    
|
Uno Mas! Archives
This is a moderated
board, inappropriate comments will be removed.
|
 | |||
| Name: | laurie Email: | ||
| Child: | MM | ||
| Comment: |
also, if Trueman is getting occupational therapy, they may be able to give you some help. and check w/ your physical therapist to see if your son is positioned properly in his chair, etc...with ym daughter we had to prop her w/ rice bags, built up the foot rest in her high chair w/ a wood plank so her feet could sit on it, etc....my PT and ST worked together to help me. if they say your son is not eligible for speech yet....FIGHT FOR IT! Your son may have sensory or other issues that are interfering w/ his feeding - good luck, and hope this helps some. laurie | ||
| |||
| Name: | pat gibson Email: | ||
| Child: | Cory | ||
| Comment: |
Its nice to see someone with another teenager. Seeems like most of the posts are from parents just starting out with little ones. We have been through that and now its the teenage years. They sure grow up fast don't they? pat | ||
| |||
| Name: | mike Email: | ||
| Child: | trueman | ||
| Comment: |
| ||
| |||
| Name: | Susan | ||
| Child: | Emily | ||
| Comment: |
WELCOME to Uno Mas!!! I have a 13 year old daughter and I'm always thrilled to see a parent of another teen!!! Cory sounds like an awesome kid. Susan | ||
| |||
| Name: | pat gibson Email: | ||
| Child: | Cory | ||
| Comment: |
for school and be very frustrating. Cory attended an MH program in grade school which worked out very well. When it was time to move on to middle school, everything went wrong. They didn't have a MH program and refused to do so. I placed Cory in a special school for handicapped children for two years becuase of this. Now our high school started an MH program this year with the same teachers. He is doing wonderfully. The other children accept him totally. My other son (16) attends there so all of his friends watch out for Cory and its great. This morning I received an E-Mail from Corys teacher and the Girls Basketball Coach wants Cory to be a team "manager" for home games. The acceptance is great. | ||
| |||
| Name: | Judy Best Email: | ||
| Child: | Christopher 24 years old | ||
| Comment: |
| ||
| |||
| Name: | kathy montes Email: | ||
| Child: | Darius(5) | ||
| Comment: |
my son is transitioning into kindergarten. He is being placed in a class labeled "severely handicapped". Can anyone out there share with me their experiences. | ||
| |||
| Name: | Judy best Email: | ||
| Child: | Christopher 24 years old | ||
| Comment: |
| ||
| |||
| Name: | Adrienne Email: | ||
| Child: | Russell | ||
| Comment: |
A. | ||
| |||
| Name: | steff | ||
| Child: | olivia(6) | ||
| Comment: |
Just popped in to ask if anyone saw the Sports center piece on Albert Pujolis?(sp) Ya know of the famous World series champion rRed Sox???/ WELL lemme tell you this is a great guy... hee hee... They did a peice and my husband waited a half an hour with this show on pause so I could see it. He has a gf or a wife not sure of the details who has a 3 yr old with ds. WELL there are alotta kids from their ds groups and such who know him and come to the games and cheer him on. This one girl just gushed on how Albery P is the BEST player her BEST fried and how much she loves him. Just adorable. WELL he does a lotta charity work for ds and last time he bid on a trip to FLA knowing full well his family couldn't go and they showed him presenting it to this little girl and her family at the charity benefit. The whole place was in tears as well as Jeff and I. AWWW a real heart warmer. I love heariung cool stories like that. Anyhow I am getting ready for halloween. Of COURSE my boy wants to be MICHAEL MYERS!!!!(UGGG) and my girl she can't decide on a ghost or a witch. We'll see when last minute steff takes em shopping sat for their costumes. I saw one funny one it was one of those blow up ones it was a sumo wrestler ballerina. At target thought it was pretty funny. Well gotta git bye | ||
| |||
| Name: | Connie Email: | ||
| Child: | Collin 4yrs | ||
| Comment: |
Just wanted to say hi to all the newbies and old timers that I have missed...Holly and RO!!!! Pat -- I just took Collin to the doctor yesterday and while I was sitting waiting for his turn to have labs drawn in came a couple. They young man proudly anounced that He and his wife were here to be seen and went and sat down. I would say they were in there 30's but, she had DS and he did not. I did not get a chance to talk to them unfortunately. I would have loved to talk to them and found out more. It made my heart feel good to see them. Holly -- I would love to hear more about this vision therapy MIA is in because Gray (7yrs old) is having vision problems. He is 20/30 and 20/70 with his glasses on and vision in his bad eye seems to be getting worse even with it being treated right now. Sorry to hear about the lyme disease...man I know what you mean about being busy. With my 4 (sometimes 5 if you count DH) if its not one thing its another. Ro--Missed you girl. You are right we do need to get a big chat going like old times. It would be nice to catch up with old friends and get to know newones even better. Prayers for all, Connie | ||
| |||
| Name: | Holly Giglio Email: | ||
| Child: | Jake, now 5 | ||
| Comment: |
Jake is now in a special ed school m-t in the morning and then we go 2 days a week to a church preschool. We are working on getting him an aid but right now, I am his aid. He is also getting speech servies at Loyola Speech clinic in Maryland. What a great place. Jake is actually talking! all be it just a little. He is still signing but he can say at sign at least 20 words and is actually putting those words to appropriate use. Also, he now pees in the potty and 2 days ago, he did his first poop in the potty! It was so great! Talk about a happy mommy! Our daughter Mia and our dog Ike both have been diagnosed and now being treated for Lyme disease. It is crazy around here to say the least! Mia is also now in a Vision Therapy program. I kept saying that I thought she was having some kind of problem and they finally found that she has some directional issues. She was really struggling in school but now seems to be doing much better. Can you say that all I do is run around? It is crazy! Anyway, I have thought of you all so many times but I just have not had much time to check in. I hope everyone is doing well! Robin, I hope Chase and you and Dave are doing great! I have thought of him a million times this halloween. Let's see, still a fireman? ha! I will have to try to catch up with everyone's lives. Holly | ||
| |||
| Name: | Pat Gibson Email: | ||
| Child: | Cory | ||
| Comment: |
Corys future. I never thought marriage was in the cards for him. I know I have seen other couples with handicaps married, but I just never thought it was in his future. Cory is very high-functioning and has wonderful speech and all. No health problems, thank God. He does like to watch alot of pre-school cartoons all the time. Can't seem to get him away from the inmature things. Toys, tapes, etc. I'm working on it though. | ||
| |||
| Name: | TriciaF Email: | ||
| Child: | Patrick | ||
| Comment: |
The second couple were engaged to be married in a year. The woman was 31 and had Ds, the man did not, but did have some sort of special need, just not that was visible or audible. They told their story and were so excited to be engaged. The third couple were 19 and 20 and had been dating since his bar mitvah (isn't that age 13?). They were so cute and told all about their lives and accomplishments. They went to great lengths to explain that they both knew that they needed to become independent and employed and responsible before they could consider getting married. I thought this was an amazingly positive experience and just what I needed at the time to remind myself that Patrick's future can be what he dreams it to be...and maybe its me that needs to broaden my view of his horizons. I am so grateful to have attended. | ||
| |||
| Name: | patgibson Email: | ||
| Child: | Croy | ||
| Comment: |
and get married some day. I will take your advice when he asks these questions. | ||
| |||
| Name: | Betty Lunsford Email: | ||
| Child: | Christopher Kelly 4yrs | ||
| Comment: |
I was reading your post and it sounds like your son is very wonderful yound man. My Christopher is my grandson he is my first grandchild. He is a wonderful smart little boy in preschool now. He loves cars,trucks and 4wheelers. And he understands everything his weekeness is his speech but it is getting better.... I was reading one of your post about your son driving your car but not getting drivers lic..I was just wondering if you knew there are some people with DS that does have thier lic..We went to the DS buddy walk in New York last month and in one of the little bags of treats that they give out there was a book (Making Plans) in it, there were stories about dreams of young people with DS... what they wanted out of life some wanted to live on their own and have their own homes and there was one with the name Chris that drove toy cars then go-cart then he took drivers ed. in school and now he has is drivers lic.. So I feel there is hope for my little grandson to have his someday. Because he his simply crazy about big trucks he is just like his Daddy.. who is a machanic...Christopher gets his little tools out and works on his stuff just like Daddy... Could you tell me how is your sons speech and how old was he when he started talking....Betty Lunsford WV | ||
| |||
| Name: | Judy best Email: | ||
| Child: | Christopher 24 years old | ||
| Comment: |
after dating for 5 years. Christopher thinks the world of him, and he does call him dad. Thanks To my husband, he did help me out quite a bit, he taught Christopher how to ride a bike he taught him not to be afraid of the deep end when swimming. My husband Rick step right in and became Christopher's dad. Rick was there for his first special olympics events. He is there for when ever Christopher need him. Rick bought himself a hat that says Christopher's Dad on it. He wear it all the time because he is proud to be his dad. Christopher grew up being a very happy kid. He does have a very positive outlook on life. No One can tell him that he is ugly. Christopher response to that is of course not. Now that he is 24, I tell him all the time that he is my Muscle and handsome young man. You should see his smile gets bigger, He always giving me big hug and tell me that he love me. He is not only my son but he is my best friend too. He wakes my up on weekend and we go to garage sale all day long. We go to Bingo on Sundays. Sometime we just go into his room and sing with his Kraoke Machine. well I guess that is all for now talk with you all later Judy best | ||
| |||
| Name: | Annie S | ||
| Child: | Sonny 10 | ||
| Comment: |
I go into the Dr on the 29th and then I will know for sure what day they will be fixing my heart...I have a PFO its pretty common but what they found is I also have what is called a septum aneryesum (sp) and the whole is quite large and like alot of PFO's the flap opening, open and closes mine stays open all the time.Iam on blood thinners due the fact with this kind of PFO Iam 3 times higher for strokes...But they can now fix it with a catherter through the leg and they put in a small umbrella like plug and the scar tissure grows over it and heals the hole.... Susan Sonny is a pirate this year...Jack Sparo lol he sure loves to dress up What will Emily be this year... Take care all Annie s | ||
| |||
| Name: | Tammy... | ||
| Child: | Lewis-the-letsleaveit-there... | ||
| Comment: |
OH How you HAVE been missed.... As a ""relative newbie""... LOL... (choke ... swallow... it's OK)... I CLEARLY remember ... 3 years ago when I first discovered Uno-Mas and started posting to this board, YOU were one of the MAIN poster people...(LOL ... makes you sound like "miss July or something...LOL...) And YOU were the "life" of the party...so to speak... I have followed through your last few years of study... and a few attempts at "coming back"... But All I can honestly say...is... RO I/WE MISS YOU... and your witty and so perfectly (or not) balanced sense of reality!!! ... Post MORE often!!! | ||
| |||
| Name: | Pat Email: | ||
| Child: | John-John, 5 | ||
| Comment: |
| ||
| |||
| Name: | Rowdyro Email: | ||
| Child: | Several | ||
| Comment: |
Man it has been a longggggggggggg, longggggggggg time:( So catching up is OUT OF THE QUESTION:( All I can do is go from today and be thankful I am a quick study:) I am Rhonda, AKA : Rowdyro, Ro for short:) I live with my husband Dannie, Daniel(13 tomorrow), Delano(11),Lara (30 with CP).Teddy(22 with DS), lives with his mom in ALabama. We live just South of Houston Texas on the Gulf of Mexico. What a place to live:( The skeeters are the size of small aircraft, talk about a flybye WHOOOOOSHHHHHHH. Thankfully this is the only thing we are currently dealing with. I am currently attending college preparing for my Transition to RN and working a full time schedule to make ends meet:) We be SQUEEKING bye:) I see some newbies and I see some REALLY OLDIES:)LOL CC the computer guru:) CC you have come along way babe;) I remember the days that the CC stood for Completely confused:)Now you are giving Computer lessons:)Go figure:) I actually talked with Snoozie tonight:) Susan it was great:) It has been way to long and I really think we need to pull the road crew in for a chat:) Man those were the days:) I seen Robin H down the list but not much of a poster lately:( Robin humble I love and miss ya babe:) Come chat with me PLEASE:) I will be calling ya at the house so be warned:) Good beck? Bad beck? Carolyn? Connie? Marie? Wow to many to try and remember:)LOL Hope to meet up with all of you and get to know a little bit about you all:) RO | ||
| |||
| Name: | Jackie Email: | ||
| Child: | Justin 4 yrs | ||
| Comment: |
| ||
| |||
| Name: | JodieB Email: | ||
| Child: | Saige 2 yrs | ||
| Comment: |
| ||
| |||
| Name: | steff | ||
| Child: | OLIVIA 6 | ||
| Comment: |
BUT!!!! ANNIE what heart surgery are you talking about???? Please fill me in .... Awww hun I'm sorry bout whatever you hafta go thru .... Let me know when so I can start praying up a storm for you...K????? Well gotta go.. I have a BIG test on tuesday..BYE | ||
| |||
| Name: | Pat Email: | ||
| Child: | John-John, 5 | ||
| Comment: |
| ||
| |||
| Name: | Judy Best Email: | ||
| Child: | Christopher 24 years old | ||
| Comment: |
| ||
| |||
| Name: | Nick Email: | ||
| Child: | Simone | ||
| Comment: |
W | ||
| |||
| Name: | Fran Email: | ||
| Child: | Juliana, 9 months | ||
| Comment: |
soon, but wanted to see if anyone here has any info. I'm actually more worried about trisomy 13 or 18, or those horrible things that make Down syndrome seem like nothing. Lina, congratulations on your pregnancy. Please try not to worry too much. I can tell you that Juliana is the great joy of our lives, and I would not trade her for anything in this world. She is absolutely precious!!! What kind of testing did you have done? We didn't find out about it until the day after Juliana was born, so we didn't have time to worry beforehand. We had to jump right in and deal with it. It has totally been worth it. Good luck to you. | ||
| |||
| Name: | Luis Bulit Email: | ||
| Child: | Francisco (Pancho, 18) | ||
| Comment: |
I am Luis, father of Pancho (18) and president of ASDRA, Asociación Síndrome de Down de la república Argentina, a family centered organization for DS located at Buenos Aires, Argentina (see our website at www.asdra.org.ar It is my pleasure to announce to you and to all the Down Syndrome community in the USA, that we are organizing the First Iberoamerican Down Syndrome Congress in cooperation with all the argentine associations, the DS Federation of Spain (FEISD) and, for the moment, some local institutions of other countries of Latin-American (such as Chile, Colombia, Ecuador, Brazil and Mexico). The Congress will be take place at Buenos Aires, Argentina, during May 2007, and we feel that could be interesting to be attended by Spanish spoken residents in USA. Please fellows, feel free to contact us. Cordially Luis | ||
| |||
| Name: | Alice | ||
| Child: | Luke | ||
| Comment: |
Welcome and congratulations on your pregnancy! Do you have a boy or a girl and when is his/hers due day? If you have any questions, please ask, sure we can help you here. I wish you all the best, Alice (my son with DS is almost 5 y/old) | ||
| |||
| Name: | Julie Email: | ||
| Child: | Jordan - 6 | ||
| Comment: |
About this thing with our boys growing up and having children of their own.....How many of you have been told that this is most probably an impossibility? I have only ever heard of this happening once, ever! Most males with DS are born sterile. Please don't let them get their hopes up, as this will lead to more problems later on............. | ||
| |||
| Name: | Susan Email: | ||
| Child: | Emily, age 13 | ||
| Comment: |
Please make sure to let us know before you have surgery, and you'll be in our thoughts and prayers!! Susan | ||
| |||
| Name: | Annie S | ||
| Child: | Sonny 10 | ||
| Comment: |
Judy Best Thanks so much for sharing your stories of Christopher..I truly enjoyed how you handled everything.. I miss chatting with all... Sonny is doing great in school finally learning to read some...seems like we move forward some and back alittle .. I will be going in to get my heart fixed within the next month will let you all know when.. It was alittle worse than they thought..but the fix is pretty simple... well need to get Take care Annie S | ||
| |||
| Name: | Judy best Email: | ||
| Child: | Christopher 24 years old | ||
| Comment: |
| ||
| |||
| Name: | pat gibson Email: | ||
| Child: | Cory 14 year boy | ||
| Comment: |
by son Cory. He is the most loveable child. He has always been a great challenge for me and everyday is full of a new surprize. He is now in a MH program at our local high school in the eighth grade is doing very well. His older brother is sixteen and of course the normal teenager. Cory tries to follow everything his brother does. He questions when he will be able to drive a car, go on a date, etc. He wants to get married and have children someday too. How do I explain to him that things like this might never happen for him. As he gets older I find myself crying for the life he has ahead of him. Can anyone help me? Pat | ||
| |||
| Name: | Cathy Email: | ||
| Child: | Katie, 3 | ||
| Comment: |
~ Susan said that I have not posted enough lately so here I am with a little update. My princess will be 4 next month and what great strides she is making. ~ She still does a lot of babbling, but she also is starting to put together 3-5 word sentences. She asks questions, How ya doing? What's happening? Where ya been? Whatcha doing? and she can answer most questions too. ~ Her school is going very well this year, she is pretty bossy and tries to help all the other kids with their sign language. She gets PT, OT and ST and the teachers have to report to me weekly. I love it! I am so proud of her, and at the same time very sad, my little baby is growing up too fast! ~ She started dance lessons and is actually starting to "get it" she follows the other kids and does just great as long as the music is playing... but once it stops, she loses her focus and begins exploring. She also takes swimming lessons and shows absolutely no fear! Jumps off the side of the pool and giggles. ~ We have an appointment at the ENT next month and also an appointment at the Multi-Disciplinary Clinic for her 6 month check-up. Can't wait to hear what they have to say! ~ Emily is growing up to fast too. She lost her first tooth this weekend and thought it was the greatest thing to get money from the Tooth Fairy. She is still bored in Kindergarten, but we are keeping her busy with other things. Dance, 4-H, Sunday School and she will be entering into a mentoring program. Hopefully this will help her. I hate to think that I have to harbor a kindergarten drop-out. ~ I am very busy these days keeping up with these monsters, but I am always lurking. Hugs to you all! Have a great day. ~ Cathy | ||
| |||
| Name: | Judy Best Email: | ||
| Child: | Christopher 24 years old | ||
| Comment: |
Like I said before he is 24 years now and choose to live at home. I am glad he made that choice. He helps alot around the house. He know how to do laundry, cook simple things like sloppy joes. Know how to clean house real good. He like special olympics alot, He does softball, swimming, basketball, He is getting ready to start working on his crosscountry skiing again. He is alway smiling and giving me kisses on my cheek and tells me that he love me. If I am feeling down he will come into the room and put some music on and get me to dance and sing with him. He alway seem to make me feel better. He has all kinds of friends around the neighborhood. All the kids are real nice with him. He is very friendly and outgoing. Some of the kids will even sit down with me and ask question about him. On his 24th birthday his cousins took him out to the bar to have a beer and asked some girls to take a picture with him. The girls tooks a picture with him and as they took the picture the two girls gave him a kiss on the cheek(so he had a girl on each side giving him a kiss on the cheek). Christopher has that picture up and shows it to everyone. I thought that was nice of the girls. All the girls were dancing with him. Well I guess this is all for now. | ||
| |||
| Name: | Cheyanne Email: | ||
| Child: | Noah, 9 months | ||
| Comment: |
Boy, Noah is sure getting big now. He is only 9 months old but he's beginning to try to do patty cake, although tonight he went from patty cake with his hands to hitting his head and then he was trying to hit his hand over his mouth like you do to make the indian sounds. He sits for small periods of time now but still will fall over. I was so happy to hear him say da da da and ba ba ba, but he doesn't really talk a lot. I've been trying to teach him a little sign language. We found out he does have a hole in his heart (ASD), but its small and so we wait a year to find out what happens next. They also mentioned mitral valve leakage but again it's very small. I think this is what has made us want to move... to get closer to a children's hospital. I have a feeling there are a few of you who have perhaps felt the same way at one time or another? Have a great night... Cheyanne | ||
| |||
| Name: | Susan | ||
| Child: | Emily, age 13 | ||
| Comment: |
Susan | ||
| |||
| Name: | Judy Best Email: | ||
| Child: | Christopher 24 years old | ||
| Comment: |
| ||
| |||
| Name: | Susan Email: | ||
| Child: | Emily, age 13 | ||
| Comment: |
WELCOME to Uno Mas!!! We'd love to hear your story!! There is a section here called "your story" but I really don't think that area is read as often as this message board or the Bulletin Board. I would suggest that you post your story either here, or join the Bulletin board and post your story as a new thread in the general section of the Bulletin board. There is a section for "who's who", but after you post your story there, no one is able to post a reply to you. So, probably the place where it will be read by the most people is the general section of the Bulletin board. We'd love to get to know you and hear about your son!!! Susan | ||
| |||
| Name: | Judy Best Email: | ||
| Child: | Christopher 24 years old | ||
| Comment: |
| ||
| |||
| Name: | donnita Email: | ||
| Child: | Cassandra 3 | ||
| Comment: |
| ||
| |||
| Name: | Susan | ||
| Child: | Emily, age 13 | ||
| Comment: |
Susan | ||
| |||
| Name: | lina flores Email: | ||
| Child: | unborn | ||
| Comment: |
my child isn't even born yet, and i am so afraid. i do not know why, i guess the unknown. after reading so many nice things about people with down syndrome i feel better. this baby may change all our lives in a positive direction | ||
| |||
| Name: | Robin Email: | ||
| Child: | Chase/12 | ||
| Comment: |
I have been gone for a while so did not see your post on your sweet baby Chase until now. You and I have a couple things in common. My son who is twelve and has DS is Chase Alexander. He was also born in July. He is the light of our lives as I know your baby Chase would have been. Words cannot say how so very sorry I am for your loss. My heart breaks for you as I too lost a son and know the undescribable agony you and your husband are dealing with. I will keep you in my prayers. Robin | ||
| |||
| Name: | Betty Lunsford Email: | ||
| Child: | Christopher Kelly | ||
| Comment: |
My grandson just turned 4 aug 26..and he is really doing good on the potty ..still does have some acc. with the number 2 here at my house ..because I don't have a potty like he does at home..But at home he goes to his potty to pee and poop by his self.. He will pee his pants if he get scared his little cousin hit him the other day and he started to cry and said ball ball thats me; he said pee pee ball ball...But he does really well with the potty...He always wears big boy undies now.. unless we are going somewhere we know there is no bathrooms . A few weeks ago he started peeing his pants at school we don't know why..But I pick him up because his mommy works and we always stop at micky dees to get him a fun meal after school so I told him the next morning that if he wets his pants or poops in them we won't stop at micky dees and he was dry and the teach said that he even pooped on the potty that day... I am so proud of him ...But I guess that just being a grandma...his is my first grandchild...I do have one other grandson five and half months younger and they a something else when the are together..they are into everything; mean little boys...but loveable little boys I guess they are just all boy... Betty | ||
| |||
| Name: | steff Email: | ||
| Child: | OLIVIA 6 | ||
| Comment: |
Your daughter sounds like she is doing amazing with her potty training. My girl Olivia was not even potty trained fully till she started kinder at almost 6 so WTG.... I would like to add to you one tip... My girl drinks a nectar juice generally pear and apricot. They are called Kerns nectars but any nectar will do. I let her drink 1/2 of the 12 oz can a day. It works wonderful for the #2. Mineral oil made my girl really sick as a baby cause she aspirated it into her lungs. As long as your child doesn't have lung problems and as long as you DON'T give it to her when she has a cough or sick then you shouldn't have any problems. The nectars seemed to make it MUCH less painful to go #2. Gross I know but true. Once she had the nectars in her for a week or 2 she was as regular as could be. Just wanted to warn you of the oil cause it caused us MUCH diress and about 3 weeks in the hospital. Steff | ||
| |||
| Name: | Mia Bachman Email: | ||
| Child: | ava 3 1/2 | ||
| Comment: |
| ||