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July - Sept 2005

 
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Name:  Nicholas    Email:   
Child:  don't have any
 
Name:  Adrienne    Email:   
Child:  Russell age 7 and the girls
Comment:
254    Thursday, 29 September 2005 - 01:59:34pm
RAAAADOOOOONNNNNAAA!!!! Girl.. I am so glad you are posting again!!!! Now.. get over the the BB part and start posting!!!!!! Hope you are enjoying school! I need to talk to you!!! We are changing Russell's placement again!!!!!! :(

Hugs!

A.
 
Name:  Kathleen    Email:   
Child:  Rhienne, 9
Comment:
253    Thursday, 29 September 2005 - 04:41:42am
Radonna!!!!!!! Hi girl, long time no read!! Glad to see ya back.
 
Name:  Gloria    Email:   
Child:  Jacob Elias
Comment:
252    Wednesday, 28 September 2005 - 06:48:16pm
Hi Jennifer,
Gerber offers life insurance. I have my son Jacob insured through them. The premiums aren't bad and the rates you begin with won't go up until they are 21.
 
Name:  Claire    Email:   
Child:  Adam 7
Comment:
251    Wednesday, 28 September 2005 - 04:17:15am
Just letting everyone know I'm back. We've been so busy with me working full time, my husband just started a new business and the kids starting school. Promise I'll come back more often. Missed you all. I was looking at some of the posting and boy am I lost. Been away too long I guess. Hee,hee....
 
Name:  Alice (Alla)  
Child:  Luke (5)
Comment:
250    Tuesday, 27 September 2005 - 09:03:26pm
Wow.... Radonna!
So, glad that you are back!!!
Glad that Kaden doing great! WTG, Kaden!
Good for you that you are in school!
Hope to hear more about you and your family soon!
 
Name:  Mary    Email:   
Child:  Patrick + 4
Comment:
249    Tuesday, 27 September 2005 - 01:25:07pm
Radonna~It's so good to hear from you! Post about all the kiddos when you get a chance~I want an update on everyone!

Mary
 
Name:  Debi    Email:   
Child:  Gabe l4
Comment:
248    Tuesday, 27 September 2005 - 02:09:40am
RADONNA!! A big shout out from all your old friends at Uno!!! WE NEED a KADEN UPDATE ASAP lol.. next time you get to your computer lab you will have all these messages of welcome waiting for you!! Get on over to the bulliten board so we can see how the heck you are!!
 
Name:  Susan    Email:   
Child:  Emily, age 14
Comment:
247    Tuesday, 27 September 2005 - 00:57:17am
Whooooo Hooooo!!!!! RADONNA IS BACK!!!!! WELCOME HOME GIRL!!! Can't wait to see you posting again. Tell us ALL about Kaden and his brothers.
You've been missed!!
Susan
 
Name:  Radonna    Email:   
Child:  Kaden Jonathan and Evan
Comment:
246    Monday, 26 September 2005 - 11:58:32pm
Hi Everyone! It's been so long since I have been on the computer but hopefully I will be able to be back pretty often. I still don't have the internet at home but I just started school and found the COMPUTER LAB!!! Kaden is doing awesome. I am actually in class right now or I would write longer. Just wanted to say I AM BACCCCCCCCK!!
Missed ya'll
Radonna
 
Name:  pat    Email:   
Child:  cory
Comment:
245    Monday, 26 September 2005 - 03:08:12am
Regarding your questions mom about can your child go
to school at the age of 3 or 4. Yes. My son cory (DS)
started pre-school in the public school system when
he was just 3. They usually have to be potty trained.
He is now 15 and attending our local high school in
a special education classroom but also goes to regular
classes with normal children. Don't worry having a
child with DS is a blessing. They are loveable all
the time. God only gives special children to parents
that he know will be able to handle these special
children.
 
Name:  anonMom    Email:   
Child:  yes
Comment:
244    Sunday, 25 September 2005 - 04:29:15pm
Jyoti. Children with DS have all different levels of ability, just as typical children do. Some do better with some things than others, some have more trouble with things than others. All have their strengths and weaknesses. The same with outward (physical features). Some children with DS have certain features that are more pronounced. Others do not. The line across the palm (palmar crease) is NOT an indicator of DS. Typical babies can have this line or not as well. Not all babies with DS are born with this line, nor is it an indicator of intelligence, ability or DISability.
Have the doctors done chromosomal analysis on your child? What do the results say? That is one thing you cannot refute. If the analysis says he has DS, (or Trisomy 21, 3 21 chromosomes) then that is what he has.
I hope you have your son in therapy where professionals (speech, physical)can assess his strengths and weaknesses and help him in areas where he may need assistance.
Do not dwell on your son's DS. He is a BABY first. DS just happens to be that little something extra. Love your baby and cherish him. Do not look and tear apart what he may or may not be able to do. Love your son as the individual that he is, do not compare him to his siblings or others. best of luck.
 
Name:  jyoti khurana    Email:   
Child:  priyansh khurana
Comment:
243    Friday, 23 September 2005 - 09:13:03am
hi! i am jyoti, i have twin daughters of age 10 years. They are extra-ordinary intelligent in all. Now I got a son, he is going to complete a age to 2 years on 20 Nov 2005. He is very-very cute, fair, intelligent but he delayed all the things like sitting/walking and talking. Now he independently walks and talk little bit like papa, mumma, dida(sisters),dada(grand pa)dede(if he wants something). He make us understands with his perfect actions. He recognized the pictures of A-apple, B-baby and many more and pointed to them when i asked him. He is very brainy and also made the sounds of animals like horse/dog/lion. Even he has started writing 1 on the B-board. He always made the sign when he wants to do potty. Nobody can judge to see the baby that he is DS child. He had only one horizontel line missing in his right hand, he has only one straight horizontel line in his right hand with the other lines. But his left hand is perfectly fine. In the beginning he was delaying so much activities but now he is perfectly find and improving day by day. His has 8-10 teeths but he chew very well. He likes to have chapati with vegetables. I am ready to accept that he is a DS child. Because he does not look like that. He is very sweat, good natured, cool. He enjoyes watching music video and dances so well. Pls help me, i wanted to know can he be a DS child with so much qualities. Only one line missing can make him DS child. I never see any mental retardation signs in him. Is it possible that he is a DS child without mental/physical disabilities or retardation. He has not any physical ability accept the one horizontel line missing. He had delayed many things but day by day overcoming from them. He is such a cute baby and learn so fast that nobody can imagine that he is a DS child. I know that after completing 2years of age, child can do more things which he can't do. He does all the work which can be done by the 1 yrs child but is it means that he is a DS child. My daughter are very keen that he should go to their school only. But i wanted to ask can he go to their school properly or can he join the school at the age of 4-5 years? Pls mail me urgently with all my answers. We will be very grateful to all of us.
 
Name:  Annie S    Email:   
Child:  Sonny now 11
Comment:
242    Thursday, 22 September 2005 - 04:32:23pm
HI All we are back and we had a great time..Sonny had and on board romance..she was 11 and from Georgia her name was Emma and she was so cute about giving Sonny hugs and she even let him Kiss her on the check which he would steal from her..poor kid had It big time for her..he cried all the way home I want my Emma..he now tells me he is going to marry her lol...That is great about the Dance..Pat I am sure Cory will have a great time...Thanks Robin Hugs to Zach and Chase...
Take care all Annie S
 
Name:  pat    Email:   
Child:  Cory
Comment:
241    Monday, 19 September 2005 - 10:06:32pm
Hi Susan,
Saw your post on Uno Message Board today. So you have
a fourteen years old girl with DS. Well I have a
15 year old boy with DS. Aren't the teenage years
fun? My son Cory's brother is a senior this year
and Cory tries to follow in his brothers footsteps.
A friend of mine daughter (19) has decided to take
Cory to his first Homecoming Dance at his high school
in Oct. When she said she would go I started to cry.
Wish I could be there to watch the fun he has.
.
 
Name:  Susan  
Child:  Emily, age 14
Comment:
240    Sunday, 18 September 2005 - 12:09:33pm
Noah's MeMe~
WELCOME TO UNO MAS!!!!! And congratulations to you and your daughter on the adoption of Noah!!! It's wonderful that he does not have a heart defect. Looking forward to hearing more about him. Please visit our Bulletin Board........there are hundreds of topics there. If you have any specific questions, you'll get more responses to them on the Bulletin board. WELCOME!!
Susan
 
Name:  Noah'sMeMe  
Child:  Noah
Comment:
239    Sunday, 18 September 2005 - 04:54:47am
My daughter is adopting a baby boy, Noah, he is now 10 weeks old, we got him when he was 16 days old. They thought Noah had a heart problem when born but after many test and a follow up with the doctor last week, he does not have one. Thank God!!! He is a awesum little dude. This is her 1st child, she is just 24 and single. Noah is the 15th great-grandchild and the 1st DS child God has blessed us with. We need all the info we can get. I have been reading on different sites about DS and have lots to learn. This site is helping alot. Thanks
 
Name:  deana    Email:   
Child:  ana
Comment:
238    Friday, 9 September 2005 - 02:34:45am
there is a beautiful song that I heard from a woman on guitar telling the children affected by Down's how much they are a part of her heart..how could they ever think they weren't loved..does anyone have a website to go to in order to find this wonderful song?
 
Name:  Pat    Email:   
Child:  Cory 15
Comment:
237    Thursday, 8 September 2005 - 02:48:01am
WILL THIS WILL BE SOMETHING DIFFERENT FOR THE BULLETIN. MY SON CORY WILL BE GOING TO HIS FIRST
HOMECOMING DANCE AT HIS HIGH SCHOOL.\\ A FRIENDS
DAUGHTER< WHO HAS A VERY BIG HEART, IS EXCITED ABOUT
TAKING HIM. I GUESS MY TEENAGER HAS A FUTURE AFTER
ALL. JUST THOUGHT IT WOULD HOPE TO ALL YOU MOMS FOR
THE FUTURE.
 
Name:  carolyn    Email:   
Child:  John Connor 6
Comment:
236    Tuesday, 6 September 2005 - 12:39:51pm
Theresa-
Welcome!
I posted up a welcome to you on the bulletin board. That is the best place to put your questions and stuff because so many people can answer there easily. Our boys sound a lot alike, but I don't really know much about the sleeping issue. Post it on the bullitan board and you will gets tons of advice!
 
Name:  Stacey    Email:   
Child:  Brooke 7
Comment:
235    Tuesday, 6 September 2005 - 04:37:42am
Hi everyone. It has been years since I last posted, but I know where to find love and support when it is needed. Thank you. Brooke is doing well. She amazes me with her street smarts and her fun persinality daily. This week she "stole" a computer game from the spec ed room (part of an award system)and ran with it. Her aid chased her around the room for a minute (much to B's amusement) and then Brooke headed to her 1st grade classroom. As she arived at the classroom she found the door locked, so to keep the disk from her aid, she slid it under the door. How did she know to do that? Her aid said she had a hard time keeping a straight face. Another of her antics that made me laugh happened last year. Cold lunches were getting boring, so I sent sausage, cheese and crackers. Brooke's aid encouraged her to eat her sausage, but was met with resistance. After a few minutes the aid walked a few feet away to talk to someone. Brooke started pulling on her pocket, but she didn't pay much attention and asked B to go back and sit down. After her conversation she checked her pocket to see what B was up to and found a skillfully placed piece of sausage. Guess B told her where she could put that sausage.
While these acts of non-compliance may seem to be a disiplinary issue, I find them to be more of a reflection of her self-reliance and unwillingness to conform to the world around her. In other words, great survival skills. Our kidos are preied upon so easily that I like seeing her show signs of non-compliance. Brooke is having fun in 1st grade and is not letting her lack of language skills slow her down. I just wish I could keep the DVD's safe from her. She sure is hard on her movies. I think we are on our third copy of The Secret of Nimh aka "Mousin".
Time to get her and her sisters into bed.
God Bless
Stacey
 
Name:  theresaolohan    Email:   
Child:  daniel age 6
Comment:
234    Sunday, 4 September 2005 - 09:12:34pm
any tips or suggestions for my child when he is asleep he mkes a lot of sucking noises on his tounge and it is quiet noisy i turn him over i push his tounge back in as he leaves it out a little, i usually get him up to go to the bathroom and sometimes this helps. I will also give him a drink as his mouth gets very dry, any help with this problem. also getting his hair cut a big no no he has a lot of language and is very lively prefers running to walking and is always on the move he is going to mainstream school, and special ed school one for three days and mainstream for two days. any suggestions with reading i feel thats his next hughe milestone. bye theresa
 
Name:  patty    Email:   
Child:  kaila 6
Comment:
233    Saturday, 3 September 2005 - 03:20:05am
Hi Joyce,
Thank you so much for your compliment about my writings.
So, your little girl is the same age as my Kaila:)
Kaila also does some mainstreaming, but she's had a little set-back because she has adhd. She is now on Strattera, and she is doing GREAT! Kaila is smart, but she is stubburn:)
Good to hear from you, and thank you for your welcome back.
Patty
 
Name:  Joyce    Email:   
Child:  Arianna 6
Comment:
232    Friday, 2 September 2005 - 07:28:20pm
Patty,

I really enjoyed reading all of your writings. I
remember you from before. I hardly ever post but I do
go to the get togethers every summer.
Arianna is in 1st grade now and she does like going to
school. She is mainstreamed and is in a class with
another child who has ds. So she shares her aide with
him. She knows a couple of kids from last year in her
class and she did get the teacher that I asked for. I
just am always worried about her and hope she is
getting all the help she needs. I plan on going to
school to observe soon.
We had such a good time seeing everyone this summer in
Kentucky. I just am real bad at posting here.
Susan when do you go on yahoo to chat. I never used
IM but we have it on the computer. Let me know so I
can join you guys.
I will try and post more often.
Joyce
 
Name:  Robin    Email:   
Child:  Chase/13
Comment:
231    Friday, 2 September 2005 - 02:30:00pm
Hi everyone.....
Stacey welcome!!! I have a son who is 13 with DS. I only knew one ohter person who had a child with DS but he is so different from my son. Then I cam ehere and found tons of friends who can relate to my sorows and triumphs with Chase! Please post up and share about Chasity.
Ro....it is so good to see you are still alive and well. I have thought about you and Jenn alot since the hurricane and all the sadness it brought with it. I am so glad to see both of you posting. I wasnt sure how close either of you would be to it. A co worker had her daughter and new SIL arrive from New Orleans where they live and have just built a house. All is gone as well as their jobs, they are school teachers in New Orleans and they have lost every thing. I find myself glued to the TV, I am just heart sick for these thousands of families affected.
Annie S...I missed Sonny's birthday, I am sorry, I hope it was wodnerful and I am so glad he is feeling better! Alaska! Wow, I am thrilled for you, I hope your reunion is wonderful!
Hugs to all,
Robin
 
Name:  Annie S  
Child:  Sonny now 11
Comment:
230    Thursday, 1 September 2005 - 05:25:01pm
HI all can you believe it Sonny is now 11 ..wow time flies...I have been so busy my step son got married on
the 20th and then we had Sonny's birhtday on the 23..it was so he caught some stomach bug and we had to switch is party to the 24th...
My heart and prayers go out to anyone in the gulf ...
Hope all are doing ok...
We are going to Alaska tomorrow for family reunion...be gone for 7 days..
Take care all
and Happy Birthday late to all of you
Annie S
 
Name:  Ro  
Comment:
229    Wednesday, 31 August 2005 - 03:17:59am
Jenn,
I sit behind this computer looking and waiting for everyone out there(in the hurricanes path) to post and let us know their okay. Please post up. Let us know you are still up and running and if any of you have talked to anyone without computer access out there due to the catastrophy please let us know. This is always the hardest time on this site. We have plenty of faimly, internet ones included in this, that we NEED to know are alright.
PLEASE POST UP.
Ro
 
Name:  kathy    Email:   
Child:  Darius (6 1/2)
Comment:
228    Tuesday, 30 August 2005 - 05:57:34pm
I wanted to share this link with other parents who may be encountering challenges when it comes to haircuts. I used dread having to take Darius for a cut, it was such a chore. I have found a this really neat place just 4 kids. Haircuts are no longer the nightmare they used to be. coolcuts4kids.com
 
Name:  Jennifer    Email:   
Child:  Courtney-11
Comment:
227    Tuesday, 30 August 2005 - 03:56:37pm
Prayer request......and roll call for gulf coast members....
Just a reminder that prayers are needed badly down here in Louisiana, Miss., Alabama, Florida......I am really afraid for the New Orleans area....Many missing families. God be with all of us!
 
Name:  Susan    Email:   
Child:  Emily, age 14
Comment:
226    Tuesday, 30 August 2005 - 01:55:14am
Stacey~
You've come to the right place!!! There are SO many parents of kids with Down syndrome here, and we are all happy to talk to you! My name is Susan, and I have a daughter with Down syndrome who just turned 14. Please feel free to email me at the address above, or post an introduction to yourself on the Bulletin Board (General section). LOTS more people respond to posts on the Bulletin Board than here on the Message Board. WELCOME TO UNO MAS!!!!!
Susan
 
Name:  Stacey    Email:   
Child:  Chasity (11)
Comment:
225    Tuesday, 30 August 2005 - 01:44:32am
My daughter is 11 years old and has DS. I have never spoken to anyone outside of my circle of friends and family about some of the hardships and joys of my child. I do not know anyone personally who has a child with DS. I would just really love to have someone to talk with from time to time. If anyone has time please contact me.
 
Name:  steff    Email:   
Child:  Olivia (7)
Comment:
224    Monday, 29 August 2005 - 09:18:21pm
Patty!!!! HI!!! steff olivias mom here just wishing you a hearty HELLO!!!!!! I love reading your writings girl. take care and glad to see u back!!! HUGS Steff
 
Name:  TA-TANISHA    Email:   
Child:  Taylor
Comment:
223    Monday, 29 August 2005 - 09:15:07pm
I am the proud mother of a 20 month old firecracker, who just happens to have DS. I could never find appropriate gifts for family members, friends or therapist that said more than just thank you and or created the type of awareness of DS I was looking for so I created our own merchandise. Please visit the site and let me know what you think.
Have a great day!
 
Name:  Jennifer    Email:   
Child:  Bliss, 2 1/2 yrs
Comment:
222    Monday, 29 August 2005 - 08:42:22pm
HELP!!
I work for state government and have their life insurance. I was just denied life insurance for Bliss because she has D.S. They are a group insurance company and are unable to rate D.S. Does anyone know of any life insurance companies out there that offer decent life insurance for children with D.S. She is a healthy little girl who hasn't had any heart or bowel problems. I really want to have life insurance on her just in case. Any help from anyone would be greatly appreciated. Thank you all in advance!!!
 
Name:  Patty    Email:   
Child:  Kaila 6
Comment:
221    Wednesday, 24 August 2005 - 02:52:02pm
Hi Robin,
Thanks for the welcome.
I do remember you and your little guy Chase. What a perfect name for him:) I remember the stories about him, and I could totally relate with them as Kaila grew older.
Kaila was diagnosed with ADHD, and she's doing great now on Strattera.
I'm so pleased that you've liked my writings. I have to get on the stick and write some more:)
Have a wonderful day, and thanks for the welcome back.
Patty
 
Name:  Robin    Email:   
Child:  Chase
Comment:
220    Wednesday, 24 August 2005 - 02:28:58pm
Patty....I have been reading your stories and poems every day and loving everyone, they always tug hugely at my heart as you know and I realized I forgot to say welcome back, you have been missed bunches and bunches!!!!!!I hope you are here to stay!!! hugs to you and your princess!
Robin
 
Name:  Patty    Email:   
Child:  Kaila 6
Comment:
219    Wednesday, 24 August 2005 - 01:29:38pm
Hi All,
Here is the last story I wrote. I hope that you enjoy it.....
My Gem
When Kaila was born with down syndrome 4 years ago, I was amazed at the fact that she looked a little different from each angle when I looked at her, or photographed her. I was very perplexed by this, as I could not, with all my heart, understand this mystery. I finally caulked it up to the low muscle tone in her face, and I accepted, for the past 4 years, the above theory as fact.
Today, while kissing her face and feet, I realized that it was not her muscle tone, as I had theorized, but she is, in fact, a living radiant diamond shining from each angle for one to admire.
It’s funny what 4 years can teach a person.
By Patty Moore 3-15-03
 
Name:  Patty    Email:   
Child:  Kaila 6
Comment:
218    Tuesday, 23 August 2005 - 05:38:57pm
Here's another story...
Seeing His Face
When I gave birth to my daughter, the doctor delivered a message of a diagnosis which I believed my heart could not bare. The medical team suspected the diagnosis of Down Syndrome, but further testing had to be confirmed.

72 hours of labor and the news of her plight had sent me into the darkest moment of my life. To appear normal and strong, I'd stay at my daughter's side, but I would leave and go into the bathroom to sob with all my heart to God. I can say without a doubt that this was the weakest moment which I have ever experienced in my life, as I felt as if God had turned his back on me.

I asked the nurse to take Kaila to the nursery so that I could get some rest, and I was only able to fall asleep by lying to myself. I had convinced myself that this was all a big night mare and that my daughter was perfect and resting peacefully in the nursery.

I suddenly had awoken, after 2 hours, to the realization of her Down Syndrome. I then realized that I couldn't sleep or have rest unless I looked in to her beautiful face. I quickly buzzed the nurses to bring my baby back into my room.

A very kind nurse brought my baby to me, and I explained to her that I couldn't rest unless I looked at her face. The nurse looked over at my Bible and she said, "Yes, and every time that you see her face you will see the face of God."

When the nurse left the room I bent over to kiss my precious little angel on the cheek and smelled, deeply into my soul, her baby fragrance. I snuggled with her, as though I was finally taking the time to smell my precious little flower sent by God.

After that most memorable moment I cracked my Bible open to the Psalms 17:15. It reads:
And I - in righteousness will see your face; when I awake I will be satisfied with seeing your likeness.

By Patty Moore 10-11-04
 
Name:  Susan  
Child:  Emily, age 14
Comment:
217    Tuesday, 23 August 2005 - 01:44:49am
ANNIE S~
I just wanted to wish Sonny a very happy birthday tomorrow!!! How old is he this year? Please give him a big birthday hug from his friends in TN!
Susan
 
Name:  Patty    Email:   
Child:  Kaila 6
Comment:
216    Sunday, 21 August 2005 - 07:39:32pm
Thank you all for the wonderful encouragement.
I posted this several years ago, but here it is again.
Take care, and give your kids a hug from me:)
Patty
Our Story
I was shocked to say the least, to find myself pregnant again with my 4th child at the age of 39. My husband and I married very young and had 3 sons ages 20,17,and 6. I was panicked and then the panic turned to joy, after I got used to the idea of little pitter-patters once again in our home.
My pregnancy was strange. During the 17th month of pregnancy, I felt that I almost lost the baby due to severe cramping, and I only gained 14 lbs. throughout the whole pregnancy. That was abnormal for me, as I gain 35+ with my boys. My doctor kept telling me to stop making up things in my mind, and that all was well with me and my baby.
At around 20 weeks I had my AFP which turned up 1/37 chances of having a baby with ds. My chances were 1/89 before the test due to my age. This scared me so bad that I couldn't sleep for 2 nights until I had my level 2 ultrasound. The ultrasound confirmed that I had a very healthy baby GIRL with no signs of ds. I cried tears of happiness at the news of having a baby girl. I took the information that they gave me and I ran with it. I didn't have an amino, because we would have welcomed her either way into our hearts. So, God spared me the pain during my pregnancy so that I would remain healthy for her.
I began labor at 11:30 pm on 11-29-98. I called my labor coach (sister in-law) that next morning at 4:30 am when I realized that it was false labor. We went to the hospital at 9:30 am and the doctor sent me home saying that I wasn't in active labor. My sister in-law took me to lunch and back home. She drove home (an hour away) and left me there with my 6 year old, because the doctor said that I wouldn't have her until the next day. Well...I almost had her on the toilet with my 6 year old. I kept running to the bathroom not realizing that it was the pushing sensation that I was feeling. (stupid me) My older kids showed up at the door right in the nick of time. My oldest son drove me to the hospital, but ran the other way when the coast was clear.
I had my/our Kaila at the hospital 15 minutes after we arrived at 2:38 pm on 11-30-98. All I had to do was to push her out. My poor husband got there 15 minutes after her birth, because I had told him to wait for my call. He didn't get the call in time. (Oh well, he's got her whole life to enjoy her.)
My entire family arrived to celebrate the birth of Kaila, and the hospital gave us the biggest private room available.(Ha!) We had a pizza party going when our family doctor came in to see the baby. I thought this was odd, and I thought to myself that if he asked my family to leave we were in big trouble. (I remembered the ds.) He did ask them to step out for a few minutes, and my heart sank. He told us of his suspicions, and told us of the test that he was going to run on our little girl. My heart broke as he relayed this to us. He then asked if he should send our family in, but I wanted to be left alone with my husband for a few minutes.
During those few minutes of Kaila’s precious life, I felt like God had turned his back on me, as I had hoped for a perfect little girl. My husband just held me as I sobbed in his arms. He told me that she was still our little girl, and then he said, "Wasn't it Mother Teresa who said that every time she looked into the face of a child she saw the face of God?"
Those first couple of days of her precious life were very hard for me, but through it all God taught me that she is perfect and most beautiful. It only took a few days for me to realize how very precious she is. God truly did not turn His back on me. He smiled on me the day that she was born.
An update on Kaila:
Kaila touches people’s hearts on a daily basis, for this little girl of mine/His is on a mission; I’m only a tool in her path, for Kaila has helped my light shine a little brighter in this dark world, and I thank God for His rich blessings of this special little girl.
 
Name:  Betty    Email:   
Child:  Nicholas (Nicky)
Comment:
215    Sunday, 21 August 2005 - 07:31:35pm
Nicky's in pre-K 2 starting last week and his group of 3 Spec. Ed kids has been put into pre-K with English as Second Language ESL kids...about 12 of them in this Texas school. If anyone has any experience with this kind of thing would you please let me know?

We are worried about this, believing that he won't hear as much English during the school morning as he would otherwise. The teachers say that only English will be spoken during class time, but???
 
Name:  Adrienne    Email:   
Child:  Russell and the girls
Comment:
214    Sunday, 21 August 2005 - 11:03:00am
Patty, although we miss a few of our close friends in CA, we do not miss CA at all actually. Even born and raised there, I was never truly a CA kinda gal. As a young child I wanted to move ;) We love it here in the midwest actually! Russell is 7 yrs old now! Regan is 12 and Reece is 4 (5 here in Oct).

Glad to see you posting on the BB too! AGain, WELCOME BACK!

A.
 
Name:  Lisa    Email:   
Child:  Daniel
Comment:
213    Sunday, 21 August 2005 - 02:30:42am
Sara,
My son is 2 months old and just had his av canal repair surgery last week. We had it done at Boston Childrens hospital. If I can be of any assistance, just let me know what you need. Post on the bulletin board and we can all help you with any info you need.
 
Name:  Patty    Email:   
Child:  Kaila 6
Comment:
212    Saturday, 20 August 2005 - 05:54:44pm
Hi Susan,
Thank you for your kind words and the tip. I will start posting on the board and direct the people to the message board for the last 4 or 5 writings.
Take care,
Patty
 
Name:  Susan  
Child:  Emily, age 14
Comment:
211    Saturday, 20 August 2005 - 04:09:34pm
Patty~
I really appreciate your encouraging words. You have such a gift of expression, and I've always found it to be heartwarming. Thanks for coming back to Uno Mas!! It's hard to believe Kaila is SIX!!! Wow.........all our kids are growing up so fast. How old is her big brother now? I'm sorry to hear that you have MS, but it sounds like the medication is really helping. Again, I'm glad you are back!
If you want more people to read your poems and stories, maybe you could post them at the Bulletin Board. Over the last couple of years, it has become the MAIN place where people read and post. The Message board sometimes goes days without any new posts. The registration process is quick! Looking forward to hearing more about Kaila.
Susan
 
Name:  Patty    Email:   
Child:  Kaila 6
Comment:
210    Saturday, 20 August 2005 - 02:15:27pm
Hi all,
I hope that you are being blessed and encouraged by my writings. (please let me know)
Kaila is now 6 years old. She has delays, but she always reaches her goals in her timing:) Kaila is beautiful and she brings me so much joy. Sometimes she's a handfull! She has a diagnosis of ADHD but she's on Strattera now, and she is doing so much better without changing her personality.
Anyways, here is another one of my writings.
Have a lovely day,
Patty
Perfect Love
During the first few days of our daughter’s life, things were very difficult for me to deal with the idea of having a child with down syndrome and all her medical issues. I didn’t think that I was equipped to handle such a big job that God had handed to me.
While drawing my little guy’s bath, he was ready to get in. I told him to get into the tub, and he said to me with a quivering lip and tears in his little eyes, “Mom, you didn’t ask me if it was perfect.” (It was something that I always said.) Well, I thought for a moment, and told him with a harsh voice, “In this life nothing is perfect,” and then I paused for a moment and said in a softer voice, “except for God’s love.” He gave it a little thought, and replied in the sweetest voice that one could imagine, “There are two more things that are perfect mom.” I asked him with a doubtful heart, “What are they?” He said, “God’s love, and your love for me and Kaila.”
Even with all my doubts and anxiousness, my little guy was right, for God had given me love for him and Kaila, and God’s love is always perfect.
 
Name:  Suzi  
Child:  Merideth 4
Comment:
209    Friday, 19 August 2005 - 08:47:39pm
Hey everyone ! Just a quick check in while I have a min. We're just about totally moved into the farmhouse but my computer is still over here in the trailer. Maybe it'll get moved next week as this weekend we have plumbing to do.
Matt just got back from San Diego. We flew him out to my mom's for his 12th bday.He'll be in 7th already & is 2nd string kicker for his football team due to a 13yo 7th grader joining the squad.
Merideth is doing well. She gets new AFO's next Tues & will be in a small preschool class this year.The principal thought enough to call & ask permission to switch her to the afternoon session which was smaller when the morning sesssion she was registered for went to capacity.Only drawback is all her friends from Wee School are in the AM. She's just about completely potty trained. Has been nightime trained for a year but just in the past few weeks got the day thing down. It took the hard line & her getting left home 1 day with mom while dad & grandparents took the boys to the amusement park but that finally seemed to make it click.
Sam will be starting kindy next week & Nick will be starting 4th .
Last weekend we took Meri, Sam & Nick out on the boat. She had a blast but wanted out in the wake tube with th eboys. Water was too rough but maybe next trip we'll toss her in while in the no wake zone.
She's definately the little boss of the place these days. She's snuck in with the cheerleading squad during a few practices too so I guess next year when she's league age she'll try it.
Hugs!
 
Name:  Patty    Email:   
Child:  Kaila 6
Comment:
208    Friday, 19 August 2005 - 06:29:41pm
Hi Adrienne,
Thanks for the heads-up on that.
I can't download that program. My son is a computer guy, and he said that they are not safe. There's no conviencing him, nor my husband. So, I will communicate this way.
Could you let the ladies know that I'm posting Kaila's stories and writings everyday.
So, do you miss good ol CA? I know that I would.
The people are not that great, but people are people. The weather is perfect, though. I could not live in the heat or cold due to my illness.
Hope you and your family are doing well. How old is your little guy, now?
Take care,
Patty
 
Name:  Adrienne    Email:   
Child:  Russell and the girls
Comment:
207    Friday, 19 August 2005 - 05:56:30pm
Hey Patty? No one uses the chat room much if at all anymore. We all just Yahoo Instant Message. Do you have Yahoo's IM? If not you can go to Yahoo and download it and we all can chat that way.

I don't live in CA anymore... we moved to IL for a bit and now reside in MO.

Take care!

A.
 
Name:  Patty    Email:   
Child:  Kaila 6
Comment: