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May 2003 Archive
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Name:  vicki    Email:   
Child:  philip 2 1/2
Comment:
242    Saturday, 31 May 2003 - 10:12:14pm
hi guys.......i just love this message board....i just laugh out loud.......ok, who can relate to this? yesterday, i was getting philip and gentry (my 5 yr old) ready to go see "finding nemo"......i was at a friends house because i was taking her little girl with us....anyway, philip was playing on the floor when i picked him up....obviously he DID NOT want to go and rared back and gave me a MIGHTY head but right in the mouth..........uggggggggggg......thank goodness that i had philly right over the sofa because that is where he got dropped as i put my hand to my mouth only to find a mouth full of blood......nice......then gentry comes running up to me yelling, "did you lose a tooth mom? let's put it under your pillow for the tooth fairy".......(i think that i will pass on that) after about 5 terrifying minutes i was finally able to go the the bathroom mirror and take a look......my tooth is still there, but very loose!!!!!! The only bright side to this scene is that next thurs. i am going to the dentist anyway to get that tooth pulled and a bridge put in..........but please say a little prayer that i won't lose this tooth in the next few days......i really don't want to go around toothless for ANY amount of time........so now i am super parinoid everytime that i pick him up.......i didn't know that my sweet little philly had dreams of becoming the first pro-wrestler with ds......he could always go by PHILIP " THE TOOTH CRACKER" CABRERA!!! hee hee!!!! (and by the way, we did make it to see the movie and it was cute.......)....have a great weekend....vicki
 
Name:  Pat    Email:   
Child:  John-John 3yr 10 mth
Comment:
241    Saturday, 31 May 2003 - 12:14:10pm
Has anyone heard from Gina, Jaden's mom? I tried sending her a message, seemed like there were some hard times. Does anyone know another way to contact her? No E-mail listed. She's really been on my heart.
 
Name:  julie    Email:   
Child:  Jordan (5)
Comment:
240    Saturday, 31 May 2003 - 08:45:21am
Hi again everyone - Let me tellll you about our haircutting experiences LOL. I had to laugh and also sympathise with all of you that have posted re this topic. Anyway; Jordan as you have probably guessed DOES NOT LIKE HAVING HIS HAIR CUT-not one bit. The first time was the absolute worst but things didn't really improve until about 4 haircuts ago; I would have to hold him in a vice grip (and it took all my physical and emotional strength). He would sit on my lap and I would whisper loving sweet nothings in his ear and even the promise of chocolate would not appease my beautiful swollen red eyed chap who was covered in tears and snot all mixed in with a bunch of hair clippings. What a DS parents worst nightmare come true LOLROFPMP....I can relate to any moms haircutting story BIG TIME!!!!! Sorry I so go on a bit don't I?
Can't help it I love all these gorgeous kids to pieces good times and bad.
Bye from Oz - Love you all and keep posting your funny bits, they make my day.
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
239    Saturday, 31 May 2003 - 05:17:52am
lol my post got moved around somehow lol..I meant the speech will come for Betty concerning her grandson!:)
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
238    Saturday, 31 May 2003 - 05:15:31am
Hi Steff! LOLOL that is so cute about Olivia yelling mom I can see! I think it's great that she's tracing her name already at 5, Jared just started that 2 years ago. He's doing real well at it now but your kiddo has a good headstart.
The speech will come but it can take awhile sometimes..my mom has always been concerned for the speech too:)
Hi Robin..it's soo good to see you:) I know it's been awhile.LOL I am thinking if we tried to compare Jared and Chase stories it would take a looong time lolol.
I looked at the ohio trip pictures awhile back ago and it looks like everyone had a great time. I think my only trip this year is making the pHilly conference..which I am so excited about I can barely wait to go:)
Nice talking to you. Tell Susan I said hello:)
Betty are you grandma to Christopher? (Sorri I havent been here for awhile and been trying to get to knoe people the past couple weeks) I am asking because if you are looking for other grandmom's to talk to, my mom would love that. She has been looking for a grandparents chat and hasn't has much luck. Let me know:)
 
Name:  Jackie    Email:   
Child:  justin
Comment:
237    Saturday, 31 May 2003 - 03:59:09am
Ok 14 hours and counting lol. This will be the last time I have all 3 kids B-days on the same day lol. I cannot wait until this weekend is over lol, I overbooked myself as usual, Alyssa is having a sleepover and I had it so everyone will be picked up at noon, well I forgot Ms. Ashleys' gymnastic exhibition is Sunday at 11:30 uggggh and of course Chuck is on 7 days and gets to miss all of my fun lol little does he know that there will be 11 screaming girls here tomorrow night, but I guess the joke is on me I will be flipping pancakes forever lol. Oh well I will just have to catch everyone as they are getting dropped off to make sure they are outta here by 11 lol. Ok I have to find me the biggest box of Calgon I can lol. Everyone have a great weekend and I'll try to crawl down here and report in lol.
 
Name:  Robin    Email:   
Child:  Chhase/10
Comment:
236    Saturday, 31 May 2003 - 02:53:44am
MARIE.....ROFLOLPMP..there is no way you are going to convince me that Jared is worse then Chase or even close :-D SOOOOOOOO.... I guess you will have to make the chicago outing if you want to convince me :-D
We have dealt wiht the hair cutting issue since Chase was old enough to need a hair cut. It used to take four people then three and now just two to cut Chase's hair. We also just found a really nice girl who said she would try to cut Chase's hair when I bring Zach in next time. We still do it outside when it is nice so the neighbors come out to check out the screaming :-D
MARIE ..Stevens mom my dearest darling :-) LOLOL huggers to you and I am n9t listening to no for an answer and that is final :-) BTW... I am going to think Steven not having some teeth is a good thing, Chase's mouth s way to small and they have already taken some teeth out :-)
Ok, I need to go I'll be back this weekend, hopefully we start the porch this weekend
hugs, Robin
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
235    Saturday, 31 May 2003 - 01:16:33am
HIBetty Christopher sounds adorable...My son was TERRIFIED of the buzzers and would have NO part of them till this year. Those things are SCARY to a kid.Olivia on the other hand LOVEs to get her haircut AND she LOVES LOVES to get her nails done.I have taken her already 3 times and she even had designs put on...I NEVER in a MILLION years thought that she would like it but she does...(pssstttt she also digs on the extra attention too)

Hi Marie...alisa hi man oh man Susan you are missed.

Lets see Olivia traced her name SOOOOO GOOD today 5 times BY HERSELF.I amtelling ya this is a biggie. Her glasses were replaced free of charge as when I walked in with them the lady said...oh those are BARBIE glasses and they are under warrany...LMAO.. I was sooo HAPPy. They happened to have the same size frame in purple and a golden brown. I chose the latter. Liv put em on and yelled(I gave em to her right after she got off the bus today and she jumped up and down and yelled MOM I CAN SEE!!!!!! The bus driver laughed sooo hard.AND she did this tracing today at school without her glasses. AND her script is 7.0 in both eyes. She is SOOO FARSIGHTED!!!

Hmmm what else...I am scheduling a meeting before the IEP. Well the jist of it is I have 4 families in our district coming into Livs IEP who have BEEN RETAINED THIS YEAR who were also in a sdc class. We wanna let em know what we want before the IEP and this bit of information cause they are saying this is the law and hmmmm. was there not a precedent set with these folks whose kids have also been retained? GEEZ why they want my 5 yr. old on the big yard with all the meanie kids is beyond me and to mainstream her n the fiorst grade class is still way beyond my realm of thinking. I wanted her to be retained so that she could go to our kindy.,she knows a LOT of info you guys p[probably a LOT more than the soon to be kindergarteners. SO what is the problem.I want her to be in a class she can be confident and successful in and bringing her up to first grade just doesn't seem like the right thing to do at all. I hope they let it go when we call the meeting cause maan I am tired. REALLY TIRED..Jeff'll be back soon thankfully ... ;)

Just checking in. JACKIE (EMS MA) says she misses you all. Hope to chat soon. I will be on the puter late tonight so if anyone sees me on yah. messenger IM this INSANE SOUL here. ;O

Oh yea Liv and I were parking when we see this cute dog and cute young guy. Liv says(the windows were closed. HI CUTIE GUY!!! We get outta the car she says it again. The guy turns back. She walks up to him and he lets her pet his dog and was talking to her. BUT when he bent down to talk to her and got close to her face she looked at him and said YOU'VE GOT A FUNNY FACE!!! Our trips out together are getting FAR too interesting... ((HUGS))) guys and see ya later gators...
 
Name:  Betty    Email:   
Child:  Christopher Kelly 2 ys9ms
Comment:
234    Friday, 30 May 2003 - 10:19:35pm
Hello everyone;
I was reading some of the posts about hair cuts well Christopher doesn't like it either. But I cut his he has had several cuts, the last one I just buzzed it all off and he really doesn't like setting still. But he is not afraid of the clippers I have been cutting his hair sence he turned one...But sometime it takes me a few days to get it the way I want it to look just cut a little each day...But my other grandson is 2years old and he is the same way and doesn't have DS but his mommy cuts his and he acts the same way Christopher does.
Christopher went last week to be tested or what ever they do at the school where he will be going for preschool...And he really did great he did everything the ask him to do ..My daughter said the teachers were really impressed with him . They said there will be some delays on the report but they are very mild. My daughter said that he sit for an hour doing puzzles and thing that they wanted him to do...Most of his delays will be his speech.. She told the teacher when she went in that she did not want him to be put in a room and just pushed aside ..that she wanted him in the main stream of things and they told her they didn't see any problem with him going to reg. kindergarten class when he is old enough ... They were really shocked at how well he understood and the signs that he uses...But he is a very bright little boy...
I know I am bragging but thats what grandmaws do best..Ha Ha.... His speech Th. was here today and he really did so well for her today...He said all of his vowel sounds for her ..She brought one of those old Echo Mic that you can get at the dollar store for a dollar and he was just repeating all kinds of sounds for her...we were both so shocked...she left the mic with us and said she would try to find a couple more of them one for each of my grandsons...He just seems to be saying the first part of words ...like Da, Pop, Ma, but it is a start I think he is starting to get it... he is signing like crazy puts at least three signs together...We were going some where the other day and he was putting all kinds together I think he might have been signing songs that he knows from the Wiggles. and Yes he is going to see the Wiggles in Aug. We got him tickets for his birthday....Well I guess I have Bragged enough..so I better get off here before I bore everyone....MaMaw Betty
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
233    Friday, 30 May 2003 - 04:03:45pm
Hi Christine my son does not have ADD but possibly autism or some unknown thing..which basicaly adds up to him being a huge pain in the rear most of the time! LOL Cute with a great giggle, but the capacity to reduce you to a quivering mass! LOL ok I am being a little dramatic (notice I said little) but I would like to hear more about your experiences...if you want to share.
Take care!
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
232    Friday, 30 May 2003 - 03:54:49pm
Robin...I probably wont make Chicago but I will BET ya Jared is worse than Chase LOL.
(sorri just thought I sneak that in there hehe)
One time Jared called this place in NYC called Tony's garage. He was younger and was babbling something into the phone and I picked it up to hear this guy saying "hey, ya got somthin to say to me? " hahahaha I explained and the guy chilled out..it ws pretty funny at the time!
 
Name:  Dolly    Email:   
Child:  Eric..3yrs on June 27
Comment:
231    Friday, 30 May 2003 - 03:50:28pm
VICKIE:
Whooo Boy! Can I relate! Eric is TERRIBLE when he gets his hair cut..so needless to say, he's only had ONE cut! I cut it myself ( did a lovely job..he looked like someone put a bowl on his head..a crooked bowl).
Finally, we braved going to a barber...a nice guy, who was willing to try and cut a moving target. Eric was a nightmare..screamed and squirmed the whole time. I had him on my lap in a death grip, while Dad tried to entertain him...didn't help. By the time he was done, my arms were like jello. I DEFINETLY needed a beer or two after that. So now, 6 months later, he has a head full of hair...people always say, "what a sweet little
girl.."..I guess we'll have to brave another trip soon, or maybe I'll try my luck when he's sleeping.
So your not alone with this..been there, done that! LOL
Dolly
 
Name:  Kath    Email:   
Child:  Julia 4yrs
Comment:
230    Friday, 30 May 2003 - 03:48:20pm
Hi Maria,
Regarding the missing teeth .... my daughter Julia
has a similiar issue. Her bottom center tooth (just
one) is missing.
I read somewhere that this is not uncommon. In some
respects it could help with over crowding...I'm trying
to put a good spin on this :)
I hope everything works out fine for Steven !
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
229    Friday, 30 May 2003 - 03:47:16pm
awww Vicki hahahaha i totally know where u r coming from LOL....I won't make promises that it gets easier but I got the easy way out....my ex is the one who takes my son for his haircuts now! He does so blasted little for him as it is that saving me from the haircut torture is only fair! But I feel for ya lady because I remember having to cut his hair...my hubby now and I would cut a plastic trash bag and put it over his body and try to hold him in a chair. when that didnt work we used a belt and tied him in! sounds barbaric I know lol but it was the only part of the haircut my son found amusing hahah.
For some reason most kids with DS seem to hate getting haircuts. I wish u the best on this...but I must admit I am so happy to not have to deal with the haircutting any longer...now watch ym jerk ex move out of state! ahhh:)
 
Name:  VICKI    Email:   
Child:  PHILIP 2 1/2
Comment:
228    Friday, 30 May 2003 - 01:57:08pm
Hi guys.......ok, does anyone else have the dreaded "haircut" problem that i have? Philip, bless his soul, has 2 swirls on the top of his head--which translates to a woody woodpecker look when his hair gets even the slightest bit long. and of course his hair grows like a chia pet......sooooo yesterday was the big haircut day...(it's a day that i have nightmares about) my hubby was off work so i told him he was going to get to experience the fun!!! (and let me preface by saying that philly has been having to get haircuts since he was about 6 months old and he's 2 1/2 now.....so he should be getting a little used to it by now).....so anyway, i sit in the chair with him holding him in the vice grip, my husband has a firm grip on his head and our poor barber "Takko" is trying her best not to make a bald spot.......ugggggg.....after every haircut i just want to go have a beer....and i don't even drink...hee hee....although i will say this is probably his best haircut yet.......thank goodness since he is scheduled to get his pic. made next week......so does anyone else out there have horrible haircut adventures or is it just me? (and let me also add that we have tried going to all the cool kid places with the animals you sit on and everything.......but no luck!!!) the only time i ever wish philip was a girl is at haircut time because then i would let it grow down to the floor!!!!!! ok. gotta run.......vicki
 
Name:  jackie    Email:   
Child:  justin almost 3yrs
Comment:
227    Friday, 30 May 2003 - 00:10:03am
Awwww Robin hmmmm perhaps I will have to call you so Chase can call us. I guess you will have to start hiding the pizza numbers now lol. WTG CHASE!!!!!!!
Steff hugs heading your way, and hats off to your friend and to everyone else there that are more than willing to back you up.
 
Name:  Maria    Email:   
Child:  Steven
Comment:
226    Thursday, 29 May 2003 - 11:14:31pm
Hi all , its me again , oh well Robin my dear friend i'm sorry but we really can't make it ,but we will try for labor weekend , ok , i will miss you all terribly , you guys know what you all mean to me and the kids and dh. Well i need help here , i took Steven to the dentist and they told me they want to take two teeth out, the thing is also that he is missing some adult teeth they were able to tell this with the xray they took. Do any of you guys with the older kids know anything about this , i know our kids get their teeth at odd times and places but to have some missing , yikes thats a new one for me !!!If anyone can tell me about their experience please tell me ,gosh i hope i'm makind sence, thanks , Maria
 
 
Name:  Joyce    Email:   
Child:  Arianna 4 yrs old
Comment:
225    Thursday, 29 May 2003 - 08:49:52pm
Hi Everyone!
Sorry I have been missing in action for so long. Things just get to be hectic. We are looking forward to seeing everyone in Chicago. Not sure what our plans will be at the moment.
Joyce and Family
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
224    Thursday, 29 May 2003 - 07:46:44pm
Afternoon everyone....
Awwwww Steffy, huggers to you and you give your frined a huge hug from me ok and tell her it is for being there to help, grrrr to the teacher and the school district. Pulling for you kid!
I got a big old smile on my face. I just got home and checked the answering machine.... Chase is on it, LOLOL, he has been practicing calling home and today he called all by himself and left a message for us saying he loved us bye. LOLOLOL, it was so cool! However...I am a bit concerned about this calling stuff, I have found him calling all sorts of places, any place he sees a phone number he calls..LOLOL what a kid!
need to get to gardening ugh, hugs,
Robin
 
Name:  philipmom    Email:   
Child:  gentry 5 philip (ds) 2 1/2
Comment:
223    Thursday, 29 May 2003 - 05:10:16pm
hi guys.....fairly new at this posting biz, but i really do enjoy reading all that you have to say.....i have laughed out loud many times......so my question is --- the live chat? i have gotten on there a few times at the recommended time and i have just chatted with myself....(although that would not be a first haha) do any of you all get on the live chat? well anyway,,,,,i hope you all have a good day, i get to go to the hosptial tonight at 6:00 to visit with a new family that just had a baby with DS. i really enjoy doing that....i have got to go about 4 other times....but this is the first time that my hubby will get to go.....so wish me luck........vicki
 
Name:  Alice  
Child:  Luke
Comment:
222    Thursday, 29 May 2003 - 05:05:47pm
Susan, it is so nice to see your posts here!!!!
Welcome back! Hope you feel better. If you will talk to Radonna, please say her hello from me.
Have a good day to all.
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
221    Thursday, 29 May 2003 - 01:25:21pm
Sorry bout my angry misspelled post last night but I was sooo tired and angry,,,ANYHOW the jist of it is. When I put Liv in the sdc kindergarten class at 4 EVERYONE at the IEP knew MY GOAL for Liv was to get her ready to be fully included in our home school kindy.She was far too young at 4 to be there so i decided on this class. EVERYONE knew my intentions of trying to fully include Liv in our home school from the GET GO... SO no one told me this "alleged" FAKE law they made up cause for some reasone they don't wanna even let her try it. I told em why would i take a sememster pff schoool next eyar to be here to help the kindy teachers inall ways possible and try to put her in the regular afternoon program IF it was sooo much more work for me??? It would be MUCh easier for me to drop her and Ky. off at school put her in ouir home schools sdc all day with her being mainstreamed into some first grade classes// And I am trying to figure out WHY MY 5 YR. OLD HAS TO (as they say) NOT BE RETAINED and be put in the 1st grade classes??? WHY?Okay I am done now I will be searching for answers... Talk to you all later...
 
Name:  allisa    Email:   
Child:  erin3
Comment:
220    Thursday, 29 May 2003 - 12:27:01pm
Hi everyone, so glad to see Susan posting !

Robin, what is the saying... you can only count on two constants in the world... taxes & love ? I decided we should add Chase's escapisms onto that list. I haven't been to Uno on a regular basis, but when I do.. it's like I never left !

Maria, I saw your post about little Isabella !! She is NOT out to get you !! LOL !! My daughter's therapists always told me that the low muscle tone that comes with DS tends to make the kids do eveything a litte harder, more intense.

She likened it to trying to put one a pair of earrings while wearing mittens... you can probably get it done, but you would be grabbing pretty hard to be sure you had the earlobe and you wouldn't get real good feedback from your fingers.

My daughter is now 3 & she definitely went through a rough stage... just patience & time will get her past it. In the meantime joint compressions help to "wake" up her hands & give her some strong feedback.

Also we had some cute toys that were filled with sand... really pretty heavy... for a little kid, but Erin loved to play with them becuase of the feedback she got from the weight of them....she used to toss every toy she was given,... but not these. Just another way to give her that feedback she needs.

Steff.... YIKES !!! what a story !! All the way around... maybe you all should have stayed in bed yesterday... well the school politics stuff would still be going on.... You let us know what happens.

Hoep eveyone is greast... Allisa
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
219    Thursday, 29 May 2003 - 05:38:28am
HI!!!!

Well well well....Hi Maria/ I went to chat a couple of thursdays ago and chatted with myself... :(...How are ya? Whatcha gonna do for the summer?

I am sooo sorry I forgot who wrote about the fence but cracked me up. And by the way...just ask Robin, NEVER leave a fence up to a house unattended...

SHARYN. I share your concerns. PLEASE I will be dying to know what the outcome of the meeting is.If you don't feel it's right then you HAFTA speak up...Gosh I am finding out today what school districts will try to do and pull on parents.

Now we have alwys had it easy with IEP's and the school district.BUT EGADS today boy di I get a shocker...

First off I must begin with a story then proceed to let you all know what the school and district is trying to tell me is Livs ONLY option...

Okay first off you all remember the t. a. does not get along with Liv. Remember me saying she is ALWAYS negative when she speaks to me about Liv to the point of me having to say/ Does she do anything that is positive in class?Everytime I came to pick her up it was Liv wouldn't stand in line today or she hid in the closet(Now i know why she waas SCARED TO DEATH of the SCREAMER).Anyhow Liv ghets off the bus today not her happy usual self more like she was distressed. So we go in the house I get on my kness and ask her what it wrong she starts to tell me about a pap bear doll at school. Then she says mis so and so is MEAN. and got all bent out of shape.I ask her why...Olivia acts out and tells me what happened. So here I stand inshock and give her a hug say I will take care of it. As I am making lunch for liv I call dh and tell him what she said. I have him call back after Liv relaces for a bit.So he does and she tells him the exact same story as I listen in in the other room. SOOO. I am going to take her to her afterschool program and ask her therapist there hmm what Ishould do or what... So as we are driving there I ask Liv again. She tells me the story then says JUST FAKING<<Uggg So now I am confused cause she says that after we (me aand the rec therapist to stop grinding her teeth).So I take him aside when we get there and tell him we chat I tell him the breaking of the glasses story and about school. SO Liv walks into the room and he asks about her glasses... Liv tells him I BROKE THEM IN HALF(I had to laugh with him later cause I thought it was soo cool she said it that ways she normally says BROKED then and tha's it LOL) he asks were you maad she says YES and she acts out the entire incident even the stomping of the feet and the STUPID MOM(which I noticed she said in a MUCH sweeter voice than she said to me at the time) He looked at her and was gonna sk her another question when she laughed just as she had earlier on the ways there and said JUST FAKING...Which we all know she did do and she really acted it out soo well... (we had a laugh afterwards ,--when she left the room) so he said he would watch out for her listen see if she says anything. SO by the time I get home there is a message from Livs teach saying.... call me. I do she starts talking to me immediately bout a letter she received from the school where shes at now saying she MAY NOT BE RETAINED and she MAY NOT go to our home school kindergarten cause once you have been in a sdc class you cannot be retained?? Here's me HUH??? Well got the name of the lady at their school and what the letter said. I asked the teach what hjad happened between the t. a. and liv today... She actually said to me.. I could NOT get Liv to sit up on the carpet this morning cause so and so was screaming ... murder all morning didn't you hear him? Yea i thought that was real funny picturing her tring to get my scared kid to sit up as a boy screams the entire time. Anyhow she said nothing there was nbot 1 of the 3 kids who have aides who were there today. Hmmm. So I call my buddy after at our regional center leave her a message in tears practically.Then I go pick up Kyle and our neighbor from school.I then ask the wonderful sdc teacher at Kyles school(whobeleieves Liv too should go to kindy fully included and get in the afternoon prog,,,the one that Kyle went to.She tells me who to call in the district. I finally manage to find this persons number I do call explain sit and leave it on her machine. Well she calls back and tells me this is my option they don't retain anyone who's been in a sdc class. I am thinking well this is the district manager and she says as we part our conversation so we will puty her in miss so and so's class next year(that's the sdc teacher at Kyles lindy I like ) she says great and hangs up the phone.BAM 2 seconds l;ater my friend from the regional center... TELLS ME they are TOTALLY BAMBOOZLING you.. We talk she is looking inot certain things she (her son included) haver all been retained even at this school in a sdc class then went on to be included inkindy... THEY WERE TELLING ME LIV HAS TO GO TO 1 ST GRADE. She MUST BE a first grader next year.....Well this lady from our regional center is not only p.o.'d but she has all her backup and she will help me every step of the way as a matter of fact a bunch of parents whos kids were retained this year in the same situation are willing to attest that it can be done. I feel MUCH better after having talked to her. The I had to hurry up after our call and call back the district lady who was gonna put liv on the sdc teachs list and tell her to WAIT I need time to think about it... Talk with dh etc...Awww and heres the kicker too as liuvs teacher was reading me this letter over the phone she had this sing songy well you know i think she should be in the sdc class I've been telling you that fully including her is a mistake...

I am sooo tired not sure bout typos etc. Had top share my nightmare day....

 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
218    Thursday, 29 May 2003 - 01:54:33am
PAT.... LOLOL to the five ft fence...we have had both ..the chain link four footer and the six ft stockade kind. (which is what we have now) I have found that Chase must have some kind of ape genes in him as he can climb that six foot fence like a monkey using his toes like you have never seen them used, LOL!
And he has also discovered that it works to dig your way under ( I bet the look on my face finding him crawling under was priceless!) so never fear...as John John gets a bit older...LOLOL, he will invent ways to escape :-) It just gets better and better every day. I try to look at it as a learning expirence, LOL it keeps his brain working over time daily :-D and it teaches me it was a good thing I quit smoking a few years ago so I can keep up with him LOLOL!!! I wish I had started a journal a long time ago, if I had known how exciting this child would make life..I would have!!!
Maria.... I am not even discussing this silly notion you have about not coming to chicago.... if I cna make it broke and all ...(this wedding was terribly expensive) then you and Vin and family can make it :-D
I'll just cry to Vin ;-D I sure hope we end up with alot of families new to uno in Chicago with us all. Please everyone wihtin traveling distance try to come, even if for a day or two, some of us are driving for hours and hours to make it. You wil be amazed at the instant connection we all have and become family for life, it is as if we always knew one another as son as we meet. There is no strange ackwardness that you feels at times meeting new people or families, we all have a bond, a connection to one another. And I sure wish my child wasnt always the naughtiest one there, any takers on that challenge????? LOLOL, huggs and love to you all, Robin
PS CHRISTINE... I was going to email you tonight but I havent been home long and need to make a few calls and fall (or collapse into bed ) so I will email you tomorrow ok?
take care all
 
Name:  Maria    Email:   
Child:  Steven
Comment:
217    Wednesday, 28 May 2003 - 11:49:46pm
Hi guys , boy i sure miss you all , i go into chat and not a person is in there. Well we haven't started building yet , but i'm already getting stressed out . So much going on this coming month !!!!! Susan i'm so happy to see you posting , hope you are doing great , i miss you and the kids , tell them i said hi and Terry too . Robin love reading Chase stories , Annie M and Kristi , miss you guys too , i never catch anyone on . Annie hope your move is working out good !Well hope everyone is doing good ,miss you all so much , and boy i will be very envious the week you guys get together ,i will be crying for sure .Hope all the pregos are doing good , take care everyone and hope to see you in chat, you are all in my thoughts and prayers , MARIA
 
Name:  Pat    Email:   
Child:  John-John
Comment:
216    Wednesday, 28 May 2003 - 08:24:17pm
Robin
My dh John & I are putting up a fence to help contain John-John. First we talked about a 4 ft fence, then I said if he's like Chase...LOL (I read some of these letters to my dh and Chase's stories are great) Is your hair you totally white yet??? We've decided on a 5 ft one. John-John is 3yr10mth and in 4T so you know how tall he is. At least the fence will give me an extra 30 seconds not watching him. LOL Of course, I will have to wait until it stops RAINING to put it in. I live N of Phila. Thanks for the stories, they almost make me feel good as my son runs down to Cowpath Rd.(very busy st.) Love that boy:^O
 
Name:  sharyn    Email:   
Child:  Kim
Comment:
215    Wednesday, 28 May 2003 - 08:05:37pm
Thanks grandma joan
 
Name:  gramma joan    Email:   
Child:  granddaughter Zoë ( 4 1/2)
Comment:
214    Wednesday, 28 May 2003 - 06:47:34pm
Sharyn - don't be afraid to speak up!
I recently attended the Canadian National Conference and a wonderful speaker named Norman Kunz spoke exactly about your concerns.
Kids don't learn that much in a segregated classroom.
It violates comman sense when there is no motivation.
Segreation, he suggests, is an a convenience for administration...it's "easier".
What should be in play is what's BEST not what's easiest.
More emphasis should be placed on achievement and mastery. Point out contradtions we encouter (I.E.P.'s are often replete with bias.
Go on the offensive.
Emphasis should be on a far bigger issue - "belonging"
Inclusion is about belonging.
People do their best when they feel like they belong.
Self esteem can only come out of a sense of belonging - when we feel "value"
Good luck tomorrow!
PS - everyone should have the opportunity to hear Mr. Kunz speak ! You will certainly come away with a feeling of what people with disabilities encounter!
Hugs
gramma joan
 
Name:  Sharyn    Email:   
Child:  Kim
Comment:
213    Wednesday, 28 May 2003 - 06:25:38pm
We need all the prayers we can get. We are going to hearing tomorrow-advisory hearing Kim is going to middle school in September and the class has three gitls and three boys and the three girls are severly handicapped and non verbal and I think Kim needs peers like her so we have spent all of time and money Now its up to me to present this to the hearing officer lets pray that I dont break down It sounds selfish but the three boys in the class are below her level also and it wouldnt be a challenge for Kim Sharyn
 
Name:  Tammy    Email:   
Child:  Lewis the Menace
Comment:
212    Wednesday, 28 May 2003 - 12:04:57pm
Hello again my Long lost friends...
It feels like agae since I have been to visit...even though I think it is only a week... but a week is a long time in Uno Land!!
So far my Prac is going well.. I have done lots of cleaning up, washing paintbrushes, wiping desks, gluing, cutting, sorting, and have become intimate friends with the photocopier!! I have also had some good opportunities to work with the children. I have been taking the "lower end" group for maths lessons. This group consists of a child with Autism, a child with a Chromosomal Disorder (Not DS but similar)and 2 children who rarely attend school because of lack of encouragement from family (if you get what I mean). They are a good group to work with and can be a lot of fun. The rest of the class is a challenge but I am loving it.
Lewis has adapted well to Daycare, and doesnt seem to be stressing at all. First day he was happy to wave ByeBye to me, but when I went to pick him up at the end of the day he gripped me like a Python!! and wouldnt let go. Second day he was fine, but day 3 he was a bit reluctant to let me go...didnt cry or perform...just wouldnt let go of my trouser leg!! But the attention seeking when we get home is almost unbearable!! LOL...
I think I might keep him in daycare for one morning a week after this...then I can have a free morning and it will be good for him too.
Well... better be going..I have assignments to finish and logbooks to write in.... work never ends...

Until next time...

Stay Happy.... Huggles Tammy.
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
211    Wednesday, 28 May 2003 - 11:14:36am
Christine... I just saw your post.... welcome to my world :-D I am mom to the notoriously naughty chase who has ADHD as his primary disability followed by DS. I am on my way out to catch this child who thinks to elude me so early this morning (little $hit) and then off to work and school but I wil email you later today ok?
WELCOME! Robin
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
210    Wednesday, 28 May 2003 - 11:11:42am
As I watch this child of mine (who btw snuck outside before it is time to leave for school and is trying to hide from me and thinks I know not) struggle to do the things this morning his brother can do so easily and started to feel sad for both him and myself.... I remind myself...
he does not do alot of things his peers both DS and NON DS can do BUT.....he can do some things no one else can ever match- like this morning, this oh so lovable naughty stinker of mine climbed into my bed at 5 am and took my sleepy face in both his hands, kissed me smack on the lips and said "oh I love you so much and I marry you mom" Now I ask you..how can it get any better? :-)
Good morning unoland..love to you all,
Robin :-)
 
Name:  Christine    Email:   
Child:  Alex age 5
Comment:
209    Wednesday, 28 May 2003 - 03:49:16am
Hi all! I've visited this site, quite a few times and think its really nice. I was hoping to meet another parent that might be in the same situation I am in right now. Alex was recently diagnosed with ADHD, and I've been told that only 3% of the Down Syndrome population are ADHD. Is there another family out there that happens to have a child with Down Syndrome and ADHD? Please e-mail me. Thanks. Christine
 
Name:  jackie    Email:   
Child:  justin
Comment:
208    Wednesday, 28 May 2003 - 01:39:00am
Ok Robin go and check your e-mail. Promise it will bring sunshine your way ok it will at least brighten up your day........hugs
 
Name:  Susan    Email:   
Child:  Emily, age 11
Comment:
207    Tuesday, 27 May 2003 - 11:55:01pm
Hi there Uno Mas! HAPPY BIRTHDAY to Haley, Annie M, Steven, and anyone I missed in the past week or so. I hope you all had a GREAT birthday! Did everyone have a good Memorial Day? We thought and thought about something FUN and not too expensive to do. I really really wanted (and needed) some SUN, so I checked the internet weather listings and we decided to go to Kentucky Kingdom (an amusement park in Louisville). Had a great trip there! Emily amazed me in the car by asking if we could have a spelling bee. For the next hour and a half, she surprised me by spelling almost all the words she studied this year in school. It was so sweet to see her so excited about it, and trying to hard to get them all right. We got up the next morning to go to the amusement park and it was POURING down rain, and the sky was DARK gray. We convinced the kids that it didn't look like it was going to stop. So......sigh, we headed back to Nashville and shopped and went to Olive Garden. There was no more sun in TN than there was in Kentucky, but we had a good day anyway. I'm SO ready for summer!
~
Have a FANTASTIC week!!!!
Susan
 
Name:  Annie S    Email:   
Child:  Sonny8
Comment:
206    Tuesday, 27 May 2003 - 11:33:27pm
Hi all Thanks so much for thinking of me...I have a job until the 1st of July then Iam home for the summer..been looking nothing much coming up..but going to take my time..hopefully something better will come of this...I wish I could go to Chicago this year but do need to work up until July and won't have any time off until then boo hoo...but will be thinking of all of you...

Talking about Micky d's Sonny is so bad about not coming out so we hardly ever go in unless Dad is with us then he will listen...

Lorena so good to see you post ...hugs to all

Annie M Happy late Birthday...give Mikey hugs from us...
Robin my friend thanks for the offer...
Love ya all Annie S
 
Name:  Maria    Email:   
Child:  Isabella - 12 mos
Comment:
205    Tuesday, 27 May 2003 - 06:46:44pm
My beautiful, darling, most precious baby has a mean streak! She is starting to pinch and scratch, AND she does this thing where it's like she is trying to fit her tiny hands around my throat, and she tries to squeeze. Like she is trying to choke me. I don't think that is normal, and I'm not real sure where she is picking it up. THis is my one and only baby, and I need advise on how to break these little habits before she gets older and it gets worse. I mean she laughs(sort of) like a mad child when she does it. I have tried telling her no and showing her "gentle", but no luck! She will also grab my hands and like try to twist my fingers off! She is only a bebe, but she is VERY strong. I think that my neck is going to be a permanent scratching post for her! I hope all is well for all of you! Please help!! LOL
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
204    Tuesday, 27 May 2003 - 05:09:00pm
LOL Julie to Jordan...ROBIN Chases mom has had to climb up and get Chase out BUTT NEKED!!!LOLOLOL... He just stripped in the tubes..LOL. Sorry Robin had to share...Anyhow Liv has been banned from Mickey d's cause we are all,starting last week. EATING healthy. SO..OH GOSH IT WAS AWFUUL.I took the kids to the store with me last week to shop for healthy foods they will eat. BOY was that a toughie. I had them pick out their own food from the healthy choices I gave em and although they PROTESTED fiercely they are eating good healthy food.Olivia eats healthy but she wants to eat ALL DAY. I swear to you after she eats she puts her dishes in the sink walks out of the kitchen(and then I gate and lock the kitchen up., she sits down ,rubs her belly and says very dramatically I SOOOOOOOOO hungry..Ugggg

Well I am outta here I have as babysitter for Olivia I'll explauin later when I have a moment my son and his classmate get out early and i am gonna lhelp em with homework send em out to play take his classmate home and drive Kyle to grannys .He's gonna stay there till time for bed and Liv will be with the babysitter from 3-7 30 tonight.Cause if I didn't get a break I thiink I mighta lost my top today....SO I am hittin the beach immediately after I drop Kyle off and layin in the sand and studying. I CAN'T WAIT!!!!!!!!

CC.. Yes Liv will have a one on one. I like her the teach's like her and she is VERY GOOD and most importantly she shares my philosophy of helping when necessary otherwise help everyone and DO NOT FOLLOW her around. Let her be and be there when she needs to be and only then.I watched her with a child in Kyles kindy class and lemme tell you because of her this little girl got to be sooo independent in kindy. She is a drug baby who had lots of physical probs. she had been catered to her entire life and her foster parents had in my opinion had cheated her out of learning to be independent. AND she was SPOILED ..OH MAN. By the end of the year this child was independent and OHHHHHHH SOOOO proud of herself. Was one of the most amazing transformations i have ever seen.I volunteered in Kyles class and in computer lab so I got to see her in action. SO that's who we are requesting on Livs iep.ALTHOUGH the T.A.(the one liv says is MEAN) told me friday,I don't know how you are gonna pull off getting Liv and aide.we applied for 2 kids to get em and were denied. miss negativity. I don't think they are gonna make this easy for me BUt she will get her I am bound and determined... Well gotta git. BYE
 
Name:  jackie    Email:   
Child:  justin almost 3
Comment:
203    Tuesday, 27 May 2003 - 02:14:37pm
LOL Cathy you are just lucky she wears the same size as Ashley or there would have been more wish there were more for the Princess but I forgot I had a garage sale and got rid of most of those:(. Just to let you know I brought back some of your weather with us and it's gorgeous outside hope Robin got her share that I sprinkled over Saginaw last night as we drove by lol. Sorry again it took us sooooo long to get there but the traffic at this end was terrible and then you neglected to fill me in on the ORANGE BARRELLS on your side lol. Oh and for Chucks new toy he took it to his buddys' house and they Tim Taylored it ugggggggh!!!!!!.
Robin to get to Manistique hit 75 alllllll the way up lol west on 2 alllllll the way around Lake Michigan alright not allll the way around it but close to it well at least that is what it felt like with 3 kids in the back seat lol. Ok have to go unpack now and hope everyone enjoyed there long weekend.
 
Name:  Kristi    Email:   
Child:  Cody (8yrs.)
Comment:
202    Tuesday, 27 May 2003 - 12:23:50pm
HAPPY BELATED BIRTHDAY ANNIE M. AND STEVEN!!
Sorry so late!
Happy birthday to all this month!
Hugs,
Kristi
 
Name:  julie    Email:   
Child:  Jordan (5)
Comment:
201    Monday, 26 May 2003 - 11:40:47pm
STEFF - I had to reply to your post of last Thurs 22nd.Jordan loves McDonalds(what kid doesn't?), although I usually go through the drive thru because of the tunnels and the play equipment. It is only when I'm in an exceptionally good mood, that I will park and go in. We too have the same problem with getting him down. It is only with the promise of nuggets that he will come down-sometimes-other times I've had to do the tunnel chase as well.
It's taken me 20 mins to catch up on everyone's stories. Hope all is well with everyone.
At the moment both Jordan and I have chest infections as well as asthma, so I haven't had the energy to even switch on. Went to the doc yesterday and came away with 4 prescriptions. Then onto the chemist. $95 later I'm out of energy. Thank goodness Jordan can amuse himself with his cars and even change his videos for himself. He is getting awfully bored with being at home and stuck inside out of the cold air, so hopefully it won't be too long and I can take him back to kindy. Must go. Hopefully will catch up a bit sooner next time.
 
Name:  Cathy    Email:   
Child:  Princess Katie
Comment:
200    Monday, 26 May 2003 - 10:33:33pm
Hello and Happy Memorial Day everyone! Hope you all had a wonderful and safe holiday!
~
Jackie: Did you make it home ok? Ijust wanted to let you know... ITS ALL YOUR FAULT!!! I had tospend today sorting thru clothes and cleaning Emily's room! GRRRR but really thank you so much..You are the best! Hugs to my SIL! and hope Chuck is having fun with his new toy! Of course Emily said that Check is TOOOOOO OLD for toys and you should give the car to Justin!
~
Talk to you all real soon... and Robin..honey..nice try... but I shall have jello shots in IL!!! Hugs Girl!
~
Cathy
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
199    Monday, 26 May 2003 - 02:59:12pm
morning unoland and a happy healthy memorial day to you all.
Cathy, this is for you ------> :-P what'dya mean in the 70's and sunny???? You have ALOT of nerve having better weather in BFE then us here in mid michigan!!:-)
And today, which was suspose to be 70 and sunny is dark dreary and chilly but I am an optimist today and holding out for a quick change. As for those jello shots, well lets just leave it at you cant hold you liquor anyways so you are officially cut off til further notice :-D And btw.... I think you have ALOT of nerve meeting up in manistque without me, LOL, where the heck is that anyways????
Dave took BOTH boys shopping for groceries this morning and left me sleeping....ROFLOLPMP and he came home and said....not again for a million $$ !!! I love that man (today anyways) He said the boys argued over and wanted EVERYTHING!! ( and he askes why I spend so much money at the store :-) Seems the highlight was when they got into an argument over what kind of milk they wanted daddy to buy (LOLOL they had his number, like I ever would let them choose what kind of milk for me to buy) and they started to get a gallon down from the (TOP) shelf and of course ..... three fell, and yes.....it made a terrible mess and he was horrified :-D Seems that was the straw that broke the camel's back, and he has to go back tonight to finish getting gorceries, LOLOL, he had had enough. Bless his very brave heart. He and Chase are now on their way downstate to buy african ciclids and Zach and I are about to go work in one of the gardens and pray it dont rain til we are done. I sure wish I lived closer to many of you, I am hating throwing flowers away. Jackie, quickly send me those fairies ok? Tis getting my back worse day by day bent over those flowers.
Ok have a great day, Huggers, Robin
 
Name:  Christie    Email:   
Child:  Christopher
Comment:
198    Monday, 26 May 2003 - 02:27:04pm
STEFF ... I agree, and think having Olivia fully included from the get go is the right thing to do. Geez with her speech and cognitive ability, she will do wonderfully :-) Just a thought.. good thing about others people thinking is, if you don't like it, ignore it ;-) LOLOL If I recall right, you already know the Teach Olivia will have so maybe you could talk with this lady and make sure they have a good behavior plan in the works in case that is needed from the get go. Not saying Olivia has behavior issues BUT I do tend to hear schools try and use that against the child instead of working with the child. You may already have thought of that but would be a good thing to have all set up in the IEP for the new school year. Hope you get what I mean there. Your thinking bout taking it a year at a time is wise girl. Chris started out doing great with his home school but for us things changed as he got into 2nd grade. Funny thing is they were fighting us that he was doing wonderfully in the mainstream but he wasn't learning he was just being good and not getting in trouble BUT not learning :-( Sooo now he has been moved out by our choice and learning :-) Colin and I, well mostly me were at first kicking ourselves for not moving Chris earlier but it has all worked out and as happy as I am with his new placement, I reevaluate every year to make sure its the right placement. One day he may be back in our home school or not, and I will always consider and appreciate the teachers input BUT Chris, Colin and I will be the ones to make the final decision. I guess my ramblings are to say seeee us Mom's do know best for our kids, I was advised that Chris would suffer and not do as well if I moved him into a private school and you know girl he had his BEST year ever. It all comes down to the idividual and what works best for them. Olivia will do GREAT come September and I know you will be right there on top of things :-) Just wondering will Olivia have need a one on one in this kindy class?
CC
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
197    Monday, 26 May 2003 - 02:04:43pm
AWWW DOLLY Thanks a million for your opinion as well. Ya know when Liv lefte her preschool she was sooo "popular" LOLOLOL with ALL the kiddos and teachers . She felt sooo comfortable cause she was a "part of" a group for 2 and a half years. She felt wanted and YES they treated her like all the kids(with the exception of 1 teacher who I ALWAYS had to remind to not give her slack as she thought Liv was so charming.LOL)I think that is FAR more important than her writing her a,b,c's perfectly or all that stuff. SURE I want her to know as much as she can but face it she will NOT be a brain surgeon and I'd like her to not only have friends in her class BUT friends with ds as well.Ya know they started a teens group here and it is quite the popular place every month. I also think that is imp. too. I have spoken to various parents with teens and adults with ds who CHERISH these moments for their kids(teens).Cause let's face it there will be times I am sure that the kids get lonely and having someone who is like you is just as important as it is typical kids.I tell ya they have a blast and having friends from all sorts of backgrounds etc can also make you feel like you have a true friend you can relate to. LOLOL...not to say that folks born with ds get along with others with ds. LMAO Liv can't STAND the boy in her class with ds but there is a girl who is Livs twin I tell ya and I make a point of making sure they play together a few times a year. And they get along SPECTACULARLY... Anyone out there who has an approaching teen the teens group has worked out soo well here in L.A.I don't know where that came from but that just popped into this brain of mine..LOLYou could call the dsala and find out who runs the program(run by parents) and find out how they do it and how they started it all out but it has been a smashing success here.

Anyhow to go back to the original subject I think Liv will benefit socially soo much from reg kindy. Her behaviors this year are well bizarre. I think she needs order in the classroom and she does not get it where she is now. They have consistent schedules for academics BUT the commotion is TOO much for her.Thanks for sharing your true to life account of your son's growing up school years that helps me a lot to hear that!!!!(((HUGS))) Steff haven't heard much bout you and eric these days what is UP???
 
Name:  Dolly    Email:   
Child:  Eric 2(ds);Matt,Mike,Meg
Comment:
196    Monday, 26 May 2003 - 12:19:30pm
Steff;
I read your post about school--can u stand one more opinion? My oldest son, Matt, now 22yrs, had a severe
learning disability. After much thought, I enrolled him in a Catholic school, starting in Kindergarten. The class sizes were much smaller than public school, and he went to "the mobile unit" (a trailer in the parking lot) for speech, reading, and math. I had to fight tooth and nail to keep him there. The school didn't think he "fit in" to their philosophy of academic excellance! ( translation...he will mess up
their overall test scores and they didn't want to be
bothered). That's when I became a crusader for special ed...They totally got sick of me...I was voted in as PTA President, and school rep to the parish. They couldn't get away from me!LOL
You know your child better than anyone, and your instincts are usually right. Matt flourished in grade school. Sure, it was tuff academically, and they didn't cut him any slack ( I didn't want them too), but socially, he was in his glory! He became so independant and sure of himself. The teachers loved him, and so did his classmates. He was a big basketball star, and quite the "ladies man". He went thru 8 years there, and passed everything(not A's, but no F's either). When it came down to high school, the parachial school had NO services for special ed..unbelievable! (thats why when the parachiol high schools around here brag about their test scores being better than public, I flip out...its because they can pick and choose who they have in their schools). So we
had to go to public school. He was placed in the developmentally handicapped class...WASTE OF 4 YEARS!
His teacher was excellant...class size was small, only about 15 kids...but they also had alot of kids with behavior problems in there, so always was alot of commotion, screaming, yelling, fighting, and not much teaching. Matt did go out for some classes, but basically did nothing. His teacher loved him, which was sweet. but she would send him on little errands for her all day...He didn't improve on any skills, except social...he was still quite a popular kid. I think thats what got him thru. Now today, he still can't read, and his speech is slow, but he works, drives a car, has plenty of good friends (even tho they party way too much), and plenty of self confidence. What I'm trying to say, be it long winded,
is that if you feel Liv will do well in reg. class,
then go for it...don't worry about what the school tells you. She can a least try it...I'm a firm believer in challenging kids..not just the status quo!
So go with your gut...Moms usually know best! Dolly
 
Name:  Cathy    Email:   
Child:  Princess Katie, 2
Comment:
195    Monday, 26 May 2003 - 03:56:48am
Hello Unomasers!
~
What a beautiful weekend in the UP. mid 70's and sunny.. oh so perfect (LOL JAckie..eat your heart out).
~
Missed too many posts recently to respond.. so.. Hugs to everyone, happy Birthday, good luck.. and aww to anyone who needs it. Sorry I know its Pathetic.. but its all I can do for now!
~
Robin, my cyber friend, I am supposed to tell you that is is all YOUR fault that I could not have jello shots today! It seems that you are still in possession of the small cooler!... So I am think.. WHEN you come to IL.. I should get your share! Anyway.. just got back from a long ride to see Justin and his family! it was great. We met in Manistique at a Burger King. Of courser we could have spent more time together if the McGeorges weren't almost 2 hours late... but hey.. I'll take whatever time we had it was wonderful.
~
Susan...hugs to you...hurry back I miss you.
~
Debu... will we ever chat again???
Talk to you all and have a wonderful Memorial Day to all you Uno Masers!
~
Cathy
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
194    Monday, 26 May 2003 - 02:58:02am
OOPS... Robin in my last post what I meant to say in the end is that I really don't think needs sp. ed at this time in addition to her therapies....Later next year is a whole nother ball game and I try not to thibk too far ahead.. HUGS again. Steff
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
193    Monday, 26 May 2003 - 02:54:18am
ROBIN!!!!!

HI... Thanks for your advice and I would NEVER say to MYOB cause I value your opinion...Here's the deal...I wanna start her off fully included. Her therapies will be at school and she will have the same therapists she had in preschool. SO... Here's the up and up...My mind has been set to TRY fully including Liv. The sp ed teacher at Livs school now thinks I am lame and making a bad choice she has her right to her opinion. BUT my feeling is that Liv did have probs in her class cause of the aide and a lotta commotion and "the screamer." Now.. I am not one to be closed minded. BUT I feel like this is the time to start and try... Hey may work out great which I am sure it will. 1 st grade and up.. well I will get there when it comes. AND I agree she will most likely need all the stuff that comes with academics.. I am NOT against that at all. I AM against the sp. ed teacher at her school saying we shld put her fully incl. as a kindy and a first grader in the afternoon in the sp. ed class. I kmow her thinking is and she actually told me and thought I would think that's okay. She feels that if Liv is having a prob in her kindy class that her new reg ed kindy teachers could WOOSH her over to the sp. day class anytime they feel like it. I think its MUCH easier for a teach to send AWAY a ds or sp. needs child to another class than a typical kid. I don't want em to have that option. Ya know . It makes it all to easy to not come up with solutions. i am taking off my first semester next fall so I can be there at the teach's beck and call so they can call ME if there is a prob. AND ya know if it doesn't work out then ya know what we can call an IEP. That's my final solution. I would much rather try it this way. I am not against sp. ed at ALL....I wanna try it(reg kindy etc) until it becmes aopparent that Liv will need much more sp. ed help. Which she will but not in my humble opinion and she deerves a chance. I think it becomes too too easy to say behaviors are a ds thing. They certainly wouldn't be sending a typical kid away to another class without trying some different things first. ya know..(HUGGERS)))0 and Liv is scaring the pants outta me lately .I can totally relate to that LOVE and I wanna get you thing ya got going on with Chase... LOL...
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
192    Sunday, 25 May 2003 - 05:48:09pm
Awwww Steff.... I have been there, done that, as have you so many times and I just wish ther was a magic "NICE" pill for these stinkers to take that would make them sweet and kind 24/7. As I read what Livvie did, I was picturing her doing it and LOLOL, I saw it all so clear, little Chase jr.
Can I stick my nose in and ask exacty who does the teacher think she is to call you and give her opinion??? Tell her next time she has an opinion to give to call me ok? ;-X and we can talk grrrrrrr. You do what you think is best and dont let anyone talk you out of it. Chase's best year in inclusion was his kindergarten year, it was such a positive expirence for him and he learned so much that year!!! Now when you get her into full time 1st grade and up I may suggest you think about a hour or two with a special ed teacher ( LOL and pleasse feel free to tell me to MYOB) :-D
Okay, we have worked all morning on this floor, you remmember, the one we started on a month ago?? It is now down to bare wood and almost ready to be stained and polyied. I needed a quick break so I stopped in here and now need to go work on those gardens of mine. Where are Jackie's fairies when you ned them? hugs and I hope you are all having a nice long holiday weekend. I do know Susan went to a admusement park in Kty with her family and lucky Jackie is upnorth with her family. Me....home, working hard ;-)
huggers, Robin
 
Name:  Romeu Hilgenstieler    Email:   
Child:  Bruno
Comment:
191    Sunday, 25 May 2003 - 05:26:26pm
Good day,
We need help. Our son Bruno had a karyotype done and we haven't been able to have it interpreted here in Brazil. There is an abnormality in the 21st chromosome, but did not come back as DS. The result was 46,XY,der(14;21)(q10;q10),+21. Bruno passed away when he was two months old and all we have is this test result. Can anyone guide us in the right direction?
P.S. My wife is pregnant again and we are concerned for our new baby.
Thank you kindly,
Romeu
 
Name:  AnnieC    Email:   
Child:  Raven, Abbi, & Emmy
Comment:
190    Sunday, 25 May 2003 - 11:43:12am
Awwwww Steff, I hope the rest of your day was better :):) Thinking of you girl!!!!
 
Name:  Debi    Email:   
Child:  Gabe/eleven
Comment:
189    Sunday, 25 May 2003 - 01:50:51am
Oh Steff, your naughtikins girl is tooooo much.. had to go back and read about her glasses and also how well she remembers and tells you what she did at school.... amazing!!! Your girl is proof of typical, LOL.. beauty and the beast and all blended together like ALL kids!! Why are they saying Liv can't be fully included in Kindy?? Are they giving you specific reasons?? I would LOVE it if Gabe could tell me about his school day so well.. altho he certainly understands about being GROUNDED LOL Hope Kyle is feeling better!!
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
188    Saturday, 24 May 2003 - 03:12:56pm
Hi... guess its just me here so I am gonna continue on this morning with my anthology...LOL... K... Wake up this morn. to Kyle saying MOM I PUKED on my floor.(the kids had nothing else just a funky bubbly tummy as he refers to it lol) So clean that up. Liv wants to watch her shows.... I tell her Olivia remember your grounded?WHY???(her famous response to EVERYTHING) I take her over to the counter hand her her broken glasses and ask her...REMEMBER WHY? She hung her head to the floor. Tells me... I BREAKED MY GLASSES SAY STUPID MOM ... I say you got it kiddo so that is why your grounded today... BUT WHY?????/ LOLOLOL... Well I think this is gonna be a LONG DAY!!!LOL.. I think grounding a kid is like grounding yourself to a day of torturous whines.BUT I must add...LOL. At her after school program the rec therapist has been working with Olivia(as per suggestion of the st there who thinks Liv is just hysterical and amazing )in recalling what she did. SO when i pick her up Jeff(rec ther) asks Olivia to tell me what they did today. etc... WELL I have noticed over the last few months her memory is getting to be soooo good and she can recall WAY more than I ever thought she could. Even after we say paint... About an hour later I'll ask her to tell soeone what we did at home on the table. WEll she ca DO IT...That is a BIG BIG one f for me. She tells me after school when I ask more than just PLAY after I asked what she did at school today. I find out what and who she played with at recess(andI double checked a few times with her teachs the next day her account of the day before and she was on the money),who was screaming,who was the line leader..(very imp to a 5 yr. old and always that the t.a. miss so and so is MEAN.So alll in all even though I am really still mad at her now she is just getting to learn and do more and more everyday (no matter how negative her teachers at school now are) nd I am sooo proud of her.She has even charmed the pants off the pincher at her afterschool program and she races to give him a hug(a pinch free one) when its time to leave...and they SLOW DANCE TOGETHER!!!!! The CUTEST thing you ever saw... He's about a foot and a half taller than her but man oh mna... Well goyya git had to vent and brag all in one breath.. :)
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
187    Saturday, 24 May 2003 - 05:18:54am
HI!!!!

LORENA GF How the heck are you? College???hmmmmm... do you play the lottery? LOL...just kidding. Your boys are athletes aren't they.Any sign of a sports scholarship?Livs potty training is going up and down. Mostly down the last couple weeks. :(

ROBIN... Awwww I was soo sad your beautiful flowers had been picked.But hafta confess...I think Chase is so sweeet for thinking bout ya. HAPPY MOTHERS DAY. I laughed so hard. I could totally picture Olivia doing the same exact thing.

ANNIE whats this about your job?I have missed some imp info. SORRY HUN...(((HUG)))

CONNIE...MIA girl... LOL to Collin LOVIN the spongebob. bring it aaaaaaarrooouuuuuund town.

K. must vent or I shall lose it. Funny thing is here as I type I can hear the kids fidgeting as they must hear the keys as they sleep.They're HAWKS I tell ya...LOL...k. here goes. Yesterday Liv had a tough night and her teacher had called me yesterday afternoon to tell me that she thinks I am making a terrible mistake by fully including liv next year.ANYHOW I am a tad annoyed. Then school my project and the teachs embarassing comment. Then today Liv is having a meltdown. She will NOT get dressed. I finally just started putting clothes on her and she was in turn(they say she has no strength LMAO)taking them off. So struggle she is yelling at me. WAAAA.After school I take her to lunch she is good.We go to get her glasses fixed and readjusted. Pick up Kyle and a girl in his class i am now compelled to take care of cause she is neglected by her mom and her gramma needs help... Long story another tine. SO liv is just a complete naughtikins when we go to pick the kids up. Won't get up running intovarious classrooms etc. So make it thru that. Long tough hours ttill finally it is bedtime. PHEW. I am helping her get undressed and her jammies on. I am starting to loosen the strap on her glasses to take em off. Liv SCREAMS NO. and does this freaky satanic like my glasses blah blah then RIPS em off her face turns to look at me and snaps em in 2 as hard as she can with the meanest coldest face. THEN get this she says YELLS STUPID MOM and HUH then turns around and stomps her feet.She is punished her glasses we just fixed today are ruined and they are expensive. the lenses alone are 125.00 and I shopped around. VERY FEW labs make em that strong. :( So I just had had it. FRUSTRATED as all GET OUT.... Had to let it out I am trying to hit the hay early.

NIGHTY NIGHT
 
Name:  Connie    Email:   
Child:  Collin
Comment:
186    Friday, 23 May 2003 - 04:17:05pm
Oh, one more thing

Annie -- Just want you to know I'm thinking about you...good luck finding a new job or better yet...another job for your DH so you can be a SAHM!!!
LOL....SAHM is not or me....I need that seperation from my kids!!!

Connie

 
Name:  Connie    Email:   
Child:  Collin
Comment:
185    Friday, 23 May 2003 - 03:36:52pm
Just a minute to pop in and say Hi to everyone and wish everyone a Happy B-day that I missed.

I also, want to comment on a couple of things.

Robin...Only 1 year???? I didn't know you were 22!!!

Jackie -- I just want to say don't beat yourself up and you can't change anything that's in the past and to be honest with you I do beleive that therapy helps but all it does is help...it doesn't change our kids potential and they will do everything they are suppose to with or with out therapy and on their own time frame. Because if I think about how much time I should have put into Collin I would go crazy and not have time for my other kids who are just as important and have just as many needs. Collin had 7 hours of therapy a week and looking back on it it was just to much. I am glad he is 3 and in school but...for better or worse he will not be doing the Summer Enrichment program because we need a break!!! He will only be doing a special speach program 2x a week for 6 weeks this summer...a break is good (for all of us).

Hugs to you Susan!!!

Steff -- SPONGE BOB.....that's Collin's Man

Connie
 
Name:  Lorena    Email:   
Child:  Clark Almost 6
Comment:
184    Friday, 23 May 2003 - 01:42:18pm
Hi all you strangers !!! It is I Lorena from Maryland...remember me? I had a few minutes of computer time and thought that I would say HI and catch up alittle.
Clark is doing well in school...however he still doesn't talk a whole bunch and he still is not potty trained. He is playing Challenger baseball and just loves it!!! He can really hit the ball off the tee !!! Craig ( will be 17 in June) and we are looking at colleges he is interested in. Caleb is still playin Lacrosse and will be 14 in July.My boys are growing up boo hoo.

Was reading about your trip to Illois...I wish I could come and see everyone again !! But not good timing for us. We will be in Ohio at football camp with Craig.I am sure you all will have a blast !!! Maybe next year I can get back into the grove.

Well, I have to hit the trail here....Hopefully I will see you all at chat sometime real soon.

Love, Lorena
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
183    Friday, 23 May 2003 - 12:42:02pm
I'm back and now the proud owner of every single blasted tulip and daffodil I had planted!!! The child picked every single one and came in proud as punch to tell me happy mothers day!!! Grrrrrrrrrrrrrrrrr, and I cant even scold him...ROFL that little monster! Now if i cou.d just get to him to understand I want him to leave those alone and instead bring me those beautiful yellow ones that occasionally spring up no matter how much fertilizing I do to the grass!!!!!
We just boguth another new lock as Chase actually managed to rip two of the three off the door and this one is a new kind, it too has a key which I hate because I think it is dangerous to have to use a key to get out of the house. The last one we bought you could choose to use a key with it or not, this one you have to vbut so far he hasnt figured how to open it and he has been tearing things up looking for that key, LOLOL, I keep finding all the extra keys layng on the floor by the door so I know he is trying, LOLOL and the chairs are next to the door where he tried to stand on them to make it work, but no go. I dont hold my breath anymore though, he'll figure out something or rip that one off too, little stinker man! It is going to be a long long summer if we dont find him a new aide, one that doesnt want to have power struggles with him.He is having a terrible time with Zach having friends that he can go play with and Chase cant. It is breaking my heart to watch him cry because he wants to go to Zach's friends house too. He can go to the one on the one side of us, but not the one on the other as there is no one there who will watch him and she has made it kinda clear she isnt into babysitting him when he is over as he gets into everything!
Okay, I have the day off so I really need to take advantge of it if Chase man will let me and try to get the house cleaned and laundry done and some gardening done so that I can make crafts all holiday weekend. We really need to get my outhouse/garden shed finished this weekend.
huggers to all, Steff, Debi, Annie M, Tammy, Mary, Linda,Maria, Suzi, Holly, Alice (btw yes to a puppy, he will love it)Maria (bella's mom) Alissa, Jen, Wendy,
dang it, I am forgetting about half of you at the moment and it has nothing to do with Chase chasing the puppi4es thru the house as I type with a huge squirt gun full of lemonade
take care, love to all, Robin
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
182    Friday, 23 May 2003 - 12:16:52pm
Morning unoland...
I am home today. Chase had no school and I could find no one willing to watch my child for me so I lose my holiday pay too, wah.
Ok no more whining,I did enough of that to Cathy this morning. (well, I'll try not to any ways :-)
I feel like I am never here any more and losing touch with those I love ( so it is all of you) so know that even if I am not here, I am thinking of you guys all the time because you are the only ones who truely know my life and understand it.
Susan....kissers to you my bud...big fat wet ones (eww)
I hope things are a bit better, remember, day by day and hour by hour and btw.... I hear moving next to your best cyber bud always helps to cheer someone up!!
Annie S...huggers girfriend, how are you and Sonny? If DH really has to go away I think coming to chicago would be the best thing in the world AND we could share a room together and cut costs.
Connie... I am so glad youa re here to pop in on the weird times I do make it and say hey, you keep me as sane asa possbile when I whine, you are a Car the second, (which means a mom figure) LOLOLOL even if you are a year younger then me (oh hush you guys,:-) I can lie if I want)
Jackie...together you and I may need to kick butt and take names in this state, I am tired of fighting the system! Want to come to my iep?LOLOL and I'll go to yours!Time for upnorth yet? I only wish as we have tons to do around here, which does not include the addition right now, we are wayyyyyy too broke since the wedding, which by the way was fantastic and beautiful!!!!!! I'll bring pictures to the next get together I make but I have a beautiful DIL!!!
oh man, I wanted to say hi to about fifiteen more people but I do not heere Chase Ill be back as ssoon as I find the monster man
hugs, me
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
181    Friday, 23 May 2003 - 06:49:58am
HI!!!

ANNIE yes Liv is STILL into Spongebob although she is starting to tire of him I believe. She has seen ever dang episode and man acts out the cartoon and voices. It is pretty darned comical...Since ya watch it the running joke is that Patrick is my BIL reincarnated into cartoon form. :O ;) Project went good cept for the fact LMAO.... embarassing my teacher said i think you had better wrap it up.LOLOL..... K. did I feel about 1 inch tall?

Carolyn you described Olivia to a TEE... ESPECIALLY with performances. AND if people are staring at her and she is on stage forget about it...Her head hangs to the floor and she will make a GIANT BOO BOO lip like she is being TORTURED!!! AND if she wold happen to see me she would DART offstage and run like mad to me...Then after she'll hop in the car sing every song and do the gestures and put on a whole shebang and LOLOL to barking orders. Man my Liv is the bossiest dang thing. In some ways I am GLAD she has her opinion and is able to voice it. BUT her trouble is with not GETTING EXACTLY what she wants when she wants it...Oh man she hasta do things HER way. Like getting in the car...You should see the routine this child has thought up and don't you DARE try to rush her thru it.

Must go to bed. I am in DIRE need of some shuteye. NIGHT
 
Name:  Cathy    Email:   
Child:  Katie, 2 1/2
Comment:
180    Friday, 23 May 2003 - 04:19:39am
Hi there Unoland!!!
~
Hope all are well. Belated Happy Birthday to my favorite Bootie Shaker!!!!
~
Carolyn, Just a thought here, my four year old...non ds is the same way. I never know when she is gonna blend or cling!
~
Susan, Hugs I miss you!
~
Robin.. where are the wedding details????
~
Have a great Memorial Day everyone!
Hugs, Cathy
 
Name:  Caroyn    Email:   
Child:  John ,4
Comment:
179    Friday, 23 May 2003 - 00:11:29am
I need some imput from you guys especially the ones with older children. It is so hard sometimes to separate John's quirks- I never know what to put in the "down syndrome" file or the "nutty parents" file. John is basically a shy child, and at almost any public function he clings to me like he fears for his life. The image he presents to the world is 360 degrees from the child who lives in my house. Today he had a little graduation celebration at preschool. He stuck to me like glue- begged to go home the whole time-refused to do any hand movements to the songs- just basically acted like a sullen little turkey. It is so hard to have a child who does not reflect well on himself or on his family. People probably think he is SMI by the way he acts in a crowd , even sometimes people he knows and loves. What is up with this!!! Does he do it just to grind me- Can he not stand to smile a little and show off? Now I do know that my other 3 kids are pretty shy- but he takes his act to the extreme-The minute we are in the car he is barking out his one word orders like a drill sargent. GGRRRRRR. I knew before we went that he would act this way and sometimes I wonder why I bother going, except that I am an optimist who thinks maybe this time will be different. Should I maybe not go to all these things if he really doesn't enjoy them? I certainly don't enjoy taking him if he doesn't want to be there.
 
Name:  AnnieC    Email:   
Child:  Raven, Abbi, & Emmy
Comment:
178    Thursday, 22 May 2003 - 08:01:02pm
Oooops!!

I forgot to say Happy Birthday to Jasmine & Gerritt.....hope you had special 1st birthdays!!
 
Name:  AnnieC    Email:   
Child:  Raven, Abbi, Emmy
Comment:
177    Thursday, 22 May 2003 - 07:58:58pm
Hello Everyone!!

Geez, Jackie.....3x, I hope this time Justin's IEP gets done, how frustrating! Good luck :)

Well, it is pretty chilly here in Ohio...where did our spring go? I sure hope it comes back soon :)

Steff.....hope your final project went well :) Is Liv still into Spongebob Square pants?? My girls were just introduced to it here recently....they are addicted!!!! I cannot get them away from the TV...ROFL.....but I am not complaining ;)

Hope everyone has a wonderful day!!!
 
Name:  Melissa    Email:   
Child:  Mazie
Comment:
176    Thursday, 22 May 2003 - 07:29:37pm

I will definately put the Calender pic in the Album when we get it!! I did add a pic though of Mazie when she was like 6 months old. I had it done at Sears and it is the awesomest pic of her.
Melissa
 
Name:  Suzi    Email:   
Child:  Merideth 2
Comment:
175    Thursday, 22 May 2003 - 07:25:58pm
Happy Birthday's to Stephen, Gerritt & Jasmine!
(I can't believe those two are 1 already!)
Hugs!
Suzi & the crew
 
Name:  Maria    Email:   
Child:  Steven
Comment:
174    Thursday, 22 May 2003 - 07:00:09pm
Hi guys , hope everyone is doing well, Happy Birthday to Gerritt and Jasmine . Thanks for the Birthday wishes for the Bottie Shaker (Steven). He had a great day , i cried tho , oh well whats new with that !!!! LOL ,thanks , love you all , MARIA
 
Name:  jackie    Email:   
Child:  justin almost 3
Comment:
173    Thursday, 22 May 2003 - 05:21:56pm
Well they have rescheduled Justins' IEP again uggggggh this makes the 3rd time. Now it will be at the school figures lol. At least Chuck said he will take the day off and go with us yeah!!!!!!! lol he knows if they upset me I'm outta there. I know he is doing great but I can't help but feel they are letting him slip through the cracks, I just can't help feeling what if they would have given him ST,OT and PT all this time where would he be now,maybe we aren't working enough with him here at home, am I missing something is there more I should be doing uggggh the list goes on lol. All this plus the fact my baby is starting preschool and Alyssa will be starting Middle School and Ashley will start 1st grade, it will be the first time in 11yrs I haven't had a baby home hmmmmmmm oh HONEEEEEEEEy ROFL now now just kidding lol. Ok just look for me come Sept. I'll be the one on the news running after the school bus with a box of kleenex in hand lol, uh oh just thought of something which school bus should I run after first lol. Ok gotta scoot Mr. Justin is one of his I'm not taking a nap modes uggggh and I'm sure he has rearranged his room by now. Hugs to all, prayers heading out to all our little ones' not feeling well and Happy Birthday to everyone having one.
 
Name:  steff    Email:   
Child:  Olivia(5)
Comment:
172    Thursday, 22 May 2003 - 05:51:40am
HI!!!

Happy birthday to LOTS I missed while having to STAY away from the computer while I do my final BIG project for my class...I HAD to take an UNO break though...So to STEVEN,GERRITT,JASMINE and JORDAN.A GREAT BIG happy birthday... :)... BTW Julie(Jordans mom) Olivia made some HUGE HUGE strides from age 5 till now. She will be 6 in Nov. She amazes me on a daily basis.. Now tell me Julie Jordan is in kindergarten at 4?McDonalds eh???? Oh man I haven't taken Olivia there for a LONG time BUT the last time she went she would NOT get out of the tubes 20 feet in the air. So naturally I finally had to climb up the darned things to get her to come out. And BOY oh BOY was she mad and ohhhhh just yelling at me... Hence we have yet to go back for a while.No shot. Plus Liv is very overweight.

Jackie and Justin good luck on the IEP!!!!!Tammy Lewis is ohhh sounding like he is getting you back eh? Liv has her days i will get into that one later... You need a GOOD HUG and a few coctails.;)

Melissa.. How cool MAZIE in a calendar...Our pin up girl. That is very exciting...Post a picture when you can of her calendar page... :). Since you now have become an ole pro at it... :) Believe me it took me 4 ever. I think I was at the same level or below Robin in computer literacy. And hence lo and behold we can do a lotta things on here just a few years later. Susan (ems ma) saved my butt cause I had no idea what cut and paste was and she saved me many valuable hours cause i always seemed to do things the hard way... Susan talked me right thru it.... When I found Uno it was by accident and I had NO NO prior knowledge to the puter.

Hi Maria and Isabella..Glad to see you back.Sorry bout the split but if it what makes you all happier than well then its a good thing.

SUZI... Your schedule is wearing me out... GET SOME REST!!!! Can I tell you that the shots of meri in the album are SOOO GOOD... She has the cutest grin and all the bathing suit shots they are priceless.

Okay now I am tired. But I figured out the school situation. I went and talked to our regional center aprent advocate and resource lady. WELL her som with ds went to the same home schoool as liv willl next year.He didn't attend kindy there though but the rest of the years he was fully included. he also has severe hearing loss and uses signing and computer assisted technology in the class and alwys has. WELL we had a nice long chat. Here's what i am gonna do.. I will explain more details and the whys at a later time as i am ready to fall asleep at the keyboard. I am gonna fully include Liv in kindy. She will go to an afterschool program rather than spend the afternoon in the sp. ed day class as a first grader(as per her sp. ed kindy teachers reccomendation)We talked and my whole thing with Liv is the fact that i would like her to feel like she is a part of this group. Now if she is a kindy fully included and a first grader in the afternoon in sp ed class what the heck are we gonna do at lets say. Christmas time when they put on a program. Will she be in kindy class or 1st grade class? Also she pointed out to me that there could be some confusion for Olivia as teachers run their classrooms differently and have different expectations etc. That will confuse liv I know it. I have come to the conclusion that I am asking her sp. ed kindy teacher to retain her and Liv will go to kindy fully included. The sp. ed teacher at the school also sais she will make it a point to go to the kindy 1-2 times a week to make sure everything is hunky dory and nothing needs to be addressed or the teacher may need some help from the expert.(the sp. ed teach at our home school is FABULOUS)Also when I was speaking to the teacher at Livs school now she said something that made me think I pointed it out to the wonderful lady I spoke with today... The teacher(at the school she attends now) said that she also wanted to move Liv up to 1st and keep her included in kindy just in case Livs having problems in the class(kindy) and then she could easily move over to the sp. ed. See me? I feel like I don't want the teachers to feel like whenever they have a difficult moment with Liv that they can just wwwwwhoosh send her over for the sp. ed day class teacher to deal with. My feeling is that Liv is very social and she belongs in the reg kindy.She is gonna hafta live in this world and why not show her all we can about it? Anyhow I think I am starting to not make sense I am tired. So next year just regular kindy then the afterschool program.(I will explain the after school one later)

thanks for listening to me ramble...

JEFF(my dh) I MISS YOU... GOING CRAZY HERE and its only been 5 days... stay safe and healthy.... XOXO STEFF

H
 
Name:  jennifer    Email:   
Child:  courtney
Comment:
171    Wednesday, 21 May 2003 - 09:51:08pm
happy birthday to Steven, Jasmine, and Gerritt!!!

I can't believe Jasmine and Gerritt are 1 already....
waaaaahhhhhhhhh!!!!!!!!!!!!!!
He started walking about 2 weeks ago really good. No more little baby!
see yall soon
Jenn
 
Name:  AnnieC    Email:   
Child:  Raven, Abbi, & Emmy
Comment:
170    Wednesday, 21 May 2003 - 04:11:20pm
Happy Birthday Steven!!

Hope you have a very special day!!!!
 
Name:  kasgreen    Email:   
Child:  , Sarah,13(ds)
Comment:
169    Wednesday, 21 May 2003 - 02:43:32pm
Happy birthday Steven!
 
Name:  Annie  
Child:  Mikey 8
Comment:
168    Wednesday, 21 May 2003 - 11:49:41am
HAPPY BIRTHDAY STEVEN!!!!!!!!!!!!!
Hope he has an awesome day Maria!
Love,
Annie
 
Name:  jackie    Email:   
Child:  Justin almost 3
Comment:
167    Wednesday, 21 May 2003 - 04:24:47am
HAPPY BIRTHDAY to the booty shaker!!!!! Steven I hope you had the bestest day ever.
 
Name:  Debi    Email:   
Child:  Gabe
Comment:
166    Wednesday, 21 May 2003 - 02:49:08am
hey real quick here before it's gone.. HAPPY BIRTHDAY Maria's Steven!!
 
Name:  Suzi    Email:   
Child:  Merideth 2yrs
Comment:
165    Wednesday, 21 May 2003 - 01:55:20am
Hey Robin! Glad you survived the wedding...where's the pics????
Maria: Sorry to hear you've been though a rough spell! I'll head on over to see the pics next.....
Em: Good luck in Austin this summer!
I'm trying to take it easy....Sun I did a bike hike with the older boys & cub scouts...6miles worth. Then, yesterday was their school picnic at the big amusement park here.My feet are so sore! Then tonight the ball team photos got rained out so I took one of Matt's friends with us & we went & got carryoutpizza. His friend just left so now I can kick off my shoes & relax....maybe!
 
Name:  Maria    Email:   
Child:  Isabella
Comment:
164    Tuesday, 20 May 2003 - 07:40:59pm
I finally figured out how to post pics!!! Now everyone can see my pride and joy!! I know I might sound like a dork, but this is a major accomplishment for me!! LOL
 
Name:  Dolly    Email:   
Child:  Eric..almost 3yrs.
Comment:
163    Tuesday, 20 May 2003 - 04:23:09pm
MARIA:
Glad to hear Isabelle is doing so well. I agree with you...sometimes you are so overwhelmed with emotions about your child, you DON'T know whether to laugh or cry! Thankfully, I've had more laughs than cries...
THey are truly special children, and boy, can they wrap you around their little fingers!!. Sorry to hear that you have been going thru some rough times..been there myself..praying things will get less complicated and you can get back on track..talk to ya later, Dolly
 
Name:  Maria    Email:   
Child:  Isabella - 12 mos!
Comment:
162    Tuesday, 20 May 2003 - 02:11:48pm
Hello, all. It has been a while. A lot has happened since I last posted. My dh and I have split. We get along better now that we are apart. I have had to uproot my child three times in the last two months due to the instability of others, and the obvious bad choices I have made in living arrangements. However, Bella is strong as ever, and seems to be coping very well.
She had her first bithday this month! It is just amazing to me how much she has grown. Do you guys and gals ever just look at your children and become so struck with awe that you don't know if you should laugh or cry? It has been happening to me alot lately. She now has two teeth on bottom and is just chewing on everything. Not to mention all the drool!! She has finally accomplished sitting from laying on her stomach. It is so funny to watch. She does this whole routine to get there. She gets on all fours and rocks until she works her little legs out from under her. Then she lies down, rolls over and starts over again. All the while she is just smiling away.
I hope everyone is having a good day. Just wanted to drop a line and brag a little. If anyone has any advice or information on housing in Texas I would appreciate a shout back!
Love you all,
Maria
 
Name:  Connie    Email:   
Child:  Collin
Comment:
161    Tuesday, 20 May 2003 - 11:47:16am
Robin -- I emailed you the addy for the one we had talked about before (caretrak.com for those interested) and one for a new GPS system. Hope this helps....

Connie
 
Name:  julie    Email:   
Child:  Jordan
Comment:
160    Tuesday, 20 May 2003 - 10:47:33am
Thanks to all who wished Jordan a happy birthday!
 
Name:  Debi    Email:   
Child:  Gabe
Comment:
159    Tuesday, 20 May 2003 - 05:18:04am
grr Robin if you understood my post you are doing much better than me! time to get some sleep BUT what I meant to say is that froogle is a search engine (like google) only you can use it to search for products such as a tracking sysem for a child. okay good luck tell Chase to stay home and don't wander; you need your vacation money!!
 
Name:  Debi    Email:   
Child:  gabe/ eleven
Comment:
158    Tuesday, 20 May 2003 - 04:28:21am
ROBIN: you can try www.froogle.com.. which is the search engine for products like google. I found something from catalog city called a GPS locator watch for kids for around 400 bucks..... but I'm not sure that's what you want?? Try froogle , girl . it will give you references to all KINDS of stuff to look at before you buy. How was the wedding anyway... we want a FEW details!!
Tammy so so sorry to here about your feral child geeeezzzzz Mom go away to work for a little bit and come back to that . Sure hope Lewis bucks up soon and that all of you end up with a good experience from your field placement!!
 
Name:  Melissa    Email:   
Child:  Mazie
Comment:
157    Tuesday, 20 May 2003 - 04:12:40am

I am so excited! This evening I got an email from a member of DSAT.( Down Syndrome Assoc. of Tulsa ) They asked if I would let Mazie participate in a photo shoot next week for thier 2004 Calender. I couldn't believe it cause we have never been to any of their meetings. I have always wanted to go but for some reason or another haven't. So now I have to. lol I just thought I would share some good news with everyone. And I seem to be on a roll with the good news department, finally. :)
Melissa
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
156    Tuesday, 20 May 2003 - 02:08:31am
wow Tammy:( Your son's behaviors sound very similar to my son's. Hestarted them around 4 and still does some of them currently!Hope he is having a better day!
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
155    Tuesday, 20 May 2003 - 02:08:13am
wow Tammy:( Your son's behaviors sound very similar to my son's. Hestarted them around 4 and still does some of them currently!Hope is having a better day!
 
Name:  jackie    Email:   
Child:  Justin almost 3
Comment:
154    Tuesday, 20 May 2003 - 01:17:28am
Ok Robin I think I found it I e-mailed you the site hope you got it. Ugggggh that Walker why I oughta. Hugs and we miss you guys.
Ok Justins' IEP is scheduled for Monday and it is going to be here at home with just his teacher now and a PT. Also we will fill out the appropriate papers now just in case Justins' vision is causing a problem so we will be all set for a re evaluation and add to his IEP if need be. I asked his teacher today if she noticed his problem with the peg boards and puzzles and she said she did and that bless his heart he was persistent until he did fit it in there.
Well that's about it for now hope everyone has a great week and hope to chat Thursday.
 
Name:  Tammy    Email:   
Child:  Lewis the Menace
Comment:
153    Tuesday, 20 May 2003 - 01:14:40am
Hello all My Uno Friends....
It feels like forever since I last posted...only a week though...
Happy Belated Birthday to Jordan. Sounds like it was a fun party...except the teeth through the lip thing...that had to hurt.
Jackie (Em's Mum), your translations are correct...a Jumper is a Sweater or Pullover...And Im glad that precious boy cousin didnt "pop" out at McDonalds...That could have made for a very interesting Birthday Party...

Well, I have completed my first week of Field Palcement and really enjoyed it..except that I was working with a teacher who is very set in her ways and didnt want to hear any of my ideas...I am only the student on work experience...Grrrr...so I have arranged to work in another class for the remaining 2 weeks...with a teacher that WANTS some help and asked if I would work with her. Hopefully that will be a better environment.
Lewis has been really HORRIBLE to me the last 2 days. My Mum and Dad were staying with us last week to look after Lewis while I was working, so he had Gran and Grandad at his fingertips...not that they spoiled him (much), but after they left on Saturday....he has been totally FERAL. All attention seeking behaviour, like climbing onto the wall unit and throwing all my photo frames accross the room, pushing over chairs and any other furniture he has the strength to push over, and throwing the BIGGEST tantrums when I remove him from these situations. When I try to play with him or distract him, he screamed at me...and I mean SCREAMED...Oooooh he is such a BAD boy sometimes.
He is better today though, Daddy came home after a week away. You should have seen Lewis at the airport, I swear he was about to burst with excitement when he saw Dad. In the car on the way home he kept climbing out of his carseat to sit with Dad... needless to say it took us 15 mins to do a 2 minute drive... had to keep stopping to buckle him back in!!

Steff, your shooping trip sounds wonderful!!...
It is funny... our language is the same, although some things are different..like the Jumper/sweater thing.. but somethings seem to be the same the world over...we always laugh at the "Plumbers Crack" or "Plumbers Pants" too. Was even funnier when my young cousin became an apprentice plumber last year... poor kid gets such a ribbing...his mother even cut down an old pair of jeans and presented them to him for his first day of work...He wasnt amused...

Well.. gotta go... loads of homework to finish now...
Until next time...

Tammy.
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
152    Tuesday, 20 May 2003 - 00:59:46am
Okay everyone.... so I stink at finding things online, LOL, but once again I am looking for that care track system we heard about a few years ago to keep Chase safe. I think it was Suzi who found it for me last time. I have spent the last half hour loking and not finding it any where. It is a alarm for the yard and/or the home that lets you know if Chase wanders out of the yard or house. Anyone who can find me the addy for it, I would GREATLY appreciate it!!! We may even havr to use vacation money (yea I know, what m,oney is that?) but we have got o have something to keep this child safe since Walker no longer works for us. He is almost 11 and still requires 24 hour one on one, sighhhhh, I am beginning to lose hope he can ever be left alone and be safe. It feels like having a one year old for the last 11 years almost. :-( Oh well, when given lemons, make lemonade right? So bring on the alarm! hugs, Robin
 
Name:  jackie    Email:   
Child:  emily age 23
Comment:
151    Tuesday, 20 May 2003 - 00:17:44am
JULIE....I had Emilys 5th birthday at McDonalds....18 years ago on May 3rd!!!!! And funny thing is I can remember it like it was yesterday....almost every detail. She got the best present...a brand new boy cousin who popped out right before the party was over...LOL (not at McDonalds). Glad it was such a nice day for you guys.....and ..."jumper" ...would that be a British word for "sweater"???????
 
Name:  Pat    Email:   
Child:  John-John 7/28/99
Comment:
150    Monday, 19 May 2003 - 04:19:21pm
Happy birthday Jordan! What a big boy. John-John would love to play cars with you and I think he has some to share. Sorry you're not feeling up to snuff today:^(
Hope all is well tomorrow.
 
Name:  julie    Email:   
Child:  Jordan D.O.B. May 19,1998
Comment:
149    Monday, 19 May 2003 - 07:58:04am
Hi again everyone - Well, Jordan turned 5 today and what a day it has been!!
On Friday he had a party at McDonalds with some of his kindy friends. Everything was alright for about 5 minutes until Jordan tripped over a step and put his teeth through his lip. There was blood and tears and even snot, but within 5 minutes,though, he was back playing on the playground. He didn't want to join in any of the pre-organised games, he was just happy to be there and play on the playground.
Today though, my parents came over and gave him a new jumper (which he put on with great delight). Then my brother came over with his wife and 2 little boys (Jack has just turned 4yo and Tom is 17 months).
They gave him some new cars - OMG! Does my boy like cars or what???? He ignored everyone while he played with his cars and trucks and petrol tankers etc...
He wasn't very well for the last cople of days though, and this morning woke up with a temp of 38.1 C.
Panadol has done the trick in keeping his temp down, but you know how kids are, he is just not 100%.
Anyway, all in all the day hasn't been too bad - so wish me luck in the nest 12 months. We hope to get him toilet trained, and a lot more independantl.
(((HUGS TO ALL)))
Bye from OZ for now!
 
Name:  jeff    Email:   
Child:  olivia(5)
Comment:
148    Monday, 19 May 2003 - 03:43:44am
i feel bad about not being able to take the fam to straw fest but work is work im looking forward to meeting everyone in chicago. i already got to meet becky and fam. thanks again for the hosp. you guys where just wonderful p.s i will bring u back choc. covered strawbr.........
 
Name:  vicki    Email:   
Child:  philip (2 1/2)
Comment:
147    Monday, 19 May 2003 - 00:51:01am
hi everyone.......i have posted on here before, but it has been an awfully longggggg time......i finally got a computer that is of this decade so hopefully i will be a regular here....i really do enjoy this sight.....so anyway, just wanted to send out a big "hello" to all....have a great week.....vicki
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
146    Sunday, 18 May 2003 - 09:23:04pm
Morning everyone...even if it is afternoon, I havent been up long and please excuse the typos, I am way not used to these gell nails seeing as i am a wooodshop teacher I rarely have nails:-)
Wedding info... after falling apart from stress on the phone with Susan, I am thrilled to say the wedding went off beautifully and the reception was wonderful, hmm, maybe a little too wonderful :-D Everyone looked beautiful and i now have a gorgeous daughter in law that I adore :-D Chase didnt get to stay as long as I wanted him too, but the noise and crowd were just too much for him. After he ate we had the prearranged sitter take him home.
I was going to post a big ole juicy post but these nails just dont cut it so I am outta here, but first.... Steff, I also need nw clothes, am terrible to fit and show my stuff too so I cant wear dresses :-D can I come along for some badly needed new clothes???? Wow, just too cool for Livvie!!!! Have fun kiddo and share the details ok???? hugs,
Robin
 
Name:  jackie    Email:   
Child:  emily age 23
Comment:
145    Sunday, 18 May 2003 - 05:50:29pm
STEFF...I addressed the education questions in a post on the bulletin board...its about three or four down and was started by "gabe" and begins with "Debbie....."and its just MY opinion based on what went on with Emily and having the luxury now of looking back...LOL. Speaking of Miss Em...cant remember if I posted or not...but Katie has invited her to spend most of the summer beginning next week in Austin where she will babysit Hayden and Jordan one afternoon a week.....If anyone knows families in Austin Tex...could you please email me...I would love to hook Emily up with some peers there. I am going to begin by contacting the ARC of Austin.
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
144    Sunday, 18 May 2003 - 04:32:58pm
HI!!!!

WELL we were gonna all go away this weekend to the strawberry festival when EGADS Jeffs' partner called him and ALAS he had to head outta town for 3 weeks.. :(..BUMMER!!!!

So we are going to my mas to swim today.... Tomorrow an organization is taking Olivia out tomorrow to get a whole new wardrobe!!! pretty cool huh?? I am going to!!!It was arranged by her teacher since Liv is so hard to find clothes for. She can't wear dresses to school unless she has legging underneath cause she likes to show off her stuff. AND pants are hard cause if they fit her right she usually has the plumber butt...So we will see what happens tomorrow.. COOL HUH???

SUSAN.. Glad Ems IEP went well...I remember Jackie saying that she had EM in classes for the EXPOSURE. She may not have gotten it all BUT she was EXPOSED to all the info. One thing that bothered me about the movie Graduating Peter was the fact that even though he was in school they sure took him out EARLY to do the life skills thing.I dunno..BUT perhaps you could use the EXPOSURE word to keep Em in the class and not running too many errands.. :)

Debi what part of the IEp didn't you like????I have Livs IEP along with finals , a GIANT paper, and NO dh. UGGG this should be interesting.

A and radonna hope you all have fUN!!!

(((HUGS))) to you all and hopefully I can chat later... ;) BYE

Where is CC??????
 
Name:  Kristi    Email:   
Child:  Cody (8yrs.)
Comment:
143    Sunday, 18 May 2003 - 01:39:23pm
Morning everyone!
Just wanted to update on Kylie. Her MRI and EEG came out alright but they do know she had a seizure so now they are checking to see if they can find out why. She is scheduled for a sleep deprived EEG, EKG, and a chest x-ray Wednesday. Praying it was a one time thing, too scary to go through.
Cody is doing all right, wanting his pool up badly. Had his lifejacket on yesterday walking down the road saying " Go swim with Chase". I don't think it is ever going to get nice to put the pool up. Can't wait myself because I know that will keep him in the yard.
Happy Birthday to everyone who is having one this month, sorry I have missed them.
Hugs,
Kristi
 
Name:  Debi    Email:   
Child:  Gabe/eleven
Comment:
142    Saturday, 17 May 2003 - 11:38:54pm
Susan!! SO glad to see your post.. glad you are able to keep up a bit you are in my thoughts all the time.
Sooooo glad Emily's IEP went okay and that you are going to followup on the modifications. sounds like they just want to stick her in their program rather than have a program for her... and having her do the errands on certains days may be just right. Gabe's IEP was Wednesday and I was so out of it I just thought well... the parts I'm NOT happy with I'll give them fair warning today and work more on it for the fall. Overall I thought it was fine.. but there are always a FEW things I want to remind them of !!
 
Name:  Susan    Email:   
Child:  Emily, age 11
Comment:
141    Saturday, 17 May 2003 - 08:48:41pm
Hi there Uno Mas! I've missed so much lately! Mary L and Kathleen both turned 22 (rofl), Kaden turned 9 years old, Tracy had a birthday, and Ernest turned 18....just to name a few big days. We've also gained some new members. WELCOME to Uno Mas Jo-anne and Erin, Lisa and Kendra and Nicole and Cam! You'll love it here. There are so so many wonderful parents/grandparents and others who are like a second family to me and they have such a wealth of knowledge...WELCOME!
I've gone back 3 pages on this board, and wanted to respond quickly to some of the posts but I'll never catch up on the BB. I'll try to do better about keeping in touch!
~
ADRIENNE and RADONNA: I'm so bummed that I won't be able to see you and your families! I was hoping to be able to meet you all, but I can't take any more time off work for a while.......not until the Chicago get together in fact! I hope you have a fantastic time and take lots of pictures of Russell and Kaden!
~
JO-ANNE: My daughter, Emily is almost 12 years old now. But, I remember so well that I was worried about her because it seemed to take her quite a while to learn to walk. She was cruising the furniture at 18 months, but didn't completely independently walk everywhere till she was nearly 3 years old. She had no trouble getting to where she was going though.......she crawled VERY fast! Erin will get the hang of it soon too.
~
ANNIE S: I'm sorry to hear you've been laid off. Does this mean you have a lot of free time and can meet us in Chicago? I sure would love to see you!!!!! Hang in there. I miss chatting with you!
~
NICOLE: I agree with Steff. I'd encourage Cam's teacher to LOSE the demerits! My kids (ALL of them, but especially Emily) do so much better with a POSITIVE reward system, rather than punishments. If Emily gets punished, you can count on her digging in her heels and acting even worse! Missing the end of the year school trip should not be allowed.
~
STEFF: Thinking of you and Jeff........I'm sorry he's having to go through more medical stuff. Looking forward to seeing you!
~
LINDA: How did Adam's IEP meeting go? Thanks so much for your email.
~
KRISTI: What a busy week you had! I'm glad you finally have NICE neighbors! Maybe they could lock their doors? LOL funny, coming from me. We never ever lock our house either! How's Kylie?
~
Emily's IEP meeting was the other day. I was a complete basket case beforehand, and I really appreciate those of you who listened to me rant and rave. Thanks! Overall, I'm pleased with her new IEP, but I plan to contact the central office of the school system to discuss modification of her curriculum. One of her teachers wanted to take her out of her classroom during Science and Social Studies next year,(to do "life skills" stuff and errands around the school" because she said the info in those classes would be "over her head". GRRRRRRRR. I agreed to let her occasionally do those errands, etc only as a reward for good behaviors during the week (only on Friday) but insisted that she would remain in her classroom for Science and Social Studies. She'll still have PT for 20 minutes twice a week (they have her jumping on a trampoline and riding a stationary bike, etc) and swim lessons for an hour a week. She has ST twice a week and OT once a week. Next year is a big year because she'll start changing classrooms/teachers and using a locker. We're going to practice using a lock this summer. She's SO excited about summer vacation......especially going to Chicago.
~
ROBIN.....can't wait to hear about the wedding. Hope all went well!
Have a great weekend everyone,
Susan
 
Name:  Kath    Email:   
Child:  Julia 4yrs
Comment:
140    Friday, 16 May 2003 - 05:48:04pm
Julie,
It is a small world! My Julia was born Nov 5, 1998
in Boston Masachusetts. It will be fun to share your
update with my husband and kids! It be
great fun for the two Julia's to meet up some day!
Take care, and thanks for sharing!!
Kath
 
Name:  julie    Email:   
Child:  Jordan D.O.B. May 19,1998
Comment:
139    Friday, 16 May 2003 - 04:57:23am
KATH...when I read your post on Tuesday I nearly fell off my chair!! I have a friend here in Adelaide (who I met through the Down Syndrome Society when our kids were babies). Guess what? Her name is Kathy and her 4yo daughter is called (you guessed it) Julia!!!
How ironic is that?? I wasn't sure at first that you were a different Kath to her, so I phoned her and she nearly screamed my ear off in excitement, lol. The world is such a small place isn't it?
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
138    Friday, 16 May 2003 - 03:23:44am
HI AGAIN!!! Doesn't it figure... have time to chat and NO ONE WAS THERE!!!!! Now that's an oddity I am so used to having trouble getting in cause its too full....Had a nice talk with myself :O

Debi..AWWW your the BEST!!!!!How is Gabe and are you going to Illinois in June???We're gonna be leaving the day after the kids get out of school...AND Jeff will already be out there so I hafta huff it o the plane with the 2...HMMM. Wonder how that will go????

Jeff hasta go in for a MRI cause they think he has tumors on his liver...His doc said it looked like a lotta small ones and he could easily take em off. He seemed real positive bout the whole thing....so we'll take it one thing at a time....But YIKES!!!!!

Oh BTW...I'll ask the school ? tomorrow my eyes are being held open by toothpicks..

BECKY nice chatting with ya... STAY SAFE and close by your shelter!!!!


 
Name:  Debi    Email:   
Child:  gabe
Comment:
137    Thursday, 15 May 2003 - 06:48:48pm
STEFF: WHAT I Needed, major big time today.. an honest child!! ROTFLMHOPMP!! " I love you you're mean.". think the teacher would get the message?? I hope so.. altho I fear some would not. Sure wish everyone in Liv's situation could express themselves so well.. I think Gabe would have written a few teacher appreciation cards the same way .
Sending all positive energy to Jeff and to everyone one else on the board who needs it.. Blessings and peace today to anyone who is sick or in pain
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
136    Thursday, 15 May 2003 - 06:39:05pm
HI!!!!

LONG time no post... at least by my standards...AHHH geez Kristi poor Kylie... :( EVERYTHING OK NOW????

SUSAN ((((HUGGERS))) to you... I miss you girl...

A... BTW CONGRATS on all the GREAT things coming your way....You deserve a break and i am glad you are getting it. Hope Russells appt goes smooth like butter...

Now I am having a brain freeze but demerits?????for sticking out his tongue? Scuse me???? I KNOW for a FACT that negative reinforcement does NOT NOT work for Olivia.She is 5 also.I think there could be a MUCH better way to deal with negative behaviors... HMMM... Anyone know any good books out there that deal with this?? With some riveting ideas she could pass on to the teacher????When Olivias teachers aide uses the words DON'T NO CAN'T which she does a LOT but a LOT less since I have been hanging around,Liv just rebels big time... Funny thing is I asked her the other week to write a note to each teacher for teach apprec day... To her teach I dictated I LOVE YOU and Liv traced it then I asked her what she'd like to say to the aide she said... YOUR MEAN... Needless to say we had to rethink that answer...LOL...

WELL I hope to chat tonight thinking bout not going to school.Hope to see you all there...Jeffs at his liver docs as I type for the BIG appt... so keep some good thought in your head for him.

Jackie I am glad Em had a good time... LOL to EM's words to her sis'....

I have a really imp ? to ask all the vets who fully included their kids in kindy but will hafta ask later.The bus has ARRIVED!!!! BYE
 
Name:  Adrienne    Email:   
Child:  Regan, Russell (ds) and Reece
Comment:
135    Thursday, 15 May 2003 - 06:19:20pm
Well, thought I'd pop in one last time before I leave tomorrow to get my mommy!! YEAH! I am finishing up on packing and have to work tonight. I also have to take Russell to get his hearing tested at 9:00am tomorrow before I leave. Can you say BUSY! LOL

Phoos.. I will call you when I start getting into OK.

Susan, I IM'd you back more info on Radonna and I meeting but don't know if you got them. We are meeting Monday the 19th. I IM'd my phone # to you too. Call Radonna if you have a chance if you didn't get my IM's.

Take care everyone and have a wonderful weekend!!!

A.
 
Name:  allisa    Email:   
Child:  erin, 3
Comment:
134    Thursday, 15 May 2003 - 05:51:35pm
Traci, My Erin & your Ashlyn are about the same age & sound so similar... I am terrified of those little white packets that come in the shoes... I think they are toxic !

Nicole, my duaghter is younger so I haven't had to deal too much with the schools and demerits... maybe the teacher is just trying to tell you every little thing. Maybe an alternate would be to get a demerit for every 4 "mis-behaviors" instead of 1 for every teeny thing ! Sticking out his tounge !! Sheeshhhhh

She doesn't sound too patient to me.... that's to bad for your little guy...keep your fingers crossed for a better match next year.

Lisa, Erin sometimes growls too.... I have heard plenty of moms here say the same about their child, too. Not sure why... just an easier form of communication.... I bet when she does it you pay attention, no ? See... she is communicating !!

Susan, I hope you are doing okay... still thinking about you !

Allisa
 
Name:  jackie    Email:   
Child:  Justin almost 3
Comment:
133    Thursday, 15 May 2003 - 03:13:19pm
Carolyn that's where Justins' appointment is also on July 15th. We are taking him to Grand Review Farm in Ortonville, we checked into the other places but most have a major waiting list and are kinda expensive, so we found this place through his Kidscare ins. She did say if I know of anyone else with little ones to let them know so if you are interested I have some cards she gave me.
ROFL raising your hand see that's why Chuck sits on mine lol he says I have enough going on lol. Anyways good luck and have fun lol.
 
Name:  Caroyn    Email:   
Child:  John, 4
Comment:
132    Thursday, 15 May 2003 - 01:17:23pm
Jackie- Where are you taking Justin riding at? An hour and a half away is major!!!! There is a place out here I have heard about- Theraputic riding place, guess maybe I should investigate it. John is obsessed with horses from a distance, we have many books about horses which he loves- but I was afraid he would be afraid to actually ride. Maybe I should just take him and let him look for a few times and eventually try the riding. Something for me to think about. Where are you taking Justin for his eye appt.? I just made appt. with Kellogg for John and Elizabeth. I used to go to a guy in Dearborn who we loved, but it is just too far now. We are going to start over with someone new.
Have a good day- miserable weather- I made the mistake of saying I would help out with Vacation bible school here in town and am realizing it is more than I thought it would be. Sucker written all over my face. I have a meeting this morning and am hoping other people have some great ideas because I have none. I thought I was going to write out name tags or something- maybe even help with registration. But it seems I volunteered to work in the food /snack room and when I did that I was actually taking on the whole task. Never raise your hand at a meeting .ever.
 
Name:  jackie    Email:   
Child:  Justin almost 3
Comment:
131    Thursday, 15 May 2003 - 02:25:03am
OMG Kristi we'll be saying a little prayer that everything turns out fine. Now as for Mr. Cody, already house hunting,it's great that your neighbor was so understanding lol, kinda reminded me of the 3 bears lol.
Carolyn, first off thank you soooooo much for letting me know that Elizabeth is coming Alyssa has been driving me nuts lol. Check my e-mail mom lol.
I have to admit Louie was great with him,just wished we could have got this done sooner so I could have been spared the extra grey hairs lol. I think we will end up having him re evaluated in the fall depending the outcome of his opthamology appointment.
Ok I took him for an eval. for riding therapy and he did great once he seen the camera lol, he threw a fit at first but then he just loved it and only had a fit when we stopped lol. So I guess we will be taking a nice little ride at least twice a week if not more, she said we could bring him as ofter as we want just as long as her other kids weren't riding, she usually only takes terminal kids,but will take Justin on the side, she even went and bought him a saddle he's her smallest one if you can imagine that lol.
Robin the big day is quickly approaching and I hope you finally found a dress. I guess we will have to shoot for next month before Mr. Chase can give us another fashion show lol.
Well that's about it for now, lol I feel like I was on the horse I can't even move lol,hopefully we can get a shorter one next time my arms are killing me from reaching up there and holding on to him in the beginning lol.
 
Name:  Lisa    Email:   
Child:  Kendra
Comment:
130    Thursday, 15 May 2003 - 02:08:55am
My baby girl will be 4 in June and I am looking for anyone who has shared our problem, Instead of talking she says words in an odd voice, almost a growl...We cant figure out why. S.T is trying to come up with new ways to get her to use her 'pretty voice' but she is so stubborn! When she is pretend reading or off to herself she uses a precious voice...HELP
 
Name:  Kristi    Email:   
Child:  Cody (8yrs.)
Comment:
129    Thursday, 15 May 2003 - 00:37:37am
Hello everyone!! Been off for a while, missed ya all!
Kylie fell the other day and quit breathing for about 3 minutes, seizure I guess, scared us to death. She had an MRI and EEG yesterday, boy was that a long 3 hours. Find out tomorrow how that went. Cody wandered off the other day and went into the house behind us and locked both doors. Noone was home and I was standing at the door threatening that he better open the door. Which didn't scare him in the least. Finally I said that if he didn't open the door he wouldn't be Able to go Swimming with Chase. Well with that he unlocked the door i found him sitting on the couch watching tv and eating a bowl of food which I found out later on was hamburger helper. I later talked to the girl who said she noticed the food was gone and figured that Cody had visited. She even offered me a set of keys to open the door in case he did it again. Wow, an understanding neighbor, finally!!! But boy, how embarrasing!!
Well better go and make sure he is in the house, he says the neighbors house is his house now. Oh, also, my bus driver told me next year that they will be handing out bus tickets and they are afraid that Cody will get too many. I know this sounds awful but I think that if they won't let him ride the bus he will just stay home. Don't feel like he is learning much there anyways. He isn't even writing his name or counting, which he did when he was in preschool. I know that sounds awful but the school systems down here isn't that great.
Better Go!
Hugs,
Kristi
 
Name:  Rickismom  
Child:  Ricki, a fireball aged 8
Comment:
128    Wednesday, 14 May 2003 - 09:24:41pm
Nicole-
Who is supporting your child's teacher? She needs help to work on one behavior at a time with behavior modification therapy.
While medication should not be overused, Ritalin has helped Ricki enough that whenever I forget to give her the Ritalin, her aide says to me at day's end-"What happened today?" Without fail. (And not on other days. Our hope is that the med helps her to be calm enough to LEARN proper behavior, and sometime soon get her off the medication if possible.
 
Name:  Caroyn    Email:   
Child:  John ,4
Comment:
127    Wednesday, 14 May 2003 - 03:57:29pm
Jackie- Just read about Justins psych test- I am so glad it went well!! What did you think about Louie? I have to say I kind of liked him- very quiet and laid back- John liked him right away - and he gave lots of time for responses. John is doing pretty well, talking more and more- Getting some 3 word sentences now- nobody can understand him except us, but that should come along with time. Actually everyone can undstand MAAAAAAAAAAAMMMMMMMMMMAAAAAAAA when he screams it at 100 decibels. I have taken to ignoring him when he screams at me and it does work.He quiets down. Teachers say he is doing fine- still very quiet and shy at school. He is signed up for summer school- 3 days a week from 8:30 to 12:30. I am so glad- he would be lost all summer with out school and Sept. would be a nightmare if he had all that time off.
Anyhow, Eliz is looking forward to Alyssa's party. Thanks for inviting her. She still misses her friends from Schwietzer.
Oh yes- I am thinking of coming into town this Friday- Any idea what Penny does on Friday_ John and I would love to see her?
Holly- Is Jake going to summer school? I wonder if they will be in the same class? It would be nice to finally meet. I see Jake on the bus all the time.
 
Name:  julie    Email:   
Child:  Jordan D.O.B. May 19,1998
Comment:
126    Wednesday, 14 May 2003 - 12:33:41pm
Nicole-btw-Does your child sign? Are the teachers up with the sign language also?
Since Jordan has started kindy, 2 of the kindy teachers(who are also his carers), have attended a signing course. Maybe this can be suggested by you or your education departmental representative. Jordan has benefited from this tremendously - and so have the other children. Kids are like sponges; they love to soak up information, and anything that will help your child is worth looking into. Once again Good Luck!
Luv J
 
Name:  julie    Email:   
Child:  Jordan D.O.B. May 19,1998
Comment:
125    Wednesday, 14 May 2003 - 12:16:09pm
Hi Everyone - Nicole; My son Jordan will be 5yo this coming Monday and he attends the local kindy. He has a 1 on 1 carer for all of his sessions there. If the regular one is away for any reason, another is called in. Jordan has the common problem of poking out the tongue, but this should'nt warrant demerit points.(I'm outraged that they don't understand-it is a thing that these kids do until they learn a little more muscle control of their mouths). As for everything else, I think they should tread very carefully. This is almost abuse! Whomever is caring for your child should be more informed of common behavioural problems and learn to deal with each individual situation as it arises. I know we don't want them to grow up getting special treatment all their lives, but this is the crucial development that they need. And they need to be understood. I would have a word to your child's teachers and inform them a little more about the attributes of a child with ds. Maybe even contact your local Down Syndrome Society and have them send some important information to the kindy. Good Luck-let me know how you get on. ((Hugs))
JK
 
Name:  Traci    Email:   
Child:  Ashlyn 3 1/2
Comment:
124    Wednesday, 14 May 2003 - 03:20:18am
I just wanted to add a couple of more things about the eating strange things! You reminded me...yes Ashlyn likes the uncooked rice too! We visited this terrible, horrible, no good, very bad pre-school once upon a time at the suggestion of the pre-school coordinator here in our county..anyway, they had one of those things..looked like a big sandbox filled with rice on the floor in the classroom. I said OMG..my child would be dead when I come to pick her up if I have to put her in this school. The teacher just acted like Ashlyn putting EVERYTHING, and choking on EVERYTHING was no big deal. Well, needless to say, she does not go to that school! Oh and guess what the child managed to scarf up off the floor tonight and put in her mouth? I heard her just a' crunching...she had gotten on of those little, white packs that come in your shoes and purses, that they tell you to throw away....
she put up a fight for that too!
I swear...I am 31 years old and the gray hairs just keep multiplying. Robin, you said outgrow this by the time she's 7? They don't make playpens that big do they?
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
123    Tuesday, 13 May 2003 - 10:59:54pm
Nicole...a couple of things. Yes it seems there are other kids with DS I know with an ADHD dx. My son was tested for it but he doesn't have it. That was awhile ago.
The teacher should be working with you more to have a behavioral modification plan. Does he have a 1 to 1 aide? If not that might help. Also, it might be good to meet with the teacher to find out how to solve these issues. I don't know where you live, but check your booklet on special education rights.
Your sons behaviors might be overwhelming her...but she may be partially to blame. She might have this idea that giving so many demerits will help her cause on the off chance she's trying to get him out of her room. (Not saying this is the case, but keep an eye on that..I went through similar when my son was in pre-school.)
By suggesting the ADD eval, she might on the off chance hoping he will be put on a med and give her a break. Again I don't know this but I thought I would share with you my observations.
It's very important for you and her to sit down and work out some options. While the ADD eval might not be a bad idea, I know from my own experience that the school can press upon you to get an eval and put on medication which they believe will make their job easier.
I hope you find some answers and know my observations are my own and not neccessarily what is occuring ok? take care
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
122    Tuesday, 13 May 2003 - 10:47:27pm
Hello. I wanted to say I signed up and have a profile and an intro on the other message board if you want to read it.
Kath...I wanted to let you know they WILL grow out of it. My son wandered a few times. One thing we did was for a little was had bells on his shoelaces. They were cute actually. I know it doesn't help once they are out of the house but it can alert you if you happen to be in the next room. Having bells on the door might help also. I think your idea of having her name and phone number somehwere on her person is a good idea. There's not a lot of options except viligance and I don't need to tell you that:) She will grow out of it is all I can reassure you. Maybe some parents with younger kids will have more ideas.
 
Name:  Kath    Email:   
Child:  Julia 4yrs
Comment:
121    Tuesday, 13 May 2003 - 10:34:40pm
Hello,
I love this site and have been a read only type
for quite some time. I really really need suggestions
from parents who have worked thru a solution to a
wondering child. My Julia walked right out of the
house, down the street and up the next on Sunday morning (what a start to Mother's Day). A neighbor
alerted us and my husband bolted down the street to
collect her! She is one lucky little girl ... she
walked right down the middle of the street, prancing
along in her new dress and bright yellow hat with
party shoes to match! I have talked to her teachers
at her pre-school about safety re-enforcements and have
and will continue to do so at home, as well as install
extra locks but am I missing anything here? Is there
anything else I can do ? I thought about an identity
bracelt (just in case) with her full name and telephone
number as well as an alarm sort of signal to use if she
wanders out of site, but the clincher there is you must
place the battery pack on her and she may take if off
or disappear when we least expect it. Have any of you
been down this road before? I love to hear your input
and ideas you may have incorporated to keep your little
sweethearts out of harms way! Please advise if you can. Thanks! Kath
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
120    Tuesday, 13 May 2003 - 07:43:28pm
Hi Suzi. Maybe we will meet up at the conference. I havent posted here for a long time but it's nice to meet new people as well. I think I am planning to stay all 3 days. I am working on the details too:)
 
Name:  Nicole    Email:   
Child:  Cam
Comment:
119    Tuesday, 13 May 2003 - 07:09:21pm
Can anyone out there give me some advice? My son is in kindergarden and his teacher sends demerit sheets every week. Last week 14 demerits! These are for things such as sticking out his toung, taking students chairs,writing on things with markers, not following directions, naptime disruptions, and teasing. He does have DS. He is in a regular ed class and is labled as mild. I recently recieved a note from teacher saying he could not go on the next field trip due to his behavior. It was also suggested that I have him tested for ADD/ADHD. Does anyone out there have a child with DS and was considered by a doctor to also have ADD/ADHD? I am a little confused, and have tried every trick in the book to ease behavior. Could someone advise about this issue?
 
Name:  Adrienne    Email:   
Child:  Regan, Russell (ds) and Reece
Comment:
118    Tuesday, 13 May 2003 - 05:50:20pm
Hello all.. just a brief stop in! I am getting ready to fly to Phoenix THIS Friday to meet my mom and drive back with her... it's FINALLY here!! She will live with us for a couple months and then move into HER house SIX DOORS DOWN FROM US!!! WOOOOHOOOOOOO!

I am (as well as the WHOLE family) recovering or shall I say, DID recovery finally, from Fifth's Disease.. I will be GLAD to get that ALL done with here.. it LINGERS SO LONG .... I am JUST now starting to feel ok after about 2 weeks of this.. on and off!

Ok.. HUGS to SUSAN and EVERYONE!!!

I get to meet Becky, Justin's mommy and Duckie Dawn and maybe Clint and Evan and ANYONE else who will join us in OK CITY next SUNDAY!!! AND Radonna in Memphis..

I can't wait!!! AND I can't wait until JUNE!!!!!

See you all later.

A.

 
Name:  Becky    Email:   
Child:  Justin 2 1/2
Comment:
117    Tuesday, 13 May 2003 - 05:18:58pm
I saw on the calendar Mr J.T. is having his 1st birthday, Happy Birthday and hope you get alot of fun toys
Becky
 
Name:  Pat    Email:   
Child:  John-John 3 1/2
Comment:
116    Tuesday, 13 May 2003 - 04:25:21pm
Jo-Anne
I liked the walker for all three. It let JJ stand, walk forward & backward, had plenty of support and he could rest when he needed.
Also good for holding cheerios:^)
 
Name:  Suzi    Email:   
Child:  Merideth 2
Comment:
115    Tuesday, 13 May 2003 - 04:19:19pm
Pat & Marie....I used to live in Lansdale but live back outside Pittsburgh now. I'm almost definately coming in for the convention-just have to work out the details.
Suzi
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
114    Tuesday, 13 May 2003 - 04:01:15pm
Hi Pat. I live in NJ...but in an area which is right outside of Philly over the Walt Whitman bridge..it takes us about 40 mintues into Philly. :)It's always nice to meet people close by you!
 
Name:  jo-anne    Email:   
Child:  erinj j
Comment:
113    Tuesday, 13 May 2003 - 02:38:51pm
good morning everyone, saying hie from Barbados, I,m getting alot of conflicting opinions on walkers, my 2 year old is cruising, and i'm wondering if a walker would help with her walking, she is lifting her legs but not always bending her knees....HELP!!!!!! bye for now ....Jojo and erin j
 
Name:  allisa    Email:   
Child:  erin
Comment:
112    Tuesday, 13 May 2003 - 12:56:50pm


Thanks everyone for all your input on the dirt eating !

I agree that it is not necessarily a DS issue, all kids do it, but how can I get her to STOP... maybe it is more of a disciplining question ! LOL

She eats everything... uncooked rice in the fill table at school, crayons, chalk.

sighhhhh

I will try to be patient and let her outgrow it.

Hope everyone is having a nice week.

Allisa
 
Name:  Pat    Email:   
Comment:
111    Tuesday, 13 May 2003 - 11:29:26am
Marie
Where are you? I'm just outside Phila. in Hatfield, Montgomery Co. Right next to upper Bucks Co.
 
Name:  Pat    Email:   
Child:  John-John 3 1/2
Comment:
110    Tuesday, 13 May 2003 - 10:59:19am
My three never ate dirt... but when they dropped their food and got it back in their mouth before I said UCK I would say well a person eats X amt of pounds of dirt in their lifetime, mine are just getting theirs in early. My daughter-in law says they are just getting their trace minerals. I think I like that better:^)
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
109    Tuesday, 13 May 2003 - 04:40:42am
well it's been awhile since Ive been here. I stopped in to see if any of you were going to the DS conference. I know I don't talk here much but if anyone I know here IS going I would love to meet you. Since it's going to be in Philly I am NOT MISSING this one because I am 40 mintues away from Philly lol.
(Plus I don't have to fly hahah)
But I will also comment on the dirt eating. My son is 11 and while he won't eat dirt he will get on his trampoline and sample leaves and twigs! He doesn't really WANT THEM...he stucks them in there and says mommy look...hmmmmm;)or he makes his tickle me elmo eat them. I am truly hoping this will end sometime soon..but for him it seems to be an attention getter more than a desire. If I say ewwww gross he laughs his butt off and spits them out:)
Anyway...let me know about the conference....I am going so if anyone wants to meet me let me know. I promise I don't bite:)
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
108    Tuesday, 13 May 2003 - 02:14:07am
As mom of the almost old guy Chase...(LOL) I can help you to rest assured the dirt, bug, snad eating will stop. Chase did all that nasty stuff but stopped by the time he was 7 or so :-D However..... as mom to four sons, I can swear they all ate dirt!!! huggers to you all, Robin
PS...btw..no more Walker here anymore, we had a bit of a difference today and I told him to leave and not come back :-(
 
Name:  Melissa    Email:   
Child:  Mazie
Comment:
107    Tuesday, 13 May 2003 - 00:34:46am

Look at all of us Moms of the Dirt Eaters Club. lol Mazie loves sand and dirt. She got some this weekend at my sisters house while looking for worms. For the turtle, of course. Hope she only ate dirt though. :)
Melissa
 
Name:  Betty    Email:   
Child:  Christopher Kelly 2 y8m
Comment:
106    Monday, 12 May 2003 - 10:42:57pm
Hello everyone...
I was reading the posts and I don't think eating sand/dirt has anything to do with DS...I maybe wrong but my daughter is 31years old( mother to Christopher)when she was young she use to get mouths full of dirt and rocks..and I don't really know why she did it but she was really bad at it but she did grow out of it..and my brother use to eat my mud pies when we were kid and he is one year older than I am ,we must have been 4 and 5 years old when he did that..But my mother still talks about that, I guess he really liked them..Ha! Ha! So I just think some kids I like to eat things that they shouldn't....Christopher use to put a lot of things in his mounth but he is not really bad at it now...I couldn't leave the dogs bowl down when he was around but now he likes to feed the dog his food . He really is pretty good about listen to us when we tell him its nasty...Wish he would listen just as good about climbing he is a little monkey ....Loves to play outdoors now and really gets mad at us when he can't go out... It has been really windy and chilly here in West Virgina today and he wasn't very happy about not playing out today...But he had the croup a few weeks ago so didn't think it was a good idea to play out...Other than that he is really doing good...He keeps his grandma hopping.:).. Betty
 
Name:  jackie    Email:   
Child:  emily age 23
Comment:
105    Monday, 12 May 2003 - 09:08:24pm
OOPS....this computer if firing off without asking first....sorry...
as I said no big jackpots for any of us...but WHAT FUN.....the girls picked the hotel..mostly by price and we ended up at Treasure Island....LOL....I hadnt been in there in years and it was funny to pull up under a huge skull wearing a pirate hat. It sort of reminded me of when we stayed in Disneyland at a motel that had plastic snow on the roof! But the rooms were nice and it was a good location for sure. I think the highlight of the weekend for Emily was my Saturday mini flu that grounded me for half a day...and got me out of her hair. The girls said she spent the day saying things like...lets dont tell MOM about this one...LOL....('this one' being leaving her billfold beside a slot machine in Bellagio...getting to Monte Carlo and realizing it...and going all the way back and finding it in exactly the same spot untouched one hour later...........She also liked the evening she and Katie went out alone and some guy bought her a fancy drink at Kahunaville! We saw several young adults with DS there so all of you gear up for when your kids are 21 cuz I am really sure that Vegas is on the 21 chromosome! Emily is all ready to go back and has even put her left over money back in her Vegas Jar. Katie has invited her to spend most of the summer in Austin so when we go down for Eds State Texas Special Olympics Board Meeting the end of this month and the Summer Games she will just stay and meet us mid July at her grandparents 60th anniversary in Topeka, Kansas. She will be doing some babysitting for Katie the one afternoon a week she has to go into work this summer. I will really miss her. I hope all of you had as nice a Mothers Day as I did...
 
Name:  jackie    Email:   
Child:  Emily age 23
Comment:
104    Monday, 12 May 2003 - 08:57:35pm
Well you know you're really getting old when you get to spend Mothers Day in Vegas!!!!....yes...there I was...with three of my four kids...all my girl babes....and what fun we had. Emily didnt hit any BIG ONES
 
Name:  Sue    Email:   
Child:  Haley
Comment:
103    Monday, 12 May 2003 - 08:33:03pm
Julie,
I think what you are referring to is called PICA which is actually a disease of it's own.
The name "pica" comes from the Latin word for magpie, a bird known for its large and indiscriminate appetite.
Persons with pica most frequently crave and consume non-food items such as dirt, clay, paint chips, plaster, chalk, cornstarch, laundry starch, baking soda, coffee grounds, cigarette ashes, burnt match heads, cigarette butts, and rust. Glue, hair, buttons, paper, sand, toothpaste, soap, oyster shells, and broken crockery also have been cited in pica cases.
Although consumption of some items may be harmless, pica is considered to be a serious eating disorder, sometimes resulting in serious health problems such as lead poisoning and iron-deficiency anemia.
I would definetly speak w/your pediatrician to see if you need to address.
 
Name:  Traci    Email:   
Child:  Ashlyn 3 1/2
Comment:
102    Monday, 12 May 2003 - 08:25:41pm
Allisa,
Ashlyn is 3 also and she eats everything that she can fit in her mouth! I think that they just have to grow out of that!! Drive me nuts! She will fight you over some grass or mulch! She is using a walker to get around...and she tends to scoot herself over by the flower pots outside and grab anything she can get her hands on....cracks me up sometimes!! She looks for bugs/grass ANYTHING...and yes sand too....gritty huh?
Traci
 
Name:  jackie    Email:   
Child:  Justin 2 1/2 yrs
Comment:
101    Monday, 12 May 2003 - 06:59:57pm
Ok just wanted to pop in and give you an update on Justins' Psych eval. Well.......he did GREAT!!!!the Psychologist said he is definitely ready for school. He suggested the PPI class also,but we may have to have him re evaluated in the fall, while he was doing some of the testing I noticed that he has problem putting things in spots,like pegs into the holes he feels the hole first and then keeps his finger by it and then places the peg in it,and with puzzles he misjudges the pieces,we do have an Opthamology appointment in July his first one. He did great on all the other testing other then these types so we will have to wait and see. I am so very proud of our little guy and I must have given him a gazillion hugs and kisses so far today lol. So our next big hurdle is his IEP still waiting to see when that will get rescheduled. Thank you so much to everyone that has helped me through this,I know you were all right saying not to worry and that he will do great, I don't know what I would do without you all here. Well time to go and pick up Ms. Alyssa wouldn't want her to blow away with this nasty wind we still got.
 
Name:  Pat    Email:   
Child:  John-John 3 1/2
Comment:
100    Monday, 12 May 2003 - 04:32:41pm
Linda
How did Adam's IEP go? We're in PA and suppose to have one every 6 mths. I just started with IU last year:^(
I am NOT excited! The IEP is 2 mths late. (His 1st one was over 2 mths late also.)I can't wait to see how long they are going to take. His 1st one was mid Sept. and they have Aug. off. I am not impressed with his case manager,and since his goals are met and the teachers are moving forward with out it, I'm fine without it.
I home school my other two children and intend to do the same with John-John. By then I'll drop the IU if I don't see much improvement.
I hope all went well with adam's IEP.
Pat
 
Name:  jo-anne    Email:   
Child:  erin j
Comment:
099    Monday, 12 May 2003 - 02:01:45pm
belated happy mothers day to all, thankyou very much Linda for your warm welcome and dolly how are you doing? i come from a pretty small family, and i had erin my first child at 36, i didn't have the usual tests during pregnancy, so erin being ds was quite a shock, but as soon as i got the news, i did my research. Unfortunately, it was a long wait because the open heart surgery had to be done in new jersey so we were on a list, eventually at eight months we were on our way and we haven't looked back...people in my country, still see ds as something to be ashamed of, but i take my daughter every where and she is involved in everything, she will be 3 at christmas. she hits alot and this is my only worry, how can i deal with this and are there any other things i should look out for? looking forward to hearing from you all...JOjo and Erin
 
Name:  Mary L.    Email:   
Child:  Patrick + 3
Comment:
098    Monday, 12 May 2003 - 01:26:44pm
Good morning and happy belated Mother's Day! I hope everyone had a great day. I didn't get a chance to post yesterday because we were quite busy ~as I'm sure you all were! We had soccer games and then went to my mother's house for a combo Mother's Day, my birthday, my brother's birthday, my son's birthday and now my nephew's birthday(he was born May third!) I was supposed to have the dinner at my house but had a week of not feeling well so my wonderful mother ended up having it at her house.

I really had a wonderful Mother's Day. I just sat quietly for a few minutes watching my boys play together and realized how lucky and blessed I really am. I also started thinking about Patrick and how much joy he has brought to our lives. I remember being so scared after he was born and not realizing what a blessing he truly is. I think of all of the things in my life that would be different if I didn't have him and one of the things is that I would never had found Uno Mas and met all of the wonderful people here. I really think you are an amazing group - so supportive and understanding and funny-that I am so grateful to have found you. Any way~enough of my rambling. I guess Mother's Day just made me reflect on all of my blessings. I hope you had a wonderful day and have another wonderful one today. Mine will consist of doing all the laundry I put off last week!

Mary L.
 
Name:  Linda    Email:   
Child:  Adam 8
Comment:
097    Monday, 12 May 2003 - 01:20:33pm
Hi! - Was sooooo busy this weekend but I hope all the WONDERFUL mothers here at Unoland had a GREAT Mother's Day!

Can't stay long as I need to get ready - Adam's IEP is in about an hour & a half from now & I am starting to get a little nervous ---- the Specail Ed. Dir. of Services & I don't always see eye to eye & have a had a few probs in the past --- I don't want to go in w/ a neg attitude, but I know they always look for ways to cut services (unfortunately) esp when there are budget cuts. NY state is behind EVERY year - how can a school system effectively budget for the following year if they don't even know what money yhey have to work with?! - I fully expect a debate over his Music Therapy services - but I hate to go in w/ a neg. attitude....*sigh* - I hope i am up for this! I'll let ya know what happens.......

Well, I had some other things to say - but they got lost in "cyberspace" :( - COMPUTERS! GRRR! - So I've run outta time & now have to go get ready for the meeting - I'll be back later...
Hugs to all!
Linda
 
Name:  Alice  
Child:  Luke
Comment:
096    Monday, 12 May 2003 - 12:49:41pm
Susan,
Thank you so much for posting here.
Happy belated Mother's Day to you as well!
Happy belated Mother's Day to all wounderful moms here!
Alice
 
Name:  Alice  
Child:  Luke (3)
Comment:
095    Monday, 12 May 2003 - 12:45:16pm
Julie Korver,
I do not think that eating sand and dirt is a common problem with kids with DS.
I know that some times it is because child doesn't have enough vitamins or minerals.
My cousin loved to eat chalk, and he was not mentaly retarded or DS, he just needed exra vitamins: doctor sad: "Calcium".
I would find good doctor and find out what vitamins and minerals your child needs.
Good luck,
Alice
 
Name:  Julie Korver    Email:   
Child:  Jordan D.O.B. May 19,1998
Comment:
094    Monday, 12 May 2003 - 12:22:14pm
BTW - Almost forgot....
Jordan loves to eat sand and dirt. I do not know why my son has this affinity with the earth, but I think it is a common problem with ds kids or any other mentally challenged people/kids. I saw a show on local TV here, and there was this 15yo kid with ds and also autism also some kind of eating disorder. He was eating sand, dirt, gravel, leaves from plants (some of which were toxic and he had to have his stomach pumped), just be thankful our kids are only eating dirt/sand! At least they're getting the fibre they need lol....
See Ya
 
Name:  Julie Korver    Email:   
Child:  Jordan D.O.B. May 19,1998
Comment:
093    Monday, 12 May 2003 - 12:15:55pm
G'Day from Oz once again,
I must tell all of you that about 3 1/2 weeks ago I ordered a UnoMas21 Baseball Jersey. Well, it arrived today-the day after Mother's Day. I absolutely love it. I got the long sleeved version in red(it is my favourite colour). But when I ordered it, I ordered a large thinking that because I'd put on a little weight in winter, it should cover any bulges. It covers alright-it's slightly too big!!!
But, never mind-I think I'll keep this one for a nightie and just order another one a bi smaller this time. I'm absolutely rapt in the quality(which is fantastic!). It's so warm and cosy; and you know I'm only 5feet tall, so it comes to my knees. The perfect nightdress. Thanks to the designer of these teriffic tops. I love mine already and have only had it a few hours.
See Ya's for now
Julie
 
Name:  Annette    Email:   
Child:  Ashley 5mths
Comment:
092    Monday, 12 May 2003 - 10:26:01am
Allisa just wanted to let you know my Dr.. says thats normal for any child.. My son Logan 5yrs which does not have ds ate dirt, dog poop, anything in the yard till he was 3...GROSS GROSS GROSS LOL he did finally STOP! Thank God...
 
Name:  allisa    Email:   
Child:  Erin. 3
Comment:
091    Monday, 12 May 2003 - 04:59:03am


Happy Mother's Day !

Just a quick question .....

Do / Did any of you have problems with your children eating everyhting they shouldn't...ie.... dirt, sand, etc... HELP !!

It has been a problem for a while now, but I have been diverting her attention... today we were at the beach... which come summer-time we are there almost daily.

I have no idea how to make this possible ! I have tried to let her eat it & hope she will learn that sand is not all that great, but I couldn't let her get any more sand in there ! Tried time-outs, but the SECOND I put her down she was at it with a vengenace... then I wonder if she just wants the reaction from me !

We have been making so much progress in other areas, but this has me stumped !

Sometimes she looks at dirt/sand and says "no-no-no" and doesn't bother with it,,, then other times she can't resist it ! ANy ideas would be most appreciated !

Thanks,
Allisa
 
Name:  Melissa    Email:   
Child:  Mazie
Comment:
090    Monday, 12 May 2003 - 04:37:52am

Happy Mothers Day!!!!!!
Hope you all had a wonderful day. I know that I was never so glad to get outta the car and get these wonderful kiddos of mine to bed. lol I was having a horrible time with Mothers Day this year. I really don't know why but I was down. And I couldn't find the right thing to take to the cemetary. That was prob alot of it, cause I always have some great idea and I had racked my brain for 2 weeks over what to do. But Saturday me, the kids, and my sis went shopping and I found that perfect item. Thank God cause Friday I was sooo upset and could not quit crying. And that same day I got my new car and was also trying to get my insurance and tag, while acting like a blubbering fool. :) lol All better now though. Have a great week everyone!!!!
Melissa
 
Name:  Traci    Email:   
Child:  Ashlyn 3 1/2
Comment:
089    Monday, 12 May 2003 - 02:20:28am
Happy Mothers day to all. I had posted earlier, but don't see it..hmmmm. Oh well..just wanted to say to Annette Looks like you will have to be both Easter Bunny and Santa now, because next year he can't get by with not getting Ashley something, ya know? I have an idea for Fathers day for him....don't get him ANYTHING....and TELL him you forgot!!!! Sounds like he just being a weiny head...how do you forget you have 3kids? Anyway Have a great day everyone!
Traci
 
Name:  Debi    Email:   
Child:  Gabe
Comment:
088    Monday, 12 May 2003 - 01:08:34am
I agree with you Susan Happy Mother's Day to all the great Moms who post here.. and I think you are one of the greatest MOMS EVER!! So glad to see you post and hope you know that all of us are knitting a "cyber quilt of love" for you that may be invisiable but will be with you just the same. Keep reading that's all we ask!!
 
Name:  Susan    Email:   
Child:  Emily, very close to 12!
Comment:
087    Sunday, 11 May 2003 - 09:07:47pm
HAPPY MOTHER'S DAY to some of the most wonderful mothers on the planet!!!! I hope you have all had a fantastic day!!! We all slept in this morning (NOT on purpose) and had to RACE to get to church. Part of me wanted to just stay home because I knew that the topic of the sermon would be about mothers.....but we went, and it was good. It's just such a hard day when I had a mother just days ago! I do hope that you all understand that I love you all, and I'll be back to posting regularly soon. (LOL I'm giving you fair warning!) But right now, it hurts less to keep very busy and not sit down long enough to post. And, honestly....I'm feeling the need to spend more time with my children because I've found that life can pass SO quickly and precious time with those we love is gone. I'm still reading the posts, and will keep you all in my thoughts and prayers. I'm REALLY looking forward to the Chicago trip, and can't wait to see everyone!
~
Thank you all so so much for the support and kind words. I can't begin to tell you how much it means to me. Have I mentioned that you're the best??? Have a great week!
Susan
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
086    Sunday, 11 May 2003 - 06:28:58pm
LOLOL, I almost forgot to tell you what my little meathead did this morning when he woke me up!! You all know how he has ben trying to feed me "poison" like in sleeping beauty and snow white right? Well, he came in and tried to give me a big apple and he said..."here it clean, take a bite, take a bit, come on honey, come on " LOLOLOLOL, I do not trust this child of my heart so I said "no way jose" and he pretended he shoved it into my mouth LOL so I pretended to take a bite of the poison apple and then I fell over and closed my eyes:-D
Well....Chase.. this precious precious boy then leaned over and kissed me on the lips and whispered " me your prince, wake up" !!!!!!! Oh I love this bad bad child of mine, and by the way?????? The apple had windex on it, that little shister!!!!hugs, Robin
PS Does that make me a princess????? :-D
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
085    Sunday, 11 May 2003 - 06:21:21pm
HAPPY MOTHER'S DAY TO ALL THE MOMS OUT THERE IN UNOLAND
Mine is going to be a nice one I think of I can just keep everything bolted down before these high winds blow it all away. We went to buy flowers to plant on the patio but wow I dont think I can plant them today without being blown away or forze into place. However, no complaints here as the sun is shining, it could be worst and I could have rain and cold.
I have been gone sweet Suzi because I have a hundred meetings and am deep into this wedding of my first born's which is Saturday!!!! I am so excited and before you ask what my dress looks like..... let me share my horror with you----- I DONT HAVE A DRESS YET!!!! My son and DIL are haivng kittens about it so they are taking me shopping either tomorrow or Tuesday night til we find one. I love to shop, but not for a dress for this body!!!! :-X
Susan my lovely ...I have had you on my mind all day as this is also the worst day possible for me, missing my mom is somehow much worse on this special day. So please know my thoughts are with you and I wish we could spend today together. I'd take you out to a hilarious movie and we'd go have dinner at a great place, followed by a spending spree at the mall, LOLOL, somehow spending lots of money always makes me feel better, LOL!!! Then we'd follow that up by a ice cream cone and a walk thru the gardens near here,a calm but soothing day :-)
Okay, I need to find something productive to do wether I want to or not. Hugs to you all, take care,
Robin..
 
Name:  Annette    Email:   
Child:  Ashley 5 months
Comment:
084    Sunday, 11 May 2003 - 03:32:22pm
Happy Mothers Day to All, I got a card from my dh and 2 other children.. DH always seems to forget Ashley....Even on Easter my other daughter Morgan asked dh why didnt the easter bunny bring Ashley anything.. (he is the bunny I am Santa) He said to me he completely forgot, I guess thats what he'll say to me this time too.
Well Happy Mothers Day to All..
 
Name:  Julie Korver    Email:   
Child:  Jordan D.O.B. May 19,1998
Comment:
083    Sunday, 11 May 2003 - 01:49:58pm
hello Unomasers,
and a very HAPPY MOTHERS' DAY TO ALL!
My day was lovely - after a 6am start (very normal in my house as Jordan is a real early bird)LOL I received a new dressing gown (which I did request, my old one is really ancient;)like 12 years old! So I'm very pleased with myself at the moment. Also received lots of other bits and pieces for having a bath ie. bath bombs, body gel, bath bubbles. Like when do I have time to take a bath?????LOL The weather is Oz - well Adelaide anyway is very wet this weekend. It has rained non-stop since Sat morn. We had my Mum and Stepdad over for a beef roast dinner. All was well until I started to carve up the meat. There was this great big juicy grain of jelly fat runing through the meat. What a disappointment!! Mum opted out of the meat and just had roast vegies, I almost couldn't eat the meat. I bought the meat at a local discount supermarket called BI-LO-it was supposed to be Bolar, but it tasted more like sinew. I have never had a piece of meat quite so bad. It will be a while before I buy that again. Apart from that the evening went really well. It is just nice to have mum to share it with.
Susan, how are you doing? I guess you are really feeling your loss this weekend. Don't despair-things will get easier with time. My husband, Bob lost his father to cancer while I was pregnant with Jordan. The pain he went through was terrible and we were saddened by his death, but in a way we were happy too, because he was free of his insufferable pain. We know in our hearts he went to a better place, free from the suffering, and we could no longer be selfish - we had to let him go, and we had to get on with our lives. But the pain won't go for some time and we all understand that. You have to live it for yourself-no-one can do it for you, or tell you to snap out of it, because you know you can't. God Bless You and your family, I hope that today is not too hard for you. We'll be thinking of you.
Well, it is 11.20pm here in Adelaide and I think I should really get to bed, because like I said we have an early riser in our midst. Godd morning is usually around 5.30am whem Bob gets up for work.
Will post again soon.
Happy Mothers' Day again.
Love to all
Julie
 
Name:  Tammy    Email:   
Child:  Lewis the menace
Comment:
082    Sunday, 11 May 2003 - 01:48:07pm
Hey again evryone...
Just to let you all know..(in case you were interested) that I will be away for a short while..like 3-4 weeks...
I managed to sort out some arrangement with Daycare so My prac is going ahead !! YAY... and I KNOW I am going to be very busy over the next few weeks. I will try really really hard to get here when I can... but it will be read only, no chats :(

Linda...LOL... I wish it were a family business and I could charge BIG $$$....
We have regular house guests because we live in a small coastal town, a looooong way from anywhere, and people pay big $$ to holiday here... so all my friends from the city (10 hrs drive away) Love to come up and visit. So really I love having people here, but it can get tiring...if you know what I mean.

Anyway... gotta be going....
Take care everyone....

Tammy..
 
Name:  jackie    Email:   
Child:  Justin 2 1/2 ok almost 3 waaaa
Comment:
081    Sunday, 11 May 2003 - 05:49:28am
HAPPY MOTHERS' DAY everyone
 
Name:  Linda (again!)    Email:   
Child:  Adam
Comment:
080    Friday, 9 May 2003 - 10:57:25pm
Jo-Anne -- Just wanted to say "WELCOME" to you & Erin! Please tell us more about you & your family --- Adam took his first independent steps right on his 2nd B-day - but didn't really walk very well until about 2 & 1/2 or 3 years old & even then he was kinda unsteady on his feet - A slight nudge & he would topple over!LOL!
Well gotta go & get the oldest from her first Drama experience -- she's in the 8th grade play put on by her school this year --"Annie"
~Linda~
 
Name:  Linda    Email:   
Child:  Adam 8 - plus 2 girls
Comment:
079    Friday, 9 May 2003 - 10:52:20pm
Hi All! - Just stopped in to catch up on posts....

Steff & Suzi - you "skimmed" too fast! LOL! Ernest's BIG DAY - was his LAST day of HS - NOT his B-Day! (or so I read from re-reading Sylvia's post!) Sylvia - I bet it IS hard to see your child off on their last day of school -- probably as traumatic as sending them on their First Day! I still have 4 more years to go before my oldest sees her last day of HS.... Share w/us your stories so we know how many kleenex boxes to stock up on! - Will Ernest go on for more scholing or is he thinking of working??

Speaking of Birthdays -- A VERY VERY HAPPY (But a Bit Belated) 24th BIRTHDAY to our Princess of UnoLand - Miss Emily!!!! :) :) I'll havta check the photo album next for the pics of the party!

Tammy - Wish I was there to help!! I think I missed something -- why do you have house guest severy so often? - I take it is a family business?? Maybe we want to save for a vacation there huh?!

Cindy -- C-sections are the only thing I know -- get an epideral or a spinal - don't be "put under" for it --You get to hold the baby for a bit before they stitch you up & my DH held Aimee (our oldest) the whole time afterwards while he sat nest to me in the OR -- It'll be fine girl -- just a bit different recovery --- If you nurse I think it helps your healing as you need to sit & rest while you & the little one have some great bonding time!

Steff -- one thing I haveta ask ya -- is the school Liv is going to for Kindy - is it all day or half day K/ - Adam's was half day, but he went ALL day - same teach,same aide, 2 sets of kids.... REALLY worked out well cause he had "repeated" class content & if he was pulled out in the AM for ST or wahterver, they made sure he was there in the aft to get what he missed! Our IEP is Mon - so keep your fingers crossed for us for a good outcome! - Man, can hardly bewlieve my guy will be a 3rd gradere next year! -YIKES! Where does the time go???
Susan - I understand - I am sorry you are going thru such a hard time --- We will be here for you when you feel ready -- hugs & love & prayers to you & your family...Robin - thanks for the update...

OK - must go - but wanted to say "hi" to all - have been lurking - but needed to post (with my Left hand still -- another week or so & I hope to get back to having the use of both hands again!)
All who are in Tornado areas - post up to let us know all is well.. 'K?
Hugs to all!!
Linda

 
Name:  jo-anne    Email:   
Child:  Erin
Comment:
078    Friday, 9 May 2003 - 06:21:45pm
hie Dolly, so nice of you to respond, thanks for the encouragement, and i figured patience would be the best medicine, at first it looked like Erin would do nothing and then after her open heart surgery at 8 months, she caught up quite quickly, it was amazing, like she was doing something new every day, she is such a joy and a pleasant peaceful child....as for Barbados, we're only 166 square miles with 150,000 people, sunshine all year round, fantastic beaches, in a word PARADISE, hope you all can visit one day...looking forward to hearing about some other experiences...please stay in touch....JOjo and Erin J
 
Name:  Suzi    Email:   
Child:  Merideth 2
Comment:
077    Friday, 9 May 2003 - 05:00:00pm
Oh! Happy,Happy,Happy 18th Ernest!
Stef: So glad Jeff got thru to Bek~I've been worried bout them since yesterday. We're getting so much rain here it's on the verge of flooding....luckily we live on top of a hill. However I may have to replant my garden.
Susan,sweets....pick up the phone & call whenever you need an ear!I hate to invade your privacy if you need some down time~ but Im here for ya gal!
Robin: Where the heck are yer tailfeathers gal????
Kelly: Hope you post up over here too!Hope Quin's appointment went well....Meri did great with her blood draw though we were there in the midst of one of the thunderstorms so we hung out at the shopping center there till it calmed down a bit.
~Be nice to her gals! I had a real nice phone chat with her the other day !
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
076    Friday, 9 May 2003 - 04:43:32pm
HAPPY BIRTHDAY ERNEST!!!!!!Ohhh to be 18 again... ;) Tell us all how the BIG day went!!!!!

SUSAN (((HUGS))))) I am gonna give you a ringy dingy tonight if that is okay with ya.... I'm so sad for you. I am sooo glad you all got to go though....

Called becky in OK last night. For a while it was busy BUT when I went to school my dh was soooo worried bout them he called tilll he got through. They are all fine ...Lost power but they are all safe and sound....

Jenn how are ya?? i wanna talk to you in chat one night and see how courtneys school is going and if ya have any tip for me in starting to fully include Olivia in kindergarten next year.....IEP is in june and i need to get over to our regional center and pick the brains of some veteran moms and workers. One of the moms fully included her son there too and she knows how the system works she is an advocate there and is in the parent resource room. BUt I need ideas sdo i won't short change Liv for my lack of knowledge...

My MID TERM is OVER ..Scary one too.... Man this class is not only BORING but soo HARD....Well gotta git....We are all fine and well and hope you all are too...
 
Name:  Sylvia Trujillo    Email:   
Child:  Ernest Trujillo
Comment:
075    Friday, 9 May 2003 - 04:14:55pm
Hi Everyone,
It has been a while since I have written. I'm Ernest's Mom. My son is 18 yrs old and today is his last day of high school. I'm so sad. 
Sylvia
 
Name:  Jennifer    Email:   
Child:  Courtney 8
Comment:
074    Friday, 9 May 2003 - 02:25:50pm
Hey guys.
Just checking on everyone in tornado alley.
Let us know you are all ok!! I am seeing alot of damage in OK City....please let us know!

Jenn
 
Name:  Dolly    Email:   
Child:  Eric, almost 3 years old
Comment:
073    Friday, 9 May 2003 - 12:41:57pm
JOANNE: Welcome to UnoMas...this is a wonderful site,
and the people are the best; My son Eric is 35 months old, (turns three on June 27) and he didn't start walking on his own till about 2 months ago. Still not
really steady on his feet, but definetly is MOBILE!!
Do you have Erin in physical therapy? If so, they may
give you some suggestions that will help. For me, patience was the answer..I tried push toys, riding toys, shoes, no shoes, nothing seemed to motivate him.
Then all of a sudden, he started walking on his own. He
would be sitting in his play-yard, which is about 5 feet by 5 feet, and I caught him out of the corner of my eye walking across, back and forth, grabbing on when he got to the other side. So thats how he started.
I guess kids will do things in their own time, and everyone of them is different. Good Luck, be patient, and again, welcome! Dolly
p.s. Barbados!! wow, I hear its totally beautiful.
 
Name:  Adrienne    Email:   
Child:  Regan, Russell (ds) and Reece
Comment:
072    Thursday, 8 May 2003 - 04:46:22pm
Oh Susan.. my heart goes out to you... Take your time, grieve, mourn, kick, scream, cry, laugh if you need to... do what it takes... it is rough going through a loss of a loved one... and loosing a parent is never easy.... Take all the time you need to heal and deal.

I luv ya!
A.
 
Name:  joanne    Email:   
Child:  Erin J
Comment:
071    Thursday, 8 May 2003 - 01:51:18pm
Hie everyone, my name is Jo-Anne and I'm from sunny beautiful Barbados in the Caribbean. My daughter Erin is almost 2 and a half and still not walking on her own but extremely busy otherwise, are there any exercises I can use or is it a wait be patient situation, please respond all opinions welcomed...have a wonderful day Jo-Anne
 
Name:  Connie    Email:   
Child:  Collin
Comment:
070    Thursday, 8 May 2003 - 01:37:51pm
Hello unoland!!

I was just skimming the posts and wanted to add my 2 cents on C-sections.

Man-o-Man....I had all 3 of my boys natural with my biggest being 9lbs and 22" (Collin my tank)but little Lauren decided to be different. She was transverse so I was scheduled for a C-sec. Needless to say she didn't want to wait so she was delivered not so much an emergency c-sec but a rushed one. From the time my water broke and the time I had her was only 1.5 hours and I had just finished eating but they didn't care. All I can say is....why didn't I do that with the 3 boys!!! It was so much easier!! I was sick from the morphine they gave me while in surgery but after that shot I didn't have any more pain medication... only a tylenol for a headache. I was in and out of the hospital in less than 48 hours and shopping the same day I was released...That Easter Bunny doesn't wait for anything!!!

Good Luck Girls....and it really is much easier!!!

But, I can say I have not lost my weight near as easy and still have a pooch...could be it was my 4th child, could be it was the c-sec, could be I just eat way way to much...but I may never know.

Congrats!
Connie

PS...Praying for you Susan!! HUGS!
 
Name:  Annie S    Email:   
Child:  Sonny
Comment:
069    Thursday, 8 May 2003 - 12:28:54pm
Hi all just wanted to add about the c sections..I was in labor with Sonny for 12 hours then they decided to do a c section..I had my other 2 kids naturally so this was such a surprise for me..but It wasn't as bad as I thought It would be..more difficult to get up and down..the pain is just tferened to a different area..my word of advice get up move as soon as possible..even though it hurts..I walked the next morning..and then to the nicu to nurse Sonny..I got my strength back so much faster by walking very slowly..Hope this helps..

Well Iam being layed off from my job ..my last day is Jul 1..they decided to close down our call center..hopefully to spend some of the summer with Sonny ..wish luck to find something new ..the bummer is I just finally had weekends off and a great work schdule(sp)...going to miss my travel benefits//

Happy Birthday Emily sorry Iam late and to everyone else this month...

Susan I to know how difficult this is I lost my Mom at 20...prayers and love to you and your family Annie
 
Name:  Christie    Email:   
Child:  Christopher
Comment:
068    Thursday, 8 May 2003 - 12:13:32pm
SUSAN: If your reading, ((HUGS)) girl.

WHEN TOMORROW STARTS WITHOUT ME

When tomorrow starts without me, and I'm not there to see;
If the sun should rise and find your eyes all filled with tears for me;
I wish so much you wouldn't cry the way you did today,
while thinking of the many things we didn't get to say.
I know how much you love me, as much as I love you,
and each time you think of me I know you'll miss me too;
But when tomorrow starts without me, please try to understand,
that an angel came and called my name and took me by the hand,
and said my place was ready in heaven far above,
and that I'd have to leave behind all those I dearly love.
But as I turned to walk away, a tear fell from my eye,
for all life, I'd always thought I didn't want to die.
I had so much to live for and so much yet to do,
it seemed almost impossible that I was leaving you.
I thought of all the yesterdays, the good ones and the bad,
I thought of all the love we shared and all the fun we had.
If I could relive yesterday, I thought, just for awhile,
I'd say goodbye and kiss you and maybe see you smile.
But then I fully realized that this could never be,
for emptiness and memories would take the place of me.
And when I thought of worldly things that I'd miss come tomorrow,
I thought of you, and when I did, my heart was filled with sorrow.
But when I walked through heaven's gates, I felt so much at home.
When God looked down and smiled at me, from His great golden throne,
He said, "This is eternity and all I've promised you".
Today for life on earth is past but here it starts anew.
I promise no tomorrow, but today will always last,
and since each day's the same day, there's no longing for the past.
But you have been so faithful, so trusting, and so true.
Though there were times you did some things you knew you shouldn't do.
But you have been forgiven and now at last you’re free.
So won't you take my hand and share my life with me?
So when tomorrow starts without me, don't think we're far apart,
for every time you think of me, I'm right here in your heart.
 
Name:  Staci    Email:   
Child:  Aidan (2.5 yrs)
Comment:
067    Thursday, 8 May 2003 - 04:00:36am
Hello everyone!
Well, to whoever posted about the fear of c-sections...I think it was Cindy? MEEE TOO!! I am due June 9th, but will have my little one in the next few weeks due to her having a heart defect (having her in St. Louis, 5 hrs away from where I live!), and I'm so scared about having a c-section! Actually, nobody has even MENTIONED to me about it, but I know it is a possibility. Yikes! Good luck to you, Cindy...we'll be having our kiddos close together, so keep me updated on how things go!
Please say a prayer for the communities surrounding my area...the tornados have really destroyed things. My husband's mother lives in one of the small towns that was hit hard (fortunatley, she and her home are ok), in Carl Junction, MO, and we drove through tonite and you can't imagine how horrible a sight it was! I live just 10 miles from it, and even I had no idea. It was devestating. A tornado touched down across the street from where we are in KS, but it didn't stick around long. Aidan and I were hiding under the dining room table, he thought that was a pretty fun thing to do :) I feel very lucky, but also my heart breaks for those who lost everything.
Anyway...having a baby in just 2 to 3 weeks!! I'm very anxious to have her and to see her! I can't wait! I'm not too nervous, other than thinking about having a c-section...or not making it to ST. Louis to have her! I'm already starting to have those "pre-labor" feelings, and dialating...so who knows just WHAT will happen...or when! I just keep praying for the best!
To Susan, I'm thinking of you in this hard time. Prayers are with you.
Talk to you all soon!
Staci
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
066    Thursday, 8 May 2003 - 03:35:46am
I havent been here all week I think, so I have ALOT of reading to do but as I started to read...I see our sweet Susan hasnt posted yet so I wanted to fill you all in. She called me Sunday just before she left to come home from California. She is having a terrible terrible TERRIBLE time with the death of her mom. She is reading a little she said but right now has no desire to do anything. She loves everyone dearly but right now she just needs some falling apart time, bless her heart. Susan has been very blessed in her life to have never lost a close family member and this is so very hard for her, she is grieving deeply. Any words of wsdom or support to her I know will be deeply appreciated and welcomed by her. We shared the sorrow of both having lost a mom now and I hope the talking helped her as much as it helped me, and now the deep pain from the loss, and having mothers day this Sunday so soon after her mom's pssing is a double ache. She will be back, do not fear, she is just needing time to grieve, so please keep her in your thoughts and prayers. She needs us all so much now,
hugs to you all, Robin
 
Name:  Tammy    Email:   
Child:  Lewis the Menace
Comment:
065    Thursday, 8 May 2003 - 02:31:51am