Uno Mas! Monthly Sponsor

September 2003
Message Board Archive

 
 

Name:  Mary L.    Email:   
Child:  Patrick + 4
Comment:
272    Tuesday, 30 September 2003 - 06:36:09pm
Hello everyone! I just wanted to check in as I haven't posted for a while. Things, as usual, are very busy around here. Patrick is doing well. He is really trying to talk now. He says sentences all the time you just cant understand what he's saying~which always makes me feel so bad! He turns 4 on Oct. 13 so I'm trying to plan his party. We had Nora's christening party on Sept. 14, dh is turning 40 on Oct 5, and then it's Patrick's b-day~I am partied out! I hope everyone here is doing well and as usual I hope to start posting more often. It seems that as soon as I read posts something comes up that I have to tend to and I can't post. LIke now~Patrick just went upstairs by Nora and I have to go get him because you never know if he's going to be the loving big brother or the jealous kid who's mad he's not the center of attention any more! So have a great day everyone!

Mary L.
 
Name:  sharyn    Email:   
Child:  Kim 12yrs old
Comment:
271    Tuesday, 30 September 2003 - 05:41:59pm
I just wanted to let everyone know that Lands End at sears still has capris on line, they are not in the stores. They just happen to fit my daughter perfect as pants. I e-mailed them and asked them to start a clothing line for down syndrome. I dont know if everyone has the same hard time as we do looking for a winter jacket for Kim .Her arms are so short that all the jackets are to long in the arm . Anyways just wanted to let you all know that we can still buy capris in the fall.
 
Name:  Sue  
Child:  Haley
Comment:
270    Tuesday, 30 September 2003 - 02:46:03pm
Hi Steff,
Yes Haley is still in gymnastics - loving it!! Can't wait til next year when she can do it in the special olympics too!!! It's one of her FAVORITE things to do! And she does awesome headstands. It has been terrific for her. She is double jointed lots so she's very nimble. We do have to work on balance with her (she's very flat footed) so not only does she have fun, she's workin' those muscles and balance too!
 
Name:  steff  
Child:  olivia(5)
Comment:
269    Tuesday, 30 September 2003 - 03:31:48am
HI!!!!!

Haley you are such a sweet cuz. You sound so mature for a 12 year old.ENJOY your cuz....

SUE!!! Is haley still in gymnastics? Olivia will start in 2 weeks. I am going to co-teach the class as I used to work there and they need an extra hand for that class. THIS WAY it'll be free for her too. COOL HUH???

Olivias nutritionist is very concerned about her weight. She actually gained 2 pounds in the 6 weeks since she started with her. SCARY. I followed her suggestions to the tee. So since we have seen her again about 2 weeks ago I started to have Olivia outside ALL the time. We are doing along with her 30 minute walk every day, skateboarding. She LOVES to go out with Kyle in the morning before school and skateboard on her belly. It's great cause shehas to REALLY use those tummy muscles to keep her head up and her legs from scraping on the ground. Any suggestions of activities that your children like to do that are slightly aerobic would be highly appreciated.

ROBIN so you have a great weekend that I am completely jealous of and you don't post about it???HUH.... 2 morrow I am going to the Mattel outlet by my house .we live right by the mattel headquarters, and shop like crazy. Its the best you guys and Liv is DYING for a dollhouse and a NICE doctors kit for her birthday in Nov..

Linda are you still busy as all get out?

RO whats the next step? What type of patients are you looking to care for?

In november I am taking a web page design class. COOL HUH?? My dad is sending me as he wants me to run his website and create a new one for his business. Can't start back to school till Jan for my child life program so I must keep myself busy. Thursday I am going to school to help the kids paint Starry Night in the kindy class.One thing I love about their school is that it is an arts magnet and they are exposed to many musicians(the l.a philharmonic comes to play a couple times a year) the kids learn instruments, and they learn all about famous artists and recreate their masterpieces. I swear Kyle knows more about artists than I do...Oh yea Liv broke her glasses again yesterday and THANKFULLY the lady at the glasses store loves her and gave us a new pair(they had the same size and colr) for free. You are only supposed to get 1 a year for free if they break but PHEW she took one look at Livs prescription and said I can't make her wait here take these... Whatta Godsend. Sheesh I hope this childs script doesn't get any stronger. The last time she went it went from 5.75 to 7.0 . That is for closeup. She is VERY VERY farsighted and this child has diligently worn her glasses since 10 months.Well gotta git. Hope to chat on messenger with anyone who is still awake.(((HUGS))) steff
 
 
Name:  Sue  
Child:  Haley
Comment:
268    Monday, 29 September 2003 - 08:38:08pm
Hi Haley,
Welcome - hmmmmmm my favorite name :)!!!! Congratulations on your new cousin. So great that you want to be involved with everything. Make sure you show your Aunt/Uncle this site too! Bet they'll like it as much as you!
 
Name:  haley clark    Email:   
Comment:
267    Monday, 29 September 2003 - 05:52:55pm
Hey i am s0o0o0o0o0o0o0 happy to have a cite like this in my life! I have a new baby boy cousin with downs in our family and i might 0nly be 12 but i want to be in his life and help him through it everyway i can. I honor my aunt for the hard desition of keeping the precious creation. She is a very brave women. Thank You so much.
 
Name:  Jennifer    Email:   
Child:  Courtney-9
Comment:
266    Monday, 29 September 2003 - 01:58:04am
sniff sniff...
Cindy, you are making me cry! I totally agree with you on how life is...Courtney is a major part of this family. None of us can imagine life without her. She is reading, writing, and doing simple math also. And is VERY popular! We are planning our Buddy Walk right now. All the kids in our neighborhood are coming and it looks like half the school wants to come also. We sure didn't think our first Buddy Walk would be this big...but it looks like it is gonna be a HUGE HIT!
I am soo excited...and soooo broke! Looks like Santa's sleigh may be broken this year. But that is another story!
Talk to yall later. I wish I had time for chat, but maybe next week,
Love yall....
Jennifer
 
Name:  Ro    Email:   
Comment:
265    Monday, 29 September 2003 - 01:14:48am
Hey remember tonight is Chat night.:) Come on by and swing by the chandlier for a few good laughs:)

Hope to see ya there:) RO
 
Name:  Kelly    Email:   
Child:  Quinn- 1 YEAR!
Comment:
264    Sunday, 28 September 2003 - 10:26:55pm
Thanks for all of the words of encouragement--
Suzi- that was so funny...
We had Quinn's party and I only choked up when we sang to him..he was such a ham- cake all over his smiling face! What a difference a year makes. He is now trying out all of his new toys as I type.
 
Name:  steff  
Child:  olivia(5)
Comment:
263    Saturday, 27 September 2003 - 05:49:54pm
HIYA Cindy Lou!!!! :)

Yes I so agree with you about the pictures. It has been so good for Olivia. As far as inclusion goes I am taking it a year at a time. I can't even envision jr. high or high school as of yet so be it.Some times I hafta look at it a day at a time with Liv.Olivia is just now starting to make friends at kindergarten it is sorefreshing to see her run to em in the morning. A little girl just invited Olivia to play with her after school next week I am so excited for Liv cause well all this stuff is starting to begin for her. Her man joshua in her sp ed class is now officailly moved furthest away from Olivia. Apparently the 2 can't get enuf of each other..LOL.

Can I brag a bit on my boy??? Kyle just got his CAT scores back from 1 st grade. He got 96% overall on all his scores. I am amazed at how quickly the child learns. AND even more amazed at his ability to have the entire school accept Olivia and make sure she is doing the right thing. Kyle told me Wed. that Olivia was YIKES pulling up her top at the cafeteria . Instead of being mortified he RAN as fast as he could to her to get her to stop. Him and his 2nd grade pals have known her for so long that she is just part of the gang and they try to teach her how to behave at school. Fortunately the T.A. got to Liv faster than Kyle and had her pull her shirt back down.His teacher came up to me the other day and said that Kyle and his friends ALWAYS go see Olivia at lunch and play with her for a minute and give her a HUG. Isn't that sweet? His lack of embarrassment and love for her shows all the kids that she is just loved and wanted by them so they all take that attitude with her.it is so refreshing to see. His teacher told me that and she said she thinks Kyle as cool as he tries to be is the BEST bro around and she loves to watch him go see Liv... Cute huh???Well gotta go get a mouse for Monty the snake Liv is sick she loves to watch him eat em.GROSS!!!!Soo off i go have a great weekend and HAPPY BIRTHDAY QUINN... I dunno this is the first year I have ever felt much emotiuon about my girl getting older. I am so proud of Olivia she is a great kid overall and is such a champ and is learning so much despite how difficult it is for her. I so admire her perserverance... HUGS steff
 
Name:  Cindy  
Child:  kaylee 10, emma and sam
Comment:
262    Saturday, 27 September 2003 - 12:06:31pm
Kelly- I feel emotional every year at Kaylee's birthday because I can't believe how different life with her is-different then I expected meaning MUCH Better then I was told it would be. She's just one of the kids in the family, ya know? She's reading and writing and doing basic math--and she's SO popular. So far this school year we have received 3 birthday invitations from "typical" (meaning non-disabled) kids at school and she's gone to two of them. By herself..which is a bit of a worry. I haven't known the parents of these kids, but I've known other parents that knew them and reassured me that they were responsible parents. I called the first mom and said..I don't know if you know that my daughter has Ds and she said..I heard there was something going on..but Jenna just raves about Kaylee every day so I hope she can come.

Anyways, all that to say - yes I feel emotional because I can't imagine life without Kaylee--though the daily behavior issues and speech and hearing concerns make me a bit of a basket case. I always want to make some grand speech to all our friends and family around birthday time about how wonderful THEY have all been, how Great God has been and how thankful we are to have Kaylee--but it always sounds way to sappy in my head to I never do.

Steff-so glad the pictures are working. When they say "A pictures worth a thousand words" I think it's really true for Kaylee. Your so good to go and actually take pictures girl! 'Liv will do great with you and Jeff supporting her and I agree 100% about cutting through the BS and being completely open with the sp ed department. I've always felt that we really need to work hard to keep the lines of communication completely open and honest-and that that will really benefit Kaylee. I do believe in elementary school inclusion is truly the best choice most of the time. Not sure how jr high and high school are going to work out..

Donnita-thank you for the information..anyone else ever had the bright spot on the heart??

Annette-we are a Christian family and I've always prayed that Kaylee would understand her need for a Savior and have a relationship with Jesus Christ, recognizing that He died for her and wants her to be with him in Heaven. I have prayed this for years, never sure how Kaylee would develope. For years she just listened when I talked about it and when I asked if she wanted to pray and become a "Christian" she would say no. Her little sister made a committment to Christ and Kaylee still refused. One day we were driving to my parent, up in the country. Just me and the girls. Kaylee was 9, Emma 7. We were talking about God, the earth He created and Heaven. Kaylee out of the blue said she wanted Jesus to live in her heart. Emma and I were shocked. I pulled the car over and we prayed together and all the time I'm thinking "is she getting it?" and I'm crying. We talked some more and she seemed to understand what she was doing. We continued on to my parents house. About 8 months later we're driving on the same country road to my parents house-not having discussed what had happened for months. I said "Kaylee, do you remember what happened on this road last year.?" she said "I prayed mom." I 'bout fell over. I said "what did you pray about?" "Jesus come in my heart mom."...Anyways, I don't know if you were talking about a Christian baptism, but YES I believe our kids can know God and that spirituality is a great thing for everyone! ;)
 
Name:  Annette    Email:   
Child:  Ashley 9 months
Comment:
261    Saturday, 27 September 2003 - 02:06:35am
Hi all long time NO see...
1st Happy birthday to all that are needed as well as HUGS!!
Its been very busy here with work and clean up around the yard from the storm..
Ashley is being Baptized on Sunday. We are so excited I almost didnt do it because of the ds..What was I thinking? She still needs to be brought up as part of Gods life like us...My church is VERY excepting and we have a 5yr old named Patent with ds, and she is VERY cute..So wish me luck that I dont mess up, this is a new church for us.
Have a great weekend..
And I did go to chatt till 10pm you are all NO SHOWS...
 
Name:  Donnita    Email:   
Child:  Cassandra 2
Comment:
260    Saturday, 27 September 2003 - 00:41:27am
Cindy,
My daughter Marissa had a white spot on her heart on her ultrasound, which they said was a marker for Ds, but she does not have Ds. Cassandra did not have any markers on the ultrasound.
 
Name:  Suzi  
Child:  Merideth
Comment:
259    Friday, 26 September 2003 - 07:51:24pm
Hey Steff, my mom's coming out your way in about 3wks.I'll have to see if her schedule & yours mesh at all.She just decided she needs to vacation & is heading out for a week to visit some old friends from Poway.
 
Name:  Suzi    Email:   
Child:  Merideth
Comment:
258    Friday, 26 September 2003 - 07:43:10pm
Happy Birthday Quinn !
~Yup Kelly! i can say I had those same mixed emotions. I packed Meri up, took her out to lunch, got the pic taken at Picture People, had her ears pierced & vowed to give her a "normal" birthday while drowning my sorrows with my charge card!
 
Name:  steff  
Child:  olivia(5)
Comment:
257    Friday, 26 September 2003 - 06:07:10pm
HI AGAIN. Now you will never get rid of me cause its FRIDAY and I have TIME!!!LMAO....BTW Tammy Kyle wants to move near you too he DUG the lizard photo.Can ya bring one to the west coast get together???LOL,,,Picture that thing getting away on the plane trip... YIKES!!!

I wanted to thank you Cindy for your advice on the pictures for Olivia. I made her a board for school. We took pictures of the kids standing in line(with Liv in em too) and sitting down on the rug and doing small group work etc. I laminated em at school got a board bought velcro glued it to the back of the pictures and the board as well./ Liv has been MUCH better behaviorally since we bagan that THANKS. Her aide thanks you too.I am gonna give her aide the link to uno. Her name is Miss Charobey so look for my friend . She's awesome with Olivia and we dig her... BTW can I ask you all a ??? Here s a dilemma in school we have had . I have noticed that there is soo much BS in the sp. ed program. So much talking aout and FAR less helping solve situations. Well yesterday I got a clall from the inclusionist saying that if iwere her child she would take her out of sp ed in the afternoon. Then there was other thinfgs she sqid. WELL jeff and i are talking about it afterwards and man ogh man ALL the FREAKING things tht people tell you that they don't want you to say to someone else etc. BS cause NOTHING gets done when all are so scared to rock the boat. Well afeter Jeff and I discussed it we went to the sp ed teacher and toldher NO MORE BS no more secrets cause the only way we can help Olivia is to \be UPFRONT and honest and we do NOT think our child is perfect and we do not get easily offended so we let everyone know whatever is said to us will be said to someone else . Cause NADA gets solved when we can't say this to this person or that person etc. BS BS I HATE THAT PART OF SP> ED. I do believe we have a newfound respect from all after we had the talk. No secrets no holding back. Anyone else feel that way??? Gotta git BYE
 
Name:  Chris    Email:   
Child:  Sarah ~ 2 years old
Comment:
256    Friday, 26 September 2003 - 05:57:51pm
Kelly ~ Happy birthday to Quinn! I felt very emotional when both of my daughters turned one. I just loved my babies and didn't want them to grow up. Sarah just turned two and I got teary eyed then, too. She had a really tough first year because of her heart but her second year flew by. She has made so much progress but she still seems like a baby since she isn't walking and refuses to eat solid foods. She has developed a great sense of humor and keeps us in stitches. Enjoy your baby, he will be a big boy in no time!
Chris
 
Name:  steff  
Child:  olivia(5)
Comment:
255    Friday, 26 September 2003 - 04:17:49pm
hi everyone!!!!

I miss it here. Life is real busy right now and I haven't had any time to post..WAAAAA. I did however have to zero out the puter as we had a virus. After I did that I had no time to get back on.. ;( Lets see I hear RO PASSED!!! Was there any doubt girl?? NEVER!!! Melinda I hear Noah is doing better. Tell those nurses to keep the childs CLOTHES ON.. Christophers heart is fine...YAY. Carriana is tolerating chemo well. WTG...and the CHASE man is getting dare I say CHUBBY???? LOL...Robin I hope they get his stuff worked out and dare I say I am EXTREMELY GREEN with envy after hearing bout your weekend.

Well lets see what is up here.. Hmm. Olivia is DIGGING on kindergarten. She is adjusting and all is well with a few minor adjustments. (lol she told her aide the other day that she was gonna tell her mommy she didn't let her have lunch and that her aide was pinching her...My little manipulative smart kid whatta stinkpot...She admitted what she said and that she made it up today at school and all is well with the world again..;) Her speech teacher is FLABBERGASTED at Livs language and talking abilities.She told me Olivia is the STAR of the speech group.Also she came up to me the other day and said that she has never seen a child with ds talk like she does in her 25 yrs of teaching. COOL HUH???Then we laughed cause Liv was bringing a note to the office and found that she had to give it to her teacher. SO Liv started to hand it to the speech teacher and as the lady was gonna take it Liv l;ooked up at her and said ...NO THAT's NOT YOURS...Took it v back and said . It's HERS silly and handed it to me. Very good use of the pronouns. I am so glad she is not having those difficulties so we can concentrate on her really poor fine motor. I have the teacchers justb working on prewriting skills. Like playdough and making BIG letters rather than small ones like the opther kids cause she was getting frustrated as all get out cause frankly she is not there yet.So another thing we are doing is taking er out of the sp. ed afternoon class in NOV.She will go back to her afterschool rpogram after we work out those services.Her sp. ed program after her reg ed kindy is just not right foer her all the other kids are far beyond Olivia and her teacher has a hard time being so rigid and working on Olivias individual needs. The kindergarten teachers in reg ed are FAR better than the sp,. ed teacher at doing that. Weird huh? So we are just gonna plan on fully including her thru the school years at her school rather than the sp. ed appraoch. We'll see as time goes by and perhaps next year Liv will be far more prepared in her fine motor skills to handle the sp. ed class.What else. Oh yea we were robbed sta night. UGGGG. and there was a shooting down the street at a party sat. night. UGGG. Kyle my BIG MOUTHED Mr. KRAVITZ son made the mistake of telling my hubby sunday afternoon that I thought the cop who took the report was CUTE... TATTLETALE I have been teased by Jeff bout that for a week. last time I let him overhear me...That's it hugs and more hugs have a great WEEKEND... Steff
 
Name:  Kelly    Email:   
Child:  Quinn- 1 year
Comment:
254    Friday, 26 September 2003 - 04:03:41pm
I was just wondering if anyone else felt emotional when their child turned one? Quinn was so sick when he was born, and the day was really terrifying. Now that it is a year later, I am overwhelmed with how many things have happened. I was just curious if anyone else had a similar experience. I have been having flashbacks all day.
I am so proud of my little boy. And I am so glad that he chose me to be his mommy.
 
Name:  cindy  
Child:  kaylee-10 emma and sam
Comment:
253    Friday, 26 September 2003 - 01:36:20pm
Question: My sil's friend just had an ultrasound and was told there was a "bright spot on the left sight of the heart" and that it is a marker for Down syndrome in about 50% of the cases. Have you guys heard of this "bright spot"? They want her to do an amnio, which I believe she is declining. She is going to take the AFP test though. Post up if you've heard of this..

thanks
 
Name:  Barb    Email:   
Child:  Alison - 6 months
Comment:
252    Friday, 26 September 2003 - 03:20:28am
Evening all!
Guess I worked too late tonight and didn't make it home in time to catch anyone in chat.... I feel deprived!!! Oh well.... there's always Sunday night right!
Today was one of those days that let's ya know that summer is coming to an end.... it was only in the mid 60's and I noticed that some of the trees are starting to turn already!!! I am not ready for winter yet. Fall is just way too short here, almost as short as summer! On the up side, at least it means all the road work will be coming to an end for the winter soon!!!
ROBIN: I saw that show you were talking about with the guy with the worms from walking barefoot in Tennessee too! I told the girls "See, I told you you could get worms from going barefoot!!!" We all thought it was one of the grossest things we'd seen in a long time! It was also weird the way those docs got sooo excited by it.
I hope the docs can get Chase's meds worked out real soon you all. Hang in there! And isn't it amazing what a little pudge on a kid can do!!! Alison's surgeon can't get over what a chunk she has become because we were all so very worried about weight gain when she was first born. It took her about 3 months to gain a pound and she hasn't looked back since!!! She could be a Michelin tire commercial baby!!!
RO: Since it seems everyone wants you to come be a nurse near them, add Western NY to the list! Ya won't get worms walking barefoot here..... just frostbite if ya do it in the winter!!!
BETTY: Glad to hear that Christopher's heart studies came back fine!!!
LINDA: Let's do our own Western NY get together!!! I'm out of the knee immobilizer and off the pain meds so I'm up for a little roadtrip.... Rochester... Batavia???? Let's talk!
TAMMY: My Sarah (6 yr old) has decided that she wants to go and live with you!!! Showed her the picture of that Thorny Devil lizard thing ( I still say yuck!!!) and she just thought that was the coolest thing she has ever seen!!! Then started telling her about the other critters you have in Australia and she was sold. Wants to ship her stuff to your house! LOL She is just a little concerned about one thing though..... Wants to know if you guys get headaches from being upside down all the time, after all you're almost on the bottom of her globe!!! I thought I'd burst out laughing in her poor little face when she said that. So let us know if she needs to bring a bottle of Tylenol with her!!!
STEFF: Missing ya, hope things are okay! Let us know.
Okay, rambled on long enough. Gotta go give Alison a bottle and then it's off to bed for us!
Barb
 
Name:  Robin    Email:   
Child:  Chase/11
Comment:
251    Thursday, 25 September 2003 - 08:28:12pm
Afternoon uno world....
How is everyone? Went for my mamogram this am and got a big smie from the nurse when I asked her how it went =0) Amen to that! Speaking of nurses, RO.....we need nurses so bad here in Michigan darling, so come on over!!!!! I know you DON'T want to go to Tenn to work as a nurse cause even though you will think I am lying... I am not...I saw a new show on TLC..I think it is called residents. It follows the lives of residents as they become doctors and this is filmed in tenn!!! Okay, here is the awful part and now I need to make Susan and deborah move outta there. There was a man who died on the show and the autopsy showed it was from WORMS (yes you read that right) and he got them from WALKING BAREFOOT ON DIRT IN TENNESSEE!!!! The resident said you can get them from doing that in Tennessee!!!!! Susan Louise...you keep shoes on them babies! And what is this about you going to Niagra falls???
Jackie.. I cant wait til the buddy walk!!! Hug those kids for me!
Pat... I am here. I never seem to make it on the puter at night any more =0( I fall asleep sooooo early. I think I am working wayyyyyy too hard! Dave is taking the boys and going to the trailer to get it ready for winter and I get to stay home, and finish the floor and go shop with my friends at the new super walmart and super sams and go to a antique festival and out to dinner... I feel like I won a prize being able to do this!!!!
Chase has become a super monster child again. I know it is because he hasnt been on a stimulant for a month. So when dave takes him back Mondy to Ann Arbor he is going to have a long talk with the dr about it. Although I know Chase wil show him what we are talking about, the kid is a walking talking non stop moving machine. he has also much to my dismay....gained alot of weight, it simply blows my mind to know that 11 months ago this child weighed 48 pounds and we had to force feed him and he now weighs in at 70 pounds!!!! When you hug him you get a body to hug not a skeleton. But he was taking a bath and I went in to make sure he had his hair rinsed well and OMG, I saw two rolls and some dimples on his belly!!!! We are talking Chase, skin and bone boy. Now that he has a appetite that is all he wants to do is eat. We have totally changed what we buy and let hi have and I am sure he dont get why although I try to explain to him. We let him eat but it is fruits and veggies and pretzels and sherbet and air popped corn, those kinds of things, where as he used to get a king size pkg of reeses and a huge bowl or two of ice cream before bed to try to get weight on him.
Steff....how are you darling?????Long time no post!!!
I was just going to say hi to everyone by naming you but if i do, I just know I will forget one or two and then I would feel bad so..... {{{HUGE CYBER HUGS}}} to you all. I hope every one is ok and doing good!!!!
love and huggers, Robin
 
Name:  Betty (grandmother)    Email:   
Child:  Christopher Kelly 3yrs
Comment:
250    Thursday, 25 September 2003 - 07:40:14pm
Hello everyone:
I want to thank everyone for remembering Christopher in their prayers. He went for his ultrasound on his heart this morning and we got the results back about an hour ago and thank God his heart is normal and the murmur they heard is inncent and that he will out grow it.....God does answer prayers and I'm so thankful!!!
just wanted to thank everyone here...This site has been so helpful to us..
I took Christopher to school to have his pictures made after his dr. appointment this morning and he was so afraid that I was going to leave him...He goes to school twice aweek and he crys everytime his mommy leaves him, though he is fine after they start circle time.. I got to talk to his speech th. while I was there and she said he is such a bright little boy the catches on to signs so easy and that he follows direction and that he is a very good little boy. He is doing really good on potting while we were at the school he had to go , he grabs his self and point to the bathroom and then want to wash his hands ...When he was having his picture he was starting to whine and his mouth was wide open so I told him if he want to go just to close his little mouth and he did it and the guy took his picture. I told my daughter that he didn't smile but he did close his mouth...I thought that was good enough. But he had a big smile when we were leaving and he was waving bye bye... Well just wanted thank everyone and let you know how his tests turned out.....Betty Lunsford
 
Name:  Pat    Email:   
Child:  John-John, 4
Comment:
249    Thursday, 25 September 2003 - 12:23:44pm
Yesterday the Sp Ed teacher came and after 1 yr with her John-John actually had a good session with her. I was going to can her yesterday. I had asked for a different teacher a mth ago but they said she was the teacher in the area and I couldn't have another. I know that if I pushed for one I could get one. Her supervisor came one time and saw how they interact. So she knows the personalities just don't mesh. John-John was so good for his Sp Ed teach that he had from ARC. They had 1 hr together. This one has half an hr, I couldn't take an hr, neither could John-John. Yes, I did discuss different ways that work for JJ and also ways like the reward sys. she tries that don't work. She is trying to change. I will go mth by mth because I won't take another yr of this. (I had even taken the summer off.)It was nice to have good session. I think this will be the FIRST time she won't write that JJ was frustrated, would not cooperate.......
STEFF..How are things with Liv, Jeff, your bthr..
ROBIN.. Where are you!! What's happening...
RO.. When are you moving out to PA to get your new job? :)
 
Name:  Melinda    Email:   
Child:  Noah (9 months)
Comment:
248    Wednesday, 24 September 2003 - 03:38:41pm
Betty,
At my daughter's (non DS) 2 year check-up we had the same thing happen. The doctor doing her check up kept listening to her heart for a long time. I kept wondering why. Thens he proceeded to flip through her chart over and over. I knew something was up. Finally she asked why there was no info about her heart murmur. I told her I didn't know she had one. She said she definitely heard it and made us an appointment that day to see a cardiologist to have it evaluated. It turned out to be innocent and no big deal. They said it may come and go her whole life probably more so when she is sick. She never has to have it rechecked by cardiology or anything unless her private peds think there is a problem. So far, so good.
 
Name:  Linda    Email:   
Child:  Adam 8
Comment:
247    Tuesday, 23 September 2003 - 10:05:24pm
RO - Congrats Girl!!! :) :) We are all sooooo very proud of you -- you chose a good field to get into as I am sure you'll find lotsa opportunities for a job almost anywhere! - AND I am sure you will be a GOOD Nurse too - you are such a sweetie!! :) (Rowdy at times - BUT Sweet!! )

Betty - I would bet that it turns out to be an innocent sound -- I have a heart murmmer like that - comes & goes -- BUT wise to get it checked -- may need to have him on antibiotics (penicillin) when he gets older & he has his teeth cleaned (I was on that -- taking them just when I got my teeth cleaned - until they did tests to determine I didn't have the "dangerous" kind of murmmer where you could develop a heart infection from the teeth cleaning.....) So it's wise to get it all checked out now. Adam went for several years to the cardiologist - even tho he was determined to have a sound heart when he was born -- the DR just wanted to check & make sure - as a very teeny tiny hole can become bigger & more noticable over time --- but they gave him a clean bill of health last year or so, so no more DR trips there! --- Soooo cute they gave him a little handmade bear with a heart on it when he was discharged!

Ok - will be back - gotta get him moving on his homework -- since all the kids have been out the past week - different ones out on different days w/ a little stomach bug - they all have some catching up to do!!

Hugs!
Linda

PS - Debbie -- I am Soooo glad you posted -- was wondering how you have been & where you have been -- we missed hearing from you!! --- Debbie - if I can ask -- do you remember what age that you began to feel or notice you were "different" from the other kids?? Lately Adam has been saying he doesn't like school & he doesn't like homework -- and I am just thinking - it might be because he is not feeling well, BUT it also might be that he is beginning to notice a difference between what he can do & what the other kids are doing.......He's 8 - will be 9 in NOV but he is a perceptive little guy! His aide says he does fine when he's at school - sometimes gets a little tired - but otherwise good reports coming home.....

Annie & Tammy - glad to see you post up! :)
Steff - where are you? Everything OK?

Barb - is it true about Susan coming to Niagra Falls?? We could do a Mini Get together!! Fill me in! :) - E-mail me if ya don't wanna p[ost up details here incase we have a rude person still among us!:)

 
Name:  jackie  
Child:  justin
Comment:
246    Tuesday, 23 September 2003 - 05:30:46pm
Betty my nonds daughter about 2 years ago went in for her annual checkup and they heard a murmur so off to the ped. cardiologist, but as it turned out it was just an innocent one since she is soooooo small you can hear everything going on in there. We will keep Christopher in our prayers and please let us know how it turns out
 
Name:  Suzi  
Child:  Merideth 2 1/2
Comment:
245    Tuesday, 23 September 2003 - 03:51:03pm
Betty, Meri's defect was like that.They heard it at birth then it was supposedly gone & we kept saying "At least her heart is ok" Then, we took her into the DS clinic at Children's & the found it there during supposedly routine testing.Hers is asymptomatic (she's not on any meds)yet they want to operate to close the hole, diagnosed as an ASD before she starts school next fall.
 
Name:  Betty(grandmother)    Email:   
Child:  Christopher Kelly 3yrs
Comment:
244    Tuesday, 23 September 2003 - 02:02:59pm
Hello everyone:
Christopher had his 3yr checkup at the DR. yesterday and the Dr. heard a heart murmur for the first time and they are going to send him to a heart Dr. to get a ultrsound done on his heart. His mother was about to fall apart when she got this news. and we were just wondering if anything like this has happen to any of the other kids..They have always said his heart sounded good and strong. so this is just such a shock to us. When his was born the heard a little one but it was gone before he left the hospital and was never heard again. He has been to lots of dr for colds ,ear tubes and in the hospital with the croup several times and it still wasn't heard. we were just wondering if this is something that has happen to any of the other kids ...I know my sister oldest grandson had one show up and it was nothing serious..So we are hopeing and praying that Christophers won't be serious...Betty
 
Name:  Tammy    Email:   
Child:  Lewis
Comment:
243    Tuesday, 23 September 2003 - 01:15:28pm
Just re-reading my last post... sorry for all they typos...
Hope it makes sense to someone...
I think I need to go to bed....
I have the WORST Hayfever...
Go On Robin... you can LAUGH... there is a DOwnside to living in the Lucky Country... SPRING WILDFLOWERS!!
And the fact that O spread a Truckload of Garden Mulch yesterday doesnt help it either....
Antihistamines have a bad effect so I am not thinking or seeing quite as well as I should...

 
Name:  jackie  
Child:  justin
Comment:
242    Tuesday, 23 September 2003 - 01:14:14pm
Congrats RO!!!!!!!! ok Susan there's a shortage here too lol, my youngest sister goes in to pull her little short 4 hour shift and ends up working another 12. That's Michigan Ro ;) just in case you forgot.
Sharyn the ballet sounds great can't wait to hear how Kim is doing in there.
Well gotta scoot I have an interview here at 10:30 keep your fingers crossed and if you can spare a few prayers I really want this one it's for Parent as Teacher through Justins' school.
 
Name:  Tammy    Email:   
Child:  Lewis.....say no more...
Comment:
241    Tuesday, 23 September 2003 - 01:10:22pm
Hello again... my once weekly check in...
Or so it seems lately...

Robin... A Kidney stone?? Blimey Girl... they reckon giving birth is actually easier than passing a kidney stone!! Need I say more...
BIIIIIGGGG Huggles for ya....

RO... congrats on getting your Licence!! YEEEE-HAAAA all those years of study have really paid off...
BTW... Our Govt is offering "incentives" to nureses from overseas to come and work here... We have a real shortage of qualified nursing staff... Talk to ANY backpacker.. you can get LOADS of work with ANY agency here...But I wont go into the details about pay etc which is the REAL reason we have a Nursing Shortage!!... But Just a thought if you were looking at a working holiday perhaps??? (HINT HINT)
BARB... I can really realte to you and your problems woth your daughter... My 11yr old is EXACTLY the same as you described... and it is just sooooo frustrating knowint they could do sooo much with thier life but seem to chose to throw it away..*sigh*...
My only hope is... I look back and see myself much the same (and my mother will confirm) and I didnt turn out too bad... or so they say anyway..LOL...So maybe the same will go with our girls...(fingers crossed)...

We went to the paed a few days ago and we increased the dose of Emily's medication... after only 3 days on a higher dose... the difference is very clear... So far things have settled down quite significantly. And I am Soooooo happy about that...

Lewis is doing great... seems to be having a language spurt this week... he has made a few 2 sign sentences while attempting words (babbling) at the same time... all progress as I see it...

This is our last week of school, then 2 weeks holidays... Dont know wether to laugh or cry...
We will be going camping for the first week, and will be away off and on for the second week..
I will check in and catch up before then...

Health Hugs and Happiness...
Tammy... and the Mob...

 
Name:  Barb    Email:   
Child:  Alison - 6 months
Comment:
240    Tuesday, 23 September 2003 - 02:09:16am
Evening all!
Well, just got home from the old meet and greet with my 13 yr old daughter's teachers. One word will sum it all up: GRRRRRR!!!! Only 3 weeks into the school year and this kid who is so very intelligent is already screwing around with not turning in homework, sneaking books inside of text books to read when the teachers are lecturing. It just makes my blood boil to see this kid who gets high 90's on exams and quizes barely passing cuz she doesn't turn homework in on time. She does it when she is supposed to but somewhere between the house and school there is a black hole that seems to suck the papers out of her bookbag!!! This has been an ongoing problem and every year I do everything I can think of to try to help her stay organized, but to no avail since I can't make her turn it in when she gets to school!!!! GGGRRRRRR!!!! And this year it is even more frustrating knowing how easy all of this comes to her (she really doesn't have to put a whole lot of effort into her school work and still pulls high 90's on exams) and knowing how much of a struggle school could be for Alison in the years to come. Sorry, just had to vent!!! On the up side, her teachers all said she is a wonderfully bright and energetic and pleasant kid ( I think they must have her confused with someone else as far as the pleasant part goes as she is anything BUT pleasant to be around at home lately - gotta love those 13 yr old girl hormonal mood swings!) and is always willing to help her classmates who are having trouble grasping some of the concepts they're covering in class.
Susan: Rumor has it you may be taking a trip up here to Niagara Falls? True or False? If ya are we have to make arrangements to get together, ok? E-mail me!
Robin - glad to see your getting back to feeling like yourself again. Missed ya!
Okay, gotta head back to work now, doing a split shift what with the teacher meeting going on. Hopefully things will have quieted down since I left - I needed a pair of rollerskates it was so crazy there earlier!!
Have a good evening!
Barb

 
Name:  Susan  
Child:  Emily, age 12
Comment:
239    Tuesday, 23 September 2003 - 00:58:15am
RO~
There is quite a nursing shortage in Cookeville TN....especially where I work!!! Hint, hint! I'm proud of you girl!!!
Susan
 
Name:  Annie S  
Child:  sonny9
Comment:
238    Tuesday, 23 September 2003 - 00:02:38am
Wow that is so great Ro....Congratulations..
Haven't been on for awhile.Time seems to get away from me..I had a shower last weekend for My DIL who is due Oct7 but don't think she is going to make it..she is already dialated to a 3. She is having a boy and we just found out my other dil is having a girl in Feburary...wow Iwill have 5 grandkids by next Feb...I just love buying baby stuff
Robin so sorry to hear about all your problems hope your feeling better you poor dear..its just seems to keep poring...prayers your way...

Need to get good week all
Annie S
 
Name:  Barb    Email:   
Child:  Alison - 6 months
Comment:
237    Monday, 22 September 2003 - 07:05:55pm
SUE: I read the article back awhile ago in the Boston Globe about the ballet's program. It sounded absolutely wonderful. Gotta say I am a little jealous you and Sharyn are so close to Boston (my hometown!) and the program. A friend is involved in the production side of the Nutcracker and said it was such a treat seeing the kids in the classes come backstage and meet with the dancers and check out all the props. She said this year they are going to try to include some of the kids in at least one show too!!!
Hope you all enjoy the day... gotta run as the little monster is growling very loudly!!!
Barb
 
Name:  Sharyn    Email:   
Child:  Kim 12yrs old
Comment:
236    Monday, 22 September 2003 - 05:29:46pm
Hi yes the boston ballet is on Saturday morning at 8:00 and there is two classes . This is my daughters first year. Last year they were on chronicle on tv and the Globe did an article about the kids The kids got to see the nut cracker for no charge and got to back stage and meet the dancers . There is a woman who works at childrens hospital that put this all together her name is mickey her # 617-355-7223. They have not so much ballet as is a movement group. hope this helps you
Sharyn
 
Name:  Sue  
Child:  Haley
Comment:
235    Monday, 22 September 2003 - 03:37:12pm
Sharyn,
Can you tell me about the ballet? I'm in RI so I'm not too far from Boston - I have heard a little about the Ballet, do they have a website? Is it only ballet? Or all dance? Thanks for any info.
 
Name:  sharyn    Email:   
Child:  kim 12yrs old
Comment:
234    Monday, 22 September 2003 - 01:50:09am
my daughter is in the 6th grade at middle school. We have been having a hard time with the school system for over a year I recieved her iep last year in april ,they forgot to put speech on it so they fixed it the next one they had made alot of errors on her specials , It took so long that in January I got the third draft and the same thing was wrong alot of errors that we coulnt except. So needless to say Kim is now in sixth grade with her fourth grade iep still .in place so on Friday I called the state Dept. of Ed and talked to this very nice man and he said he would call them and I received her ed plan that same day and it was the same one that I rejected in January still with her summer program on it ,they just changed her placement . I am going to call the state again on Monday and let them know what they did , The state might just think oh they are all set cause they got the iep Thanks for listening Sharyn
If any one is from around the Boston area my daughter just joined the boston ballet ds group it is awsome
 
Name:  Pat    Email:   
Child:  John-John, 4
Comment:
233    Sunday, 21 September 2003 - 06:18:30pm
I am SOOOOOOOO proud of you RO! What is next? Do you have a job yet?....(((HUGS))) to ya friend!!!
 
Name:  Dolly  
Child:  Eric..3 yrs.
Comment:
232    Sunday, 21 September 2003 - 02:23:51pm
RO:
CONGRATULATIONS!!! Thats a terrific accomplishment!
Its a challenging career...I have been a licensed
practical nurse for 28 years..and wouldn't change a thing..I'm sure you'll fit right in. Have you gotten a job yet? The jobs are usually pretty plentiful for nurses, at least here in Ohio. In fact I'm trying to steer my daughter towards some kind of medical career.
The money is good and you can usually find a job.
So congratulations again, and good luck! Dolly
 
Name:  Maria  
Child:  Steven
Comment:
231    Sunday, 21 September 2003 - 01:07:35am
Hi Unomas, hope everyone is healthy, we are better here now .Steven missed a week school because of nasty stomach virus, then I got it and then Theresa got it after , it was no fun !!!! Well Isabel hit us here but not bad at all only our fence got broken when two big tree trunks fell on it , i could not sleep all night tho cause the tree was on the same side where Gaby sleeps. Robin hope you are feeling well , Annette gad to hear you faired well with Isabel , glad you are all fine and your animals too. Sure miss you all, Jackie thanks for the pics , Steven was happy to see Mela on the comp. Hope to catch you all in chat Sunday , hugs , MARIA
 
Name:  Robin    Email:   
Child:  Chase/11
Comment:
230    Saturday, 20 September 2003 - 11:35:35am
Morning unoworld... I have been up since 6 am on my own! Dont ask ....I have no idea why, but it is kinda nice, its so quiet and peaceful and the morning is promising to be perfect out there. Thank you guys so much for the well wishes in case I hadnt said that and RO... I agree with ALICE... you need to be the reciepient of a day full of hugs for all the thoughtful things you do for others, including me!!! I cant get into the calnedar unless I do it as a moderator so I am thinking we need MICHELLE to fix it for us so every one can see whose day for hugs it is, whose birthday it is and etc.
SUSAN...hugs for the phone calls, you are helping to keep DH sane and I think he needs to just talk and talk...so thanks for the calls, LOL!! He is feeling a bit STRESSED with this lay off being indefinate, (meaning forever, find a new job?)
Ok I need to go read all the posts and see that uno world is alive and doing well. OH WAIT... before I forget... we have lost Dave and Kathy, parents to JAMES (DS) and little sister Elizabeth. If any one has their phone number PLEEEEEZE call and make sure all is well? We have'nt seen them since the Chicago trip and I am worried and troubled by that. I have sent email and no answers!! Jello... I think this one is on you boo boo ok? Let me know?
huggers to all,
Robin
 
Name:  Maria McCain    Email:   
Child:  Paschal McCain
Comment:
229    Saturday, 20 September 2003 - 04:46:23am
Thank you all for the plethora of gifts, of money, and the genorous Wal-Mart gift cards. This helped get my childs hair to regrow after the difficult and long drwn out, and expensive surgery that my child endured and his hair is still gone. He has found an exciring career in music. Thank u all !!!!!!
 
Name:  Debbie    Email: