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September 2001Message Board Archives.
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| Child: | Sonny7 | ||
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Annie and family |
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| Name: | CIndy Email: | ||
| Child: | kaylee and emma | ||
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| Name: | Tricia Email: | ||
| Child: | Patrick 17 mons | ||
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Michele....I was so touched by the story of the couple below (sorry forgot the name) that adopted the little boy with Ds. You know just one story like that is worth everything this site has done. What a wonderful feeling you should have about how you have made a real difference in people's lives. Bless you. |
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| Name: | Annie S Email: | ||
| Child: | Sonny 7 | ||
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We had such a great time..we went to 7 diferent Islands the first was ST Johns trunck bay Sonny loved the beach there..Then on Tortola a beatiful Island you could see all of the virgin ls. from the top of the Island..next Dominica were we hiked into the rainforest to a water fall and an emerald pool..That day Sonny stayed on ship in there kid's camp he loved it they said he was really good and all the kids loved him.. Every were we went everyone on the ship new Sonny it was really strange..He makes friends so quickly..I have some new pictures of the captian Sonny we found a captians hat and he would salute everyone..So cute.. We went snorkleing in Barbadose and Sonny played on the beach there too... he was chasing all the birds on the beach it was so funny...The water there is so pretty... Like a fool I forgot to sunscreen my back the first day and ended up with a bad sunburn..it was so bad.. then picked up a really bad cough and cold on the last couple days..All in all it was so much fun to spend time with my family... Trying to catchup on all the posts ...Great to travel but its also great to come home.. |
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| Name: | Ro Email: | ||
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Steffipppppppoooooooo, Sorry to hear of Liv's BBBbbbaaaaaaaaddddddddd weekend:( Hopefully she will be plenty rested for her pre-op and things go accordingly. Ya know how YOU'RE always ready but...... the doc has something else planned:( Hugs to you and Liv, Jeff and Kyle:) Be waiting to hear the results tomorrow A.M. and HOPEFULLY I will see ya in chat:) RO |
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| Name: | steff Email: | ||
| Child: | Olivia(3) | ||
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See ya in chat tonight.We were gonna go to San Diego for a football game this weekend and to the zoo Saturday BUT Liv got real sick Saturday morning.Sooo WAAAA My hubby went down there this morning instead.At this point she is on her nebulizer treatments every 4 hours and all day O2.. SHE HATES the O2 during the day. BUT.. the fact that all she wants to do is sleep is mighty helpful in getting her to wear the cannula.So ya all know what I did this weekend.. .. fun fun fun...Tomorrow she goes for her preop soI'm hoping that she's okay but PERFECT timing I may add. At least she'll get a chest xray out of it. AND the bloodwork. I've got my EMLA in hand Cindy. I love that stuff. We always go to the lab and ask for a supervisor. He does Livs bloodwork cause he's soo good and gets her right away.So that's what we've been doing pretty exciting eh? Bet your jealous...LOL!!!I will see ya tonight. BYE |
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| Name: | Heather ZL Email: | ||
| Child: | Sophia, 3 | ||
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And by the way, Sophia started Montessori Kindergarten in August and is sooooo happy! Right from the get-go she started making enormous strides and progress that I even noticed at home! She turned 3 in May and is the youngest in the class, and might I add, is the class darling to all of her peers! Speaking of peers: There is a little boy in her class who has MRSA- active staff (a form of streptococcus) bacteria that cannot be combatted with ANY antibiotics. The specialists here cannot find anything that works, and he's also always in the hospital. Although it's highly contagious, the head doctor of northern Switz. gave the o.k. for him to be around other children. I have absolutely NO problem with him being around and playing with Sophia, but I do wonder about whether Sophia could more easily contract MRSA from him...you know, lower immunities/resistence and all. One of two antibiotics, Vancocin, used to combat it is HIIIIIIIIGLY toxic. Sophia was administered vancocin as an infant after birth for some mystereous (probably staff, as it was contracted in the neonatal unit) infection, and had a cyanotic (all shades of blue and purple) reaction. She can't have it again. If anyone has any experience with this, please post. To my knowledge, this little boy also has a LOT of other health problems which the boy's parents will not discuss. My guess is that as he's adopted from Romania, he's possibly HIV. And also (I am no doctor, but this is just purely speculation here!) may shed some light as to why typical antibiotics used to treat MRSA will not cure him. Often the nurses from the children's hospital bring him to school...I know this child's life is difficult enough. I do wish I knew what was going on, though. Just curious to know if anybody knows if a child with DS is more easily susceptable to this kind of thing, and what sanitary measures need to be taken. So far as I know, the teachers say that as long as the children wash their hands before and after they snack, use the toilet, wipe their nose, etc., that that is adequatly sanitary for the classroom. I'll stop rambling now! I'll post this as well on the Bulletin Board. I'll check back at the chatroom now. Heather ;) |
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| Name: | Sherri Email: | ||
| Child: | Jared | ||
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In Denise's memory........I would like to post a poem that she had written. FRIENDS If nobody smiled and nobody cheered and nobody helped us along If everyman just stood up by himself and the good things went to the strong. If nobody cared a little for you and nobody even thought of me and we all stood alone in the battle of life what a dreery old life this would be. Life is sweet because of the friends that we make and for the things in common we share. We do things not just for ourselves but for all those others who care. Love is living and giving to somebody else and on this all earths splendor depends. For the greatest joy we can have in this world is the making of friends. |
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| Name: | steff Email: | ||
| Child: | Olivia(3) | ||
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Just got back from dinn-dinn,very NICE NOT to have to cook. Leslie.. :) HAVE FUN!!!! OHHH to go out and be away from children... I'll be thinking bout what a great time your having.. and be a TAD bit JEALOUS!!!!LOL!!!~GO out and have a bLAST!!!A mai tai would do me good right now... mmmmmm...Have one for me K? Shannon... Whatta great story!!!Yea we do have some cute kids and teenagers and adults round here...Isn't the photo album the best. Nathaniel is 2 and a half eh???? Where do you live and how's it going? CINDY!!! Well have you described Olivia to a tee. In the morning I try to get her to put on as many clothes as she can possible by HERSELF!!! And I ALSO hafta walk away and let her do it on her own like a BIG GIRL. If I stand over her she will NOT do it.She likes to show me the finished product all by herself and sometimes it is sooo FUNNY!!! BUT she tries.....Let's just say we're going through the dresses these days.Both legs seem to go into one pants leg so I am saving that for later... Also when she goes on the potty I must help her on... then she says(actually demands...) PIRACY MOM PIRACY!!!(aka privacy) then pees by herself and tends to stay in longer to throw about a roll of toilet paper in the toilet. Does she really want privacy or some time to get into the toilet paper??? I am still wondering.. We're working on it. She does the imaginary wipe.. GRRRR....I think the competition between her and kyle has done wonders. The thing I love about her soo much is the fact that she usually doesn't win BUT she always tries.. and tries HARD...So I kinda factor in the fact that Olivia gets LOTS of attention when we are out in public while Kyle doesn't.. And Kyle wins at more games than Liv does...It's kind of a give and take with my kids and the funny thing is that they totally understyand it while I sometimes have problems with it. ya know what I mean? I know your girls are close in age...Maybe you can relate... About the aide situation someone was talking about.Being an outsider to your situation I would like to say that if your old aide is training your new aide. GRAB the new AIDE and tell him/her how you feel about the hovering over your child. Make sure you tell em it REALLY bothered you and your child that they were hovered upon...THAT would be my solution.JUST tell em FLAT OUT...My son Kyle has a child in his class in Kindy with an aide.I have talked to this girl a number of times and I think the aide is a BIG part of this child not getting to know the other kids.She HOVERS.. and talks for her(even though this girl only has a PHYSICAL disability and irregardless she'll hafta talk for herself one day physically mentally whatever disabled...)I won't let her talk for her when she talks to me BUT Kyle even said this girl has herb "OWN TEACHER". GRRRRRRRR.Now THAT irritates me cause I have tried so hard to make sure that that will never happen to my LIV.No way. That would be a BIG issue for me even more so than academics sorry to say...Friends and being out in the world and functioning all on her own is something I have worked and Olivia has worked VERY hard on and I think that would be a HUGE let down so tell em... BOY am I pushy...LOL. Well I am outta here., I wanted to say a few things but am getting tired... So cest la vie... adoios,,,goodbye so long... |
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| Name: | cindy Email: | ||
| Child: | kaylee and emma | ||
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| Name: | Cindy Email: | ||
| Child: | kaylee..(8/ds) emma (5) | ||
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| Name: | Shannon Quarles Email: | ||
| Child: | Nathanael, age 2 1/2 | ||
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I went to the chat room last night and got the chance to briefly chat with some of you, but I have been gone so long, I kinda wanted to post here to re-introduce my family. I hope I can get to know all of you. I mentioned that this site had a lot to do with our decision to adopt our son. What happened was that we were near the end of our approval process,and went to look at pictures of waiting children...and the most beautiful baby boy in the world was the first, and only, picture we saw. My Husband and I fell instantly and fiercely in love with him. We had no idea that he had Down Syndrome, but when the worker told us, it was as inconsequential as if she told us he had black hair.. a beautiful part of him.. just kind of lost in the enormity of the love we felt for him. Little did we know that his birthmother had also picked us out of a list of couples! It was sheer coincidence (but we took it as a miracle) Well, there is a mandatory wait before we were allowed to say YES, WE WANT HIM!!! During that wait we started to doubt that we would be good enough for him. That's when I found this site. My Husband and I did not post, but read and read and read. We quickly saw a group of parents that that were enjoying their children each and everyday, and we related to the love that everyone expressed for their little ones. We realized that having a child with DS is not about what you know and what skills you have..it's about what you are willing to learn, and how you are willing to be permanently touched by caring people and precious children. Anyway, Nathanael is now 2 1/2, and the joy of our lives. We do credit this site with helping us, much as you do any new parent whose child has been diagnosed with DS. You are all so very special to us. I know it might seem strange for me to pour my heart out like this to strangers...but I don't feel like you are strangers. Not at all. |
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| Name: | Leslie Email: | ||
| Child: | Laura (11) | ||
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I have a very close friend who I only see one weekend a year. We met when both our husbands were posted to Northern Ontario with the Provincial Police. We both had one child and were pregnant together with our second children. We were together every day and she gave birth to her daughter in August and I gave birth to Laura in October. I look back a don't know what I would have done without her. She was always there with love and support. We moved on to separate parts of Ontario, but have always stayed close. We ended up having our third children one month apart. Well, Joan is coming this weekend!! Jeff (dh) has always been off on the weekend that she comes so we can take off and do whatever we wanted to without having to worry about "home fires". This year he is working Noon to midnight throught the weekend. He just phoned to tell me he was able to get tomorrow night off. I am very excited. Joan is expected any minute now and I can't wait to see her. Have a great weekend!! Leslie |
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| Name: | Cindy Email: | ||
| Child: | kaylee and emma | ||
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We do the racing thing to Steff-and when it's time to brush teeth or get shoes on etc..I usually say "Who's gonna be FIRST!??" And both girls yell I AM I AM...and make a run for the bathroom or the shoe basket. I know that is a little mean, maybe-we usually try to make it a TIE! ;) |
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| Name: | steff Email: | ||
| Child: | Olivia(3) | ||
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Well I like this topic here today. I am gonna try the 1,2,3 thing... Worth a shot fer sure. I find that the more impatient I am the worse Olivia gets. I've been trying to leave for wherever we go a little earlier as Cindy suggested and it works much better. I have time to suggest other options for Liv when I'm not running running running...More time to be patient...I do know what works for Olivia when transitioning to somewhere new we like to race.. Let's say we're outside and hafta go inside. WELL.. Liv generally doesn't wanna come back in...So what has worked for us is me saying.. Okay we're gonna go in..Let's race... On your marks get set go...I didn't wanna do that when Liv was refusing cause like Cindy echoed earlier I didn't wanna feel like she was getting special treatment etc.. cause of ds etc...BUT I AM OVER THAT... LOL!!! Annie...I did the same thing when I first hooked up to yahoo messenger...LOLOL!!! Hmmmm. kept wondering why my computer was so slow... then I see 400 messages... I did my unsubscribing that night...Ya know my Olivia has trouble in BIG groups in school. BUT I have found that during story time she tends to scoot her butt ALL the way up front close to the teacher reading. She sticks around when she is up close and right in front. She participates more and I think she can see so much better. I dunno....When she is in the back of the kids listening to the story, she tends to dart and take off somewhere else. Her teacher last year pointed that out and I saw one day when I was watching her class(without Olivia knowing). Well I am gonna git.. Oh yea have you ever tried a battery operated toothbrush Gwen????? Oh yea.. Olivia LOVED the ocean yesterday.. She jumped over the waves and would run too far out into the water. When the wave would come she would be out too far and get munched by it. She thought it was hysterical...First she'd get this frightened look on her face then she'd crack up .... Made me laugh so hard.. After the water she rolled in the sand producing a sugar doughnut baby. LOVELY...We had a blast. Kyle is some ocean swimmer. He is CRAZY!!! First he won't go near the water(he said it stunk) now I can't get him out.All or nothing kid. Wonder if he'll eat broccoli soon??? take care.. BYE |
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| Name: | kathleen Email: | ||
| Child: | Rhienne, 5 | ||
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THANKS for saving me that scenario!!!!!!!!!!!!! i hadn't even thought about that reaction, but Rhienne WOULD follow with 4, 5, 6!! How about if I do it in Spanish?????????!!!!!!!!!! |
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| Name: | Gwen Email: | ||
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| Name: | Gwen Email: | ||
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| Name: | Annie Email: | ||
| Child: | Michael 6, Zack 3 | ||
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Mikey will be starting his new school monday!!!I'm sooo excited...The only thing i'm worried about is his aide..the one he has now is going to transition with him to his new school..which is good because this will be his third classroom since school began..and he knows her But she HOOVERS him..shes always right on him and i dont like it because that actually causes him to act worse....And when i go pick him up she always tells me what he did wrong so yesterday she tells me he was very stubborn..So i go well do you have any good news? she says well he was really into story today and sat the whole time..I go that's GREAT..Mikey has NEVER sat for story..Also they were playing a game kinda like duck duck goose but 2 kids run around the circle in opposite directions and sha said he was having fun and she ran with him around the circle so he would'nt bump into anyone..that made me MAD because any other kids could of bumped into each other..I just dont like that..he knows how to run TRUST ME!!!I just feel she really doesnt know how to handle him..for instance if he doesnt want to do something and you push or pull him towards it he noodles up..he becomes limp and you need a pro wrestler to pick him up..lol.i'm gonna see how the first 2 weeks go then tell them i want a FBA done..Cause his aide now is going to train the new one.And i think his aide now needs training... Have a Good Day Everyone!!! Annie |
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| Name: | Laura | ||
| Child: | Julia | ||
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| Name: | Christie Email: | ||
| Child: | Christopher 8 and 1/2 | ||
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I absolutly echo what Cindy said bout the choices. Funny Chris never ever said NO till he hit 5 years old. Always just said YES to everything. But once he started the NO, oh my seemed like thats all he said. Christopher is 8 and 1/2 now and is sooo much better but still says NOOOOOO. We did the same as Cindy instead of saying Chris get dressed, we would say you want to wear the blue shirt or the red shirt today? Or when he refuses to do his homework and say wants to play Nintendo we tell Chris you do homework first then Nintendo. Just seems to work like a charm. But there are times when Christopher's sister is bugging him and Chris will say "Nooooo Kodi Stop" I make sure he has the right to voice his opinion and Kodi respects his wishes, just as when Chris bugs Kodi he has to learn to respect her wishes to be left alone. Have to say the 1-2-3 didn't work that well for us cause Chris would just start 4-5-6, LOLOL First time he did that I cracked up sooo bad, couldn't help myself, the moment was lost. But I do believe its worth a try also as I have heard many that worked for. Any chance I get to use a different word then NO, yet get the same result I try. I think our little ones hear that word sooo much and at least for me and Chris it just usually become a power struggle. Hang in there this phase will pass, promise. Christie |
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| Name: | kathleen Email: | ||
| Child: | Rhienne, 5 | ||
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| Name: | Cindy Email: | ||
| Child: | kaylee and emma | ||
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good luck! |
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| Name: | MichelleMc | ||
| Child: | Casey, Age 11 | ||
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About your battles with Nicholas: I know this may seem way too simplistic and almost ridiculous... but I'm going to toss it out there anyway. I've had the same power struggles with Casey (now 11) where I was at the end of my rope. Somehow, counting to 3, in a REALLY STERN VOICE has had a magically powerful effect for us. I can't explain why, ... but when we say (in a really slow, serious, stern voice) "Casey, I'm going to count to three, and you are going to get up and put that away!... ONE...., TWO... THREE!!!" Well, by golly! He gets his butt into gear and does what he's told!! I can't explain it. It's not like we ever took out the belt after the count of three! Maybe a few times a little swat on the bottom ensued, but I really don't remember it ever coming to that. I've described this to other people whose kids had DS, and they've said it worked for them as well. I have no idea why ... maybe it just gives them a little time to think about it? But only a very short time. I don't know why it works but it couldn't hurt to try?! If not, post again and I'll dig down deeper for ways that I've dealt with this. I know we all have gone through it. I still do. On some things, I let it go. Sometimes I think he does it just for the thrill of the showdown. The more I tell him to "kiss your Nana goodbye," the more he is determined to do never do it. I drop it. I'm not going to force him to display affection. I know he loves her. He's just playing games with me. But when it comes to stuff like "Go brush your teeth"... this counting to three thing has worked wonderfully. I have no idea why! |
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| Name: | Cindy Email: | ||
| Child: | kaylee (8) Emma (5) | ||
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SO, to put it simply-I had to start ignoring the NO! ('cuz I was going nuts to!) and try different approaches (usually asking really quietly also makes a big difference). I realized that I wasn't giving Kaylee much respect, and she was throwing it right back at me. I really can't stand bad behavior though, so it was like a vicious circle because I just kept getting more and more frustrated. If it gets that way for you, just walk away for a few minutes-or maybe just go quietly set the timer and say "If this isn't done by the time the timer goes off in 5 minutes, then no ARTHUR today!" That always worked miracles for me.. Believe me, I definately been there (most of the summer actually!) and it does get better-it's just a phase.. |
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| Name: | Tina Email: | ||
| Child: | Stevie-Marie + 5 | ||
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HAPPY BIRTHDAY BILLY!! I sure miss ya, Bren!! *hugs* Heather, I emailed ya!! Karen, I also answered you on the BB.. ;) although I just pretty much echoed Steff and Robin...they are some smart ladies..lol don't tell them I said that..it'll go straight to their heads...;) I am gettin pretty good at sneakin on here... shhhh somebody will hear us.. and then, the jig will be up.. Debbie, it is so encouraging to read your posts.. thank you for taking the time to share with us...I love it!!!:) Cindy..I am TELLIN ya girl....Stevie-Marie and Kaylee were twins in another life...lol well, I am outta words, for now... so, I will close with my usual... *hugs and happy thoughts*... ~Tina P.S. Susan, I need to email you and find out about the memorial tree..or you can shoot me an email if ya want. :o) |
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| Name: | Robin Email: | ||
| Child: | Chase | ||
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Wow, you have been let down by the system there. Jaime should be getting PT, OT and speech along with seeing a developemental teacher at least once a week for all of them. I am sure you can ask your pediatrician for a script for all of this and get it from your local hospital if you have to go that route, but remember my favorite saying and the school system here hates me for it, LOLOL "THE SQUEAKY WHEEL GETS THE GREASE" as sad as that is, it is the truth. Go get 'em girl for Jaime deserves the best ans shouldnt have to wait and if you need...LOL, Steff and I will come help kick butt :-) hugs, Robin from Michigan |
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| Name: | steff Email: | ||
| Child: | Olivia(3) | ||
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| Name: | Karen (KC) Email: | ||
| Child: | Jaime 10 months + 5 more! | ||
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We live in Minnesota. Jaime is now ten months old. She has just begun to sit alone (only for about 30 sec.) She isn't showing any desire to crawl but does a little rolling. She is able to get finger foods to her mouth through fist grasp. Late last spring I requested a PT eval. It was done (informally I found out later) and I was told they'd visit her in a couple of months. Now the PT took another job so we are without. My biggest concerns for Jaime, now, are physical. She is very observant and interactive (5 sibs will do that for you). I feel like we've lost time when we could've been trying to build those skills! Up to now she's only seen her EI teacher once a month. Does this seem appropriate to you? It seems to me her teacher should be proacrive not waiting for delays to show up. No OT, PT, or ST! I'm SO frustrated. What kind/how much of EI program/therapies are your children receiving? PLEASE help! Oh by the way...I forgot to say that I'm trying to get services in place by going outside the school system (since I no longer have confidence in them. ) I've had her doctor refer her to dev ped and phy evals. If I can't get the quality therapies through the school district I'm hoping to get a doctor order and get them privately. Jaime has MA & SSI and I think they will pay for the services. Karen |
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| Name: | Heather Email: | ||
| Child: | Nicholas (5 DS) | ||
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| Name: | steff Email: | ||
| Child: | OLIVIA(3) | ||
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Guess who's 7 years old today??? BILLY!!!! HAPPY BIRTHDAY BILLY... Take care and have a good one. BRENDA can ya take a picture??? :)BYe |
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| Name: | CIndy Email: | ||
| Child: | kaylee and emma | ||
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| Name: | Debbie Email: | ||
| Child: | Self-Advocate | ||
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It is wonderful to have and it must of helped so many parents. You all can help each other and I thank that is wonderful. I am in a different place but I enjoy reading the messages and remember my childhood of hard knocks. It was easy. I had very few teachers who didn't understand and weren't willing to work with me. Almost all of my teachers were willing to work with my mother and thought of different ways to help me. I was very blessed! Jackie: What I meant to say was I am glad Emily didn't fly to her destination for her trip. If you have read my message you will probably understand it. I was thinking about her and if she had flown there yet. I am nervous about flying any where now. I always was and now I am even more! I prefer flying with someone than by myself. My parents have been out of town so I have unlimited time on the computer. This is very rare when my dad is home. You can't get him off! I will keep you all posted on my progress on my class. Hopefully, I will be able to take another one in the spring. We will see. Bye everyone! Debbie |
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| Name: | steff Email: | ||
| Child: | Olivia(3) | ||
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YOU ARE MISSED!!!! HEY any new pics of the family???Liv at 3 is never underestimated at least in our house and I too demand the same respect from others. When we go lets say to the store Liv is a character and can draw up a lotta attention. She says HI to everyone. I have noticed that people ask me info about her so I in turn ask her the same question or tell em you can ask her if you want. Then she answers the questions.Often they are VERY surprised but try not to act like it.LOL...Now most of the people that we see a LOT ask her now instead of going through me.How is Cassie??? I'll pray for them to find out some info for you. That is one thing I have always felt so frustrated about. Undiagnosed problems are the most frustrating. I feel so lucky we have a firm diagnosis and can just get what we need without a HUGE to do.Hope and pray you get some ansWell I must go.. take care BYEwers |
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| Name: | steff Email: | ||
| Child: | Olivia(3) | ||
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Well we have a DAY OFF today!!!AND brave me is taking Kyle and olivia to the beach today.We're gonna collect shells for picture frames that the kids will make for their teachers at Christmas...Plus the lure of a beautiful day makes the beach all the more appealing. RADONNA!!! HI.... Geez I hope that your school situation gets resolved.Olivias got a temp teacher(allegedly) and well it seems as if she expects a LOT outta Olivia which is good BUT maybe a bit much. You see olivia is the only child out of the 8 sp ed students this year who has, what could I call it, a delay cognitively.4 of the kids were preemies and are doing great.. One child has a gait problem smart as a whip and calls me mommy and wants to go home with Olivia and I after school.. I adore that child.. :)And the rest of the kids I couldn't even tell you why they are there..Sp needs that I cannot see. (which of course mean nothing..LOL cause I am FAR from being expert :) ) Thank goodness for the sp education teachers aide...She makes life so unbelieveable for Liv.We are currently working on drawing lines in school and at home...Our school situation is kinda strange at the moment since her teach left from last year.. BUT.. her principal is so great.. She told me the other day that she has been watching what was going on with her therapies,gives me the therapists numbers and was discussing Olivias IEP and all the goals she has for Olivia and the school this year. Must be a tough position .She will be ther and is just so... FUN but FIRM. I hope you can find the IDEAL situation for Kaden.School district...private school... whatever will work for him and help him to grow and feel proud of himself.I know what you mean though cause the first couple days of Olivias new teacher.. the teacher would come at me with negative comments about my girl. SHE'S SO OBSTINATE.. WHEN IS SHE GONNA GET OUTTA THESE?? (as she patted her diaper...hrras if I LOVE to change FUNKY diapers and not prefer she be pottytrained grr...) BUT she musta felt the VIBE from me cause that STOPPED.. We really don't talk much and the aide watches out for Liv. NOW I know how MAD and SAD it must make you when that NEGATIVE manner in which is used to describe our kids is used. It makes me even more mad too cause we had the experience of having a #1 ACE teach the first year of preschool and Olivia BLOSSOMED...So I know it can work beautifully for Olivia with the right teach. LINDA.. HI send em on to the trade center we are getting new ones this week. HI DEBBIE... Well we are outta here. HOPEFULLY we'll see you in chat tonight |
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| Name: | cindy again Email: | ||
| Child: | kaylee (8) emma (5) | ||
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anyways, hugs to you Tina-your kids are growing up so fast..hope you get some answers in regards to Cassies symptoms..please let us know. BTW-ROBIN-You ARE a great momma and a woman who is very admired by many.! |
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| Name: | Cindy Email: | ||
| Child: | kaylee and emma | ||
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so, Michelle. Thank you sure doesn't do you justice. Wish I could send you on a trip to Cancun or something, the site has just meant so much to me-and hundreds if not thousands of others. And most importantly-IT HAS MEANT THE WORLD OF DIFFERENCE FOR KAYLEE IN REGARDS TO HER LIFE AND FUTURE. Wouldn't you all agree? I went ahead with her T & A with encouragment from parents here-and she has only had strep once in the year and a half since then. I requested instruction in phonics due to the shared info of other parents..I continue to bring up other kids placements in my IEP's---I think ahead to the possibility of college?? Would I have dared think that far ahead without Jackie around? And, as Kaylee's mom-I have far more courage in facing the future, IEP's and all-with the support and instruction of the friends here. SO, quite frankly, UNOMAS! has changed the course of many lives-I'm sure of it! okay, I must go! ttfn cindy |
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| Name: | Susan Email: | ||
| Child: | Emily | ||
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~ I'm hurrying to get ready for work, but wanted to say: HUGS to Robin!!!! What a great friend! And...to Michelle Mc: Can't thank you enough for this site! I have received so much support and friendship here and don't know what I'd do without Uno Mas! I appreciate all you do. ~ Tina: I know what you mean about assuming that our children with DS don't understand what is going on in the world and being as saddened/scared as we are. I'm afraid I've made that mistake myself a few times with Emily. (ok..maybe more than a FEW) Please keep posting, and join us in chat sometime! ~ Debbie: It's great to hear from you! Best wishes for a wonderful semester in school!! Keep us updated! ~ Emily has been so excited about participating in Special Olympics bowling next week. For days, that has been what she's been talking about. Yesterday, she went to the bowling center to bowl a few games with the group in order to get her "average score" to turn in to the Special Olympics team. Boy were we surprised when we found that they were NOT using bumpers!!!!!! Emily LOVES to bowl, but has always used bumpers and has always scored very high and received lots of high fives from her friends. Yesterday, she was shocked to see the ball roll into the gutter. Poor kid. I'm sure she was thinking "what's this all about"????? Her average score was......15!!!!! But, she'll compete and will hopefully have a good time. ~ Tonight is CHAT!!! Everyone join us! 8pm Central Time. Susan |
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| Name: | Robin Email: | ||
| Child: | Chase | ||
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Life is so hectic lately that I never seem to get here, and see that I missed my day of hugs, LOLOL, Ro ..you are such a doll, and oh so acurate of me, I LOVED your description of me and plan to copy it for further use when you are picking at me, LOLOL! I have two ful days of training ahead of me tody and tomorrow at CMH, it is going to be a long two days, and I have been up since four, trying to solve the worlds problems in my little head, grrr, dont you hate it when you cant sleep and everything starts to worry you while you lay there? Thanks ofr the advice on the scanner, I plan to try to figure this thing out tonihgt and I will also be in chat tonihgt too, I hate when I dont get here every day to say hi and hugs. Steffy, yea to the T&A, about time!!! beck, yea to Justins new toofer, Suzi, I will check it out at the BB, thnks, Tina, hi girl, we miss you!, radonna, aww hugs to you bud, I hae missed alot of names but I wont tonihgt when I get back here, time to take a shower and have coffeee with the old guy :-) hugs to all, have a great day girls, Robin |
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| Name: | Robin Email: | ||
| Child: | Chase | ||
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I am late saying it by a few hours here, (oops, story of my life lately) but thanks for bringing us so much joy and happiness here at unomas, what would we all do without this board? We love you! hugs, Robin |
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| Name: | Tina Email: | ||
| Child: | Stevie-Marie..and a few others | ||
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