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| Name: | Valerie Email: | ||
| Child: | Nicholas 22mos | ||
| Comment: |
As for the head tilt, I've never noticed that, but we seem to have been blessed (so far) with good eyes, teeth, and hearing. I think the AV canal defect was our only problem. It was enough! And now that his surgery is done, we can relax on that count! | ||
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| Name: | steff Email: | ||
| Child: | Olivia (7) | ||
| Comment: |
Oh BARB!!!!! LOLOL!!!! Can I tell you this?? Liv was the SAME WAY!!!! She usta argue bout food when she signed too!!!LMAO OHHHHH You are in for a funny frustrating hysterically rewarding life ahead... Now an added bonus... On EVERY EVAL IEP etc it always says... OLIVIA KNOWS WHAT SHE WANTS and is able to express herself to get her needs met...LOL.. Now even when she was small about Alisons age it was really apparent she knew what she wanted and would drag you to, point to do, whatever she had to to get her DEMANDS( usually about food) met without holding any hostages....or just a few but they usually were willingly held.LOL.. Hugs girl you just brought back memories.. Hey I have a question for you all. Any of you ever noticed your kids develop a head tilt??? the last month or so I am noticing it big time in Liv. First thought it was just my imagination then looked at video and wow its very noticeable. She's going for another aai neck x ray this week. Her new ped wanted one and I would prefer to rule out aai before heading to the eye doctors. Liv HATES the drops at the eye docs. And I think I'm in denial about her vision just getting really bad.... she started out with her specs at 10 months. Her vision was 3.75 in the farsightedness game and had some astigmatism. WELL I thought they would get better as she dare I say..LMAO AGED????? NOPE her eyes last time went in one year from a 7.25 farsighted to 8.75... Just gets worse and worse. Hmm just curious. Her neck x rays have been fine and this will be #3. Although they did a lower back one a few years back that showed spina bifida occulta. Wonder perhaps she is prone to back probs???? hmmm.. just wondering out loud.nighty night | ||
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| Name: | Robin Email: | ||
| Child: | Chase | ||
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Valerie, Chase used to get speech twice and week and OT twice a week when he was Courtney's age. And yes by all means state what you want to be put in Courtney's IEP, remember you have the final say. If you feel your daugther needs it, then you dig your heels rihgt in and insist. Remember that unfortunately the squeaky wheel gets the grease so dont be afraid to squeak loud :-D :-D :-D Valerie, Nicholas's mom, does he have wide feet or skinny feet? In Chase's case he has the most narrow feet you've ever seen and our problem was never finding them wide enough but narrow enough. Now that he is using orthotics we are lucky as it isnt a problem because of his narrow feet, he can wear just about any shoe. The problem now is that he thinks he has to have the coolest and most expensive, like his brothers:-D Our youngest son who doesnt have DS has the widest feet however and we too have found stride rite to be the place to find cool and wide shoes:-D Brenda, I feel for you with the husky size pants. I have found some pants at Target that are all elastic waisted and the right length too but so many times most of them are either too long or the right length and way too long. I think we should be able to purchase sewing machines and write them off on our taxes, what do you think? :-) Suzi ...your Old Navy Store carries shoes? How cool! Does your Old Navy have a old car in the store that is there just for looks like ours does? (Can you guess where I am going with this???) While shopping in there as they were havng a HUGE sale, Chase sat down next to the rack I was looking thru so I took my eyes off of him I swear for about thirty seconds and then looked back down and bam, he was gone!!! I knew it was just for a second so I looked quickly up and down the nearest aisles, sure that I would see him and when I didnt I started to freak out cause you know how fast he is. As I was heading to the check out to tell the cahsiers I had a missing kid and plesae watch the doors while I started searching....I passed by the old car and out of the corner of my eye, I thought I saw a movement. I stopped looked back and saw nothing so I started to go and sure enough caught another peek. I raced over to that car and there he was hiding on me. Once I convinced him it was in his behind's best interest to come out and then taught him how to use the old lock on the car door, I got him out, grrrrrrrrrr. Why do I ever think I can take that boy shopping for clothes? Toys, yes, vidoes, yes, food, yes but never clothes. Barb....I bet Ali-oops will be walking before her second birthday too!!! I cant wait to see her and see how big she is! LOL to your first argument with you, how sweet and how samrt is that girl!!!!! Steff it is the weekend and I havent seen you post :-D How is school going? Connie are you guys coming with us in July, please say yes? And how about you Kristi??? Okay, kids nad DH are home so my peace is over. Hugs to all, have a great Sunday Robin | ||
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| Name: | Laurie Email: | ||
| Child: | MM | ||
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thanks - laurie | ||
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| Name: | Suzi | ||
| Child: | Merideth | ||
| Comment: |
We've also found Sketchers that look like MaryJanes to work for Spring dress shoes. | ||
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| Name: | laurie LI Email: | ||
| Child: | MM | ||
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hope to hear more of you...glad your son is doing well. laurie | ||
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| Name: | Valerie Email: | ||
| Child: | Nicholas 22mos | ||
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| Name: | Susan | ||
| Child: | Emily, age 13 | ||
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Susan | ||
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| Name: | Barb Email: | ||
| Child: | Alison - 23 months | ||
| Comment: |
Gotta share a funny with you all! This morning after breakfast, I put Alison down on the floor to play. Well she very quickly made her way over to the cabinet where the cookies are kept and started pointing to it and signing "cookie" and jabbering away. I told her, no, no cookies now. Well, didn't she start signing, yes, cookie, yes, cookie, over and over to me!!! I wish you guys could have seen the expression on her face while telling me this!!! Again I told her no, it's not cookie time, after lunch you can have a cookie. Well, lunchtime comes, and after she finished her ravioli's ( her very favorite lunch!), didn't the little booger start signing "cookie" and "time"!!! Now, we've never worked on the sign for time, but she has seen it many times since Christmas when we watch her "Signing Time" videos so I was totally floored when I saw her do it!!! Once I stopped laughing, you guys can be sure she got an extra cookie for all her troubles! Then tonight as I was sitting at work waiting for that last, long minute to go by before I could leave, it dawned on me that Alison and I had had our first "arguement" and she's not even really talking ( at least in "words") yet!!! I just started laughing again. Alison has also started pulling to stand and is cruising the furnitures and going along the walls! It looks like she just might take those first few steps by herself before her 2nd birthday! I'm not so sure I'm really ready for it, but boy, oh boy, I can't wait!!! Barb | ||
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| Name: | Susan | ||
| Child: | Emily, age 13 | ||
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Susan | ||
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| Name: | Brenda Email: | ||
| Child: | Billy | ||
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| Name: | valerie Email: | ||
| Child: | Courtney | ||
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Valerie | ||
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| Name: | Jessie Email: | ||
| Child: | Jason, 11 | ||
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Jessie | ||
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| Name: | Jessie Email: | ||
| Child: | Jason, 11 | ||
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There has been much discussion about this topic on the message board recently. If you click over there, you will find very recent postings that may answer some of your questions. Jessie | ||
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| Name: | valerie Email: | ||
| Child: | courtney | ||
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ps Should I have what i want for her put into her IEP? Or is that for what they are giving her only. Thanks Valerie | ||
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| Name: | Robin Email: | ||
| Child: | Chase/12 | ||
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Who hems Liv's pants for you? I have the worst time with that. I guess I need to buy a sewing machine as Chase needs about 6 inches cut off the length of his pants, LOL! He's not fluffy, just wayyyy too short! Debi, how is work and how is Gabe doing in school this year? Would you believe me if I said schoolfor Chase is awesome, amazing what a federal complaint against a superintendent can do to motivate people isnt it??? Huggers, Robin | ||
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| Name: | Debi Email: | ||
| Child: | gabe l3 | ||
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| Name: | steff Email: | ||
| Child: | Olivia (7) | ||
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Robin hey girl Chase a size 12??? Can't picture it....Well Olivias a size 16 in Old Navy capri sweatpants. Fit her just like pants do That belly. Man can I relate...although she has the beefiest thighs. ANNIE Glad all went well with the surgery and you feel lots better thats the most important... BRENDA Where'd you go?????? Come back e-mail me wanna talk with ya. Goota share... we bought a digital camera last night... my husband being the electronic junkie he is has all the features worked out 30 minutes after we get it. This morning he is taking digital video of the kids..me?? I have morning face so lay flat on the ground with my face in the carpet. Olivia starts calling my name I ignore her...(thought her dad put her up to it to get me in the shot)Liv starts shaking me ...no response from me.... Liv gets nervous and runs to Kyle and frantically says "KYLE MOM STOPPED WORKING!" LMAO..... Of course I crack up and Jeff gets his wish and morning face is in the shot. The end... | ||
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| Name: | Robin Email: | ||
| Child: | Chase/12 | ||
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Laurie.... (((HUGE HUGS))) to you and your Mom!!! She is in all my prayers. I am so glad she has you so close!!! LOL to your own bedroom, so what does Matthew think of his own room? BTW.... exactly how much snow did you end up with? I am home today because our whole county is snowed in :-D We ended up with 10 to 13 inches, depending on where you lived. It is beautiful but holy toot, it needs to melt and let us out. TG we haave tons of groceries because everything is closed. I bet good ole Laura Snowbird is in her glory:-D And btw....it is great snowman making stuff:-) Steff.....Chase is really good at index card memorization (that is part of how he learned to read so great at such a early age)so maybe I should send him to you to help with your studies??? LOL, I am kidding! You are going to do great, as smart as you are, there are no worries. LOL to Liv and her garbage bags :-D :-D :-D She is the funniest kid!!!! I sure wish we lived closer!!!! Son #2 (David) bought a house and moved in over the weekend, and we watched the new grand baby Grant for them overnightand all day, now I remember why old people shouldnt have babies, NOT that I am calling myself old mind you, I was thinking more of CC and Susan :-D Connie....are you coming to the get together> PLeeeze say yes!!!! Not, maybe, not we'll see, but "YES MAM, WE WOULDN'T MISS IT" type answer please!!!!:-D I cant wait to see the kids and see how big my man is, does he still love to cuddle??? Okay, kids are screaming for attention, hus to all, Robin | ||
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| Name: | laurie Email: | ||
| Child: | MM | ||
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It's snowing...snowing...5 inches so far. Not sure when it's supposed to end. they said 5-8" so we'll see. Only good thing is it's finally SNOWMAN snow!! i've been promising the kids a snowman all winter and it's been cruddy snow. I can't wait! Then it can all melt and never come back, lol! It just better not start raining before we can get out there. hope everyone is well - hugs - laurie | ||
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| Name: | steff Email: | ||
| Child: | Olivia (7) | ||
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Thinking I am gonna need some help in anatomy...Oh man...so much to memorize...YIKERS!!!! Just had to share a funny that just happened.... I am getting Olivia ready for bed. Now she wears a goodnight diaper at night only.. This child has the body of the little teapot... Anyhow I ran out of diapers since she only wears one a day I forget sometimes. WELL when she had stayed with my mom when Jeff and I grabbed a few days away in San Diego my mom bought these diapers that said briefs on the front but when she opened em they llok like GIANT DIAPERS TAPE and ALL. Well I go find them take it out and Liv said in really high pitched slightly whiny voice (for Liv)" MOM not the TRASHBAGS!!!!!!! LMAOROTFLOL!!!! Cracked me up.... They do resemble trashbags... Gotta go she will not stop talking to herself and if she is talking to me and I don't answer she knows she just says...HEY STEPHANIE CAN I whatever it is she wants. Doin it to me right now. Crazy kid. Nighty night | ||
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| Name: | marcy Email: | ||
| Child: | Bethany | ||
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Playing the loveandlearning tapes in the car is a great idea. I'll try it. Yesterday and today I put them on while she was playing. I don't think she really paid much attn to it - but who knows? I'll keep trying. Thanks! | ||
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| Name: | laurie Email: | ||
| Child: | MM | ||
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Robin - haven't looked at the Chase pics yet, but am gonna in a few minutes. thanks for sharing :-) Mom's doing OK, not great -- they found a new spot on her liver so that's not good...but she started a new chemo. Hopefully that will help keep it at bay. Didn't expect a new one to show up so soon...so tough to deal with. And she's having nasty reactions from the new chemo....which is unusual for this type. So we'll see. thanks for the prayers. We need them! hugs! Steff - good luck with school!! If you need anatomy help let me know...was one of my very favorite classes -- I took a year of it for pharmacy school, and a semester when I got my associates degree...THe only problem w/ that class (it was anat/physiology) was I ended up thinking I had every bizarre, rare disease they would describe....too funny. Good for you in letting that teacher know she was incorrect, in a very diplomatic way Annie - glad you are doing well and healing up....you're in my thoughts and prayers. Not much going on here. Hubby is painting Matthew's bedroom...he's finally moving out of our room (hooray!)....we have a weird living situation here with mom and grandma sharing the house (they have their own apartment) but we needed the extra bedroom for when my brothers come to visit so Matthew had his crib in our room. We finally got things sorted out...and I will have my very own bedroom for the first time in YEARS! (unfortunately I have to share with DH though, LOL!). I feel bad though, because I'm not allowed to help paint. I was at the chiropractor today and the ulnar nerve in my right arm is inflamed and I'm not supposed to do much until it calms down. My whole elbow was rotated or suponated or something....jeez I should know if I took so much anatomy, LOL....but atleast now I know what all the pain was from :-) ok -- well, gotta finish up dinner. hope everyone is doing great -- laurie | ||
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| Name: | ANNIE S | ||
| Child: | sonny 10 | ||
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Robin wow I can't believe that is Chase he has filled out and is so grown up.Hugs Sonny is doing great he isn't growning taller at all he only grew an inch last year hopefully he takes off soon and doesn't endup short like me... Wow you do have a full plate Steff...I took Anatomy in college and it was the hardest class I ever took...good luck... I have good news this week My heart is totaly closed...It usually takes 6 months but mine is already closed at 3 yeah no more blood thinners..just asprin...no more bruises Susan how are you I sure miss our chats we need to plan one soon with you and Robin and all the girls Becky how is Justin doing, he isgrowning up so fast. Susie How cute Meri is wow she is getting so big what a doll thanks for sharing .. Jackies hi how are both of you doing....good I hope.. Connie I bet Colin is getting so big too.. Take care all Annie S | ||
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| Name: | Marcy Email: | ||
| Child: | Bethany | ||
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thank you for your response. I know there are organizations for assisted living - my brother used to work for one of them. But, I was wondering if anyone was living independently without extra assistance. I actually received some responses - which I'm sure you read that gave me a positive answer. I just want to know what the range of hopes for the future are. I've decided I'm going to shoot for the stars and I will continue to encourage Bethany to do the same as well as she grows. Thanks for the info . . . - Marcy. | ||
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| Name: | steff Email: | ||
| Child: | Olivia (7) | ||
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Well I am officially back in school. Drag this is probably the last post till the weekends cause man I have so much work. I have 10 units left so I took em all at once not sure I should be doing this but heck I wanna be done with these requirements and into either a state college a bit of a distance from here or UCLA which alas is far beyond my realm of financial dreams. Oh well I did apply for some grants for next year and got them and the schools I have been accepted to(WAAAA with the exception of ucla) are gonna give me some other financial paperwork I hafta fill out by march which should pretty much lessen the financial burden to something doable for me...I have an anatomy class worth 5 units and 2 child development classes 3 units each one is really good . It is called Strategies for Including children with special Needs. Great book. Although the teacher used the term NORMAL a million times in class when comparing our kids to TYPICAL kids. That is one word that bugs me out. I did in the end when she asked what we were planning on doing with our majors tell her I have a child with ds.And she also went to the TYPICAL classroom and was included... Kinda reworded her words. A couple of people cracked up I guess the tone of my voice was a bit stern when referring to TYPICAL rather than normal.Such a stupid thing for me to get buggy about but I really tolerate most things, just i dunno guess I thought a woman with 2 masters degrees teaching this class would have a better choice of words. Figured my other 2 classes are so hard might as well take a class where I know exactly what the teacher is talking about when she refers to proximinal zones, IEP's IFSP's,scaffolding , pacing preference inventories...LOL... FEEL like a genius there now the anatomy class is a different story although having Olivia and jeff in my life have helped me tremendously with terms and things I never woulda known.Whoda thunk all those times with them in the hospital would help me in my anatomy class. Guess it all sunk in... LOL....Plus it always helps to have a bro who's a ped's nurse to help me study for tests.... Enough of me I just wanted to forewarn you I'll be away then back sometimes on the weekends for some fierce posts... BRENDA!!!!!! HEY!!!!! Oh man it has been sooo long.... For the ursing...hmmmm... what helps me most with Olivia is to ignore it. By not making a big production out of it and getting the response she OHHH SOOO WANTS she just gives up and sometimes apologizes without me saying a single word. Its funny too cause she'll get miffed I am not answering or responding in any way to negative words or behaviors and she do em louder and louder then she';; talk to this amazing "good angel" she has to the right of her with her hand over her mouth like she's passing a secret on to her friend next to her and say "Olivia that was not nice tell your mommy sorry' ... then she'll say ALLLLLLLright and come give me a hugger and apologize. Gotta love this angel to her right always gives herself great advice.We live in Los Angeles where every person drives with cell phones hanging off their ears and trying to get ahead of the next guy on the road and man I have had to learn to tone down my driving mouth....After liv called a couple of people some choice words when we were driving I thought I had best do that....Y awanna know how bad I am?? When someone cuts me off badly and almost gets me in an accident or does something really dangerous I drive up next to em then I give Liv the go ahead to WAVE say HI blow kisses. Just a gentle reminder that they should be more careful. As much as they hate to look over for fear I am gonna curse em out they always manage to see her wave back and we usually get a sorry... hee ROBIN I LOVE YA!!!!! I gotta go back to the books but have a great week!!! steff | ||
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| Name: | julie Email: | ||
| Child: | elias | ||
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| Name: | Marcy Email: | ||
| Child: | Bethany | ||
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I have the first two packets of love and learning! I came across it when Bethany was a couple of months old. I had been very dedicated to doing it every day - but I have become neglectful the past few months. I really didn't know if it was doing anything for her (since she's so young). But now that I see that it is actually working for Cole, I am going to get back to doing it tomorrow! I'm actually excited about it now! I was very consistent with the word books. Bethany was not really interested in the videos. She also doesn't really "nap" during the day so I wasn't using the audio tapes either (they suggest playing them while the kids are going down for a nap) - but now I think I'll stick on the audio tapes a couple of times a day while she's playing (I usually have on either classical music or Sesame Street music). I am excited to start it again! When did you realize that Cole was getting something out of it? When did you begin using it? Bethany is not talking yet (other than mama and dada and a little babbling) so I won't be able to know what she is absorbing right now. Also - I would certainly e-mail you - but I don't have your e-mail address. With regard to the support group you have, I don't know if you are in my area. I'm in Williamsville, N.Y. Actually, I am in a parent/child group at Born Hava school and the parents there are very nice too. There is one woman who has been trying to get a bunch of moms together for an evening and I would certainly participate in that if it comes to fruition. You can e-mail me directly as well if you want. Hope to hear from you soon . . . - Marcy. | ||
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| Name: | Kristin Email: | ||
| Child: | Cole -- almost 3 | ||
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| Name: | Connie Email: | ||
| Child: | Collin | ||
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Try this http://www.saginawspirit.com/scrapbook/ Robin.... Man on Man...I can't beleive that is Chase!!!He has gotten so big!!! It did my heart good to see him out having fun!!! Connie | ||
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| Name: | Robin Email: | ||
| Child: | Chase/12 | ||
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Susan....LOL to your im, I think Emily has the best social life, she goes to girlscouts, she gets invited to every birthday party and Chase has still not gotten a birthday party invite :-( she is on a basketball team, a soccer team, swims every week. I still think though, ....her AND Chase's social life would be fantastic if you would just move here to Michigan. I cant move yet cause we would lose Nichole and what would we do without her in Chase's life is beyond me, so you guys move here, the pay is wayyyyy better then Tenn, Terry's mom and sister would be so happy, (not to mention I would be ESCTASTIC) Emily and chase could go every where together and that would mean he has a real friend (sigh)and best of all, you and I could go SHOPPING together all the time. (ops, I forgot, the stores are five mintues away from us) so, besides the weather which is almost getting good right now, you have no reason to say no, when do you want me to help you guys pack? :-) STEFFY........ where are you? It is not like you to not be here! So Barb, do you think you'll be able to make the trip in July? Laurie, how is your mom doing? She is still in my prayers. Suzi, if that wasnt the sweetest picture of Meri I ever saw sitting like a big girl on her pony!!!!! Cathy, has the snow melted enough for you to dig your way out and come visit us soon? Jello ....how was your anniversary and when are we going to meet in Frankenmuth again? Say soon!!!! You, me, Dave and Chuck, no kids, what do you say????We can just walk around and window shop and go somewhere to eat dinner and it doesnt have to be Frankenmuth if you want. Or heck, we can do a movie too, you know, pretend we are grownups:-D Okay I work the second shift today, we are having a dinner dance for my students, a soda shop sock hop from the fifties and I am going to stop in and see my beautiful new grandson Grant first. BTW.... how are our new babies doing, Chris and Annette's both! hugs, Robin | ||
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| Name: | Marcy Email: | ||
| Child: | bethany | ||
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I ordered and received the videos from the Karen Gaffney foundation. They were definitely worth viewing and thanks again for the suggestion. - Marcy. | ||
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| Name: | Claire Email: | ||
| Child: | Adam 7 | ||
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Claire | ||
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| Name: | Robin Email: | ||
| Child: | Chase/12 | ||
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Laura and Cathy and anyone else whooshing this storm that is descending down upon us, take it back!!! Even another snow day isn't worth freezing rain followed by 8 inches of that disgustingly nasty cold white stuff!!!! Hugs to all, Robin | ||
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| Name: | Robin Email: | ||
| Child: | Chase/12 | ||
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I guess I have been gone a bit too long again because there were tons of posts to read!!!! Maria first...I am so sorry your dear Dad passes away. You and your family are in my prayers. Hugs to you, I sure wish I could be there for you bud. Steff...when does Jeff go in for his surgery, isnt it coming soon? He is also still in my prayers! Let me know okay? Once again, I sure wish we all lived closer so I could be there to watch those two kiddos for you. I read the post about expectations for our kids.... I have been shooting for the moon for Chase since he was born and while I realize there are a few things he will never be able to do, there is TONS he can and will do... and for those of you who dont know, Chase also has ADHD, is bi polar AND has senory issues. He will go to prom though, he does talk on the phone now, and I am sure he will do it more and longer the older he gets, he will and does go to the mall now with friends (and a adult) to play at the arcade and check out the cool stuff, and I completely have to believe he will lie independently with some help and as for getting married, ha, he has been engaged to Susan's beautiful Emily for several years and once we decide where we are all going to live when we retire, they will be homeowners because there is alot of progrmas out there to help and if the state we choose doenst have a program, well then, Susan and I will help them make a program to help the disabled population become home owners :-) Chase is over his pnemonia and doing good, he has become an avid hockey fan with the help of his teacher who has players from Canada living with her and gives us free tickets and passes to meet with them after every game. She has also taught Chase how to access their web site and he knows the name of every player:-) They also come to school once a week as a reward for Chase's good behavior, can you believe I said good behavior and Chase in the same sentence? There were years when I thought we would never see these days...:-D He still has no safety skills, but wow he has a better social life then we do!!!!! Life for Chase is good guys, really good!!!! Okay we are home because of a terrible ice storm last night, Laura and Jello Jack, did you guys get it too?? Great Valentine Gift:-D Anyways you two, I think we need to meet for the day and hang out, so we need to plan this, Okay? I miss every one terrible!!!!! Susan and A and I and several others are meeting this summer so maybe you guys can make it too??? Cindy, Hey there!!! I did think you fell off the planet, I bet your little guy is half grown up by now :-D I wonder how Ro is and Car..any one talk to them lately? Hugs to all, Robin | ||
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| Name: | laurasnowbird Email: | ||
| Child: | Ethan, three years old! | ||
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~ ~ I posted a link to an article about college programs for children with disabilities on the bulletin board. Please check it out - stuff like that encourages me and reminds me that NO ONE has any idea what my child's potential is at this age. That is all yet to be determined! I believe there will be far more opportunities like this when our kids are grown! ~ ~ | ||
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| Name: | laurasnowbird Email: | ||
| Child: | Ethan, three years old! | ||
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~ ~ Are you out there? Just thought I'd tell you I've given up COKE for Lent, and I'm suffering terribly. Wish I were a Pepsi drinker, that would be much easier to give up, ROTFLMAO! | ||
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| Name: | Marcy Email: | ||
| Child: | Bethany | ||
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| Name: | Claire Email: | ||
| Child: | Adam 7 | ||
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| Name: | marcy Email: | ||
| Child: | Bethany, 1 | ||
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| Name: | laurie Email: | ||
| Child: | Meghan - 4 | ||
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I don't think that teacher was very nice or encouraging...no, not all adults with DS can live on their own, or whatever...but some do! One of my good friends, who lives in TX, has 2 friends w/ kids w/ DS. The 'boys' live together in their own apartment (not assisted living!), take public transportation to and from their jobs, go to ARC dances, have a social life...one of them is ALSO attending a local college. Jackie's (who posts on the BB) Emily, who is in her early 20's is living 700 miles from home and working as (i think, and apologize Jackie if I'm getting this wrong) a house manager. She flies between her work-home and parents home at holidays etc, by herself, and also attended a 2-yr college, and lived in the dorms (?). It IS possible...I mean life probably won't be the same as it is for most typical teenagers and young adults, but it can be somewhat close. Depends on what type of CHANCES and ENCOURAGEMENT we give our children...and when there are people like that teacher who have outdated attitudes and stand in our way...that's when we run into trouble. And just think...hopefully when your darling daughter is in her teens and 20s...maybe the attitude of the outside world will have changed some, and people will become more and more accepting of our children and not look at the challanges but at what they CAN accomplish! When Meghan was born I didn't know what to expect...she just turned 4 and is doing really well. She's in an integrated preschool (1/2 typical kids, 1/2 w/ disabilities)...she's starting to READ, can count to 20 and knows her whole alphabet, colors, shapes, etc. yes, she's still behind typical kids her age, but she's doing so much and so well...and will continue to do so because she has her family and teachers and therapists that support and love her. DOn't let this teachers words get you down or get in the way of what you want for your daughter...maybe she was trying to be "helpful" (in her mind) by giving you a harsh dose of reality...or reality as she sees it. And maybe these ARE things she has seen but it doesn't mean it always has to be that way. Do most adults w/ DS live in asst. living, group homes or with family? Probably yes. Do they all? NO! Alot of adults w/ DS have jobs, at different levels, different responsibilities...some get married, have bank accounts, manage their own households, etc. Will it be a little different for some of our kids, probably... My other words of advice would be not to think so much about what might be in the future..difficult to do, I know. What will be, will be...but focus on the here and now and helping your child to acheive everything she needs to grow and learn...and also remember to ENJOY this age....they grow too too quickly!! And, if this lady is as annoying or discouraging as she sounds (unless she's really GOOD at her job) remember, it's your right as a parent to request a new teacher. Enough outta me...hope this helped some. laurie | ||
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| Name: | Kristin Email: | ||
| Child: | Cole | ||
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P.S. Do a search for Karen Gaffney, I think it might even be karengaffney.com. She is an amazing self advocate that travels the country speaking about how much individuals with DS can accomplish. Her website is amazing. I know that she is speaking at the Buddy Walk and related Down Syndrome Celebration in Sacramento this month. | ||
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| Name: | Jessie | ||
| Child: | Jason | ||
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| Name: | Marcy Email: | ||
| Child: | Bethany | ||
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| Name: | Brenda Email: | ||
| Child: | Billy 10 | ||
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| Name: | steff Email: | ||
| Child: | olivia(7) | ||
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I was feeling mighty blue tonight just a lotta stuff going on and I sat my head on the kitchen table and just cried. WELL... gotta give it to Olivia she does not like anyone to cry or be sad she just hasta make em feel better. So she walks into the room unbeknownst to me. I look up tears flowing and she gives me the sweetest hug and wipes my tears then starts to sing this song to me as she gently rubs my cheek. I even wrote it down after cause well you'll see.....This is sung to the tune of HUSH LITTLE BABY... here goes.. Hush little baby.. come blow your horn... Mommas gonna buy you a piece of corn and if that corn will not sing mommas gonna buy you a chicken wing. I ROTFLOLPIMP..... and she sang it soo sweetly and when I laughed she was soo happy she made me smile we rolled on the floor together and lol.... Also the Law enforcement awareness network has developed safety id cards for both adults and kids. These cards are designed to give first responders the info they need to better provide timely and appropriate services to your care recipient. It provides space for critical info. a recent photo, and thumprints., card can be updated as condition changes and as they age etc. These cards can be downloaded at www.leanonus.org. If ya can't download pdf files write me and I'l give youn their snail mail. These are free. | ||
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| Name: | Claire Email: | ||
| Child: | Adam 7 | ||
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| Name: | Alice Email: | ||