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Uno Mas! Archives
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| Name: | steff | ||
| Child: | olivia(6) | ||
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Tracy!!!! HI!!!!! Your son's behavior with the exception of banging stuff(liv HATES LOUD noises) sounds just like my girl too. JENN...4-8 huh??? Ya know I remember you saying that before and this year I am seeing such a HUGE difference in her behavior at home and at school. I remeber thinking OMG this couldn't last sooo dang long!!!!! Now looking back it did last a long time but now it just doesn't feel like its been that long.(kinda like that forgetting the pain of childbirth and ACTUALLY wanting to go thru it again??? LOL) TRACY... I will tell you what has worked best with Olivia... A BIG NETWORK of people all communicating and informing each other about issues and figuring how we can all work together to extinguish neg behaviors but in a postive way. Once we started to form this little network of people that know and love Olivia, which really happened when she was 5 inparticular, we found BAM negatives would disappear fast as long as we all consistently did the same thing. It blows my mind how fast Liv can learn positives as well as get rid of negatives this way. The sitting down issue well at 4 that was a TOUGHIE for Olivia. Maybe you can find out how long he is expected to sit? Like how long the kids sit for a story or activity on the rug???? Thats important cause really Olivia had to develop that skill and it took time. We would have her sit as long as she could tolerate and they'd let her sit in the little preschool library and read (pretend to read LOL) books. Then we just added a few extra minutes when she wanted to get up . And then eventually she could sit for WAY longer than when she started preschool. NOW in her first kinder there were probs and she had screamers in the class and the teacher and the aide were always complaining Olivia was hiding under the desks covering her ears. WELL DUH. They reprimanded her for that when sheesh I COULDN'T TOLERATE someone next to me screaming. I woulda gone bing nutty. She's not there anymore.hee hee. But in kinder last year at our home school we found that thru collaboration amongst the sp ed kinder teacher ot's st's principal and inclusion facilitator we could accomplish more than ever dreamed of when we worked as a team rather than opposing forces(sp ed vs reg ed LOL). For example my girl thrives on praise. So we found when she started rolling around on the rug in her reg ed kinder class that the teachers needed to take another approach rather than what they were doing. They would say when Liv laid down or started just being a pill crawling on the floor. "Olivia sit up now blah blah blah..." well when the sp ed teacher came in to teach Olivias kinder class so the kinder teachers could observe they say her say.... "oh Ruby look how nicely your sitting up. And Max your really sitting up nice and listening. BLAM LIKE MAGIC my girl darts up sits up as straight as she could and listens and waits for her little positive boost. It's funny what a simple thing like that can do. AND they or I woulda never learned that if we all didn't talk all the time. Also her afterschool program was involved I would tell em .Look we are doing this to get Olivia to do whatever. And they would do the same thing we were doing. Having this network has saved my life from so much undue frustrating stress. Olivia had huge sensory issues as a baby . Her ei at 5 months which was a center based program was all sensory integration basewd. She HATED to touch playdough sand really just textures. They just exposed her to it little by little and when we moved I signed her up ast another sensory based place and her ot did a lotta work with her and man she has no sensory issues at all with the exception of loud noises and I am the same way so hey I can deal with that just no coming to concerts with me!!!! LOL and I am so brokenhearted about that. The joke in our house is that since we live in L.A. is we could bring her to Clipper games but NEVER a Laker game cause they are loud and the arena is filled to the brim. Good luck!!!! | ||
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| Name: | jenn Email: | ||
| Child: | Courtney-10 | ||
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He sounds IDENTICAL to Courtney.... In Courtney's case as many of her friends it was a delayed terrible twos...and it lasted for 4 years(4-8)! They basically need to look at him like they would a two year old. When they(school)finally realized that with Courtney, things improved a bit but it did last awhile. We had a behavior specialist come in from the dept of education and they made out a plan.....keeping in mind, that they were dealing with a "2 year old" mentally. It does get better....I know how frustrating it is though! Good Luck! Email me if you want to talk.... | ||
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| Name: | TriciaF Email: | ||
| Child: | Patrick 4 | ||
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http://groups.yahoo.com/group/ds-autism/ | ||
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| Name: | Adrienne Email: | ||
| Child: | Russell and his sisters | ||
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Thanks A. | ||
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| Name: | Tracy Email: | ||
| Child: | Jake | ||
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| Name: | TriciaF Email: | ||
| Child: | Patrick 4 | ||
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| Name: | kathy Email: | ||
| Child: | Darius 5 yr. 9mos | ||
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| Name: | steff | ||
| Child: | OLIVIA 6 | ||
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Okay you guys one thing before I get back to my UGGG 48 page typed presentation and research paper and study for my 7 chapter test tomorrow and type my weekly reflection. OTHERWISE nothing to do.LOLOLOL....My girl is READING!!!!!!! UNBELIEVEABLE.... he's got a baseline of a lot of the important words. now she is just beginning. But last night she read me a story about the boy jumping running etc. She knew every word!!! I was AMAZED!!!!! What we have been doing is repetitive books we read em make flashcards of the new words and teach her the signs for the words as well but it is WORKING!!!! Thought I would share this really cool moment. Thursday she goes for a sleep study at childrens. She does the nap polysonogram cause she drinks and tolerates the chylorl hydrate well. Gives me plenty of time to study too sheesh I'll be in that room so might as well get some stuff done. I may start doing internship at our hospital in the child life department. they are in desperate need of child life specialists and I thought it's a great way to get my foot in the door and learn from the pros. SO...we'll see how much I can take. All is well here hope Jenn and the floridians are well and safe and dry .HUGS Steff | ||
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| Name: | Connie Email: | ||
| Child: | Collin | ||
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Funny you should post I was just thinking about you and our chats we used to have and "T-man" (that was you wasn't it? Glad to hear that everyone is doing great!!! Sounds like Clarke is going to be one tall boy. Collin is a very square child. He is 40" tall and 40lbs. Speach and fine motor are our tuffest areas. While Collin has made great strides in his speach this summer we still have a ways to go. Glad to hear from you!! Connie | ||
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| Name: | LORENA Email: | ||
| Child: | Clark 7 years old | ||
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I know I am a stranger here anymore !! I enjoyed reading some of the posts and saw many familar people ! My name is Lorena, married to Keith and we have 3 sons, Craig 18, Caleb 15 and Clark 7. They really keep me busy, busy, busy. I miss seeing and hearing from everyone !! Clark is doing pretty well. He still doesn't talk too much but he has been diagnosed with Dyspraxia and has been seeing a oral motor specialist since July. He is in 1st grade now. He is about 90 pounds and is 4 foot tall. He just started wearing glasses in April !! He hates them but we continue to put them on him in hopes that he realizes that he sees better LOL. As for me I am working now everyday but Sunday and Monday so I don't have much computer time anymore. I think of you guys often but very rarely get the time to post. I really did enjoy reading some of the posts and I would really like to get back into Unomas :) Are you all still doing chats on Sundays and Thursdays ? Let me know. Well I need to run and get stuff done around here. Hugs and kisses to you all, Lorena Z | ||
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| Name: | Dolly | ||
| Child: | Eric..4 yrs. old | ||
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Hope all our Floridian friends are safe...wow, you've really had a wild ride this summer/fall. Praying that you've seen the last on it!! Went out last night with the hubby...went to the Cleveland Improv comedy club...does anyone watch "Last Comic Standing"? We love the show! Last night we saw 3 of the contestants from the newest season... Alonso Bowden, Jay London, and Gary Gelman(my personal favorite). It was a really funny show! All three guys were terrific. And the humor remained "family friendly" for the most part. We really had a good laugh...something we definetly needed. If you are a fan of the show I highly recommend seeing these guys if they are in your area...Dolly | ||
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| Name: | Embry Email: | ||
| Child: | Margaret (sister) | ||
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Hope things are going well for you...I also wanted to thank you for recommending "Riding the Bus with my Sister." I'd love to hear how you and your family are doing and how your summer went. Take care, Embry | ||
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| Name: | steff | ||
| Child: | olivia(6) | ||
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Michelle... When Olivia started our home school last year we redid her IEP in December. The classification she got was MR. She did NOT take an IQ test this was done after her evaluations they do at 6. In Cali we get em every 3 years. Ya know like the testing they do at your childs first IEP. NOW MR does not bother me but it does some. The reason besides the fact that Olivia does have mild MR is also for the fact that Olivia does NOT have to take the state tests and nationwide CAT/6 exams. They give her a seperate one that suits her needs. BECAUSE here in Cali and I think your from here they give $$$$$$$ to schools based on the performance on these tests. It would not be fair to test Olivia on these and have her test scores count. PLUS the fact we have a school that is really supportive in inclusion mainstreaming as much as possible and how fair would it be to count all the kids scores as opposed to a school who shuns sp ed students in the reg ed classrooms. So whatever it takes to have my girl accepted with open arms by the reg ed teachers is a good thing and besides I guess I come from the frame of mind that MR is merely a label used for these purposes and MR is not a bad thing just means slower. It's the ignoramous fools out there who use the word so casually that make this an "evil" "mean" word to a lot of us with kids who have extra needs developmental delays MR or whatever you wanna call it. Well I wanna share a few things about Olivias school but have to share a weird story that happened today. I have this one class that deals with child community and socialization. LAME teacher but I am good at getting her off track about mesosystems chronosystems and all those words that really mean nothing in the real world. Anyhow today we were discussing different cultures and how they view the family structure.WELL we have 2 guys in the class and the rest girls. So the guy makes some really lame macho comment. Now I know he does this to get to the girls' goat so I ususally just ignore it. WELL a battle begins with the guys and about 10 girls. One girl in particualr is always one to shoot him down when he makes macho statement. So a battle ensues and the class goes nutso yelling at each other. Finally after bout 10 minutes I could not take it anymore. I come to school to learn and this college professor has absolutely NO CONTROL of them they just won't stop or shut their mouths. So the name calling begins between 2 of them and the girl calls the guy a STUPID RETARD. About this time I have had it I come to learn not this bs and the teacher is so far saying not much. SO I decide it's my turn to talk without being asked cause they've been doing it for 10 minutes and I had enough. SOOOO I say LOUDLY(and I am the old lady of the class LOL) WELL Now are we all in this because we want to work with children???? What is up with all the name calling. Are the kids you gonna teach call people names? WELL I';m tired of this if this is what you guys are gonna do the whole class I am leaving. Even though I don't agree with him I am certainly not here to judge anyone or be a baby and call names. THEN and ONLY then did the teacher start with thanks and began to give her lesson on judging people etc. UGGGG to be an old lady in a class of 20 year old and a teacher who is just a wimp irritates the you know what outta me. PLUS the reason I did not say anything about the R word is because next week I am doing my presentation on ds a general overview(historical) educational approaches early intervention and also how society and communities view ds as a whole. In the very end I am going to tell them I am a parent of a child with ds show em pic's of her from birth to now, discuss my issues, and scratch out Olivias name and personal info on her IEP and make copies to show them what an IEP looks like in case they don't know. THEN I will talk about the RETYARD word what it means in the dictionary and just say how professional educators must be very careful of ever using this word cause just like in this class they may have a parent or a staff member etc who has a child with mr who might get very hurt or perhaps justifiably FIRE EM...LOL Whatcha think? I didn't say a word today and only one person in the class knows Olivia and I asked her to not say a word to the class cause I want the class full of 20 somethings who have FREQUENTLY used the word RETARD to be in for a BIG surprise. Also I didn't wanna say something today cause they were very angry and talking to an angry person is really no use to me.It's hard to feel like they are not being attacked and wanted to send the message in my own way. Okay enuf ranting. Olivia is doing so well in her class.She has been doing the best in her class in paying attention and come a LONG way academically. I think she is just FAR more developmentally so now it is coming easier. Sometimes no matter how hard we push if they are not ready developmentally it's practically fruitless not like you shouldn't expose kids to it but don't force em to do something their mind and body are not ready for.(just my humble opinion here) Well today I watched her and a friend from sp ed class (as I was waiting for the kids to get out of school) holding hands walking out of the 1st grade classroom right to their sp ed class. I was sooo proud.(no aide today or yesterday) AND her teacher came up to me afterschool(they go back to sp ed class about 3 minutes before the bell rings) and had Olivia tell me what she told her. Olivia went into a VERY detailed description about EXACTLY what they did. From getting a seed to how very soft it was and how they put it in a paper towel and wet it so that it will grow into a plant. ALL on her own. I was VERY impressed. Her teacher and her aide have both expresed to me how well she listens so far and get this how she is the best listener and best behaved kid in their class(sp ed) of 10 and Olivia is BY FAR the most cognitively behind all of them but alas her social skills and behavior have been excellent so far. Proud mommy moment. AND something ironic. When Olivia was at the sp ed kinder which wasn't our home school 2 years ago which if you remember we hated and regretted putting her in I had a few encounters with the head of sp ed when it came to Olivias revised IEP in June so we could have everything rolling for reg ed kinder at our home school. WELL her teachers wanted to leave her IEP as is and I said no so we did the last minute IEP(since we were switching schools to our home school where her bro goes). WELL for days before the IEP I played lets make a deal with the district lady by phone. Now we were very polite but I was not gonna budge on what I wanted for Olivia at the new school and she wanted to give us FAR LESS!. WELL needless to say after many phone calls before IEP this ladyn kept giving me a little of what I wanted each phone call. FINALLY after like 20 phone conversations she gave in and gave me evrything we wanted for Olivia and more. GUESS who I read last night is our new vice principal??? LMAOROTFLOL!!!! HER... Today I went to the office had her called out and said I am Olivias mom and we laughed our patooties off. I gave her the ya know we were both doing our jobs and I hope there are no hard feelings and I am glad she is here and we laughed as the ENTIRE OFFICE as well as the principal(whom I ADORE) were all silent and listening intently. I could see the entire office staff who know me well(i do a lotta classroom volunteering and Liv well EVERYONE knows her) all finally breathe cause they weren't sure what was gonna be said. So we now have a princiapl whos goal it is to have all the sp ed students either fully included or mainstreamed as much as possible not just an hour or 2 a day, AND a VP who has 25 years in sp ed and was the head of our district sp ed dept which in Los Angeles is HUMONGOUS!!!! And Olivia sp ed teacher is so great she gives me crap occasionally but its well deserved. LOL... She really doesn't give me crap but she will correct me when my wording to Olivia may not be the most benficial and other words may work better. For example. One morning I think the2nd day of school I said to Olivia remember DON'T go up the slide today. WELL the teacher heard this and said just remember what Olivia is hearing. (like the last words go up the slide) She told me to say Olivia why don't you try climbing up the steps and slide down on your booty today!!! I've always told her she can't embarass me I DEFINATELY need to be reminded cause when we are in a rush its tough to think about how kids may take your words and positive is the way to go. AND that is the end of my novel I love ya guys and take it easy K??? HUGS Steff | ||
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| Name: | Adrienne Email: | ||
| Child: | Russell and sisters ;) | ||
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Michelle, I emailed you regarding the MR testing topic you posted here. I hope it got to you. I basically said that the diagnosis is for services, kinda like what Jen said. You NEED that diagnosis for services!!!! Don't let it get you down. Some states use Mentally delayed or MR... I think Russell's says MR and VI... Mentally Retarded and Visully Impaired. After his 6 yr old school testing. Without those boxes marked on the paperwork, he wouldn't get the help he needs. Also, if you look back at previous IEPS or other paperwork... it probably was on there before.. but just may have not been brought to your attention. A. | ||
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| Name: | Sherri Email: | ||
| Child: | Jared 7yrs | ||
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When my son transitioned from EI (Early Intervention)to the our local school district, we were given a choice of classifications that were taken from our state's "Policies & Procedures Manual". We chose to have Jared listed as "developmentally delayed". The law reads in the state of Oklahoma that you can only use that classification until the child turns 9 yrs of age, then we have to choose another one. The only choice left at that time will be mentally retarded. My suggestion is to contact your local State Department of Education & request a copy of your state's "Policy & Procedure's Manual" so that you can have a hard copy to go through for yourself. (Great manual to have, you never know when it will come in handy at your IEP meetings.) In the mean time, you can also go to www.google.com & type in your state name to find their web site online. (Ex: Oklahoma State Department Education) Then when you get there go to the special education section & look under classifications. You should be able to find all the choices listed there. I would also like to share that even though there are federal laws in place, each state interprets the laws differently which brings in the "State Policies & Procedures". Also each state will have different classification, so you might not see "developmentally delayed" listed in your manual. I wish you guys all the best!! Sherri Ps: I highly recommed all parents that have a child transitioning to the their school districts from EI in the next 6 months to contact their local state dept. education & get a manual sent. Then hopefully you won't be caught off guard with any surprises according to the laws. Our manual is fairly easy to read & understand :) | ||
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| Name: | Jenn Email: | ||
| Child: | Courtney | ||
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Courtney never had an IQ test but from her deifferent evaluations teh have her listed as mild/moderate mental retardation. They came up with this at age 6. Its just one of those things they need for a qualification for an IEP. | ||
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| Name: | TriciaF Email: | ||
| Child: | Patrick 4 | ||
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As for the name, I'm willing to bet there are dozens or hundreds of groups with that name or a variation around the country. Our group is Up on Downs. I think they are pretty common names. | ||
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| Name: | laurie Email: | ||
| Child: | MM | ||
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| Name: | Michelle Email: | ||
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| Name: | laurie Email: | ||
| Child: | laurie | ||
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I just replied to you on the BB but I didn't understand that the UWD was YOUR website...sorry - dopey me! Contact ABC and mention that segment...and mention that that website is yours. very strange --- let us know the outcome! laurie | ||
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| Name: | Jenn Email: | ||
| Child: | Courtney | ||
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I need to get in contact with the ladies they featured. The founder of Up With Downs contacted me last night when she saw this. Our group was started in 1987 and has been registered with the goverment since then. I am not complaining about the article....I am glad they are putting the word out!! But, we need to make arrangements or something about the name of the group for legal reasons. Go check out the link! It has a link to our website and everything....?? I am stumped. Just click on my name... | ||
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| Name: | Rickismom | ||
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1- cat poop can carry viruses extremely dangerous to pregnant women. So NO kids (who could in turn infect their moms or friends moms, should be doing this job without gloves. 2- Negative consequences (punishments) are often self defeating. It sounds to me that your child needs a well organized prize system, and either "natural consequences" or MINOR loss of privledges WITH NO ATTENTION GIVEN if absolutely needed. 3- Is the school work adapted to his level? Does he have a chance for "time out" to an easier activity when he has "had it"? If he is resisting work, the problem is most probably with the school work. | ||
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| Name: | Robin M | ||
| Child: | Maggie - 3 years old | ||
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Just wanted to drop in and say hello. It's been forever since I've been on this side of the board and I don't dare try to catch up! I'm taking two classes to renew my teaching degree and it's keeping me busy. Maggie's been doing well. Just got over her fall cold. Let's hope that's all there is to that! She started back in homebound preschool. All the therapists come here as does the preschool teacher once a week. Maggie enjoys MOST of it. There is that OT that she can't stand! :) Matthew is playing football and started 5th grade. We're still homeschooling him and he likes it. I'm ready to ship him off some days, but most of the time, I enjoy him being home. Tim is STILL working on that garage. Oh I will be so glad when he gets that thing done! Ugh! He's assistant coach on the football team too, so that's exciting. Maggie's still struggling with her feeding issues. No chewing! I'm way tired of all that. But, I'm resolved to wait and see now. Robin (Chase's mom) says she doesn't know a child with DS who doesn't eat...so I'm waiting!! We got a new kitty...Scardy Cat! He's cute. The dog tries to eat him, but lovingly. Maggie loves to carry the cat around upside down. The cat was tolerating it well till today. I think he's getting old enough to figure out he has a choice! Gotta run. Just wanted to say hi and check in. Take care. Robin M - Maggie's mom | ||
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| Name: | Annie S | ||
| Child: | Sonny 10 | ||
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Iam a co chairman for the Buddy Walk here in Salt Lake and it has me so budy...and church too.. Sonny is doing great he starts soccor soon he is excited about that.. Steff hope Jeff is doing better he has been in my prayers.. Michelle so sorry to hear about your Mom ... I know Iam so behind on all Birthday's this is a late Happy Birthday to Courtney and Cody.. Take care all hope to chat sometime soon ... Annie S | ||
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| Name: | Sherri Email: | ||
| Child: | Jared 7yrs | ||
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You're welcome!! Boy, it sure sounds like you've got alot going on in your household!! Glad to hear that Jeff is doing better. And I wish you all the best on your school studies. Let's see......you must have talked to Becky about Mr. Jared, lol. I can only imagine what it would be like to have Miss Livy locked up with Mr. Jared. Wonder who would win as "boss",lol ;) He does crack me up though with the things he says. Just the other day he was upset with his dad & he came in saying "Jared don't do this. Jared don't do that. Everyone is always telling Jared what to do." lol ;) Take care & have a great week!!! Sherri | ||
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| Name: | Kathy Montes Email: | ||
| Child: | Darius (5) | ||
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| Name: | laurie Email: | ||
| Child: | MM | ||
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good luck! laurie | ||
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| Name: | steff | ||
| Child: | OLIVIA 6 | ||
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| Name: | steff | ||
| Child: | OLIVIA 6 | ||
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| Name: | Donnita Email: | ||
| Child: | Cassandra, 3 | ||
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He should NOT have to clean up cat poop! I personally would not want my child to have to clean bathroom walls, either. Sure, his "community service" needs to be something that he doesn't really want to do, but it doesn't have to be something that NO ONE wants to do. And it definitely shouldn't be something that could be hazardous to his health. Some other, less nasty, jobs could be to dust shelves in library or office, wash tables or trays in the lunch room, pick up trash in the library or hallway, even wash windows. But he should not have any jobs where he is in direct contact with animal or human feces. That's just NOT right. What kind of community service do you have him do at home when he refuses to do his work? Donnita | ||
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| Name: | Julie Email: | ||
| Child: | TJ- 9 years old | ||
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| Name: | steff | ||
| Child: | OLIVIA 6 | ||
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School is WAY harder than I thought it would be.4 got how many papers and presentations I have to do. It's great though. I LOVE 1 class one is a dragggggg... and the other is pretty tolerable. Got a little of everything this semester. Michelle. Oh man your mom now??? is everything alright? I hate to hear that. My bro just got done with his last chemo for a bit. In my mind I look at him and I can see a HUGE difference between his first chemos and these now years later. He ...I know i MAY SOUND CRAZY....just seems like he is cured in my eyes. There is something different about him this time than last. Its that crazy sixth sense. We will pray for your mom. Sherri... THANK YOU!!! I searched high and low for that ? and answer. I couldn't take it anymore...LOL Thank you for saving me many hours searching on the computer... :) My red eyes thank you... I hear that Jared is a chatty young man. Ya wanna lock him and Olivia up in a room? How tall is he??? He always seemed like he was a tall guy. Olivia in comparison with her 1st grade pals is almost up there . I havene't seen a huge difference like I had expected when we came back from summer. Susan...hi girl no yahoo hubby took it off the puter 10 minutes after I installed it.GRRRR. I have to see what is up with my computer that it won'tt install... Driving me nuts... MIA yay!!!!! thats awesome. The world will look a bit different now!!!! :) Jenn.... Oh man Courtney is so darned cute. I still do a double take when I see your posts on the MB lately and it says Courtney 10.... Dang it goes by so fast.How is your husband doing???? Sess wow Ben is rolling over young. My girl did not roll around and get herself to sitting till she was 14 months. I could sit her up at 7 months and she could sit 4 ever but don't EVEN ask her to get there herself or out of it herself. Gotta share.. hee hee... WELL last week I took 1 night and stayed at a hotel nearby. My hubbys feeling great now and I HAD TO GO.... I was far too stressed out. SOOOOOOOOO I hear from my neighbor this morning. She says did Jeff tell you what happened the other day??? I say NO. WELL apparently the day I was gone he was on our side yard with Olivia.... She had the magicians wand and was waving it doing different tricks with her daddy,she's soo funny cause she picks up that wand and waves it and says,,, ALACZAM ABRA CADABRA ALAKAZOO...(weird child lol) WELL she apparently said Daddy will DISAPPEAR!!!!. She walks in the house my hubby goes to the garage. She goes out on the side yard doesn't see her dad looks out front then walks 3 houses down to my friends and knocks... She says CHERYL I GOTTA COME IN. She lets her in. Cheryl says Liv was nervous as all get out. She asks her what is wrong... Liv lifts up her magic wand and with her bottom lip quivering says I MADE MY DADDY DISAPPEAR and the lip started to go and this kid can do a mean boo boo lip. Cheryl said she had to NOT LAUGH cause Liv was sooo serious and as she walked thru our gate there was her daddy coming in from the garage... Wonder why he 4 got to tell me that one??? LOL Well must get going | ||
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| Name: | Jenn Email: | ||
| Child: | Courtney-10 | ||
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We just got home from soccer....MAN WAS IT HOT!!! I posted a few pics in the album. Go check em out! | ||
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| Name: | Vince Email: | ||
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Vince | ||
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| Name: | Susan | ||
| Child: | Emily, age 13 | ||
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Susan | ||
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| Name: | Sess Email: | ||
| Child: | Ben 6 months | ||
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Yeah for Mia who just sat!!! We are still working on it and getting closer everyday. Ben is a champ at turning over though. As soon as he thinks I am just out of sight, or his sisters are, he is over and on that tummy and doing the cutest "swimming" with his arms and legs working so hard to get SOMEWHERE! Thanks for the website! | ||
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| Name: | Susan | ||
| Child: | Emily, age 13 | ||
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Susan | ||
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| Name: | Embry Email: | ||
| Child: | Margaret (sister) | ||
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Take care, Embry | ||
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| Name: | Susan | ||
| Child: | Emily, age 13 | ||
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The first thing that caught my attention in your post was that your mom was going thru chemo. I'm sorry to hear she is going through that! Please give her a hug from the Pace's. I'm glad to hear you had a good Vegas trip. Thanks so much for your gracious thank you here....don't feel like you have to thank us personally! The whole reason for our little gift was to tell YOU thanks for Uno Mas!!! (hmmmmm....did I just thank you for thanking us for thanking you?????) I'm so glad you had fun with the gift certificate! As much fun as the Mom's get together was, I think you should really consider coming to one where ALL of the families will be there. (Maybe St. Louis? Maybe Florida??? Maybe good ole Cincinnati Ohio!) I like what you've done with the banners....they look great! It's good to see you here...even if you're using a dino puter! Susan | ||
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| Name: | Kate Email: | ||
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~Kate~ | ||
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| Name: | Michelle | ||
| Child: | Casey, age 14, Luke 13 | ||
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Anyway, this is the reason I haven't been able to change the monthly banner, or make a new september photo gallery, or access my email. I'm going to try to do what I can tonight on this old dinosaur computer, if I can dig up the right passwords. I'm glad we don't have a October sponsor yet, so that I can make a banner for the September sponsor extend into next month, since their banner didn't get online for half this month already. On a personal note to the Uno Mas girls I met in Las Vegas last February ... this weekend my Mom gave Scott, Casey Luke and me room reservations that she couldn't use because she was too weak from chemo. They were not refundable and she wanted someone to enjoy them. My boys wanted to go back, because when we went last summer, I got the flu and spent most of two days in bed in the hotel room. Then my sister and I went in February to meet the Uno Mas peeps, and I got the flu again! Luke said I get sick everytime I go to Las Vegas, so I loaded up on vitamin C and multi-vitamins on the days preceeding our departure. I stayed healthy this time, and our family had a very nice trip. Many times over the past few months, I've written this online thank-you note and then deleted it, because I thought it was tacky to not mail handwritten thanks. But I'm going to say it and leave it posted here this time. To all the nice people who chipped in on that gift certificate that you gave me in Vegas last Spring... I wanted you to know how much I appreciate it. I held onto it for a long time, because I wanted to "just the right thing" that I could write you and thank you for. Eventually, as Easter approached, I bought a really pretty Spring dress, and when it got warmer I treated myself to 2 great summer dresses and a pair of sandals. It was such an indulgence to buy those pretty things guilt free. Everytime I put them on, when I need something cute to wear, I think "Thank you, Uno Mas Girls!" I thought that last Wednesday too, when I was packing for my trip to Las Vegas. And I thought of you guys a lot this weekend, remember how nice it was to meet you in person. I can't wait until I have the chance to do it again and to bring my family to meet yours. I still need to write that handwritten note, no matter how late it is. But first,I need to see if I can get some of this website housekeeping done from this old computer. If you are having trouble emailing me ... I won't have my computer back until next Friday at the soonest. Maybe I'll make up a yahoo email, until then. Or try to configure this old junker to retrieve my email. I'll try to check the BB and message board for any important info as well. I apologize to the September sponsor... I will do my best to get your banner up. I don't have my graphics or Flash programs on this computer and I've been trying to replace the banner without much luck so far. Michelle Mc | ||
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| Name: | Sherri Email: | ||
| Child: | Jared 7yrs | ||
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You have mail!! :) Sherri | ||
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| Name: | Susan | ||
| Child: | Emily, age 13 | ||
| Comment: |
Susan | ||
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| Name: | Wanda Email: | ||
| Child: | Mia 7 month | ||
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I wanted to update you all on my Mia’s progressive. On Wednesday Mia was with her PT, Mia accomplished two things we have been working on she sat with out support for about two minutes, then she got on the crawling position for about two minutes. Only you guys can understand the feeling I had. I did both cry and laugh. I was so so happy for her. I wanted to share this with you at unoland. This site has been a blessing to me. I do not post allot but I do go on every day almost and read. Thank you all you do not know how much this site has help me. | ||
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| Name: | Debi Email: | ||
| Child: | Gabe l3 | ||
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Thanks for the ROBIN version of Ohio , oh man how we would have LOVED to have been there! | ||
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| Name: | steff Email: | ||
| Child: | OLIVIA 6 | ||
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WOW you guys sounds like an amazing trip I gotta go check out the photo album. PM and PM JR together at last!!!!! OMG woulda loved to have been a fly on that wall. A...PROFANITY???LUSH???LMAOROTFLOL!!!! hee hee.... And Robin at least no rollercoasters were involved. Glad school is getting better for Chase. Speaking of school Olivia is loving it. That child loves her scheduled day. And yes her teacher is awesome.And our home school is just sooo supportive of all the kids.They want EVERY child in the SDC to be mainstreamed into their appropriate grade level for a portion of each day.When I walked Olivia up to her class this morning I said to her..Olivia remember don't climb UP the slide(she got a time out the day before for not listening and refusing to get off the slide and doing it the right way.)WELL her teacher said while all the parents were there ...Stephanie remember what Olivia is hearing. She is very positive and tries to make the rules positive oriented. WELL one new mom looked at me like can you believe this teacher???? hee hee... So afterschool when the new mom was 15 minutes late to pick up her child and got a brief but stern chat from Livs teacher(who is also the boys teacher) she heard me thank Livs teacher for reminding me about changing my way of telling her things in a positive manner. I'm forgetful and PLEEASE these last few weeks have been less than pleasant so my mind wasn't exactly positive oriented which in turn makes Liv behave negatively. I don't mind being corrected in front of people she's just trying to help us all be a bit less frustrated and Olivia thrives on positive interaction. ANYHOW the teacher sat down with us afterschool and told me about Olivia sitting thru the entire story and listening intently. She went out got the book she read and asked Liv in front of me about the story and that child knew exactly what had happened and retold a lot of the story. I was QUITE IMPRESSED. It WAS a story about snowsuits and underwear..LOL so you know that the underwear part CRACKED Liv up.She even let us borrow the book for the weekend. Its got lots of stories by Robert Munsch. Liv loves the potty stories and the way he writes and sat thru 2 LONG stories I read to her afterschool. Guess she's into potty humor.Liv told me this morning when I dropped her at her class line...LOLOL don't know where she got it...But I said Olivia what goal do you have today at school????(i try to ask my kids in the car every morning which I usually get the answer from Liv follow direction ask or listen) well she said in her BEST CINDY BRADY LISP...to be SUCCESSFUL...LMAO....the teachers' aide and I got such a kick outta that one...I'm soo glad her teacher is here for us she is such a good role model for me and really such a individual quirky spectacular teacher. Olivia is going to the first grade all afternoon and in the morning when appropriate. Alrighty then I am looking for a question and answer sheet that Heidi Ashlies mom gave me last year called simple answers to not so simple ?'s children have about ds... Anyone else know where I can find it. It's for one of my classes at school and for my first presentation I am gonna stick with a topic I know about till I get more comfy in class.I have soo much work it's INSANE!!!!! Must get rolling but have a great weekend!!! | ||
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| Name: | Pat Email: | ||
| Child: | John-John, 5 | ||
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I'm trying to get John-John in a morning class mostly for a break. He's not working well with his PT or Speech T so maybe if they see him in school they can get more out of him??? If it doesn't work then I'll can them all. I don't need to waste my time if he won't work with them. I still intend to homeschool him along with the girls. I don't get respite care as I can't bring myself to get him the psy. tests that say my kid has an IQ of ... I guess you can tell the stress level hasn't gone down any! John-John's fine motor skills have greatly improved and they were never bad. Does that give you a clue:^) Sure did miss you guys! Pat | ||
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| Name: | Jenn Email: | ||
| Child: | Courtney-10, ds | ||
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I wish I could have been there!! Maybe one of these days we will get to meet! Are yall going to the conference in Nashville??? We are planning on it! Adrienne? Robin? Susan? anyone? Talk to you soon! | ||
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| Name: | Robin Email: | ||
| Child: | Chase/12 | ||
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Sooo our trip story ya be wanting to hear huh???? I'll tell ys, I cant take that A with me any where, even by phone, LOLOLOLOL! I arrived to see Kristi and Ron standing by the hotel door telling me we have no pool. Yes, picture me freaking out and very not happy after that lonnnng car ride hearing no pool. The guy behind the desk was a total jerk, eeekkkk, I wanted to take my shoe off and wack him one:-D He told me that even though they only had an OUTDOOR UNHEATED pool, he was sure we could warm the water up fast with our body heat!! Honest, I swear he said that and when I said it isnt happening buddy, he then proceeded to tell me we could all use the HUT TUB for a pool...and when I said ALL 30 OF US????? he quickly switched to telling me we could maybe all go hang out at the local YMCA if it was open for a nominal fee!!!! When I kinda sorta got a bit testy, he said he was trying to help me out but I kept shooting his ideas down!!! After I so very carefully explained we were all here with kids with DS and did NOT do COLD pools outdoors, with free mosquitos to keep us company in the evenings, and that we wanted Kristi's money refunded, (another story in itself) and the rooms cancelled with no fee and him to find us another hotel with a pool, he said he couldnt do it and finally summoned the manager, oh and least I forget, when I called my junior girl ms Adrienne to help convince him and handed him the phone to speak with her....... he had the nerve to get rude with her also!!!!! She uhhhhhh, well lets just say I heard him exclaim.....no profanity is needed mam and then I had to fall to pieces laughing so hard. Okay to make this very long exhausting story short.....by the time Susan, Adrienne and Donnita got there much later, we wer camped out in a wonderful hotel next door with a great pool and free breaksfast and they gave us a great discount and threw in a suite for the same price just because of all the trouble we had! I loved that hotel......until the last night they installed 17 (yes I | ||