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May 2003 Archive
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Name:  vicki    Email:   
Child:  philip 2 1/2
Comment:
242    Saturday, 31 May 2003 - 10:12:14pm
hi guys.......i just love this message board....i just laugh out loud.......ok, who can relate to this? yesterday, i was getting philip and gentry (my 5 yr old) ready to go see "finding nemo"......i was at a friends house because i was taking her little girl with us....anyway, philip was playing on the floor when i picked him up....obviously he DID NOT want to go and rared back and gave me a MIGHTY head but right in the mouth..........uggggggggggg......thank goodness that i had philly right over the sofa because that is where he got dropped as i put my hand to my mouth only to find a mouth full of blood......nice......then gentry comes running up to me yelling, "did you lose a tooth mom? let's put it under your pillow for the tooth fairy".......(i think that i will pass on that) after about 5 terrifying minutes i was finally able to go the the bathroom mirror and take a look......my tooth is still there, but very loose!!!!!! The only bright side to this scene is that next thurs. i am going to the dentist anyway to get that tooth pulled and a bridge put in..........but please say a little prayer that i won't lose this tooth in the next few days......i really don't want to go around toothless for ANY amount of time........so now i am super parinoid everytime that i pick him up.......i didn't know that my sweet little philly had dreams of becoming the first pro-wrestler with ds......he could always go by PHILIP " THE TOOTH CRACKER" CABRERA!!! hee hee!!!! (and by the way, we did make it to see the movie and it was cute.......)....have a great weekend....vicki
 
Name:  Pat    Email:   
Child:  John-John 3yr 10 mth
Comment:
241    Saturday, 31 May 2003 - 12:14:10pm
Has anyone heard from Gina, Jaden's mom? I tried sending her a message, seemed like there were some hard times. Does anyone know another way to contact her? No E-mail listed. She's really been on my heart.
 
Name:  julie    Email:   
Child:  Jordan (5)
Comment:
240    Saturday, 31 May 2003 - 08:45:21am
Hi again everyone - Let me tellll you about our haircutting experiences LOL. I had to laugh and also sympathise with all of you that have posted re this topic. Anyway; Jordan as you have probably guessed DOES NOT LIKE HAVING HIS HAIR CUT-not one bit. The first time was the absolute worst but things didn't really improve until about 4 haircuts ago; I would have to hold him in a vice grip (and it took all my physical and emotional strength). He would sit on my lap and I would whisper loving sweet nothings in his ear and even the promise of chocolate would not appease my beautiful swollen red eyed chap who was covered in tears and snot all mixed in with a bunch of hair clippings. What a DS parents worst nightmare come true LOLROFPMP....I can relate to any moms haircutting story BIG TIME!!!!! Sorry I so go on a bit don't I?
Can't help it I love all these gorgeous kids to pieces good times and bad.
Bye from Oz - Love you all and keep posting your funny bits, they make my day.
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
239    Saturday, 31 May 2003 - 05:17:52am
lol my post got moved around somehow lol..I meant the speech will come for Betty concerning her grandson!:)
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
238    Saturday, 31 May 2003 - 05:15:31am
Hi Steff! LOLOL that is so cute about Olivia yelling mom I can see! I think it's great that she's tracing her name already at 5, Jared just started that 2 years ago. He's doing real well at it now but your kiddo has a good headstart.
The speech will come but it can take awhile sometimes..my mom has always been concerned for the speech too:)
Hi Robin..it's soo good to see you:) I know it's been awhile.LOL I am thinking if we tried to compare Jared and Chase stories it would take a looong time lolol.
I looked at the ohio trip pictures awhile back ago and it looks like everyone had a great time. I think my only trip this year is making the pHilly conference..which I am so excited about I can barely wait to go:)
Nice talking to you. Tell Susan I said hello:)
Betty are you grandma to Christopher? (Sorri I havent been here for awhile and been trying to get to knoe people the past couple weeks) I am asking because if you are looking for other grandmom's to talk to, my mom would love that. She has been looking for a grandparents chat and hasn't has much luck. Let me know:)
 
Name:  Jackie    Email:   
Child:  justin
Comment:
237    Saturday, 31 May 2003 - 03:59:09am
Ok 14 hours and counting lol. This will be the last time I have all 3 kids B-days on the same day lol. I cannot wait until this weekend is over lol, I overbooked myself as usual, Alyssa is having a sleepover and I had it so everyone will be picked up at noon, well I forgot Ms. Ashleys' gymnastic exhibition is Sunday at 11:30 uggggh and of course Chuck is on 7 days and gets to miss all of my fun lol little does he know that there will be 11 screaming girls here tomorrow night, but I guess the joke is on me I will be flipping pancakes forever lol. Oh well I will just have to catch everyone as they are getting dropped off to make sure they are outta here by 11 lol. Ok I have to find me the biggest box of Calgon I can lol. Everyone have a great weekend and I'll try to crawl down here and report in lol.
 
Name:  Robin    Email:   
Child:  Chhase/10
Comment:
236    Saturday, 31 May 2003 - 02:53:44am
MARIE.....ROFLOLPMP..there is no way you are going to convince me that Jared is worse then Chase or even close :-D SOOOOOOOO.... I guess you will have to make the chicago outing if you want to convince me :-D
We have dealt wiht the hair cutting issue since Chase was old enough to need a hair cut. It used to take four people then three and now just two to cut Chase's hair. We also just found a really nice girl who said she would try to cut Chase's hair when I bring Zach in next time. We still do it outside when it is nice so the neighbors come out to check out the screaming :-D
MARIE ..Stevens mom my dearest darling :-) LOLOL huggers to you and I am n9t listening to no for an answer and that is final :-) BTW... I am going to think Steven not having some teeth is a good thing, Chase's mouth s way to small and they have already taken some teeth out :-)
Ok, I need to go I'll be back this weekend, hopefully we start the porch this weekend
hugs, Robin
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
235    Saturday, 31 May 2003 - 01:16:33am
HIBetty Christopher sounds adorable...My son was TERRIFIED of the buzzers and would have NO part of them till this year. Those things are SCARY to a kid.Olivia on the other hand LOVEs to get her haircut AND she LOVES LOVES to get her nails done.I have taken her already 3 times and she even had designs put on...I NEVER in a MILLION years thought that she would like it but she does...(pssstttt she also digs on the extra attention too)

Hi Marie...alisa hi man oh man Susan you are missed.

Lets see Olivia traced her name SOOOOO GOOD today 5 times BY HERSELF.I amtelling ya this is a biggie. Her glasses were replaced free of charge as when I walked in with them the lady said...oh those are BARBIE glasses and they are under warrany...LMAO.. I was sooo HAPPy. They happened to have the same size frame in purple and a golden brown. I chose the latter. Liv put em on and yelled(I gave em to her right after she got off the bus today and she jumped up and down and yelled MOM I CAN SEE!!!!!! The bus driver laughed sooo hard.AND she did this tracing today at school without her glasses. AND her script is 7.0 in both eyes. She is SOOO FARSIGHTED!!!

Hmmm what else...I am scheduling a meeting before the IEP. Well the jist of it is I have 4 families in our district coming into Livs IEP who have BEEN RETAINED THIS YEAR who were also in a sdc class. We wanna let em know what we want before the IEP and this bit of information cause they are saying this is the law and hmmmm. was there not a precedent set with these folks whose kids have also been retained? GEEZ why they want my 5 yr. old on the big yard with all the meanie kids is beyond me and to mainstream her n the fiorst grade class is still way beyond my realm of thinking. I wanted her to be retained so that she could go to our kindy.,she knows a LOT of info you guys p[probably a LOT more than the soon to be kindergarteners. SO what is the problem.I want her to be in a class she can be confident and successful in and bringing her up to first grade just doesn't seem like the right thing to do at all. I hope they let it go when we call the meeting cause maan I am tired. REALLY TIRED..Jeff'll be back soon thankfully ... ;)

Just checking in. JACKIE (EMS MA) says she misses you all. Hope to chat soon. I will be on the puter late tonight so if anyone sees me on yah. messenger IM this INSANE SOUL here. ;O

Oh yea Liv and I were parking when we see this cute dog and cute young guy. Liv says(the windows were closed. HI CUTIE GUY!!! We get outta the car she says it again. The guy turns back. She walks up to him and he lets her pet his dog and was talking to her. BUT when he bent down to talk to her and got close to her face she looked at him and said YOU'VE GOT A FUNNY FACE!!! Our trips out together are getting FAR too interesting... ((HUGS))) guys and see ya later gators...
 
Name:  Betty    Email:   
Child:  Christopher Kelly 2 ys9ms
Comment:
234    Friday, 30 May 2003 - 10:19:35pm
Hello everyone;
I was reading some of the posts about hair cuts well Christopher doesn't like it either. But I cut his he has had several cuts, the last one I just buzzed it all off and he really doesn't like setting still. But he is not afraid of the clippers I have been cutting his hair sence he turned one...But sometime it takes me a few days to get it the way I want it to look just cut a little each day...But my other grandson is 2years old and he is the same way and doesn't have DS but his mommy cuts his and he acts the same way Christopher does.
Christopher went last week to be tested or what ever they do at the school where he will be going for preschool...And he really did great he did everything the ask him to do ..My daughter said the teachers were really impressed with him . They said there will be some delays on the report but they are very mild. My daughter said that he sit for an hour doing puzzles and thing that they wanted him to do...Most of his delays will be his speech.. She told the teacher when she went in that she did not want him to be put in a room and just pushed aside ..that she wanted him in the main stream of things and they told her they didn't see any problem with him going to reg. kindergarten class when he is old enough ... They were really shocked at how well he understood and the signs that he uses...But he is a very bright little boy...
I know I am bragging but thats what grandmaws do best..Ha Ha.... His speech Th. was here today and he really did so well for her today...He said all of his vowel sounds for her ..She brought one of those old Echo Mic that you can get at the dollar store for a dollar and he was just repeating all kinds of sounds for her...we were both so shocked...she left the mic with us and said she would try to find a couple more of them one for each of my grandsons...He just seems to be saying the first part of words ...like Da, Pop, Ma, but it is a start I think he is starting to get it... he is signing like crazy puts at least three signs together...We were going some where the other day and he was putting all kinds together I think he might have been signing songs that he knows from the Wiggles. and Yes he is going to see the Wiggles in Aug. We got him tickets for his birthday....Well I guess I have Bragged enough..so I better get off here before I bore everyone....MaMaw Betty
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
233    Friday, 30 May 2003 - 04:03:45pm
Hi Christine my son does not have ADD but possibly autism or some unknown thing..which basicaly adds up to him being a huge pain in the rear most of the time! LOL Cute with a great giggle, but the capacity to reduce you to a quivering mass! LOL ok I am being a little dramatic (notice I said little) but I would like to hear more about your experiences...if you want to share.
Take care!
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
232    Friday, 30 May 2003 - 03:54:49pm
Robin...I probably wont make Chicago but I will BET ya Jared is worse than Chase LOL.
(sorri just thought I sneak that in there hehe)
One time Jared called this place in NYC called Tony's garage. He was younger and was babbling something into the phone and I picked it up to hear this guy saying "hey, ya got somthin to say to me? " hahahaha I explained and the guy chilled out..it ws pretty funny at the time!
 
Name:  Dolly    Email:   
Child:  Eric..3yrs on June 27
Comment:
231    Friday, 30 May 2003 - 03:50:28pm
VICKIE:
Whooo Boy! Can I relate! Eric is TERRIBLE when he gets his hair cut..so needless to say, he's only had ONE cut! I cut it myself ( did a lovely job..he looked like someone put a bowl on his head..a crooked bowl).
Finally, we braved going to a barber...a nice guy, who was willing to try and cut a moving target. Eric was a nightmare..screamed and squirmed the whole time. I had him on my lap in a death grip, while Dad tried to entertain him...didn't help. By the time he was done, my arms were like jello. I DEFINETLY needed a beer or two after that. So now, 6 months later, he has a head full of hair...people always say, "what a sweet little
girl.."..I guess we'll have to brave another trip soon, or maybe I'll try my luck when he's sleeping.
So your not alone with this..been there, done that! LOL
Dolly
 
Name:  Kath    Email:   
Child:  Julia 4yrs
Comment:
230    Friday, 30 May 2003 - 03:48:20pm
Hi Maria,
Regarding the missing teeth .... my daughter Julia
has a similiar issue. Her bottom center tooth (just
one) is missing.
I read somewhere that this is not uncommon. In some
respects it could help with over crowding...I'm trying
to put a good spin on this :)
I hope everything works out fine for Steven !
 
Name:  Marie    Email:   
Child:  Jared 11
Comment:
229    Friday, 30 May 2003 - 03:47:16pm
awww Vicki hahahaha i totally know where u r coming from LOL....I won't make promises that it gets easier but I got the easy way out....my ex is the one who takes my son for his haircuts now! He does so blasted little for him as it is that saving me from the haircut torture is only fair! But I feel for ya lady because I remember having to cut his hair...my hubby now and I would cut a plastic trash bag and put it over his body and try to hold him in a chair. when that didnt work we used a belt and tied him in! sounds barbaric I know lol but it was the only part of the haircut my son found amusing hahah.
For some reason most kids with DS seem to hate getting haircuts. I wish u the best on this...but I must admit I am so happy to not have to deal with the haircutting any longer...now watch ym jerk ex move out of state! ahhh:)
 
Name:  VICKI    Email:   
Child:  PHILIP 2 1/2
Comment:
228    Friday, 30 May 2003 - 01:57:08pm
Hi guys.......ok, does anyone else have the dreaded "haircut" problem that i have? Philip, bless his soul, has 2 swirls on the top of his head--which translates to a woody woodpecker look when his hair gets even the slightest bit long. and of course his hair grows like a chia pet......sooooo yesterday was the big haircut day...(it's a day that i have nightmares about) my hubby was off work so i told him he was going to get to experience the fun!!! (and let me preface by saying that philly has been having to get haircuts since he was about 6 months old and he's 2 1/2 now.....so he should be getting a little used to it by now).....so anyway, i sit in the chair with him holding him in the vice grip, my husband has a firm grip on his head and our poor barber "Takko" is trying her best not to make a bald spot.......ugggggg.....after every haircut i just want to go have a beer....and i don't even drink...hee hee....although i will say this is probably his best haircut yet.......thank goodness since he is scheduled to get his pic. made next week......so does anyone else out there have horrible haircut adventures or is it just me? (and let me also add that we have tried going to all the cool kid places with the animals you sit on and everything.......but no luck!!!) the only time i ever wish philip was a girl is at haircut time because then i would let it grow down to the floor!!!!!! ok. gotta run.......vicki
 
Name:  jackie    Email:   
Child:  justin almost 3yrs
Comment:
227    Friday, 30 May 2003 - 00:10:03am
Awwww Robin hmmmm perhaps I will have to call you so Chase can call us. I guess you will have to start hiding the pizza numbers now lol. WTG CHASE!!!!!!!
Steff hugs heading your way, and hats off to your friend and to everyone else there that are more than willing to back you up.
 
Name:  Maria    Email:   
Child:  Steven
Comment:
226    Thursday, 29 May 2003 - 11:14:31pm
Hi all , its me again , oh well Robin my dear friend i'm sorry but we really can't make it ,but we will try for labor weekend , ok , i will miss you all terribly , you guys know what you all mean to me and the kids and dh. Well i need help here , i took Steven to the dentist and they told me they want to take two teeth out, the thing is also that he is missing some adult teeth they were able to tell this with the xray they took. Do any of you guys with the older kids know anything about this , i know our kids get their teeth at odd times and places but to have some missing , yikes thats a new one for me !!!If anyone can tell me about their experience please tell me ,gosh i hope i'm makind sence, thanks , Maria
 
 
Name:  Joyce    Email:   
Child:  Arianna 4 yrs old
Comment:
225    Thursday, 29 May 2003 - 08:49:52pm
Hi Everyone!
Sorry I have been missing in action for so long. Things just get to be hectic. We are looking forward to seeing everyone in Chicago. Not sure what our plans will be at the moment.
Joyce and Family
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
224    Thursday, 29 May 2003 - 07:46:44pm
Afternoon everyone....
Awwwww Steffy, huggers to you and you give your frined a huge hug from me ok and tell her it is for being there to help, grrrr to the teacher and the school district. Pulling for you kid!
I got a big old smile on my face. I just got home and checked the answering machine.... Chase is on it, LOLOL, he has been practicing calling home and today he called all by himself and left a message for us saying he loved us bye. LOLOLOL, it was so cool! However...I am a bit concerned about this calling stuff, I have found him calling all sorts of places, any place he sees a phone number he calls..LOLOL what a kid!
need to get to gardening ugh, hugs,
Robin
 
Name:  philipmom    Email:   
Child:  gentry 5 philip (ds) 2 1/2
Comment:
223    Thursday, 29 May 2003 - 05:10:16pm
hi guys.....fairly new at this posting biz, but i really do enjoy reading all that you have to say.....i have laughed out loud many times......so my question is --- the live chat? i have gotten on there a few times at the recommended time and i have just chatted with myself....(although that would not be a first haha) do any of you all get on the live chat? well anyway,,,,,i hope you all have a good day, i get to go to the hosptial tonight at 6:00 to visit with a new family that just had a baby with DS. i really enjoy doing that....i have got to go about 4 other times....but this is the first time that my hubby will get to go.....so wish me luck........vicki
 
Name:  Alice  
Child:  Luke
Comment:
222    Thursday, 29 May 2003 - 05:05:47pm
Susan, it is so nice to see your posts here!!!!
Welcome back! Hope you feel better. If you will talk to Radonna, please say her hello from me.
Have a good day to all.
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
221    Thursday, 29 May 2003 - 01:25:21pm
Sorry bout my angry misspelled post last night but I was sooo tired and angry,,,ANYHOW the jist of it is. When I put Liv in the sdc kindergarten class at 4 EVERYONE at the IEP knew MY GOAL for Liv was to get her ready to be fully included in our home school kindy.She was far too young at 4 to be there so i decided on this class. EVERYONE knew my intentions of trying to fully include Liv in our home school from the GET GO... SO no one told me this "alleged" FAKE law they made up cause for some reasone they don't wanna even let her try it. I told em why would i take a sememster pff schoool next eyar to be here to help the kindy teachers inall ways possible and try to put her in the regular afternoon program IF it was sooo much more work for me??? It would be MUCh easier for me to drop her and Ky. off at school put her in ouir home schools sdc all day with her being mainstreamed into some first grade classes// And I am trying to figure out WHY MY 5 YR. OLD HAS TO (as they say) NOT BE RETAINED and be put in the 1st grade classes??? WHY?Okay I am done now I will be searching for answers... Talk to you all later...
 
Name:  allisa    Email:   
Child:  erin3
Comment:
220    Thursday, 29 May 2003 - 12:27:01pm
Hi everyone, so glad to see Susan posting !

Robin, what is the saying... you can only count on two constants in the world... taxes & love ? I decided we should add Chase's escapisms onto that list. I haven't been to Uno on a regular basis, but when I do.. it's like I never left !

Maria, I saw your post about little Isabella !! She is NOT out to get you !! LOL !! My daughter's therapists always told me that the low muscle tone that comes with DS tends to make the kids do eveything a litte harder, more intense.

She likened it to trying to put one a pair of earrings while wearing mittens... you can probably get it done, but you would be grabbing pretty hard to be sure you had the earlobe and you wouldn't get real good feedback from your fingers.

My daughter is now 3 & she definitely went through a rough stage... just patience & time will get her past it. In the meantime joint compressions help to "wake" up her hands & give her some strong feedback.

Also we had some cute toys that were filled with sand... really pretty heavy... for a little kid, but Erin loved to play with them becuase of the feedback she got from the weight of them....she used to toss every toy she was given,... but not these. Just another way to give her that feedback she needs.

Steff.... YIKES !!! what a story !! All the way around... maybe you all should have stayed in bed yesterday... well the school politics stuff would still be going on.... You let us know what happens.

Hoep eveyone is greast... Allisa
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
219    Thursday, 29 May 2003 - 05:38:28am
HI!!!!

Well well well....Hi Maria/ I went to chat a couple of thursdays ago and chatted with myself... :(...How are ya? Whatcha gonna do for the summer?

I am sooo sorry I forgot who wrote about the fence but cracked me up. And by the way...just ask Robin, NEVER leave a fence up to a house unattended...

SHARYN. I share your concerns. PLEASE I will be dying to know what the outcome of the meeting is.If you don't feel it's right then you HAFTA speak up...Gosh I am finding out today what school districts will try to do and pull on parents.

Now we have alwys had it easy with IEP's and the school district.BUT EGADS today boy di I get a shocker...

First off I must begin with a story then proceed to let you all know what the school and district is trying to tell me is Livs ONLY option...

Okay first off you all remember the t. a. does not get along with Liv. Remember me saying she is ALWAYS negative when she speaks to me about Liv to the point of me having to say/ Does she do anything that is positive in class?Everytime I came to pick her up it was Liv wouldn't stand in line today or she hid in the closet(Now i know why she waas SCARED TO DEATH of the SCREAMER).Anyhow Liv ghets off the bus today not her happy usual self more like she was distressed. So we go in the house I get on my kness and ask her what it wrong she starts to tell me about a pap bear doll at school. Then she says mis so and so is MEAN. and got all bent out of shape.I ask her why...Olivia acts out and tells me what happened. So here I stand inshock and give her a hug say I will take care of it. As I am making lunch for liv I call dh and tell him what she said. I have him call back after Liv relaces for a bit.So he does and she tells him the exact same story as I listen in in the other room. SOOO. I am going to take her to her afterschool program and ask her therapist there hmm what Ishould do or what... So as we are driving there I ask Liv again. She tells me the story then says JUST FAKING<<Uggg So now I am confused cause she says that after we (me aand the rec therapist to stop grinding her teeth).So I take him aside when we get there and tell him we chat I tell him the breaking of the glasses story and about school. SO Liv walks into the room and he asks about her glasses... Liv tells him I BROKE THEM IN HALF(I had to laugh with him later cause I thought it was soo cool she said it that ways she normally says BROKED then and tha's it LOL) he asks were you maad she says YES and she acts out the entire incident even the stomping of the feet and the STUPID MOM(which I noticed she said in a MUCH sweeter voice than she said to me at the time) He looked at her and was gonna sk her another question when she laughed just as she had earlier on the ways there and said JUST FAKING...Which we all know she did do and she really acted it out soo well... (we had a laugh afterwards ,--when she left the room) so he said he would watch out for her listen see if she says anything. SO by the time I get home there is a message from Livs teach saying.... call me. I do she starts talking to me immediately bout a letter she received from the school where shes at now saying she MAY NOT BE RETAINED and she MAY NOT go to our home school kindergarten cause once you have been in a sdc class you cannot be retained?? Here's me HUH??? Well got the name of the lady at their school and what the letter said. I asked the teach what hjad happened between the t. a. and liv today... She actually said to me.. I could NOT get Liv to sit up on the carpet this morning cause so and so was screaming ... murder all morning didn't you hear him? Yea i thought that was real funny picturing her tring to get my scared kid to sit up as a boy screams the entire time. Anyhow she said nothing there was nbot 1 of the 3 kids who have aides who were there today. Hmmm. So I call my buddy after at our regional center leave her a message in tears practically.Then I go pick up Kyle and our neighbor from school.I then ask the wonderful sdc teacher at Kyles school(whobeleieves Liv too should go to kindy fully included and get in the afternoon prog,,,the one that Kyle went to.She tells me who to call in the district. I finally manage to find this persons number I do call explain sit and leave it on her machine. Well she calls back and tells me this is my option they don't retain anyone who's been in a sdc class. I am thinking well this is the district manager and she says as we part our conversation so we will puty her in miss so and so's class next year(that's the sdc teacher at Kyles lindy I like ) she says great and hangs up the phone.BAM 2 seconds l;ater my friend from the regional center... TELLS ME they are TOTALLY BAMBOOZLING you.. We talk she is looking inot certain things she (her son included) haver all been retained even at this school in a sdc class then went on to be included inkindy... THEY WERE TELLING ME LIV HAS TO GO TO 1 ST GRADE. She MUST BE a first grader next year.....Well this lady from our regional center is not only p.o.'d but she has all her backup and she will help me every step of the way as a matter of fact a bunch of parents whos kids were retained this year in the same situation are willing to attest that it can be done. I feel MUCH better after having talked to her. The I had to hurry up after our call and call back the district lady who was gonna put liv on the sdc teachs list and tell her to WAIT I need time to think about it... Talk with dh etc...Awww and heres the kicker too as liuvs teacher was reading me this letter over the phone she had this sing songy well you know i think she should be in the sdc class I've been telling you that fully including her is a mistake...

I am sooo tired not sure bout typos etc. Had top share my nightmare day....

 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
218    Thursday, 29 May 2003 - 01:54:33am
PAT.... LOLOL to the five ft fence...we have had both ..the chain link four footer and the six ft stockade kind. (which is what we have now) I have found that Chase must have some kind of ape genes in him as he can climb that six foot fence like a monkey using his toes like you have never seen them used, LOL!
And he has also discovered that it works to dig your way under ( I bet the look on my face finding him crawling under was priceless!) so never fear...as John John gets a bit older...LOLOL, he will invent ways to escape :-) It just gets better and better every day. I try to look at it as a learning expirence, LOL it keeps his brain working over time daily :-D and it teaches me it was a good thing I quit smoking a few years ago so I can keep up with him LOLOL!!! I wish I had started a journal a long time ago, if I had known how exciting this child would make life..I would have!!!
Maria.... I am not even discussing this silly notion you have about not coming to chicago.... if I cna make it broke and all ...(this wedding was terribly expensive) then you and Vin and family can make it :-D
I'll just cry to Vin ;-D I sure hope we end up with alot of families new to uno in Chicago with us all. Please everyone wihtin traveling distance try to come, even if for a day or two, some of us are driving for hours and hours to make it. You wil be amazed at the instant connection we all have and become family for life, it is as if we always knew one another as son as we meet. There is no strange ackwardness that you feels at times meeting new people or families, we all have a bond, a connection to one another. And I sure wish my child wasnt always the naughtiest one there, any takers on that challenge????? LOLOL, huggs and love to you all, Robin
PS CHRISTINE... I was going to email you tonight but I havent been home long and need to make a few calls and fall (or collapse into bed ) so I will email you tomorrow ok?
take care all
 
Name:  Maria    Email:   
Child:  Steven
Comment:
217    Wednesday, 28 May 2003 - 11:49:46pm
Hi guys , boy i sure miss you all , i go into chat and not a person is in there. Well we haven't started building yet , but i'm already getting stressed out . So much going on this coming month !!!!! Susan i'm so happy to see you posting , hope you are doing great , i miss you and the kids , tell them i said hi and Terry too . Robin love reading Chase stories , Annie M and Kristi , miss you guys too , i never catch anyone on . Annie hope your move is working out good !Well hope everyone is doing good ,miss you all so much , and boy i will be very envious the week you guys get together ,i will be crying for sure .Hope all the pregos are doing good , take care everyone and hope to see you in chat, you are all in my thoughts and prayers , MARIA
 
Name:  Pat    Email:   
Child:  John-John
Comment:
216    Wednesday, 28 May 2003 - 08:24:17pm
Robin
My dh John & I are putting up a fence to help contain John-John. First we talked about a 4 ft fence, then I said if he's like Chase...LOL (I read some of these letters to my dh and Chase's stories are great) Is your hair you totally white yet??? We've decided on a 5 ft one. John-John is 3yr10mth and in 4T so you know how tall he is. At least the fence will give me an extra 30 seconds not watching him. LOL Of course, I will have to wait until it stops RAINING to put it in. I live N of Phila. Thanks for the stories, they almost make me feel good as my son runs down to Cowpath Rd.(very busy st.) Love that boy:^O
 
Name:  sharyn    Email:   
Child:  Kim
Comment:
215    Wednesday, 28 May 2003 - 08:05:37pm
Thanks grandma joan
 
Name:  gramma joan    Email:   
Child:  granddaughter Zoë ( 4 1/2)
Comment:
214    Wednesday, 28 May 2003 - 06:47:34pm
Sharyn - don't be afraid to speak up!
I recently attended the Canadian National Conference and a wonderful speaker named Norman Kunz spoke exactly about your concerns.
Kids don't learn that much in a segregated classroom.
It violates comman sense when there is no motivation.
Segreation, he suggests, is an a convenience for administration...it's "easier".
What should be in play is what's BEST not what's easiest.
More emphasis should be placed on achievement and mastery. Point out contradtions we encouter (I.E.P.'s are often replete with bias.
Go on the offensive.
Emphasis should be on a far bigger issue - "belonging"
Inclusion is about belonging.
People do their best when they feel like they belong.
Self esteem can only come out of a sense of belonging - when we feel "value"
Good luck tomorrow!
PS - everyone should have the opportunity to hear Mr. Kunz speak ! You will certainly come away with a feeling of what people with disabilities encounter!
Hugs
gramma joan
 
Name:  Sharyn    Email:   
Child:  Kim
Comment:
213    Wednesday, 28 May 2003 - 06:25:38pm
We need all the prayers we can get. We are going to hearing tomorrow-advisory hearing Kim is going to middle school in September and the class has three gitls and three boys and the three girls are severly handicapped and non verbal and I think Kim needs peers like her so we have spent all of time and money Now its up to me to present this to the hearing officer lets pray that I dont break down It sounds selfish but the three boys in the class are below her level also and it wouldnt be a challenge for Kim Sharyn
 
Name:  Tammy    Email:   
Child:  Lewis the Menace
Comment:
212    Wednesday, 28 May 2003 - 12:04:57pm
Hello again my Long lost friends...
It feels like agae since I have been to visit...even though I think it is only a week... but a week is a long time in Uno Land!!
So far my Prac is going well.. I have done lots of cleaning up, washing paintbrushes, wiping desks, gluing, cutting, sorting, and have become intimate friends with the photocopier!! I have also had some good opportunities to work with the children. I have been taking the "lower end" group for maths lessons. This group consists of a child with Autism, a child with a Chromosomal Disorder (Not DS but similar)and 2 children who rarely attend school because of lack of encouragement from family (if you get what I mean). They are a good group to work with and can be a lot of fun. The rest of the class is a challenge but I am loving it.
Lewis has adapted well to Daycare, and doesnt seem to be stressing at all. First day he was happy to wave ByeBye to me, but when I went to pick him up at the end of the day he gripped me like a Python!! and wouldnt let go. Second day he was fine, but day 3 he was a bit reluctant to let me go...didnt cry or perform...just wouldnt let go of my trouser leg!! But the attention seeking when we get home is almost unbearable!! LOL...
I think I might keep him in daycare for one morning a week after this...then I can have a free morning and it will be good for him too.
Well... better be going..I have assignments to finish and logbooks to write in.... work never ends...

Until next time...

Stay Happy.... Huggles Tammy.
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
211    Wednesday, 28 May 2003 - 11:14:36am
Christine... I just saw your post.... welcome to my world :-D I am mom to the notoriously naughty chase who has ADHD as his primary disability followed by DS. I am on my way out to catch this child who thinks to elude me so early this morning (little $hit) and then off to work and school but I wil email you later today ok?
WELCOME! Robin
 
Name:  Robin    Email:   
Child:  Chase/10
Comment:
210    Wednesday, 28 May 2003 - 11:11:42am
As I watch this child of mine (who btw snuck outside before it is time to leave for school and is trying to hide from me and thinks I know not) struggle to do the things this morning his brother can do so easily and started to feel sad for both him and myself.... I remind myself...
he does not do alot of things his peers both DS and NON DS can do BUT.....he can do some things no one else can ever match- like this morning, this oh so lovable naughty stinker of mine climbed into my bed at 5 am and took my sleepy face in both his hands, kissed me smack on the lips and said "oh I love you so much and I marry you mom" Now I ask you..how can it get any better? :-)
Good morning unoland..love to you all,
Robin :-)
 
Name:  Christine    Email:   
Child:  Alex age 5
Comment:
209    Wednesday, 28 May 2003 - 03:49:16am
Hi all! I've visited this site, quite a few times and think its really nice. I was hoping to meet another parent that might be in the same situation I am in right now. Alex was recently diagnosed with ADHD, and I've been told that only 3% of the Down Syndrome population are ADHD. Is there another family out there that happens to have a child with Down Syndrome and ADHD? Please e-mail me. Thanks. Christine
 
Name:  jackie    Email:   
Child:  justin
Comment:
208    Wednesday, 28 May 2003 - 01:39:00am
Ok Robin go and check your e-mail. Promise it will bring sunshine your way ok it will at least brighten up your day........hugs
 
Name:  Susan    Email:   
Child:  Emily, age 11
Comment:
207    Tuesday, 27 May 2003 - 11:55:01pm
Hi there Uno Mas! HAPPY BIRTHDAY to Haley, Annie M, Steven, and anyone I missed in the past week or so. I hope you all had a GREAT birthday! Did everyone have a good Memorial Day? We thought and thought about something FUN and not too expensive to do. I really really wanted (and needed) some SUN, so I checked the internet weather listings and we decided to go to Kentucky Kingdom (an amusement park in Louisville). Had a great trip there! Emily amazed me in the car by asking if we could have a spelling bee. For the next hour and a half, she surprised me by spelling almost all the words she studied this year in school. It was so sweet to see her so excited about it, and trying to hard to get them all right. We got up the next morning to go to the amusement park and it was POURING down rain, and the sky was DARK gray. We convinced the kids that it didn't look like it was going to stop. So......sigh, we headed back to Nashville and shopped and went to Olive Garden. There was no more sun in TN than there was in Kentucky, but we had a good day anyway. I'm SO ready for summer!
~
Have a FANTASTIC week!!!!
Susan
 
Name:  Annie S    Email:   
Child:  Sonny8
Comment:
206    Tuesday, 27 May 2003 - 11:33:27pm
Hi all Thanks so much for thinking of me...I have a job until the 1st of July then Iam home for the summer..been looking nothing much coming up..but going to take my time..hopefully something better will come of this...I wish I could go to Chicago this year but do need to work up until July and won't have any time off until then boo hoo...but will be thinking of all of you...

Talking about Micky d's Sonny is so bad about not coming out so we hardly ever go in unless Dad is with us then he will listen...

Lorena so good to see you post ...hugs to all

Annie M Happy late Birthday...give Mikey hugs from us...
Robin my friend thanks for the offer...
Love ya all Annie S
 
Name:  Maria    Email:   
Child:  Isabella - 12 mos
Comment:
205    Tuesday, 27 May 2003 - 06:46:44pm
My beautiful, darling, most precious baby has a mean streak! She is starting to pinch and scratch, AND she does this thing where it's like she is trying to fit her tiny hands around my throat, and she tries to squeeze. Like she is trying to choke me. I don't think that is normal, and I'm not real sure where she is picking it up. THis is my one and only baby, and I need advise on how to break these little habits before she gets older and it gets worse. I mean she laughs(sort of) like a mad child when she does it. I have tried telling her no and showing her "gentle", but no luck! She will also grab my hands and like try to twist my fingers off! She is only a bebe, but she is VERY strong. I think that my neck is going to be a permanent scratching post for her! I hope all is well for all of you! Please help!! LOL
 
Name:  steff    Email:   
Child:  olivia(5)
Comment:
204    Tuesday, 27 May 2003 - 05:09:00pm
LOL Julie to Jordan...ROBIN Chases mom has had to climb up and get Chase out BUTT NEKED!!!LOLOLOL... He just stripped in the tubes..LOL. Sorry Robin had to share...Anyhow Liv has been banned from Mickey d's cause we are all,starting last week. EATING healthy. SO..OH GOSH IT WAS AWFUUL.I took the kids to the store with me last week to shop for healthy foods they will eat. BOY was that a toughie. I had them pick out their own food from the healthy choices I gave em and although they PROTESTED fiercely they are eating good healthy food.Olivia eats healthy but she wants to eat ALL DAY. I swear to you after she eats she puts her dishes in the sink walks out of the kitchen(and then I gate and lock the kitchen up., she sits down ,rubs her belly and says very dramatically I SOOOOOOOOO hungry..Ugggg

Well I am outta here I have as babysitter for Olivia I'll explauin later when I have a moment my son and his classmate get out early and i am gonna lhelp em with homework send em out to play take his classmate home and drive Kyle to grannys .He's gonna stay there till time for bed and Liv will be with the babysitter from 3-7 30 tonight.Cause if I didn't get a break I thiink I mighta lost my top today....SO I am hittin the beach immediately after I drop Kyle off and layin in the sand and studying. I CAN'T WAIT!!!!!!!!

CC.. Yes Liv will have a one on one. I like her the teach's like her and she is VERY GOOD and most importantly she shares my philosophy of helping when necessary otherwise help everyone and DO NOT FOLLOW her around. Let her be and be there when she needs to be and only then.I watched her with a child in Kyles kindy class and lemme tell you because of her this little girl got to be sooo independent in kindy. She is a drug baby who had lots of physical probs. she had been catered to her entire life and her foster parents had in my opinion had cheated her out of learning to be independent. AND she was SPOILED ..OH MAN. By the end of the year this child was independent and OHHHHHHH SOOOO proud of herself. Was one of the most amazing transformations i have ever seen.I volunteered in Kyles class and in computer lab so I got to see her in action. SO that's who we are requesting on Livs iep.ALTHOUGH the T.A.(the one liv says is MEAN) told me friday,I don't know how you are gonna pull off getting Liv and aide.we applied for 2 kids to get em and were denied. miss negativity. I don't think they are gonna make this easy for me BUt she will get her I am bound and determined... Well gotta git. BYE
 
Name:  jackie    Email:   
Child:  justin almost 3
Comment:
203    Tuesday, 27 May 2003 - 02:14:37pm
LOL Cathy you are just lucky she wears the same size as Ashley or there would have been more wish there were more for the Princess but I forgot I had a garage sale and got rid of most of those:(. Just to let you know I brought back some of your weather with us and it's gorgeous outside hope Robin got her share that I sprinkled over Saginaw last night as we drove by lol. Sorry again it took us sooooo long to get there but the traffic at this end was terrible and then you neglected to fill me in on the ORANGE BARRELLS on your side lol. Oh and for Chucks new toy he took it to his buddys' house and they Tim Taylored it ugggggggh!!!!!!.
Robin to get to Manistique hit 75 alllllll the way up lol west on 2 alllllll the way around Lake Michigan alright not allll the way around it but close to it well at least that is what it felt like with 3 kids in the back seat lol. Ok have to go unpack now and hope everyone enjoyed there long weekend.
 
Name:  Kristi    Email:   
Child:  Cody (8yrs.)
Comment:
202    Tuesday, 27 May 2003 - 12:23:50pm
HAPPY BELATED BIRTHDAY ANNIE M. AND STEVEN!!
Sorry so late!
Happy birthday to all this month!
Hugs,
Kristi
 
Name:  julie    Email:   
Child:  Jordan (5)
Comment:
201    Monday, 26 May 2003 - 11:40:47pm
STEFF - I had to reply to your post of last Thurs 22nd.Jordan loves McDonalds(what kid doesn't?), although I usually go through the drive thru because of the tunnels and the play equipment. It is only when I'm in an exceptionally good mood, that I will park and go in. We too have the same problem with getting him down. It is only with the promise of nuggets that he will come down-sometimes-other times I've had to do the tunnel chase as well.
It's taken me 20 mins to catch up on everyone's stories. Hope all is well with everyone.
At the moment both Jordan and I have chest infections