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Dec - Jan Message Board

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Name:  Lin S.    Email:   
Child:  Mary 6 years
Comment:
703    Saturday, 2 February 2002 - 04:28:33am
Hi! I'm new to this site so please bear with me! My daughter has estropia crossing of the eyes outward. Has anyone been through surgery to fix this problem? My daughter has had 2 and is now wearing glasses but the problem is not fixed. She may be facing another surgery. Should I get another opinion?
 
Name:  Lin S.    Email:   
Child:  Mary 6
Comment:
702    Saturday, 2 February 2002 - 04:25:01am
Just testiing
 
Name:  jackie    Email:   
Child:  Emily......21!!!!!!!!!!!!!
Comment:
701    Saturday, 2 February 2002 - 00:31:29am
TRICIA....I am not a dog person...have had many though thru the years...and I also give poodles a thumbs up....all of ours were toy...except for my favorite...Rosie....who was a large black standard poodle...a nicer dog never existed....gentle..not much barking...she liked to wear hats actually...LOL. Unfortunately we made a move and the folliage in the back yard was not a good mix with her beautiful coat and she was constantly in burrs....so she got a nice home....but she is the one I loved the most. Emily would like a dog now...but...we travel a lot..so it is easier not to have one....and also I dont like playing tip toe thru the doo doo in the back yard...LOL...
 
Name:  Robin    Email:   
Child:  Chase
Comment:
700    Friday, 1 February 2002 - 11:16:32pm
Renee,
Susan is our resident nurse so we will ask her about Lauren's hypothyroidism...watch this.... SUUUSAAANNNN??
See, now she will answer you soon ! I had to laugh renee, I still remember them telling me Chase would ride the bus, LOLOLOL, I was hysterical, it was like, hmmmm maybe in a couple of weeks, let us see. And after a week of taking him and them begging me to let him try, I did, LOL followed the bus mind you girl, and when I got there he was happy as a clam and they said he was so proud to get off that bus like a big boy! (and he was only two) And so the bus became his biggest love, and still is, just like CC's Christopher.
I am waiting for you to move in, LOL but remember now, we have no girls here so plan on staying forever as once we get a taste of pink girlie frills, we may not be able to let her go!!!
Hugs, Robin
 
Name:  Christie    Email:   
Child:  Christopher, 9
Comment:
699    Friday, 1 February 2002 - 10:46:03pm
HAPPY BIRTHDAY Collin, WOW 2 getting to be such a Big Guy, enjoy your day.

Renee, can't help you with the Hyopthyroidism as that is one thing Chris has never had a problem with. I bet there are some here that can help you out with info on that. Lauren will do great in school and I bet she will love the bus when you are ready for her to try. Truly was one of Christopher's favorite parts of the day. He has been taking the bus everyday since he was 3 and entered preschool. Best of Luck with all your new changes :-)

Skeeter, Prayers on the way for Kyle and will continue to you post up all is well. I can only imagine how you can't wait till this is all over and behind you. Blessings Kyle ;-)

Robin, glad to hear the assistant for Chase will not be coming back!!!!!!! When I use to go in and observe Chris in school he would run, get his backpack and say Jeep, LOLOL He thought he was going home. But quickly he got use to me popping in and out so now when he sees me he just waves and says "HI MOM" :-) Best of Luck next week and any chance of you being part of the interview for the new assistant. I mean you know who would work best with Chase better then anyone. Just a thought.

Got to run, Chris, Kodi and Colin want to eat dinner, Hmmmm can you believe they want to eat??? LOLOL

Have a super weekend all.

CC



 
Name:  Terri    Email:   
Child:  Michael - 10 months
Comment:
698    Friday, 1 February 2002 - 10:24:29pm
Skeeter,
I'll pray that Kyle has a successful surgery and a speedy, healthy recovery. We "spoke" in chat a few weeks ago. I'm the one who lives near CHOP, if you remember. If you need any info on the area, please let me know. I also have info on the Ronald McDonald house, where families who have kids in the hospital can stay for free. I don't know anything about the surgery since my son's heart was fine. But I'm sure there are many people here who have been through some kind of heart surgery. Good luck!
Terri
 
Name:  Christie    Email:   
Child:  Christopher, 9
Comment:
697    Friday, 1 February 2002 - 10:16:08pm
I tooooo love Dogs. I have always had dogs since I was just a tiny thing, a few different kinds. Have had Collie, Cocker Spaniel, Mixed Breeds, lots of them :-), Beagle and Golden Retriever which we have now. Out of them all, the best we ever had was the Collie. I was just a tiny kid when we got our first Collie. Truly just like "Lassie" Personally I think lots of dogs can be good with all people the main thing I would watch when picking a dog is what breeder you use. Some dogs are sooo over bread they create high strung off spring. Our Golden "Goldie" is super with everyone, takes much abuse from Christopher, LOL They truly are best buds and spend many hours playing and walking together ;-) I do agree that Poodles are best for anyone that have allergies. Labs and Retrievers are usually used for seeing eye dogs due to their temperment. I say go for it your never toooo young to get a puppy ;-)

CC
 
Name:  Renee'    Email:   
Child:  Lauren..3
Comment:
696    Friday, 1 February 2002 - 09:29:06pm
Hi to all
It was great talking with you all last night.
I just got a call from Lauren's doctor and he told me she has Hyopthyroidism. She is going to have to take medication and he said this may be a life long thing. I am not to sure how I am feeling about this. Anyone been through this??? I just feel like not now..things are going too well for her.
We had Lauren's IEP today and it went really well. They seemed to be very impressed with her and are looking forward to her coming to school. She is going 2 days a week and will be with 4 year olds. I am not to sure about this either but she will have a 1 on 1 aide.
Keep me in your prayers...I am trying not to stress. She is suppose to rind the bus too..but I told them maybe in a week or two..YIKES!
Have a great evening...
Renee'
Robin..don't forget we are movin' in!!!
 
Name:  Tricia    Email:   
Child:  Patrick
Comment:
695    Friday, 1 February 2002 - 09:26:41pm
Hi Friends. Gotta stick in my two cents on the dog breed thing. OK....I grew up with ALL kinds of dogs, (my dad was a hunter) cats, foxes (yes we had tame gray foxes) and tons of other critters. When I was 15, my folks let me get an inside dog and I got my first toy poodle. I am now on my 6th and 7th poodles and graduated to minitures (slightly bigger). Now, I know that some people just don't like small dogs, but I gotta tell you....my dogs never bark at night like my next door neighbor's black labs...on and on and on... Anyways, for people who are looking for a large dog, just wanted to mention to check out a standard poodle. They are beautiful dogs (when not clipped in those silly cuts), they are wonderful with children (see the web site), they DON'T SHED, are good for people who have allergies and are highly intelligent and have a life span of 12-15 years...longer than some large breeds. You get them shaved down bout 3 times per year. If you have never been around one, check them out.
Look at www.dogbreedinfo.com , they receive the highest rating in reliability with children and are considered excellent with children.

Is Collin really 2!!!!!! Unbelivable.. Happy Birthday Buddy.
 
Name:  Robin    Email:   
Child:  Chase
Comment:
694    Friday, 1 February 2002 - 08:47:55pm
MARY, LOL sorry, just saw your post too about dogs, wasnt ignoring you, just hadnt read that far! We have always had dogs, and I agree with the comment about the bigger the dog the better with kids unfortunately, LOL, but beagles and almost any kind of hound dog is great too. I do know that alot of cockers, thoguh not all tend, to be a bit snippy, even though they are so cute. Let me know what kind "Patrick" perfers, LOL!
hugs, Robin
 
Name:  Robin    Email:   
Child:  Chase
Comment:
693    Friday, 1 February 2002 - 08:44:29pm
DOLLY....
We got Chase a dog for his second birthday, a yellow lab who we named Bailey. He has been Chase's best friend for the last seven years. They play togethr and when Chase is in trouble, LOL, he goes and cries to Bailey who listens to it all. he can climb on him, pull his tail or what ever and Bailey just tkaes it all and gives kisses, big old horse that he is!
Hgs, Robin
PS ...SUZI.... Chase still drinks out of a sippy cup, just perfers it as he has a hard time with that tongue and positioning it right. My philosphy, is it doesnt hurt if it is early or late. Chase drank form a bottle til he was over two, shame on me :-)
 
Comment:
692    Friday, 1 February 2002 - 07:54:39pm
 
Name:  Suzi    Email:   
Child:  Merideth & 3boyz
Comment:
691    Friday, 1 February 2002 - 07:16:57pm
MaryL....we have a 1/2 Blacl Lab, 1/2 Golden Retriever...she's going on 11 which means she was 2 when Matt was born.She's the greatest with kids!
Now here's my question of the day...maybe Susan will know the answer...
IS there any advantage to weaning to a sippy cup over a bottle at a young age?
Reason I ask is last night Meri grabbed Sam's cup & started drinking before I took it off her....so I just tried again. Though you hafta help her hold it & she dribbled some...she just drank her formula half the cup's worth from one of those no-spill Playtex sippys!
 
Name:  Dolly    Email:   
Child:  Eric 19 months
Comment:
690    Friday, 1 February 2002 - 07:03:42pm
Mary L;
I have been researching dogs for kids too; there is a
good website...Type in "Reliability with Children"
they give you any breed imaginable, and whether they are recommended for children. also breed history, health, whether they shed, trainablity, and photos.
good info.. seems like most of the larger breeds are good with kids, like labs, golden retrievers, great danes, collies, etc. Smaller breeds are pretty good, but a little more yappy. pugs,beagles, and most hounds are good. Check it out for yourself. I'm waiting till Eric gets alittle older..he's only 19months. But its me who wants the dog...I love dogs. Think it would be good for Eric too, they can be "buddies" Dolly
 
Name:  Dolly    Email:   
Child:  Eric 19 months
Comment:
689    Friday, 1 February 2002 - 07:02:07pm
Mary L;
I have been researching dogs for kids too; there is a
good website...Type in Reliability with Children
they give you any breed imaginable, and whether they are recommended for children. also breed history, health, whether they shed, trainablity, and photos.
good info.. seems like most of the larger breeds are good with kids, like labs, golden retrievers, great danes, collies, etc. Smaller breeds are pretty good, but a little more yappy. pugs,beagles, and most hounds are good. Check it out for yourself. I'm waiting till Eric gets alittle older..he's only 19months. But its me who wants the dog...I love dogs. Think it would be good for Eric too, they can be "buddies" Dolly
 
Name:  Mary L    Email:   
Child:  Patrick + 3
Comment:
688    Friday, 1 February 2002 - 06:49:28pm
Hey guys, quick question ~ my Dh has expressed some interest in getting a dog and I figure I better strike while the iron is hot. (I've always wanted one, he hasn't) Just wondering of those of you who have dogs, what kind do you have that's good with kids and what have been the benefits to your child with Ds? I figure if I can give him some reasons why it would be good for Patrick to have a dog it would go a long way towards advancing my point. Thanks!

Mary L.
 
Name:  Robin    Email:   
Child:  Chase
Comment:
687    Friday, 1 February 2002 - 05:31:15pm
hi Everyone,
Another snow/ice day so no school again! I will have to wait til Monday to start my days in the third grade. :-) I have just reda all of your posts and I have to say to all of you.... You guys make me and Chase feel so loved!!!!! Here is a BIG {{{{HUG}}}} for all of you! Cindy, your idea and Linda's about Chase not knowing I am ther wathcing him is a very very good one! I am going to do just that! Although he seems very relieved that I am going to school with him to protect him. I told him I will be there every day until he has a new aide and things are going on the upslide for him. I spent four hours going over ideas of positives and distractors if he acts up and suggestions for bad behaviors besides screaming at him and pulling on him or putting him in a BASKET HOLD! Any ways, just so you all know, we wil be having another meeting this upcoming week and Janelle will be removed from Chase, or we will be very rich after the law suit. Thank you all for your support.
RO>>>>>>>>>>> ROFL, your post was so funny!!!! You always say my child is innocent, even when he is guilty as charged! LOL, I could catch him doing something naughty and you would have a excuse for that kid, LOL but this time you are right, he is innocent, excpet that I am sure he did cuss!!!!! And ROFL, I LOVED how you managed to cuss here and not be caught, LOLOL!
Linda, hugs to you bud, I am sure life is so hectic and hard for you, so here is a thoguth.. why doesnt everyone move to Michigan near me and Holly and we can all be one big happy family!, Great idea huh?????
Steff, your memories were heart aching and bittersweet.I so much remmber those first days.... was right where you were. And now, look at us, LOL we have two little terrors! Kiss that boo boo lip for me and give Kyle and hug from ole pm too!
Dolly, Annie S is working on hotel rooms for all of us so we can be together in a god hotel with things to do right Annie? At least I think that is waht Susan told me, LOL!
Praying for babies and anyone else who is going to be having surgery or health issues. Got to go beat some children ...two days of no school, yikes Linda! This is coperal punishment! LOL,
hugs, Robin
 
Name:  Robin    Email:   
Child:  Chase
Comment:
686    Friday, 1 February 2002 - 05:12:27pm
BABY COLLIN..... YOU ARE OFFICIALLY NOT A BABY ANY MORE! HAPPY HAPPY BIRTHDAY BIG BOY! MAY THIS SECOND BIRTHDAY BE JUST THE BEGINNING OF MANY MORE BIG BOY BIRHTDAYS WITH EVERY THING GOOD IN LIFE GOD HAS TO OFFER!
HUGS FROM Robin, Dave, Chase and Zach
 
Name:  Annie S    Email:   
Child:  Sonny 7
Comment:
685    Friday, 1 February 2002 - 04:39:53pm
Didn't make chat last night Sonny had a program at school..in Celebration of the Olympics here..IT was called "LightThe Fire With In" Sonny class where the flag ceramony he carried Swendens flag it was so cute

Steff what a great story thanks for sharing...So God works are so wonderful...

I know when I was in the hospital there was a nurse who helped me when Sonny was born I had him by emergency c-section and the nurse that helped me for the next few days was gone the day we found out that Sonny had DS.She was there the next day and I was in my room it was around 10:00p and she came and sat with me..She told me God gives gifts to us in ways we don't understand at first..She told me the dissapointment will pass and you will realize what a gift you have..I felt she was my angel here..she had a really gentle touch and manner..Her words were so comforting..
 
Name:  Diane    Email:   
Child:  Chris - Age 28
Comment:
684    Friday, 1 February 2002 - 04:20:49pm
Hi Jackie - Please let me know how to find the DS Teen and Adult Site - My son Chris is 28 years old and I am very anxious to communicate with other parents. Thank you!
 
Name:  jackie    Email:   
Child:  Emily......21!!!!!!!!!!!!!
Comment:
683    Friday, 1 February 2002 - 02:36:06pm
OHHHHH STEFF......I've got tears, too
 
Name:  Suzi    Email:   
Child:  Merideth + 3boyz
Comment:
682    Friday, 1 February 2002 - 01:30:22pm
Click the link for a study just published on memory/alzheimers article from todays Pittsburgh Paper. They got some unexpected results that may have implications for older DS persons being treated with drugs
 
Name:  Skeeter Hutchins    Email:   
Child:  Kyle
Comment:
681    Friday, 1 February 2002 - 04:00:19am
I am writing to ask for your prayers. My four month old son will have open heart surgery on Friday, February 8th at the Childrens' Hospital of Philadelphia. He has an ASD, VSD and Pulmonary Stenosis. If you have had any experience with this please let me know. Thanks!
 
Name:  Ro    Email:   
Comment:
680    Friday, 1 February 2002 - 03:31:36am
Robin came by chat to say hi and let you know we love ya but you had been and gone:( Maybe next time I can catch you:)
NOW back to the homework

RO
 
Name:  steff    Email:   
Child:  Olivia(4)
Comment:
679    Friday, 1 February 2002 - 01:13:49am
Hi...

I just found something that brought back a lotta memories and thought I'd share with ya all...

When Olivia was first born let's just say I was outta the hospital inless than 24 hours and was a wreck to say the least. After day 3 of having her home I was such the zombie and feeling sorry for myself and just sad sad sad. Well let's just say Liv had to be awaken to eat, did NOT cry a lick and did not move a muscle. She just laid ther barely opening her eyes and her legs were like a frogs and her arms did not move a muscle. I was out of it. One night about 9 pm and absolutely no rest at all since her birth I was outside on our porch bawling quietly to myself like crazy when Jeff came outside to comfort me.So I am doing those uncontollable hiccup like things when the little girl from across the street walked up with her mom. She handed me a doll for Olivia. She was 8 years old at the time and had made a doll for Liv. It is beautiful and so special cause she worked for 2 days straight to make it for her. Apparently when Jeff came home first he warned all the neighbors about the birth and Liv's diagnosis(he was soo protective of me-gotta love him). So this little 8 year old girl came brought the doll to me and I let her come in and hold liv with my beady red eys and swollen face. She just held Liv and noticed any type of cute thing she did(which wasn't much at the time she rarely moved) and made me see how beautiful a baby Liv was. Funny huh an 8 year old..LOL. WELL. I have not seen the doll for almost 2 years and Liv found it. I caught her in her bedroom playing away with her. Thought I'd share brought back memeories and tears to my eyes... BYE
 
Name:  steff    Email:   
Child:  olivia(4)
Comment:
678    Friday, 1 February 2002 - 00:37:06am
MARY Hope your family feels much better and tomorrow is NOT a SNOW DAY... UGGG... I'll be checking the forecast for your area tomorrow..LOL!!!

Radonna hope you got my e-mail. SOOO glad to hear you are back and we are in for some more cute Kaden stories...

CC... Now wait a minute if the doctor suggested there is a problem with Chris' speech did he/she not write a prescription for more speech???One thing that burns my biscuits is when people offer their opinion with no solutions. Did he/she give you any???

Robin...Robin...UGGG what can I say but I am sooo sorry you have to go through all that stuff. Now since the principal witnessed this God-forsaken person who calls herself an aide would he/she not use their PRINCIPAL-LIKE powers to change Chases' aide to a new one? Even retraining the old one does not seem like a viable option for you all as she already has her little mind set about him. GRRRRR...:( I sure hope you can find a match for Chase as an aide. School should not be that kind of experience at ALL. SO SORRY and get em girl... ;)

Cindy...LOL!!! A glass of wine after a LONG day with kids is well can you say mandatory???LOL!!!!When I have had one of those stressed filled crazy days that is a good way to deal and relax my cranky ole self..LOL!!!

Today I had a strange day with Liv at school. When I came to pick her up she had a giant boo boo lip and was sitting outside with all the kiddos BUT with her back to them . I watched her for about 10 minutes from my car and no one even knew. So I go and get her and bring her in to sign out. Well her sp ed teachers aide says whats wrong Olivia??Liv wouldn't answer...WELL she starts to go on about the new teach she doesn't like etc. That's where I put a stop to it cause there is soo much politics and games going on at school I refuse to get involved with em. I don't know what to believe anymore and I told her ...Unless it has something to do with her doing something to Liv or the other kids or something really imp ..I don't wanna hear it. Cause BOY OH BOY. I got involved once and sure turned into a mess. To tell you the truth I still don't know what happened. So... being that I cannot trust her principal(she told the teachers that a parent was complaining their child wasn't being changed-and UMMM they came up to me asking me about it cause OLIVIA is the only sp. ed student who isn't potty trained. WELL I had to straighten that out with the teachers who I know know I would never go to the principal wioth a concern unless I talked to them first and it wasn't resolved.So GAMES GAMES GAMES...I'm keeping my eye out though.Hey did anyone see 60 minutes II with the avid instruction that is being used in some schools? My ma called me up this morning and had me look it up on the web said it was great I unfortunately can't seem to stay awake past 9 pm so I missed it. Oh well... I'll drop by chat and say hey for a secif possible .It's hard these days.. Hope everyone is well..

HEY Linda..Boy you have a lotta work each day. Caregivers can get extremely burnt out. I know sometimes when Jeff is really sick and needs a lot of my time I GO NUTS.Between him and Liv and Kyle.Can ya get some respite somehow someway?? Yea easy for me to say I am still waiting on the respite we were approved for 2 months ago. 14 hours a months. WOOOHOOO.Better than nothing. take care BYE
 
Name:  Mary L    Email:   
Child:  Patrick + 3
Comment:
677    Thursday, 31 January 2002 - 09:53:54pm
Hello everyone! Wow, I was gone a few days and come back and there is so much going on! Hugs to everyone out there struggling right now with the people who are supposed to be helping your kids - not holding them back. I hope I can be as strong as all of you if ever the time comes.

I didnt get a chance to get on the computer the last few days because the dreaded flu virus ended up getting everyone this time. The boys finally went back to school yesterday and then today was a snow day! Hopefully tomorrow things will be completely back to normal.

I hope to make it to chat for a little bit tonight. talk to you then.

Mary L.
 
Name:  Ro    Email:   
Comment:
676    Thursday, 31 January 2002 - 08:40:52pm
Robin poooooooooooo

Ya know what chaffs my butt.
When I hear a person, cause we difinately can't call his aide a mom judging by her actions;), is when that person blames a child for their failings.

I think she shouldn't come back next year. For any kid. The reason is she seems to stressful to deal with kids at all much less during class time with a child who requires an imaginative aide to help.
She is dealing with him at a level he can't/ won't / will die before I conform type of setting. Don't get me wrong I dont know what she has tried. But she should be smart enough to know to try another avenue. The only think limiting her is her imagination. Maybe she would be good for some form of teaching working but she seems to have forgotten the reason she is there. It is not to make him fit any type of grouping, He is different, He is a leader and if he doesnt like it she then better mover her shin.( BUT CHASE WOULD NEVER DO THIS) He is there to be taught. She is to help him learn anyway he can grasp it.

....."that he needs a trained person like the special ed teacher to do one on one all day with him, that he is incorrigible, that he wont do anything for her, that he spends his whole day spitting at her, kicking her, slapping her, swearing at her, tearing up all his papers, refusing to do any work ever, running away, climbing under the tables...."
SO SHOOT ME I COPIED AND PASTED:)LOL

This is what her feelings are and I think she is right.
'SHE' NEEDS TO BE TRAINED if she took this position and she wasn't properly trained then the school is at fault. She needs to be trained to deal with the slaps , the spits, the swearing(BUT GOD KNOWS MY CHASE WOULD NEVER CUSS), The running from and the such.
A parent learns on a daily basis that if one method of instruction doesn't work you try another. Get his attention and then gradually enter the learning. No child is going to be FORCE feed long. They all rebel and maybe he has had enough of her traditional tries and wants to widen her scope.

BUT COME ON!!!!!!!!
Nothing he has done , WILL EVER DO, or even think of doing can cause her to be a bad parent.
...."She also kept saying that the big problem was that Chase knows he is different and want to not be there at school, and that he wants to be in a special school with his kind, she wsa stuck on his being aware and EMBARRASSED that he is different...."

Seems with this mind frame she is difinately in the wrong field of work. She seems to be very predjudice.

As for the seeing the forest for the trees.......
Well I know I am being bad here and I really think that that could be seen as.
THEY CAN'T SEE BECAUSE THEY HAVE THEIR HEADS RAMMED SO FAR UP THE RECTAL ORFICE OF THE OTHER . They have clouded vision. But it ain't no tree blocking their vision.


Robin,
Ya know I have never meet Chase . I am not partial to him on the grounds that I already love him because he is a really close friend I SEE , deal with and a have any happenings with on a daily basis. You are not being biased in anyway. Speak from your heart.
 
Name:  Radonna    Email:   
Child:  Kaden
Comment:
675    Thursday, 31 January 2002 - 08:18:18pm
Hi Everyone. I am back online again, Trying to figure out my new email. I wanted to email all my friends and I cant work it. Most my friends are here anyways so Hello Everybody!! I sure have missed you all.
Radonna
 
Name:  Christie    Email:   
Child:  Christopher, 9
Comment:
674    Thursday, 31 January 2002 - 07:23:34pm
Robin, I had to read your post twice to make sure I read it right, JUST UNBLEIVABLE This woman should be fired for talking to you like that at the meeting, no ifs ands or buts just fired. She obviously is burnt out or something and in no way should be working with children, just my humble opinion. I would insist that they do not wait till the end of the year for her to leave. I would insist she be gone NOW. Sounds like Chase would do better with no assistant then being with this one. We are only 1/2 way through the school year, a woman like that with her opinions and lack of trying anything that might benefit Chase is just not acceptable. OH my Robin nooooo wonder Chase is thinking sooo much more of Linda, he knows she cared and helped him as he must know this woman does not. You have others there that witnessed this unblievable behavior there should be noooo problem removing her from the position pronto for the sake of Chase. Even if Chase did know he was different, WHAT THE HECK DOES THAT MEAN???? Every child in every classroom is different in one way or the other. Its hard to figure why some people go into the field of work they do. ((((HUGS)))) Girl and you GO. Christopher has a one on one assistant and for him anyway she is the most important tool most of the day. This woman needs a time out from working in any school with any children. Absolutly Robin your next meeting you speak first and if anyone doesn't like what you have to say they know where the door is. If this assistant will be there you may want to consider recording the meeting. Just a thought. BTW, thanks for the poem, loved it ;-)

Cindy, thanks girl, sooo much and tooo much with the speech for Christopher to go into here, I will email you later, if thats OK :-)

Linda, just a thought but is it possible to get someone to come in a few hours a week to help with your Dad? Not sure of his age but if he is on MediCare or Medicade what ever they call it I think they may be able to help you some with this. Hope the meds kick in and he is feeling better.

Got to run lots to do before the bus gets here.

CC
 
Name:  Cindy    Email:   
Child:  kaylee - 8
Comment:
673    Thursday, 31 January 2002 - 06:47:17pm
And ROBIN! What works good for me when wanting to observe Kaylee is if I have some work to do for the teacher..cutting out things or grading papers. I sit at a desk in the back of the classroom - but Kaylee doesn't think I'm there to watch her because I have a "work project for the teacher" myself. She comes and greets me and watches me work after she completes one set of her work..then goes back to work. I get to observe on the sly...

I would not allow that IA to spend one more minute with my child. I would threaten to sue, I would DEMAND a different IA and would stay (is that possible for you?) in the classroom--maybe say for one week, while they found someone else.You could tell them you would be there exactly 5 days--though you are not at all obligated to that. All you have to say is that you've contacted you LAWYER and they will be hearing from him. Say that you fear for Chase's safety as the IA was completey out of control in the IEP--and that you don't want her touching or working with Chase again. If you put it all in writing with copies to the principal-the head of special programs in your district as well as to the superintedant of school then you will get immediate responses.

IN REGARDS TO THE ISSUE OF 'feeling' different. I actually believe that Kaylee see's the difference and is a little bummed sometimes about it. IF ANYTHING THOUGH-it only makes her want to do MORE of the things the other kids, certainly not be WITHOUT the other kids.

Last night Emma read Kaylee's reading book out loud and she did it pretty quickly and after the first story and she started the second story Kaylee put her head down on the table and started making some little quiet crying noises. I said "Kaylee, what's wrong?" "Emma's reading my boooook." and you could tell it was discouraging to her to watch Emma do it easliy. That won't be happening again. I'm all for Emma reading-but she can do her own books. I do think Kaylee see's the difference, but we try to talk about it openly and give lotsa love. Afterall-everyones different. I can't balance the check book well-and I'm certainly not a size 5. I make good cookies and yummy quesadilla's--but I don't make Chinese food. I'm just trying to encourage Kaylee to accept herself--and be proud of what she does well and remind her of her great character qualities-she's funny, she's kind-she's SO helpful. She really likes to serve others. So she may not be the fastest reader, but she's READING! and she has lotsa friends. I do think she know's she's different-she gets upset that she can't jumprope all by herself--but she can do it when others are turning a big rope--only once or twice in a row. She see's these things she can't do and she gets frustrated. Don't your kids do that?

The important thing is they are all little kids-and everyone is different. It's not our kids that are Different from everyone else. IT IS THAT ALL KIDS ARE UNIQUE IN THEIR ABILITIES-Disability or no disability.;)
 
Name:  Cindy    Email:   
Child:  kaylee-8
Comment:
672    Thursday, 31 January 2002 - 06:21:19pm
ROBIN! OH MY GOSH. Get rid of that aide!! Right now! If everyone saw her resentment and her attitude and YELLING?? She was yelling at YOU? How completely ridiculous. First of all--and inclusion assistant is not actually even supposed to BE at the meeting. One of ours comes, but only stays for 30 minutes or so and then we get a chance to talk about how SHE is doing after she leaves and which of her methods are working and whether SHE needs more training. I have been blessed with two VERY competant inclusion assistants for Kaylee-and they communicate well with me ALL the time. They have NEVER been disrespectful to me, OR TO KAYLEE. Chase's IA should be fired or moved to work with another child in the district. YOU CAN DOCUMENT this meeting and send a VERY detailed letter to the district office DEMANDING a new aide. I did this last year and we had a new aide within two weeks. I did not have the principals support at first, but once I wrote a VERy detailed letter, including copies of Kaylee's daily schedule which indicated terrible behavior whenever she worked with this one aide-they AGREED and got the picture that the personalities did not match at all.

For CHASES sake, they need to get someone to work with him that doesn't argue about his right to BE THERE. That is absolutely ridiculous. You should quote everything she said in your letter. This is a VERY UNSUPPORTIVE ENVIRONMENT FOR CHASE--and of course he will not behave properly when met with such negative attitude and the underlying attitude from the IA that he shouldn't even be there. UGH!

sorry for going on--If anything chase KNOWS the IA is holding him back from participating normally in the classroom because SHE DOESN'T THINK HE SHOULD BE THERE. Why would she want him to succeed? That would disprove her theory.

OHHHH! GET EM ROBIN!!
 
Name:  Linda (again!)    Email:   
Child:  Adam
Comment:
671    Thursday, 31 January 2002 - 05:47:15pm
Looks liek we were all on the Board at about the smae time! LOL! Robin -- looks like you & I should go to a "How to Speed Type & Still Spell Correctly" class! (Course in my case -- I don't think I will ever make it for the "speed" typing -- just ain't me - call me Turtle! LOL!) -- Hey - Maybe it's NOT US - it's just the ice & snow on the computer lines! LOL!
- Later!!!
 
Name:  Linda    Email:   
Child:  ADAM 7
Comment:
670    Thursday, 31 January 2002 - 05:36:13pm
First of -- I want to say "thanks" to ALL of you -- and especially to all who responded to my "dilema!" (there's so many & can't remember all the names now - don't have time to go back & read -- & I forgot to take notes! - Don't want to offend anyone by leaving you out!) You are all THE BEST! Your support helps me to keep my head straight & to just take "one day at a time" -- I keep telling myself that (see I talk to myself too!) but it sure helps when friends can empathize!

Today is not a very good day with Dad either -- On days like today I literally have to tell him what to do -- step by step -- "Get up, Walk upstairs, Hold on to the hand rail, Sit down, eat Breakfast, (pour milk, pour the cereal) Drink your juice (pour juice) .... Here's your pills (get them out)- take your meds -- Keep drinking - you need to finish the glass...." etc! He continually says what a burden he is, but when he is in this state he doesn't even have enough wherewithall to take his plate up to the counter when he is done eating!!!.... I am bushed -- but not beaten!! -- thanks to all of your encouraging words! All I can say is I wish I could've gotten Dad to see a Dr sooner -- he may not have become this depressed & therefore the road back to recovery wouldn't be so hard.... BUT I am thankful I was able to get him to a Dr when I did -- so enough of MY complaining!

-- DEBBIE -- I especailly want to thank you -- you are an inspiration to us here on this Board & you help us out soooooo much! You are so very honest & give us all a deeper insight -- thanks for being YOU!

Robin - Oh gosh - gee - we are all going thru some dilema or another huh??!!! :( Maybe it's in the air - mixed in w/ the snow & freezing rain.....We are gettting the saamew mix here - some schools south of us closed this AM BUT my kiddos all had school - hope they can all get home w/out accidents -- the roads look BAD outside -- and I see NO PLOWS! Don't know what's up w/ that -- we have a snow plow contract for the driveway -- the guy has been here like 2x all season -- but not today!! Hope he shows up before the kids get home form school! Robin - boy, I feel for you girl -- wow!can't believe the 1:1 DID that to you in the Meeting! She (in my opinion!) has GOT to GO!!! I think SHE is the one who needs the self contained environment from the sounds of her "speech" -- Wow - I too would be just blown away if Adam's aide did that!! You know, someone mentioned that he might be missing Linda still (I think that was his aide's name before, right?) -- It just might be that you know & HE may not even know it himself! As far as him knowing he's different -- i agree w/ you - I bet he doesn't really "know" it -- I think Adam does not "know" that he is different - but I know he DOES know to do things that will get the other kid's attention & to make them laugh -- even sometimes if he knows it is NOT appropriate behavior & he will suffer consequences for acting up - like staying in at recess, etc. I think the other kids "know" Adam is different -- I have talked to the school about this & have suggested that perhaps instead of letting the kids "guess" or assume something else -- that they talk tot his class about DS - maybe read a book or something -- The principal said tht they have done that before w/ other kids with other varied disabilities -- brought in a speaker to talk about the disability in terms that would be age appripriate for the kids in the class.... We may still do that for Adam this year -- don't know for sure yet.... When you go into Chases's classroom - any chance you could watch him without him knowing you are there (like a 2-way mirror?) I know sometimes Adam acts up/ acts out when I am in the classroom with him -- I think he thinks I will tell his aide that he doesn't have to do the work if he gives me a hug! HA!I will be praying for you girl -- you keep doing what you KNOW is best for your child!!!


Susan - thanks for the tips on screening for Clinical depression -- it helps to have a Nurse aboard here with us!! Sorry to hear -- sounds like the whole Family is not well w/ some virus? -- Keep healthy Dr Mom!! :)

Renee - hang in there girl -- I feel for ya - soooooo many changes & no DH around much pon top of it all!! :(


Ro - yo are soooo right --- this board is just great for venting, problem solving, worrying etc not to mention taking pride in our kid's accomplishments!! Thanks for the reminder & the "OK TO VENT" acclaimation! :)

Ta=hanks Annie for sharing about your Mom -- I do get nervous about leaving Dad sometimes -- it doesn't seem like he is suicidal -- but he does talk sometimes about me just letting him be so he can die, etc....Are these "early" warning signs? I have mentioned it to the nurses/ dr etc -- so far they think he would not try tot take his own life -- He is a Christain & does believe that suicide is wrong in God's eyes so I don't think he would do it......

Hi to Wendy! I don't think I remember meeting you before -- I am Linda, Mom to Adam (7 & my child with DS), also mom to Kate (9) & Aimee (12) & have a wonderful DH -- Married 22 years & counting --- his name is Ralph -- we live in Western NY state near Rochester..........

Well I have only read thru past few posts & certainly not caught up - I know there were others I was going to respond to but but I need to get going here -- Dad went downstairs to nap & I need to try to get him up & back up the stairs & get him to take a shower or bath before the kids come home --- otherwise it gets too confusing here for him to do anything but pace back & forth.....

{{hugs}} to all -- Can't promise anything but maybe will try to stop in at chat tonight.......
LINDA

 
Name:  Tori    Email:   
Comment:
669    Thursday, 31 January 2002 - 05:27:58pm
Hey all I will be there tonight to chat a catch up i hope all your kids are doing great. so i will see you all tonight
 
Name:  Dolly    Email:   
Child:  Eric 19months
Comment:
668    Thursday, 31 January 2002 - 05:02:13pm
Hello all;
I've been thinking about the possible get-together
in Cinncinnati and probably going to attend. Could
anyone give me any ideas on where to stay? I didn't
go last year, and have no clue. Never been to Cinci,
even tho I live only about 4 hours away. Thanks, and
looking forward to meeting you all.
Dolly
 
Name:  Annie S    Email:   
Child:  Sonny7
Comment:
667    Thursday, 31 January 2002 - 04:51:26pm
OH Robin I can't beleive this person is spending her days with your son I do think that I would find someone more positive for Chase..no wonder he struggles at school..Get her away from him now ....How do you spend yours days with a kid and not learn to love...Hope you find someone who will take and care for him as her own...

Linda please forgive me I didn't mean to sound like all people who suffer from depression take there own lives..My mother had some real lifetime issues other than the depression and its so great you are able to help him ...I would talk to his Doctor and find out just what is causing it could be chemical...
My first husband also suffered from depression and we found out it was mostly a chemical inbalance..

Cindy I too struggle with the Daddy being gone..some mornings Sonny cries for his Daddy..I think it is the hardest on him Having Steve gone all week every week..
He is so excited when he comes home...and I know that Steff too must struggle with this at times..

Cindy so glad to hear the you IEP went well..what have you decided to do about the school situation?
 
Name:  Robin    Email:   
Child:  Chase
Comment:
666    Thursday, 31 January 2002 - 03:12:04pm
YIKES, just saw my typing skills again , bad bad bad, LOL sorry. I do know how to spell, Susan has diagnosed me as typing too fast and messing up, LOL, but as I get excited or in this case, angry, I get to going very fast and not slowing down, LOL!
hugs, Robin
PS, Ro..... LOL Mr Clean huh???
 
Name:  Robin    Email:   
Child:  Chase
Comment:
665    Thursday, 31 January 2002 - 03:07:53pm
Morning everyone,
Chase and I didnt have to go to school today, we got over eight inches of snow dropped here last night, I am sure that Holly and little Jake got it even worse. it is still snowing and is suspose to chang to freezing rain by noon. I want to thank you all for all the support and love you have sent our way. The mtg yesterday packed a big punch and hearing your words were so healing and empowering to me, especially you Debbie. Your parents must be so awed by you and your strenght! You are a wonderful, wonderful person.
Iam a trained parent advocate and I know how to handle myself in mtg with other parents I help, but man oh man, when it is your own child and you are not expecting the blow and it comes out of the blue, it hits you striaght on and hurts so so much. The mtg started out great, with Chase's TC ( teacher/inclusion consultant) leading the mtg and telling us what she found with the behavior assessment and her suggestions, (which she and I had gone over toether and worked on) and it was then that janelle (his one on one aide) went berserk on us all and said nothing would work , that he doesnt belong in a regulare school, that he needs a trained person like the special ed teacher to do one on one all day with him, that he is incorrigible, that he wont do anything for her, that he spends his whole day spitting at her, kicking her, slapping her, swearing at her, tearing up all his papers, refusing to do any work ever, running away, climbing under the tables, and that she is not going to put up with a kid doing any of that to her anymore and she wil not be coming back next year because he has turned her into a bad mother, a bad wife, and a bad person who is very depressed, all because she has to wortk with him every day. She was so angry and mean. Needless to say, it was alot of yelling and unproductive conversation, I could go on and on. Every idea that ws givent o her she refused, saying it would not work and she would not agree to even try any of them. She also kept saying that the big problem was that Chase knows he is different and want to not be there at school, and that he wants to be in a special school with his kind, she wsa stuck on his being aware and EMBARRASSED that he is different then all of the other kids in his class. Tehn one at a time, all the important key players had to go without any thing being resolved and we ended the mtg with saying we needed to get back together asap. And to top it off, the support coordinator from mental health told me that she thinks the aide is right, he knows and is emabaarassed that he is different, and that I cant see it "BECAUSE I CANT SEE THE FOREST FOR THE TREES!" GRRRRRRRRRRRRRRRR, oh oh here comes the anger again.
I have to tell you guys, Chase is MY son and I know for a fact,that he is NOT aware yet that he is different! I know this as sure as I know my name is robin and that issue is rediculous and has nothing to do with his behaviors. If you could of seen her attitude, OMG, the principle was appalled by it, but didnt say anything to her, waited til she had left and told us she thought alot of it is that Chase can read the aides body language and who wants to spend the day with a mean hateful resenting person??? And if you give him negative attention, he is going to respond to that so fast, of course he will enjoy doing things to make you react. Ok I am sorry for going on and on, I will stop. I need to get the next mtg wet up any ways and start on my comments which I WILL read at the next mtg BEFORE any one has another word to say and anyone who does not care for my comments can feel free to get up and leave. Right?
hugs, Robin
 
Name:  Renee'    Email:   
Child:  Lauren..3
Comment:
664    Thursday, 31 January 2002 - 01:36:50pm
Good Morning
Well, I am off this afternoon to another meeting for Lauren. It is a "SNRT" a meeting where about 6 people get together at the day care to see if they can take care of Lauren's special needs. This is all so funny to me. I guess that they need to feel comfortable taking care of her or something. They will have doctors and educational specialist. I know they only want to take the best care of Lauren but I asked them can't you change a diaper and feed her? She plays right along with the other children. Anyway, they need expert advice. I will TRY and keep it all together today. I hope they don't get to personal on me. This move is stressing me out!
Wish me luck and I will talk to you all soon...
I have an IEP meeting tomorrow..I hope it goes well..I don't want to cry..again!
Have a great day!
Renee'
 
Name:  Christie    Email:   
Child:  Christopher
Comment:
663    Thursday, 31 January 2002 - 06:11:25am
Hi Wendy, Glad to see you posting :-) Was nice to hear others say they talk to themselves cause I do that alot, actually have some of my best conversations that way, LOLOL Wendy, if you don't mind me asking, what do you mean Matt's hands talking to each other????

RO, so nice to see you back, you have been missed girl ;-)

Susan, thanks for the email and yes isn't it amazing how I resemble myself, ROFPIMP Rest up girl, no time for you to get sick now, its almost chat night ;-)

Debbie, soooo nice to see you posting again. I for one enjoy your posts tons as I know many here do :-)

Robin, you will make things right, my money is on you girl. Hang in there and listen to Ro, we are all here for you and can all relate. When you are ready.

Linda, I can totally relate to your post. My Mom lived with my Sis and after my sis passed away my Mom came and lived with us. She was here for 2 years before she passed on. Its not easy having a needy parent living with you and trying to run a house and raise kids and all that goes with that. Hang in there girl, one day at a time. I am by far noooooo Doc, so I could be wrong, would not be the first or last time, LOL I have heard Depression can run in families but I also know people that have been very very depressed and noooo one in their family ever was. Linda this is not under your control, soooooooo try and not worry now you have enough to think about.

Steff, Good thoughts being sent your way for all Jeff's tests he is up for. Soooo glad you can get to go with him. Keep us up on how it goes, K.

Connie, LOLOL bout the food calling out to you. Hmmmm actually I think I hear some brownies calling my name right now ;-)

Soooo many more of you I wanted to respond to but it is late and I need to get off this puter.

Wishing all well

CC






 
Name:  cindy    Email:   
Child:  kaylee and emma
Comment:
662    Thursday, 31 January 2002 - 06:10:12am
I too had a LONG IEP meeting, starting Tuesday morning at 7:30 am and ending at 11. UGH! It was productive though Robin--I have a great IEP team and they really all want to help get it right with Kaylee. In fact the principal was insisting on more writing goals for Kaylee regarding sentance structure and story structure (beginning, middle and end). The one problem was that the special ed teacher wanted Kaylee to stop doing the Edmark reading program (whole words, memorizing) and focus ONLY on phonics. This is the same teacher that said, the first of this year when I requested phonics instruction "DOWN SYNDROME people cannot DO phonics well." Now she wants to do only phonics, when this is the second year of Edmark for Kaylee. The reason being because I was not happy that she had only gained 5 new reading words through Edmark so far this year. Well, I stuck to my guns and said I wanted to continue doing both Edmark as well as the Reading mastery phonics program. She gets 25 minutes of phonics instruction 4 days a week with the special ed teacher. She does the Edmark program for 20 minutes in the am with her IA. Anyways, the meeting was long, but I think we got good goals written. Haven't seen the final copy yet. Sorry yours was so depressing Robin-sounds like you don't have a very supportive team! Take good notes while your with Chase and have a good list of things they need to adjust for Chase--GO GET 'EM robin!!
 
Name:  cindy again    Email: