Thanks Lucy, Isn't it amazing how little the so called educated people really know? I think it's great that you are having another child. I always tell people that if everyone gave up or didn't have their kids because they weren't perfect, no one would have any kids. All kids have their good and bad points and I don't think having DS makes them all that different, it just takes longer for them to learn the bad habits that we wish none of our kids would learn. :-)

hi carol, i cant even tell you all the stupid things people say to me. although i havent had that one yet..since amanda is our 4th child ive gotten things like this one, "well what do you expect you already had 3 perfect children." and now that im due again in sept i get things like " arent you afraid youll have another retard," its amazing to me how i dont punch there lights out..have you gotten this one? " did you do drugs when you were young?" i could go on and on with the idiotic comments but i wont cause all it does is make me want to smack someone. any way my point was you definately arent alone...

Hi Lucy, It seems like only yesterday I was going through the same thing you are going through. The day my son turned three was the day that his ECI program ended and it was time for me to enroll him in school. I was set against it because I thought that he was just too young. He only went for about five weeks and it was horrible. He cried almost everyday and it was the hardest thing that I have ever had to go through. But I knew that it was very important so I stuck in there. The next year things were a lot different. He never cried and he now loves going to school. He has made friends and he has more of a routine there than he has here at home. My other two children or so much older than he is( 23 and 19 years)that it's like he is an only child. He needs to interact with other children. He acts so different when he is in school than he does here at home. Here at home he acts more like a baby than he does at school. He is so grown up at school. They have had better luck at getting him to do things that I never could. Things like picking up his toys, working on puzzles, eating with a fork and spoon, and the best thing he is starting to go to the potty chair. I don't know how but sometimes I feel like we have gotten closer to each other. Even though he is only in school 41/2 hours, I really think that the whole thing has been a positive influence on him. His teachers are just wonderful with him. The only regret is that he was never sick when he was at home and now that he is in school, he seems to come down with everything. I'm told that this is to be expected since he had lived us a shattered life until then. I'm hoping that by the time he starts PreK. he will be stronger and he will be able to fight what ever comes his way. So you see Lucy, for us this has been the best thing that could have happen to him. You are the only person who can really answer that question.

Wow! After reading these posts I don't feel so alone with my daughter's problems. We have some of the same problems as all of you and then some different. We have just recently found out she has lead poisoning and that is giving us a run for our money just trying to get information and not the run-a-round. I am curious to know if any of you get hear this often, "Well you know she has Down's" Well duh I don't know, I have only been with her for her entire life!!!! is the response I'd like to make. I hear this from the schools and even doctors at times. Everything tends to be "typical" of DS to the point that they don't always look for other contributing factors. Even with the lead poisoning I hear this is typical of DS. I told a professional just today that I wished I could hide the DS just long enough to see what kind of diagnosis she would get and he just laughed. Am I the only one having this problem or is anyone else getting this response?

ok every one should i enroll amanda into prek for next year or not. she will only be three and has been doing really good just being at home and going to therapy. what can she learn by going and with her being so attached to me and vice versa would it be a good or bad thing for her? also since we are due for another baby aropund that time would she think that im pushing her away? any advise would be really appreciated...

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Patti, We have a 6 year old son with down syndrome and he too has battled constipation for many years. In fact I vividly remember giving him an enema the evening of our 12th wedding anniversery. We have found that Haley's M.O., 4 table spoons, given in the evening keeps him regular. Once he began having a BM each day we slowly weened him down to about 1.5 tablespoons of Haley's each evening. The Haley's was prescribed by his Pediatrician as well as 4 teaspoons of Unifibre each day mixed into various food items. Of course water, lots of water keeps moisture available. Hope this helps. Matt

Sorry, forgot to give my web page address in my previous message. Mom's fault. http://www.comwares.net/marrs/index.html

My web page has been updated to include my developmental progress from birth to now, at 4 1/2 years, plus things we did to help me along. I am now reading, writing & counting, and attending regular preschool. John Marrs

I have a daughter with DS who will be eight in a couple of weeks. Up until now, Ashley has only been in special ed classes with limited visits to the regular kindergarten classroom. I want to know more from parents who have DS kids in regular classrooms. How are the teachers? Does your child have a one on one aide? How is your child adjusting? What about his/her peers? Do they accept him/her? I live in Michigan, but would like to hear from parents anywhere in the U.S. Thanks! Kathy

JOAN: Lindy, my granddaughter (check out her cute pic) was born Jan 29. Mom and Dad have accepted but of course it is still sad. It will get better. I hurt for them just as you do for yours, but time will heal those hurts. Hang in there.

HI!! I'm new here. and i have a major issue going on w/ Tyler. He has impulses to run off........ no fear of safety issues.. He won't even stop on verbal commands... you have to chase him ( for fear of he'll get hurt) I use to think hes doing it on purpose but now i think he cant control it???? He's been intregated since preschool and now the school is getting tired of chasing him!! They've called me into a meeting tomorrow! and i'm so afraid they're fed up w/ this behavoir and are gonna request he move on. Its very disrupting to the class! we've tried consequences, but i'm not sure hes understanding. Its so fustrating!!!! Has anyone had this problem or know of a way to get him to stop? I'm desperate!! Thanks KIM

Joan, I saw your comment about your new granddaughter. My advice to you is have the family talk to other families. Also, find out if there is a support group in the area. I found a support group in my area right away. They have been a big help!! I am now the president of our group. I have a 6 year old son with Down Syndrome, and he is the absolute joy of our lives. Please feel free to e-mail me.

I love your website!!!

Law, I have a son who just turned nine. His clothing needs are big concern of mine. There used to be a company called "Especials" that made jeans specifically for people with Down Syndrome. I tried to contact them many times, but I understand that they've gone out of business.

Here are my other two "Hot Tips" that seems to suit my son's body style and special needs:

Levis 566 Loose Fit Jeans - side cinch. These are the best fitting, best looking jeans for my son with Down Syndrome. You can get them in different lengths and they have two small (barely noticeable) elastic areas in the waist. They look just like the regular Levis that every kid at school is wearing, but they give a little extra room in the waist. My son isn't overwieght by any means, but his build is shorter and a little stockier (hey, maybe I should get some of those jeans for myself!) than my 7 yr. old who doesn't have down syndrome. The Levis 566's just seem to hang on his body better.

While we are on the subject, my kids also REALLY like some courdoroy shorts made by Bugle Boy. They are pull-on style, no buttons or zippers, but they are sort of long and baggy and what they find acceptably "cool" looking. I bought them at Mervyn's for about $11. I thought I'd tell you about them because the pull on style works great when you are potty-training. Its easy for them to get them off by themselves, when they hold it until the last minute! My kids never want to stop playing long enough to go use the bathroom. Then, suddenly it's an emergency! Having to deal with a zipper could mean ME having to deal with an accident... I bought four pairs of those Bugle boy shorts!

I am constantly on the prowl for cool looking shoes that close with a simple velcro strap (not the kind that loops through a cinch and folds back). I know my son needs to learn to tie his shoes well, but sometimes it would be so nice just to have him throw his own shoes on quickly and we can rush out the door. I've written to Nike about this. They used to have the perfect high top tennis shoes with a big wide velcro strap. I'm waiting to hear back. If I can, I'd like to add them to the Uno Mas products page.

Vicki- I too live in Ohio.I have a 2 yr old son with Ds and he is absolutley adorable.I would love to hear rom you. Melissa

Hi, I'm new to this web page and I'd love to hear from other mothers. I have a beautiful 7 yr. old son with DS and he's the pride of my life. He had a traceostomy at 6 wks. but it was removed at 3 yrs. and we've been lucky to have no other major medical problems. I live in Ohio and would love to hear from other mothers.

Elaine, thank you for the information. I have found several web sites with a lot of information. Wow, is it overwellming. The doctors are now preparing her for what to expect when the baby is born. Thanks again, Kathryn

I have a 10 year old son with down syndrome. He is beginning to demonstrate some very aggressive behaviors. I am greatly concerned that these well increase with time. He is a very subborn child and does not deal with angry issues well. Does any one have ideas or resources that will help?? I'm not getting much help from our school psych, he keeps putting me off!!!

Joan, congratulations on the birth of your grandchild. Let the parents know how wonderful you think that baby is. Kathryn, I've noticed that no one answered your question, so I'll try and I'm going from memory. No, drug use did not cause the baby to have Down Syndrome. The cells (with 46 chromosomes) of the egg, or sperm, divide into two daughter cells (with 23 chromosomes each) prior to fertilization. The sperm cell, with it's 23 chromosomes, combines with the egg, and it's 23 chromosomes, to make a new cell with 46 chromosomes. Only in this case the egg (most probably) has divided into two daughter cells, one with 24 chromosomes and one with 22 chromosomes. The egg cell with 24 chromosomes meets the sperm cell with 23 chromosomes and makes a cell with 47 chromosomes. Thus there is UNO MAS chromosome. In Trisomy 21, it is an extra #21 chromosome (there is 3 instead of 2). This just happens. Cell division is a complicated process and sometimes it doesn't occur as it's supposed to. Your friend did nothing to cause this. I recommend the book Babies With Down Syndrome.

Janie, My son just turned 14 years old and I work outside my home 2 days a week and for the past two summers, we have hired a peer to be Taylor's companion on those 2 days. He has never considered them to be babysitters, rather a friend. The 1st year we hired a young girl in our neighborhood. Last year, we hired a 15 year old boy who had already worked with Taylor in school as a "Learning Link" (a special program in our middle school for typical students who volunteer before and after school as well as, during some non-academic periods. He was also a special olympic "buddy". This guy had a genuine interest in Taylor's abilities and enjoyed his sense of humor. They have enjoyed a very unique friendship since the Summer. Since the Summer, we have had him come over several times to be with Taylor in the evening and sleep over. (These times were when my husband & I had a late evening out) My plan is to continue to nurture these types of relationships for Taylor's future. This kid will be driving soon and he can't wait to be able to come by and take Taylor to movies, etc. I've considered tapping into the scout troops in the area as well. If you can find a companion, you will probably need to make a list of suggestions for activities for them, to insure that they don't just watch soap opras all day. Another thing you could do is start with your Tennessee State Agencies. You can find a complete list of the State Agencies in the state of Tennessee at : http://www.Nichcy.org/stateshe/tn.htm This is a complete list of agencies that deal directly with developmental disabilities. Most are located in Nashville, but they have branches all over the state. You have to contact the main office to get contact information for your area. Call any number of them and just brain storm with them. The Deptartment of Health has a division called Children's Special Services that is listed - There is a listing for the Tennessee ARC - Division of Rehabilitation Services, Parent to Parent, Parents Educating Parents (PEP), Governor's Council on Developmental Disabilities, etc. Call all of them if you have . . . get the contact information for their agency in your community and don't give up. They just might have something that will help, if not, talk to them anyway about your situation, they work in this field everyday and I'm sure they have lots of ideas and suggestions. You might have to pull it out of them, but HEY! You can do that! Good luck! Please let me know what you come up with.

I have a six month old daughter with ds i am new to this I have heard people talk about Piracetam ?? What is it What doea it do???

I need a place for my child to be taken care of during the summer. she's nearly 18, has moderate handicap. We live in Tennessee. Any help would be appreciated.

I have a 7 year old son w/ Down Syndrome. Up to this point, I haven't had any problems with finding him clothes that fit. However, as he gets older, I am having difficulties finding him jeans, shorts and overalls that fit since his body is longer in proportion to the sizes that manufactures make for clothes. Plus his legs are so short. I once heard about a place on the web that sells clothes for children with Down Syndrome. Has anyone heard of this?

Hi I'm new to this web link. I have a 13 year old son with Downs Syndrome. I would really like to talk to other parents with teenagers. I am currently having some trouble coping. Any advise and or words of wisdom would be greatly appreciated. Thanks

I am doing a big report over down syndrome and I was wandering if anyone could give me some information. If so please e-mail me by march 25th. if you would do this for me i would appreciate with all my heart. Thank you, Cindy Terrones

Thank you Dawn for your lovely reply to my remarks. Reading these messages are really helpful. When my little grand daughter begins to do more than just eat and sleep and developes a personality I'm sure things will be easier. I already love her very much. We are going to see them early spring. I can't wait to hold her in my arms again. My daughter still sounds a bit sad when I talk with her over the phone. Hopefull her sadness will start to lessen. My grand daughter weighed only 4 lbs. when she was born. But now is up to 7 pounds. Thank you again. I'll keep in touch.

Dear Joan, Congratulations on the new addition to your family. I think everyone understands how you and your children feel right now. My son is now 16mos. old. He is the joy of our lives. His grand-parents absolutely adore him, and they live 11 hrs from us. They come every 6 wks to visit because they say that's the longest they can stand to be away from Branson! Of course this makes my husband and I very happy, because we know how much they love him. The pain and sorrow will ease, it takes a little time. I hope your daughter has the book "Babies with Down Syndrome" This book answered alot of my questions. In fact it's about to fall apart from being read so much! Again Congratulations on yall's little angel. Please keep us up-dated! And if you would like to ask any questions feel free to e-mail me.

PATTY...About constipation... I tried to email you privately, but the message came back to me. My daughter has been battling constipation since birth. she is 2.5 years old. It has always been a big issue with her. We had her tested for Hirschprung's...negative. The doctor thought that her intestine was tilted a little just before her rectum which he thought may cause the stool to 'hang out', and then it would get hard because it stayed there. We tried lactulose, and mineral oil...it didn't really help. It would get so bad that she would go several days without going. I had to use glycerin suppositories with her, but it worked...she would only leave them in for a few minutes, and then she would go, but many times her little butt would bleed cuz she was pushing and the stool was so hard. What we finally do is: increase her water intake... I give her children's liquid Senekot. It is a syrup, and I mix it in her milk. It tastes like chocolate syrup a little. this will usually help her go with a few hours. I give it to her most days, unless she has been on a roll with the b.m. action. I also give her apple juice sometimes, and this seems to help. The main thing is to make sure that she was getting a lot of water, otherwise the stool gets too hard. We rarely have to do the suppositories now, which is good, as they can hurt in the long run, but sometimes they are necessary. I guess if you use them too often, they will not know how to go on their own. I hope this has helped at least a little...feel free to write back. Kristie

dear joan I have a 6 month old son named Jarett and he has down syndrome. I know this because that is what my doctor told me... My son is every bit the baby I anxiously awaited and every day I look at him and wondered what I did before he came into my life, I love him dearly. But that's not how it started out... Five to ten minutes after Jarett was born the doctor told me they believed he may have down syndorme, I felt my world crumble all around me. For 24 hours, I cried. Then day by day the hurt started to go away, this little baby needed me and I soon discovered that I needed him even more...... there's a reason we were put together and I am so thankful. From experience I can tell you that there is not much you can do aside from letting them know you love them that will take the hurt away right now. But I can guarantee you that in a few short weeks they will see less and less of the "down syndrome" and more and more of their new baby. Ps I found that becoming educated about DS really helped, their child is capable of accomplishing as much as we're willing to encourage him to do... Everything will be just fine, as surprising as that sounds to you now.

I wanted to share something I found in a folder of information about Down Syndrome shortly after my daughter Kenzie was born. It was a copy of a Dear Abby, It was a birth announcement from a family whos child was just born with DS. I took it and changed it a little and sent it out in my birth announcements. I think it helped break the ice with family and friends who didn't know how to react to the news that our baby had DS. I wanted everyone to know that even though we were disappointed we were also happy over the birth of our daughter. Here it is :

Dear Friends and Family, Our beautiful daughter, Kenzie Joyce, was born November fourth. We want to add a personal note to this announcement because we would like you to know that Kenzie was born with Down Syndrome. In the last couple of weeks we have experienced many different emotions, and have learned a great deal about all the positive ways Down Syndrome can affect our daughter and our family.

Kenzie is a beautiful, responsive baby, and we hope you will accept her into your hearts without pity or reservations. Please don't feel that you have to pretend that she is "normal", and please feel free to ask us any questions you may have about her.

With the help of God and her family we hope Kenzie will grow up strong and healthy. We want you to share in the joy of her progress along the road to maturity. Although she may travel that road a little slower then others, we will consider each new milestone in her life a blessing. Though our hurt and dissapointment may still be fresh, we know that God has placed Kenzie in our home and in our hearts for a very special purpose. Someone told us "God doesn't make mistakes; that little girl was meant to be in your family for a special reason." We also know that our lives will be touched by all the special gifts Kenzie will sbring to her friends and family. Her presence has already filled our hearts and home with much love and happiness. Please celebrate her birth with us. Sincerly, Randy, Aimee and Keith

I have a two week old grand daughter who was born with Down Syndrom. I have read the comments on this page. We are very sad can anyone give me same incouragement? What, as a grandmother, can I do. I do not live near my daughter's family. It is a two day trip to get there. What will their lives be like (the parents). Will it take a long time to get over the sad feeling. Their hopes for their daughter has been shattered. Any advise would be appreciated.

Welcome home Ai lay ! LOL I am sooooooooo gald to hear Shuxin is home .And doing much better!(((HUGS))) to you and Shuxin.Take Care.Hope to chat soon.

I was wondering if anyone has heard of a special formula called Metajenics, sold in California. I cannot locate it. Also, does anyone know about a Dr. Heinstein from Germany, Dr. Franz Schmidt (now deceased, a DS researcher), a Dr. George in Arizona, a Dr. Wachs in Tahoe? I am researching these doctors and have not found any info yet. They all seem to be connected and all seem to have research/treatment for DS. Also, has anyone sent for the information located at Crystal Pines International Research Institute (http://members.aol.com/drfbero) Pls feel free to email me put DS in subject line else I may not open mail. Thanks! Hi Ai Lay, hope Shuxin is well. Hi also to Earlene. :)

Is it possible that drug use in the first 3 to 4 weeks of pregnancy could cause down syndrome? I have a friend who is pregnant with a down syndrome child, she didn't know she could ever get pregnant and then it happened, she stopped useing as soon as she found out she was pregnant. I can'f find anything that really explains what causes it, and if this could be a factor. She feels so quilty.

Glad to hear that Shuxin is home and recovering Richard came home today. He tried something new this time he dehydrated on IV We took him in on Thursday because he was dehydrating They put him on a 24 hour hydration program When they turned down the IV to 30 He started to have more liquid output then what was being pumped in So they had to start the hydration progam over again But the main thing is he is home doing well Thanks for all your prayers

Patty I`m not sure how old your child is but my son was born with Hirschprung`s Which is a bowel disease that causes constapation Children with Down Syndrome are knowen to have Hirschprung`s and it is more common in boys

Anybody with a ds child that has constipation? Would like to hear any tricks that work.

Hi, we're finally back today! Shuxin is sitting on my lap right now. It had been such a long week and we're sure glad it's over. But Shuxin seems to be enjoying all the attention in the hospital. They name her the "best patient" and "sweetest baby" in the ward. She's still wheezing and coughing a little but manageable. Thanks everyone for your prayers and wishes. Now I'm hoping that Richard, Blake and TJ have a quick recovery.

Well, I did not get in touch with Lorie, but I did talk to a person in the waiting room and she said that Blake was doing well and that Lorie said she was going to get a goodnights sleep tonight. Sorry all I have is second hand info. the lady in the waiting room must have thought I was nutty. I told her Lorie's chat room friends wanted to make sure all was okay. She said she would relay the message to Lorie.

Does anyone out there have a child with ds on ritalin? My daughter has been on it for about 2 yrs now and has done pretty good until recently. She has started showing signs of Tourette syndrome so I did a little research on the internet about Down syndrome and Tourette syndrome, but nothing really helped until I looked up ritalin. You will be SHOCKED to find out what the drug manufacturer is hiding from us! Yes, Tourette syndrome is a side effect, along with many other horrific things. If you have a child on ritalin I urge you to do some research. You can start by going to www.breggin.com Good Luck!

"Babies With Down Syndrome" 2nd edition is now available in Spanish. This is an excellent book for parents and professionals! The Editor is Karen Stray-Gundersen - and the Publisher is Woodbine House. Barnes and Noble Book Stores have a special needs section in their stores and usually has this book on hand. This paperback book lists for about $15.00. You can contact the publisher direct @ 800-843-7323. The Publisher is Woodbine House - Special-Needs Collection - 6510 Bells Mill Road - Bethesda, Maryland 20817. The Spanish edition is quite NEW!

I am looking for an organization or book that will give a parent information concerning a Down's Syndrome new baby in Spanish. Thanks!

Ali, Scoll down this message board and you will find lots and lots of comments regarding this program, called "Skin Deep". I am sure you will find lots of help here. Good luck on your paper. Terri

I saw a TV special on a family with a down syndrome child. The family knew before their child was born that he would have down syndrome so they planned to operate on him when he turned three. The child under went cosmetic surgery to remove some of the characteristics of down syndrome. I was just wondering if anyone had any information about the operation, or any reactions to the idea of having cosmetic surgery for that reason I would love feedback. I am writing a paper for my psychology class and I am very interested in this area. Thanks for you time. Ali Potts

mel, My little 4 year old, TJ was diagnosed with leukemia when he was 15 months old. The signs we noticed were unexplainable bruising, unexplainable high fevers up to 104 & 105. He lost weight. Those are just some signs we noticed before he was diagnosed it took them 5 months before it was actually diagnosed. We changed doctors & I kept pushing for explanations. If you have any other questions please email me.

can anyone tell me what the signs for lukemia and the ds child are?

hi elane. amandas cardiologist says that this is nothing to worry about and that it bothers me more than it does her.. i have to say he is right about that.every time i see her hands blue my heart skips a beat, i guess its a automatic response from always waiting to see if there is going to be something wrong..i do have to say though that you should mention it to your pediatrician , also the blueness is mostly in her hands and some times her feet..her ped told me also that if im really concerned check the inside of her mouth..{note inside} she said that if it was acctually something more than poor circulation that the inside of her mouth would also be blue,.. i too notice that amanda usually has blue hands after waking up and also shortly after her bath...i was also told to put her in a blanket sleeper at night if our house is cooler than 75 degrees..it helps her stay warm even if she throws off the blankets, which she does.. well i hope this helps, God Bless, lucy

Hi Lucy, My name is Elaine. I have a 9 month old son, Isaac, with DS. I'm glad Amanda is doing okay. My MIL watches Isaac while I work and she asked me a couple weeks ago whether I noticed that his hands turn purple. Since then I have noticed it. I got him up from his naps yesterday, held him for a few minutes, then put him on the changing table. That's when I noticed it. Not so much in his legs, though. Did your Dr say it was anything to worry about? Are you supposed to do anything? Thanks for any info. you can give. Elaine

I need to know if anyone out there has ever heard of a child with DS also having tourette syndrome. Thanks.

MY SPECIAL CHILD As I look into your face, my special child, I see a gift so meek and mild. Your accomplishments may seem few and far between, But happier parents you have never seen. With every move you make, my heart swells with pride. My smile beams brightly from side to side. You'll never know what it feels like not to be loved. You are truly a gift sent from Heaven above. as i look at you now i fully understand that i wont be alone, God is holding my hand. Life has a funny way of turning things around. If we let Him take over,His love will abound. I never knew rue faith until you were born. A special crown i have been given to adorn. Only a few chosen parents will be able to say. A special child has been sent to show me the way. I'm so proud where ever we go. I'll never be afraid to let my love show. I thank God for you every day that goes by, I'll never ask, " why me, God why?" Written by Cynthia A. Bartko..October 1994.

this is an update about amanda, her cardiologist says the blueness she gets is due to por circulation.{anyone else with this problem?} and the other news is they found that her valves are leaking more its now in the moderate stage however he says he still does not feel as though she will need another surgery.he also doesent think that her valves will get any worse.. so this is good news...thank you to all of you that emailed me and all of you that have kept us in your prayers...

The 'NDSC' National Down Syndrome Congress has resources in Spanish! Our e-mail address is NDSCcenter@aol.com. and our Resource Specialist is Mary Jane Garcia, who happens to have a son who has Down syndrome. We also have contact information for other Organizations in the USA, South America and Mexico who publish information on Down Syndrome in Spanish. Our Center's toll-free telephone number is 800-232-NDSC (6372) and we welcome your call.

Hey Dru Barbee, Is there any way I could get some information from the NDSC in spanish. I just got through reading the reply from Carlos and it just broke my heart. We are so lucky here and we take so much for granted. I'm not sure if there is anything I can say to him or Sra Garcia that will really help. Here in the United States our children have rights. We may have to fight for some of them but never the less they will get what's their's. But in South America I'm not quite sure if children with disabilites have any rights what so ever. Maybe if we could get them some information in spanish and mail it to her, I'm not sure how much this will help, but any information is better than none at all.

I just noticed Carlos "replied" to the bulltin board with the letter he sent to me. Please read it.

DO YOU SPEAK SPANISH AND HAVE A CHILD WITH DS? Please respond to the family that posted "9 years old son with down syndrome, caring first learning - Sra. Rebeca Mora Garc?33/08/99 " on the bulletin board. They have a 9 yr old son and I was their first contact with the "Down Syndrome concerned world". They live in a "very poor and ignorant" part of South America and desparately want contact with people who value people with DS. Becky only speaks spanish and wishes to get advice (in spanish, untranslated) from a mother. Carlos told me "I am broadcasting in blinking red an S.O.S. for any kind of advice, from any body who wants gift it to me, to< tonatiuh_quetzal@hotmail.com> or " and asked me to give their letter and address to anyone who could help. Please contact me and I will email you the letter they wrote to me. They seem quite sincere in their quest for knowledge. Please help them.

DOES YOUR CHILD READ? Please let me know how he/she learned! I have a 10 yr old son who we have been using the "Teaching Reading to Children w/DS" book with for 3 years. He's ready for more. After all, he can't memorize every word in the english language! We are looking for methods/ideas/anything to helphim! Thank you.

Stout, there is a lot of information and reactions to the show and procedure on this message board. Scroll down to the posting from late February. You'll find the surgeon's address as well as the phone number and address to contact the Discovery Channel.

looking for information regarding grade retention. my son ryan has down syndrome, is in the 2nd grade and i'd like to retain him but getting much opposition at his school ALSO i'm looking for a different school, possibly private, possibly a different public school?..i live in the denver metro area. anyone out there have any suggestions??

I'm wondering if anyone has heard of or had thier child undergo facial surgery to correct the unique charactersitics of Down Syndrome such as the slanted eyes, pronounced cheek bones and smaller nose. I saw a program on the Discovery channel a few weeks ageo about it, but I've yet to find any information about this medical proceudre on the net.

You guys have such adorable children!! We are doing a project on Down Syndrome and we thank each of you for taking the time to let us get a little peek at your lives!! Thanks!

terry, my daughter is six yrs old, she still hates to brush her teeth. Ever since she was little, I let her brush by herself and then I go in and check her work! If she has done a good job, I praise her. Or else I go in and give her another once over. She does hate it, but i think it's a good way to encourage her to do it right herself. I used a soft brush when she was as young as yours.

My thoughts are with all of you facing medical problems lately. It seems to be a rough week for a lot of people. I pray you are all well again soon.

Tonya, I'm not sure I have any tremendous insights for you about the hearing tests. But I thought I'd share a few thoughts on the topic. I was also frustrated with the "small ear canal" inconvenience. Do you ever get the feeling that the nurse just sort of gives up trying to get a good reading.. because it is too much trouble?" I remember watching the nurse poke that little thing in Casey's ear and try over and over again... all the time saying she's getting a flat reading. She would finally give up. But I felt confused.. I wanted to ask " A flat reading...what does that mean? That means he might have an ear infection but you are sick of trying to find out for sure?" It really is hard to know when to raise a stink.. when to be a squeaky wheel...

When Casey was first born, Children's Hospital did a "BER" or ABR hearing test on him. (Brain Evoked Response). and alerted me to the fact that he may have mild hearing impairment. Over the years, I would request hearing tests.. and depending on the doctor and the audiologist.. I would get varying degrees of testing. Many times I got the same sort of response as the tempanogram... "oh, this is difficult, he's not cooperating.. we can't get a reliable test result." And that was it! As if that was an acceptable report..inconclusive results!! I kept trying different doctors/audiologists etc, and finally insisted that they sedate him and give him another BER, if they have to... I NEED conclusive results!

I'm sorry if you have to put up a fuss to get it.. I'm awful about that (sort of wimpy, really) but someone has to do it. Who else but you? Casey went into to surgery for tubes.. and get this: the doctor came back and said.. there was a lot of wax to be removed, but we did not find tubes necessary once we went in. I respected him for that. Boy, this is a long story! I'm not even sure what my point is! I guess just that it may not be fluid at all. And you need to be pushy, even when it's unpleasant to do so. Good Luck. If I think of any more.. I'll post it here.

Hi Shay. I was reading the messages posted, and came across yours stating that you live on an island off Alaska. I have two kids with Down Syndrome. I gave birth to Tyler 15 yrs, old and we adopted Lindsey when she was just 3 weeks old. She is now 12 yrs old. I just wanted you to know, that we lived in Adak, Alaska, years ago. I know how isolated you may possibly feel. But at least you have all the parents of uno mas to talk to. Feel free to get in touch with me, if and when ever you'd like.

I was reading about some of the books on the previous messages and a book was just brought to mind. Has anyone read "THE MAN WHO LOVED CLOWNS" It's been out for several years so maybe everyone has already read it but if not, it is a wonderful story. It is written by June Rae Wood and she won the Mark Twain Award for it. It is mostly a true story however the DS man in the story was really her brother, but in the book she writes him as her uncle. I had a chance to meet her a few years ago and had lunch with her. She told me that when she was younger she could remember being quite embarassed by her brother even though she loved him very much. She said as she got older she felt very guilty about the feelings she had growing up and writing this book was kind of her apology to him. The book is written on about a 5th or 6th grade reading level and the Middle School teachers all read it to their classes as part of Awareness Week to help educate the kids about disabilities. Be sure to keep a box of Kleenex nearby. It's out in paperback now too. If you haven't read it hope you have a chance to do so and enjoy!

Ok.....I've read both JEWEL and EXPECTING ADAM.... ADAM was sooooo much better than Jewel...I think it chronicled the emotions that we go through much better than Jewel. Jewel seemed kind of cold to me. I know she loved her child, but it didn't quite seem real to me. I could feel it though, down in my soul, when she decided she would fight and was determined to do everything possible that her daughter would ahve a better life. Adam, though, took me right back to that place where I could feel exactly and remember exactly what she was going through. The other thing about Adam.....and some of you may think I'm off my rocker here...I've ALWAYS thought that my son Alex can see angels. Just that look he gets, like he's looking at someone, but when I look I can't see anything. Maybe as is he's an angel himself, just like Adam (we're talking real angels here, not the type they're being when they cleam up their room). Anyway, read both books and let me know what you think. Tammy

Terri, silly girl! I'm sending Nick a toothbrush!!!! Alex has this funky little one with Ernie on it (am a HUGE Ernie fan...Bert can bite me). He even has this bubble gum flavored toothpaste (I say yuck, but he loves it). Smooches, Tammy

Hi, My son is 14 months and the joy of my life. I have a question and a comment. To the mom's who kids have teeth - do you clean them with gauze right now? I can't imagine Nick allowing me into his mouth to do this. This has been our biggest problem (Thank the Good Lord) with Nick - teething. Would appreicate comments regarding this. I also wanted to say how much I have appreciated finding this website and reading everybody's stories and comments. It is so helpful and comforting to go from being all alone to joining a caring group of people in the same boat. I hope that TJ, Blake, Amanda and Shuxin are all feeling better soon. Thanks everybody, for sharing part of yourselves with all of us. Terri

Curious who was 20,000 person? I was 20,007.So it must of happened today!

We had to take TJ back to the doctor yesterday. He has been so lethargic He also started wheezing & coughing. He just had his tonsils out on March 1st, he had been on an antibiotic all week. Yesterday they took chest x-rays & he has pneumonia now too. I heard this was especially common in ds children, he told us to watch him & call if any changes, he put him on a different antibiotic, my concern is, is this to much for him to fight all at once. He has lost 2 1/2 pounds since his well child check on 2-25-99, he has not been eating at all, but is drinking for us. Just would like to hear from anyone who's child has had pneumonia. I'm very concerned. thanks!

please keep amanda in your prayers we have to go see the doctor today she has had a decrease in appatite and her hands have been turning blue she had open heart surgery at 8 months and so far all has been really well.. please pray that her heart is not in trouble again..i am sick with worry. i did this once already and i know God will not put more on us than we can handle but the thought of having to go through more heart problems scares me to death, Amanda means more to me than i could ever say and top see her ill is really hard...

Hi all! Thanks for the cards and the e-mails. Shuxin is still in hospital with wheezing and coughing but has started to play and laugh. Doc says she still needs to stay for a couple of days. She's got lung infection and plenty of phlegm. They got a physio therapist to help teach us how to apply therapy to help get rid of the phlegm. I'm staying full time with her in hospital. Daddy stays with us there for the night too but he has gotten the cold as well. I'm well but still have got the sore throat. Thanks for all the wishes. Hope to be back in Unomas chat soon!!! At the same time, I'm also thinking of Lorie and hope all goes well with Blake's op.

Tonya, I have a 4 year old boy, named TJ he had his first set of tubes in when he was 10 months old. He had a second set put in when he was 3. We have had very good luck with them. HIs hearing is 100% and we have had no problem with ear infections at all. I highly recommend them it helped TJ alot. JUst wanted to let you know. GOod Luck!

Thank you all for you help and support. I called our doctor today and requested a blood test done. I just can't wait any longer. The results will never change how I feel about my beautiful son. But it will give me peace of mind and a conclusing to all the questions. The blood test can be done as soon as I find out from the lab what they need to do. We live on an island in Alaska and we have to have to blood test flown out of here and to the nearest hospital with-in twenty-four hours. I will keep you all informed on what I find out in the upcoming days. Thank you again, Shay

Shay, I would suggest you give your doctor a call and ask him to order a chromosome (karyotype) study. To do this test, a blood sample is drawn and then cultured under special lab conditions to allow the cells to divide. If your baby does in fact have Down syndrome, the study will show three #21 chromosomes instead of the usual two. I've read that there are more than 50 different signs (I don't think I have ever actually seen a list that long) that can indicate the syndrome, and any so-called critical sign observed in confirmed cases of Down syndrome can also be found in typical children. Confirmation comes only by examining the chromosomes. Some of the signs are almond shaped eyes, a fold of skin at each of the inner corners, a flat nasal bridge, flattened cheeks, short ears, "floppiness" of muscle tone (hypotonia), inward-turned shortened little fingers, excessive skin on the back of the neck, or absence of the Moro reflex (a reflex that appears in a typical baby when its body support is carefully and suddenly withdrawn, the baby's muscles tighten.) Tell your doctor that you would like to go ahead with the blood study as soon as it can be arranged so that you can get on with parenting your new baby rather than worrying about a diagnosis. I think the key to raising a child with Down syndrome is the same as with any child, love, communication and exposure to as much normalacy as possible. That put simply is good parenting skills. If the study indicates that your baby does have Down syndrome, I would recommend you call the National Down Syndrome Congress @ 800-232-6372 and request a free new parent packet of information. The packet will have a list of DS parent support groups in your state and many other helpful resources. The NDSC is a good starting place. The fact that your baby is meeting all of the milestones is certainly a good sign. Good luck to you and try to relax and remember that good parenting is the key regardless. Dru - Mom to Taylor (14 yrs old tomorrow)

My son Peter, who is 2 years old, just came from having his hearing tested for the first time. They found he had a mild to moderate hearing loss and lots of fluid in the ears. The loss could be just from the fluid but they are not sure, so I have options for the next step. Depending on what the pediatrician says ir could be antibiotics or to see an ENT and put tubes in. I took him to an ENT last July and they didn't even look in his ears because "he is too young and his ear canals are too small". So why didn't they catch this sooner? After they get rid of the fluid he has to go back to make sure it is not a more permanent hearing loss. I questioned it before and no one mentioned the possibility until I fought to have this test done. Now it all makes sense, why he sits close to the tv, why he doesn't say words yet, etc... Sorry, i'm just a mom trying to vent the frustration I feel. It's always something isn't it. Will wer have to fight for everything?

No Shay, I am in the south. But please find one soon, like tomorrow! Your pediatrician should be able to put you in touch with one. If not , then find someone who can, immediatly! Please fell free to e-mail me. I would loke to know the outcome.

There is a wonderful, funny new book out called "Expecting Adam." It is a beautifully written memoir of a young mother who conceives a child with Down Syndrome while she is a student at Harvard. It is a life-changing, paradigm shifting book--check it out at Amazon.com.

Dawn, Thank you for writing back so soon. Where do I look for a Genetics Specialist? We can fly to Seattlel where we have family. Do you know of any in the Washington or Oregon area?

Shay, you need to get an appointment with a Genetics Specialist!!! You need to do that as soon as possible, so you will know one way or the other. It is very important not to just wait and see, if the baby has it there are many things that need to be checked.

Help! I have a few questions that I need help on getting some answers. Our son is six months old and at his two month appointment our doctor told us that he has a sign of DS. He has lines in both of his hands. That was about as far as it went with discussing it. We talked about it at his four month appointmentand. At his six month appointment he said he would like to see him at nine month to keep an eye on him. He then mentioned that his eyes have the look of DS. He is meeting all his milestones and the doctor his hopeful. We just would like to know where to we can turn for some answers. We live in a very remote area. If you have a answers or hope for us please post your answers. Thank you.

OOPS . . . sorry the NICHCY web page should be http://www.nichcy.org/states.htm I left out the s on state, visit this site www.nichcy.org for other resources even if you don't need $$$ for meetings!

EVERYONE! An excellent resource for all parents of children with special needs is NICHCY, The National Information Center for Children & Youth with Disabilities. http://www.nichcy.org/state.htm When you go to this page, you can click on your state and find contact information for all of the state agencies that deal with develelopmental disabilities in your state. For those of you who have received a new parent packet of information from the National Down Syndrome Congress, you received this very valuable piece of information already. If not, and you are interested in attending conventions, conferences or seminars that require a registration fee and other expenses, I would recommend you visit the NICHCY (state of choice) page and scroll down to [State Developmental Disability Planning Council] for contact information for your state's DD Council. Give them a call and ask if they have a 'Family Empowerment Department'. Every state in the USA has a Governor's Council on Developemntal Disabilities and they all naturally have a budget. They usually have money budgeted for family empowerment. This money is to be used to educate families on their child's special need. This has nothing to do with the family income, but everything to do with educating the family on the child's special need. DD Councils in different states have been known to pay airfare, hotel, meals and even respite for families to attend meetings to educate themselves on their child's special need, if their budget allows. Families of children 0-5 should be able to receive this service through their Regional Centers (early intervention). The DD Councils will sometime 100 per cent, or they might pay 1/2 of the expense and sometime, they have no $$$ at all, but it is certainly worth the call!! Parents deserve help from the state with educating themselves on their child's special need! When families take steps to educate themselves and their children, and plan for their child's futures, it certainly saves $$$ in the long run for the state. GO FOR IT !!

AiLay, I'm so sorry to read that Shuxin had to go to the hospital. How is she doing now? That must be such a heartwrenching thing to see your little one in a hospital bed. Did they let you stay with her, during the night? I pray her health has improved. Please keep us posted on how she is doing, if you get a chance... I hope all is well, Michelle

Jody, I would like a copy of your behavior plan. Thanks!

Jody, please E-mail me a copy of your behavior plan. Thanks!

Please Help, I am trying to find resources for a young, single parent in Moline, IL with a 6mth.old daughter with DS. The family needs education about early intervention. Does anyone know names of special ed. coordinator for Moline Public Schools or names of any birth to 3 yr. old programs in Moline area or Special Education Coop name in Moline? thanks. Send any responses to e-mail address. Any information I can share would be greatly appreciated. this is a wonderful web site by the way.

I am from Kansas, and my aunt & uncle live in the same town as the couple who had the 3 year old "Michael". I thought It was kind of interesting and would like to let you know of some information I found out. My Aunt has lived their all her life and she said they moved and are no longer together. I guess it was quite an ordeal. I just have to wonder if they felt guilty and couldnt stand the pressure. I really feel sorry for Michael he's the one thats always going to suffer from it. There was more about the couple but I better not tell. Just thought this was kind of interesting.

i just wanted to say how much i have missed uno mas this past month,my morning sickness has kept me away...i had my first sono 2 weeks ago and get another on tuesday. so far all is well, i also go for my fetal protein test in a couple of weeks. i am starting to get more and more nervouse about leaving amanda when i go in to have the baby.. she has started this stage where she fallows me every where and only wants to go to sleep in my arms or my bed...i have been allowing her to sleep with us at night and to fall asleep in my arms at nap time. is this a bad habbit i am allowing to start or does she just need this time for security?she is 2 and a half...also kinda off the subject i will be taking the advise of one of the other posters and be sending a picture of amanda in her beauty padgent with her 2nd place trophy to this Dr. Kenneth Slayer..{i think he took his name personaly "Slayer"} i would also like to send one to the parents of that little boy any one know the address or how to get it??

Did anyone else read the book Jewell? I did. It was a hard book to read, because of the language, but how inspirational! I would like to hear comments.

I'm fairly new to this site (as well as the internet!) and I'd like to talk to anyone who has a child with DS and obsessive/complusive disorder. My son (who has DS) is 15 and we have a tentative diagnosis of OCD. I'd appreciate corresponding with someone dealing with it as well. THANKS.

I did not see the Oprah show, but I did read an article out of a New Jersey newspaper(the women was from NJ). I think she did not give it enough time. She might have been going thru that post pregnancy depression. The rest of the family including the husband did not want to give up the child. I wonder what her feelings will be a few more months from now. She just has no idea what she gave up.

Hi, I,m pretty new at this...I found your site today and I'm very excited that someone who reads this might be able to help me out. In the past year I've taken on the responsibility of a 37 year old lady with DS. She currently lives in a group home and I have asked about them getting a hospital bed that raises. I've heard that this might help her, she as alot of respiratory problems. They haven't done so yet for the lack of information, if any one has any information or were I could look, could you please forward the info to me. I'm just learning myself and I have a long way to go! Thanks.

I am new to this site and I was just reading a comment from Dawn about the Oprah show. I saw it to and I have a few feeling about it. Number 1 : they said she had another child, what it this saying to that child that if your not "perfect" mommy and daddy are going to give you away. Number 2: She said she couldn't handle it. She didn't even give it a chance!!!! The lady that adopted the child said it right - don't feel sorry for me, these children are wonderful, they need care and love just like any other child. I feel that people really don't know our little secret on how great these kids are and how much they have to teach us. So I believe this lady is just missing out. Thanks for letting me get this out. (P.S. I am the mother of a beautiful 5 year old boy with DS)

Hi, We have 3 kids, Matthew (9), Jennifer (7/DS), and Stephanie (5). I have tried nearly every vitamin & mineral supplement. Finally, we have found a product that we feel is superior because it is liquid,(after years of crushing pills!) contains overr 190 plant-based organic ingredients and the kids love it! It contains active enzymes,(so important for proper digestion), antioxidants, essential vitamins & minerals, fruit & vegetable whole juice concentrate, fatty acids, amino acids and dairy-free acidophilus. Jennifer says that it makes her smart! We have learned so much from her.We have put together a website, if you'd like to check out the products and our KIDS.. Our website is www.aware1.com please feel free to e-mail me with any questions, comments, brags about your kids, I'd love to hear from you! Our e-mail is deerings@uslink.net

READING HELP!! I have a 10 yr old son who will read, but I have to figure out how to teach him. He has about 100+ site words but his head is jammed full and he is rebelling. He needs to learn how to decipher the language so he doesn't have to memorize it all. What method(s) are you using to teach your kids to read? Has anyone heard/tried the Orton-gillingham method? Help!

Hi!! I am a freshman in high school and for an English Term paper I have chosen the topic of Down's Syndrome! Any info on this condition would be greatly appreciated! Thank you! ~Liz

Happy Birthday Uno-Mas (one day late). I am pretty new to this board, but it is fantastic. Michelle, you are doing a wonderful job. I don't often find people in the chatroom so I spend time reading previous chats. It is great to be able to do that - helps alot. Thanks and Happy Birthday !

Looking for new moms in the Pasadena, tx area. we have a play group that meets once a month. leave message and I'll contact you.

Colleen.. here is that post on the BB that I thought might be helpful to you: Need Info. You might get a feel for how conflicted other people feel and how confused they are about how to best respond to the new couples raw feelings. Gerri.. hang on! I think there is someone else I saw looking for a hirschfsjf*09 (whatever it is) contact for info just like you! I'll post it here if I can track it down.. stay tuned!

Dawn and Colleen.. I'm a little embarassed that I steered the conversation away from your concerns just to celebrate this website's anniversary... the whole purpose of this site is to suppport people like you.. looking for help and encouragement. I have to find out exactly where to direct you.. but I think there are some great posts on the Your Story and Funny Stories pages that would help you.. also one thing that comes to mind is a topic posted on the Bulletin Board last month titled "When will I be OK?" and another by a friend of a couple that just had a baby with DS. I thought that friend's concern seemed so heartfelt and well-meaning. I think it might be helpful to you to read that post and the responses. I'll post again after I've taken a second look for the exact post I'm referring to. I think you've come to the right place. Yes, there are many serious things to consider ... but there are so many more wonderful things to look forward to as well! Please don't let it overwhelm you (or your friend). It's not nearly as overwhelming as it seems at first. I'll get back to you with my favorite posts that I think might help...Michelle

Happy Birthday Uno Mas! Hope you have many more!!!

This site is new to me. I have a 7 year old son with Down Syndrome. He has very loose joints and is fragile since none of the joints seem to stay in place. He has been walking for only about a year and a half. He has started falling and walking "stiff legged". I am considering surgery and would like input from anyone else who has had any kind of surgery such as this. Thanks!

Does anyone have a son with ds and hirschsprung's disease?

Hey Michelle, First of all let we wish you a Happy Birthday and let me say how happy you have made me. It has been just great having a place where I can go and just chat with parents who are going through the same things I may be going through. I have cried and I have laughed with some of the stories that people have posted but they have showed me that no matter how dark and glooming things might seem, there is a bright light at the end. There is no way that I could thank you enough for your friendship. Thanks for being there for us and for giving us a place where we can go and share with so many wonderful people. Please, keep up the great work.

I just found this web site today. Hurray!! I too was horrifed with the skin deep show. I too cryed during the whole show. I am looking for parents who have a child who has Hirschsprung disease. My son had surgery to correct it at 8 months old. He now has colitist. (Spelling?) Has anyone pottied traired a child with DS and colitist? His bm's are always loose. I don't see how he can have controll. He is 2 and a half. Please send any info.

HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY DEAR UNO MAS HAPPY BIRTHDAY TO YOU!MAY YOU LIVE TILL ONE HUNDRED FOURTY FOUR! OR OLDER LOL

HAPPY BIRTHDAY, UNOMAS! Didn't believe you are only ONE! Great job!

HAPPY BIRTHDAY UNO MAS !

Tomorrow is Uno Mas!'s first birthday! I can't believe the great response I have gotten to this site in just one year. I want to thank you all so much for the encouraging messages you have sent me. It means so much to me to know that this website has been helpful to other families of children with Down Syndrome. The thing that has made this site helpful has been the participation of all of you who respond to posts, contribute your photos, stories, recommendations and participate in the chatroom. I can't thank you enough.

I've noticed that hit counter is creeping up towards 20,000 visitors... if you notice that you are the 20,000 visitor (should happen within the next week) print the page showing the counter and I'll send you a free item of your choice from the products page! Thanks again for all your encouragement and participation this year!

Sincerely,
Michelle

Hi! I am new to the internet and your group. My niece was born 9 days ago with DS and it was completely unexpected. She is beautiful and we are all very much in love with her but we know nothing about DS. I have been searching the web for all I can find out and am excited to find groups like yours. I would also like to find young mothers with DS infants - I think my sister would be interested to talk to you! If anyone can pass on any info I would greatly appreciate it!

I want to tell you how excited I was to find this page! I have a 15mo. old son with D.S. and am anxious to talk to other parents of these wonderful children. Did anyone see the OPRAH show the other day when she was discussing the book "jewell". If so I am interested to hear oppinions on the mother who could'nt "deal" with being a mother to her D.S. child.

PATTY...About constipation... I tried to email you privately, but the message came back to me. My daughter has been battling constipation since birth. she is 2.5 years old. It has always been a big issue with her. We had her tested for Hirschprung's...negative. The doctor thought that her intestine was tilted a little just before her rectum which he thought may cause the stool to 'hang out', and then it would get hard because it stayed there. We tried lactulose, and mineral oil...it didn't really help. It would get so bad that she would go several days without going. I had to use glycerin suppositories with her, but it worked...she would only leave them in for a few minutes, and then she would go, but many times her little butt would bleed cuz she was pushing and the stool was so hard. What we finally do is: increase her water intake... I give her children's liquid Senekot. It is a syrup, and I mix it in her milk. It tastes like chocolate syrup a little. this will usually help her go with a few hours. I give it to her most days, unless she has been on a roll with the b.m. action. I also give her apple juice sometimes, and this seems to help. The main thing is to make sure that she was getting a lot of water, otherwise the stool gets too hard. We rarely have to do the suppositories now, which is good, as they can hurt in the long run, but sometimes they are necessary. I guess if you use them too often, they will not know how to go on their own. I hope this has helped at least a little...feel free to write back. Kristie

dear joan I have a 6 month old son named Jarett and he has down syndrome. I know this because that is what my doctor told me... My son is every bit the baby I anxiously awaited and every day I look at him and wondered what I did before he came into my life, I love him dearly. But that's not how it started out... Five to ten minutes after Jarett was born the doctor told me they believed he may have down syndorme, I felt my world crumble all around me. For 24 hours, I cried. Then day by day the hurt started to go away, this little baby needed me and I soon discovered that I needed him even more...... there's a reason we were put together and I am so thankful. From experience I can tell you that there is not much you can do aside from letting them know you love them that will take the hurt away right now. But I can guarantee you that in a few short weeks they will see less and less of the "down syndrome" and more and more of their new baby. Ps I found that becoming educated about DS really helped, their child is capable of accomplishing as much as we're willing to encourage him to do... Everything will be just fine, as surprising as that sounds to you now.

I wanted to share something I found in a folder of information about Down Syndrome shortly after my daughter Kenzie was born. It was a copy of a Dear Abby, It was a birth announcement from a family whos child was just born with DS. I took it and changed it a little and sent it out in my birth announcements. I think it helped break the ice with family and friends who didn't know how to react to the news that our baby had DS. I wanted everyone to know that even though we were disappointed we were also happy over the birth of our daughter. Here it is :

Dear Friends and Family, Our beautiful daughter, Kenzie Joyce, was born November fourth. We want to add a personal note to this announcement because we would like you to know that Kenzie was born with Down Syndrome. In the last couple of weeks we have experienced many different emotions, and have learned a great deal about all the positive ways Down Syndrome can affect our daughter and our family.

Kenzie is a beautiful, responsive baby, and we hope you will accept her into your hearts without pity or reservations. Please don't feel that you have to pretend that she is "normal", and please feel free to ask us any questions you may have about her.

With the help of God and her family we hope Kenzie will grow up strong and healthy. We want you to share in the joy of her progress along the road to maturity. Although she may travel that road a little slower then others, we will consider each new milestone in her life a blessing. Though our hurt and dissapointment may still be fresh, we know that God has placed Kenzie in our home and in our hearts for a very special purpose. Someone told us "God doesn't make mistakes; that little girl was meant to be in your family for a special reason." We also know that our lives will be touched by all the special gifts Kenzie will sbring to her friends and family. Her presence has already filled our hearts and home with much love and happiness. Please celebrate her birth with us. Sincerly, Randy, Aimee and Keith

I have a two week old grand daughter who was born with Down Syndrom. I have read the comments on this page. We are very sad can anyone give me same incouragement? What, as a grandmother, can I do. I do not live near my daughter's family. It is a two day trip to get there. What will their lives be like (the parents). Will it take a long time to get over the sad feeling. Their hopes for their daughter has been shattered. Any advise would be appreciated.

Welcome home Ai lay ! LOL I am sooooooooo gald to hear Shuxin is home .And doing much better!(((HUGS))) to you and Shuxin.Take Care.Hope to chat soon.

I was wondering if anyone has heard of a special formula called Metajenics, sold in California. I cannot locate it. Also, does anyone know about a Dr. Heinstein from Germany, Dr. Franz Schmidt (now deceased, a DS researcher), a Dr. George in Arizona, a Dr. Wachs in Tahoe? I am researching these doctors and have not found any info yet. They all seem to be connected and all seem to have research/treatment for DS. Also, has anyone sent for the information located at Crystal Pines International Research Institute (http://members.aol.com/drfbero) Pls feel free to email me put DS in subject line else I may not open mail. Thanks! Hi Ai Lay, hope Shuxin is well. Hi also to Earlene. :)

Is it possible that drug use in the first 3 to 4 weeks of pregnancy could cause down syndrome? I have a friend who is pregnant with a down syndrome child, she didn't know she could ever get pregnant and then it happened, she stopped useing as soon as she found out she was pregnant. I can'f find anything that really explains what causes it, and if this could be a factor. She feels so quilty.

Glad to hear that Shuxin is home and recovering Richard came home today. He tried something new this time he dehydrated on IV We took him in on Thursday because he was dehydrating They put him on a 24 hour hydration program When they turned down the IV to 30 He started to have more liquid output then what was being pumped in So they had to start the hydration progam over again But the main thing is he is home doing well Thanks for all your prayers

Patty I`m not sure how old your child is but my son was born with Hirschprung`s Which is a bowel disease that causes constapation Children with Down Syndrome are knowen to have Hirschprung`s and it is more common in boys

Anybody with a ds child that has constipation? Would like to hear any tricks that work.

Hi, we're finally back today! Shuxin is sitting on my lap right now. It had been such a long week and we're sure glad it's over. But Shuxin seems to be enjoying all the attention in the hospital. They name her the "best patient" and "sweetest baby" in the ward. She's still wheezing and coughing a little but manageable. Thanks everyone for your prayers and wishes. Now I'm hoping that Richard, Blake and TJ have a quick recovery.

Well, I did not get in touch with Lorie, but I did talk to a person in the waiting room and she said that Blake was doing well and that Lorie said she was going to get a goodnights sleep tonight. Sorry all I have is second hand info. the lady in the waiting room must have thought I was nutty. I told her Lorie's chat room friends wanted to make sure all was okay. She said she would relay the message to Lorie.

Does anyone out there have a child with ds on ritalin? My daughter has been on it for about 2 yrs now and has done pretty good until recently. She has started showing signs of Tourette syndrome so I did a little research on the internet about Down syndrome and Tourette syndrome, but nothing really helped until I looked up ritalin. You will be SHOCKED to find out what the drug manufacturer is hiding from us! Yes, Tourette syndrome is a side effect, along with many other horrific things. If you have a child on ritalin I urge you to do some research. You can start by going to www.breggin.com Good Luck!

"Babies With Down Syndrome" 2nd edition is now available in Spanish. This is an excellent book for parents and professionals! The Editor is Karen Stray-Gundersen - and the Publisher is Woodbine House. Barnes and Noble Book Stores have a special needs section in their stores and usually has this book on hand. This paperback book lists for about $15.00. You can contact the publisher direct @ 800-843-7323. The Publisher is Woodbine House - Special-Needs Collection - 6510 Bells Mill Road - Bethesda, Maryland 20817. The Spanish edition is quite NEW!

I am looking for an organization or book that will give a parent information concerning a Down's Syndrome new baby in Spanish. Thanks!

Ali, Scoll down this message board and you will find lots and lots of comments regarding this program, called "Skin Deep". I am sure you will find lots of help here. Good luck on your paper. Terri

I saw a TV special on a family with a down syndrome child. The family knew before their child was born that he would have down syndrome so they planned to operate on him when he turned three. The child under went cosmetic surgery to remove some of the characteristics of down syndrome. I was just wondering if anyone had any information about the operation, or any reactions to the idea of having cosmetic surgery for that reason I would love feedback. I am writing a paper for my psychology class and I am very interested in this area. Thanks for you time. Ali Potts

mel, My little 4 year old, TJ was diagnosed with leukemia when he was 15 months old. The signs we noticed were unexplainable bruising, unexplainable high fevers up to 104 & 105. He lost weight. Those are just some signs we noticed before he was diagnosed it took them 5 months before it was actually diagnosed. We changed doctors & I kept pushing for explanations. If you have any other questions please email me.

can anyone tell me what the signs for lukemia and the ds child are?

hi elane. amandas cardiologist says that this is nothing to worry about and that it bothers me more than it does her.. i have to say he is right about that.every time i see her hands blue my heart skips a beat, i guess its a automatic response from always waiting to see if there is going to be something wrong..i do have to say though that you should mention it to your pediatrician , also the blueness is mostly in her hands and some times her feet..her ped told me also that if im really concerned check the inside of her mouth..{note inside} she said that if it was acctually something more than poor circulation that the inside of her mouth would also be blue,.. i too notice that amanda usually has blue hands after waking up and also shortly after her bath...i was also told to put her in a blanket sleeper at night if our house is cooler than 75 degrees..it helps her stay warm even if she throws off the blankets, which she does.. well i hope this helps, God Bless, lucy

Hi Lucy, My name is Elaine. I have a 9 month old son, Isaac, with DS. I'm glad Amanda is doing okay. My MIL watches Isaac while I work and she asked me a couple weeks ago whether I noticed that his hands turn purple. Since then I have noticed it. I got him up from his naps yesterday, held him for a few minutes, then put him on the changing table. That's when I noticed it. Not so much in his legs, though. Did your Dr say it was anything to worry about? Are you supposed to do anything? Thanks for any info. you can give. Elaine

I need to know if anyone out there has ever heard of a child with DS also having tourette syndrome. Thanks.

MY SPECIAL CHILD As I look into your face, my special child, I see a gift so meek and mild. Your accomplishments may seem few and far between, But happier parents you have never seen. With every move you make, my heart swells with pride. My smile beams brightly from side to side. You'll never know what it feels like not to be loved. You are truly a gift sent from Heaven above. as i look at you now i fully understand that i wont be alone, God is holding my hand. Life has a funny way of turning things around. If we let Him take over,His love will abound. I never knew rue faith until you were born. A special crown i have been given to adorn. Only a few chosen parents will be able to say. A special child has been sent to show me the way. I'm so proud where ever we go. I'll never be afraid to let my love show. I thank God for you every day that goes by, I'll never ask, " why me, God why?" Written by Cynthia A. Bartko..October 1994.

this is an update about amanda, her cardiologist says the blueness she gets is due to por circulation.{anyone else with this problem?} and the other news is they found that her valves are leaking more its now in the moderate stage however he says he still does not feel as though she will need another surgery.he also doesent think that her valves will get any worse.. so this is good news...thank you to all of you that emailed me and all of you that have kept us in your prayers...

The 'NDSC' National Down Syndrome Congress has resources in Spanish! Our e-mail address is NDSCcenter@aol.com. and our Resource Specialist is Mary Jane Garcia, who happens to have a son who has Down syndrome. We also have contact information for other Organizations in the USA, South America and Mexico who publish information on Down Syndrome in Spanish. Our Center's toll-free telephone number is 800-232-NDSC (6372) and we welcome your call.

Hey Dru Barbee, Is there any way I could get some information from the NDSC in spanish. I just got through reading the reply from Carlos and it just broke my heart. We are so lucky here and we take so much for granted. I'm not sure if there is anything I can say to him or Sra Garcia that will really help. Here in the United States our children have rights. We may have to fight for some of them but never the less they will get what's their's. But in South America I'm not quite sure if children with disabilites have any rights what so ever. Maybe if we could get them some information in spanish and mail it to her, I'm not sure how much this will help, but any information is better than none at all.

I just noticed Carlos "replied" to the bulltin board with the letter he sent to me. Please read it.

DO YOU SPEAK SPANISH AND HAVE A CHILD WITH DS? Please respond to the family that posted "9 years old son with down syndrome, caring first learning - Sra. Rebeca Mora Garc?33/08/99 " on the bulletin board. They have a 9 yr old son and I was their first contact with the "Down Syndrome concerned world". They live in a "very poor and ignorant" part of South America and desparately want contact with people who value people with DS. Becky only speaks spanish and wishes to get advice (in spanish, untranslated) from a mother. Carlos told me "I am broadcasting in blinking red an S.O.S. for any kind of advice, from any body who wants gift it to me, to< tonatiuh_quetzal@hotmail.com> or " and asked me to give their letter and address to anyone who could help. Please contact me and I will email you the letter they wrote to me. They seem quite sincere in their quest for knowledge. Please help them.

DOES YOUR CHILD READ? Please let me know how he/she learned! I have a 10 yr old son who we have been using the "Teaching Reading to Children w/DS" book with for 3 years. He's ready for more. After all, he can't memorize every word in the english language! We are looking for methods/ideas/anything to helphim! Thank you.

Stout, there is a lot of information and reactions to the show and procedure on this message board. Scroll down to the posting from late February. You'll find the surgeon's address as well as the phone number and address to contact the Discovery Channel.

looking for information regarding grade retention. my son ryan has down syndrome, is in the 2nd grade and i'd like to retain him but getting much opposition at his school ALSO i'm looking for a different school, possibly private, possibly a different public school?..i live in the denver metro area. anyone out there have any suggestions??

I'm wondering if anyone has heard of or had thier child undergo facial surgery to correct the unique charactersitics of Down Syndrome such as the slanted eyes, pronounced cheek bones and smaller nose. I saw a program on the Discovery channel a few weeks ageo about it, but I've yet to find any information about this medical proceudre on the net.

You guys have such adorable children!! We are doing a project on Down Syndrome and we thank each of you for taking the time to let us get a little peek at your lives!! Thanks!

terry, my daughter is six yrs old, she still hates to brush her teeth. Ever since she was little, I let her brush by herself and then I go in and check her work! If she has done a good job, I praise her. Or else I go in and give her another once over. She does hate it, but i think it's a good way to encourage her to do it right herself. I used a soft brush when she was as young as yours.

My thoughts are with all of you facing medical problems lately. It seems to be a rough week for a lot of people. I pray you are all well again soon.

Tonya, I'm not sure I have any tremendous insights for you about the hearing tests. But I thought I'd share a few thoughts on the topic. I was also frustrated with the "small ear canal" inconvenience. Do you ever get the feeling that the nurse just sort of gives up trying to get a good reading.. because it is too much trouble?" I remember watching the nurse poke that little thing in Casey's ear and try over and over again... all the time saying she's getting a flat reading. She would finally give up. But I felt confused.. I wanted to ask " A flat reading...what does that mean? That means he might have an ear infection but you are sick of trying to find out for sure?" It really is hard to know when to raise a stink.. when to be a squeaky wheel...

When Casey was first born, Children's Hospital did a "BER" or ABR hearing test on him. (Brain Evoked Response). and alerted me to the fact that he may have mild hearing impairment. Over the years, I would request hearing tests.. and depending on the doctor and the audiologist.. I would get varying degrees of testing. Many times I got the same sort of response as the tempanogram... "oh, this is difficult, he's not cooperating.. we can't get a reliable test result." And that was it! As if that was an acceptable report..inconclusive results!! I kept trying different doctors/audiologists etc, and finally insisted that they sedate him and give him another BER, if they have to... I NEED conclusive results!

I'm sorry if you have to put up a fuss to get it.. I'm awful about that (sort of wimpy, really) but someone has to do it. Who else but you? Casey went into to surgery for tubes.. and get this: the doctor came back and said.. there was a lot of wax to be removed, but we did not find tubes necessary once we went in. I respected him for that. Boy, this is a long story! I'm not even sure what my point is! I guess just that it may not be fluid at all. And you need to be pushy, even when it's unpleasant to do so. Good Luck. If I think of any more.. I'll post it here.

Hi Shay. I was reading the messages posted, and came across yours stating that you live on an island off Alaska. I have two kids with Down Syndrome. I gave birth to Tyler 15 yrs, old and we adopted Lindsey when she was just 3 weeks old. She is now 12 yrs old. I just wanted you to know, that we lived in Adak, Alaska, years ago. I know how isolated you may possibly feel. But at least you have all the parents of uno mas to talk to. Feel free to get in touch with me, if and when ever you'd like.

I was reading about some of the books on the previous messages and a book was just brought to mind. Has anyone read "THE MAN WHO LOVED CLOWNS" It's been out for several years so maybe everyone has already read it but if not, it is a wonderful story. It is written by June Rae Wood and she won the Mark Twain Award for it. It is mostly a true story however the DS man in the story was really her brother, but in the book she writes him as her uncle. I had a chance to meet her a few years ago and had lunch with her. She told me that when she was younger she could remember being quite embarassed by her brother even though she loved him very much. She said as she got older she felt very guilty about the feelings she had growing up and writing this book was kind of her apology to him. The book is written on about a 5th or 6th grade reading level and the Middle School teachers all read it to their classes as part of Awareness Week to help educate the kids about disabilities. Be sure to keep a box of Kleenex nearby. It's out in paperback now too. If you haven't read it hope you have a chance to do so and enjoy!

Ok.....I've read both JEWEL and EXPECTING ADAM.... ADAM was sooooo much better than Jewel...I think it chronicled the emotions that we go through much better than Jewel. Jewel seemed kind of cold to me. I know she loved her child, but it didn't quite seem real to me. I could feel it though, down in my soul, when she decided she would fight and was determined to do everything possible that her daughter would ahve a better life. Adam, though, took me right back to that place where I could feel exactly and remember exactly what she was going through. The other thing about Adam.....and some of you may think I'm off my rocker here...I've ALWAYS thought that my son Alex can see angels. Just that look he gets, like he's looking at someone, but when I look I can't see anything. Maybe as is he's an angel himself, just like Adam (we're talking real angels here, not the type they're being when they cleam up their room). Anyway, read both books and let me know what you think. Tammy

Terri, silly girl! I'm sending Nick a toothbrush!!!! Alex has this funky little one with Ernie on it (am a HUGE Ernie fan...Bert can bite me). He even has this bubble gum flavored toothpaste (I say yuck, but he loves it). Smooches, Tammy

Hi, My son is 14 months and the joy of my life. I have a question and a comment. To the mom's who kids have teeth - do you clean them with gauze right now? I can't imagine Nick allowing me into his mouth to do this. This has been our biggest problem (Thank the Good Lord) with Nick - teething. Would appreicate comments regarding this. I also wanted to say how much I have appreciated finding this website and reading everybody's stories and comments. It is so helpful and comforting to go from being all alone to joining a caring group of people in the same boat. I hope that TJ, Blake, Amanda and Shuxin are all feeling better soon. Thanks everybody, for sharing part of yourselves with all of us. Terri

Curious who was 20,000 person? I was 20,007.So it must of happened today!

We had to take TJ back to the doctor yesterday. He has been so lethargic He also started wheezing & coughing. He just had his tonsils out on March 1st, he had been on an antibiotic all week. Yesterday they took chest x-rays & he has pneumonia now too. I heard this was especially common in ds children, he told us to watch him & call if any changes, he put him on a different antibiotic, my concern is, is this to much for him to fight all at once. He has lost 2 1/2 pounds since his well child check on 2-25-99, he has not been eating at all, but is drinking for us. Just would like to hear from anyone who's child has had pneumonia. I'm very concerned. thanks!

please keep amanda in your prayers we have to go see the doctor today she has had a decrease in appatite and her hands have been turning blue she had open heart surgery at 8 months and so far all has been really well.. please pray that her heart is not in trouble again..i am sick with worry. i did this once already and i know God will not put more on us than we can handle but the thought of having to go through more heart problems scares me to death, Amanda means more to me than i could ever say and top see her ill is really hard...

Hi all! Thanks for the cards and the e-mails. Shuxin is still in hospital with wheezing and coughing but has started to play and laugh. Doc says she still needs to stay for a couple of days. She's got lung infection and plenty of phlegm. They got a physio therapist to help teach us how to apply therapy to help get rid of the phlegm. I'm staying full time with her in hospital. Daddy stays with us there for the night too but he has gotten the cold as well. I'm well but still have got the sore throat. Thanks for all the wishes. Hope to be back in Unomas chat soon!!! At the same time, I'm also thinking of Lorie and hope all goes well with Blake's op.

Tonya, I have a 4 year old boy, named TJ he had his first set of tubes in when he was 10 months old. He had a second set put in when he was 3. We have had very good luck with them. HIs hearing is 100% and we have had no problem with ear infections at all. I highly recommend them it helped TJ alot. JUst wanted to let you know. GOod Luck!

Thank you all for you help and support. I called our doctor today and requested a blood test done. I just can't wait any longer. The results will never change how I feel about my beautiful son. But it will give me peace of mind and a conclusing to all the questions. The blood test can be done as soon as I find out from the lab what they need to do. We live on an island in Alaska and we have to have to blood test flown out of here and to the nearest hospital with-in twenty-four hours. I will keep you all informed on what I find out in the upcoming days. Thank you again, Shay

Shay, I would suggest you give your doctor a call and ask him to order a chromosome (karyotype) study. To do this test, a blood sample is drawn and then cultured under special lab conditions to allow the cells to divide. If your baby does in fact have Down syndrome, the study will show three #21 chromosomes instead of the usual two. I've read that there are more than 50 different signs (I don't think I have ever actually seen a list that long) that can indicate the syndrome, and any so-called critical sign observed in confirmed cases of Down syndrome can also be found in typical children. Confirmation comes only by examining the chromosomes. Some of the signs are almond shaped eyes, a fold of skin at each of the inner corners, a flat nasal bridge, flattened cheeks, short ears, "floppiness" of muscle tone (hypotonia), inward-turned shortened little fingers, excessive skin on the back of the neck, or absence of the Moro reflex (a reflex that appears in a typical baby when its body support is carefully and suddenly withdrawn, the baby's muscles tighten.) Tell your doctor that you would like to go ahead with the blood study as soon as it can be arranged so that you can get on with parenting your new baby rather than worrying about a diagnosis. I think the key to raising a child with Down syndrome is the same as with any child, love, communication and exposure to as much normalacy as possible. That put simply is good parenting skills. If the study indicates that your baby does have Down syndrome, I would recommend you call the National Down Syndrome Congress @ 800-232-6372 and request a free new parent packet of information. The packet will have a list of DS parent support groups in your state and many other helpful resources. The NDSC is a good starting place. The fact that your baby is meeting all of the milestones is certainly a good sign. Good luck to you and try to relax and remember that good parenting is the key regardless. Dru - Mom to Taylor (14 yrs old tomorrow)

My son Peter, who is 2 years old, just came from having his hearing tested for the first time. They found he had a mild to moderate hearing loss and lots of fluid in the ears. The loss could be just from the fluid but they are not sure, so I have options for the next step. Depending on what the pediatrician says ir could be antibiotics or to see an ENT and put tubes in. I took him to an ENT last July and they didn't even look in his ears because "he is too young and his ear canals are too small". So why didn't they catch this sooner? After they get rid of the fluid he has to go back to make sure it is not a more permanent hearing loss. I questioned it before and no one mentioned the possibility until I fought to have this test done. Now it all makes sense, why he sits close to the tv, why he doesn't say words yet, etc... Sorry, i'm just a mom trying to vent the frustration I feel. It's always something isn't it. Will wer have to fight for everything?

No Shay, I am in the south. But please find one soon, like tomorrow! Your pediatrician should be able to put you in touch with one. If not , then find someone who can, immediatly! Please fell free to e-mail me. I would loke to know the outcome.

There is a wonderful, funny new book out called "Expecting Adam." It is a beautifully written memoir of a young mother who conceives a child with Down Syndrome while she is a student at Harvard. It is a life-changing, paradigm shifting book--check it out at Amazon.com.

Dawn, Thank you for writing back so soon. Where do I look for a Genetics Specialist? We can fly to Seattlel where we have family. Do you know of any in the Washington or Oregon area?

Shay, you need to get an appointment with a Genetics Specialist!!! You need to do that as soon as possible, so you will know one way or the other. It is very important not to just wait and see, if the baby has it there are many things that need to be checked.

Help! I have a few questions that I need help on getting some answers. Our son is six months old and at his two month appointment our doctor told us that he has a sign of DS. He has lines in both of his hands. That was about as far as it went with discussing it. We talked about it at his four month appointmentand. At his six month appointment he said he would like to see him at nine month to keep an eye on him. He then mentioned that his eyes have the look of DS. He is meeting all his milestones and the doctor his hopeful. We just would like to know where to we can turn for some answers. We live in a very remote area. If you have a answers or hope for us please post your answers. Thank you.

OOPS . . . sorry the NICHCY web page should be http://www.nichcy.org/states.htm I left out the s on state, visit this site www.nichcy.org for other resources even if you don't need $$$ for meetings!

EVERYONE! An excellent resource for all parents of children with special needs is NICHCY, The National Information Center for Children & Youth with Disabilities. http://www.nichcy.org/state.htm When you go to this page, you can click on your state and find contact information for all of the state agencies that deal with develelopmental disabilities in your state. For those of you who have received a new parent packet of information from the National Down Syndrome Congress, you received this very valuable piece of information already. If not, and you are interested in attending conventions, conferences or seminars that require a registration fee and other expenses, I would recommend you visit the NICHCY (state of choice) page and scroll down to [State Developmental Disability Planning Council] for contact information for your state's DD Council. Give them a call and ask if they have a 'Family Empowerment Department'. Every state in the USA has a Governor's Council on Developemntal Disabilities and they all naturally have a budget. They usually have money budgeted for family empowerment. This money is to be used to educate families on their child's special need. This has nothing to do with the family income, but everything to do with educating the family on the child's special need. DD Councils in different states have been known to pay airfare, hotel, meals and even respite for families to attend meetings to educate themselves on their child's special need, if their budget allows. Families of children 0-5 should be able to receive this service through their Regional Centers (early intervention). The DD Councils will sometime 100 per cent, or they might pay 1/2 of the expense and sometime, they have no $$$ at all, but it is certainly worth the call!! Parents deserve help from the state with educating themselves on their child's special need! When families take steps to educate themselves and their children, and plan for their child's futures, it certainly saves $$$ in the long run for the state. GO FOR IT !!

AiLay, I'm so sorry to read that Shuxin had to go to the hospital. How is she doing now? That must be such a heartwrenching thing to see your little one in a hospital bed. Did they let you stay with her, during the night? I pray her health has improved. Please keep us posted on how she is doing, if you get a chance... I hope all is well, Michelle

Jody, I would like a copy of your behavior plan. Thanks!

Jody, please E-mail me a copy of your behavior plan. Thanks!

Please Help, I am trying to find resources for a young, single parent in Moline, IL with a 6mth.old daughter with DS. The family needs education about early intervention. Does anyone know names of special ed. coordinator for Moline Public Schools or names of any birth to 3 yr. old programs in Moline area or Special Education Coop name in Moline? thanks. Send any responses to e-mail address. Any information I can share would be greatly appreciated. this is a wonderful web site by the way.