFT to me you know that right? WELL YOU ARE!!!!! I will fill ya in as the week goes by. Gee whiz Mary what no time??LMAO cmon girl I still can't figure out how you manage now....((HUGS))) and good to know you and Nora can have some time together/// Okay here goes....my brother only has a BIG teratoma and the reason he had the nlarged lymph nodes is cause he has double gnarly pneumonia. I never thought I;d say hip hip HOORAY to double pneumonia but man YES!!!! The guy is my height though (5'6) and is down to 108. He is SKELETOR(remember the cartoon? ( my nephewsI usta babysit usta watch that)But he will at least we know get better.My mom and I spent the entire day there.They finally had to take him out of PICU...LMAO... He has a great ICU nurse and actually me being the big sis made sure(my ma's kinda shy and my bro is a martyr) he had orders from the docs for pain meds standing orders so they wouldn't hafta keep calling the doc (he couldn't sleep cause of massive headaches I am thinking cause his hemoglobin is so low. Actually before we left he eeked out an 8.5 and 8.0 is transfusion level.I noticed when he slept he looked much better and breathed so much better so I made sure he could at least have meds till the headaches were gone. He looks so tiny and frail now.I look like HELGA SAGA Slipovovitch next to the kid. Well actually he couldn't get up but I sat next to him and outweigh my baby bro by 20 pounds. LOL embarassing..LOLOL H'es still on 15 liters O2 but at least on that he is at 90-92. So all is well. I know that doesn't sound great but now he is in a good spot and NO CANCER.Man I have dealt with hospitals for so long I am just getting to know how thinfgs work and my ma was flabbergasted when I got the nurse to get him the orders and Chris slept and the nurse got the doctors on the phone to let me know what was up.My bro was so out of it in the earllier part of the day that I did NOT know what was up and my mom would have waited there all day so patiently.SO hopefully I showed her that you can do things in a nice way without being a PITA and actually have them like ya too...I teach her yet.After being at UCLA ya gotta get tough man. LOL I won't even tell ya the nickname my bro has for his hospital...Well it rhymes with Kaiser and begins with a D.YIKES!!!!! He's a sick guy though with one of those sick sense of humors.So alls well that ends well.. Thanks guys BYE |
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| Name: | Mary L | ||
| Child: | PAtrick +4 | ||
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Patrick started school on Thursday and seems to be enjoying it. He is happy to go on the bus each morning. Last year I drove him to school every morning because I thought he would have a hard time leaving me- I think it was that I was having a hard time leaving him! Robin~I am so happy to hear that Chase is coming home tomorrow! I hope that they have finally figured out the right meds for him. Steff~I am keeping your family in my prayers. Man, you have a lot to deal with. Hope Olivia is liking school! OK~my kids want to play on the computer now so I will give it over to them. Have a great weekend everyone! Mary L. |
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| Name: | Sue | ||
| Child: | Haley | ||
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| Name: | MB Email: | ||
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| Name: | steff | ||
| Child: | olivia(5) | ||
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.He looks great so hope that makes ya feel better!!! (((HUGS))) to you all.. Alright you guys I have a favor can you all p-pray for my bro.My ma and I are staying there today.he will get his biopsy report and they will read the ct scan they redid last night.They are putting in the central line now and he's in ICU.He's on O2 and my mom said this morn that when his mask comes off his sats go to the 60's and low 70's.She said he sounds like a VERY OLD MAN... I am scared for my 31 yr old trooper.He did it once .Hmmm.Gotta git lots of things to do before I go.C-ya... |
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| Name: | MB Email: | ||
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| Name: | jackie Email: | ||
| Child: | Emily age 23 | ||
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| Name: | Pat Email: | ||
| Child: | John-John | ||
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Pat |
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| Name: | Susan Email: | ||
| Child: | Emily | ||
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Susan |
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| Name: | Linda Email: | ||
| Child: | Adam 8 | ||
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BTW - I think I read that it's Courtney's B-Day today --- so Happy 9th Birthday to Courtney!!! :) - Once a year I try to be on time for something -- so this is it! LOL! ---- Adam keeps telling me "I'm not 9 yet Mom!" when I want him to do something responsible (like pick up after himself - etc! LOL! Let me know if it's the "magic" age, OK?!) :) Ok - just a few more laundry loads & I think I'll be done.... hope I have enough detergent -- forgot to pick that up when I went to the store tonight -- how could I forget that???! Hugs all & nitey nite! Linda |
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| Name: | Linda Email: | ||
| Child: | Adam 8 | ||
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Well, just stopped in quick -- Back to the laundry! *sigh* Hugs! Linda |
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| Name: | Craig Email: | ||
| Child: | Draco and Griffin | ||
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| Name: | Robin Email: | ||
| Child: | Chase/11 | ||
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Steff... HUGE HUGS and prayers to you and your family including the ole bro of yours..LOLOL, I think the peds nurses should put him in some of their jammies too, and you should get a picture :-) tell him he has prayers coming from Michigan. Love to you all, and thank you all SO MUCH for the prayers and thoughts and hugs:-D Robin |
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| Name: | Chris Email: | ||
| Child: | Sarah ~ 23 months | ||
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Sarah is starting to stand from a squating position. She can only stand a few seconds but she thinks she is hot stuff (and so do we!). She has also figured out how to do a somersault. The sign language is going slow. She screams if I sign! She knows several signs but refuses to use them. Go figure.... She is super stubborn. Chris |
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| Name: | Jennifer Email: | ||
| Child: | Courtney...9 tomorrow!! | ||
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We are off to New Orleans in the wee hours of the morning...Six Flags all day, and then off to Pensacola for the weekend. The kids are pumped! I guess depending on how good Six Flags is, we might go back by there on the way home. I hope you all have a great and safe holiday weekend! Jenn |
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| Name: | jackie | ||
| Child: | justin | ||
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| Name: | AnnieC | ||
| Child: | Raven, Abbi, & Emmy | ||
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| Name: | steff | ||
| Child: | olivia(5) | ||
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ROBIN I LOVE YOU and MISS YA BUNCHES...I'm sorry you hafta go thru this ALL over again.Liv prays for Chase every night and always ends it with a HEY MA'AM(that's Amen to Olivia)((HUGS))) to you all. Barb Sarah is a sweetie. Kyle Livs older brother is too. When she is angry or just crazy he can get her back to earth and smiling and laughing in a way Jeff nor I ever could.I's so cool to see. Funny thing too he has NEVER EVER been embarassed of her. He protects her like a mother bird .I even have to get on him bout that sometimes cause he lets her do things that well are funny but I would not want her to do at school.I always ask him???Kyle what if Liv does that on the BIG playground? You don't want the kids to make fun of her would ya.He's getting better bout not babying her though. Okay today is the big day.I had gee whiz at least 2 hours sleep and am just plain jumpy.Today we go to Livs kindergarten class and meet the parents and kids.We already know the teachers I saw em yesterday to drop off the 5 pages of info I had for the parents about ds (A the questios on the BB you attached to a post I used it and the copyright is on the sheets) and I wrote an intro and explained what an IEP is and whatta great friend Liv is and to NOT FIX or DO FOR her rather show her so she can own skills for herself(thanks to MB :) your the best girl.) Also hmmm in the end I wrote how I feel in my heart of heart that their children wll be much more compassionate understanding kids so we will all benefit from this gig... :) and my phone #'s.I was reading Livs ammended IEP and wanted to share what will go on with her this year.I'm taking it straight from the source... here goes. The district has offered placement in the primary SDC eith mainstreaming into the gen ed kindergarten class at her home school .....Also the district is offereing support in the least restrictive enviroment by an inclusion facilitator.Inclusion will support Olivia for 2 hours of direct service(social skills,co teaching or direct service) and 2-3 hours of indirect service (modification,covering the SDC so the sp. ed teacher can get into the gen ed classroom observation collaboration) for a total of 5 hours a week. Then she gets her regular speech (1 hour) ot (1 hour) and APE (30min.) which will mainly try to be done in the afternoon so that she won't be pulled out of the reg ed cklass and also I like it when Olivia gets her service with other kids and she will have a better shot at it if she does em in the afternoon with the other kids in the sp. ed class. One on one if not motivating to Liv she likes the group thing and so do I.Well then I take Jeff to the hospital to get his 2 gnarly tests done 1 actually is bad the 22nd they put him out and man does it take a lot to put him out. My bro is in the hospital as of yesterday with pneumonia and his hemoglobin was 8 so they were preparing to do a transfusion on him. The kids hafta go with me as my mom will be with my bro. So I will be at UCLA all day with 2 wild children >PLEASE PRAY FOR MY SANITY...LOL Hoping Jeff will have no more varices.If they band em (that's his 2nd test) he is feeling awful and I hafta take care of him real well.So LORD help this girl.I hafta wait till tomorrow to visit my bro.LMAO Guess what? He is a peds oncology nurse right well yesterday they put him up in the peds unit (the head nurse of peds requested it he has his own room ) so his fellow nurses can take care of him...LMAO..I cracked up when I heard that one. BYE |
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| Name: | Robin Email: | ||
| Child: | Chase/11 | ||
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Oh how I miss you all. I had a minute to spare and wanted to jump in and say hugs prayers and love to you all. Chase is so far scheduled to come home this weekend, it seems a eternity since he left. I hope every one is well, I am hoping to catch up and read a weeks worth of posts tonight if possible. hugs, Robin |
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| Name: | jackie | ||
| Child: | justin | ||
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| Name: | Elaina Lopez Email: | ||
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| Name: | Jackie | ||
| Child: | Emily age 23 | ||
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| Name: | Suzi | ||
| Child: | Merideth | ||
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| Name: | Jackie Email: | ||
| Child: | Emily | ||
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| Name: | jackie Email: | ||
| Child: | Emily....age 23... | ||
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| Name: | Barb Email: | ||
| Child: | Alison - 5 months | ||
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Maybe it was just me being in a very sensitive mood, but it brought tears to my eyes hearing all of this!!! Sarah knows her baby sister Alison has Down Syndrome like her friend Bonnie and will often ask us if Alison will do .... like Bonnie. We tell her that Alison will do things like Alison, just like she does things her own way not always like Caitlin and Mom and Dad do things. I hope that both of Alison's sisters will go on to do wonderful things helping people understand more about what having DS means to our kids and their brothers and sisters. Ok, I think I need to go get some chocolate, a sappy novel and escape in the book for a while!!! Lately real life is getting a little too dramatic for me. Hope everyone enjoys the day! Hugs and prayers from the sap of the day! Barb |
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| Name: | Annie S | ||
| Child: | Sonny 9 | ||
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Robin and Dave hope all is going well for Chase... Steff hope your brother is ok...good thing you were there for him... good day all Annie S |
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| Name: | Susan | ||
| Child: | Emily, age 12 | ||
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Susan |
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| Name: | steff | ||
| Child: | olivia(5) | ||
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Kathy man your story cracked me up...SORRY but its funny when it haappens to someone else I am sure you were FREAKING!!!!Ya know like some of Robins I know its terrible but man I get such a laugh outta em then I'm thinking OMG I am so mean ...neatly folded clothes.LOLOL... Awww how is sarah doing besides walking naked thru the neighborhood with neatly folded clothes in her arms??? Okay guys this is the first I have been alone in soo long .I am loving it cause I am feeling EXTREMELY overwhelmed.I find myself literally holding my breath.LOL then its like steff breathe man breathe.I wanna get off of here soon as I would LOVE to take a peaceful shower and perhaps for the first time in over a year get out my blow dryer and actually do something like that...My mom finally went on the vacation she was supposed to last week when she fell up her brick stairs and cracked her nose(doesn't look like a break you guys but her nose is definatley hmmm different God Bless her.) so she goes to visit her friend again(the day I raided my mom and dads house with all the kids in the jacuzzi)now this morning I had to call her about my bro. I got a phone call from him at 4 30 this morn. He sounded strange.I mean out of it and asked me to come over with a themometer.So I JUMP outta bed tell Jeff RACE to my bros the guard won't let me in his condo complex cause my bro won't answer his phone. I freak and say COME WITH ME to hiss door cause somethings wrong.So he calls another guard we go to chris' place and after BANGING on his door he answers. I take one look at the kid and sit him down. The guard wants to call an ambulance but chris refuses and says ill take him. I take the kids temp it was 104.7.He had 2 pairs of sweats on 2 jackets his bed was EWWW just wet from sweating. I force him to take off the dang jackets and get a blanket over him and get in my car.He is the most STUBBORN man in the universe. Now I know from last night his hemoglobin was scary low. and he his cxray looked not so good bronchitis and just didn't look good. So I race him to his hospital which is FAR bring him in.Go upstairs to the peds unit and tell em chris is downstairs and you make sssure he is on leave. Friends came down to see him he is there I am gonna go back later but man this girl is exhausted.So then I had to call my mom to tell her Chris was admitted and she is driving back.I am telling you the last 3 times she has visited this lady a dear friend in Cambria only 4 hours away. First time I had to call to tell the lady to tell my mom to get HOME.(we had just got the call her baby sister had died suddenly of a heart attack at 40). Next time she goes fallls on the stairs,now this time Chris.WOW.I too am getting ready for my kindy thing on tuesday and A thanks for that list on the BB about Questions regarding DS?? I printed that baby out.And hubby goes thursday for another pulmonary test and he is freaking over it saying he won't do it. I here am arguing but sheesh they tried before and tortured the heck out of him with NO SUCCESS.Just BRUTAL.Then after this test he may possibly refuse he will go for his endoscopy to band a few reappearde varices.Kyles b day is next week. Sunday a lady slammed into my car teariong off the bumper and I am dealing with that(seatbelts are a good thing guys Kyle Liv nor I was hurt) then my bro. Man school starts next week.OKAY you guys i am OFFICIALLY FREAKING OUT!!!I am gonna take a nice hot shower . ROBIN ROBIN ROBIN COME HERE and give me thehospital # I am gonna call later today to get it if you can't.BYE I LOVE YA GUYS from the whiny steff |
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| Name: | Kathy P Email: | ||
| Child: | Sarah, 13 | ||
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| Name: | Carolyn Email: | ||
| Child: | John ,4 | ||
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I was planning to go to my exercise class this morning, but instead, I am going to loaf about the house. I haven't watched Dr. Phil in months. A real treat- I guess I am a stay at home mom who really takes pleasure in the little things. But I swear I have not been in this house alone since June. Life is good...! Holly- Are you still around?? I think maybe John sat with Jake today on the bus! Carolyn |
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| Name: | steff | ||
| Child: | Olivia(5) | ||
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What i really wanted to say is encourage encourage encourage after Alison is done with her cereal adjusting and baby food adjust to add texture to her food. This is farthger down the line but seems like it was only about 7-8 months we started feeding Olivia first we added crumbled up graham crackers to her baby food.That changed the texture a bit. Tiny bits of pancakes but first we did the graham crackers to change the texture then we crubled it up less and less to add an evendifferent texture then started with all the various table foods young. A lot of kids with ds seem to me to have feeding issues so encourage her good eating and LMAO to the rasberries I have a pic of Olivia in a swing chair at about 5 and a half months eating sweet potatoes baby food with orange everywhere and jeff lovingly took one of me after a Liv SWEET POTATOE rasberry.... ((HUGS))) and good luck with your feeding venture., Gotta go dh is home and gonna hang out Nighty night.. P.S. My bro is letting ME go with him to his oncology appt tomorrow.I'll explain why I am so shocked tomorrow.The doc wants to talk to chris about their plan of action tomorrow and who else but Mrs. Kravitz(ME) should go. I performed a miracle here tonight. Anyhow he has both lymph nodes innhis groin something going opn.AND he has a pretty good sized tumor on the back behind part of his bladder and they can't see yet if it is near his spine.SO they did a lymph node poke whereby they see if fluid is in there .he limped in here tonight. And they did some BUN kidney something something test. I dunno. Hmmm sure he should have me there??? LOL..Night |
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| Name: | Barb Email: | ||
| Child: | Alison - 5 months | ||
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Steff: Loved the "rubbing the kisses in" story, made me smile!!! She sure does come out with some funny pearls of wisdom. Well, Alison has started on cereal this past week and it has been an experience to say the least. I'm not sure who ends up wearing more of it - me or her!!! She just learned how to make raspberries and has now discovered that they are even more fun to do with a mouth full of cereal! I'll tell ya my glasses are the cleanest they've ever been - constantly wiping off |