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May 2003 Archive
This is a moderated board, inappropriate comments will be removed.
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| Name: | vicki Email: | ||
| Child: | philip 2 1/2 | ||
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| Name: | Pat Email: | ||
| Child: | John-John 3yr 10 mth | ||
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| Name: | julie Email: | ||
| Child: | Jordan (5) | ||
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Can't help it I love all these gorgeous kids to pieces good times and bad. Bye from Oz - Love you all and keep posting your funny bits, they make my day. |
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| Name: | Marie Email: | ||
| Child: | Jared 11 | ||
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| Name: | Marie Email: | ||
| Child: | Jared 11 | ||
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The speech will come but it can take awhile sometimes..my mom has always been concerned for the speech too:) Hi Robin..it's soo good to see you:) I know it's been awhile.LOL I am thinking if we tried to compare Jared and Chase stories it would take a looong time lolol. I looked at the ohio trip pictures awhile back ago and it looks like everyone had a great time. I think my only trip this year is making the pHilly conference..which I am so excited about I can barely wait to go:) Nice talking to you. Tell Susan I said hello:) Betty are you grandma to Christopher? (Sorri I havent been here for awhile and been trying to get to knoe people the past couple weeks) I am asking because if you are looking for other grandmom's to talk to, my mom would love that. She has been looking for a grandparents chat and hasn't has much luck. Let me know:) |
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| Name: | Jackie Email: | ||
| Child: | justin | ||
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| Name: | Robin Email: | ||
| Child: | Chhase/10 | ||
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We have dealt wiht the hair cutting issue since Chase was old enough to need a hair cut. It used to take four people then three and now just two to cut Chase's hair. We also just found a really nice girl who said she would try to cut Chase's hair when I bring Zach in next time. We still do it outside when it is nice so the neighbors come out to check out the screaming :-D MARIE ..Stevens mom my dearest darling :-) LOLOL huggers to you and I am n9t listening to no for an answer and that is final :-) BTW... I am going to think Steven not having some teeth is a good thing, Chase's mouth s way to small and they have already taken some teeth out :-) Ok, I need to go I'll be back this weekend, hopefully we start the porch this weekend hugs, Robin |
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| Name: | steff Email: | ||
| Child: | olivia(5) | ||
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Hi Marie...alisa hi man oh man Susan you are missed. Lets see Olivia traced her name SOOOOO GOOD today 5 times BY HERSELF.I amtelling ya this is a biggie. Her glasses were replaced free of charge as when I walked in with them the lady said...oh those are BARBIE glasses and they are under warrany...LMAO.. I was sooo HAPPy. They happened to have the same size frame in purple and a golden brown. I chose the latter. Liv put em on and yelled(I gave em to her right after she got off the bus today and she jumped up and down and yelled MOM I CAN SEE!!!!!! The bus driver laughed sooo hard.AND she did this tracing today at school without her glasses. AND her script is 7.0 in both eyes. She is SOOO FARSIGHTED!!! Hmmm what else...I am scheduling a meeting before the IEP. Well the jist of it is I have 4 families in our district coming into Livs IEP who have BEEN RETAINED THIS YEAR who were also in a sdc class. We wanna let em know what we want before the IEP and this bit of information cause they are saying this is the law and hmmmm. was there not a precedent set with these folks whose kids have also been retained? GEEZ why they want my 5 yr. old on the big yard with all the meanie kids is beyond me and to mainstream her n the fiorst grade class is still way beyond my realm of thinking. I wanted her to be retained so that she could go to our kindy.,she knows a LOT of info you guys p[probably a LOT more than the soon to be kindergarteners. SO what is the problem.I want her to be in a class she can be confident and successful in and bringing her up to first grade just doesn't seem like the right thing to do at all. I hope they let it go when we call the meeting cause maan I am tired. REALLY TIRED..Jeff'll be back soon thankfully ... ;) Just checking in. JACKIE (EMS MA) says she misses you all. Hope to chat soon. I will be on the puter late tonight so if anyone sees me on yah. messenger IM this INSANE SOUL here. ;O Oh yea Liv and I were parking when we see this cute dog and cute young guy. Liv says(the windows were closed. HI CUTIE GUY!!! We get outta the car she says it again. The guy turns back. She walks up to him and he lets her pet his dog and was talking to her. BUT when he bent down to talk to her and got close to her face she looked at him and said YOU'VE GOT A FUNNY FACE!!! Our trips out together are getting FAR too interesting... ((HUGS))) guys and see ya later gators... |
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| Name: | Betty Email: | ||
| Child: | Christopher Kelly 2 ys9ms | ||
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I was reading some of the posts about hair cuts well Christopher doesn't like it either. But I cut his he has had several cuts, the last one I just buzzed it all off and he really doesn't like setting still. But he is not afraid of the clippers I have been cutting his hair sence he turned one...But sometime it takes me a few days to get it the way I want it to look just cut a little each day...But my other grandson is 2years old and he is the same way and doesn't have DS but his mommy cuts his and he acts the same way Christopher does. Christopher went last week to be tested or what ever they do at the school where he will be going for preschool...And he really did great he did everything the ask him to do ..My daughter said the teachers were really impressed with him . They said there will be some delays on the report but they are very mild. My daughter said that he sit for an hour doing puzzles and thing that they wanted him to do...Most of his delays will be his speech.. She told the teacher when she went in that she did not want him to be put in a room and just pushed aside ..that she wanted him in the main stream of things and they told her they didn't see any problem with him going to reg. kindergarten class when he is old enough ... They were really shocked at how well he understood and the signs that he uses...But he is a very bright little boy... I know I am bragging but thats what grandmaws do best..Ha Ha.... His speech Th. was here today and he really did so well for her today...He said all of his vowel sounds for her ..She brought one of those old Echo Mic that you can get at the dollar store for a dollar and he was just repeating all kinds of sounds for her...we were both so shocked...she left the mic with us and said she would try to find a couple more of them one for each of my grandsons...He just seems to be saying the first part of words ...like Da, Pop, Ma, but it is a start I think he is starting to get it... he is signing like crazy puts at least three signs together...We were going some where the other day and he was putting all kinds together I think he might have been signing songs that he knows from the Wiggles. and Yes he is going to see the Wiggles in Aug. We got him tickets for his birthday....Well I guess I have Bragged enough..so I better get off here before I bore everyone....MaMaw Betty |
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| Name: | Marie Email: | ||
| Child: | Jared 11 | ||
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Take care! |
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| Name: | Marie Email: | ||
| Child: | Jared 11 | ||
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(sorri just thought I sneak that in there hehe) One time Jared called this place in NYC called Tony's garage. He was younger and was babbling something into the phone and I picked it up to hear this guy saying "hey, ya got somthin to say to me? " hahahaha I explained and the guy chilled out..it ws pretty funny at the time! |
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| Name: | Dolly Email: | ||
| Child: | Eric..3yrs on June 27 | ||
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Whooo Boy! Can I relate! Eric is TERRIBLE when he gets his hair cut..so needless to say, he's only had ONE cut! I cut it myself ( did a lovely job..he looked like someone put a bowl on his head..a crooked bowl). Finally, we braved going to a barber...a nice guy, who was willing to try and cut a moving target. Eric was a nightmare..screamed and squirmed the whole time. I had him on my lap in a death grip, while Dad tried to entertain him...didn't help. By the time he was done, my arms were like jello. I DEFINETLY needed a beer or two after that. So now, 6 months later, he has a head full of hair...people always say, "what a sweet little girl.."..I guess we'll have to brave another trip soon, or maybe I'll try my luck when he's sleeping. So your not alone with this..been there, done that! LOL Dolly |
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| Name: | Kath Email: | ||
| Child: | Julia 4yrs | ||
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Regarding the missing teeth .... my daughter Julia has a similiar issue. Her bottom center tooth (just one) is missing. I read somewhere that this is not uncommon. In some respects it could help with over crowding...I'm trying to put a good spin on this :) I hope everything works out fine for Steven ! |
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| Name: | Marie Email: | ||
| Child: | Jared 11 | ||
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For some reason most kids with DS seem to hate getting haircuts. I wish u the best on this...but I must admit I am so happy to not have to deal with the haircutting any longer...now watch ym jerk ex move out of state! ahhh:) |
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| Name: | VICKI Email: | ||
| Child: | PHILIP 2 1/2 | ||
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| Name: | jackie Email: | ||
| Child: | justin almost 3yrs | ||
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Steff hugs heading your way, and hats off to your friend and to everyone else there that are more than willing to back you up. |
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| Name: | Maria Email: | ||
| Child: | Steven | ||
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| Name: | Joyce Email: | ||
| Child: | Arianna 4 yrs old | ||
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Sorry I have been missing in action for so long. Things just get to be hectic. We are looking forward to seeing everyone in Chicago. Not sure what our plans will be at the moment. Joyce and Family |
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| Name: | Robin Email: | ||
| Child: | Chase/10 | ||
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Awwwww Steffy, huggers to you and you give your frined a huge hug from me ok and tell her it is for being there to help, grrrr to the teacher and the school district. Pulling for you kid! I got a big old smile on my face. I just got home and checked the answering machine.... Chase is on it, LOLOL, he has been practicing calling home and today he called all by himself and left a message for us saying he loved us bye. LOLOLOL, it was so cool! However...I am a bit concerned about this calling stuff, I have found him calling all sorts of places, any place he sees a phone number he calls..LOLOL what a kid! need to get to gardening ugh, hugs, Robin |
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| Name: | philipmom Email: | ||
| Child: | gentry 5 philip (ds) 2 1/2 | ||
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| Name: | Alice | ||
| Child: | Luke | ||
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Welcome back! Hope you feel better. If you will talk to Radonna, please say her hello from me. Have a good day to all. |
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| Name: | steff Email: | ||
| Child: | olivia(5) | ||
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| Name: | allisa Email: | ||
| Child: | erin3 | ||
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Robin, what is the saying... you can only count on two constants in the world... taxes & love ? I decided we should add Chase's escapisms onto that list. I haven't been to Uno on a regular basis, but when I do.. it's like I never left ! Maria, I saw your post about little Isabella !! She is NOT out to get you !! LOL !! My daughter's therapists always told me that the low muscle tone that comes with DS tends to make the kids do eveything a litte harder, more intense. She likened it to trying to put one a pair of earrings while wearing mittens... you can probably get it done, but you would be grabbing pretty hard to be sure you had the earlobe and you wouldn't get real good feedback from your fingers. My daughter is now 3 & she definitely went through a rough stage... just patience & time will get her past it. In the meantime joint compressions help to "wake" up her hands & give her some strong feedback. Also we had some cute toys that were filled with sand... really pretty heavy... for a little kid, but Erin loved to play with them becuase of the feedback she got from the weight of them....she used to toss every toy she was given,... but not these. Just another way to give her that feedback she needs. Steff.... YIKES !!! what a story !! All the way around... maybe you all should have stayed in bed yesterday... well the school politics stuff would still be going on.... You let us know what happens. Hoep eveyone is greast... Allisa |
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| Name: | steff Email: | ||
| Child: | olivia(5) | ||
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Well well well....Hi Maria/ I went to chat a couple of thursdays ago and chatted with myself... :(...How are ya? Whatcha gonna do for the summer? I am sooo sorry I forgot who wrote about the fence but cracked me up. And by the way...just ask Robin, NEVER leave a fence up to a house unattended... SHARYN. I share your concerns. PLEASE I will be dying to know what the outcome of the meeting is.If you don't feel it's right then you HAFTA speak up...Gosh I am finding out today what school districts will try to do and pull on parents. Now we have alwys had it easy with IEP's and the school district.BUT EGADS today boy di I get a shocker... First off I must begin with a story then proceed to let you all know what the school and district is trying to tell me is Livs ONLY option... Okay first off you all remember the t. a. does not get along with Liv. Remember me saying she is ALWAYS negative when she speaks to me about Liv to the point of me having to say/ Does she do anything that is positive in class?Everytime I came to pick her up it was Liv wouldn't stand in line today or she hid in the closet(Now i know why she waas SCARED TO DEATH of the SCREAMER).Anyhow Liv ghets off the bus today not her happy usual self more like she was distressed. So we go in the house I get on my kness and ask her what it wrong she starts to tell me about a pap bear doll at school. Then she says mis so and so is MEAN. and got all bent out of shape.I ask her why...Olivia acts out and tells me what happened. So here I stand inshock and give her a hug say I will take care of it. As I am making lunch for liv I call dh and tell him what she said. I have him call back after Liv relaces for a bit.So he does and she tells him the exact same story as I listen in in the other room. SOOO. I am going to take her to her afterschool program and ask her therapist there hmm what Ishould do or what... So as we are driving there I ask Liv again. She tells me the story then says JUST FAKING<<Uggg So now I am confused cause she says that after we (me aand the rec therapist to stop grinding her teeth).So I take him aside when we get there and tell him we chat I tell him the breaking of the glasses story and about school. SO Liv walks into the room and he asks about her glasses... Liv tells him I BROKE THEM IN HALF(I had to laugh with him later cause I thought it was soo cool she said it that ways she normally says BROKED then and tha's it LOL) he asks were you maad she says YES and she acts out the entire incident even the stomping of the feet and the STUPID MOM(which I noticed she said in a MUCH sweeter voice than she said to me at the time) He looked at her and was gonna sk her another question when she laughed just as she had earlier on the ways there and said JUST FAKING...Which we all know she did do and she really acted it out soo well... (we had a laugh afterwards ,--when she left the room) so he said he would watch out for her listen see if she says anything. SO by the time I get home there is a message from Livs teach saying.... call me. I do she starts talking to me immediately bout a letter she received from the school where shes at now saying she MAY NOT BE RETAINED and she MAY NOT go to our home school kindergarten cause once you have been in a sdc class you cannot be retained?? Here's me HUH??? Well got the name of the lady at their school and what the letter said. I asked the teach what hjad happened between the t. a. and liv today... She actually said to me.. I could NOT get Liv to sit up on the carpet this morning cause so and so was screaming ... murder all morning didn't you hear him? Yea i thought that was real funny picturing her tring to get my scared kid to sit up as a boy screams the entire time. Anyhow she said nothing there was nbot 1 of the 3 kids who have aides who were there today. Hmmm. So I call my buddy after at our regional center leave her a message in tears practically.Then I go pick up Kyle and our neighbor from school.I then ask the wonderful sdc teacher at Kyles school(whobeleieves Liv too should go to kindy fully included and get in the afternoon prog,,,the one that Kyle went to.She tells me who to call in the district. I finally manage to find this persons number I do call explain sit and leave it on her machine. Well she calls back and tells me this is my option they don't retain anyone who's been in a sdc class. I am thinking well this is the district manager and she says as we part our conversation so we will puty her in miss so and so's class next year(that's the sdc teacher at Kyles lindy I like ) she says great and hangs up the phone.BAM 2 seconds l;ater my friend from the regional center... TELLS ME they are TOTALLY BAMBOOZLING you.. We talk she is looking inot certain things she (her son included) haver all been retained even at this school in a sdc class then went on to be included inkindy... THEY WERE TELLING ME LIV HAS TO GO TO 1 ST GRADE. She MUST BE a first grader next year.....Well this lady from our regional center is not only p.o.'d but she has all her backup and she will help me every step of the way as a matter of fact a bunch of parents whos kids were retained this year in the same situation are willing to attest that it can be done. I feel MUCH better after having talked to her. The I had to hurry up after our call and call back the district lady who was gonna put liv on the sdc teachs list and tell her to WAIT I need time to think about it... Talk with dh etc...Awww and heres the kicker too as liuvs teacher was reading me this letter over the phone she had this sing songy well you know i think she should be in the sdc class I've been telling you that fully including her is a mistake... I am sooo tired not sure bout typos etc. Had top share my nightmare day.... |
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| Name: | Robin Email: | ||
| Child: | Chase/10 | ||
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And he has also discovered that it works to dig your way under ( I bet the look on my face finding him crawling under was priceless!) so never fear...as John John gets a bit older...LOLOL, he will invent ways to escape :-) It just gets better and better every day. I try to look at it as a learning expirence, LOL it keeps his brain working over time daily :-D and it teaches me it was a good thing I quit smoking a few years ago so I can keep up with him LOLOL!!! I wish I had started a journal a long time ago, if I had known how exciting this child would make life..I would have!!! Maria.... I am not even discussing this silly notion you have about not coming to chicago.... if I cna make it broke and all ...(this wedding was terribly expensive) then you and Vin and family can make it :-D I'll just cry to Vin ;-D I sure hope we end up with alot of families new to uno in Chicago with us all. Please everyone wihtin traveling distance try to come, even if for a day or two, some of us are driving for hours and hours to make it. You wil be amazed at the instant connection we all have and become family for life, it is as if we always knew one another as son as we meet. There is no strange ackwardness that you feels at times meeting new people or families, we all have a bond, a connection to one another. And I sure wish my child wasnt always the naughtiest one there, any takers on that challenge????? LOLOL, huggs and love to you all, Robin PS CHRISTINE... I was going to email you tonight but I havent been home long and need to make a few calls and fall (or collapse into bed ) so I will email you tomorrow ok? take care all |
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| Name: | Maria Email: | ||
| Child: | Steven | ||
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| Name: | Pat Email: | ||
| Child: | John-John | ||
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My dh John & I are putting up a fence to help contain John-John. First we talked about a 4 ft fence, then I said if he's like Chase...LOL (I read some of these letters to my dh and Chase's stories are great) Is your hair you totally white yet??? We've decided on a 5 ft one. John-John is 3yr10mth and in 4T so you know how tall he is. At least the fence will give me an extra 30 seconds not watching him. LOL Of course, I will have to wait until it stops RAINING to put it in. I live N of Phila. Thanks for the stories, they almost make me feel good as my son runs down to Cowpath Rd.(very busy st.) Love that boy:^O |
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| Name: | sharyn Email: | ||
| Child: | Kim | ||
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| Name: | gramma joan Email: | ||
| Child: | granddaughter Zoë ( 4 1/2) | ||
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I recently attended the Canadian National Conference and a wonderful speaker named Norman Kunz spoke exactly about your concerns. Kids don't learn that much in a segregated classroom. It violates comman sense when there is no motivation. Segreation, he suggests, is an a convenience for administration...it's "easier". What should be in play is what's BEST not what's easiest. More emphasis should be placed on achievement and mastery. Point out contradtions we encouter (I.E.P.'s are often replete with bias. Go on the offensive. Emphasis should be on a far bigger issue - "belonging" Inclusion is about belonging. People do their best when they feel like they belong. Self esteem can only come out of a sense of belonging - when we feel "value" Good luck tomorrow! PS - everyone should have the opportunity to hear Mr. Kunz speak ! You will certainly come away with a feeling of what people with disabilities encounter! Hugs gramma joan |
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| Name: | Sharyn Email: | ||
| Child: | Kim | ||
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| Name: | Tammy Email: | ||
| Child: | Lewis the Menace | ||
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It feels like agae since I have been to visit...even though I think it is only a week... but a week is a long time in Uno Land!! So far my Prac is going well.. I have done lots of cleaning up, washing paintbrushes, wiping desks, gluing, cutting, sorting, and have become intimate friends with the photocopier!! I have also had some good opportunities to work with the children. I have been taking the "lower end" group for maths lessons. This group consists of a child with Autism, a child with a Chromosomal Disorder (Not DS but similar)and 2 children who rarely attend school because of lack of encouragement from family (if you get what I mean). They are a good group to work with and can be a lot of fun. The rest of the class is a challenge but I am loving it. Lewis has adapted well to Daycare, and doesnt seem to be stressing at all. First day he was happy to wave ByeBye to me, but when I went to pick him up at the end of the day he gripped me like a Python!! and wouldnt let go. Second day he was fine, but day 3 he was a bit reluctant to let me go...didnt cry or perform...just wouldnt let go of my trouser leg!! But the attention seeking when we get home is almost unbearable!! LOL... I think I might keep him in daycare for one morning a week after this...then I can have a free morning and it will be good for him too. Well... better be going..I have assignments to finish and logbooks to write in.... work never ends... Until next time... Stay Happy.... Huggles Tammy. |
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| Name: | Robin Email: | ||
| Child: | Chase/10 | ||
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WELCOME! Robin |
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| Name: | Robin Email: | ||
| Child: | Chase/10 | ||
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he does not do alot of things his peers both DS and NON DS can do BUT.....he can do some things no one else can ever match- like this morning, this oh so lovable naughty stinker of mine climbed into my bed at 5 am and took my sleepy face in both his hands, kissed me smack on the lips and said "oh I love you so much and I marry you mom" Now I ask you..how can it get any better? :-) Good morning unoland..love to you all, Robin :-) |
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| Name: | Christine Email: | ||
| Child: | Alex age 5 | ||
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| Name: | jackie Email: | ||
| Child: | justin | ||
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| Name: | Susan Email: | ||
| Child: | Emily, age 11 | ||
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~ Have a FANTASTIC week!!!! Susan |
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| Name: | Annie S Email: | ||
| Child: | Sonny8 | ||
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Talking about Micky d's Sonny is so bad about not coming out so we hardly ever go in unless Dad is with us then he will listen... Lorena so good to see you post ...hugs to all Annie M Happy late Birthday...give Mikey hugs from us... Robin my friend thanks for the offer... Love ya all Annie S |
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| Name: | Maria Email: | ||
| Child: | Isabella - 12 mos | ||
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| Name: | steff Email: | ||
| Child: | olivia(5) | ||
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Well I am outta here I have as babysitter for Olivia I'll explauin later when I have a moment my son and his classmate get out early and i am gonna lhelp em with homework send em out to play take his classmate home and drive Kyle to grannys .He's gonna stay there till time for bed and Liv will be with the babysitter from 3-7 30 tonight.Cause if I didn't get a break I thiink I mighta lost my top today....SO I am hittin the beach immediately after I drop Kyle off and layin in the sand and studying. I CAN'T WAIT!!!!!!!! CC.. Yes Liv will have a one on one. I like her the teach's like her and she is VERY GOOD and most importantly she shares my philosophy of helping when necessary otherwise help everyone and DO NOT FOLLOW her around. Let her be and be there when she needs to be and only then.I watched her with a child in Kyles kindy class and lemme tell you because of her this little girl got to be sooo independent in kindy. She is a drug baby who had lots of physical probs. she had been catered to her entire life and her foster parents had in my opinion had cheated her out of learning to be independent. AND she was SPOILED ..OH MAN. By the end of the year this child was independent and OHHHHHHH SOOOO proud of herself. Was one of the most amazing transformations i have ever seen.I volunteered in Kyles class and in computer lab so I got to see her in action. SO that's who we are requesting on Livs iep.ALTHOUGH the T.A.(the one liv says is MEAN) told me friday,I don't know how you are gonna pull off getting Liv and aide.we applied for 2 kids to get em and were denied. miss negativity. I don't think they are gonna make this easy for me BUt she will get her I am bound and determined... Well gotta git. BYE |
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| Name: | jackie Email: | ||
| Child: | justin almost 3 | ||
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Robin to get to Manistique hit 75 alllllll the way up lol west on 2 alllllll the way around Lake Michigan alright not allll the way around it but close to it well at least that is what it felt like with 3 kids in the back seat lol. Ok have to go unpack now and hope everyone enjoyed there long weekend. |
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| Name: | Kristi Email: | ||
| Child: | Cody (8yrs.) | ||
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Sorry so late! Happy birthday to all this month! Hugs, Kristi |
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| Name: | julie Email: | ||
| Child: | Jordan (5) | ||
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It's taken me 20 mins to catch up on everyone's stories. Hope all is well with everyone. At the moment both Jordan and I have chest infections | ||