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May - June 2005

 

 
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141 of 141

Name:  pat gibson    Email:   
Child:  Cory
Comment:
141   Thursday, 30 June 2005 - 04:26:07am
trying to reach Mr. Noe father of Katie in Wadsworth
Ohio.
We have moved to Wadsworth and would like to know
if the High School has a good MH program. Thanks
 
Name:  Cathy    Email:   
Child:  Katie, 4
Comment:
140   Wednesday, 29 June 2005 - 11:00:41pm
Hi Leslee and Drew: Welcome. Katie is on her third set of tubes (the last pair are T-Tubes and are "anchored"). She never had ear infections, but did have a build up of fluid. Her ENT said it was very common in DS. I will say that twice in the last week, her ST has commented on well she articulates and I have to assume that the tubes and having her tonsils and adenoids out are helping.
~
Hi Maria. Missing you!
 
Name:  Maria    Email:   
Child:  Steven
Comment:
139   Tuesday, 28 June 2005 - 11:26:31pm
Hi guys , its great to be able to get into the message board again , so glad to see everybody posting , Linda Steven is doing fine , thanks for asking , glad to see everybody in your family is fine . Kathleen just wanted to let you know that Steven still pees himself sometimes .He had at the most three accidents during the whole school year but now all of a sudden he is home wetting himself 3 times a day , grrr , i really believe he is being lazy and does not care too much about it. well this may sound mean but i fnally got fed up and gave him a spanking, just a couple on the bum .He has been better i think in Stevens case he is just too lazy to bother, like someone else wrote they rather play or whatever than to make the effort.I sure miss everyone i went back pages on the mb to see who has been posting, so good to see you all.Glad everyone is still here .Does anybody go to chat anymore?Welcome to all the new families ,i see quiet a few , you will love this site its been great for my family and for my well being , lots of hugs take care , hope to see you all in chat . Hugs , MARIA
 
Name:  laurie    Email:   
Comment:
138   Tuesday, 28 June 2005 - 05:40:17pm
HI Leslee & Drew!
my daughter had her first set of tubes when she was exactly 10 months old. She had never had an ear infection up until that point, but did have chronic fluid behind both ear drums.
I was very nervous about the whole procedure..mostly the anesthesia.
It went fine and went really quickly.
the only thing I will warn you about is that some babies and younger children get REALLY cranky when coming out of anesthesia. Meghan was practically inconsolable for about 1/2 hour or more.
They wouldn't let her leave until she drank 4 oz of fluids, I think...so check if you need to bring Drew's favorite along. Meghan wouldn't take ANYTHING so they got tired of hearing her crying and sent us home, LOL!
I expected to see a dramatic change in her right away but to be honest we didnt see much. I don't regret it or doubt that we did the right thing because with out tubes, at times - Meghan has had recorded hearing loss and I don't know where she would be at this point without them.
She's now 4 1/2 and has a really great vocabulary for her age. She had her 2nd set of tubes this past December as well.
best of luck - and looking forward to hearing more about you & Drew.
laurie - mom to MM ( aka Meghan) and Matthew
 
Name:  Leslee    Email:   
Child:  Drew
Comment:
137   Tuesday, 28 June 2005 - 04:27:57am
Hi everyone. I have yet to post on any message boards but I have thoroughly enjoyed the support I have been given from reading everything. My almost 1 year old is getting tubes in her ears on July 8. She has yet to have an ear infection but due to the tiny ear canals, and small everything, the ENT suggested we go ahead and get tubes to help her speech and language development. I was just curious to hear what I should expect with the procedure and if tubes have helped your children. Thanks
 
Name:  Laurie    Email:   
Child:  MM
Comment:
136   Saturday, 25 June 2005 - 00:57:21am
Renee - just wanted to wish you guys good luck and let you know Lauren is in my thoughts and prayers - I hope everything works out for the best and that healing can begin for all of you. Many, many hugs - laurie
 
Name:  Renee A.    Email:   
Child:  LAUREN
Comment:
135   Friday, 24 June 2005 - 04:56:27am
Susan
That would be great. This is HUGE for us. Lauren is still suffering. She is scared to sleep at night. Still has potty issues...her behavior is so aggressive. We did find someone to help her out so keep her in your prayers.
One day at a time
 
Name:  devorah sirota    Email:   
Child:  chaya sirota
Comment:
134   Friday, 24 June 2005 - 02:40:46am
Hi! I have not written for a while... I am the mother of the most adorable 2 year old down syndrome girl who HATES to eat. We still are fighting at every meal...we are taking her to a feeding disorder clinic in Petterson, NJ..hopefully that will help.. On another note...Has anyone heard of cranial osteopathy (I think that's the spelling)or try it. My daughter has had ear and sinus infections since January..the ENT just put her on Augmentin e.x for a month twice daily...she has been on amoxicilin 7 times. someone suggested we try cranial osteopathy to clear sinuses>>.any opinions on this would be helpful...
 
Name:  Susan  
Child:  Emily
Comment:
133   Friday, 24 June 2005 - 02:37:18am
Renee~ Good to hear from you. Do you want me to post about this on the BB until you can get back in there? Some people have had problems with re-registering for the BB, but mostly it has been people who have an AOL addy. If you do, just get a Yahoo addy and then sign up. Keep us informed!
Susan
 
Name:  Robin Shrake    Email:   
Child:  Nicholas
Comment:
132   Thursday, 23 June 2005 - 07:11:25pm
Its so infrequent I get to access the computer, but when I have had questions for all of you, you have been so helpful.
Does anyone know of or have a website that may give some insight to States that are best to live in (have great services) for children with disabilities? We are looking to move from CA and were just wondering. Thanks Robin Shrake son Nicholas 4 DS, Sarah 9
joynme2@juno.com
 
Name:  Renee A.    Email:   
Child:  LAUREN
Comment:
131   Thursday, 23 June 2005 - 03:07:35pm
I tried to log into the BB but I can't so I came here. I wanted to let you know that the judge has given us the go for our suit against the people responsible for hurting Lauren. This is what we have been waiting on. Thank you all for your support. Please keep us in your prayers. This has been the hardest thing I have even gone through.
Love
Renee
 
Name:  Linda    Email:   
Child:  Adam 10 adorable yrs. old
Comment:
130   Wednesday, 22 June 2005 - 04:59:27am
Hi Everyone! So many posts & so little time! I miss everyone here! Its really good to be back posting -- Adam's last day of school was today so I hope to have more time now. (HA HA! hat am I thinking??!)

Robin - sorry to hear about your Dad - :( you & your family are in my thoughts & prayers.... It's so hard to see our parents get sick..... So sorry for what you are going through -- I have been there - so feel free to e-mail-cry on my shoulder.....

Hey Susan, Steff, & Kathleen!! Glad to see our "old" posters are still here! Maria - Glad to see you! How's Stevie doing??! -- I haven't been on here much either.... As for the BB - I could read, but had to resubmit my name to post...--- When I tried to sign in as Linda it told me that name was already taken :( -- so I had to rename myself LindaAdamsMom. Maybe you just need to re-register?

Kathleen -- the Messy pants thing - Hmmmm - that's a tough one -- I usually have to remind Adam to use the bathroom - and if I don't he will wet his pants if he is too busy playing... How about having Rhienne go to the bathroom before he starts playing - and then telling hime when the timer goes off he has to use the bathroom again & after that he can go back to playing -- so depending on the activity & what he did before he started - you could set the timer for like an hour or something -- A lot of thimes Adam will respond better to something other than my just telling him - ie an extra visual/ audio aide. Heck I even tell him the cat/ dog wants him to go potty -- and he will still buy into it!!! (course I force the cat/ dog to join him in the bathroom! They aren't too thrilled with that - but hey - they get a treat afterwards!) -- so --- keep trying different things - you'll find something that'll work! - Robin's idea sounded good too --- messy --- but I bet it worked fast!


Barbara - Welcome!!! - this is a wonderful aite - hopefully someone here can help.... The only thing I can say is that maybe she has heard other kids say these words & she thinks it's "cool" -- I am thinking she probably doesn't know their meaning.... Anyway, Adam will sometimes say things that are not appropriate -- not necessarily swear words but something like "She's so sexy!!" So I tell him that those words are not nice - that they aren't appropriate for the situation (Ex. - Calling his teacher "sexy" or "hot"!) -- He has heard these words used by classmates describing movie stars - like Hillary Duff. So I tell him when we are at home with family he can sometimes use those words - but not when we are out in public - like at school or church..... If he uses them inappropriately, then I remind him & if he persists then I tell him he will have a consequence - i.e. no playstation. If he keeps it up my last resort is to get out a bit of soap -- but I think I have only had to get that out once.... I know I am rambling - but maybe it will help......

OK - off to bed -- it is late & I have 1 child left in school - Aimee is taking finals this week.....

Hugs & prayers to all who need them!
Linda
 
Name:  Susan  
Child:  Emily
Comment:
129   Wednesday, 22 June 2005 - 00:19:28am
Barbara~
WELCOME TO UNO MAS!!!!!! I'm glad you found us! If you don't mind, please post your same message on the Bulletin Board....posts always seem to get a lot more attention there! I think you'll get a lot more answers. Sounds like a tough one! My daughter is nearly 14, and says an occasional cuss word......even though it's not often, it's really upsetting because we don't use them at all! I don't have any GOOD suggestions because what we have tried hasn't really worked! I'm guessing MB will know what to do!
Again.......welcome!
Susan
 
Name:  Maria    Email:   
Child:  Steven
Comment:
128   Tuesday, 21 June 2005 - 11:12:06pm
Hi all , hope everybody is doing well and kids are all healthy. I haven't posted for a while but my comp is running pretty good , lets hope it lasts. Sure miss everyone . The only thing now is i can't read the posts on the message board for some reason . If anybody has suggestions please e-mail me , thanks hope you are all doing great , lots of hugs , MARIA
 
Name:  Barbara    Email:   
Child:  Mari
Comment:
127   Tuesday, 21 June 2005 - 08:06:12pm
Hi there--
This is my first time ever. But I am desperate and I hope that someone out there can help me. I have a daughter Mari, 15 years old. She constantly says swear words! No matter what we do, she doesn't stop. We have recently started her on an anti-depressant, and that helps a little, but not enough. She does the self-talk all the time and most of the time it is cuss words. We don't say the things she says, so it is not like she is echoing what she hears, I would never say most of the words she says! I have researched the Internet and cannot find anything relating to this problem. I am beginning to think that she has Tourette's or something. Please help!.
 
Name:  kathleen morton    Email:   
Child:  Rhienne, 9
Comment:
126   Tuesday, 21 June 2005 - 11:02:11am
Robin, so sorry to hear about your dad. I certainly will be praying for him and you all too.
 
Name:  steff    Email:   
Child:  Olivia 7 yrs
Comment:
125   Tuesday, 21 June 2005 - 05:29:34am
Hi!!!!!

Robin I am sooo glad to see you have posted. HUG HUGS HUGS and more HUGS!!!!! Keep the faith girl... We have been praying for your dad since we heard and Liv gave him her usual HEY MAN instead of amen par usual... Jeffs out girl and just fine just got to get those ammonia levels down ... He gets a tad (underexagerrating) GOOFY when they are like that. Kinda like someone who walks in circles all day getting nothing done just walking and walking and walking... All his parts are working again now so thats all we care about. THANKS for asking.... So girl what is up with your dad???? any more news? Does he live closeby????? I have got to tremember before 10 pm my time to call you. I always remember so late...Tomorrow I will write me a note...Better yet now...LOL.....

Kristi... Hi I posted to you on the bulletin board. There is a site which I believe is EXACTLY what you are looking for. It's called
www.bravekids.org
You can type in your address in Murrieta and then ask for what you want and SHABLAM you'll get lots of resources in the area. Everything from camp, respite, afterschool activities,medical specialties,ds specialists, anything under the sun. Also those who are not in Cali they have expanded to other states so check it out. A lady from my birthplace of Santa Monica CA. stated this website and it has just BLOOMED into such a wonderful nonprofit org. See one person can make a difference.Check it out.

Okay check this out. Olivia went to the dentist today. She needs 5 teeth pulled cause she has ground those particular 5 baby teeth down to the gumline and pressed down grinding those teeth that her permananet ones weren't coming out cause they've beenground in so hard. 2 day I nervously took her to the dentist to have 2 teeth pulled. Now mind you she never has needed any work before. So she goes in by herself everytime. Well this time the nurse says okay why don't you stay here and we'll try without you. (I know I would've made it MUCH WORSE). So guess what my girl had her 2 injections in her mouth and her 2 front teeth(top) pulled and was a SUPERB patient. Proud mommy moment. Didn't even cry. Told everyone how BRAVE she was as she did walk around for the rest of the day with the gauze in the middle of her mouth as she bit on it. The funny thing was as soon as someone looked at her with her gauze(which she refused to remove)she'd make a sad face and tell em after perking up. I was SOOOO BRAVE!!!!! Needless to say this mommy took her to the salvation army and we bought a carload of books went to the drugstore and bought a makeup kit and she got new tennies and a cool dora cap from payless. Okay I spoiled her but she was soo amazing. She coulda taught the other 10 or so kids in there a thing or 2. :)

4 more days left of school..... Then it's finally summertime!!!!! YAY!!!!!
 
Name:  Alice  
Child:  Luke (5)
Comment:
124   Monday, 20 June 2005 - 09:44:39pm
Robin, sending lots of prayers on your dad's way. Keeping you in my prayers too.
Hugs,
Alla
 
Name:  Jessie    Email:   
Child:  Jason - 12
Comment:
123   Monday, 20 June 2005 - 06:52:56pm
Robin - I'm so sorry about your dad and yes he will be in our prayers so that he does not suffer. I can't even imagine what you are going through right now. I also wish you could post on the BB, sounds like all of your old pals on there miss you!
That idea you had with Chase and the underpants thing sounds like a great idea (gross, but good idea!). Once in a while Jason will pull something like that and I too think it's out of laziness or he doesn't want to stop what he is doing. I'll have to run this idea past his dad to see if he'll go along with it! :)
Keep us posted and we will keep you in our thoughts.
Jessie
 
Name:  Robin    Email:   
Child:  Chase/12
Comment:
122   Monday, 20 June 2005 - 01:34:13pm
Hi everyone,
Thank you for the thoguths and prayers, they are much needed. It has become a day by day thing with my Dad. Laurie, I will email you, thank you.
I am very worried about Steff...has anyone heard from her? Last I knew she was terribly worried about Jeff who was in the hospital is very critical condition. Does any one know if he is okay? He has been in my prayers as has she.
Jesse.... I will keep you posted and let you know if we can make a get together, I would sure love it but life has become a wait and see every day. They ar giving my Dad just weeks but as of last night I just dont see how he can make another week. I am asking everyone to pray that no matter what happens he just doesnt continue to suffer. He has finally admitted he is in pain and is taking medication to help control that. He is only awake a few moments at a time.
Kathleen...do not feel alone. I also cant get into the BB to post, and it has said I am no longer Robin. So I think we are not wanted:-D (kidding)
I am sorry you have had to step backwards on this messy pants thing. I am going to tell you what I did with Chase but you may think I am a ogre :-)
I knew Chase was just being lazy because it was nice out now and he was just busy and didnt want to take the time to stop and go. So I made him wash his own dirty unders out everytime he messed them, be it urine or poo. He hated it and so did I, all the crying and fussing,(and it was so messy) but I stuck with it and it stopped very soon once he had to clean up. I know you said Rhienne may not be knowing so that may be a different thing altogether. Hugs to you guys btw.
Okay bad children fighting over the new kitten, time to give kitten and me a much needed reprieve from the yelling,
hugs and love to all,
Robin
 
Name:  KATHLEEN    Email:   
Child:  Rhienne, 9
Comment:
121   Monday, 20 June 2005 - 04:04:09am
HEY! How come my activation key # is not valid? I WANNA POST.
 
Name:  kathleen    Email:   
Child:  Rhienne, 9
Comment:
120   Monday, 20 June 2005 - 03:52:25am
HHHHHEEEEEELLLLLLLPPPPPP!!!!. Oh, well, first how is everybody? Long time no post and all. I am once again a guest on the bulletin board. Sigh. I guess it doesnt love me after all. Anyway, I have this huge problem these days with Rhienne. He was late getting toilet trained (came out of daytime pull-ups at 8 years old). He had done very well until the last few weeks or so. He is now soiling himself several days a week. It is always enough be obvious because of the odor, but never a "full load" which leads me to think that he is thinking that he has to pass gas. How do I help him to know the difference? Sooner or later, the summer camp ain't gonna tolerate it, ya know???
 
Name:  TriciaF    Email:   
Child:  Patrick
Comment:
119   Sunday, 19 June 2005 - 03:28:08pm
Kristi,
Sorry you are having trouble. A couple of things that might help some of us help you.....give us more info on where you are...remmeber this site is worldwide, are you in Murrieta, Ca? And what county? Also, for a post like this that needs and hopefully receives lots of responses to a specific question....try posting it first on the bulletin board here at unomas, rather than the message board. The message board is read by less people and the answers would tend to get lost in with other stuff. On the bulletin board...you would see all the responses to your inquiry together. I'll see if I can copy your question over to the bulletin board. Good luck and welcome!
 
Name:  Kristi    Email:   
Child:  Cassidy
Comment:
118   Sunday, 19 June 2005 - 03:57:21am
Hi this is Kristi again, and i also was wondering if there were any other mothers in murrieta area with children around 5 that are just looking to go get coffee sometime, or take the kids to a park. I also wanted to know if anyone has any information on activities such as soccer, or any fun stimulating outside of school activities for special needs children...Thank you so much, and have a good night..
 
Name:  Kristi    Email:   
Child:  Cassidy
Comment:
117   Sunday, 19 June 2005 - 03:53:29am
My name is Kristi,and i live in murrieta. I am a single mother of a 5 year old boy, and i am desperatly looking for a childcare in my area that is appropriate for my son with down syndrome.I tried kindercare, but it was horrible, no one knew anything about sign language, as well as special needs. If anybody has any recomendations, i would so greatly appreciate it...
 
Name:  Jessie    Email:   
Child:  Jason, 12
Comment:
116   Wednesday, 15 June 2005 - 05:09:13pm
Jeanne - I'm with you on the 12 year old boy attitude thing. I closely follow MB's advice that she gives on this board - be strong, be persistant, stand your ground and take back control of the situation!! LOL I know that Jason knows what we are talking about, so if I threaten him with something (taking a toy away, making him get out of the bathtub even if he's only been in for 5 minutes), then I follow through if he keeps acting up so he understands there are consequences for his actions. With that being said, he is 12, going through puberty and will push his limits like any other kid. I guess we just need to be there to set the ground rules and enforce them! Good luck!
Robin - I am so sorry to hear about your dad. You will be in my prayers. Going through this you probably won't be up for a gathering this summer, but keep us posted if you still want to. Sounds like we are still shooting for a Labor Day gathering. Maybe once we get over the 4th of July stuff and everyone does their Louisville trip, we can start trying to plan for Labor Day.
Jessie
 
Name:  laurie    Email:   
Child:  MM
Comment:
115   Tuesday, 14 June 2005 - 11:20:49am
Robin - just read your post...I am so sorry about your dad. Please know he is in my thoughts and prayers. It might not matter much - but do you know where the cancer originated? If it is pancreatic in origin, I have, by necesssity, become an expert at the different chemos & stuff involved - so if you need any help or have any questions, do not hesitate to email me (paperquilling@aol.com). just put that it's from you in the subject line. Again, many prayers going out. hugs, laurie
 
Name:  Cathy    Email:   
Child:  Katie, 4
Comment:
114   Monday, 13 June 2005 - 09:01:28pm
Hi there Robin Louise, you have been missed! I am up for a trip to the cabin.. but I have an even better idea. Are you sitting down? How bout I send Katie to Auntie Robin's for some training? I mean.. you could teach her how to behave right? LOL.. Just plan a weekend and I will see what we can do. There are a couple weekends in July that we are busy, but after that we are pretty flexible.
~
Jackie, Hugs to my SIL, hope all is going well, do you think that dog you are training will be able to help keep Katie in line?
~
Steff, Prayers heading out to CA for you and your DH and family. You guys are always in our prayers.
~
TO everyone else... Happy summer and hope everyone has a wonderful time at all the get togethers and family vacations!
~
Hugs, Cathy
 
Name:  Robin    Email:   
Child:  Chase/12
Comment:
113   Monday, 13 June 2005 - 07:45:02pm
Steffy....I cant post at the BB but I can read it and I just saw your post about our big guy Jeff. Hugs and prayers for him. Did he have his surgery? I sure wish I was closer to you sweet girl so I could be of some help to you guys!!!! You stay strong for Jeff and Kyle and Liv but if you need to talk you know my number. I am here for you any time. My heart aches for you guys, it has been such a rough road. I will ask everyone to add Jeff to their prayers. One last thing, put your left arm around your right shoulder and your right arm around your left shoulder and give yourself a HUGE squeeze, it's a hug from me to you. Thinking of you Steffy, Robin
PS...I also saw your post about the party store :-D You did just fine, LOLOL!!!! You ROCK!!!! I understand the poor guy with a different culture thinking Livvie is adorable and wanting to give her cutsies.....:-D but that woman got a well needed lesson in why people need to MYOB (in my humble opinion, LOL)
 
Name:  Suzi    Email:   
Child:  Merideth 4 + 3 boyz
Comment:
112   Monday, 13 June 2005 - 07:25:10pm
Laura Williams: The person to talk to on this site would be Holly. Her son, Jake had the fusion surgery around 18mths of age. Perhaps she'll check in. If not we'll try hooking you up with her.
Suzi
 
Name:  Jackie    Email:   
Child:  Justin 5 yrs
Comment:
111   Monday, 13 June 2005 - 06:29:54pm
Yes Robin we will be making quite a few trips up to the cabin this summer instead of camping. We have decided to get another puppy, yes I know another one LOL but after watching Justin I think it's time we get one trained to help us out a little bit. So we contacted some breeders and have had generous offers, we will be getting another German Shepherd mid Sept or sooner if the trainer has anything to do with it. Since the waiting list for service/therapy dogs are soooooo long and costly we decided to get our own pup and have her trained, so we have a lady that will train the pup as a service and therapy dog and then we have a man that will train the dog for tracking. I'm so scared Justin is going to get away from us while camping or at the cabin. The breeders are up by Houghton Lake so it would be better if we just headed up there whenever we needed to pick our pup and visit:). The breeder has also offered us first pick of the females. So I will just let you guys know when we are heading up there, I know we are heading up there sometime this month towards the end to meet with the breeder and check out mom and dad before we totally commit. We miss you guys if you can't make it maybe the rest of us can meet by you in Frankenmuth for the day:)
 
Name:  Debi    Email:   
Child:  Gabe
Comment:
110   Monday, 13 June 2005 - 04:05:25pm
oh, and Robin~~~~HI!!!!!
I TOO am so glad that school is over and Gabe is overjoyed lol. I haven't missed my co workers ONE bit lol but the kids.. sigh I get so attached over one year with the ones I work with.
Post more updates re: Chase it's been too long!
 
Name:  Debi    Email:   
Child:  Gabe almost l4
Comment:
109   Monday, 13 June 2005 - 03:55:22pm
Jeanne.. Mom to Ben who is eleven
yes I have to agree it's probably behavior that is due to puberty. You can link on my email if you want or post on the BB (or both!) if you want to chat some more about this.
My daugter is now l6 (non DS) and Gabe... is in full bloom puberty so I gotta say it's a TOUGH age! WHAT was I thinking to have both of them as teens at the same time?!
 
Name:  Robin    Email:   
Child:  Chase/12
Comment:
108   Monday, 13 June 2005 - 03:30:21pm
Hi everyone.....it's been so busy and nuts around here I havent had a second to get on but with work and school done til August I can breathe again. Just think ...for those of us getting together again, it is just a few weeks away!!How many of us are meeting btw? Dave is looking forward to finally getting a chance to come with me this time.
Chase is doing okay...he has to have hernia surgery but we are waiting until we get back from the get together to schedule it. He had a heart echo to make sure things are still good there and we are waiting for those results.
My Dad has just been diagnosed with cancer, lungs, liver and pancreas. He started having symptoms just three short weeks ago and last week they told him he is loaded with cancer and he has gone downhill so fast! He starts chemo tomorrow.
So how is everyone's summer going so far? I wanted to post to the michiganders on the BB but once again I cant get on to post, someone changed my name! Anyways, I was wondering if there is stil a chance of meeting up yet this summer seeing as June is almost gone. This weekend I am full up but free after that except of course for our trip in July to meet up with everyone. Cathy, Jackie, Jesse, Laura?? What say yea?
I sw Annie M posted....OMG girl how the heck are you guys??? You have been really missed! Speaking of Annies....How is Annie S and Sonny, anyone know?
Okay, kids need watching...hugs to all
Robin
PS..... Steff, how are you guys? How is Jeff?
 
Name:  laurasnowbird    Email:   
Child:  Ethan, three years old!
Comment:
107   Monday, 13 June 2005 - 04:03:01am
Sorry, this wouldn't all fit, had to break it up!
HOWEVER, as I understand it, your "ex" has never had any legal custody of your daughter, is that right? I used to work for an attorney in Michigan, and checked out the Louisiana laws. They are very similar to Michigan's in that once a custodial relationship is established, it should only be overturned if there is a material change in circumstances. Most courts are very reluctant to change an established custodial environment. You really need to fight this!
From a Louisiana legal website:
"While "joint custody" is presumed to be in the best interest of the children, this legal presumption can be rebutted by either parent proving that sole custody is in the children's best interest (Louisiana Civil Code Articles 131 and 134)."
Keep in mind that this is in relation to a divorce proceeding. If you were never married, and he never had any legal custody and visitation, he is starting from ground zero. You, on the other hand, have an established custodial environment The court is supposed to consider the following things:
1. The relationship between each parent and the children.
2. The care or concern undertaken by each parent.
3. The current residence of the children and the overall effect of changing the residence.
4. The amount of time each parent can spend with the children.
5. The emotional and financial stability of each parent.
6. How each parent treats the other.
7. The expressed desires of the children (though the child is not allowed to decide, the court makes the final decision).
Be very careful that you don't come across as being completely unwilling to let your ex have visitation. He may be a jerk, but unfortunately he does have SOME right to see her. If he hasn't been a part of her life, I would ask that initial visitation be supervised, and in a place that she would feel comfortable.
Talk to an attorney, please! From what you are telling us, this is highly inappropriate, and there should be no question that you should prevail.
 
Name:  laurasnowbird    Email:   
Child:  Ethan, 42 months!
Comment:
106   Monday, 13 June 2005 - 04:02:01am
Cherie,
What is happening to you is a crime! There are several places to go for Pro Bono (free) attorneys, depending on what parish you live in. Here are a few:
Shreveport Bar Association Pro Bono Project (318) 221-2205
Serving the 1st Judicial District, Caddo Parish.
Southwest Louisiana Legal Services Society, Inc. (318) 436-3308
In Lake Charles serving 5 parishes.
Baton Rouge Bar Foundation Pro Bono Project (504) 344-4803
Serving East Baton Rouge parish.
Iberia Parish Pro Bono Project (318) 365-3800
Lafayette Parish Volunteer Lawyers Program(318) 237-4700
Kisatchie Legal Services Corp.
In Natchitoches serving the parishes of Catahoula, Concordia, DeSoto, Grant, LaSalle, Natchitoches, Red River, Sabine, and Winn. (318) 352-7220
New Orleans Pro Bono Project
In New Orleans serving the parishes of Jefferson, Orleans and St. Bernard. Coordinated with the New Orleans Legal Assistance Private Bar Involvement Project. (504) 581-4043
Volunteer Lawyers Project-Fourth Judicial District North Louisiana Legal Assistance Corporation
In Monroe serving the parishes of Caldwell, East Carroll, Franklin, Jackson, Lincoln, Madison, Morehouse, Ouachita, Richland, Tensas, Union, and West Carroll. (318) 325-3558
Central Louisiana Legal Services
In Alexandria serving the parishes of Vernon, Rapides, and Avoyelles. (318) 443-7281
Central Louisiana Pro Bono Project
In Alexandria serving the parishes of Avoyelles, Rapides, and Vernon. (318) 449-9778
 
Name:  TriciaF    Email:   
Child:  Patrick 5
Comment:
105   Sunday, 12 June 2005 - 09:11:51pm
Cherie,
I an sorry you are going through all this. I fail to see why a court would grant joint custody of a child with Ds where the father has had no experience with the diagnosis, involvement with the child or payment of support. Seems so dumb. He can't possibly know anything about therapies, development, speech, spec. ed, etc...etc...if he has never been involved. You certainly need a good attorney, one that has specialized in children with disabilities to help you understand your rights and the particular laws and procedures in your area to help you fight this order. I know laws differ, but in my state, in any custody fight, the court must appoint a guardian ad litem? to be impartial and represent and recommend to the court what is best for the child....not the parents involved. If he is suing for custody just to avoid payment....a good representative should be able to interview everyone and see the real picture and report it to the court. Also, from what I have read elsewhere, child support for a child with a disability does not necessarily stop at age 18, but may continue throughout the child's life. You might get a good referral for an attorney with experience in this area from other parents in your area involved in any parent-to-parent group, through a call to the BAR association in your state, through the ARC in your area, or maybe by finding lawyers that practice elder law and estate planning (they are the ones that usually also do special needs trusts) that have worked with attorneys in your area. Do not try to fight this alone and for sure....if you haven't already, document everything! An attorney is only as good as the information you give them....so you must keep good records.
Best of luck to you.
 
Name:  laurie    Email:   
Child:  MM
Comment:
104   Sunday, 12 June 2005 - 01:39:44pm
Cherie - that is horrible...contact an advocacy group in your area right away. Try the NDSS or NDSC. (www.ndss.org and www.ndsc.org)
Call them and explain your plight. they might be able to direct you to a lawyer who can help. DO you have documentation that this man never paid child support (was he ordered to do do legally)? Is his name on the birth certificate. Documentation of his refusal to recognize the child as his own? Get someone to intervene immediately. These people do not sound very nice, and I would worry my head off if my daughter was with them...what is his motivation after all this time? Just to cause YOU grief? Or love for his daughter. Find a court liason to supervise these visits of the father with your child...
Do you have family members who can validate what you have told us, to the courts? Get them together and have them write down what they have seen.
Best of luck - let us know what happens...my heart is breaking for you. laurie
 
Name:  Cherie    Email:   
Child:  Ryleigh 3years old
Comment:
103   Sunday, 12 June 2005 - 04:55:18am
Hello all. I don't know if anyone can help me but I am so desperate. My 3year old daughter has been in my care since her birth. Six weeks in NICU by her side, constant care by myself, her 21 year old brother and 18 year old sister. Her dad and I were never married, he did not want the child. I found out that he had a girlfriend the whole 6 years we were together. Anyway he never paid for any of my daughters care. To make a long story short. He has gotten married to the girlfriend (when my daughter was born this women kept calling me laughing at me and telling me I had a "retarded" child and other horrible things). I live in Louisiana and now her dad has filed for FULL custidy of my daughter. He filed in the little town he lives in a knows the judge. They are now telling me that she will have to go to his house one week and my house the next. This is so confusing to my DS daughther. She has only been with me,my son and daughter her whole life. I try to tell them that she can not handle the change so much each week. Her teachers told me she cries for me all day. Is the ANYONE out there that can tell me who i need to get to say how hard it is for this child with Down Syndrome to adapt. She is the light of my life. I am 43 years old and so sad she is having to go through this. How can a man that was not in her life come in and get her half the time, just so he does not have to pay child support. Someone please help me save my beautiful daughter. Thanks
 
Name:  Jeanne    Email:   
Child:  Ben age 11
Comment:
102   Sunday, 12 June 2005 - 00:50:39am
Hi! I am new to this board and wanted to ask if anyone else out there is experiencing pre-teen behavior? Ben is a great kid, but has been driving me crazy lately. He has been acting out like any typical 11 almost 12 year old. Plus his stubbornness is legendary. Tonight he wouldn't get into the tub for his bath and then didn't want to get out. I'm not sure how much was just didn't want to (normally he loves his bath) and how much was a control thing.
And he has been really mouthy lately. "NO WAY, MOM!" "SHUT UP!" "STOP IT NOW!"
ACK! I'm going nuts! I can't wait for day camp, but it isn't until July. Any ideas to help me stop this horrible behavior? Thanks!
 
Name:  Susan  
Child:  Emily, age 13
Comment:
101   Saturday, 11 June 2005 - 12:19:24pm
Laura~
My daughter is now almost 14. When she was 3, she had abnormal atlantoaxial instability Xrays and we were immediately sent to a neurosurgeon, who told me exactly the same thing.......he was ready to schedule surgery. It was such a scary thing for us, but I remember asking him about a 2nd opinion. He sent us to a big university hospital to another neurosurgeon, and I completely expected to be given the same warnings about not letting her do somersalts or play on the playground at preschool, and to be told she needed surgery right away. Instead, he said we should re-Xray her in 6 months. I was so unsure of what to do, considering that the 1st doc had discussed the risks of paralysis from even a minor fall, etc! Anyway,the next Xray was normal, and she has had 2 more since then that were also normal. I realize that every case is totally different, but we were so relieved that she did not have to go through the cervical fusion. It has been nearly 11 years since we were facing the possibility of surgery for her, and she has been very active with all sorts of sports, rough-housing with her brothers, etc since then. Have you gotten a 2nd opinion? From our experience, that made a huge difference.
Susan
 
Name:  Shannon  
Comment:
100   Saturday, 11 June 2005 - 06:30:26am
Found this site when my child was an infant and it was extremely helpful. Now that he is graduating from Kindergarten on Friday, I wanted to log on again and see how things had changed. I am so happy to see how many people are still being blessed by this terrific site!
 
Name:  Laura Williams    Email:   
Child:  Hayden
Comment:
099   Saturday, 11 June 2005 - 05:15:56am
Hello, I am new to this site and have a few questions. I have a 2 year old that just had x-rays for Atlantoaxial Instability. Unfortunately, they were abnormal. The Drs told us the instability was severe and they are now sending us to a neurosurgeon. Hayden is Very active and they told me to not let him climb, tumble, etc. He has an older brother and younger sister that he wrestles with. It is impossible for me to keep him from falling, climbing, or slowing down. They are saying he needs to have his C1 and C2 fused together. I am wondering if anyone has advice on how to keep him from injuring his neck OR has info on this surgery? I am very concerned.
Thanks,
Laura
 
Name:  Betty    Email:   
Child:  Nicholas (Nicky)
Comment:
098   Friday, 10 June 2005 - 08:47:47pm
I have just put up a webpage for Nicky. It gives some details of Nicky's first 4 years: his milestones in development and therapy. And how wonderful, sweet, angelic, etc. etc. he is. You people know! You all have one of these little angels!
 
Name:  Linda    Email:   
Child:  Adam 10 yrs old
Comment:
097   Wednesday, 8 June 2005 - 03:35:31am
Hi Alejandra -- and welcome to Uno Mas!!!!!!
What "A" told you is right -- and that is the same thing my Doctor told me -- He asked me "What are you going to do with the test results once you get them? - Would you choose to abort the pregnancy?" and I told him "No - whatever God gives me is what I will be blessed with." So he told me to NOT have the Amnio for that reason - as there is a risk of miscarriage & why risk it? I did NOT know or have any clue that Adam would be born with DS -- my ultra sound showed no evidence of it -- so my Doc & we as well, were pretty surprised when Adam was born. I was 38 when I delivered him tho - so I DID know I had a higher risk of having a DS child. -- He has been a wonderful blessing to our family --- there are soooooooo many people I would have NEVER EVER met if not for my sweet Adam. He is a character & keeps us laughing. I would recommend though that you get info on DS before your baby is born as there are some health issues that appear more frequently in people with DS. Some need attention at birth -- such as some heart defects and some issues with the colon. -- But your child may have none of these health problems. My son Adam was NOT born with any extra health issues. Adam will be 11 this Nov. and he will be going into 5th grade. He is in a typical classroom and with his aide and with some classroom modification and some additional resources he is doing quite well. He reads (loves it!) and is very interested in Social studies and Science and altho his Math is not as high level as that of typical 4th graders he does know how to add & subtract and multiply. He is just beginning to learn division. He tells time and is in the process of learning to count money and he is doing fractions. The best thing about him ,is that he is Adam, and there is no one else in the world that could replace him!
Good luck to you -- please keep us posted and we hope you'll come back often -- there are lots of posts on all sorts of topics on the Bulletin Board too - if you haven't looked there yet.
Take care!
Linda
 
Name:  Adrienne    Email:   
Child:  Russell and the girls
Comment:
096   Tuesday, 7 June 2005 - 03:15:38pm
Welcome Alejandra! First, congrats on your pregnancy!!! How exciting! Ok... there is a slight risk of misscarraige with an amnio. I had an amnio to confirm Russell was to have DS but that was just me. Would I do it again, no way! IF you can enjoy your pregnancy and wouldn't do anything different if the baby had DS.. then I say, why bother with the amnio... but if you are very concerned, nervous, whatever, then maybe think about it. But that is up to you and what you need to do for your own peace of mind. Enjoy the pregnancy and good luck whatever you decide!!!

A.
 
Name:  Alejandra Lopez    Email:   
Child:  due October 18th
Comment:
095   Tuesday, 7 June 2005 - 02:51:33pm
I was just told that my child will probably be born with DS. the ultrasound revelead a thick nuchal bend. I have the option of having Amniocentesis test. I am really confused. there is a risk that might cause a miscarriage is it worth it. or should I just wait til he is here in October... ????
 
Name:  Linda    Email:   
Child:  Adam 10 adorable yrs. old
Comment:
094   Thursday, 2 June 2005 - 03:53:37pm
Hi everyone - I know I haven't been here in about 6 months -- can you believe how time flies???! I miss you all! Things have just been crazy here -- my Dad is still not well --- that story for another time -- but at least he is in his own home still...

Steph - Hi Steph! - I saw you thought we were buried under snow -- LOL! - well almost - but it is alllllll gone now! :) And now we are buried in dandelions -- which actually are the mainstay of my flower gardens as they are sooooo overgrown - so I gotta get out there today & plant some REAL flowers! (Course my green thumb is not the greatest, so - they die & voila - dandelions show up again!!! Well, at least you can't say I didn't try!)

Also - I just saw the horrible damage from the mudslide in CA - Steph - how far away are you from there?? About 40 or 50 miles I think? I hope you, your family & friends are all OK.... Please let us know!

OK - looks like we are planning a trip to Cincinnatti (sp?) the first week of Aug (July 31 to Aug 5th or 6th I believe). Our daughter Kate (she's the middle child) is attending a syncronized iceskating camp that week at the University of Miami @ Ohio & so we are all going down -- She will be staying on campus but the rest of us will be at a hotel - We haven't reserved a room yet but you know hubby -- he wants a suite -- or at least 2 rooms that are adjoining --- the teenage girl in front of the mirror all day (that'd be Aimee) is a bit overwhelming for him --- so he needs SPACE!!
So - anyone else going then - anyone want to meet up with us?? - Let us know - we'll be there!

Adam is doing soooo well now in school -- I hate to see the school year end as every year he gets this BURST of learning energy & then - the school year ends! - He continues on in summer at a camp program -- but is mostly for keeping the routine & socialization rather than any kind of academic skills taught --- he will get speech over the summer - but that is the only service he'll get. Then in Sept he'll be in 5th Grade --- I can't stand it -- my baby's last year of elementary school --- it does go sooooooooo FAST!

Ok - gotta go but I will be back later - hopefully to be able to catch up a little - I only saw that the last poster was Susan -Hi Susan! - but I didn't even want to take time right now to read posts cuz then I know I would've run out of time to write! - take care!
hugs to all!
Linda
 
Name:  Susan  
Child:  Emily, age 13
Comment:
093   Monday, 30 May 2005 - 11:08:13am
Brooks~
Good to hear from you. It's been quite a while since we've heard about Marcel, and he is an absolute DOLL! I loved his website. Welcome to Uno Mas! We have several dads who post here, so jump in!
Susan
 
Name:  Brooks Voorhies    Email:   
Child:  Marcel
Comment:
092   Saturday, 28 May 2005 - 06:25:36pm
Hello everyone, I am new to this site. My ex-wife Lori use to come on here all the time, I am not sure if she still does or not. Anyways, I just want to say to all the new parents of a child with "up"-syndrome (there is nothing "down" about it), don't worry, you have a blessing that you may not know about yet. My son, Marcel is three (four in september) and he is nothing but a complete joy everyday. I use to get upset when I thought about how "hard" he would have it. Kids at school teasing him, missing out on alot of "normal" things that kids do, but that isn't the case. He is loved by everyone and he in turn loves them back. I could not imagine my life with out him. Sure there have been some tough times, in and out of the hospital, late nights, dissapointments, but guess what? That is parenting, there are always ups and downs, and Marcel is more up then "down". I am a single dad which can be rough some of the time, but I am lucky that me and his mom always put him first. If there is one thing to remember, it's always put your child first. I love him so much and he has gotten me through some rough times. So, don't worry, all that does is waste time, relish every moment you have with your child, some people aren't as lucky as us. One last thing, I have a website for my son, it is Marcelspage.com, feel free to check it out and don't forget to sign the guest book. Well, it's time to wake my baby boy up from his nap. Talk to you all later. God Bless.
Brooks
 
Name:  Connie    Email: