***HELLO***
Name: Testing:)
Web Site:http://
Date: Tuesday, May 23, 2000 at 16:11:30
Comments:Hello
Name: Ro
Web Site:http://
Date: Tuesday, May 23, 2000 at 16:07:41
Comments:Lets see if this works:)
Cross your fingers Tam:)LOL
If it don't work just ignore me:)LOL
HELLO
:p
Ro
Name: Becky...
Web Site:http://
Date: Tuesday, May 23, 2000 at 13:55:26
Comments:
Just one more thing...Charleston is the capital of WV
Name: Becky/Kelly's mommy
Email:buckaroobeck@postnet.com
Web Site:http://
Date: Tuesday, May 23, 2000 at 13:53:55
Comments: Michelle - I am sorry - I've must have missed something! What link is it that you're talking about ??? I think I'm just confused!Jackie, preacher woman, I think you make a lot of sense and I secretly admire you ;-)!!
It would probably be a good idea like Jackie said to refresh who we all are once in a while, or even to say if we have 'Our Story' posted (I do for anyone interested).
Yes, Kelly's therapists are calling it an IEP. We had her IFSP about 3 weeks ago. Their reasoning is to hopefully get us used to IEP's and how they work and just to get us comfortable so when school does start, that we are not 'in the dark'.
Thanks for the 'froggy leg' info (Shawna??? sorry!). Same thing we were told, so this 'bike shorts' they are ordering should help us with the problem. Kind of like scuba gear. With some slight resistance - I'll let you all know how they work after we get them. Have to get it approved thru service coordinator first. That's such a pain!!!
Kelly Belly is so funny - she just learned how to pull of her little sock, and is waving it in the air laughing for about the past 15 minutes!!!
How pitiful, 90% of these wonderful human beings never make it into the world!!! I thank God for Kelly every day too. I feel no pity for us nor do I feel ANY shame - I'm so proud of Kel, I know you all know exactly where I'm coming from!!!
I gotta run, go look at my hideous lamps we just got from UPS from shopping online. They'd look fine in a dark den with dark leather couches and a shield and swords on the wall. LOL !!! At least my beach towels are very very cool!!!
BTW -
HEY, BIGGER IS BETTER!!!
Have a great one!!! ~~~Beck
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Tuesday, May 23, 2000 at 13:51:30
Comments:
Thursday is Jared's surgery!
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Tuesday, May 23, 2000 at 13:49:39
Comments:Lorena: I wish I remebered the town in Maryland that my Dad's family is from. Next time he calls I will ask. A lot of his family still live in Maryland that is why i asked about the Blakes:
Denise I didn't get the frog in a blender yet! What does Kaden do all Summer....HMMMMMMM besides drive me CRAZY?? Nah most times I put him in Mothers Day out Programs or anything his vision therepist says will be good. This year it is all Medical all Summer. He gets put to sleep for an ear exam and hearing tests on the 6 th of June and then he has to have surgery on his ears and he may have his eye surgery depends on if I can MAKE them do it. Give Stevie a big hug for me!!!
Radonna
Name: Jackie mom to Emily (20)
Email:Grannyjj@hotmail.com
Web Site:http://
Date: Tuesday, May 23, 2000 at 13:48:09
Comments:
Took the Prom pics to Target...just a few short days til you get a peek. I even had them put on a disk...is that a good thing...told you I know nada!
Isn't Jarred's eye surgery in about 2 days...his mom(Sherri?) hasn't posted in awhile. I want to hear all about eye muscle surgery because I am supposed to have eye muscle surgery myself eventually. I had very low vision and 3 laser surg's on each eye have given me almost perfect vision for the first time since I was 6! The opthomol. assured me it was simple surgery but told me they leave the stitches in until the next day so they can tighten or loosen them as needed...????? Anyway, I'm sure his will go fine...our little ones with all their assorted related problems seem to pull thru with such ease...but it's scarry nonthe less. I'll be thinking of you. Post and let us know how it goes. If I have all the wrong names or no one is having eye surgery email and set me straight. LOL
Jackie
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Tuesday, May 23, 2000 at 13:32:03
Comments:
Hello,been at the doctor all day with my kids. They don't have Roseola. They don't know what it is.
They kept asking if I had changed detergent or anything.
Paula: Kaden was just 5 pounds when he was born and his club feet weren't due to being cramped up. He had casts from 5 days old until 6 months old and they decided that the cast weren't helping. He still weighed 6 pounds (so tiny) I have one of his first casts that after he lost a little weight slipped off his foot. It fits perfectly over my thumb.In the Photo Gallery the last picture of Kaden. He has red and white infant socks and they are over his casts.When Kaden FINALLY hit 13 pounds in Feb. of 95 he had his surgery. They had to streach his heal cords and put pens through the bones to keep them straight, In April before his first birthday Kaden was standing in his cast and walking around furniture, I remember the first time I saw his feet after surgery, they were so perfect!! One of the most beautiful things that I have ever saw. When they switched him to short legged casts he started walking at 13 months old. The Doctors were amazed, but no one was more amazed than me. The way my Doctor who practices at Vanderbilt University and is considered the BEST (I know Allisa they ALL are the best) said if club feet weren't caused by being crowded in the womb that they wouldn't straighten by manipulating them.
Kaden is very flexible though He does the splits all the time. He impresses EVERYONE. I am going to look at Ethan right after I post. I just wanted to answer you real quick! I also wanted to tell you I am so in love with Kaden's feet now that I buy any pair of shoes that are cute, Kaden has the best dressed feet I have ever seen!lol
One more thing about cliques. I have only been here 2 months and I have met some really GREAT people. Everyone feels left out from time to time. I mean the sheer volume of posts sometimes are hard to get through. I will tell everyone the easiest way to keep up with what is going on. READ SHAWNA'S!! Shawna has earned her title as QUEEN!!LOL
Well Duty Calls
Radonna
Name: Judi
Email:judig2@yahoo.com
Web Site:http://
Date: Tuesday, May 23, 2000 at 12:03:26
Comments:Paula/Radonna: Sam had club feet, also, when he was born! Since he is a twin, the thought was it was caused from "in-utero" crowding.
Both his feet turned in (so that the soles of his feet were touching). We had a consult w/the orthopedic surgeon (while Sam was still in NICU). He taught the nurses and Mike and I how to do Range of Motion (ROM) exercises to stretch out those muscles. We did this for a few months, then about 2 weeks before he was discharged, he got tiny little casts! They came off they day we brought him home and another set went on. These were on for 3 weeks, then after that the Doc was so pleased w/his progress, he went right into those little orthopedic boot/shoes! He wore them for a few more months and then he was fine. I was just happy I didn't have to face another surgery!
I met a mom in our local support group who's son was also club footed (quite severely like Sam). She brought her son to Scottish Rite hospital everyday for stretching. He didn't have casts, but he had splints and he had the same successful results that Sam did w/no Surgery.
Paula, hope this is as successful for Ethan! Good luck!
Judi
Name: Paula (Ethan's Mom)
Email:deaneclan@eircom.net
Web Site:http://
Date: Tuesday, May 23, 2000 at 11:44:54
Comments:Hi all, Hope everyone is well. Everybody's kids seem to be doing really well at the moment, keep it up you guys. Well I've finally got a picture of Ethan with his new glasses posted up and a picture with his big sister Hannah (she's in her Communion dress so don't get alarmed, she doesn't always dress like that LOL). Ethan has been pretty poorly latley. He had a whole upper respitory(sp!) infection thing going on and he's been really miserable. I posted the other day that he had taken to the glasses really well, but I think (as usual) I spoke too soon. Since he's been sick he won't have them on for very long. I think his present mission in life is to snap them in two, or three, or four........ Hopefully, this is just a little glitch and he'll tolerate them for longer when he's feeling better.
Shawna, I know what yea mean about keeping them clean......I wont go into too much detail but suffice to say he's had a really bad runny nose the last few days and the glasses have had to be washed regularly !!! I'll leave it at that, shall I LOL.
Radonna, I couldn't believe it when I read that Kaden had clubbed feet. Ethan has one (his right foot). The orthapedic team have told me here (Dublin Ireland) that it's pretty rare for our babies to have clubbed feet due to their flexibility. You say Kaden had surgery, was that to stretch his tendon ? When did he get his surgery and how successful was it ? You really have me curious now. They've decided not to do the surgery on Ethan till it's deffinite that he needs it. They're hoping that it wont affect his walking etc, so they're waiting till he starts walking to decide. His heel is still quiet high off the ground but it is getting better. He wears these special orthapedic boots to help keep his foot straight (which come in any colour as long as its white !!!). They are a nightmare to keep clean. We're off to Portugal next week for 2 weeks so the orthapedic team have said we can put sandals on him while we're there. I ran out and bought him the cutest adidas pair I could find. I know it'll only be for 2 weeks but it'll be such a relief for me and Im sure Ethan not to have to wear big heavy boots in the sunshine. Let me know any details you have so I can make sure they're doing all they should for Ethan.
I've just realised that I've only just loaded up the pictures so it'll probably take a couple of days for them to be posted on the sight, as soon as they are I'll remind you all to take a peek.
Well gotta go as it's late here and I'm really tired.
Talk to you all soon.
love Paula
Name: Ro
Web Site:http://
Date: Tuesday, May 23, 2000 at 10:48:56
Comments:Thanks Tammy:)
Did ya get my mail?
Love RO
Name: Ro
Web Site:http://
Date: Tuesday, May 23, 2000 at 10:46:44
Comments:Please Remember
SMILE..... SMILE...... SMILE:)
If you have been ignored please feel free to come on
this board and TALK our legs off:)
When I first got here OCTOBER OF 99 (do the math:)
I too felt "IGNORED" by the OLDER posting folks:)
It was not intentional then and it wasn't this
time either:)
I posted and no one answered me either.
Did Ro get discouraged?:)
To have gotten as far as I have, I think not:)
I have been officially given the title "GABBY":)
Some I drive crazy, always being so happy it is a
curse I think:)LOL
Stay and talk if ya want :)
If you decide not now. Maybe later.
RO
am I right folks?
Name: Jackie...
Web Site:http://
Date: Tuesday, May 23, 2000 at 10:46:16
Comments:
Oh dear
just not my day....I am not emily's "mim" I want to be around happy people and my computer is not one so I'm going outside ( oops forgot the 102 degrees thing)....go finish my laundry like a good Queen.
Jackie
Name: Jackie...
Web Site:http://
Date: Tuesday, May 23, 2000 at 10:41:04
Comments:
Name: Jackie/Emily D's Mim
Email:grannyjj@hotmail.com
Web Site:http://
Date: Tuesday, May 23, 2000 at 10:39:39
Comments:My last post got away from me to the board before I got to reread it......far too preachy and it sounds like I own the board....sorry. The post I was going to make before I felt the need to lecture was:
When you are 50 you get to be QUEEN. When you are 20 you are only a PRINCESS. Queen outranks Princess...therefore when it is 102 degrees outside Queen can order (or ask politely) Princess to take the Library books in and pay the fine while Queen sits in airconditioned car and sips iced tea.....right??????? Queen awaits your response while Princess looks over her shoulder :)LOL
Name: Jackie EmilyD's Mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Tuesday, May 23, 2000 at 10:17:22
Comments:Whoever wrote the bit about cliques......understand where you're coming from....but don't think it's all THAT bad. People who post regularly do seem to assume certain personalities and do act like "best buds" alot of the time. This is probably a lot easier for some than others, don't you think? I have worried that newcomers might feel very inhibited at first...the board talks about a lot of issues that could be somewhat hard to follow if you don't know what the past history of the child with DS is. That is why I try from time to time to update who I am and what my issues are. I also don't attempt to ever include everyone in my posting responses.....I just can't remember everything everyone has posted since my last post and I don't really think it is my role to respond to every issue....just maybe those I have experienced or have some knowledge or info on to share. I'm afraid, too, that I would hurt someone's feelings if I accidentally left them out. I must say, though, that I admire those who can remember and am always trememdously flattered to have my post mentioned. I am most apt to respond by name to the person who posted last on the board, too :)LOL. I think if we would take turns posting every day or so a welcome to anyone who wants to discuss aspects of Down Syndrome we might see more new names. Making a friend or two thru direct email contact with a Uno Mas poster might also make the site seem friendlier to you and anyone else who might feel a bit left out. I have found all sorts of interesting sites out "there"......just where "there" is I don't know.......and can see why this site might not be for everyone dealing with DS. I DO think it is important, though, to find some source of support when dealing with any issue whether it be DS, alcholism, gifted children, or aging parents. Life in general is just so much easier if you have a friend. I will say I enjoy being part of this ever changing circle of friends and promise if I ever win the
oops!!!!!!!!!!!
$10,000,000 prize on i.won.com I will personally send everyone who has posted recently a paid ticket to a meeting place of the group's choosing so we can transform ourselves into real beings.
Jackie
Name: Mary from UK
Email:m.tutty@btinternet.com
Web Site:http://www.spencersite.net
Date: Tuesday, May 23, 2000 at 09:12:57
Comments:I just wanted to share this poem with you all
~Be Gentle~
Be gentle with one another
The cry comes out of the hurting heart of humanity.
It comes from the lives of those battered
With thoughtless words and brutal deeds;
It comes from the lips of those who speak them,
And the lives of those who do them.
Be gentle with one another. . .
Who of us can look inside another and know
What is there of hope and hurt, or promise and pain?
Who can know from what far places each has come
Or to what far places each may hope to go?
Our lives are like fragile eggs. . .
They are brittle. . .
They crack and the substance escapes. . . ..
Handle with Care!
Handle with exceeding, tender care, for there are
Human beings, there within.
Human beings, vulnerable as we are vulnerable;
Who feel as we feel,
Who hurt as we hurt.
Life is too transient to be cruel with one another.
It is too short for thoughtlessness.
Too brief for hurting.
Life is long enough for caring,
It is lasting enough for sharing,
Precious enough for Love.
Be gentle with one another.
~Author Unknown~
with love from Mary from UK
Name: Lorena: Clark's Mom
Email:L719zecher@aol.com
Web Site:http://
Date: Tuesday, May 23, 2000 at 08:32:00
Comments:Hi!!!! What is going on ?? I am trying to get Calrk to take a nap. Tryed the rocking thing( that is what we usually do) but he keeps fighting to get down ...sooooo I put him in the Crib and here I am..I have the baby monitor on so I can hear him. Hopefully he will tire himself out.
I tryed to post last night but it said that my coection was timed out ???? I didn't kow what that meant. I guess I better write it all again.
MaryL: I would go for the girl....if you feel that you are not done yet. I feel that I am done, plus I would be in big trouble with the mister...he is neutured LOL
Shawna: Keith is my hardheaded husband!!!! Though sometimes he acts like a kid.
Radonna: I know some Blakes but I doult that they are related to you...Does your Dad live in Frederick Co.?? BTW did the Dr. say that the boys have roseola?? I hope that they calmed down for you last night!!!
Jackie: you said that Emily will be in DC in August are you coming with her ??? I hope to meet her and you if you are coming.
Becky Kelly's Mom: There are a Charlestown and a Charleston in W.VA. I used to get really confused about that.I think that Charleston is the capital of W.VA. That is a good trivia question: What is the capital of West Virginia ???
I think that another Becky has the twins on the special child website. They are just to adorable !!!!
Allisa: I am glad that you are meeting your surgeon. we meant Clark's a few days before his surgery too. They usually are the best !!! Some of them are kind of cocky acting but for the most part they are talented at what they do. Clark's couldn't remember his name...kept calling him Carl.....the nurses thought that was funny.
Well, The child is crying now so I guess I will try the rocking again !!!! See everyone later. Have a great day !!!
Hugs,
Lorena
Name: Ro
Web Site:http://
Date: Tuesday, May 23, 2000 at 07:27:46
Comments:
Name: Denise
Email:DZeke@aol.com
Web Site:http://
Date: Tuesday, May 23, 2000 at 07:19:16
Comments:Good Afternoon everybody. I hope everyone is having a good day today. I didn't sleep at all last night for some reason, just couldn't turn off the old brain I guess. Feeling a bit stressed today, maybe a bit depressed but I know this too shall pass. Don't have any money and I want some. Too many medical bills coming my way and just want to have a little bit of fun for some reason today. Just in the mood to purchase something new I guess. Somebody send me something fun to read. I need a good laugh!
Radonna-Did you get the frog in the blender that I sent you. If your getting your house is getting appraisedin TN are you planning on moving someone where else? Your stats about the 90% abortion rate are absolutely correct. Isn't that so sad. Alot of people also lose their DS babies before they know that they are even pregnant with them. I knew that stevie was suffering from IUGR when I was carrying him but I didn't know he had DS. I almost lost him 3 times during the pregnancy. The way I look at it he was meant to be. I was diagnosed with Ovarian Ca. when I was 4 months pregnant with him and had a hysterectomy right after he was born. I figured that god only knew I could have one child and he gave me one that I could enjoy just a little longer. I certainly do too. How is Jonathen doing today. What does Kaden do all summer. I love that name and what a character he sounds like, lol.
Shawna-No coffee for me girlfriend, it's mountain dew for me all the way!!!! I have to see if I have those programs that you mentioned. I really want those poems and I would like those songs too. I'll let you know. You must have great neighbors. The one time stevie really did escape the neighbors called children and youth services on me and then they called the police. I had to prove I wasn't in the house doing drugs while my 4 yr old was wandering the streets, geeesh! I try and I try with the bike but stevie just doesn't getit. I even velcroed his feet to the tryke pedals but he just doesn't get it!!!
Alissa-We only get to be princesses because their is only one Queen Shawna and we just haven't mastered it quite yet. Sending lots of prayers for ERIN yet!
Brenda-I'm so glad that your back! I was getting worried that you weren't coming back. I've been missing you! Your right, when it rains it often pours but you know for you the sun has to come out again or how would all your flowers grow. I'm sending some sunshine your way!!!
Becky- Boy that's great that Kelly is doing all that stuff at 8 months old. Are they calling her meeting an IEP or an IFSP? Stevie's nickname at home is pudge pucket. Just a nice term of endearment for his fat little belly.
Mary-I for one don't mind that stevie's features are becoming more prominent as he becomes older. It doesn't bother me a bit. Especially when he is pulling one of his limp routines out in public. I just want to tell them, yeah he has down syndrome but he's working so hard and learning. He's a great kid!
Sherri- Still keeping Jared in my prayers for thursday and hope that you are keeping your sanity!
Heather/Nicholas's mom-Just wanted to say I'm thinking of you. It was so nice to hear Chris's point of view the other day. You guys sound like such a great family.
Hey guess what, I already feel better now. Thanks for listening to me ramble on and on! Oh and my good news for the day. I got a note home from Stevie's teacher yesterday and he is doing so well at school that he is moving up to the third grade in September. YEAH STEVIE!!!!. He is reading and writing and having no behavior issues at school at the moment. What a great kid!!!
Name: Jackie/Emily D's Mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Tuesday, May 23, 2000 at 06:50:35
Comments:I didn't do that.....post jumped right off my computer :(
Emily and I are going to eat a cheeseburger and I'll try again later.
bye
Jackie
Name: Jackie
Email:grannyjj
Web Site:http://
Date: Tuesday, May 23, 2000 at 06:47:35
Comments:
Name: Ro
Web Site:http://
Date: Tuesday, May 23, 2000 at 06:38:39
Comments: What is up with this board???????????????
Irritating this morning:)
Maybe it should go back to bed and get up again:)?
Name: Ro
Web Site:http://
Date: Tuesday, May 23, 2000 at 06:35:59
Comments:Sara,
I am glad to see you posted up:)
Like you, it was time to redirect and it has finally
came about:)
Thanks for your help.
Hope to see ya over here more often:)
If not I will I.M. YA:)
RO
Name: Ro
Web Site:http://
Date: Tuesday, May 23, 2000 at 06:34:42
Comments:Sara,
I am glad to see you posted up:)
Like you, it was time to redirect and it has finally
came about:)
Thanks for your help.
Hope to see ya over here more often:)
If not I will I.M. YA:)
RO
Name: Mary from UK
Email:m.tutty@btinternet.com
Web Site:http://www.spencersite.net
Date: Tuesday, May 23, 2000 at 05:19:12
Comments:LOL I lost half of my post the first time. So I am re-posting
Hi ALL,
Hi, Brenda H good to see you back. I hope you are feeling better.
I would like to give you a little tip, on how not to time-out or lose your posts. Due to my bad spelling, I always type my post in e.mail first, so that I can run the spellchecker over it. Then I right click and copy it, then I just right click and paste it on to "the post your message box" you can also put the P in your e.mail to separate the lines
I would just like to put my two pennies worth in about whether our children look DS or not.
Many years ago before Spencer was born, the only DS people I ever saw were in institutions, they all had the same hair colour, their hair was all cut the same (like a monks) and they all wore the same eye glasses, and the same dull grey clothing (boys and girls alike). I can remember them clearly to this day, because at the time I thought to myself "I hope I don't have a child like that"
This is the reason I screamed so loud, when the doctor told me that Spencer was one of them. (the M-word was always used freely in those days) But Spencer just did not look like a DS, he was a beautiful baby with pure white blonde hair and big blue eyes, and the more that some people, including my own mother and other family members, told me that maybe Spencer had only a mild case of DS or that the doctors may have made a mistake or maybe Spencer was just a borderline DS, the more I sunk into my world of denial, one woman even told me Spencer may grow out of being a DS. All this makes Bill and I look back and laugh now, because we have heard it all
By the time Spencer reached the age of 4 to 5 years, he stood out sore thumb, not so much because he was DS but by the way he would play me up, like jumping into our local supermarkets food Freezer to doing the floppy act on the floor, I used to get so stressed up, that I felt I had to explain to people, I am sorry but he is DS. They in turn would reply "well he does not look like a DS" Still stressed up I would reply "Well please tell me what a DS is supposed to look like???" I never did get a reply to my question LOL
But as our DS children get older, the features do get more prominent, and there is no doubt what so ever that Spencer has DS LOL. When we are at a counter in a shop or where ever we take him. when Spencer try's to express him self and tell the shop assistant what he wants, ALL heads in the shop turn our way to stare, when they find the source of the loud voice, they look away again, as if to say. "nudge nudge, wink wink, say no more, its only a DS". so I am glad that Spencer does look like a DS.
The only tip I can give you when you are told that your child does not look DS, ask that person, "What is a DS supposed to look like????"
But I really think that most people who say this,is because they want to be polite or they just do not know what to say.
Tally ho for now, I have got to cook Spencer chicken curry for his tea.
Love to every one. Mary from UK
For All the children having operations coming up, we will keep you in our prayers
Love to you ALL
Name: Judi
Email:judig2@yahoo.com
Web Site:http://www.boston.com/globe/nation/packages/naia/
Date: Tuesday, May 23, 2000 at 05:16:07
Comments:Radonna/Allisa: Here's the link to that Boston Globe Series. It's Called "Choosing Naia". It's a 6 part series (w/pictures) about a family who finds out that their unborn baby girl has DS as well as heart problems (I think, it's been a while since I read the article). It is a truly amazing story! After I read the story I sent a letter to the editor thanking them for running the story. I also told them as a follow-up they needed to do stories on young adults and their accomplishments, and sure enuf, a few weeks later, the story about Ashley Wolfe ran, called "An Everyday Courage". It told all about her attending college in Cambridge. I had it bookmarked, but it's moved. I'll try to find it again and post it later.
Allisa: Thanks for the kind words about my boys! I'm very proud of them (as if you all can't tell!).
Shawna: I'll let you in on a little secret, but you got to promise not to tell anybody. Ready? Shhhh... I'm really NOT sane!! That's how I cope!! LOL - Just kidding!
It's gonna be a scorcher here in Big - D. Jackie, hope your A/C works well, looks like you're in for it too! Expecting a high of 99 today (and it's only May!, Imagine what the summer is going to bring us???
Catch y'all later-
Judi
Name: Ro
Web Site:http://
Date: Tuesday, May 23, 2000 at 05:11:03
Comments:Okay Shawna,
You asked for it :) Thanks for reminding me:)
Alright here goes:)
The other day, I think it was Friday, day after Teddy
arrived the boys were all outside playing and found this FROG:)
Nasty critter that it was they decided against mommy's
wishes to keep it:) They never listen to mommy:)
Nothing I could say would make them part with their new
found PET:(
I tried it all:)
The frog will have babies (Over my dead body ) and
you'll have plenty of baby frogs to play with:(
What a thought:(
You'll get warts:)LOL
The frog will die with no water(this one would have
survived the dessert mind ya)
But alas .......they keep it in a container and luckily
it survived til Saturday:)
Saturday dawns and we have "FROG CHOKERS ON WAY":)
(Rain loaded thunderstorms for those who dont know:)
Well about the time it started to rain we were coming
up from being out on the town, WALMART:)LOL and it started
to FLOOD, not sprinkle but really commence to drenching
everything and everyone in sight:)
About this time, Danny, BIG MOUTH, himself remembered
the FROG CHOKER saying and pops up that it will start
raining frogs shortly:)
Teddy helps this come true by going and throwing the
frog in the air( feel sorry for that nasty thing about this
time) and says here they come:)
The frog was unhurt judging by my eye and then we all
couldn't contain ourselves no more we all busted a gasket
laughing so hard :)
After we had a good laugh Daniel the 8 year old turns
around and spouts off that since we all got wet (in the
rain storm) we had all had our Saturday evening baths and
they didn't have to take one that night:)
My mother is fond of it is Saturday give them a bath
saying and Daniel remembers it:)LOL
She also has this great gift to make us feel guilty :)
Mothers;) Maybe I'll grow up one day and I too will be
a mother.LOL They usually reverse that role on me very well:)
"But mom the kids down the road got a NEW trampoline just
yesterday and we haven't gotten ours yet:)"LOL
Needless to say I had to buy one that weekend just to keep them home:)
Ro
Name: Mary from UK
Email:m.tutty@btinternet.com
Web Site:http://www.spencersite.net
Date: Tuesday, May 23, 2000 at 05:10:16
Comments:Hi ALL,
Hi, Brenda H good to see you back. I hope you are feeling better.
I would like to give you a little tip, on how not to time-out or lose your posts. Due to my bad spelling, I always type my post in e.mail first, so that I can run the spellchecker over it. Then I right click and copy it, then I just right click and paste it on to "the post your message box" you can also put the P in your e.mail to separate the lines
I would just like to put my two pennies worth in about whether our children look DS or not.
Many years ago before Spencer was born, the only DS people I ever saw were in institutions, they all had the same hair colour, their hair was all cut the same (like a monks) and they all wore the same eye glasses, and the same dull grey clothing (boys and girls alike). I can remember them clearly to this day, because at the time I thought to myself "I hope I don't have a child like that"
This is the reason I screamed so loud, when the doctor told me that Spencer was one of them. (the M-word was always used freely in those days) But Spencer just did not look like a DS, he was a beautiful baby with pure white blonde hair and big blue eyes, and the more that some people, including my own mother and other family members, told me that maybe Spencer had only a mild case of DS or that the doctors may have made a mistake or maybe Spencer was just a borderline DS, the more I sunk into my world of denial, one woman even told me Spencer may grow out of being a DS. All this makes Bill and I look back and laugh now, because we have heard it all
By the time Spencer reached the age of 4 to 5 years, he stood out sore thumb, not so much because he was DS but by the way he would play me up, like jumping into our local supermarkets food Freezer to doing the floppy act on the floor, I used to get so stressed up, that I felt I had to explain to people, I am sorry but he is DS. They in turn would reply "well he does not look like a DS" Still stressed up I would reply "Well please tell me what a DS is supposed to look like???" I never did get a reply to my question LOL
But as our DS children get older, the features do get more prominent, and there is no doubt what so ever that Spencer has DS LOL. When we are at a counter in a shop or where ever we take him. when Spencer try's to express him self and tell the shop assistant what he wants, ALL heads in the shop turn our way to stare, when they find the source of the loud voice, they look away again, as if to say. "nudge
Name: patty moore
Email:pattymm1@home.com
Web Site:http://
Date: Tuesday, May 23, 2000 at 04:24:17
Comments:Mary...go for the girl! Boys are wonderful, but I think every mother needs a girl, or adopt one that you can call your own. I adopted my nieces for years. They just loved it:)
Allisa, I love your husband's response. I'm going to use that one.
Susan, I agree with you that the people are ignorant and that they think that they are paying you a compliment. It just really bugs me when the people say it over and over again. I'm talking, every time I see them.
Radonna, I hate that my child is called down syndrome too. She is so much more than a "Downs Baby". Yuck!
Kaila's nick name is skitter-bug. I made up a song for her when she was tiny, it goes...
Kaila she's so sweet, she's so, she's so, she's so sweet,
she's my girl.
Then I put other things in where sweet is. It was really meaningful to make up this song for her. It just came to me one day. It made me feel like she was my own, and not the state's child.
Name: Ro
Web Site:http://
Date: Tuesday, May 23, 2000 at 03:59:11
Comments:Hey couple of questions:)
First
Who has Alices e-mail?
I can't find it and I for one think she has forgotten
us so well have to go remind her don't you think?:)
We'll flood her e-mail box so she will remember us:)
Okay the more serious questions:)LOL
Upon asking Teddy this I got a funny response:)
Why does a Giraffee have a long neck:)
Teddy: Well it is like this he got his head stuck in
the fence and tried to pull out when he couldn't get loose
His neck got long and SKINNY:)
Zebra and stripes:)
Teddy: Somebody took a pen and colored them on him.
Why does a lion have all that hair.:)LOL
Teddy: He forgot to get a haircut:)
Any other more funnies out there?:)
RO
Name: Ro
Web Site:http://
Date: Tuesday, May 23, 2000 at 03:40:46
Comments:Maybe I should have made them blink you think?>:)
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Tuesday, May 23, 2000 at 03:39:38
Comments: Give me an "A"
A
Give me an "L"
L
Give me an "I"
I
Give me a "C"
C
Give me an "E"
E
What's that spell?????:)
Alice you really don't want to get me started girl,
Let us know what is going on:)
Ro
CROSS YOUR FINGERS:)
Name: Brenda H
Email:grhouse@cwv.net
Web Site:http://
Date: Tuesday, May 23, 2000 at 02:37:01
Comments:Morning everyone so glad,your all still here,When last I was here! It didn't sound to good ,So I just shut down the old computer and haven't been back,Have to say I had all my fingers and toes crossed when I turned it on this morning That you'de all still be here and freinds again,And TA DA here you are. I'm doing prity good, but have to say from the heart attack right on down the line this has to be the worst time in my life ,Kinda afraid to say it can't get worse because every time I do it does.So I'm asking for prayer for my family. Now aren't you all glad to here from me again,HA HA Lisa I hope things are better,And I'll be keeping you in my prayers.
Denise how are you,I'll be e-mailing you soon and am praying for you daily. Tina and girls ,Love Ya and miss ya. BIG HUGS!!
Here I am Becky thanks to you and everyone else thats ask.
Sherri thinking of you and Jared, Happy Belated Aniversery, Will be praying for you both on the 25th.
Allisa hope everything goes great with Erin,Will be praying and hope she's still putting on those pounds.Radonna it's cloudy and cold here in Wild Wonderful,Did you ever figure out where the greenhouse is.
Jackie if you ever write a book I'll buy it ,Keep those updates on Emily coming,There great!!
TO everyone I missed and I know theres lots of you Big MUSHY KISSES FOR YA ALL!!!!Brenda
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Tuesday, May 23, 2000 at 01:20:14
Comments:Good morning Friends!!!!
I haven't been posting as much because our computer is really acting weird. The screen freezes 6-8 times per day and I never know when it will happen. And just typing takes much longer than normal and reading the posts is slow too! Can't wait for the new computer!!!
We also have recieved some of the same type of comments about Emily not looking like she has Down syndrome. I generally just let it slide because I asssume that they are just trying to be polite and they really don't know WHAT to say. I don't want to embarass anyone by explaining that....of course she looks like she has Ds, and that is beautiful!!!! I had someone say to me (when Emily was just a few weeks old) "maybe she won't have a bad case of it". LOL Like it was the chicken pox!!! I just tend to see the humor in it.
We are going out of town tonight, so I'll be away from the computer until Thursday. Maybe the poor computer will get some rest and be back to normal then!!! I'll miss you guys! Oh yes, speaking of guys......I've been meaning to say something to Chris (Heather's hubby): I appreciated your views. Thanks for posting!!! My husband also feels like he knows everyone at Uno Mas because he has heard about each one of you. This really does feel like an extended family to me. Thank you to everyone who "listens" as I ramble. Have a great week!!!!!!!!!!!
Susan
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 22, 2000 at 18:33:43
Comments: I was curious about all the kids nicknames. I know Kelly's is Kelly Belly. Kaden's is Keeter Bug and Ketchup(from his LOVE of ketchup)Also does anyone make up songs for their kids?? Kaden has loved the song Boot Scootin' Boogy since he was really little. Lately every time he hears the song I try by Macy Gray he starts bobbing his head.
Radonna
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 22, 2000 at 22:39:26
Comments:I know it's me again! I just read stuff and have to respond!
Kaden very obviously has Ds. Yet still I have people tell me. Well he don't look like he has DS, or because of his size people think that he is pretty advanced. The comments on his looks really bug me, because I know if he had Cerebral Palsy or anything else that his looks wouldn't be an issue. I have never heard well he don't look like a "cerebral palsy". Don't ya'll hate it when your kids are called a Down syndrome!!
Well anyway, sometimes I'll admit I do get caught up in the "high Functioning" thing. I have been tempted to just say He is 2. To stop all the comments that come after I say He's 6. But I feel like that it would be really wrong to do that to Kaden, because I am not in any way ashamed of him!!
I am his mother and I KNOW how much that he IS capable of, but unless you live with him and know him it is easy to miss it. He has this I am ignoring you attitude with people he don't know!
His last ear doctor asked me if he seemed like he could here me. I started out with I don't know because... Then he finished my sentence with I understand with his retardation that you can't tell.... I stopped him REAL fast and I said "Hold it right there.. I don't know if he can hear me right now or not, because he just started antibiotics and most of the time within a day or two his hearing comes back, I just haven't tested to see yet. That made me mad that he thought because Kaden is MR that I couldn't tell if he was deaf or not!!!
My test to see if Kaden is hearing right is to go into the kitchen and just say EAT.. If he comes running then the antibiotics have worked and if he don't his ears are still infected.
Well I don't even know what all I just said, I have been in a pretty touchy mood today. I hope I didn't offend anyone.
Radonna
Name: allisa / erin's mom
Email:allisa0@aol.com
Web Site:http://
Date: Monday, May 22, 2000 at 21:58:04
Comments:Hi EveryoneShawna, I don't know if I am worthy of the crown, but I will try it on for size and see what happens.
Heather, my kids favorite dinner is "Breakfast-Supper". My son laments at having to eat chicken and rice and a vegetable againnnnnnnn. Why does he have to eat something from all the food groups that he just learned in school ??!!??
Patty, I have gotten a lot of those comments as well, and you are right, they are trying to be nice and say the right thing. People have actually said it in a quite surprised tone of voice, which really bothers me. They will say "she is so cute, you can't even tell she is Down Syndrome" Does that mean most DS children are NOT cute?? Or they will say "she looks so normal maybe she is on the high end" ????!!!! That one is the one that really irks me !! I had posted this issue when I first came here because I was not sure how to respond and my hubby actually gave me the best answer. "We will love her no matter what"
Lorena, no we have not met her surgeon yet, but her cardioligist picked him for us and assured us he is the best (how is that they ALL seem to be the BEST??). We will meet him the day before the surgery and they will give us a tour of the ICU and OR. We were in the ICU there when she was first born so hopefully it won't be a huge shock to us.
Radonna, I got that 90 % stat from a Boston Globe article. It was actually a six part series about a couple who find out during pregnancy that their baby has DS. I read the article on-line, I am not sure where it is..... I will have my husband get the link and post it up. It is a long series, but very intersting.
Well I gotta go wake my little peanut up for her last night bottle. I hate waking up a sleeping baby to give her a bottle, but until that surgery is past us, I am squeezing every last calorie into her.... she is now a whopping 7 1/2 pounds !!
Have a good night all !!
Allisa
PS Why am I only Princess Allisa, and you guys got to be Queens?? LOL
Name: Ro
Web Site:http://
Date: Monday, May 22, 2000 at 21:46:31
Comments:Fairy God Mother,:)
NOT BARNEY PLEASE:)
I can not handle it all over again:)LOL
Delano loved that PURPLE thing til the age of 6 and I
think we still have touches of BARNEY here and there.:)
Love ro
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 22, 2000 at 21:01:07
Comments:WHERE IS ALICE????? ANYONE KNOW????
Name: Mary L
Email:marylyons2@excite.com
Web Site:http://
Date: Monday, May 22, 2000 at 21:00:15
Comments:
Hi everyone! I just had a chance to scan through some of the posts and thought I'd write a quick note.
Whomever is keeping track - Patrick is my fourth boy. I don't remember who said they had 3 boys and weren't going for a fourth because they know they would have another boy - I sure know what you mean. I wish I had your sense. I still feel I have that girl in me and really want to try one more time - am I crazy or what?!?!?
Jackie - I just wanted to say that I love reading your posts about Emily. My husband is especially worried about what the future has in store for Patrick and I am always telling him stories about Emily. You really give us great hope for the future. Thank you for sharing all of that!
I had something else to say but don't remember what it was so I will quite now. Have a great evening everyone!
Mary L.
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 22, 2000 at 20:59:55
Comments:Susan It has been 22 hours since your last post!!
Just thought I would remind you!!!
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 22, 2000 at 20:50:13
Comments:I want to be a cow flinger and an elf bowler too:(
Lorena: That is Charleston WV, but I know exactly where Harpers Ferry is way at the top. My Dad is from Maryland. Do you know any Blakes?Sherri: Sending you a big hug!!!
Susan: Where you at girl????
Shawna:Kaden has an Uncle David too. And my brother lived with me for a while. Actually at one time I had a houseful of homeless people sleep in my living room. For about 6 months until I lost my mind from lack of privacy. Becky i am with you I LIKE my privacy!!
Well Kaden is bouncing off the walls. He got Johns Ice cream out of the freezer. GET THIS NOW it is called Mocha Menence and it is Iced Cappicino (pure caffine) Kaden ate the whole 1/4 gallon while I was busy with the baby. Oh if I ever prayed for peace it is now. Ever saw a 1/2 sick child so hyper they can't think straight! Kaden don't know what he wants to do. He keeps running around in circles.
Wonder what will happen if he makes himself Drunk on top of everything!!!
Well gotta go.
Shawna: Don't change a thing about your posts!!
Radonna
Name: Jackie/Emily D's mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Monday, May 22, 2000 at 20:20:19
Comments:Hubby just called and is sending most of his hospital census home so dinner will just have to wait out those discharge plans. Bummer :(
Emily just made salad for 900 for dinner LOL. She's getting faster and turning into a mean little chopper. I'll be glad to be able to report to you eventually that she's learned to cook something beside salad (now we don't really cook salad, do we?) We are buying a LOT of lettuce these days. She is really ready to go back to ENMU in 2 weeks. Seems so much more grown up this trip but is really bored at home. This is quite a switch from the hibernating teen with the earphones permanently attatched to her head that for several years had to be extracted from her room. I guess it is because there she lives in the middle of people and excitement and has learned to like it. She is excited about going to DC during her next break for the NDSC conference in early August. She is going to exercise (yeah sure) so the "guys will notice me." ???!!!!!
I really have thought about writing a book about DS for individuals with DS but have absolutely no idea how one writes a book. Would that give me an excuse for spending so much time here with Mr. Plasticman???!!!
Food for thought (no, not salad)....I recently gave another mom some advice about thinking what will happen in the future and how to deal with those thoughts. I told her that one of the best things that happened to me was becoming friends (really accidentally) with several adults with mental retardation when Emily was about 3. I was on the board of our local ARC and my job was to go to the group apartments and pick up our "citizen (disabled person) board member". Sondra was a 40 yr old woman with DS and she was delightful. I was so afraid when I went to get her because I didn't remember ever even talking to an adult with MR. I don't know what I was afraid of....just remember being so apprehensive that I almost didn't go at all. Well, that was the beginning of a neat friendship that ended a few years ago when she passed away. I didn't get to spend a lot of time with her because she had a large group of friends and was busy at whatever her job was (can't remember). We did take her and another couple to The Big Texan Steak Ranch to celebrate her 50th Birthday and when Emily was 3 she flew to Austin with me to lobby at the capitol for community funding. A violent storm cancelled our flite home that nite and we had to go to a motel with nothing we needed to stay over. I bought Emily and myself t-shirts in the gift shop to sleep in and Sondra pulled out of her purse.....a nitie, toothbrush and toothpaste, and deodorant. She said she always did that when she went out of town just in case!!!!!!!!!! I think just getting to know someone several years older and seeing that they do indeed have a Life will make the future seem less ominous. For me, too, I tried to take each day and each milestone at a time. I really found it hard to get excited about IEP's and sexuality when Emily hadn't even started to walk. I think it's only normal to "fear" what we don't "know"....but maybe a little of this will help when thinking about the future.
One of my other slightly older friends is a girl here with DS named Debbie. She has mosaic DS and is quite gifted in her literary talents. She reads alot and writes beautiful poetry. She is published pretty often in the NDSC newsletter....Shawna, you might like to correspond with her. I also sent you the Cow (my mistake, not flipping) but Flinging site. Hope you got it. It's great for mindless chores....like phone calls from in-laws (just kidding mine are great :) ).
Meant to keep this short....sorry
Jackie
Name: Shawna
Email:lawmanw@telusplanet.net
Web Site:http://
Date: Monday, May 22, 2000 at 19:30:27
Comments:
Hi all!!
That was so much fun, I had to do it again!!LOL
Well, I'm nearly on my own again. Lawrence left to go back to work today, my brother is supposed to leave tomorrow...then it's just Steve! (I hope it's pretty soon for him too - we can use the money!) LOL
Susan, I hope that you get your new computer soon! I'm glad that your visit with Kathey went well. The T-ball sounds like lots of fun. I hope Jordan makes it to the all-stars. I can just picture Emily standing there waiting for the ball to come to her! Yes, I think I can be magnaminous and let you stay a princess! LOL
One thing, can you send me the elf bowling e-mail? LOL
Jackie, Can you please send me the cow flipping e-mail? I need a laugh! You were mentioning doing a book about the individual with DS, they did one like that for Michael in kindergarten, and sent a copy home with all the kids! It said that he learns slower, but still loves what they do (playing, the computer, friends...) Really cool idea! Go ahead and write your book! You can do it! Also, I found your one entry was very encouraging for the lurkers out there. I forget sometimes that there are some people out there who read, but don't post.
To all the lurkers out there:
HI!!
I want to encourage you to post, even just to tell us your name and your child's name. If you post an e-mail address, you will get responses. I might, but I don't promise anything. I have lots of good intentions, but not always the time or organization to follow through! I will post to you, though! Now you're probably wondering who this crazy woman is, well, my name is Shawna Wright. I live in Bluffton, Alberta, Canada. With me in my six-bedroom house live: Lawrence, my husband of nearly 14 years, my stepson Robbie, 15, Janine, 13, Jennifer,10, Michael, 8 (ds), my husband's business partner Steven, my brother Sheldon, and the cat Sylvester! Steven and Sheldon are only home about one week/month (and now Lawrence too), so it's not as crowded as it sounds! My husband owns his own trucking company, and he and Steven are out driving and I run the office! And, I am a stay-at-home mom, which I like a whole lot. Besides, my kids NEED me at home! Anyhow, now I've overloaded you with all manner of superfluous information, and you know more than you ever wanted to! So, post up and share your superfluous information with us! LOL Then maybe Radonna won't get so bored some days! LOL
Dru Barbee, sorry to lose your response in a lot of other stuff. I post about all my life, because to me DS is just part of that! If you want to jump through my posts, I can't blame you, there is a lot there some days. Before I forget, THANK YOU for posting the information on the bulletin board about the Care Trak system. My son Michael seems to be an escape-a-holic! As I was writing this, I thought I'd better check on Michael and he was outside in the yard!! We literally have to lock all the doors to slow him down enough so someone can stop him. Thanks for posting!
Marie,
Happy 1st Anniversary!
Are you doing anything special for the "big day"? Have a great day, whatever you do, and kiss George once for me!
Steff, hey did your test work? How's things going out your way anyhow?
Mary T!I'M SO GLAD THAT YOU'RE BACK!
How are the plans for Florida coming? I'm still waiting for that big check so I can fly down to meet you! LOL
Patty, Just to confuse the issue: Michael is MY third, LAWRENCE'S fourth, and ROBBIE'S fourth sibling! LOL We do think of him as the fourth child! How is it going at your place? Is Will driving you crazy yet? LOL
Radonna, What poem did you post? DID I MISS ONE? I read sooooo much yesterday! Wait, I remember! It was that poem about plastic surgery!
Denise, go get your coffee, dear..... LOL
I think that after your last post, you've definitely earned the title of Princess Denise! Besides, I'm the Queen and I get to do what I like! LOL
Do you have Printmaster or Printshop? I have "beautified" copies of my poetry on Printmaster Platinum, and ordinary copies on Word. So let me know if you have a program to read them. I can't find what format these are saved in! If you want, I can send you my song lyrics too!
Yup, I missed you! How's the headaches doing? I sure hope that they are getting better. I liked that bit about being "stressed but not distressed". Some days I can say that!
If Susan won't tell you how to do big, I will - assuming I am doing it right myself! LOL
About riding a bike: first he was on a tricycle. I remember showing him a few times how the peddling worked, then he graduated to one of those tiny two-wheelers with training wheels, now up to larger bike, still with training wheels. I'm thinking of taking off the training wheels, maybe it'll slow him down! LOL
HAPPY BIRTHDAY in advance. If I don't say it now, it might not get said!
Lorena, is Keith your hubby? (Then she reads the rest of the post!) I guess if he's not, you were having kids before you were born! LOL The baseball sounds like fun. You are on my list for "big" directions, if I can get it right! LOL
Radonna, about explaining DS to other kids...I just say that it takes him longer to learn to do things, but he will learn to do them. If they ask why, I just tell them that his body was built a little differently than ours. I really haven't gotten into any sort of conversation with Michael about it, but my other kids all know. They knew almost from the time he was born. I also told the other kids that it's kinda like he's a baby or little boy longer!
Lisa, you are on my "big" list too. Man, I sure hope that you've finally gotten some relief for those headaches! That sounds terrible!
Susan, I liked the way you explained Down Syndrome!
Allison, you're sooo close, I gotta give it to you, Princess Alissa!! Here's your crown. (I sure hope I didn't do this already for you - so embarrassing! LOL
I'll be praying for Erin's surgery to go well.
Sherri, is your hubby home now, or is he off to work again? Mine was home for 3 days, now gone for another few weeks, supposed to be home for a week or so then! I pray that the eye surgery will go smoothly for Jared.
Judi, Hi! I will check out your boys' story. I am still in awe that you seem somewhat sane!
Becky, first of all I apologize profusely that my post got you thrown offline! I always go offline to read and write my post! I'm glad you found those grape tomatoes. My hubby and kids say
that they're great! I personally like my tomatoes in Heinz catsup or Campbells soup! Michael was the other kid born on Uncle David's birthday! Way to go, Kelly! Can I come play with you? About the extra bodies, I'm used to it now, and besides Steve and Sheldon are only home about one week/month. Now about "froggy legs"....Once again, I actually KNOW something about this. Michael's PT (or OT - I forget which is which) told us that he needed to get used to keeping his legs together and suggested putting both legs in one leg of a pair on nylons or leotard, something to just hold his legs together. I usually just used one legwarmer. Turn your "frog" into a "mermaid" - they'll thank you in the end! I should add that Michael walks and runs (very fast!) and looks very normal to me in his stride! it was explained to me to get him used to keeping his legs together, or he could get into the habit of walking in the "infant waddle", and always walk that way! Hope that helps.
Now, about IEP goals: Does she track to sound, movement, color? Is she rolling over yet? If she picks stuff up, is it with her fist or with her thumb and first finger? For sitting, go to one minute, five minutes...I have a question, Is kelly eating food yet or still just the bottle (or are you nursing her). Michael survived on nursing alone until he was six months old.
Wow, I'm at the end!!
****************************************************
BABY BOOMERS THEN AND NOW
Then: Long hair
Now : Longing for hair
Then: A keg
Now : An EKG
Then: Acid rock
Now : Acid reflux
Then: Moving to California because it's cool.
Now : Moving to California because it's hot.
Then: Watching John Glenn's historic flight with your parents
Now : Watching John Glenn's historic flight with your kids
Then: Trying to look like Marlon Brando or Elizabeth Taylor
Now : Trying not to look like Marlon Brando or Elizabeth
Taylor
Then: The President's struggle with Fidel
Now : The President's struggle with fidelity
Then: Killer weed
Now : Weed killer
Then: The Grateful Dead
Now : Dr. Kevorkian
Then: Getting out to a new, hip joint
Now : Getting a new hip joint
*************************************
Well, my oldest son has once again decided to leave the premises without a word to me, or cleaning his room! I sure hope that he enjoys his summer with his dad, because he's gettting closer and closer to it! It also looks like he gets to be "grounded to mom" for a few more days. Ah, togetherness! I do look forward to doing things with my son! We could...scrub walls, do laundry, clean carpets, wash windows.... My house may never look so good again! LOL
To all of you who don't need to keep their teenager at their side to know where they are...ENJOY IT! LOL
Ciao for now.
Shawna
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 22, 2000 at 18:07:20
Comments:I wrote a long letter about how blessed we all are, to post here. I know that there are many different beliefs and opinions here so I reset it insted ot posting it. I did want to make one point that was the basics of the post I erased. I came across a Web-Page of Mothers whose babies were born still. I read the stories with tears running down my face. How loved and wanted those babies were. How blessed we are to tuck our little ones in each night and to wake up in whatever way your kids wake you up (mine prefer banging cups and bowls on my head).
In chat Allisa told us that 90% of women who find out they are pregnant with a baby with Ds choose to abort. Does anyone know how accurate those statistics are? That makes me so sad!
Well I am going to go and hug my kids and thank God that I am able to do so.
Love you all
Radonna
Name: Heather: Nicholas' mom
Email:flanagan@mail.burgoyne.com
Name:
Date: Monday, May 22, 2000 at 17:40:36
Comments:
Becky - TOO WEIRD. Last week we both had breakfast for dinner, and tonight we're both having leftovers!! Well, maybe it's not that weird (just to me!)
Name: Becky/KELLY"S MOMMY
Web Site:http://
Date: Monday, May 22, 2000 at 17:05:35
Comments:
Too funny about my 'imposter' on chat!!! Lorena/Radonna - is there 2 places ... Charlestown & Charleston ??? My mom lives in Charleston. How funny!
Guess everything is just funny today!!!! Kelly had DT, PT AND OT. You all heard about the PT. Well, during the OT's visit, Kelly just kept on laughing and laughing!!! It was SO funny. I gave her my collander, and the OT brought little 1" blocks, and Kelly sat in her plastic rubbermaid box (in which she fits perfectly and which gives us 'free hands' to play) and picked them up and dropped them over and over again laughing. No problem with that little chickies' fine motor skills! She picks up any tiny, little anything that is on the carpet, too.
Ro, thanks for the info [ ;-) ] !!! I'll try it when I know you're online to rescue me - LOL!!!
Well, hubby is on the road home now, so I guess I'd better get dinner going! LEFTOVERS - YEAHHH! Have a great evening to all!!! Becky
Name: Ro
Web Site:http://
Date: Monday, May 22, 2000 at 16:36:49
Comments:That works fine:)
Name: Lorena: Clark's Mom
Email:L719zecher@aol.com
Web Site:http://
Date: Monday, May 22, 2000 at 16:24:38
Comments:Hi again, I think I am addicted to UNOMAS !!! Just had to check in and see what was going on...Not that I have much time. I need to start supper soon.
Radonna: Is your hometown Charlestown or Charleston ??? I am close to Charlestown...Charlestown Races...close to Harper's Ferry.
Lisa: Hope that the Dr. finds out what is going on...still praying that you feel better !!!
WEll, I better go. I will check back in later.
HUGS!!,
Lorena
Name: Heather: Nicholas' mom
Email:flanagan@mail.burgoyne.com
Name:
Date: Monday, May 22, 2000 at 16:20:33
Comments:
Jackie - I only know of three surgeries: Nicholas' tonsil/adenoidectomy on May 31. Jared (Sherri's son) having eye surgery May 25. Erin (Allisa's daughter) having heart surgery June 2. I think these dates are right. If not, please someone correct me!
Name: Jackie/EmilyD's Mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Monday, May 22, 2000 at 15:59:21
Comments:
Guess what...Emily Sarah is #4!!!!!!!
Whoever has been keeping the best notes, please post everyone who is having surgery....for what and when? I have totally lost tract and know there are several coming up soon. My brain is definitely "grannyjj" when it comes to memory. I've tried keeping notes, but I drop the pen into the keyboard, spill my tea, and dump the notebook onto the keys accidentally entering or deleting my whole post. It's a good thing you can't hear me chewing out little Mr. Plasticman here.
Jackie
Name: patty moore
Email:pattymm1@home.com
Web Site:http://
Date: Monday, May 22, 2000 at 15:41:35
Comments:Does anyone know of a nice way to put people in their place regarding comments about my child not looking too ds. I think that these people are trying pay Kaila a big compliment.I tell them that there is no such thing as having a little ds. I say,"Either you have it or you don't". Usually,I don't go any further. I used to think that I needed to educate these people, but I don't now.
Where is this ROA site?
Name: steff
Email:jefftixx@aol.com
Web Site:http://
Date: Monday, May 22, 2000 at 14:50:00
Comments:Hi. I tried to post a couple of times on SIL's computer but keep losing it.Talk to everyone on Wed.Bye!!!!
Name: Heather/Nicholas' mom
Email:flanagan@mail.burgoyne.com
Name:
Date: Monday, May 22, 2000 at 14:41:07
Comments:
I am now AKA: Heather/Nicholas' mom instead of HeatherF. Hope this doesn't confuse anyone! For me, this way is easier to remember which mom goes with which child!!Michelle Mc - I'm looking forward to the new format!!
Radonna - Chris and I love to go camping, we don't go as much as we'd like to, plus it's hard with my two BUSY kids!
Name: Shawna
Email:lawmanw@telusplanet.net
Web Site:http://
Date: Monday, May 22, 2000 at 14:35:31
Comments: HI, EVERYBODY!
Just checking....
Be right back! LOL
Shawna
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 22, 2000 at 14:10:37
Comments:Lorena: It sure is a small world. I was born in Charleston and I grew up in Beckley. How did I end up in Tenn?? Well i will e-mail you with those details!!!! My family is spread all over WVa I have been to Wheeling several times.Becky: Last night in the chat room "Becky" entered. I typed in HIIII BUCKAROO BECK!!! real fast and Denise typed in How's Kelly? Well it wasn't you!!! It was Becky Sarah's Mom! What is all this about not being a Natural beauty??? To create kids as cute as yours, you'd have to be pretty special!!
Susan I am e-mailing you as soon as I get off of here. I have been soo busy getting the finishing touches on my house so that we can get it appraised. Maybe even sell it. (Then move up near Shawna open a White Castle, Krystal, and sell Funyuns and make a million. LOL)
Michelle Mc: Both my kids were covered head to toe with a rash this morning. I had mentioned Roseola to their Doctor and she said it wasn't that last week, Her office was closed today or I would have marched my little spotted kids up there and ask IF THIS IS ROSEOLA?? If only Jonathan had broke out I would have thought allergy's but Kaden is just as spotted and rosey and his brother.
Well Today was the last day of school for my little Keeter Bug. He didn't go, so my last chance for a break has passed!!
Sherri:I will be thinking about Jared Thursday.
Well I have to get some more work done so I will catch up with everyone later.
Radonna
Name: Lisa Huppe
Email:lisahuppe@webtv.net
Web Site:http://
Date: Monday, May 22, 2000 at 13:57:02
Comments:Hi All...Cat Scan results came back normal....but I still have the headache and am seeing the lghts...but it has subsided to a dull ache instead of the horrible pain that it had been. Going back to the DR. this afternoon. Don't know what's next
As far as taking care of Alex...I have to confess that she has been doing alot of independent play here lately, I give her a bottle of juice, a bottle of formula, some funyuns,cheetos, oreos....open the toy box, gate off the living room and lay on the couch. Between her being a late sleeper and a good nap taker and dad getting off work at 3:15, I haven't had too bad of a time. On the days that it has gotten bad enough to go get a shot, she has gone to Grandmas house.
Will update more later......
Lisa
P.S. Mary from the U.K......thank you so much for the lovely e-card
Name: Lorena: Clark's Mom
Email:L719zecher@aol.com
Web Site:http://
Date: Monday, May 22, 2000 at 13:45:43
Comments:ITS NOT HOW BIG IT IS,ITS HOW YOU USE IT!!!!!! LOL
I just had to add that.haha
Becky: Clark is a 3rd of 3 boys. My three sons !! I am not trying for a 4th...I'd get another boy, I just know it !!
Whoever was taking the poll of Birthdays( sorry I don't remember) Clark's is the 11th of June.
Thanks to everyone who checked out Clark's picture. We think he is handsome too and are glad that you agree !!!LOL.
Lisa: Are you feeling any better??
Radonna: How did you end up in Tenn??? I am real close to West Virginia. We live about a 20 miles from Charlestown.My grandmother was from Wheeling. What part are you from ??
HAPPY ANNIVERSARY TO MARIE !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Shawna: I am still looking for the Monkey Bread recipe for you...I am going to email my Sister and have her email it to me since she is the one that gave it to me.
Clark is Napping !!! I am so excited....that makes two days in a row. He is such a sleep fighter. I should be doing laundry or cleaning or something...but here I am !!!
Michelle Mc: did you get the email I sent you with Clark's picture??? I didn't know if you can put it with the pictures on UNO or not. Let me know, Okay??? My Mom sent it to me...she has a scanner...I don't. I love seeing all the pictures of everyones kids on here. They are all so beautiful !!!!
Allisa: Thanks for letting us know when the surgery is. I have been thinking about you and wondering when they had scheduled it. I will be praying for Erin and your family that all goes well. Did you meet your surgeon yet??
Denise: do you come to visit your brother in Frederick??
Sherri: I will be praying that Jared does well on the 25th. Any time they are put to sleep worries me so don't think that you are being silly about being nervous. Clark has to have eye surgery in the fall.....I am already nervous !! But have Faith all will go well.
Well, I guess I should go do something around this place while I have a chance. I will try to stop in tonight to see what is going on.
Love ya<
HUGS!!!!
Lorena
Name: allisa / erin's mom
Web Site:http://
Date: Monday, May 22, 2000 at 13:20:45
Comments:Sorry to post so much !Sherri, I wanted to say I did remember Jared's surgery was coming and I have been thinking of you guys and will be praying for you on Thursday !!
Name: allisa / erin's mom
Web Site:http://
Date: Monday, May 22, 2000 at 13:18:44
Comments:Judi,I did check out that website & looked up your boys, what little cuties !! And what an amazing story you went through after their births ! You are an inspiration with all the strength you must have had. Stressful is such an inadequate word for the time you must have had. Keep the stories coming and I encourage others to go check them out !
Allisa
Name: Becky...I forgot...
Web Site:http://
Date: Monday, May 22, 2000 at 12:39:32
Comments:
I forgot - "THE POLL" !!! I am very curious about this too...It seems that I meet an awful lot of people who's 4th child has Ds. Well, guess what??? KELLY IS THE 4th !!!
Name: Becky/Kelly's mommy
Email:buckaroobeck@postnet.com
Web Site:http://
Date: Monday, May 22, 2000 at 12:36:19
Comments:
Hi!!! I say size DOES matter - LOL - and I want to make big letters too!!! Ro sure does get noticed with those BIG words [ ;-) ] !!! Radonna (I think) - I screwed up and went over my points last night !!! The pork tenderloin was just too tempting and had to try it on a bun. Shame on me@@@ But I have discovered something wonderful...since on WW all vegies are 'point free', and I LOVE vegies and salads esp., I have found grape tomatoes. Smaller than a cherry tomato, and don't 'burst' as much when you bite them... anyways, I can actually eat these tiny tomatoes with NO SALT!!! This is a HUGE breakthrough for me, I'm a saltaholic!!! Why do some of us have to work so hard at being beautiful?!?!? I don't know about the rest of you, but I get sick of it, I'm not a 'natural beauty'! Ah, life goes on [ :-) ] - and LIFE IS GOOD!!!
Lorena, Clark IS a DOLL!!!! Sooooo precious! I need to get back in and check out even more pics, the other day I skimmed!
Shawna - it took so long to read your post that my puter threw me offline - LOL!!! You're such a 'detail person'! Even with notes you've got me beat by far!!! :-p
Kelly was also born on her Uncle David's birthday. See what happens when I don't take notes??? I can't remember who else's kiddo was to direct this to!!!
Mary...I knew you'd be back!!! When is Florida???
Lisa, I'm at a total loss - I can't find the post where you said you were having headaches?!?! I'm SO sorry to hear that, cause I deal with occasional migraines, the kind that make you spin and barf, so I really feel for ya girl!!! Hope you get some relief VERY soon!
Denise, How are YOU doing??????
Brenda H - are you out there??? Want to know how YOU are doing too !!!
I'M SO EXCITED!!! (this is where BIG size would do justice) KELLY SAT UP AND PLAYED WITH A TOY TODAY ALL BY HER LONESOME WHILE PT WAS HERE FOR ALMOST 10 SECONDS!!! I wish you could all see her in person - she's SOOOOOOO adorable. Just braggin, sorry, I couldn't help it. ;-)
Shawna, I can't stand it when the brother-in-law just comes for dinner, much less having other people live in my home!!! YOU'RE a good woman! I need too much privacy, and hubby brings him up to our bedroom to look thru his closet or get on the puter, and it DRIVES ME INSANE!!! I am very weird about that, I just don't want 'people' in my bedroom. To me, it's my only PRIVATE place on this earth! I know, get over it!!! That's what he says. Nice, huh??? It's like telling a germ-a-holic to go into a daycare and wipe noses and then go eat lunch without washing hands. (eeuuuhhh - that was terrible!!! Hope I didn;t offend anyone with that one! ;-) )
(And now, back to the topic we are all here for) So, anyone else going thru any interesting stuff with their kids??? Sounds pretty quiet out there! Kelly has been ordered her 'bike shorts'. What I was told was that they are almost like scuba gear material, they will 'stand up on their own'. The theory is that while it still gives movement, it also gives some resistance to help keep her legs together more. She is our little froggy, either she's holding them froggy like, or they are straight out. PT is thinking we need to get going and work on this issue already, and I think I have to agree from the little I know. Anyone out there deal with 'Froggy legs'??? Would love input!!!
ALso, we have Kelly's first IEP next month. They are starting to do it (her therapy center is) this young to get us familiar with the process, and to hopefully get us to know how things work. I was told to get goals for Kel together. WHAT GOALS??? Ok, so I want her to sit up, then crawl, then walk, then run. Oh yea, and I want her to talk. Any interesting input on this??? I do have ideas, but I'm just curious if anyone out there might think of something important that I don't, and honestly, I really don't know what we do in an IEP!
Well, that's all for now. Have a great day, OT is coming soon, so I've got to get Kel's food together for "feeding lessons" - LOL!!! ((((HUGS))))
~Beck
Name: Judi
Email:judig2@yahoo.com
Web Site:http://
Date: Monday, May 22, 2000 at 11:51:15
Comments:Alissa; Hi! You wanted to know about my boys?? Well, if you (and everybody else of course!) will check out www.specialchild.com, you can see that they are the "Featured Children" for this edition! (I'm not just a little proud, am I???) Click on the picture and there's a little info about them. Also at that website, if you'll click on "library of disorders" then click on "down syndrome" scroll down to the "Personal Stories", the boys' story is about the 4th one down.
Ro: Glad the Ted-ster made it to your house ok. I look forward to lots of "Teddy" stories this summer!
Radonna: Glad the kids are better!
AiLay: Glad Shuxin is recovering nicely
Jackie: Glad the Prom went so well! Can't wait for pictures (definitley wanna see what "Elivs" looks like! LOL!
I know I'm forgetting something, but that happens when you are rushed. Only got a few minutes to post today.
Catch Y'all later
Judi
Name: Jackie
Email:grannyjj@hotmail.com
Web Site:http://
Date: Monday, May 22, 2000 at 11:45:30
Comments:Signing off for the time being.....but just heard that it is going to be 120 degrees today in Death Valley!!!!!! anyone from there??? :)LOL
Jackie
Name: Sherri / Jared's mom
Email:jsjphil@pldi.net
Web Site:http://
Date: Monday, May 22, 2000 at 11:40:55
Comments:
Hello everyone, hope everything is well in your households!! Life has been sorta crazy in mine, hubby was gone in the semi truck all last week leaving me & Jared to hold the fort down. (Jared even helped me celebrate our wedding anniversary since daddy wasn't home!!)
Well, I am now down to counting the days (May 25th) till Jared has eye muscle surgery. With each passing day it seems that I am losing alittle more sleep. I know that all will probably go well, its just my personality to worry.
Michelle Mc: Hope that you & your family had a wonderful weekend!! I am excited about whatever changes you think are necessary for Uno Mas!! So count me in to be one of the regulars to continue to post here!!
Hope everyone has a wonderful week!!
Hugs!!
Sherri & Jared (33 months)
Name: allisa / erin's mom
Email:allisa0@aol.com
Web Site:http://
Date: Monday, May 22, 2000 at 09:58:21
Comments:Hello EveryoneFirst of all....for all those who want to post big... remember size isn't everything !!! OH, who am I kidding? I want to post big, too !!
Had fun chatting last night, it was jam packed in there: Kathy, Dianna, Amy,Denise, Dru,Radonna,Ro,Lori....did I forget anyone?? Sorry if I did !
Lorena, I checked out Clark, too. He is adorable as were the other 2 kids I saw, too.
Lisa, I hope you hear soon from the doctors. It sounds as though you are having a horrible experience. How can you mange to take care of the kids? I hope your husband can get time off to help a little because it is impossible to do anyhting other than lay quietly in a dark room when a REGULAR migraine strikes, never mind what you have !!
Patti, Erin was my 3rd baby so I think I throw your hypothesis off.
Becky I read that you do WW, I do Diet Workshop, I haven't been paying real close attention to it, but now summer is almost here so I am being very digilent with it. I just wish I could find the time to make it to the gym more. It is just tough with the kids and work and I don't really trust their on-site babysitting so I can go when my husband gets home about 8 PM or early in the AM before he leaves for work. I just have to get myself motivated to get up that early, and right now I am not !! haha
Mary, glad you did not leave us. But I have Spencer's website listed on my "Favorite Places" List, so I knew where to find you anyways !!
Yes, to whoever asked, Erin's surgery is on June 2. I am trying to not think too much about it. I think I am actually a bit in denial, but that is how I am coping with and keeping my sanity. I just know that we are fortunate to have one of the most wonderful Children's Hospitals around and am grateful for that and have full confidence in them.
Getting to the question of how to explain DS to older children: I have no real wisdom yet to add, but I had a funny story: My husband and I were unsure what to tell our 6 year old. He knew somehting was not right because Erin stayed in the hospital longer than normal and he did not get to visit her right away and everyone at Nana's house (where he & his brother were staying) was so sad and always on the phone. Steve ( my hubby) is very analytical and decided to just tell Connor all about DS and 47 Chromosomes.... just like it was normal everyday talk to a 6 year old. (and he also smugly told me Connor understood it all) My neigbor told me when Connor explained Erin to her he said "she is the same as us except she has an extra crystal in her body and because of that it will take her a little longer to learn how to walk and talk and things like that".
Sometimes he tells me that he wishes Erin was born healthy and he is happy that he is healthy and doesn't have to go to the docotors as much as she does. I told him that if Erin had been born healthy she would not be OUR Erin and that it is ok for her to have DS and seeing all the doctors will be a good thing because they will help her to be the best Erin she can be. I told him Erin likes seeing all the doctors because they are very nice to her and always tickle her. He is a little anxious because he knows Erin has to go back to the hospital and stay for a few days and he is not happy about that. My husband took the week off work so we are planning to keep his routine as normal as possible and I will stay at the hospital with Erin. We are very lucky to have a lot of family and great friends close by. Everyone has offered support and help.
Well, I did not realize I posted so long.......sorry !
Have a great day everyone !!
Allisa mom to Connor (6) Ty (2) & Erin (3mos)
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 22, 2000 at 09:55:59
Comments:Steff: was ya teasing us or something with that testing thing? I sure have missed you!!Patty: Kaden was my first child.
Mary Spencers Mom: I am so glad that you are back!!
HAPPY ANNIVERSERY MARIE!!!!!!!!!!!!!!!!!
Everbody else Hi and I shall return!! So Beware!
Radonna
Name: Jackie/EmilyD's mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Monday, May 22, 2000 at 09:53:04
Comments:
Forgot a thought or two.
Anyone reading this board but shy about posting....forget it! I lurked out there in cyberspace a month after discovering Uno Mas. I composed and actually typed my questions and responses so many times but never had the nerve to "jump in". I felt like I was at a party without an invitation.....a fun one for sure...but being the new kid on the block is not my thing. One day I just took a deep breath, shut my eyes and pushed SUBMIT ADDITION.....and here I am. Don't worry that you don't know anyone....if you have something to say or just need advice come on in. For new people I think from time to time the regular posters should give updates on who they are. I am Jackie, mom to 4 kids....all grown ....and 2 beautiful grandchildren. My daughter Emily is 20 and attends a college program and lives in a dorm 200 miles away. She has had DS since birth (LOL....someone asked me once when she "got it"!!!!!!!). This is a place where you can laugh or cry as the mood strikes you. I personally get soooo excited when I see a new name on the board.
Mary...almost forgot....in Spencer's site, Emily loves that he calls you Mum....not Mom LOL
Jackie
Name: patty moore
Email:pattymm1@home.com
Web Site:http://
Date: Monday, May 22, 2000 at 08:42:51
Comments:Radonna, I could really relate to the poem that you posted. Thanks for sharing it with us. It made me cry to think that people do this to their children for themselves and for others, but not for their children. Shame on them!
I have noticed that there are many ds children born 1st and 4th. Let's take a poll. Kaila is my 4th born. Maybe I have something here:)
Name: Jackie/Emily D's Mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Monday, May 22, 2000 at 08:09:28
Comments:Mornin'
It's supposed to be incredibly hot today in the Texas Panhandle so I need to get out early and get the rest of our marigolds in before they bow their heads in prayer. LOL
Radonna...I thought of writing a book about DS for young people WITH DS but frankly I'm a better "idea" person. Guess that's why my family refers to me as The Queen. I even have a crown collection. I just come up with an idea and point to my chosen subject and command them to Do It !!!!!!!!! :)LOL
Mary......I'll let you in on a little secret......I knew you'd be back....:) :) :)........We hormone replacement broads have been at this too long to back away from anything that quickly LOL (doing lots of laughing for this early in the AM, aren't I?????) My Emily has been reading Spencer's site when she isn't playing the Cow Flipping Game a friend emailed us.....she has also developed a fondness for our Casino Game program. She thinks Spencer is really cute and wants to email him (don't hold your breath....this is an "emerging" skill for her). Anyway, we all want to hear about the plans for the Florida Trip!
Well, time for the morning ritual of toad removal from our sunroom.......why would they prefer our Mexican tile over the "rain forest" we have created outside for them is a real puzzle.
Jackie
Name: Mary from UK
Email:m.tutty@btinternet.com
Web Site:http://www.spencersite.net
Date: Monday, May 22, 2000 at 07:48:32
Comments:Hi its me again
I forgot to make it clear in my last post
I AM BACK. For All my friends here
with Love from Mary
Name: Marie
Web Site:http://
Date: Monday, May 22, 2000 at 00:24:33
Comments:
actually today the 22nd is. i said tomorrow but i forgot i was writing this at 1:30 am haha now i am going to bed!!
Name: Marie
Web Site:http://
Date: Monday, May 22, 2000 at 00:23:38
Comments:Tomorrow is my 1st year anniversary, wow where has the time gone??? That must be a good thing which means hubby isn;t driving me crazy...yet lol just kidding. Next weekend we are going to Lancaster which should be fun...I am so glad for him, hes been so good to me and my son, and is such a great guy.
Also want to say hello to everyone and hope you had a good weekend. I havent been on line almost all weekend and think i was going thru internet withdraw lol....nite all
Marie
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Monday, May 22, 2000 at 00:10:23
Comments:Radonna,
I found a book several years ago called "My sister is Special". It does a pretty good job of explaining I think. It even goes into a chromosome explanation briefly. I have told kids before that "It's a little harder for Emily to learn to do some of the stuff that was really easy for you. She will (WILL) learn it too.....she will just have to work extra hard and have the help of her friends and family." If they ask "why", I usually just say that she was born this way....then I go on to point out some of her good points and focus them in that direction.
Must run now!!! I've been looking forward to sleep for over an hour. Catch you later, Susan
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 22, 2000 at 00:01:40
Comments:Jackie:Why don't you make those books! I mean you could cover all the bases from babyhood to kindergarten to teenagers and then adulthood. You have such a great way with words.
Name: Lisa Huppe
Email:lisahuppe@webtv.net
Web Site:http://
Date: Sunday, May 21, 2000 at 23:13:29
Comments:
I want big letters, too!
Name: Jackie
Email:grannyjj@hotmail.com
Web Site:http://
Date: Sunday, May 21, 2000 at 22:56:59
Comments:
Radonna......sneaking in a quick post while hubby and Emily are at Blockbuster.
Your comment about how to explain DS to younger kids is interesting. I seldom had to explain to any one younger and frankly can't remember what I did say. I know a lot of moms have had to explain about Emily to their kids.....wonder what they did say....obviously the right things. This would be a good topic for discussion. I also have asked companies like Woodbine House to publish a book for kids with DS like the ones they publish for other disabilities ex: YOU HAVE DIABETES. I started using the words Down Syndrome comfortably with Emily almost from day one. It just became part of my vocabulary and I approached her disability kind of like the way they tell you to deal with an adopted child....talking about it to them very early in life instead of just springing it on them. I do know some families that have adolescent children and forbid people to talk about DS around them. I think a book that you could put your own childs pic in and chart his development while teaching him the facts and positive aspects of his disability as he matures would be neat.
I really have not spent all day at the computer....it's just that it is in a convenient place in our house to take a break....besides I've been waiting all day for pics ("promised but yet to arrive" ) of my 2 wonderful grandbabies.
Jackie
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Sunday, May 21, 2000 at 22:29:50
Comments:Hello Everyone!!It was so good to get to chat with a few of you tonight!!
Lorena:I am from WV, but I live in Tennessee.
Denise: Kaden and Stevie would LOVE each other. I guess that is why every time I hear about Stevie I just want to hug him!!Jonathan has had a really hard time breathing tonight. I know almost everything he is allergic to and I have gotten rid of it all, but there is something I an missing.
I have a question for everyone. How do you explain Down syndrome to kids about 11, 9, 8, 6, and 4. My next door neighbors are asking questions and I want to explain it where they can understand it. I don't want to just say he is special. Kids don't take to that very well. I told my nephew that and he said "Nonna ain't I pecil toooo" He was four at the time. I want the kids next door to treat him the same as if he didn't have DS. They asked why that he was so small, and why since he and Courtney (the 6 year old girl)were the same age wasn't he able to ride without training wheels on his bike.
They weren't bad questions and I would rather they ask me than not. I just was caught off guard. I tried to explain, but I wasn't getting anywhere. How do you explain a chromozone to a kid???? When I said he had a little more, Tabitha the 10 year old Said well shouldn't that make you able to do things faster? More always seems better to kids.
So any suggestions on what to say I really would appriciate.
Radonna
Name: Lorena:Clark's Mom
Email:L719zecher@aol.com
Web Site:http://www.cornetser.com/friends
Date: Sunday, May 21, 2000 at 22:00:46
Comments:Hi everybody, Hope that you had a great Sunday.!!
We had a pretty good day here. We went to church( without Keith because he is still having a problem with his mouth..he had his wisdom teeth, all four, taken out May 11th and he still is really sore. He wants to not take any more pain meds now...Don't ask me why. I knew that he should have had them out years ago. He is 38 years old !!! Not as easy to bounce back when your that age.) We had a New Member lunch after church( Craig, my 13 year old was just confirmed a few weeks ago).I came home and did the cleaning thing while Clark took a nap, for a change !, and then we were off again to play softball for the church team. Clark got so dirty at the SB game! Had to give him a bath as soon as we got home. He is a dirt magnet I think!
Denise: That is neat that you have a Brother in Frederick. I live out close to Burkittsville...Home of the blair witch. You have heard of "The Blair Witch Project" movie ??. Where do you live??
Lisa: I hope that you are feeling better soon !!! I will say a extra prayer for you tonight.
Radonna : Thanks about the compliment on Clark...We think he is quite handsome ourselves !!!! He looks like his Mommy !LOL. Actually he looks like his big brothers alot. Yes, I live in Maryland. Are you in West Virginia ? I think that I read that you were. If so where in W.VA ??? I was born and raised in Frederick Co. Maryland. Ever heard of Braddock Heights ??
My Anniversary is September 14 !!!! We do have alot of things in common....I think that it was Jackie and Heather that were talking about September 15th being their Birthday and anniversary.
Some one email me too with instructions on how to write big too!!!
Well, For once I am going to bed before midnight !!! I will check in tomorrow and see how everyone is!!!
Love you all,
Hugs,
Lorena
Name: Denise
Email:DZeke@aol.com
Web Site:http://
Date: Sunday, May 21, 2000 at 19:13:07
Comments:Hey, anybody miss me? I was so sad and meloncholy and tired yesterday. I think it's the crappy weather we've been having and Stevie keeps showing up in my room in the middle of the night to cuddle. At least he is keeping his Jammies on in the middle of the night and not peeing on the sheets anymore. And he is soooo angelic looking when he is sleeping I don't have the heart to move him. He spent the morning swearing in church (only does it when it's me and him alone for some reason) I pinched his cheak and made him cry and I felt really bad!. All in all after we got home we had a Great Day just him and I.
Radonna-That was a beautiful poem that you posted. You can be a CRAZY mother with the school board all you want. That's how you get things done. Up here we call it mother's from hell. I just tell them this is not about what I want but what Stevie needs. Luckily I don't have that problem now that stevie is no longer in public school. He atoumatically gets what he needs at his new school without me having to ask for it.. I totally understand about where you are coming from regarding being stressed and not depressed. I too am stressed but not depressed. I just make the most of what God gives me too handle, That's all I can do. You sound like you really know how to roll with the punches. I give you a lot of credit for handeling your life so well. I would love to meet your boys.. That is too scarey about Jonathen's asthma. I hope you can find some answers soon. I loved your top 10 signs about how you know Kaden is mad at you and when he loves you. You are just too funny. I had to laugh when you said Kaden had stripped down and it was time for his bath. Stevie just did that last night too!
Susan-Send me an e-mail and teach me how to do big too please. I want to make raspberries. I love big raspberries. What did you and Kathy do with the girls yesterday. Did they get along as well as Jared and Stevie did? Marie is going to bring up Jared in June I think. I'm really looking forward to it. Yeah Jorden! Here's hoping he makes the all star team. I'm glad Emily likes T-ball. I can't get Stevie to do t-ball or soccer. Just not an athletic kid I guess. Thanks for posting the pictures for me. I'll have just one more for you. I took pictures of him in his easter outfit today with his little tie and everything. He is such a handsome kid!
Lisa H.-Please let us know how the docter's goes tomorrow. Did they ever suggest doing an MRI? Are they thinking maybe migraines? Just don't let them tell you it's all in your mind! I certainly can relate to the pain your having. It must be tough having to take care of Alex when your not feeling well. Hugs and prayers coming from me and Stevie!
Shawna-Hey, I've been thinking of you too. Was missing your long posts too. I gotta ask. Do you have all your poems listed on one place on your computor? I'm willing to send postage and handeling if you do. I want copies. How did you ever get Michael to ride a bike a bike in the first place? I can't get the concept of forward and Backward in Stevie's head. Stevie likes boats too. I'll have to post a picture of Stevie and his daddy out on the lake in his boat. Sept must be a good month, my birthday is on the first.
Alissa and Heather-Hoping Erin's and Nicholas"s surgeries go well. They are on June 2 & 3 right? Prayers coming from me and Stevie.
AiLay-How is Shuxin doing? Hoping her recovery is going well, I'll keep sending my prayers too.
Brenda H. Hope all is going well for you too. I've been missing you much too.
Lorena-Just checked out Clarks pictures. He is just too handsome. I have a brother who lives in Frederick Maryland, small world.
Sherri-Thanks for the e-mail. Hugs to you and Jared. I'm hoping his surgery goes well this week. Let me know please
Cindy-So glad that Pooja's recital went well. Kaylee and Emma are so beautiful little girls.
Jackie-So glad the prom went so well. Your prom dinner made me really hungry. Can't wait to see the pictures\
Marie-Did you make it to Amish country for your anniversary this weekend? Happy First Anniversary to you and George by the way! Hope to talk to you soon. Jared must be sending Stevie messages again. Stevie has been talking about Zoom all weekend. Missing ya much!!
Here's hoping everybody has a really great week. Take care all..
Name: Jackie/emilyd's mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Sunday, May 21, 2000 at 18:09:52
Comments:Can't resist.......won't do it again....just want to try once
:) LOL
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Sunday, May 21, 2000 at 17:13:06
Comments:Just one more thing.....
Jackie: I want the cow flipping email!!! That sounds almost as fun as the elf bowling email we got for Christmas and we enjoyed it for weeks!
Also....Lorena, how is Clark? How's the walking going?
And, where are Brenda B and Brenda H?
Ok...that's all. For now. Susan
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Sunday, May 21, 2000 at 16:59:50
Comments: Hi friends!!!
Oh, I'm so jealous! I really want to chat tonight too, but my ancient computer just won't cooperate. I hope to be in the old chat room, in case anyone wants to talk s-l-o-w-l-y with me. We have a new computer in layaway. Yea!!!!!
Jackie, Glad to hear the prom went well. Last night, I saw a REALLY long limo and immediately thought about Emily and Elvis and the gang.
Yesterday, Emily and I met a mom and her daughters who I originally met here. We had a fun day...just us girls. Her daughters are just a little older and younger than Emily and hit it off well from the start. Kathy, if you're lurking....Let's do it again soon!!!!!!!!
Today was tball game #2. It just keeps getting funner. (More and more fun!) Emily can throw the ball very well actually, but catching is another story. She basically squats on the ground all the time with her glove extended...just waiting for the ball to land inside. I hope you all don't get tired of Tball stories. We are NOT an athletic family at all, but I absolutely love Tball! Jordan's season is over and we are keeping our fingers crossed that he will be picked to be on the all-star team because that means we get to watch at least 5 or 6 games.
Lisa Huppe, I had been missing you. I'm so sorry to hear that the headaches have continued. I know that must be exhausting and scary. You are in my prayers. I'm so impressed with Alex's nose-blowing skill!!! I have a 12 year old who doesn't have a clue how to do that! And Emily gets a kleenex, brings it to me, and points to her nose. Maybe it's hereditary. Next time hubby has a runny nose, I'll be sure to check. lol Please keep us posted.
Alissa, Remind me....when is Erin's surgery? I thought it was coming up soon. Hugs to both of you!
AiLay, how is Shuxin doing now? I'm glad the surgery went so well. It amazes me how quickly babies recover.
I'm running late, so will stop for now and just say HI and HUGS to Denise, Kim, Diana, Sherri, Tina, Shawna, Becky, RO, Radonna, Marie, Debbie, Patty, Cindy, Michelle, Mary L, Mary, Alice, Toni, Sara.........To anyone I've not mentioned, please post and freshen my old memory!! Shawna, this post is so short; will I lose the princess title? Have a great rest of the weekend!!!!!!!!! Susan
Name: Shawna
Email:lawmanw@telusplanet.net
Web Site:http://
Date: Sunday, May 21, 2000 at 16:46:55
Comments:
HI GUYS!!! I know it's been a long time, sure feels like it for me, and OF COURSE everyone had to be super-chatty! LOL
Well, here goes................
Yesterday, we went out fishing at a local lake. Michael just LOVED going out in the boat! He sat quite happily in it for two hours while Lawrence was getting everything ready to go!
Well, we finally got out there and for some reason the fish weren't biting very well. Then finally, I caught one! And a very nice one at that! I just started reeling it in, and then I lost it! It turns out that the fishing line of the leader was old and as soon as there was pressure on it, it broke! Needless to say the leaders were changed, but that was the only fish of the day! LOL
Today, "the men" went out for the day. They had one when I last talked to them, which my brother caught. The update is they almost had another, but it got away! Oh well.
Radonna, I'm still waiting for my "big" directions! LOL I gotta be able to keep up with the rest of you!
Becky, Hey, Kelly, great job sitting up! It's so exciting when you start doing new things. I don't remember when Michael started to sit up alone, I think he was over 7 months! Hey, did your cool lamps ever show up? LOL
Jackie, by now I've had the minute-by-minute replay of all the Prom prep, and even the Prom itself! I really enjoyed hearing about the fun you and Emily were having, even if I didn't post every day. I'm really glad that her body slip stayed up! LOL About that MHMR problem you're potentially having, they were or are trying that in Alberta too. I admit I didn't get involved because Michaels so young! That will change! I just didn't use my foresight! Thanks for your wake-up call. And, I thought your letter was extremely eloquent.
Judi, Your letter to MHMR was also (how do I say "extremely eloquent" without saying "extremely eloquent"?)LOL. Your letter was just as good as Jackie's in my opinion! How are the boys doing? I don't know how you do it! My hat is off to you!
Paula, Hi from Canada. Hannah's Communion sounds really lovely. If she knows Paul thinks she's his princess, she will be one. What a wise dad! I'm glad Ethan's keeping his glasses on. The only child I have with glasses is Robbie, and he got his in grade three! Now, if he would only keep them CLEAN!
Becky, breakfast for dinner, in my house, that's not much quicker! I don't like bacon and eggs very much, so don't do that really, but I know my mom did sometimes.
Heather, on the message board, there is a post by Dru Barbee (I think about a home system to keep track of wanderers. I checked it out. It looks like exactly what I want. Now I just have to find the funding for it!
Radonna, I don't have any ideas for your sick boys who aren't sick anymore. All the really good ideas were already taken! LOL
Becky, You're right about the angelic appearance of our kids when they're sleeping. It's only when they're awake that the truth is revealed!
Thank you for all the advice and support in regards to my son Robbie. He did go to Cadet Camp this weekend, but is still walking a really fine line. I hope for his sake that he doesn't end up spending the summer with Lawrence!
Susan, I'm glad that you had fun at the zoo! There isn't one nearby here, so I don't think Michael has ever gone yet. I don't know if I'd like to ride the camel. So, does Emily want to have a pet snake now? LOL The bit about Allison at Grad was so awesome! It's neat that she's got lots of support, that was pretty obvious.
Alissa, thanks for the support regarding Robbie. You sound like me, posting well past midnight. Erin sounds adorable! If you can, post a picture.
Steff, if I don't get to phone you, enjoy your week in Canada. Have a great time in Toronto. Did you not say you're here for a medical reason? I'm glad Kyle and Olivia are having fun!
Denise, I've been thinking about you. How are things going for you and Stevie? I'm glad to say that Robbie and I do have periods of communication. You most certainly can share my
ideas with your sister. If she wants, she can e-mail me and we can encourage each other!
Michelle Mc, thanks for sharing the poem you got from your sister with us.
Becky, I can so much relate to your frustration with Tony. How is it going on the Dexadrine? I'll be praying for your insurance company to smarten up,so he can continue counselling.
Jackie, about "Forking", I think I'll leave it for my salad!
Judi, about being "chained together", I sure hope it doesn't come to that! It might at home, though, if he doesn't start staying put!
Beth, Hi. My name is Shawna, and I'm the mother of four, and my youngest, Michael, has Down Syndrome. I live in Alberta, Canada.
Heather F, good scriptures that you shared! I hope Nicholas' surgery goes off without a hitch!
Mary L. Yeah, Patrick! I hope he won't need glasses. My dear, you are so far from being wordy, it's funny you worry about it!
Jackie, I'm really happy to hear how well Emily did in her classes! I liked the body slip bit, and trite is good sometimes.
Radonna, Michael usually doesn't like sleeping alone either.
Ro, your Grouper Party sounded like a blast! I can picture it...the kids saying "mom, he'll eat me through the glass" LOL
Susan, YOU TOO? Does everyone here know how to write big but me? LOL Thanks for the e-mail, I've been meaning to write back to you. I will! LOL How was your visit? BTW, who did you visit?
Radonna, your pizza buger experiment sounds pretty good! For pizza burgers at the restaurant, they cooked a regular patty, and then put a small amount of pizza sauce, some sauteed mushrooms and a ring of green pepper, and top it with a slice of mozzarella! Really good! No, I don't feel like I'm grounded, I just take Robbie with me. And, he gets to help me with things like cleaning walls or maybe vacuuming or whatever. Michael is doing great! This morning he tried taking the spaghetti out of the freezer! By the way, are you trying to go after my crown? LOL
Brenda H, How are you doing? I hope you are getting enough rest and not pushing yourself too hard. I'm glad you are starting to feel better.
Lorena, hi young 'un! LOL How's Clark doing these days?
Alissa, heart surgery For Erin! That must be sooo scary!
Lenore, thanks for posting. I agree, your sister is a terrific lady! I sure couldn't do what she does.
Cindy, the ballet recital sounds great! I'm glad your vegetarian supper went well. That would be challenging for me too!
Ro,you said to remind you: I AM OFFICIALLY REMINDING YOU!! What's the deal with it raining frogs? LOL
Radonna, your descriptions of Kaden are priceless!
Becky, I can't see why you can't give Tony a full dose of his meds after school. It is so great that Kelly's signing! It looks like the dumbo dietician is in TROUBLE! By the way, you couldn't pry me off the site with a crowbar!
Mary T, let me just add my pleas to the others! Please come back. I don't want to see you stuck in Never-Never Land!
Well, I started with ten pages of notes, and now I'm down to three! You know, I almost said that it was too much, even for me! I will persevere!
Radonna, Michael's birthday is September 22!! It turns out that Michael David Walter Wright was born on the same day as his Uncle David. We picked out the name five years earlier, and I never knew about David's birthday being Sept. 22! Cool, huh?
Alice, Hi, how are you and Luke doing?
Heather, Michael likes to ride his own bike! I'm thinking of removing the training wheels to slow him down a little! The bumblebee story was sooo cute! We need to remember to smell the roses, or follow the bee, whatever the case may be. LOL
Christine, Hi! I'm glad to meet you. My name is Shawna Wright, and we live in Bluffton, Alberta, Canada. We is my hubby, Lawrence, myself, Robbie, 15, Janine, 13, Jennifer, 10, and Michael,8,DS. It also includes Steven, my hubby's business partner, my brother Sheldon who is down here working, and the cat Sylvester, The Fattest And Laziest Cat In Alberta. Hope to talk to you again. Just look for the loooong post, it's usually me!
Radonna, you like camping too! One more thing we have in common!
Becky, Would you like to come up for an...extended visit? I'll let you cook! LOL Filet Mignon!! What a woman!
Lorena, I was afraid that the Purple People Eater got you! LOL I understand, hubby before Unomas. In fact, if he wasn't off fishing, I wouldn't be here now! LOL
Radonna, WHAT URL?
Cindy, I'm glad to hear you missed me! I feel so loved!
Ai Lay, What a good idea! how are the girls doing? Sorry to "run out" on you the other day! your girls are really cute!
Jackie, you know, it looks like Sept. 15 is THE day! I'm glad you're mature enough to share!LOL
Lisa, I'm sorry to hear about your killer headache! That must be terrible. I'll pray that they will find an answer really sonn and can help you!
Becky, I knew there was a reason we don't have fish! LOL Congrats on staying in your limits with all that yummmy food around. You got CONTROL, girl! Way to go!!
Paulette and Ro, I'm glad that you can still go to both sites. The point is to support each other and help each other!
Radonna, Sorry to hear about Jonathon's asthma. For allergies: Paint, Flowers, dust, is the poplar
fluff flying? For Chat: It's 8:00 for you, I believe. It's 7:00 for me, and I'm MST! The "live chat"button is at the top left corner of the message board!
Whew!! That took a loooong time! Jokes will have to wait for another post!
Ciao for now.
Shawna
*******************************************************
I've sent this before, but I think it is appropos....
Love Is A Four Letter Word
Love is a four letter word
Many tend to forget.
When times are tough, hope is gone,
When they give in to regret.
It's easier to start over,
And more exciting, too.
Too hard, too slow
To make it work.
"What's in it for you?"
Love is a four letter word
For God and joy and peace;
For courage and commitment,
For learning to want to please.
It makes us stronger,
More than we were before.
We can now be successful
In love, we always have more.
In love, we always have more.
Shawna Wright November 27/ 97
******************************************************
Name: Jackie
Email:grannyjj@hotmail.com
Web Site:http://
Date: Sunday, May 21, 2000 at 16:40:19
Comments:
Just emailed myself from another acct and it worked fine :)
Name: Radonna
Email:RHill@netease.net
Web Site:http://disabilities-us.com/slaterfamily/index.htm
Date: Sunday, May 21, 2000 at 16:40:03
Comments:Hey everyone. Above is a Link to a wonderful web-site! Cathy has a 21 year old daughter with Down syndrome named Karen. I copied a poem off the page that was beautiful!! If you visit don't forget to sign her Guestbook! Jackie: You should get in touch with Cathy! Karen her daughter is in College, I bet you would have a lot to talk about!!
Well here is the poem. Cosmetic Surgery? No thanks!
I could never change your face
The face that tells a story
Let my fingers gently trace
Your features in their glory
Your eyes in shape and colour show
your great grandmother's eyes
which far away and long ago
Reflected Irish skies
Your nose is dainty and I'm glad
It's not as large as mine
The prominent nose of your grandpa
runs in the family line
When I look at your mouth and lips
Such memories come to me
of infant suckling, spoons and drips
And of speech therapy.
Your mouth that smiles and kisses too
(for you show great affection)
Your lovely face comes into view
You have a fine complexion
So I would never change that face
Some people think we should
They try to justify the case
That surgery is good.
The prejudice these people show
These bigots of "pure race"
Who ignorant, who nothing know
is hateful cruel and base
It's not a crime its not a sin
It's nothing you have done
To have that extra chromosome
That number 21.
By trying to make your tongue be small
and alter shape of eyes
They do not change your thoughts at all
Or alter height or size.
Instead it says "You're second class,
inferior, rejected,
deformed, subnormal, cannot pass
Disfigured and defected"
I say in an emphatic tone
Downs Syndrome's part of you
I love you as yourself alone
your face I won't redo.
But most of all it is your life
I know it would cause pain
The scalpel blade and surgeons knife
would bring distress and strain
You would feel fear, it would be cruel
No benefit ensue
Without improvement or renewal.
No gain or help to you.
So I will never change your face
No surgery, no scar
Your beauty humour and your grace
Just stay the way you are
Poem written by Catherine Slater
Page created August 4, 1999
I tried to post the picture to go with it and I couldn't/ I just thought this poem was great.
Hope You all like it
Radonna
Name: Jackie
Email:grannyjj@hotmail.com
Web Site:http://
Date: Sunday, May 21, 2000 at 16:34:53
Comments:
My email seems to be working and receiving messages. Emily has been playing a silly cow flipping game that someone emailed us, but don't think it could interfere with email. If you identify yourself, I will email you back.
Name: e-mail confirmation
Web Site:http://
Date: Sunday, May 21, 2000 at 16:12:21
Comments:Jackie your e-mail doesn't work tried to send you something
could you check it.
Name: Chat
Web Site:http://
Date: Sunday, May 21, 2000 at 16:05:29
Comments: Jackie,
If you are on around 8:00 pm tonight click on the chat room link up top
and it will take you to the sign in screen.
When you sign in just wait a minute and another screen will pop up
If you ever get a message that your name is already logged in to the
chatroom change and re-enter under a new name.
This means there is already someone in there with the same log in name
or you didn't exit right before.
No problem either way.
If you chose the slow chat room and it has no one in it
Click on the black box at the top of the slow chatroom and it will take
you to another chat sign in and you can try FAST chat too.
Maybe one day I will catch you in one or the other.
Name: Sherri / Jared's mom
Email:jsjphil@pldi.net
Web Site:http://
Date: Sunday, May 21, 2000 at 15:15:17
Comments:
Hey Radonna, chat link is in the upper left hand corner of your screen. Just click on it & ta da. Then you have to decide on which chat room to enter. Hope this helps you some!! Only been in fast chat 1 time myself, sure was alot of fun!! BTW, hope everyone is feeling much better in your household!!
Hugs!!
Sherri
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Sunday, May 21, 2000 at 14:26:21
Comments:Okay, I really want to chat tonight. I am in CST time zone. I think that if it is 6 pst that it is 4 CST but i don't know for sure. Where do we chat?? Is there a link or something???Radonna
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Sunday, May 21, 2000 at 13:47:11
Comments:SUSAN I MISS YOU!!!
How was funscapes??? DETAILS I NEED DETAILS!!!Jackie:I loved what you said about how you only see Emily not Ds. I feel the same way with Kaden. I get so mad when someone tells me what I am suppose to feel. Or uses the AWHH I'm so sorry approach. As small as Kaden is he is still so much bigger than Down syndrome. I have told people before that I go for DAYS without thinking about Kaden having DS and they look at me like I am in denial. I am not in any way in denial. When I look at Kaden I see my beautiful little boy. DS is something he has not who he is. Feels like I am preaching to the Choir here.
I try very hard to let all of you see Kaden the way I see him. It means so much to be able to share him and him be appriciated for just being Kaden.
I was talking to a friend of mine on IM's last night and we were talking about how Kaden's speech delay causes him to be classified as more delayed than he really is.
I have never fought the school board that hard, but that is all changing next year. I KNOW what Kaden is capable of. I never fought them too hard because i didn't want to get branded a Crazy Mother, but after this year they just earned themselves one CRAZY MOTHER.
I also what to say that STRESS and DEPRESSION are two seperate things. My life is at times Stressful, but how can i be depressed with my live in comedian to cheer me up. He knows he is funny too.
Becky: YUMMMMMMM I am coming to your house.My Anniversery is Sept 2, My Nephews B-day is Sept 24.
Cindy: Did you take any pictures to post up here? OH and how do you get pictures on the message board like ONLY you and Tina can do? RO told her secrets!!!LOL so c'mon!! Tell us!!
Shawna: I need a big huge Shawna post to get through the day so c'mon and POST!!
Jackie: I am so glad that the prom went great!! I can't wait to see pictures!!!!
To everyone else HELLLLLLO.
BTW last night the scariest thing happened with Jonathan. I slightly woke up and I usually hear Kaden snoring(loudly) and I didn't so it jarred me awake. when I woke up Jonathan was having an asthma attack one of the worst ones ever. There is something in this house that he is allergic to and I can't find it. He has broke out in a bad rash and he is having asthma attack every 3 to 4 hours. I have ALL Linoleum down. I have NO animals in the house. Only plastic toys. I don't know what else to do. I hate the breathing problems the worst, even though they can be managed. If Kaden being quiet hadn't woken me up good. Would I have Waken up? I guess that is part of the reason I don't sleep much. I am afraid too!!
Well Kaden has stripped naked. Know what that means????? BATH!! So I need to give him one!
Later
Radonna
Name: Jackie/Emily D's Mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Sunday, May 21, 2000 at 13:22:46
Comments:
Ro....I am so new to the computer I have to fess I don't know how to chat. I also have the fear that my fingers can't keep up with my brain. I do like AOL instant messanger which I do with my two older girls. If I'm around tonite I might check it out. Which time zone does the 6 refer to?????
Jackie
Name: Ro
Web Site:http://
Date: Sunday, May 21, 2000 at 12:40:34
Comments:Hey folks change in plans:)
So sorry I am so wishy washy. Way to much to do with
all these children:)LOL
I feel the need to have "2" of me today.:) Any suggestions?
Danny came in with additional plans and I am going to be
away for tonight have fun in chat without me please:)
I will be reading cause I can load and shut down but
unable to post:)
Men can be very trying at times:)
love ro
Name: Ro
Web Site:http://
Date: Sunday, May 21, 2000 at 12:05:09
Comments:DAWN BACON:)
I posted here so all could see girl.
You are my friend thru thick and thin and I will always
love ya girl:)
Friend of mine I will catch ya as soon as I can.
I have to get now:)
I really need to TALK to you:)
Give Bran the man a great big hug for me and tell Brook,
Teddy is going to be her man:)LOL
We were surf the photos:)LOL
love ro
Name: Ro
Web Site:http://
Date: Sunday, May 21, 2000 at 11:43:42
Comments:Hey isn't today SUNDAY???????????????????
IF it is and you are interested there is a scheduled
CHAT this evening at 6:00 P.S.T.
I will try and make it and I hope to see you all there:)
Name: Becky/Kelly's mommy
Email:buckaroobeck@postnet.com
Web Site:http://
Date: Sunday, May 21, 2000 at 10:53:45
Comments:
Good morning to all! Very quick post here, have to go clean out our 55 gallon fish tank. Yuk! How did I end up with that job???? Jackie, SO glad to hear that Emily had such a great prom!!! And that that ol' slip stayed up, and crab dip sounds awsome.
You've just inspired me to make this fantastic artichoke dip to go with (I almost said 'for' LOL) dinner tonight. Very, Very fattening, but sooooooo yummy! Lucky me, having the B.I.L. over for dinner. yippee. We're eating too good this weekend, I must stop this!!! Filet mignon last night, pork tenderloin tonight. But I AM staying within my WW points (and just barely I should add). What can I say, I LOVE good food!!!
Ro, so glad to see you didn't end up as fish food! Tell us about it - I'm an ocean-life NUT !!! I LOVE wildlife, more so than the domestic animals. My goal in life is to volunteer for our local wildlife rescue center. Seriously!!! Aren't I so ambitious (HA!)?!?!
Well, the grocery store is calling for me. Have a Super day!!! ~~~ Beck
Name: Lisa Huppe
Email:lisahuppe@webtv.net
Web Site:http://
Date: Sunday, May 21, 2000 at 10:13:33
Comments:Hey everyone have not been on for a few days....
Last time I posted, I had a horrible headache......well, today is day 11 of the horrible headache, plus I'm seeing all these weird lights. I have been to the ER for I.V. meds, been to the DR. 3 times this week, had 4 different painkillers and a shot, some of the stuff works for a little while, just to knock me out for awhile. Had a CAT scan Friday morning, but won't hear anything till Mon. and I don't mind telling you all....I'm very worried. I'm so worn out from this constant pain, I don't know how long I can keep this up. I want them to find out what is wrong and make the pain go away, but not through the cat scan: they only find really bad stuff on cat scans. Will update you all soon as I know something.
Alex is doing great....and still blowing her own nose...with no help at all...at only 22 months....I'm still amazed!
Name: Jackie/Emily D's mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Sunday, May 21, 2000 at 10:00:17
Comments:Mornin'
If I knew how to write BIG on this site I would say......YES!!!!!!!!THE PROM WAS PERFECT!!!!!!!!!!!!!!!!and the body slip stayed up :)LOL
The prom princess is out for the count.....until at least lunchtime, I'm sure. Our pre-prom dinner was a success...we invited the limo driver in for it too. The crab dip ended up being eatten by the parents who dropped by for a peek and Emily was right.....the squeeze cheese and Ritz crackers were their favorite. The table looked sooo pretty...candles and flowers from the garden. I served sparkling grape juice just like wine. Emily's actually the youngest of the group and next year if they party it can be wine!!!!!!! I will post pics when I get them developed...really need a digital camera but they are sooooo $$$$$$$$.
I see from reading all the posts from last nite that several of us really have more in common than DS. Does the date Sept. 15th mean anything?????????? It's MY birthday and since I'm sure I'm the oldest poster on this site it's MY day because I've had it the longest......Yep, I own it and am only loaning it to you for your birthdays and anniversaries :)LOL!!!!!!!!!!!!!! Let's go put it on the calendar.....if I haven't already taken up all the space.
Becky.....trust me the day does come when you stop thinking so much of DS. When Emily was a little one there was first DS and then Emily. As she got older Emily and DS were one and the same........now there is just Emily, the adult and DS has gotten lost somewhere along the way. Last night basking in the glow of a perfect evening I tried to conjure up the feelings of fear and sadness I had so long ago just to compare with the elation I was feeling....you know what?......they just wouldn't come!!!
Have a great day with your kids....one of my "kids" is 26 today and I am resisting the urge to call Dallas and be the "first" to wish him a Happy Birthday :)LOL
Jackie
Name: Ro
Web Site:http://
Date: Sunday, May 21, 2000 at 09:57:45
Comments:Ailay,
Man what a deal:).
Where have ya been with that suggestion:)
Sounds good to me:)
I am smiling alot today ain't I:)
I am with Michelle I wake up and I like the change:)
How is girls Ailay today?
Ro
Name: CIndy
Email:scottcindy@jps.net
Web Site:http://
Date: Sunday, May 21, 2000 at 03:41:06
Comments:Hi allRadonna--that booger thing really tricked me! I loved your Kaden stuff..really did fill me in on what he's like, sounds like you get to run a lot (hahaha)!
EMILY DEAR ~~~ HOW WAS THE PROM??THE LIMO??THE SLIP? Hope you had a blast!
The recital tonight was perfect and I managed to fix a perfectly good all veggie kinda meal for our friends from India. Their daughter did awesome in the recital! We cried!! Just wanted you all to know..glad to see us all back to normal hear....must get to bed now. By the way, glad to see Shawna's alive-I was begninning to think there was something seriously wrong with her having not seen a post from her in like 2 or 3 days!! :)
Name: Woopsss
Email:RHill@netease.net
Web Site:http://www.cornetser.com/friends
Date: Sunday, May 21, 2000 at 01:38:13
Comments:OKAY last this is the link to see Lorena's son Clark!! Sorry! One Letter and you mess up!!
Name: Radonna
Email:RHill@netease.net
Web Site:http://www.cornester.com/friends
Date: Saturday, May 20, 2000 at 23:57:34
Comments:Lorena: Just saw Clarks picture. He is a sweetheart! EVERYONE GO SEE CLARK!!! HE IS SOOOOOOO CUTE!! If you don't want to type the url in I put the link up at the top! Are you from Maryland Lorena?
Radonna
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Saturday, May 20, 2000 at 23:47:03
Comments:SUSAN WE NEED EMILY'S T-BALL UPDATE!!!
Ro:I was going to tell everyone that a big GROUPER fish didn't eat ya!! But ya beat me to the puter!Lorena:I sure have been missing you!! I can't wait to check out Clarks picture. I will do that as soon as I get off of UNO!
Jackie: THE PROM THE PROM!!! HOW WAS THE PROM???
Has Emily got home yet?
Shawna: Did you get that url that I sent you about the site that will sketch your picture?LOL I thought that you would appriciate that one.
Well Kaden shows no sign of sleeping yet. So I will be on here a little while longer. POST SOME MORE PEOPLE!!!
Radonna
Name: Lorena: Clark's Mom
Email:L719zecher@aol.com
Web Site:http://
Date: Saturday, May 20, 2000 at 23:43:53
Comments:OOOOPPPPPS, I don't know how my last post got messed up!!!
Somehow my question to Allisa got thrown to the bottom. OH Well!!!!
Love you guys,
Lorena
Name: Lorena: Clark's Mom
Email:L719zecher@aol.com
Web Site:http://www.cornetser.com/friends
Date: Saturday, May 20, 2000 at 23:39:58
Comments:Hi Everyone !!! Did anybody miss me???!!!! I haven't had much time to post..I did lurk alittle but not too much. I was afraid my hubby thought I wasn't paying any attention to him...so I did !!!
Radonna: How the heck are you ?? Did you get my email last weekend ?? Thanks for the Mother's Day card !!! You made my day.
Shawna: I still need to find that recipe for you...I will, I promise!!!
Jackie: I bet Emily looked gorgeous !! We want Pictures !!!
Heather and Chris: HI. Chris, Your post was nice !! I know that I enjoy coming and chatting with the parents here...It is the highlight of the evening...I stay up way too late most nights to get all the news!!
Good News: Our DS support group has a website !! Go visit! Clark's picture is there!!!!
www.cornetser.com/friends
I gotta go...It is getting late. Have a wonderful Sunday everyone.
I will check in tomorrow.
Hugs,
Lorena
Allisa: How are you ??? How is Erin doing ??
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Saturday, May 20, 2000 at 23:26:59
Comments:
I know ya love me:)
Ya miss my GREAT post?:)
I am still laughing about this one:)
This evening we were discussing Teddy's features:)
I told him he had his daddy's high forehead upon which
he turned to me and told me he had his MOMMA'S A$$.LOL
Cussing is not a doable for Teddy and I tried to keep
a straight face when I told him "yes you do have your daddy's
forehead and yes you do have your MOMMA'S A$$ but you should
have said your mommas butt:)"
Sorreeee he says:)
Gotta love em.:)LOL
Love Ro
p.s. btw he has my beautiful eyes he says:)LOL
Name: Becky again
Name:
Date: Saturday, May 20, 2000 at 22:06:15
Comments: Sorry, Radonna - you asked WHEN Kelly was born. Sept. 24, 99 = BUT... Sept 15 is my hubby's birthday AND our wedding anniversary! I just checked out all those new pics - where oh where have I been??? Such ADORABLE kids!!! Kelly is in March's 'folder'. Forgot things were set up in month's. Who's little one is Raven????? I have to ask - she's SOOOOOOO adorable, she reminds me SOOOOOO much of Kelly!!!!! Kel has changed quite a bit since those pics were posted! They have very similar features, that cute tiny nose, that SQUARED OFF lower jaw (maybe the German coming out in Kelly-so much for the little Irish girl - LOL), and those EXACT eyebrows. Are they related ?!? And I had to take another peek at Emily. Such a BEAUTIFUL young lady, Ds or not!!!!! I love the way you talk about her never mentioning Ds, I know that day will come for me too. Still in the acceptance stage, I guess!!! I saw a friend tonight that I haven't seen for a few months, and she came up SO concerned about how I was doing, like maybe I should have fallen apart by now. I know, she meant well!!! I'm not letting those weird reactions get me down anymore! Had a great one from another friend - at my youngest son's talent show, a 2nd grade class did an AWSOME song about being a friend to a tree, they sang it AS WELL AS signing the whole darn song!!! It was awsome - as I was talking to my friend, who is not a good enough one to call and chat, who I haven't seen since Halloween, I mentioned how great that teacher was and that I'd have to remember her when Kel gets to 2nd grade. She said "Is she 100%.........deaf?" I didn't realize she didn't know Kelly has Ds, and I said, "no, just Down syndrome". She came back with such great emotion, yet one that was SO accepting, that it floored me. Then she kept saying how beautiful Kelly is (of course), and I thought, 'ok, now, you're going overboard and you're gonna blow it soon!' Anyways, guess you had to be there to get what I'm trying to say. I'm blabbin now!
Well, I'm going to go and do my dishes. They just never do themselves!!! We had filet mignon, for anyone who wants a midnight drool ;-) ! YUMMY!!!
Night night and ((((hug)))) those little ones!!! ~~Beck
Name: Becky/Kelly's mommy
Email:buckaroobeck@postnet.com
Web Site:http://
Date: Saturday, May 20, 2000 at 21:34:34
Comments:
Hi everyone! Can't say ladies anymore, cause there's a MAN invading our space ;-) !!! Nice to hear your views, Chris!!! Must be HeatherF's other half! Radonna - Kelly is 8 months old next week. She's a doll - I guess I should update with a new pic on the UMfriends, but for now go see her and her 'sibs', there are 2 postings in there, I think! You know, I need to bounce over there and check out more kids - I keep forgetting to check, I'm too interested in getting here and checking out the posts.
Uh Oh, Jackie - maybe we need to go on a "Ro Hunt". Maybe that big ol' grouper jumped up and sucked her in! LOL !!!
Radonna - was it you who asked if I'm from TX??? No maam, I'm from Missouri. Buckaroo is what my Aunt always called me when I was a kid, so when I went looking for an email, that one just jumped out and got stuck in my brain. Glad to hear your boys are doing SOOOO much better! :-)
Geez, Shawna - don't get your man to yourself this weekend, bummer!!! At least though you're able to see him!!! The summer would be awfully looonnnngggg if you didn't catch occasional weekends, huh?!!
I'm going to go check out some pics. Bye for now!
Beck
Name: Shawna
Email:lawmanw@telusplanet.net
Web Site:http://
Date: Saturday, May 20, 2000 at 19:05:38
Comments:
HI EVERYBODY!!With my hubby at home, I don't have much time! Sorry. In fact, this weekend my hubby, his business partner and my brother ALL showed up! Good thing I'm down two kids! LOL
I missed you all Sooooo much. I admit I've spent some of my time thinking about what I'd say!
I SHOULD have time tomorrow, and if I don't get back tonight, then tomorrow I get to attempt to respond to all the posts for the last few days. You guys better be ready, cause it will be a DOOZIE?
Radonna, you are tooooo funny! Jackie, I'll be thinking about Emily's body slip! LOL
I got some new jokes! Hope you haven't read them!
*****************************************
Top Ten reasons the 70's were a cooler time to be a teenager than the 90's:
10. Happy days vs 90210, Buffy the Vampire Slayer, etc,....nuff said.
9.There was only one kind of Nike tennis shoes (white with a red swoosh), and they didn't cost $125.
8. A comb in your back pocket is more practical and less painful than a ring through your nose or eyebrow or navel.
7. In the 70's playing video games actually meant going out to DO something.
6. In the 70's, when you were out partying, you didn't have to worry about your Mom calling you on your cell phone.
5.In the 70s we didn't have to worry about getting our heads blown off at school - unless you put a whole pack of Pop Rocks in your mouth and drank a coke.
4. Olivia Newton John vs. Britney Spears, Styx vs. N'Sync, Doobie Brothers vs. Hanson, Supertramp vs. Hole
3. In the early 70's there were kids in your high school who could BUY ALCOHOL LEGALLY.
2. Feathered hair was easier to care for than dreadlocks.
And the number one reason the 70's were a cooler time to grow up than the 90's:
1. In the 70's you didn't have to worry about your pants falling down all the time. They were so tight we couldn't get them off!
*****************************************************
Remember, my ministry is to make you laugh and be Queen of the Posters! Thanks to all the Princesses who are doing such a fine job in my absence! LOL
I'll talk to you soon. I'd start listing names, but am too afraid. I think I could only remember about 4 (without my cheat sheet)!
Ciao for now.
Shawna
Name: Jackie
Email:grannyjj@hotmail.com
Web Site:http://
Date: Saturday, May 20, 2000 at 19:04:12
Comments:
Quick prom update....Everyone looks grand....the beautiful huge black "stretch" limo just left with Elvis and Emily on its way to pick up all the others so I am catching my breath for an hour. Dinner is ready whenever they come back. Just got a call from Kenny (the walking hormone) and he is ancy because they haven't made it to his house yet. Emily looks great....some tense minutes earlier because we couldn't find the body slip.....it was in the trunk of the car (2 hr search LOL) and it looks like it will stay up. Trying to convince them that it's not too cool to be the first ones there and that they should really ride around in that limo to get their money's worth. They are all very well accepted at their high school...don't know how many of the regular students Emily knows in this class.
Haven't had time and probably won't to read the posts...did RO get eatten by the grouper???? :)LOL
Jackie
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Saturday, May 20, 2000 at 18:38:08
Comments:I forgot to put Christines name!! Christine the 1st part of the next post is for you. I guess I thought I was writing an e-mail!! Sorry!!
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Saturday, May 20, 2000 at 18:36:27
Comments:I just went to see your new picture. The pictures are great!!! I love the one of the boys looking at each other!! Your boys are so beautiful!! Heather. I was just joking about Utah!! I know it is not all flat and dry. It is a very pretty place. It was so impressive to my family that had never been that far west before that we kept stopping along the road and taking pictures!! I just catagorize the states I have been through by what was most memorable. I mostly remember Utah as flat and rocky!
Kaden is allergic to bees so thankfully he hasn't shown that big of an interest in them!! Do you and Chris go camping much? That is what me and my husband LOVE.
Radonna
Name: Christine
Email:cabevizzo@netscape.net
Web Site:http://sites.netscape.net/cabevizzo/homepage
Date: Saturday, May 20, 2000 at 18:07:51
Comments:Radonna, you are tooooooooooooooooooooo funny! Love the top 10 lists, booger story, and banana pudding story! Haven't visited unomas in a while cause I couldn't keep up, but stories like those are gonna get me into gear to check often! Check out the new pics on our site if you get a chance! Have a great day! Christine (Nicholas and Jason's mommy)
Name: HeatherF
Email:flanagan@mail.burgoyne.com
Name:
Date: Saturday, May 20, 2000 at 18:03:29
Comments:
Radonna - I love the outdoors!!! Chris and I don't get out much since we've had kids unfortunately. And actually, there are lots of hills where I live. We live right at the base of the Wasatch Mountains!!!! Lots of Utah is flat, but there actually is a TON of it that is gorgeous, green, foresty, mountainous, etc. It's great!How are all of our kids doing? Nicholas enjoyed watching a bumble bee just a few minutes ago (he didn't want to just WATCH, he would have rather touched or poured dirt and leaves on it but mom wouldn't let him!) that hurt it's wing I guess. Nicholas was enthralled by it for about 25 minutes, following it everywhere. (not too hard since it had to walk!) I love how children are so intrigued by the "little" things that adults take for granted!
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Saturday, May 20, 2000 at 16:48:40
Comments:THANK YOU HEATHER!!!! I haven't been on a bike in YEARS! Kaden gets 4-wheeler rides (no work involved) I guess in Utah there isn't many hills to climb. That is my biggest problem with bikes!! I start rolling backwards halfway up!!
Name: HeatherF
Email:flanagan@mail.burgoyne.com
Name:
Date: Saturday, May 20, 2000 at 16:32:31
Comments:
Hi Radonna!!!!!!!!!!! This won't be a long post, just wanted to tell you that I'm here and whetting your appetite for POSTS! We're taking the boys for a bike ride (we bike, they ride!). They LOVE riding in the jogger/bike-stroller, but they DONT like the helmets! Well, that's all for now. Love you guys! (and gals)
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Saturday, May 20, 2000 at 16:21:11
Comments:This Board is so SLOW today. I am warning you guys. I may start talking to myself in a minute!!! POST PEOPLE!! Shawna: WHERE ARE YOU????????
Has anyone heard from Alice? I am worried about her, ALICE, if you read this post and tell us if you are okay. How is Luke??
Radonna
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Saturday, May 20, 2000 at 13:31:30
Comments:Becky: When was Kelly born? My baby Jonathan was born September 15, 99. Thank you for liking my post but,Kaden deserves all the credit, He is the comedian in this house!!!
Name: Becky
Web Site:http://
Date: Saturday, May 20, 2000 at 13:28:17
Comments:
Radonna - LOLOLOLOLOLOLOLOL !!! That was hysterical!!!!!!!
Name: Becky
Web Site:http://
Date: Saturday, May 20, 2000 at 13:28:11
Comments:
Radonna - LOLOLOLOLOLOLOLOL !!! That was hysterical!!!!!!!
Name: BeckyKelly's mom
Web Site:http://
Date: Saturday, May 20, 2000 at 13:25:12
Comments:
Shawna - I was told that yes, I could give my son 5 mg of Ritalin when he got home, and If he has lots of homework, or a big test (ha! Haven't seen one of those this year in 7th GRADE!!! And I do mean not one!). So far I've only had to med him a couple of times. I just figure we have to deal with him good or bad (yyyiiiikkkeesss). Can you send some of the 20 mg my way??? ;-) LOL
Kelly's doing great, guess what she's been doing???!!! We are signing basics with her now, and ya know how babies go thru a time, or at least my others did, where they get kinda shy and put things(fingers, zweibach) up to their foreheads. Well, she's doing that right now, and get this - she's ALSO doing the EXACT sign for daddy - on command !!!!!!!! I'm sure she's maybe not sure what she's doing, but at only 8 months old, I think SHE"S AMAZING!!!! And daddy is SOOOOOOO proud!! He got mad at me when I did the mommy sign and said 'momma'. LOL !!! He's such a jealous turd!!! ;-) I got a call from the 'dietician from hell' 's boss!!! I told her about her advising me to give Kel meat sticks and where she's at in eating skills, and she said ' thank God you didn't listen to her! ' . What a bonehead that girl was! She needs to have a few kids to be able to tell ME what to feed mine!!! ;-)
Mary from UK , don't leave us!!! :-( And nobody else leave!!!
I luv you all - " why can't we be friends, why can't we be friends, why can't we be friends, why can't we be friends?" I guess you have to know the song, otherwise that looks pretty strange! And I don't have a music note key on my keyboard! LOL
Well, to all of you wunnerful, dedicated Uno Mas Lovers ...Have a SUPER WEEKEND!!!!
(Mmmm Radonna - banana pudding???? What lucky kids = I don't think I've made pudding in a year! :-) )
Bye, but only for now! ~~Becky
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Saturday, May 20, 2000 at 12:54:49
Comments:Cindy: This is for you and THIS TIME it is my kid!!LOLTOP TEN SIGNS THAT KADEN IS MAD AT YOU!
#1. Your make-up is in the toliet.
#2.He hangs onto his teacher with all his might when you pick him up from school.
#3.When you talk to him he rolls his eyes.
#4.He wipes your kisses off.
#5. Your picture is mysteriously missing from his "My Family" book.
#6. He will not ask you for food, insted he puts his bowls in his Dad's hands.
#7. He hasn't ran by and grabbed your hair in an hour or so.
#8. He turns off the TV when you are watching it.
#9. He'll reach for total strangers in Wal-Mart.
#10. When Granny pulls up he gets his bag and stands by the door, if she walks out without taking him all heck breaks loose.
TOP TEN WAYS TO KNOW KADEN LOVES YOU!
#1.He brings you his bowl and spoon.
#2. When picking him up from school he runs for you.
#3.Your picture
re-appears a little wrinked and chewed but whole.
#4.He walked by reguarly and gives your hair a little tug.
#5.When you kiss him he responds with a rasberry.
#6.When Granny shows up he HIDES his bag.
#7. You have an extra shadow while going to the bathroom, the kitchen ect..
#8.He brings you his favorite keys for you to "play with"
#9. He gives you a big hug and licks your cheek growling Mawmmmm Mawmmmm.
#10 He offers you a bite of his food.
Ways to tell Kaden has been up in the middle of the night.
#1 Your house looks like it has been robbed.
#2.The refridgerator door is open.
#3.All the bowls are out of the cabinets and in the floor.
#4.You slide down the hall on some unidentified puddle.
#5. Your child who went to bed with a bath now has matted hair, and looks like he hasn't had a bath in years.
#6.The sun blinds you when you walk in the living room. You notice you have no curtains.
Well That is Kaden, as best as I can explain him!!
Radonna
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Saturday, May 20, 2000 at 12:15:10
Comments:
Cindy: I don't have a daughter.LOL It was a joke!!!LOL LOL I read it later and saw it looked like I was talking about my kid!LOL LOL. I could probley top that with some of Kaden's real antics though!!!!LOL LOL
Name: cindy
Email:scottcindy@jps.net
Web Site:http://www.jps.net/scottcindy
Date: Saturday, May 20, 2000 at 11:57:24
Comments:Radonna!
GROODEE!!!!
But OOHH sooo funny!! she really gotcha didn't she!!!
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Saturday, May 20, 2000 at 11:46:28
Comments:SHAWNAAAAA OH SHAWNAAA WHERE ARE YOU?I have a joke for you!
As I was trying to pack for vacation, my 3-year-old daughter
was having a wonderful time playing on the bed. At one point,
she said, "Mom, look at this," and stuck out two of her fingers.
Trying to keep her entertained, I reached out and stuck her
fingers in my mouth and said, "Mommy gonna eat your fingers!"
pretending to eat them before I rushed out of the room again.
When I returned, my daughter was standing on the bed staring
at her fingers with a devastated look on her face.
I said, "What's wrong, Honey?"
"Mommy, where's my booger?"
Love Ya,
Radonna
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Saturday, May 20, 2000 at 11:09:41
Comments:RO: :P
Once again thank you for the help.Heather: I live in Tennessee. I have been to Utah though. I tell you once you go into Kansas it starts looking like a different world.My absolute favorite place on earth is New Orleans!
I have lived in Texas for a month and couldn't take it no more.
I am just babbling now,
My boys are feeling alot better. I knew Kaden was feeling good when I heard noises about 4 am and I went to the kitchen and there he was a huge bowl of bananna pudding nearly gone!
He is playing in the cabinets now.(looking for food) I have tied the refridgerator closed. Usuallt I don't mind how much he eats because he is so small, but I have some Cherry Cheesecakes for the church Bake Sale that i don't want him getting.
Well I will be on pretty much all day if you need me.
Ro: You know I am knew and I haven't heard to much about Teddy!
Later Guys
Radonna
Name: Jackie/Emily'smom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Saturday, May 20, 2000 at 10:58:02
Comments:
Cindy.....loved your post. Hope Kaylee enjoys Pooja's recital...and it is healthy to eat vegetarian (like I'm not cooking 6 steaks for this prom dinner LOL)
Speaking of India, we were supposed to go to a wedding of a friends daughter this weekend. She is Catholic and from Peru originally but grew up here. She is marrying a fellow medical student from India in a traditional Hindu ceremony today followed by a non-traditional traditonal service (her Mom's words) tomorrow in the Botanical Gardens...it will be a Universalist(?) Church service. The grooms family flew the bride to be to India last month and outfitted her in traditional Indian wedding garb. She said her red velvet skirt is sooo heavy she can hardly walk. She loves her bangle bracelets and told her parents to beware that her fiance will look like Aladdin. Last weekend we went to a wedding of the daughter of a Jewish physician here and the son of a minister of a large Southern Baptist church in the South! I think having a child with a disability has opened our eyes up to a lot of things and created a real awareness and appreciation of diversity. We live in a pretty red-neck and conservative community so I am some what of an oddity, I guess.
I realize this is weekend and time to party!!!!!!!!! No more deep thoughts LOL
Ro....find out if that blond fishes hair color stays in and let me know
Jackie
Name: Lenore
Email:lenore@pe.net
Web Site:http://
Date: Saturday, May 20, 2000 at 10:42:20
Comments:Hi Ro and Cindy,
It's nice to meet you too! Yes, Casey is quite a cutie. I have only sons so there is no competion here for Casey's affections. But as his aunt, it sure would be fun to play match maker some day. Right now I think he only has eyes for mom, isn't it cute how our boys think they can marry their mothers. Oh, the sweetness of their unconditional love! I still have one son young enough to feel that way.
Lenore
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Saturday, May 20, 2000 at 10:26:15
Comments:Man did I forget????????????????
Yes he made it:)
Is PRESENTLY (with choirboys:)screaming to go PARTY:)
Yes I have to go:(
So keep the peace and be joyful cause when I come
back I need to see the sunshine it is raining cats and dogs
and FROGS here:)
Remind me later and I will tell ya about the frog:)LOL
Love Ro
Name: Cindy again
Web Site:http://
Date: Saturday, May 20, 2000 at 10:24:52
Comments:Jackie- Can't wait for the pictures!!!! Hope it's a great time for all..and yes the turtle thing applies here-but not because Kaylee is sllooowww, just because she's not as committed to a frantic schedule as I am!! haha I try not to pray for patience, because then they say you get lots of time to build that character quality!....
Name: Cindy
Email:scottcindy@jps.net
Web Site:http://
Date: Saturday, May 20, 2000 at 10:21:44
Comments:thanks RO!:p
Kaylee and Emma and Scott and I are going to watch our friend Pooja (who has DS and is 6) in her first ballet recital tonight. We are all excited, and her family is coming for dinner afterwords to our house. They are from India, and are vegetarians (sorry Jackie-will not be making the ulitimate bacon cheeseburger tonight!!!)So anyways, I'm a bit nervous to say the least. Cooking for vegetarians...well we're just having homemade pizza with veggies on top and salad. Pray for Pooja to do a great job! She is such a cutie!! Maybe I'll get the three girls in here for a computer picture after dinner!
Name: Jackie/Emily D's mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Saturday, May 20, 2000 at 10:18:10
Comments:Mornin'
Her Royal Highness is not even out of bed yet....guess we want to make sure there are no eye bags for the Prom. It's a sunny day so far and CNN has all the red on the weather map in the far Eastern side of Texas.
Well, she made the cake last nite......sort of. Emily didn't want any help which should have been my first clue. I have never been able to get her very interested in cooking (and she is in foods at ENMU??!!??) I finally got called in to help when the mixer got screwed up. The mix was quite stiff. I noticed a missing egg on the counter so we added that and then we decided it probably needed a tad more liquid (Oil or H20????). I decided on water....healthier. So we just doctored it up a bit and actually got 2 layers that popped right out of the pans....a bit bouncy but hey that will make it easier to ice this AM. LOL
The limo comes for Emily about 6:30 so if it is now about 10 we should start soon. Along with genes for bowling and loud music, I'm sure there must be a gene for "turtleism" on the 21 chromosome LOL......can anyone relate to that? Remember MY book is going to be titled Hurry Up and Wait.
Ro.....will you post a pic of the 400 lb grouper....can't even begin to imagine. How is Teddy's visit going? You did say he was coming to your home this week, didn't you? Your posts are so much fun to try to figure out....Like reading Alice in Wonderland LOL
May everyone's Down Syndrome be UP for the weekend :)
Jackie
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Saturday, May 20, 2000 at 10:08:26
Comments:Heather this is a RAzzzzzzzzBERRY
:p
so wipe your screen off.LOL
Name: Teacher.... Teacher HELP:)
Web Site:http://
Date: Saturday, May 20, 2000 at 09:57:44
Comments:Help on way Cindy:)
Check your e-mail:)
Ro
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Saturday, May 20, 2000 at 09:55:34
Comments:Hey I got mail this morning and just busted at the seams:)
IF ANYONE SEES A FISH IN THE GULF WITH HAIR
(number 10 Scandinavian lightest Blond) PLEASE LET
ME KNOW. LOL
Love ya guys;)
Ro
Name: HeatherF
Email:flanagan@mail.burgoyne.com
Name:
Date: Saturday, May 20, 2000 at 09:54:13
Comments:
Ro - I don't understand the symbol :p ??Radonna - I live in Utah. Where are you at?
Allisa - Nicholas is having a tonsil/adenoidectomy. He had open heart surgery at age five months. I hope all goes well for Erin, it sure was a scary thing for me to see my son go through. I'd love to talk with you about it if you'd like!
Name: Ro
Web Site:http://
Date: Saturday, May 20, 2000 at 09:43:51
Comments: :p
p.s. anyone care to join me:)LOL
Name: allisa
Email:allisa0@aol.com
Web Site:http://
Date: Saturday, May 20, 2000 at 00:48:59
Comments:Hi everyoneHeather, my little Erin is going in for surgery just 2 day after Nicholas ! She is 3 months old and has Tetralogy of Fallot and will require open heart surgery, what is Nicholas having ?.... I am sure you already said, but Iam sorry I have forgotten.
Judi, I would love to hear more about your boys !! Did you know that you were having twins when you were pregnant and did you know they had DS......again, you have probably already given this info....sorry !!
AiLay, how is Shuxin doing ? I am sure you will not even have time to read this post, but if you do have a moment let us know how you are all holding up.
Have a good weekend.
Allisa
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Saturday, May 20, 2000 at 00:18:54
Comments:Anyone with Yahoo messeger My nickname is Phallycee.
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Saturday, May 20, 2000 at 00:10:56
Comments:Hello Susan
Isn't nice to write BIG!!
Once again Thank you Ro!
MaryL: WAY TO GO PATRICK! Kaden needs to take some tips from you! Kaden always seems to "forget" whatever skills he has learned whenever he is evaluated! He has been feeding himself for a while and he JUST now started doing it at school. His teacher Ms. Fanny walked off during lunch and Kaden picked up the spoon and started feeding himself! They were so suprised!(I had been telling him that he fed himself all year, but you know how teachers sometimes are if they don't see it, we are exagerating) At 6 months old Kaden only weighed 6 1/2 pounds. He had casts on for his club feet and he would swing his legs and flip his body over.
Does anyone here have experiance with Club Feet? At birth they were the most scary part and now except the scar there is no way to tell he ever had them. I tell you that it was the most BEAUTIFUL site I ever saw when the casts were cut off his legs after his surgery. He had been in casts so many times with no results that I just didn't expect them to be so PERFECT!
Paula. I can't wait to see those pictures!
Sherri/Jared's Mom: I loved that article A nice DS story.
Diana: When is the next riding lesson for your little cowboy? I hate that he didn't like the horses.
Becky: Are you from Texas to? I noticed the BuckarooBeck. I guess because I am from Tennessee that I should call myself Hickabilly Radonna but it just doesn't have the same ring to it.How is Kelly? I know how you feel about how just watching your kids sleep peaceful makes you have that content, everything is Okay with the world feeling.
Denise:) How are things your way? Is your pain meds working?
BrendaH: How is WILD WONDEFUL WVA today?
Jackie:Well the recipe sounded so yummy. Pizza burgers. Pat out two thin patties of hamburger meat and on top of the first put peporoni mozzerela cheese, mushrooms anything you like on pizza and then place the 2nd patty on top and pinch the edges down to make one patty, then fry and serve with marinara sauce. Well I TRIED to make it and it all fell apart and I ended up making pizza spagehti cassrole insted(I invented that tonight)My husband was impressed by my cooking skills and to think it was all an accident.I can't wait to hear about Emily's prom and to see the pictures. When do you think you will get them posted?
Susan: HELLO? Hope you have a great time at Funscapes tomorrow! Make sure you post when you get back! I know you will It is as hard for you to stay away from Uno as it is for me. Can't wait for reports on Emily's game on Sunday!
Shawna. Are you pulling your hair out? Do you feel like your the one that is grounded? anyway How is Michael today?
Lorena: How are you today and how is Clark?
Shawna: Have I already said that I loved the Forest Gump in heaven? As soon as I get some good jokes I will post them. All I have been getting are recycled ones. I sent New Proverbs to my whole family and they laughed their butts off.
Andrea: Haven't heard from you in a while! How is Sir Andrew and Lady Kendall?
Beth and Sara. I don't think that I ever "met" you before. I hope that we see more of you both on the board. I am Radonna Mom to Kaden(6/ds) and Jonathan(8months)
Does anyone keep in touch with Adrienne. I wonder how Russell is and how they are doing I sure wish that she would get a new monitor soon.
Ro: at least someone gets to PARTY! I probley won't even get to church this week. Uno is my party! I come here to relax and cheer up!
I want to be the first post of the day so I need to post it now.
I have No idea how long this is.
I have just been typing away, I know that I missed alot of people, but if you don't post then I have so many things to remember I forget!
Pam:Thank you for your help yesterday. My boys are doing 100% better and the doctor said almost exactly what you said.
Heather: Where did you say you lived? All I remember is near a very tempting zoo!!
Well guys I had better close for now.
Love you all!!!!!
Radonna
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Friday, May 19, 2000 at 23:17:46
Comments: RO:
Thanks! I wish you could have seen me struggling to do that!!! I'll try to use this new skill sparingly. Have a great time at the birthday parties!
I hope that everyone has a wonderful weekend. Emily and I are going to Knoxville tomorrow AM to meet a family that I met here. I am really excited about it!! I treasure the friendships I am making here and I want to do anything possible to help Uno Mas continue to be a place of support and caring. I have found so many sweet spirited parents here and I look forward to reading what is going on in your lives. Depending on what is going on in my life on any given day, I may read every single word of every post and address concerns appropriately and with the attention they deserve......or I may be so swamped that I scan the message board quickly and hope to get back to everyone later. My motives are good and I trust that is true for all of you too.
Hugs to each of you from Emily and Susan!!!
Name: Ro
Web Site:http://
Date: Friday, May 19, 2000 at 23:10:49
Comments:LOOK at the size of those letters:)LOL
looks like it works Susan
Name: Ro
Web Site:http://
Date: Friday, May 19, 2000 at 23:09:42
Comments:Well Finally someone to talk to besides MYSELF:)LOL
Susan what is new in your neck of the woods?????????????
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Friday, May 19, 2000 at 23:00:54
Comments: HI FRIENDS!!!
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Friday, May 19, 2000 at 22:42:27
Comments:Hey I am going to be tired:)
Tomorrow we have 2 parties to attend:)
One is my sister and she will be 15 but ho hum we have
that every year:)LOL
When she reaches 29 she wont want anymore will she?:)LOL
The second party we have is for GORDY who is also 15:)
This one will be fun:)
What is the difference???????????????
GORDY is a 400lb. GROUPER(fish):)
The sea center here is giving the kids an up close
and personal PARTY for GORDO and we were invited. LOL
And I was told I COULDN"T REFUSE:)LOL
Lets hope we are not having a pool party:)LOL
That fish looks big enough to eat me and the
kids for a snack and leave looking for more:)LOL
Ro
So BEWARE of the floating fish with a smile
on his face:)LOL
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Friday, May 19, 2000 at 19:00:10
Comments:Jackie, thank you for cheering me up
I hope Emily's body slip stays up too. And I cannot wait for the updates tomorrow. I found the best recipe for cheeseburgers yet! I am going to make them tonight and then if they are as good as they sound I will post the recipe. I don't want to post it and they be GROSS!
I have a CUTE to me story about Kaden.
He wants to be wherever I am constanly. We have the biggest problem getting him to sleep in his own bed and most of the time he wins. Well today Kaden and I wanted to rest and Jonathan on the other hand did NOT! He kept rolling over and patting Kaden. Kaden sat up and growled a little to let Jonathan know he wasn't happy about the situation and layed back down, Jonathan undeterred by Kaden's complaints patted away. Kaden then sat up in the bed and grabbed his pillow got off my bed and went to his room and layed down. I don't know why I was so impressed by that It was just really cute! I hope that he remembers that tonight and SLEEPS IN HIS ROOM!
Radonna
Name: Jackie EmilyD's Mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Friday, May 19, 2000 at 18:32:33
Comments:WOW...3 posts in a row...I'm takin" over the Board LOL
Seriously.....does it help to know that with a 20 year old daughter with Down Syndrome my most serious concern of the moment is whether or not her body slip will stay Up???????? LOL LOL LOL LOL LOL
Jackie
Name: jackie/Emily D's mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Friday, May 19, 2000 at 18:15:30
Comments:Hi
Mary L.....congrats to little ole Patrick the master test taker!!!!!! That is soooo great. Emily almost never "performed" on cue. She sat thru almost 2 years of speech development classes and never said ONE word. She would come home and get into the bathtub with a bizillion Barbies and one Ken and talk her little heart away. At 4 and 5 she often had almost completely normal and fluent speech.......until I would try to butt in. To this day, (age 20) some of her best speech and truly amazing thoughts are best expressed when she is talking to herself......as I have stated before she is often her own best friend!
Don't know if I mentioned or not but the pre-prom dinner is here tomorrow nite. We shopped today and Emily wants to show off her culinary skills from ENMU (??????) by making dessert...a cake that she plans to decorate with black and gold high school colors. For starters we decided chips and dip might be too messy so I talked her into crab spread on crackers. She insisted that what everyone would REALLY like is squeeze cheese on Ritz Crackers....so we'll have some of that too LOL. Steak, baked potatoes, green beans, and rolls will follow and if last year was any clue......most of it will go to the dog (opps!!...don't have a dog...maybe I should go get one). Still trying to wish away the threatened rain......need those pics outside so I can post them.
Now a bit of Really Good News......d-duh d-duh (that is a trumpet sound )...Emily's grades from ENMU came today ...allB's and an A...quite an improvement over last semester. This summer will be a laid back semester for her. They will only do their practicums in the AM with Fridays free and in the afternoons will have a 6 week first aide and CPR course and some kind of art course on Fridays if they want to take it. There is a lovely pool near by on Campus so we are hoping Emily will take advantage of the fun way to exercise. Well, I'll fill you in on the Elvis/Emily, Tate/Carey, Kenny (the walking hormone)/Tracy saga as it unfolds tomorrow. Personally, my only worry is that the body slip stays up!!!!!!
TGIF
Jackie
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Friday, May 19, 2000 at 12:51:24
Comments:Hello All: I just don't have the energy to read through the posts yet. My boys are doing a little better this moring. Kaden is the worse out of the two. Jonathan woke up this morning with 2 new teeth poked through his gums. So I think maybe that is what caused his fever. Kaden is in pretty bad shape, but the Doctor and I both feel like that I can handle it at home, since I have the nebulizer and I feel more comfortable with him home. I have to take him to the hospital if his fever shoots up and if he starts vomiting. they gave me phenergan suppositories and new antibiotics for both boys and drops for ears, albuetrol and pedi-pred. Since both boys weigh the same I don't have to worry about giving different amounts it is the same for both. No matter how many times I have been through this it just doesn't get easier. Thank you all for the e-mails and for your thoughts and prayers.
I will get through the posts when I can and make my LONG post when my little snotty nosed, angels go to sleep.
Radonna
Name: HeatherF
Email:flanagan@mail.burgoyne.com
Name:
Date: Friday, May 19, 2000 at 12:50:18
Comments:
Hi all - Scriptures always bring me back to God when I'm doing less than I should, what a blessing they are in my life! Here are a few of my favorites:(Matt. 7:1) "Judge not, that ye be not judged."
(St John 8:7)"....He that is without sin among you, let him first cast a stone at her."
Aren't these scriptures awesome? I especially need these today with my hubby!!
Allisa - Nicholas hasn't had surgery yet, it is scheduled for May 31. I'm not sure who just had surgery, thanks so much for asking about us though! I'll probably post up asking for advice when surgery happens!!!
Name: Beth
Web Site:http://
Date: Friday, May 19, 2000 at 11:36:11
Comments:
Hi everyone. I don't post much either, just like to read and lurk. Sara, I couldn't find Nathaniel's pictures in the gallery. Which month is he in? Do you mind if I ask why he has to have a trach and how long he has had it? September seems like a long time away. Can he eat regular food with a trach in? Sorry to sound ignorant. Just very curious. Welcome back.
Name: Judi
Email:judig2@yahoo.com
Web Site:http://
Date: Friday, May 19, 2000 at 10:21:12
Comments:Shawna: LOL ! When I read your post about Robbie being "grounded" to you made me remember a story that was in the news a few years ago. A young girl was constantly truant, sneaking out at night, etc. Her truancy landed her and her parents before a local judge who imposed a sentance that the daughter and the mother be CHAINED TOGETHER!!! Apparently the judge felt like the mom wasn't (unlike you!) taking enuf responsibility for her daughter's whereabouts. The mom had to go to school with her, etc. The only time they could be unchained was when they used the restroom or bathed. Apparently it had some sort of "home monitoring" device on it as well. Sure hope you don't have to resort to that!!!
Radonna: Sorry to hear about the kiddos. Hope they're better soon!
Judi
Name: Shawna
Email:lawmanw@telusplanet.net
Web Site:http://
Date: Friday, May 19, 2000 at 10:06:39
Comments:
BECKY:
Can't you just give your son one more dose of his meds after school? Robbie is on his at 8,12, and 4, so he's good until 8 PM. If necessary, I'd give him some then too!! LOL He is on Ritalin - 20 mg 3 times a day! I say, give him the meds, so at least he'll be a little less catankerous in the evenings. It makes a noticable difference with Robbie. Apparently Rob hasn't been taking his meds this last week!!I'll be thinking about you.
YES, I CAN TOTALLY AND ABSOLUTELY RELATE TO HOW YOU'RE FEELING!
I hope the counselling comes through soon. Ours is covered by Alberta Health Care, so at least the cost isn't a worry for us. Sorry that it is for you!
God Bless. For the days when it's really, really bad, maybe Psalm 40 would help! I especially love the first five verses!
Hope you have a wonderful weekend! My kids get Friday and Monday off!
Shawna
Name: Judi
Email:judig2@yahoo.com
Web Site:http://
Date: Friday, May 19, 2000 at 10:06:15
Comments:Ok, here's Jackie's letter I mentioned in the last post..
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
To:
CC:
Subject: community funding
Date: Thu, 18 May 2000 09:56:52 -0500
Vijay Ganjua
I realize you will be getting a lot of mail about the recent MHMR
decision
to ask for more funding for institutional settings. PLEASE LISTEN TO
MY
STORY..........IT IS A BIT DIFFERENT
My daughter, Emily, is a 20 year old college student who has Down
Syndrome.
She is attending a special services program at Eastern New Mexico
University/Roswell where she lives in a dorm and attends classes in
the
vocational area of her choice as well as academic classes in
Independent
Living, Job Skills, and Conflict Resolution. She is attending this
program
along with 60 other students with disabilities in New Mexico because
there
is nothing like it (with an independent living component) in Texas.
She is doing very well with her INDEPENDENT LIVING...learning to ride
the
city bus and determine the course of her own day. Every time she
comes
home, she wants to know if we can go looking for an apartment where
she
fully expects to live when she graduates from her year at ENMU.
Unfortunately, I don't know if this will be happening anytime soon for
her.
She is very low on the large HCS list here and only 8-10 per year
get
on the program. Currently, food service is her area of choice and
while
she hopes to get a 30-40 hr/wk job, she will be hard pressed to be
able to
afford an apartment and will most certainly need some supports to live
on
her own successfully.
I went through the early days of Texas and the rest of the US's
deinstitutionilazation and saw so many success stories.....know
personally
several families here who swore it would never work and are soooooo
pleased
to have their family members back home. I can truly tell you that
among
all the families I know with developmentally delayed family members
every
one of them would be apalled at the thought of institutionalization.
Most
of their kids are like Emily......picturing themselves in apartment
settings like their non-disabled peers. I guess I'm really naive,,,,I
thought the institutions that were left were just waiting for their
residents to pass away and then they would all dry up and blow away.
Even
my friends with severely involved multiply-handicapped family members
have
definitely preferred a home-like family setting when they have decided
to
seek help and support.
Do you think we would be spending this money on Emily if we didn't
truly
believe that she had the right to the same freedom and happiness we
enjoy
by living and working in our community in Amarillo?????? 17 years ago
when
Emily was only 3 I traveled to Austin along with a 40 year old woman
from
Amarillo who also had Down Syndrome and we spent a very hot day
sitting on
the capitol steps and then speaking before the legislature on behalf
of
Community Services and Housing for people with Mental Retardation.
Today
my message for EMILY remains very much the same. We can buy her an
education but we can't personally buy her a Community. I implore
each of
"ye-who-decide-where-the - moneys-go " to ask each other how your own
non-disabled children would feel if you told them they would be
spending
the rest of their life in Room 25 at the local YMCA.
I wish you could visit (and you are certainly most welcome) this
Saturday
and see 6 beautiful young adults arrive at my home for a very typical
pre-prom dinner. All 6 have significant developmental
disabilities........but you'll have to look long and hard to find
it...they
are products of inclusion and caring families who have fought long and
hard
to dispel the myths of Mental Retardation . They are more LIKE your
children than they are different. They plan to party, party, party!
Please don't stop the carnival for them.
In conclusion, I would like to make a request....if you direct these
funds
away from the community, I would like someone to come here and
personally
tell Emily why she will probably be spending the rest of her life at
home
in her room...I wouldn't have the heart.
I trust you will read this and take it into careful consideration.
Sincerely,
Jackie
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Ok, now here's my pitiful attempt .....
Dear Mr. Ganju:
I am the Mother of Identical twin boys with Down
syndrome.
While I realize that not so many years ago, the only
choices available to families of mentally retarded
children were to send them to institutions, in the
year 2000, due to advances made in medicine,
therapy, early intervention, teaching, and public
awareness of disabilities, I now have higher
aspirations and goals for my two sons.
It is now possible that my sons can attend college,
hold meaningful full-time employment, possibly drive
and own a car, and live with or without minimal
assistance in our community. These are the same
hopes and dreams that many other families of children
with down sydrome share. Many of these families are
making it a reality for their children. Clearly, this
shows a trend away from institutionalization in the
future. Instead of spending millions of dollars to
continue encouraging the institutionalizaton of our
citizens with mental retardation, please consider
investing that money instead on the 13,000 Texas
families who are or will be waiting for years for
services to help keep our children in the community.
Many of them in return will become tax paying
responsible citizens themselves.
Thank you for allowing me to express my opinion.
Sincerely,
Judi ....
Name: Shawna
Email:lawmanw@telusplanet.net
Web Site:http://
Date: Friday, May 19, 2000 at 10:01:02
Comments:
Name: Judi
Email:judig2@yahoo.com
Web Site:http://
Date: Friday, May 19, 2000 at 09:59:39
Comments:OK. Here's a copy of the E:mail I got from our local support group (Dallas Down Syndrome Guild). This will give you a little insight as to what the state is considering for "long term" planning/budgeting purposes.
After this message, I'll post Jackie's awesome letter in response (and mine too, even tho it's not nearly as eloquent!).
As much as all of you Non-Texans wish to have your voices heard regarding this issue, I'm not sure how much weight it will hold up with our State Legislators. I think for now it's important that State residents get their voices heard to these people.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Dear DSG Guild members,
The members of the DSG Board requested at our
meeting Saturday that I send this broadcast email
to alert you of a need to act. We would like each
of you to send an email to register your concern
about the direction MHMR may be taking with
funding of services for people with mental
retardtion.
Here is the background:
On May 12, I received a May 3, 2000 draft of a
Report on State Mental Retardation Facilities.
State Senate Bill 358 required MHMR to have a long
range plan covering at least the next 6 years of
services and policies for state operated
institutions for people with MR.
Their(MHMR) own charts in the report showed a
remarkable decline of the use of residential
institutions in Texas and the U.S. as well as an
equally remarkable INCREASE in numbers of people
with mental retardtion choosing to remain in the
community. [Re---Charts #1 and #3. To give you a
feel for the charts, there were around 10,000
residents in institutions in Texas in 1977 and
around 5500 in 1998.]
Instead of expecting this trend to continue they
have concluded that the need for residential
facilities will INCREASE remarkably over the next
6 years and are asking for 3 times the funding
for the next 6 years than has been used over the
last six years. Instead of an average of $20
million a year, they are asking for an average of
$60 million per year.
All this is in light of the 13,000 people ON THE
WAITING LIST for Texas' MHMR's Home and Community
Based Services--that is, services which allow a
person with mental retardation to remain at home
with his or her family with support or live
independently in the community with
support--rather than be institutionalized.
The trend across the country is to do away with
these large institutions all together. (There are
of course many people who have lived in these
places all their lives and their needs should be
met and provided for in a sensitive and caring
way.) Instead the report seems to be offering
the legislature the option of "institution" or
"more institution" and ignoring the needs of the
13,000 of us who choose to keep our family member
at home with us or in the community. As Drew Dixon
of the Arc-Dallas said, "What they are saying is
in the same league as someone asking us: when do
we beat our wives more--before or after therapy"
when in fact we don't beat our wives at all.
So I am asking you to send an email to the address
below. Say something like this but please put it
in your own words drawing from the information
above:
"I am a parent of a child with Down syndrome. I
realize in past generations families have felt
obligated to send their children with disabilities
to institutions. That is not the case with anyone
I know or even know about and that has not been
the case with our child--(then tell your story of
your child and your plans for him.)
The trend is clearly away from
institutionalization. Instead of spending
millions of dollars to continue encouraging the
institutionalizaton of our citizens with mental
retardation, please consider investing that money
instead on the 13,000 of us who are waiting for
years for services to help keep our children in
the community. Many of them in return will become
tax paying responsible citizens
themselves.
Thank you for your consideration on this subject."
Send an email to Vijay.ganju@mhmr.tx.st.us
or mail it to
Vijay Ganjua
Director, Planning Research and Evaluation
TDMHMR
P.O. Box 12668
Austin, TX 78711-2668
THIS NEEDS TO BE IN HIS HANDS BEFORE 5:00P.M. THIS
FRIDAY MAY 19.
Then be sure to include your full name and real
address to show you live in Texas.
Even if your child is young now, this will be
setting the stage for services down the road, so
it will affect you. If you need further details
email or call me and I'll read you
as much of this document as you need.
Sincerely,
Nancy Lambert Davenport
DSG PAST President
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Because the waiting list is so long to get funding for Community and Home Based services, I've actually had the boys signed up since they were 1!! That way, maybe when they are 18 or so, they may get to the top of the list!
Judi
Name: Shawna
Email:lawmanw@telusplanet.net
Web Site:http://
Date: Friday, May 19, 2000 at 09:57:42
Comments:
What a morning!So much for my "first" post!
Lawrence got home last night, so I may not be around much this weekend! Boo hoo. If I can just figure out how to take the computer on the boat!! LOL
Thanks for the support about dealing with Robbie! His counsellor is quite sure he has ADD and FAE, and wants him to be tested by a neurologist to make sure there is no physical damage to his brain. She said he has an excellent set of values, and attributes it to our parenting! She also says she thinks most of his trouble is through impulsivity, not rebellion! Onward and upward! It's just tough when we're in the middle of it!! Thanks again for all your support!
Sara, hi, girl! How are things in Calgary? Didn't you just love the snow? Or did you not get any? It's nice to see you here. I will actually call you one day. If you want, I can messenger you my phone number, if you have that long-distance deal. I hope that Nathaniel and Michael are doing well.
Princess Susan and Princess Alissa, welcome from the Queen of Posting! LOL Keep it up, I think I will need someone to cover for me this weekend! LOL
Radonna, I sure hope the boys are feeling better really soon! Miss you already and I'm not even gone yet! LOL
Jackie, I'm glad you found some shoes for Emily. I'm sure she will look just beautiful.
Michelle Mc, I still say that you are an awesome lady! keep up the good work!
To everybody else, I'm SO SORRY that I forgot you! I didn't take notes , because I was supposed to just say "hi and bye"!
I was going to make a list of everyone who's name I remembered, but when I finally checke my cheat sheet, there were too many that I'd forgotten! I've got a fairly long list of people I've gotten to know!
Have a great weekend, everybody. I hope that next time, I can do a "real" post! LOL
I salute you!
Shawna, Queen of Posting.
Name: Jackie
Email:grannyjj@hotmail.com
Web Site:http://
Date: Friday, May 19, 2000 at 09:36:47
Comments:Hey all you hairdressers out there.........just saw the latest in hair fashions on the Later Today Show.......Forking!!!!!!!!!!! Apparently you wind plastic forks in the crown of your hair, spray them, and then take them out and just ruff up the hair. The model's hair looked like mine does when I first get up in the AM LOL
Jackie
Name: Becky
Email:buckaroobeck@postnet.com
Web Site:http://
Date: Friday, May 19, 2000 at 09:30:19
Comments:
Jackie - just had to say...
a big LOL !!!!!!
Shawna - I feel for you, and for me ;-)!!! I think we've touched on this before - my (almost) 13 year old has ADD also. YUK!! It's the pitts!!! I'm actually getting pretty concerned as to what the next few years have in store for us as well. Tony wants so much to show his 'individuality', and wants to show the world that HE makes HIS OWN decisions. He is so darn bullheaded that I feel sorry for him, he's got a very tough road ahead! As do we, I'm sure :-[ . Did you say before that he's on Ritalin??? We just switched from that to Dexedrine. I have such mixed feelings over this medication thing, but if anyone has gone thru what we've been going thru for the past 5 years, we're ready to try anything! He's ok on it all day, but around 4:30 or 5:00 in the afternoon he turns into a MONSTER! It's a big physical letdown for him, I suppose. We've had to put a hold (very briefly, I assure you) on therapy - our insurance company is declining to pay the claims. So hopefully I can get it straightened out very quickly! Anyways, my prayers are with you - cause it's TOUGH!
Well, ladies (and gents) - have a wonderful day!!! One week till school's out and the chaos begins, so I'm going to enjoy for another week of only half of the household population, and in order to do that I have to GET OFF THIS PC!!! :-)
Becky
P.S. Radonna - update us on your kids!! Hope they are doing somersaults and laughing and eating lots of popsicles today ;-) !
Name: Shawna
Email:lawmanw@telusplanet.net
Web Site:http://
Date: Friday, May 19, 2000 at 09:28:56
Comments:
Just me again!Sorry about that, I hit "enter" by accident. I hope my last post didn't get eaten by the computer! I'd better go check!
Shawna
Name: sara
Web Site:http://
Date: Friday, May 19, 2000 at 08:29:01
Comments:
Oppsss sorry about the double entry, not sure what happened there
Name: Sara
Web Site:http://
Date: Friday, May 19, 2000 at 08:28:07
Comments:Hiya Everyone. I am new here, well kinda. I was on when Nathaniel was first born ( March last year ) guess what ? I'm baaaaaaaack ;) Nathaniel is 14.5 months now and doing so well :) He is just the light of my life! He has a trach but that may be coming out in Aug/sept :) :) That will be so great cuz then I get to hear his voice!! His photos are in the album here but I think it might be time to update them :) Well I just wanted to say hi and hope everyone is doing well.
Sara
Name: Sara
Web Site:http://
Date: Friday, May 19, 2000 at 08:27:41
Comments:Hiya Everyone. I am new here, well kinda. I was on when Nathaniel was first born ( March last year ) guess what ? I'm baaaaaaaack ;) Nathaniel is 14.5 months now and doing so well :) He is just the light of my life! He has a trach but that may be coming out in Aug/sept :) :) That will be so great cuz then I get to hear his voice!! His photos are in the album here but I think it might be time to update them :) Well I just wanted to say hi and hope everyone is doing well.
Sara
Name: Denise
Email:DZeke@aol.com
Web Site:http://
Date: Friday, May 19, 2000 at 07:54:12
Comments:Shawna-I am glad things seem to be looking up with Robbie again. I abviously have no advice cause I don't have any teenagers. It's great that you guys can still talk to each other. I have a sister with a 15 year old daughter who is going through the exact same problems as Robbie so I'll pass on your solutions to her. I hope yopu can keep the lines of communication open with him. Thank you for my title of princess poster. I definately feel honored. Not going to happen today though.
Radonna- How are the boys doing today? Don't you love medical people who question your every move. We know our kids best. I once had an experience were I took stevie to the dr. everyday for 4 days then I let them convince he was okay, the next day he went into the hospital for 5 days. (I am not trying to scare you, just an experience I had.) It must be tough trying to deal with two at once. You have such a great attitude though, you inspire me with your spirit. I love Kaden's communication guide, you are too funny sometimes.
Susan-I'm glad Emily had a good time at the zoo. What an inspiring graduation story too. Gives me something to dream about again. Is this the weekend your going to meet the 10 yr. old friend for Emily? Let us know how it goes. Thanks for the help in posting the pictures too. I'll have them in the mail tomorrow.
Trene-I'm sorry to hear that Kellen is sick. Stevie was NG Tube fed for 8 wks as a baby every two hours, I was turning into a zombie. We never had to do the continuous pump feedings. I do have a 19 year old neice though who suffered a TBI at the age of 6. She has a gastric button and has had continuoius night time feeding of 8 hopurs every night and tolerates it quite well and her parents can get some uniterupted sleep. I can't remember I'm sorry. How old is Kellen.
Mary/Jackie-What is the actual law they are trying to pass in Texas. I want Stevie to continue having all he has now and to keep moving forward. What can I do to help?
MichelleMc-I too just want to echo everyone else's sentiments. You have a great site. I love the way you have it setup. I can post as long as I want and I can read all the posts at once. I think it's great you don't require membership. I love the poem your sister gave you. Did she write it. Please don't ever let a few nasty people spoil all you've accomplished. The rest of us truely appreciate what you've done.
Name: Jackie
Email:grannyjj@hotmail.com
Web Site:http://
Date: Friday, May 19, 2000 at 07:46:44
Comments:
Mornin'
Found shoes that will do......sandals that sort of look like her foot is bound up with lots of little black rubber bands...but they fit and are comfortable. As we dragged out of the mall Emily decided she needed to visit Bath and Body. We had quite a discussion (heated) about how one should coordinate the scents....you know, your soap, body splash, talc. should be the same. She wanted Freesia soap, Kiwi body splash, and Lime talc. I told her she would smell like the fruit bowl in the kitchen when all the fruit starts getting mushy bottoms! I also convinced her kiwi was more for shorts and jeans and freesia could go to the prom. At least it is not Tommy Girl...she loves that and it just doesn't smell right on her! I think she got a lifetime supply last yr for graduation. It's hard to stay out of her life, but sometimes her judgment is just not the best.
For those of you in the dark over these posts about Texas....our MHMR is considering (today, I think) putting more monies back into institutions....not directing them into community and home based services. A funny note.......as I was firing off my note to MHMR I decided to use my spell checker.....the first word that was highlighted was institutionalization. My spell checker responded "not in dictionary"!!!!!!!!!! LOL Apparently Microsoft knows something MHMR does not.
Jackie
Name: steff
Email:jefftixx@aol.com
Web Site:http://
Date: Friday, May 19, 2000 at 07:36:31
Comments:Hi everyone!!!!!Well I was going to just lurk around this week but I couldn't help myself.We're in FREEZING Toronto.It's 6 C and I'm such a baby,I guess I have to develop that thick blood.BRRRRRRRR......
Shawna I tried to e-mail you yesterday but it got returned.I'll try later today.
Oh Radonna, I hope the kiddods start feeling better.If I'm ever down your way I'll babysit so you can SLEEP.Are they feeling better today? Cracker,soups(especially salty cambells, are also good for diarehea(bad speller),bananas, white rice.It's funny cause all the foods I can't feed Olivia cause of constipation,are exactly what I feed her when she's got the runs.(YUCK) I can never get her to eat those freezy medicine pops cause of her tactile defensiveness.(hates anything too cold or too hot)Wow we have been soo fortunate this year in regards to health.
Just wanted to say hi to everyone and I'll talk to ya next Wed. Kids are having a blast with their cousins.See ya!!!!
Name: Mary from UK
Email:m.tutty@btinternet.com
Web Site:http://www.spencersite.net
Date: Friday, May 19, 2000 at 05:05:15
Comments: Hi, ALL,
Ro, Jackie, Judi, Andrea, and ALL you other mum from Texas
Bill and I were disgusted when we read your posts about the new law that the state of Texas wants to enforce on DS and other people with "special needs".
If there is ANYTHING Bill and I can do to help you fight against this law, we will be pleased to do so. We feel that ALL us mums of DS and other "special needs" children and adults around the world should stick together and fight this law, because if it is Texas today, what state will it be tomorrow????? and then what country will it be next ?????
If this law is allowed to happen, then we will be thrown back to the (not so long ago dark ages of the 70s and earlier) where our kind of children were locked away in institution's.
So what this means is, us mums of older DS like myself and Pam, and Jackie, and any other of you mums with older DS children whom have all had to fight, and fight hard for the simplest things that the young mums of today receives as a "package" at the birth of their DS child (AND SO THEY SHOULD) will all have been in vain ( this goes for the UK as well)
PLEASE don't let the "dark age's" slowly creep up on all you mums with young DS babies, what we ALL need to do is lobby our DS Associations and ask them to fight against this Texas proposed law, and give support to the Texas mums. Remember it could be your state next, and other country's will follow. It is slowly happening now here in the UK
I am ready for any nasty backlash I may get from this post. But I will turn the other cheek. You all know how I feel against any form of discrimination against our precious children
I have enclosed a copy of an e.mail I received last year, about a person that has been fighting to close ALL institutions.
Date: 4th February 1999
Subject: My friends, You are great!
Dear Friends,
The blessings of all of your faith and belief in the inherent dignity of all human life over the past quarter-century will live on forever. Spencer, you are a blessing, with your indomitable spirit, and your love for life.Spencer your parents are also a blessing, standing with you in spite of the doctors' stupid predictions and their fears of not being "realistic."
As I read your parents' account of your struggles with (mainly) ignorance and discrimination because you have Down syndrome (as well as your real medical issues), I was reminded of the incredible battles I used to fight to preserve the lives of children with disabilities in a "Pediatrics Unit" in the States during the mid-70s. At that time, parents who gave birth to a child with Down syndrome, spina bifida, or any other easily definable difference were routinely advised to put their baby "away to die," as it would ruin their "family life." I fought all of this, closed admissions to this death camp, exposed conditions in the institution, and eventually the place closed.
But, how vividly I remember being with dying ,untreated children in the middle of the night. Holding their fevered hands, singing softly to them, praying just wanting to lift them up and deliver them from this horrible place! maybe they would die. But,they would die smelling fresh air .They would die in a real home . They would die in the presence of a caring adult. The state Police wouldn't allow this.
America is (somewhat) different now. Most children with Down syndrome and other disabilities receive " early intervention" and "family support" services from birth. Most kids with Down syndrome have a chance at being included in their neighbourhood schools. Most adults with Down syndrome are expected to do some form of paid work , and to contribute to their communities.However, we still do have the evil of institutions and "pediatric nursing homes" (I.e.,death camps). We are working hard to eliminate these awful places, but it is a real battle.
Please let me know if you or your family have any plans to visit the United states.We live just outside Washington's Mount vernon estate. Our home often serves as an inn to visiting relatives and friends from around the world , and you would be very welcome to stay here with us while taking in Washington and the local area.
One last note, Spencer : you are not "Down's Syndrome, "you are a young and vibrant man,who has accomplished so very much, who has proven the "experts wrong, who serves as a role model to us all! Never define yourself by your disability label: you share thousands of everyday chromosomal material: so what? This is not your life definition. We are ALL valued children of god ,no matter what our similarities or differences. And you and your family are...GREAT!
Love, Peace, and Happiness,
With love to you all
Mary from UK
Name: MichelleMc
Email:michelle@unomas21.com
Web Site:http://
Date: Friday, May 19, 2000 at 01:18:24
Comments:
Radonna,Hope your night has improved. I can't remember the ages of your kids (I'm sorry!) but I think they are infant/toddler age. Is that right? If so, have the nurses or doctors mentioned Roseola? Luke got it when he was ten months old, Casey got it about 22 months. It was the scariest thing I've ever been through with my kids.
With both kids, I was convinced my baby was dying. It went on for days and d...a...y...s. Extreme temperatures and complete disinterest in food or water. I just watched them get weaker and weaker and was scared to death. I couldn't understand why the doctor was not alarmed... wait? wait for what? Till they lost consciousness? Finally after four (I think) days the baby broke out in a red rash all over, and the fever broke and all was well. I still can't figure out why the doctor didn't tell me that this is what they suspected... but it was a heartwrenching four days... both times!
What does your doctor say? Have they had Roseola yet? I think most babies get it. Maybe doctors don't want to attribute every high temp/lack of appetite to it, for liability reasons. But from my end the syptoms were terrifying and EXTREME ... and suddenly that rash broke out and all was well!
Ann, or anyone else who knows ... is this a common ailment? I'm curious why it isn't more well known?
Michelle
Name: allisa again
Web Site:http://
Date: Friday, May 19, 2000 at 01:12:54
Comments:Okay, so now it is PAST 2 Am..... I had to check out the photo album, I had not seen any of May's pictures yet !! TOO CUTE!! All of them are so cute. Kaylee looks so great as the covergirl for the month, and Ava & Raven, with their little pigtails!! I can't wait until I can put Erin's hair in pigtails !!
Kaden does look different in every picute !!!
I will have my aunt come over and help me post a photo of my sweetie !! Iv'e never put pictures in before. And she is a little sweetie, too. She is 3 months old today !! Or techinally that was yesterday since it is offically now the 19th. She is a little over 7 pounds now has an amazing smile that lights up her whole face and has red hair that sticks straight up !!
okay okay I just had to get in a little bragging of my own and now I am really off to bed.
allisa
Name: Allisa ? Erin's mom
Email:allisa0@aol.com
Web Site:http://
Date: Friday, May 19, 2000 at 00:55:21
Comments:Hello EveryoneHappy Thursday night / Friday morning. It is almost 1:30 AM here and I should be in bed, but needed to check the posts first !!
Lisa.... I,too am a fellow Diet Dr. Pepper drinker. I am addicted to it !! I also suffer migraines ( just a couple a year, luckily, but they are doozies when they do come) hhhmmmm does it have anything to do with all the caffiene in the soda?? hahaha
Susan, I was horrified to read about the gun at your childs school as well !! That is just so scary. I hate guns, I will be the first to say we should get rid of them all, I don't want to start a whole NRA debate, that is a whole different website !! A friend of mine recommends that before letting your child play at anyone's house, you should inquire as to wether or not they have guns in the house. I have never done it yet, as my kids are usually just playing at local neigbors homes, and we are all very close with each other. But as he gets older and wants to play with school friends that I don't know, it will be an issue.
Trene, I am so sorry to hear poor Kellan is sick !! Just know I am thinking of you guys.
To whoever was posting about the syringe in the ball pits..... it really did happen at a Mcdonalds in the next town to us. They shut down the play area and have since disammbled the ball pit, said it was just too hard to monitor. I had heard the "rumors" about syringes before this happened, and they did test that syringe, there was nothing on it that would have harmed anyone. But who the heck knows what else is at the bottom of the ball pits? Obviosly that doesn' t mean never let your kids play anywhere, but you just never know. The world is just too scary a place now-a-days.
I took notes before writing this post, but having trouble reading my handwrititng....was it Heather who's son Nicholas just had surgery? How is he doing ?? How are you holding up??
Shawna, good luck with Robbie, at least you are right on top of the situation and he really needs that,even though right now that is the last thing he WANTS.
Lorena & Sherri, hello .... I hope all is well with you both... I know Jared's eye surgey is coming up soon, right?
Oh I almost forgot......I am SO bummed out that I missed the Book Club on "Expecting Adam" !!!!!! Did anyone here do it?? It was my anniversary and we were out :( Happy about being out, but wanted to do the bookclub.
Pam, I too am sorry to hear about Krystal.... is her picture posted on the photoalbum page? I saw a couple of Krystal's but wasn't sure if it was the same.
Jackie, thanks for all the posts, I wonder all the time what life with Erin will be like as she gets older, and you give me something to look forward to. I am an over-protective parent as it is,,, I can't imagine how hard it must have been when Emily first went away to college.
I think that is all that is going on here. Now it is almost 2 Am and I have a doctor appt. at 8:30 tomorrow so I gotta run. Someone help me.....I am turning into an "internet junkie" !! hahhaha
See you all later !! I do look at the posts all the time, but then run out of time to post myself.... but I am always reading and thinking of you all!!
Allisa
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Thursday, May 18, 2000 at 23:03:50
Comments:I honestly can't remember when I've ever been so tired....emotionally and physically! The zoo was a blast, but it was hot and the zoo is pretty spread out and hilly...so my OLD knees are worn out. Emily's favorite part of the whole trip was riding the camel and brushing the goat's hair. (or is it fur????) Whatever you call it, it amazes me because she has this fear of fur!!! Otherwise, the snakes facinated her most. YUCK!!! We got home at 5pm, desperately needing a shower....and Michael's graduation started at 7. He looked soooo handsome! I was a bit worried because he told me he was planning on doing something "funny" as he walked across the stage to get his diploma. One kid purposely stumbled, fell and got up to lots of laughter. Fortunately, my kid just grinned from ear to ear. (MOM was doing the same, by the way).
I was also touched at graduation because there was a young girl with Down syndrome graduating. I first met her (Allison) when Emily was about a year old. Justin, who was about 4, was having swim lessons and Emily and I were watching. Emily was tired and really hot and had begun to cry non-stop. I took her to a swing (like the kind you have on the porch) thinking she would fall asleep as we swung. (swang?? swinged?? ) Just then someone approached us and I heard a girl say "what's wrong with the baby"?? I thought she meant something about Emily's appearance...you know, the Down syndrome. When I looked up, I saw the sweetest face. It was this same girl who was graduating tonight. She must have been about 13 at that time. We talked for a few minutes and I explained that Em was just tooo hot and tired. She then proceeded to "show off" for me by diving over and over. I really enjoyed her and began to look for her at the pool each time we went. I haven't seen her in years, until she walked across the stage to get her diploma tonight. When her name was called, EVERYONE began cheering and clapping like crazy for her. I watched other students give her "high fives" and she waved at the audience and looked oh so proud!!!!
My head is pounding and I'm too sleepy to make any sense so I'd better close. Hugs to every one! Susan
Name: Shawna
Email:lawmanw@telusplanet.net
Web Site:http://
Date: Thursday, May 18, 2000 at 22:06:02
Comments:
HI EVERYBODY!!Just a quick note to update you on the "Robbie" situation. For the next day or two, my son is "grounded to me". In other words, where I am, he is! I talked to Lawrence and we had a family conference on the phone, and he warned Robbie that if this type of behavior continues, then Robbie will spend the entire summer with him at work!! As well, if he tries this again, he may spend the rest of the school year "grounded to me". Personally, I hope not!! I talked to Robbie and we got a few things settled as to WHY he was just taking off, mainly he felt that he just had to work all day long. But why tell Mom when he's feeling frustrated?? For those who don't know, he does have ADD and has been seeing a counsellor for about a year. Once he's "ungrounded from me" we are going to try a more organized "free time" for him in the evenings, as long as his work is all done first!! I'm hoping that it will work. Thank you all for your care. Jackie, I did get your e-mail. Thanks for the advice.
I think I can prob'ly take a few minutes to find something inspirational or funny or SOMETHING for you all. I read all your posts, but will have to answer them LATER, as I am really tired! But, I got a month of bookwork done today!
**********************************************************
This is food for the soul I am passing on to you from another friend who cares...
I walked into the grocery store not particularly interested in buying groceries. I wasn't hungry.
The pain of losing my husband of 37 years was still too raw. And this grocery store held so many sweet memories. John often came with me and almost every time he'd pretend to go off and look for something special.
I knew what he was up to. I'd always spot him walking down the aisle with the three yellow roses in his hands. John knew I loved yellow roses.
With a heart filled with grief, I only wanted to buy my few items and leave, but even grocery shopping was different since John had passed on.
Shopping for one took time, a little more thought than it had for two. Standing by the meat, I searched for the perfect
small steak and remembered how John had loved his steak.
Suddenly a woman came beside me. She was blond, slim and lovely in a soft green pantsuit. I watched as she picked up a large pack of T-bones, dropped them in her basket, hesitated, and then put them back. She turned to go and once again reached for the pack of steaks.
She saw me watching her and she smiled. "My husband loves T-bones, but honestly, at these prices, I don't know."
I swallowed the emotion down my throat and met her pale blue eyes. "My husband passed away eight days ago," I told her. Glancing at the package in her hands, I fought to control the tremble in my voice. "Buy him the steaks.
And cherish every moment you have together."
She shook her head and I saw the emotion in her eyes as she placed the package in her
basket and wheeled away.
I turned and pushed my cart across the length of the store to the dairy products. There I stood, trying to decide which size milk I should buy. A quart, I
finally decided and moved on to the ice cream section near the front of the store. If nothing else, I could always fix myself an ice cream cone.
I placed the ice cream in my cart and looked down the aisle toward the front. I saw first the green suit, then recognized the pretty lady coming towards me.
In her arms she carried a package. On her face was the brightest smile I had ever seen. I would swear a soft halo encircled her blond hair as she kept walking toward me, her eyes holding mine.
As she came closer, I saw what she held and tears began misting in my eyes.
"These are for you," she said and placed three beautiful long stemmed yellow roses in my arms.
"When you go through the line, they will know these are paid for."
She leaned over and placed a gentle kiss on my cheek, then smiled again.
I wanted to tell her what she'd done, what the roses meant, but still unable to speak, I watched as she walked away as tears clouded my vision.
I looked down at the beautiful roses nestled in the green tissue wrapping and found it almost unreal. How did she know?
Suddenly the answer seemed so clear. I wasn't alone. "Oh, John, you haven't forgotten me,
have you?" I whispered, with tears in my eyes. He was still with me, and she was his angel.
Everyday be thankful for what you have and who you are.
Though I clutch my blanket and growl when the alarm rings, thank you, Lord, that I can hear. There are many who are deaf.
Even though I keep my eyes closed against the morning light as long as possible, thank you, Lord, that I can see. Many are blind.
Even though I huddle in my bed and put off rising, thank you, Lord, that I have the strength to rise. There are many who are bedridden.
Even though the first hour of my day is hectic, when socks are lost, toast is burned and tempers are short, my children are so loud, thank you, Lord, for my family. There are many who are lonely.
Even though our breakfast table never looks like the pictures in magazines and the menu is at times unbalanced, thank you, Lord, for the food we have. There are many who are hungry.
Even though the routine of my job often is monotonous, thank you, Lord, for the opportunity to work. There are many who have no job.
Even though I grumble and bemoan my fate from day to day and wish my circumstances were not so modest, thank you, Lord, for life!
Pass this on to the friends you know, it might help a bit to make this world a better place to live, right?
A friend is someone we turn to when our spirits need a lift. A friend is someone to treasure. For friendship is a gift. A friend is someone who fills our lives with Beauty, Joy and Grace and makes the world we live in a better and happier place.
YOU ARE MY FRIENDs AND I AM HONORED!
Okay, it's not a funny!!
******************************************************
Forest Gump in Heaven:
Forrest Gump dies and goes to Heaven. He is met at the Pearly Gates by St. Peter himself. The gates are closed, however, and Forrest approaches the gatekeeper. St. Peter says "Well, Forrest, it's Certainly good to see you. We have heard so many good things about you. I must inform you that the place is filling up fast, and we've Been giving an entrance quiz for everyone. The tests are short, but you Need to pass before you can get into Heaven.
Forrest responds "It sure is good to be here, St. Peter. I was Looking forward to this. Nobody ever told me about any entrance exam. Sure hope the test ain't too hard; Life was a big enough test as it was.
St. Peter goes on, "I know, Forrest, but the test is only Three questions: What days of the week begin with the letter T? How many seconds are there in a year? What is God's first name?"
Forrest goes away to think the questions over. He returns the Next day and goes up to St.. Peter to try to answer the exam questions.
St. Peter waves him up and says "Now that you have had a Chance to think the questions over, tell me your answers".
Forrest says, "Well, the first one how many days of the week Begin with the letter "T?" "Shucks, that one's easy. That'd be today And tomorrow."
The Saint's eyes open wide and he exclaims "Forrest! That's Not what I was thinking, but.....you do have a point though, and I Guess I didn't specify, so I will give you credit for that answer."
"How about the next one?" "How many seconds in a year?"
"Now that one's harder" says Forrest, "but I thought and thought about that and I guess the only answer can be twelve."
Astounded, St. Peter says "Twelve! Twelve! Forrest, how in Heaven's name could you come up with twelve seconds in a year?"
Forest says "Aw, come on, St Peter, there's gotta be twelve,: January second, February second, March second. . . "
"Hold it" interrupts St. Peter. "I see where you're going with it. I guess I see your point, though that wasn't quite what I had In mind, but I'll give you credit for that one too. Let's go on with the next and final question. Can you tell me God's first name?"
Forrest replied, "Andy." When St. Peter asked how in the world he came up with the Name Andy, Forrest replied, "You know, St. Peter, that song we sing in church: "Andy walks with me, Andy talks with me."
The lesson: THERE IS ALWAYS ANOTHER POINT OF VIEW, and just because another person doesn't see things the same way or understand the same way that you do, does not mean that it's wrong..
***************************************************
This has got to be the world's longest short post! LOL Gotta keep up my reputation. LOL
God's richest blessings on you all. Radonna, hope the boys are feeling better really soon!
Ciao for now.
Shawna
Name: Becky to Pam
Web Site:http://
Date: Thursday, May 18, 2000 at 21:02:48
Comments:
Pam - aren't those suppositories nasty?!?? LOL !!!! Didn't realize when I was posting to Radonna that it sounded kinda ignorant to you - SORRY!!! Didn't mean it that way :-) !
Name: Becky/Kelly's mom
Email:buckaroobeck@postnet.com
Web Site:http://
Date: Thursday, May 18, 2000 at 20:59:54
Comments:
TRIPLE WOW - 3 times in one day! Had to post, though! Radonna, you poor thing, or should I say I feel for your poor kids!!! I'm sure they told you MOtrin every 6 hours, Tylenol every third hour in between. Make sense? NO... ie.: 6 am - Motrin 9 am - tylenol 12noon - Motrin 3pm - tylenol. That always helped with my kids. And the problem with diahrea is that it is so easy to get dehydrated (as you well know), but then again I was told that that is the body's way to get rid of 'bad stuff'. Once you plug that up, you can (possibly) get sicker. So what's a person to do?! I'm not a med person, this is just what I've been advised FROM a med person. Anyways, hope you don't end up in the hospital! You prob won't read this till all is over and they're better. So I'm just blabbin ;-)! GOOD LUCK !!!!!!!!!! and a (((BIG HUG))) - cause being a mommy to sick kids - especially 2 at once - is very very tough!
Speaking of kids, time to get the 2nd one off to bed. At least the 3rd and 4th do it themselves! And that 'old man'... thinks he needs a bedtime 'story' ;-) - he's more trouble than all 4 put together - LOL !!!
Have a great night everyone, and to those who aren't having one, look at the sweet, sweet face of a sleeping child tonight and it will warm your heart and make even a bad day have a great end! (Can you tell I just peeked in on Kel?!?!) :-)
(((((HUGS))))) to all ~~ Becky
Name: Pam Kristals Mom
Email:bcb75@yahoo.com
Web Site:http://
Date: Thursday, May 18, 2000 at 19:54:16
Comments:Hey Radonna:
Get some tylnol down them and give them pedilite suckers or juice don't matter what. Also, if you can get a phone call to your doctor he might give you a perscription for some suppositories for diareah and vomiting. I know its sounds kinda crazy but, thats what the doctors always recomended for kris when she got sick. I hope they don't dehydrate keep pushing the fluids. Also, give them a temp bath. A bath that is warm not hot warm but you need t keep the temperatures down. Just put them in the tub with several wash rags and cool them down it will take you a little whileits not easy. they will scream and holler an beg to get out of the tub but thats the way its done try it an see if that will help. Love Pam
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Thursday, May 18, 2000 at 19:07:40
Comments:Hey everyone. My boys are really sick. We probely will end up in the hospital tonight. Kaden's fever is 102, Jonathan's is 103. They are both so congested, Jonathan is throwing up everywhere. Kaden hasn't started that yet. but Kaden has the runs real bad. I really don't know what is worse. What will I do if they both go in the hospital. I hope they can put them in the same room. The ER nurse told me to wait if I could to see my Doctor tomorrow, just give them tylenol and motrin. I don't think I can wait though, I think the ER nurse thinks I am an overreacter but I really don't over react! Well I have to go and coax a popcicle down Kaden. He don't even feel like eating today!Kaden
Name: HeatherF
Email:flanagan@mail.burgoyne.com
Name:
Date: Thursday, May 18, 2000 at 18:38:50
Comments:
Becky - I thought I was the only one who has breakfast for dinner when running a tight schedule!!! (or just not feeling like cooking!) Great minds think alike, huh?! Any others out there who switch around their meals??!!
Name: Beck again
Web Site:http://
Date: Thursday, May 18, 2000 at 17:51:56
Comments: Paula - that's who it was!!! Sorry!
Name: Becky/Kelly's mommy
Email:buckaroobeck@postnet.com
Web Site:http://
Date: Thursday, May 18, 2000 at 17:50:19
Comments:
Wow - twice in one day - I'm setting a personal record here!!! Jackie - you sound like the kind of gal I'd like to have in my corner of the ring!!! Ever think about heading northeast a few states??? I love reading about Emily's Grand Adventures!!!
LOL - As a fellow Catholic, I got a kick out of Ethan's mom(I;m so sorry - I'm having a brain fart, I forgot her name!) and her description of First Communion!!! That just tickled me :-) !!!
Well, it's dinner time, and no dinner. Guess that means I'm not doing my job. Guess that also means breakfast for dinner. Little does the hubby know that when we have breakfast for dinner that it actually means that I was too lazy to fix dinner and had to scramble to put something together. Hey, I made a kinda funny - scramble - get it??? OK, stop throwing those tomatoes at me!!! ;-)
Have a super evening to everyone and theirs out their!!! (((hugs & smiles)))
Beck
Name: Paula (Ethan's Mom)
Email:deaneclan@eircom.net
Web Site:http://
Date: Thursday, May 18, 2000 at 16:42:55
Comments:Hi All
Sorry I haven't posted in a while but things have been a bit hectic here. Hannah (my 8 yr. old) made her First Holy Communion last Saturday. (The catholic ceremony where all the girls dress up like little brides!!) She was beautiful. She told Paul (hubby) that she now knows what it feels like to be a princess, even it was only for a day (aaaaaah). Paul told her she was his princess every day (daddy's girl or what!!!). I'll post up a pic of her with Ethan when I get them developed.
Speaking of Ethan he's finally got his glasses. They are soooo cute. I cant believe it but he's actually keeping them on. I was all prepared to do battle with him and he only took them off about three times in the last 2 days. I'm not sure if "practising" with an old pair of Hannah's sunglasses (without the lenses) did the trick but I'm just thanking God that he's taken to them so well.(so far !!!). Thanks to everyone for advice about the glasses. I know I was a little freaked at him getting the glasses but now that he has them he's still the cutest baby around.
Anyway, I wont delay as Ethans got a bad cough and Im gonna go to bed early as I was up a lot with him last night and probably will tonight too. Just thought I'd check in and let you all know about the glasses.
Have a nice evening everyone.
Paula
Name: Judi
Email:judig2@yahoo.com
Web Site:http://
Date: Thursday, May 18, 2000 at 13:33:07
Comments:Jackie: Yep, got your e:Mails and got the correct e:mail addy to send to the State guy. Fired off my letter!!
BTW, you all should read the AWESOME letter Jackie wrote!!! If she doesn't post it here, rest assured, I will!!! Very eloquent. Very well expressed.
For those of you who don't know, there is impending legislation in Texas that will divert needed $$ from community based service back to institutions. The vote is coming up soon (Friday, I think). I sent it to those of you I know are Texans, and as well as those of you who wrote and told me you were! Being the Mom of small boys, I guess I automatically assume these thing will be available to my boys in the future. Never assume!!! I realize I have to take a proactive stance now to make sure they do have these things available to them later.
OK, off my soap box now!
Ciao-
Judi
Name: Jackie
Email:grannyjj@hotmail.com
Web Site:http://
Date: Thursday, May 18, 2000 at 12:26:37
Comments:Mornin'
What a frustrating AM this has been....and I've been up to good things, too. I've been trying all morn to respond to an alert I received concerning the direction of MHMR funds here in Texas..As you have guessed by my posts I am very much a believer in Community services.....fought long and hard to make believers out of pro-institution people years ago in the value of home and community services. When I hear that State monies may be used to enlarge what institutions that do remain I get very concerned. We have worked too hard for Emily to become independent to have those opportunities disappear because there is no place for her to live with the supports she needs in our community. Sooooooo out came the dusty soapbox thanks to my alert from Judi.
Emily had a grand time with her boyfriend Elvis last nite. He drove his shiny red truck safely over here and I am happy to report did make it safely back home again.......apparently remembering to brake at all the red lights LOL (see my yesterday post). Her Royal Highness Em just hauled it out of bed and we are off in pursuit of shoes for "square" feet. Please do a "no rain dance" for the Texas Panhandle for Saturday. The weather report looks omonious and we have 6 young people who would look sooooo pretty photoed in our gardens! I know we are in danger of being the next Los Alamos......but just ONE more day......
Just a quick note....had fun watching all the coverage yesterday of SUE the new dinosaur at the Chicago Field Museum. We were lucky enough to be in Chicago 2 yrs ago and saw the exihibit the first hour is was open for the first time! Sue's bones were all over and you could watch the preparation of puting her together. Having a visible disability does at times have its advantage....the curator of the exhibit noticed Emily and brought some bones out for all of us to touch and gave us a very detailed description of what was going on. Another time Miss Em got us special attention was in the British Museum in London where the curators took her hand and led all of us into a back room where we got to see the Mummies not on display to the public......then a few minutes later we all got to actually touch the famous Rosetta stone because my father-in-law is totally blind. So see, there are some positive fringe benefits to having a disability.!
Shawna...think Robbie really does have a problem....will email you later.......meanwhile love ya' and thinking of you.
Heigh Ho...Heigh Ho....It's off to the Mall we go.....
Jackie
Name: Jackie/EmilyD's Mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Thursday, May 18, 2000 at 11:14:38
Comments:Judi G..........I am having a terrible time getting the alert response to go thru to the address I have at MHMR. I don't know if your are getting my emails either. Could you email me the address link there again......thanks.....having a very frustrating day with my plastic friend here.......keep deleting everything LOL
Jackie
Name: Becky/Kelly's mommy
Email:buckaroobeck@postnet.com
Web Site:http://
Date: Thursday, May 18, 2000 at 11:00:29
Comments:
Good morning, everyone!!! Haven't been able to post in a while, and now it took over an hour to catch up, and now I have to make it a quickie!!! Kelly is doing so great, yesterday she was sitting (supported at lower hips) at her 'bed tray', just a short legged TV tray, playing, and didn't even notice when I let go, and so she sat banging a toy on it for a full 5 seconds all by herself!!! I am SO proud!!! And at dinnertime, I turned to do something else during feeding her, and turned around, and she had a nold of her nosey cup with both hands and was bringing it to her mouth. Mom was beaming once again!!! What a dumplin!!! She's just SOOOOOO sweet!
Brag, brag, brag! Can't help it!
Sounds like everyone's healthy (or getting there!), happy, and doing well. I like that!!! Life is pretty good, huh?!?!
Tina, are you out there??? I keep forgetting to turn on my messenger thingy when I go online!!! Duh!
Well, think I hear UPS guy here, again...We've been shopping online quite alot lately,,, I've got some very cool living room lamps coming, maybe it's them.
Bye! (((hugs & smiles))) Beck
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Thursday, May 18, 2000 at 05:37:18
Comments:It is pretty early here, Kaden woke me up by banging a cup over my head. that means I am THIRSTY!! Both boys have fevers and Jonathan nose is running like crazy. I just had to check the posts since I was awake and Like Shawna I have to respond to what I read. If I don't respond to everyhting it is because my eyes are jerking for exaustion. Heather: I posted Kaden's infant picture expessially for you. If you think he looks different in the other 3 wait till you see this one He had black hair and blue eyes! Now He is blond with gorgeous brown eye's. I had his picture made every month for 3 solid years and he looked different in EVERY SINGLE picture. Kaden's facial expressions are amazing.Are you talking about him with glasses. That was probley the picture that looked so different.
Kaden broke his NEW glasses to day. I have snapped the lens back in but the frame is bent still. He was so wild today.
Judi: I will check out your babies first thing when I get back up I can't wait to see them. I have E-mailed a really nice lady a couple times with twins, only one has Down Syndrome. They are the sweetest little angels!!! Twins period would be overwhelming on me. The most stressful time for me is 0-5 months. Kaden turned blue on me so many times that I literally didn't sleep. When I did drift off the leads on his heart monitor would go off and I would jerk awake scared to death. With Jonathan I had the same insane fear!!
Shawna: I wish that I knew what to tell you with Robbie, After seeing my brother get as messed up as he did I know how important rules are. I also know how much teen-agers lie. The biggest mistake I made was letting my brother live with me because I thought my Mom was too harsh. He is the one paying for it now.
Susan: I couldn't have put it better if I tried. Every day is precious, even days like today when my little contrary Kaden tried my last nerve.
MaryL. It is so late i can't remeber what I wanted to tell you. My brain is so foggy that I will have to go to bed now or fall asleep at the computer.
Shawna: I'll email the instructions when I wake up. Hopefully 4 or 5 hours from now!
I miss Steph!!!!!!!!!! I wonder how Olivia is doing? Anyone know when she'll be back?
Ro:Is Teddy home yet? How is everything your way?
I cant think anymore
LOVE YOU GUYS
RADONNA
Name: Shawna
Email:lawmanw@telusplanet.net
Web Site:http://
Date: Thursday, May 18, 2000 at 02:07:20
Comments:
It's me again!That last post was my "panic post". This is my "real post". I was actually going to wait until tomorrow, ok, later today now, but then this stuff with Robbie happened and after I sat down and wrote the letter for his counsellor, I thought "I could post this at Unomas, they probably have some good advice for me!" Of course, I couldn't come without reading the new posts, and I couldn't read them without answering them! LOL
I just can't help myself.
Ro, you're right about the fun stuff backfiring! The part I don't like is the TWICE in a row! LOL
Jackie, you had turkey hot dogs? We had a weiner roast for supper here; had it outside in the firepit my husband built last summer. I also burnt up all the dead grass and trimmings from my flower beds! My kids loved it. Michael tried cooking his own hot dog, for about 30 seconds, he kept hitting it on the wood, though!
Radonna, Quit showing off, and e-mail me the directions for doing "big" already! LOL I can just picture it - one day, everybody will do their posts "big". Well, they'll be easy to read! LOL Kaden's Communication - just hilarious!! Very creative! I can tell you had an interesting day today! Remind me to tell you about mine sometime. It's not as interesting as yours, I bet. You poor deprived darling, only one lonely channel on TV. Hey, you don't have to fight with John over what to watch!! And I notice that you are already busy matchmaking. Of course, you may be on to something. It does take Michael longer to do things, maybe I should start looking around for him too!! LOL I think Kaila's really cute, but I think she's too young for him! LOL
Marie, Jared, buddy!! Way to go. I was thinking that you and Michael are at about the same level. He starts gr.1 next year!
Emily, Hi,how are you doing? Are you enjoying yourself at college? I know when I went to college and away from home, I thought it was awesome. Your mom talks about you ALL THE TIME. You are really an inspiration to me, giving me hope about what my son Michael (8) can hope to achieve one day! You go, girl. I hope you have a wonderful time at the Grad. Make sure you post some pictures of yourself and Elvis all dressed up! I want to see the beautiful dress you found. I saw your graduation picture, and you are so beautiful! I bet you're even nicer than you look!! Anyhow, thank you for being a hope and inspiration to this mother. Michael really likes the pictures, and I'll make sure to show him all of yours.
Tori, Hi Tori. My name is Shawna and I have four kids. There is Robbie,15, Janine,13, Jennifer,10, and Michael,8,DS. They are very "interesting" sometimes. LOL. I will try and e-mail you soon. Keep in mind that "soon" sometimes means "within the next year or so" LOL It was nice to meet you and I hope that we'll be hearing more from you.
Susan, have a wonderful day with Emily, and I hope that Michael (good name) has a terrific grad! My oldest is having his grade 9 grad in a few weeks.
I feel kinda rooked. In Canada, they aren't done school until June 27! But it's coming pretty soon! LOL
Pam, I'm so sorry to hear about Kristal passing away. That must be so tough for you. I can't even imagine it, although on bad days, sometimes I'd like to, for a nanosecond, anyways. LOL You sound like a great mom and grandmother. I'm sure that your sister is really happy that you are the grandmother she can't be.
Heather, here's a tip for when you read Radonna's posts: "Breathe in, breathe out!" LOL. I can just picture you on the edge of collapse at the computer! LOL
Judi, just having one DS child has its moments of utter chaos. How do you ever do it with twins? I know, you just do what you need to do!
Lorena, I have your name here,
but that's it!! I think you said that Clark will be three next month, at least I hope you did! Nope, I can't remember anything. I hope I didn't miss something important. If I did, you know what that means? Just one more post today from the Queen of Posting. LOL
I sure hope I sent you a joke earlier today, because I am too tired to go look now.
Ciao for now.
Shawna
Name: Shawna
Email:lawmanw@telusplanet.net
Web Site:http://
Date: Thursday, May 18, 2000 at 01:03:41
Comments:
I NEED YOUR PRAYERS AND YOUR ADVICE!!I have been having problems with my oldest, Robbie (15) taking off for about the last four days. In our house, chores come before playtime, and I need to know where the kids will be.
I also need to add that a few years ago, Robbie was sneaking out his window at night and getting into trouble with the law! To my knowledge, most of his "wandering off" has been during daytime hours...so far. We've had problems with him sneaking out his window before and his dad threatened that if if happened again, he couldn't stay here.
I am enclosing a letter that I will be forwarding to his counsellor. I have no idea what to do. The problem is, Dad is away at work, and if Dad isn't away, we don't eat! Any advice would be greatly appreciated! Thank you in advance. Note: maybe one day I'll have a DS-related crisis.
******************************************************
SHAWNA WRIGHT
BOX 46
BLUFFTON, ALBERTA
T0C 0M0
MAY 17/2000
Sherry,
We have a HUGE problem. For the last five days, Robbie has been continually sneaking out of the house. Here is the timeline:
Sunday, May 14
Robbie was supposed to be tidying his room and getting his dirty laundry from the weekend at his grandparents’ washed. About 7:30 or so I noticed him missing. He showed up about 9:30. Said he was done his chores and went to play with his friends.
Monday, May 15
Robbie is supposed to take Michael to school in the mornings. When it was time to go to school, I discovered that Robbie was gone!
In the afternoon, he was supposed to go and put the rain gutters back on. I found him heading for a friend’s house.
In the evening, he disappeared about 7:00 and came home about 9:00 or 9:30. He had no shoes on, and said that he had gone to the van to get something, laid down in the van for a few minutes, and had fallen asleep!
Tuesday, May 16
Janine and Robbie both had track practice after school. Janine got home about 4:30, said Robbie was not at track practice. He arrived home at 5:20, and said he was at track practice. That evening I spoke to the coach on the phone while Robbie was in the room, and Mr. Eveleigh said that Robbie was not there. Robbie insisted that he was.
While the kids were at track practice, I found an empty bottle of Amaretto Liquor in the bathroom cupboard, hidden with the towels. I confirmed with Lawrence that the bottle was NOT empty when he left to go to work.
That evening, I asked Robbie to cut the grass. The lawnmower ran for about 10 minutes or so. About ten minutes later, I went to check what was going on and Robbie was gone. He came home about 9:30 or so. He said the grass was cut, so he went to play. For all these non-observances of the rule of 1) doing his work before playing with his friends, and 2) letting me know where he will be, I grounded him for three days. I also warned him that if this misbehavior continues, he may lose the privilege of going to Cadet camp this weekend.
Wednesday, May 17
Robbie went missing again after school. I went to his friend’s house personally and escorted him home, and reminded him that he was grounded.
For supper, we had a weiner roast outside. Afterwards, Michael wanted to play outside and Jennifer had homework and Janine had chores to do, so I asked Robbie to stay outside with Michael for about half an hour, then I was going to give him(Mike) a bath.
About 20 minutes later, Robbie came into the house. I asked him where Michael was, and he said he thought he was in the house. I told Robbie to please go locate Michael. Ten minutes later, I hadn’t heard from Robbie, so I went out and both boys were gone, and their bikes. So, we all started searching. I was just heading back to the house when I saw Robbie waving. Some of the other kids in town had found Michael and brought him to Robbie.
I phoned one of the rescuers to thank him. He told me that he’d found Michael up by the playground, and that Robbie told him that he had taken Michael there because he wanted to get out of the house because he was grounded.
Within half an hour of Michael being found, I discovered that Robbie was apparently missing again. This was at 7:30 or 8:00 pm. I locked all the house doors and stayed downstairs so that I would know when he got home. Around 11:00, I heard a noise by Robbie’s room, and when I went to look, he was sleeping fully clothed under his bed! He said that he’d gone there to sleep just after we found Michael, and he was under the bed to block some of the light.
Then I found that Steven’s room was open. This is right next to Robbie's room. The last I remember, I had locked that room to keep Michael out of it! I checked and found the window locks were undone, and also there was a little bit of dirt and grass on the quilt. Then I found Robbie’s runners under Steve’s bed.
I got Robbie up. He was (or pretended to be) groggy and slightly dizzy. I checked his breath, but didn’t notice anything there. I told him that I KNEW he’d sneaked out of the house, and I wanted to know where he went and what he did there. He stuck to the story of sleeping under his bed. I asked him quietly three different times, and he always stuck to his story. I didn’t tell him I found his shoes and the dirt in Steve’s room. I also locked the door again, leaving the shoes under the bed.
I HAVE NO IDEA WHAT TO DO. BY RIGHTS, HE SHOULD HAVE TO LEAVE BECAUSE HE HAS UNDENIABLY BEEN SNEAKING OUT AGAIN!
There is DEFINITELY something going on. I don’t know what it is, but he’s up to something. I suspect either alcohol or drugs. I don’t know what else to think. It doesn’t make sense that he would suddenly start sneaking off to play with his friends when for over a month, he was getting lots of time with them by fulfilling his responsibilities.
Anyhow, that’s it for now.
Shawna
Thank you again for your help. I have found this to be a very supportive place for ALL my problems, not just the ones relating to Michael! You guys are the greatest!
Shawna
Name: MichelleMc
Web Site:http://
Date: Thursday, May 18, 2000 at 00:23:48
Comments: Susan: I hear ya! Your post made me think of a poem my sister laminated and gave to me when my kids were tiny babies. (Forgive me if Shawna already beat me to this one!) I need to laminate it to my monitor:
A Mother's Poem
Oh give me patience when wee hands
Tug at me with their small demands.
And give me gentle and smiling eyes;
Keep my lips from hasty replies.
Let not weariness, confusion, or noise
Obscure my view of lifes fleeting joys.
So when, in years to come, my house is still,
No better memories its rooms may fill.
I try to remember this poem, when I'm working at the 'puter and find myself shooing my kids away so I can "get my work done."
Judi, I'll try to check out your friends intro and see what's going wrong. There's someone else, I promised to help with this and I can't recall who it was! Whoever that was, email me again!
Michelle
Name: Lorena:Clark's Mom
Email:L719zecher@aol.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 23:10:26
Comments:Hi everyone !! I hope that everyone had a good day. Sounds like Radonna had a fasinating day( I laughed so hard that I cryed) I am sorry that you had a bad day but it sounds like you took it all in stride!!!
Pam: I am so sorry about you loosing your daughter....Heaven has a new angel..she sounds like she was very special. I give thanks everyday for my little guy. I am sure that you were blessed for 22 years that you had her in your life, keep those memories alive !!!! You will be together again someday. Did Kristal have a heart defect early on in her percious life?? or was it unexpected ?? Clark had surgery when he was 7 months old. I often think about if he should have a heart problem again..I hope not, however I would thank the Lord for all the days that he blessed me with this special boy if he should leave me. One a happier note, thanks for sharing all your exprience with us. Clark is only 35 months old ( almost 3 his B-day is june 11th) I hope that you will continue to visit with unomas, It is nice to know that someone is here that knows what we are going through with our smaller children and can answer questions.
Shawna: I apoligize, I haven't looked for that recipe for the Monkey bread yet, soon as I find it I will email you.
I hope that I am not forgetting anything....I will check in tomorrow. Everone have a great evening.
Hugs,
Lorena
Name: Judi
Email:judig2@yahoo.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 23:05:56
Comments:Hey Jackie! Yup, got both your e:mails. Sorry I didn't get back to you sooner, but I had to take Patrick to the Doctor's. He has a little sinus infection. Was worried about his lungs, but no sign of bronchitus. (Yay!). We had enjoyable day together just the two of us while Sam fended for himself at school. I guess with Twins sometimes you need to have a little one-on-one time!
I forget where I told you to look for pictures of the dynamic duo. I tried posting their pic to UM Friends here, they were there for about 2 days and now there's a bizarre little icon instead of a picture. Oh well, I tried! There is a very old picture of them at www.dsyndrome.com. Click on "people" then "people14" scroll down and you can't miss 'em. If you log on to clubs.yahoo.com/clubs/multiplesanddownsyndrome, you can see a picture of me & the boys (sitting amidst the Texas Bluebonnets).
Radonna: Hi! I'm Judi. I have three year old identical twin boys, Sam and Patrick (yup, they both have DS, yup, it's pretty rare. They are one of about 12 sets of id twins in the US). They were born very prematurely, at 26.5 weeks. Each weighed a little over 2lbs. Sam was in NICU 16 weeks, Patrick 18 weeks. When they were 1month old, we got their DX of DS. At that time, that was the least of their troubles. Living was an hour to hour struggle back then. Like I said, they are 3 now, in school, ride the bus everyday and love it! They have progressed so much since January, I can't even tell you! We are working out the details for extened year now. Hopefully the trent will continue. Also, a few months back, we enrolled them in Kindermusik. It's a great program and I'd heartily recommend it to anybody out there with kids! (It's not just for kids w/ds, but having gone thru ECI for the past 3 years, I managed to pick the activities apart and realize it's almost like "therapy" but lots of fun and set to music!). Anyway, If you want the long drawn out version, you can read their story at specialchild magazine (www.specialchild.com). Just click on "library of disorders" then "down syndrome". Scroll down 'til you come to "personal stories" and I think mine is the 4th one. I wrote it about a year ago, and it gives all the "sordid" details of their early/rocky start. So, that's the story. I've been around here for a couple years, but haven't posted much lately, but try to keep up w/posts.
Ok, it's late, and I'm rambling, time to sign off and get some sleep! :)
Catch y'all later.
Judi
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 22:14:14
Comments:Thank you su much Pam for reminding me about how precious my time with my kids really is. Just 10 minutes before I read your post, I was in a tizzy! It wasn't funny at the time, but now I can't help but smile. I put Emily in the bath tub and started running around the house picking up, vaccuming, etc. Suddenly, Justin came and said "you'd better come to the bath room and see what Emily has done". She had added more water until it was just about to go over the top of the bath tub and had poured in a whole bottle of shampoo. I was so disgusted....by the time I finished cleaning out the tub, I told her (in that "I'm going to punish you" tone) "Fine. Now you can just take a shower"! She had never taken a shower and I thought she would hate it, but there was still so much suds in the bottom of the tub I thought it was better than a bath. I was thinking "she'll think twice before she does THAT again". Turns out she absolutely loved her shower!!!! She kept saying over and over "ooooh Mom, this is so fun"! Then when I was ready to tuck her into bed, I pulled back the covers to find the remains of ALL the rest of Sunday's bubble bread inside her bed! Lots of little pecan pieces everywhere and the sheets were stained with the butter/brown sugar. By the time I finally got the sheets changed and tucked her in, I was NOT very happy with my little angel!!!! I decided to check the message board one more time before going to sleep and Pam, your message was so sweet. I am so sorry for your loss. I don't know what I would do without Emily.....AND her messes! Thank you for putting things back into perspective for me tonight.
Night everyone. Susan
Name: HeatherF
Email:flanagan@mail.burgoyne.com
Name:
Date: Wednesday, May 17, 2000 at 21:15:19
Comments:
Radonna - sorry, I was so overcome with laughter, I forgot to tell you, "I'm sorry you've had a hard day, I hope you are doing ok and that tomorrow is better!" (is your Kaden the only Kaden here on UnoMas? One picture doesn't look like the other two in the May Gallery)
Name: HeatherF
Email:flanagan@mail.burgoyne.com
Name:
Date: Wednesday, May 17, 2000 at 21:11:43
Comments:
Radonna - I CAN'T STOP LAUGHING!!!!!!!!!!!!!!! That is absolutely hilarious. Kaden sounds like a DOLL FACE!! Especially since he sounds ALOT lot Nicholas! We really need to get those two together. Where do you live? (my husband thought I was nuts, I was laughing so hard I couldn't breathe!!!)
Name: Pam Kristals Mom
Email:bcb75@yahoo.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 21:03:52
Comments:Hello, everyone its me again. Thanks for the email Radonna I was sure surpised to get email. For all those that don't know me I am a mother of a 22yr. old daughter whom passed away 7 months ago with congestive heart failure and kidney failure. She was the light of our lives she was an inspiration to us and our families. We loved her dearly as which you all love you little ones. I have learned that their is ups and downs and ins and outs raising a child with down syndrome but I wouldn't trade it for the world I would do it again in a heart beat again.
I have learned by raising Kristal that life is to short to bicker and squabble over petty things because really you don't get anywhere you just make steps backwards not forwards. You can't change things just make up and do the best you can. Kristal taught me this real fast she never had a harsh moment with anyone she always turned the sour lemon into lemonade she always had a smile and she always told us that she loved us. I don't mean to rattle on but I miss my daughter very much. And when you go to put your little one down tonight just think what you would be missing if your little one wasn't here right now to tuck into bed. Life is to precious.
Now on to another subject I love to come here and read the post when I can and I love to read what you all have to say. I remember when Kris had her IEP and we had the teachers to contend with and the speech therapist and everyone that was involved with her. Man at times I wonder who was the child and who was the teachers or therapist because at times Kris would do things that the teacher never expected her to do. Or the teacher would be trying to do something and Kris would go and do it for her. She was something else I can guarentee you that. The doctors always said that they never give her enough credit she was smarter than what they thought. I am a mother of two my first born is 23 and His name is Jerry and Kristal was my second born and she was 22 before she passed away. And I have the honors of being a grandmother to my sisters grandchildren whom passed away 3 yrs ago and her son asked me if I would please honor him and be his childrens grandma. So I am a grandma to Nicholas who is 2 and Whitney who is 1 and they are the apple of our eyes,Anthony who is 9, And for my other sister,Im grandma to Clayton who is 4 and alexandra who we call allie who is 3. So as you can see grandma is busy. And I mean busy.
Well, I guess I have rattled on long enough as I said hello.
A Friend Pam
Name: Betsy
Email:BetsyBiskt@hotmail.com
Web Site:http://www.geocities.com/EnchantedForest/Creek/3716
Date: Wednesday, May 17, 2000 at 21:00:03
Comments:ATTN: Kristene, Kaden's Mom!
Hi,
Someone wrote to me and mentioned you might like to speak to someone who has a child with both Down Syndrome and EA/TEF...well, that's me!! :)
My daughter is now 3 years old, we knew about the DS ahead of time, but the EA/TEF was a surprise at birth...its been a long road, but we're doing well.
Write me if you get this message...
Betsy
http://www.geocities.com/EnchantedForest/Creek/3716
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 20:48:59
Comments:This may be the shortest post EVER for me...We are excited about tomorrow and need some sleeeeeeeeep! Emily and I are going to the zoo, Jordan (6) and Justin (12) also have field trips all day. AND, last but not least....Michael (our 18 yr old son) graduates from high school tomorrow night!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! All the exclamation marks are due to the fact that we have really been sweating the whole graduation thing. He is a really smart kid who decided to "party" his whole senior year away, so his grades were terrible and we were afraid he wouldn't pass. In case I haven't mentioned this before, he turned 18 last July but still had his senior year ahead of him. Didn't matter....he thought he was grown and insisted on moving out into an apartment with friends. He has now signed up with the Navy and I'm praying he will learn more about discipline than we were able to teach him.
Mikayla's Mom- Radonna said your story was on here and I looked and looked but didn't find it. I'd love to chat with you!! How old is Mikayla? She is really pretty.
Marie, congratulations on the AWESOME IEP meeting!!!!!! Way to go Jared! Emily loves to shoot hoops too, but can't come close to making it into a regular height basket. When she shoots a basketball and it doesn't make it inside....she calls the basketball some interesting names and occasionally stomps away. Then returns a few minutes later to try again. Anyway, congrats again!!!!
Trene, I'm not sure if I've met you. I'm sorry to hear that Kellan has been sick. How is he tolerating the tube feedings? Any problems with diarrhea? I have some experience with feeding pumps (I'm a nurse) and will help you if I can.
Radonna, You absolutely crack me up!!!!!!!!!! I can't think of another soul who would have a huge snake named Sylvia!!!!! Never mind the cows! I loved your post about communicating with Kaden. Sounds like he sure can get his point across. I do want to meet him!!!!
Patty, I promise I will look for my ST book and the Communicating Together newsletters. Several years ago, I went to a seminar with Libby Kumin in Nashville. It was really interesting. The most exciting part was that so many of the things that our home ST had been doing (that I had thought were a little unusual) were exactly what Libby recommended!!! Notice how I'm now on a first name basis with her! LOL It was also fun because they later had an evening with Chris Burke and we got Emily's picture taken with him and spent a few minutes talking to him.
Ok....maybe this ISN'T really such a short post after all! Anyway, I've got to get my back side in gear and get all the lunches ready, the clothes ironed (yes, even for a trip to the zoo!!), and the children bathed.
Hugs to each and every one of you!!!!!!!!!!!!!!!Susan
RO...I may not learn as quickly as Radonna, but give it a try. I really want to make my letters BIG and BOLD!
Name: Jackie/EmilyD's Mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 19:38:31
Comments:Radonna......you're too much.....life at your house has to be FUN.
Tonite we had Emily's boyfriend, Elvis, over for dinner. He drove over himself in his red truck. He just got his liscense Friday (3rd try~~~~~~~~) He told Ed it was a pretty hard drive due to the wind and it was hard remembering"about brakeing at all those red lights"......Thank God they are going to be in a limo for his prom!!!!!!!!!!
Jackie
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Wednesday, May 17, 2000 at 19:10:32
Comments:Hello Everyone. I am having an expesially trying day with Kaden. Nothing seems to be going his way. I have figured out his way of communicating and i thought I would share it with everyoneKaden's Guide to Communication
#1 Bath. Strip down out of clothes. Stand in bathtub and yell. If Mom says NO or Not now, find Make up, food anything gooey and smear on face and in hair, THEN she'll have to give you one.
#2Eat: follow Mom around with bowl and spoon if she sits down put them in her lap. If Mom go's to the kitchen run to your chair and makes demanding growling noises followed by high pitched EEEEAAAPP's.
#3 I am hot: Take vent up and cram whatever parts of my body down the 5 inch by 12 inch hole.
#4 Annoyed at my brother: Climb in playpen throw out every toy he has. DON'T Forget his bottle.
#5 I dont care: place hand in mouth tilt head sideways and ignore whatever it is Mom is trying to show you.
#6 I am MAD at you: Stand against the wall and brace your weight on your forhead and heels. Mutter angerily and ignore Mom's attempts to make up.
#7 I love you: Grab hold of Moms hair run your fingers through it saying IyahIyahIyah.
#8 I am sorry Brother: put all toys threw out of playpen back in. Climb in playpen with bottle and stuff it in Bubba's mouth whether he wants it or not.
#9 I lost something: turn around in circles sit down get up sit back down look under couch, do this until lost item is found or until offered food.
#10 I am sleepy: run through house at full speed, empty toy box ask for food get in bathtub bang hand on side of head if eye's get Heavy MUST NOT SLEEP!!
#11 I want to go to school: get book bag stand at door. If Mom says it is Saturday whine and sit by door anyway until offered food.
#12 I am just tooo cute: sling arms back and forth run in circles laughing.
#13 The key to sucessful communication is repetition repetition repetition, if first attempt fails try try again.
Well right now my little man is practicing #6 and I need to get back to cleaning.
Radonna
Name: Mary L.
Email:marylyons2@excite.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 16:43:50
Comments: Hello everyone ~ I hope everyone is having a great day.
Shawna ~ I don't have any relatives in Alberta but I do have cousins(the McGees) in Toronto. My brother-in-law, Tony Barone, has also just been named Director of Player Relations for the Vancouver Grizzlies - so he'll be moving to Vancouver. So I have a few connections up there in Canada.
Emily ~ I used to watch Days but had to cut my soap watching down so I'm pretty much a General Hospital lady now. Congratulations on doing so well at school!
Bye for now.
Mary L.
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Wednesday, May 17, 2000 at 16:29:38
Comments:Exellent teacher
I had no other help!!
Name: TESTING:)
Email:RO
Web Site:http://
Date: Wednesday, May 17, 2000 at 16:26:25
Comments: HELLO
Name: Oops:)
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 16:25:27
Comments:It is me TEACHER RO
GRADE FOR FIRST TEST
Easy as pie huh?:)
Ro
Name: Ro
Web Site:http://
Date: Wednesday, May 17, 2000 at 16:21:06
Comments:I must be a good teacher or someone else helped too:)
Ro
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Wednesday, May 17, 2000 at 15:40:01
Comments:Emily: I use to Love Day's! My TV only gets one Channel now so I haven't watched it in a while. My favorite person was Sami. I Love your graduation picture!
Name: Emily....Jackie's daughter
Web Site:http://
Date: Wednesday, May 17, 2000 at 15:33:30
Comments:I love your pictures. My favorite soap's DAYS and passions. emily
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Wednesday, May 17, 2000 at 15:05:41
Comments:I wanted to add one more thing, SUSAN: I cannot Believe that a kid brought a GUN to Emily's School!!!OH DEAR!!!! I would be so freaked that I would probley start to HOMESCHOOL Kaden. That is so scary. I got up to read post about 4 this morning when I was giving Kaden his nebulizer treatments and I read it then and I was Horrified. It is such a scary thought that it could happen in any school!
Radonna
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Wednesday, May 17, 2000 at 14:57:06
Comments:My Husband ran to the store so I am checking real fast to see what is going on. Since Shawna thinks I am loosing my touch
BEWARE
Tonight after Hubby is in bed I am going to BLOW YOUR MIND!!
Jackie:What soaps does Emily like? My favorite is General Hospital.
Trene: I am trying to look up Kaden's EI teacher. Her daughter Missy had to use a feeding tube. I think hers came out once she started to gain wait. I will pray expessially for Kellan when I get off of here. I love that name!! Kellan that is so pretty. It would go good with Kaden.
I got a few e-mail about snakes, and I wanted to clarify something. I am NOT a snake lover. I was going to open a pet store a while back ago, called Noah's Ark. I had the building and everything. BUT it is was so much work and didn't bring in enough money so all I found homes for all my animals. Snakes, Rabbits, Miniture Schausers, Ginny pigs, and everything else you can imagine.
Marie*****WAY TO GO JARED*********!!!!!! Congradulations on the good report!!!!! Well my husband just pulled back up so back to mopping the floor!!
*****Thanks again Ro*******
Radonna
Name: Jackie
Email:grannyjj@hotmail.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 14:18:28
Comments:
Hi
Does anyone know if we can change the font we use to print here or does this page use a specified font only? (how's that for sounding technical) As you can see I am lazy today with a capital L! Emily and I decided to take a day off from running around and get some things done at home....make that ME getting things done....Princess Em is watching soaps LOL
No cheeseburgers today...just left over turkey hot dogs.......Hope your day is less boring!
Jackie
Name: Shawna
Email:lawmanw@telusplanet.net
Web Site:http://
Date: Wednesday, May 17, 2000 at 13:50:50
Comments:
Good morning!I promised myself I was going to do all my other work first (I have to rake the yard, clean the shed, clean off the deck, tidy the house, do the laundy, figure out what's for supper, and more.....) But here I am. Just can't keep away
Michelle,
I really, really enjoy Unomas. I like the way you have the Boards set up. I like that I can just write one humungously long post and say (hopefully) everything that I want to say to everyone all at the same time. I also like the fact that I can go offline to read all the posts, and to write my epistle of the day. That is a shortfall with some other sites I've visited. I like the fact that there are people from all over the world that come here. It's a kick to be a "penpal" with folks from Britain, and all over the states. I think that there is someone from Ireland too -Paula, I didn't mean to forget you!!
My kids are driving me crazy!! By the way, this is totally and absolutely non-DS related! My 13 yr old, Janine and I have had two go-arounds in the last few days about her attitude. She can be so SNOTTY in the way she talks! This morning my girls were fighting, and I was somewhat calmly talking to Janine that her attitude had to change,.....and it ended up with her at one point saying she has NO friends, and it's all about how you look....When she gets on that jag, I generally respond with pointing her at what can she change? She is convinced it's how she looks and dresses! She is entering puberty, with the hormones racing and all that, it gets RATHER EMOTIONAL here sometimes, as her Mom also gets worked up pretty easily. I'm not really sure if what I've said made much sense, and if you have any suggestions how to handle an overly emotional young lady (other than locking her in the basement for the next five years or so! We don't have a basement!! LOL) I wish she could see that the kids who are judging her on her appearance are NOT her friends, and not someone she should WANT to be her friend. Problem is, there are only 6 girls in her grade. I never had those kind of arguements with my mother! I also never talked to my mom about how bad (socially) things at school were. I don't know if she knew. At least Janine is talking to me, okay, yelling to me! LOL
The other problem is pretty minor, but maybe not...We have a rule in our house, work first, then play. When you go to play, I want to know where you'll be and with whom. For the last three days, my oldest has disregarded that rule, and gone out to play with his friends for at least two hours every night. When he came home last night, I grounded him. It seems that he is just doing what he wants and ignoring the rules. Then he grumbles about losing privileges. Hormones!! One thing that I think is really cool about my son, Robbie. He's nearly sixteen, and we've talked about sex a bit, and mainly what I've said is that sex is WONDERFUL, but only when it's between a husband and wife. The other night we were talking and he said that he doesn't want to get into a sexual relationship with anyone, that he doesn't want that kind of relationship. Made me sooo proud. He said that some of the girls can't seem to understand him not just wanting "to get some". Makes this mama get all choked up. Then I want to strangle him for breaking the rules!
This parenting thing is tough! Does anyone know? Is there a way to put them back where they came from? LOL
That's how I get to be Queen Poster! Just call me Queenie!! LOL All you have to do is talk for a really long time about whatever comes to your mind. The weather. Mosquitoes. Potty training. Escape Artists. Long-distance Dads. Tonsils and Adenoids. Funyons. Love. Laughter. Jokes. Poems. God. Our Kids. You are smart people, I know you get the idea. That's all you have to do if you want to be a Queen Poster like me. Of course, you may also have a REAL LIFE! LOL!
Heather F, you did really well with the post of yours (I think it was yesterday). I, Queen Poster, grant you the title of Princess Poster! LOL I'm sorry for the rudeness that you encountered ( my dummy notes don't remind me of the details of when, where, how....) Anyhow, sometimes people just don't know what to say about our kids with DS. When I'm in a situation, I'm usually too dumb to just be quiet, and then
spend several hours exchanging feet!! That old foot-in-mouth disease can be epidemic!
Diane, I hope that Jarett's riding goes better next week. I never thought of doing that for Michael. Wish I had. Lawrence's ex-sister has horses, and when she was speaking to us would have let Michael ride one, I'm sure.
Denise, if I'd been here, I would have missed you!! I loved that letter from God. I'm sorry to hear that you are in pain again and that some of the nurses were giving you a hard time. The soap box Derby sounds like a lot of fun, and I bet Stevie will have a total blast. Queen Poster decrees that you also have earned the title of Princess Poster! Way to go, Princess Denise! LOL
Hi Debbie and Ashleigh! It's great that you could join our not-so-little family. Hey Ashleigh, how old are you, better yet, how old is Mom? (Kids always tell the truth about that! LOL) Do you have any brothers or sisters. My name is Shawna Wright and I have four kids. Robbie, 15, Janine, 13, Jennifer, 10, and Michael,8 (DS). Hope to talk to you or Mom again really soon. Welcome!!
Mary L, I'm glad you had a wonderful dream birthday supper! You even avoided the tubes and the ball pit!! You go, girl. By the way, do you have relatives in Alberta? I had a girl by the name of Roxanne Lyons as my sister-in-law for a year or so. I think her mom's name was Garnet. Just wondering.
Jackie, just send my e-mails to this address! Yahoo seems to have problems sometimes, but this e-mail has never failed yet! Your story of the kids bickering at the table over nothing sounds suspiciously familiar. You got one of those hidden Cams at my home, hmmmmmmmm?
Radonna, you are losing your touch, girl! LOL
Susan, hey, didn't your mother ever tell you that if you eat just before bed, it will give you nightmares?? Congrats on the awards, Emily!! Good Behavior!! (I forgot)!! You go, girl! Don't you just love it when the school keeps you informed of what's happening? NOT!! That gun episode just freaks me out! Your fishing tale was really cute. I have a funny fish story too!! And it's true!
Shawna's Fish Story
About six years ago we were out camping for a week with some friends of ours. She was a divorcee with three kids.
One day, Lawrence (my hubby) found that there was something wrong with the boat motor, and he had to get parts to fix it. No problem, except we're two hours from anywhere! He goes off to get his part,and he takes Robbie and Michael with him.
Now it's just the girls at camp (my friend has only daughters) We mothers decide to go for a walk down to the lake where one of my friend's daughters was fishing.
All of a sudden, she caught a fish!! She swung it up over the dock, and the fish fell off the hook, onto the dock and started flapping madly about.
We manage to catch it, and take it up on shore so it can't "get away".
There's a problem. How do we kill this poor innocent fish? (which I should mention was a Rainbow Trout) I couldn't find my husband's fish clubber anywhere. And, all the tools were in the car.....100 miles away!
Not even a pair of pliars, couldn't find a big tree branch, nothing. We also couldn't just let it suffocate. It was obvious that the poor fish was suffering! Releasing it just was not an option, either! What to do??
I had a brilliant idea, okay, it was just a regular idea. What about one of the paddles from the boat? They were a "little" long, but what else could we do??
So there I was, whacking this poor old fish with the end of the paddle! And, I might add, cracking up with laughter at the ridiculous scene we must have presented. (I sure wish we had it on video! America's Funniest Home Videos, here we come!! But, the only pictures are in my head!)
Finally, the fish gave up his last breath. The campsite was waaay up the hill from the lake. Someone had to carry the fish. The 11 year old girl who baited her own hook and caught her own fish WOULD NOT carry it back to camp! Her mother looked a little squeamish about the whole thing too, so yours truly got to carry the fish!!
I also got to try my hand at filleting it. I think that having a fish fillet that is one big piece is highly overrated. Far better when you have about twenty smaller ones!
That's the end of the big fish story!! Roflol
Ro, I'll be more than happy to to Orlando to meet the Tutty family. I just have one question -who will pay for my airfare so I can fly there? LOL Well, I really would like to go!! LOL
Cindy, I'm glad that the girls get their swimming lessons!!Their response to MORE lessons was so cute!
Radonna, Me too! Me too! I wanna be able to write Big!......Well, maybe not. Look how much space I already take writing small!! LOL
Pam, when you mentioned to Ro about someone who could out-talk her, were you perchance talking about me?? Or maybe it was Radonna? She tends to just go on and on... LOL You have had a lot to deal with. My son Michael has been really, really healthy. I haven't had any of the problems you had to deal with. How old is Kristal? Is she your only child? I always have questions. Have you met Lisa Huppe, our resident Information Goddess? She has the answers to ALL the questions! LOL I'm glad to meet you and look forward to sharing your experiences. Me, I just talk a lot!
Wow.....Some days I even amaze myself!
*****************************************************
WHY MEN ARE PROUD OF THEMSELVES
1. We know stuff about tanks.
2. A 5-day trip requires only one suitcase.
3. We can open all our own jars.
4. We can make decisions without a support group.
5. We can leave a motel bed unmade.
6. We can kill our own food.
7. We get extra credit for the slightest act of thoughtfulness.
8. Wedding plans take care of themselves.
9. If someone forgets to invite us to something they can still be our
friend.
10. Underwear is $10 a three-pack.
11. Three pairs of shoes is more than adequate.
12. We don't have to clean the house if the meter reader is coming.
13. Car mechanics tell us the truth.
14. We can sit quietly and watch TV with a friend for hours without
thinking "He must be mad at me."
15. Gray hair and wrinkles only add character.
16. We can drop by and see a friend without having to bring a little gift.
17. If another guy shows up at a party in the same outfit you just
might become lifelong friends.
18. Your pals will never trap you with: "So, notice anything different?"
19. We are not expected to know the names of more than 5 colors.
20. We are totally unable to see wrinkles in our clothes.
21. The same hairstyle lasts for years-maybe decades.
22. We don't have to shave below the neck.
23. A few belches are expected and tolerated.
24. One wallet, one pair of shoes, one color, all seasons.
25. We can do our nails with a pocketknife.
26. Christmas shopping can be accomplished for 25 people on the day
before Christmas and be done in 45 minutes.
*****************************************************
Well, that's about it for this epistle. Talk to you all later.
Shawna
Name: Marie
Web Site:http://
Date: Wednesday, May 17, 2000 at 13:31:03
Comments:
Susan dear i am silly!! i just found an unfinished email to you in my outlook express that i thought i has sent already so i am sorri for not emailing sooner. I will finish it up and send it ok? Just wanted to let you know, how are things going for you?
Marie
Name: Marie
Web Site:http://
Date: Wednesday, May 17, 2000 at 13:28:33
Comments:
my son is a genius!!! his IEP went so well, in his school he is now officially kindergarton status, which means he is working on a level in acedemics of a 5 to 6 year old without DS. (and hes 8!! mind if i brag a little hehe!)I am so proud of him and his teacher and OT and speech said he has made many strides. He's a whiz at basketball, he can shoot hoops into the regulation basketball hoop and rarely misses. Overall he is really growing and maturing. They were already planning to increase his speech to 2..1/2 sessions a week plus one group and he is also approved for the summer school extended year. so over all a very sucessful day and i am feeling pretty good about it!!:):)
now all we have to do is work on this compulsive stuff and temper and he will be all set!!
just wanted to share that it went well. have a good afternoon all
marie
Name: Marie
Web Site:http://
Date: Wednesday, May 17, 2000 at 13:18:32
Comments:
To Debbie, i totally believe it can happen with regards to your post. I also believe temperature changes can effects kids with DS, as my son will definitely worsen in behavior when it gets warmer, and until he adjusts to the change to heat he does act up more. But i think the moon can affect, i thought it sounded weird when i first heard that several years ago. Anyway good luck and thought i would respond:) take care
marie
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Wednesday, May 17, 2000 at 11:35:46
Comments:
*******Thank You RO**********
Pam:I e-mailed you. Kaden had cataracts and has hearing loss too. He never really gave me much problem after the first 2 weeks about wearing his glasses.
BTW we had a discussion on glasses once before and I had said that wire glasses didn't work for Kaden well when we went to get his new glasses and I told the lady about all the positive things I had heard about wire, and asked her WHY it didn't work for Kaden. She informed me that I had never had wire glasses with Kaden the ones that he had were metal.
Susan. I hate spiders as bad as you hate frogs and Lizards. I had a ball Python and an Iguana before. They didn't bother me much, except I also had Hamsters and I had handled the hamsters before cleaning THE BOSS' Pen and he locked on to my hand. I had another ball python named Sylvia and Kaden was obsessed with the snake. It got so big that I was worried Kaden would learn to let her out when I wasn't around. So I had to get rid of her. Snakes really have a bad reputation. I'd rather hold a snake than be in the same room with a daddy long legs!!!
Debbie: In Nursing homes Full moon cause the patients to get antsy and Labor can sometimes be hurried by a full moon. Kaden is pretty hyper all the time, so I have never noticed the effects of the moon on him.
To No name. The reason that i didn't respond to your first post was because I don't know how to. There are a lot of things that I am in the dark about and I don't want to aggervate the situation any more.
If you want to e-mail me and stay anonymous, you can get a hotmail account to e-mail from there.
Well My husband wants to start spring cleaning so I will be off the internet all day long.
Shawna:):):):)Hello!!!
Bye Bye
Radonna
Name: Trene
Email:aakgarey@gpcom.net
Web Site:http://
Date: Wednesday, May 17, 2000 at 11:21:00
Comments:It's been a few weeks since I have posted, Kellan has been in the hospital. He started throwing up everything he ate, and was also very constipated and had an ileus. We now have to tube feed him at every feeding. He is at very high risk of aspiration. Because of the EA his esophagus doesn't have very good motility and probably never will. Not the news I wanted to hear, as it isn't something that can be "fixed".Alissa thanks so much for the e mail I plan to respond as soon as I get my life back to "normal"!!!
Now we are trying to put some weight on Kellan through the tube feedings, we also have a pump to use at night, although as of now i just get up and do boleus feedings, however I don't know how long I can feed him every 3-4 hours around the clock without falling asleep during the day!!! \
Does anyone have any experience with feeding pumps? He is also on VivonexTEN with Microlipids added for fat.
Have a good day everyone!
Name: Debbie/Ashleigh's mom
Email:purvis@btconline.net
Web Site:http://
Date: Wednesday, May 17, 2000 at 11:10:11
Comments:Hello all! I just have kind of a weird question. Does anyone notice changes in their children's behavior during a full moon? Ashleigh is almost 6 years old, she is in Kindergarten. She just had an absolutely horrible day yesterday, and her teacher really thinks it has to do with the full moon. I hate to try to "blame" her bad behavior on something, but her teacher told me today, that if the moon was strong enough to do all of that with the tides and the ocean and the chemical stuff, she really thinks the full moon DOES affect our ds children because of the chimical imbalance in them. I don't know, I know it sounds kinda weird, but also kinda interesting! Just wanted to see if anyone else noticed anything in your children. Anyway, I hope everyone has a wonderful Wednesday!
Debbie
Name: Jackie
Email:grannyjj@hotmail.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 11:00:04
Comments:Judi.....sent you both my email addresses....hope you got them because as I've stated I have trouble emailing to Yahoo. Did check out the special child site and read your story about the boys. Couldn't find the multiples club site. Are the boys on Uno Mas?
Jackie
Name: Judi
Email:judig2@yahoo.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 10:10:50
Comments:Jackie: Send me your e:mail addy again, I accidentally deleted it!!!
I have something I need to forward to you. It's about MHMR funding for the State of Texas.
If there are any other Texans out there, let me know and I'l forward to you also.
Can you believe they want to underfund and are talking about institutions again????
Gotta let them know what we think about this before friday.
Judi
Name: patty moore
Email:pattymm1@home.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 09:54:40
Comments:Susan, thanks again for the book reminder. I'm going to get it today:) They have it at our regional center, but I think that I'll need to buy one for reference, don't you? Is there an address in the book where I can order her newsletter?
Kaila is feeling better, thanks for asking. I'm sick now, and so is her 19 year old brother. I'm sending Justin my 8 year old off on the bus this morning, because I'm afraid to drive.
Name: Pam Kristals Mom
Email:bcb75@yahoo.com
Web Site:http://
Date: Wednesday, May 17, 2000 at 04:08:11
Comments:
RO dear I didn't think I would find anyone that could out talk you but girlfriend I think she is here. Man can she keep me in stitches. I love her post and jokes. Is she related to you or something LOL :) She is something isn't she. And to all the MOMMIES out there HELLO from KRISTALS MOM. I'm a oldie I have been around and done things that you have rightly available for you today and i just want you to know that I am here if you need someone to talk to ok.
My daughter was born with a VSD-PDA and had cararacts on her eyes and was deaf in one ear and trouble with her hearing on the other. She also had Thyroid problems and had to take meds for it. And she had to wear glasses at the young age of 1 1/2 yrs.
Oh, by the way, We had problems wearing them at first but by smacking her hands and telling her no! no! pretty and then getting her intrested in looking at something or a book with pretty pictures I worked hard at getting her interested in something else especially when she wanted them off. But, mommy won 99% of the time.
I hope you all have a very nice day and give you little ones a extra hug for me.
Sincerely Pam Kristals MOM
Name: Susan
Web Site:http://
Date: Tuesday, May 16, 2000 at 23:33:11
Comments:Radonna,
When RO teaches you how to do the really big letters, can you teach me???? Cause all I know how to do is these pathetically tiny letters and lots of.......'s and !!!!!!!!. How are you and where are you??? If I know you, you will be posting away at 2am while I'm having nightmares about lizards!!!! I'm avoiding even the thoughts of going to bed right now because I'm afraid of a repeat of that dream! YUCK. When Terry and I first got married, he had a pet Newt (Just like a lizard). The newts name was Wayne. Get it? Wayne Newt? Oh well...I didn't think it was funny either! As soon as we got married, that lizard had to GO!!! If my memory serves me correctly, I flushed the little guy down the toilet. Now he's coming back larger than ever to haunt me during my sleep.
LOL...now everyone at Uno Mas thinks I'm a total lunatic! Oh well, I'm counting on my friend with the pet cows to understand!!! Some people are afraid of spiders.....for me, it's lizards and frogs.
Better stop now. Night! Susan
Name: Ro
Web Site:http://
Date: Tuesday, May 16, 2000 at 23:15:03
Comments:Radonna:)
I will get your e-mail and "TRY" to teach you the
large letter writting:)
Bear with me:)
Ro
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 22:16:53
Comments:OOOOOOOOPPPPS! I forgot something......Shawna, I would be happy to post a photo of Michael for you. If you want me to do it, you could snail-mail me the photo and I could scan it and submit it and then send your photo back. (Unless you can think of an easier way) If you'd like me to do this, email me and I'll give you my home address. I'd love to see a picture of him!!!
Name: Cindy
Email:scottcindy@jps.net
Web Site:http://www.jps.net/scottcindy
Date: Tuesday, May 16, 2000 at 21:54:14
Comments:Thanks everyone for your suggestions about the ears plugs. We ended up getting the silicone ones-though they are kinda hard to get to stay in her ears (they always seems to stick to my fingers and she's sitting there saying OOOWWWWW while I'm trying to push them in). Anyways, both the girls had a great time at their lesson. Kaylee kept yelling "HI MOM! HI DAD!"from across the pool-it was very loud and very funny. I thought the lessons were $23.50 a piece for a set of 5 lessons. When I got there they said "Ok, so $140..." oh dear. I could've crawled under the counter, it was kind of embarrassing. They gave it to me for the price that was told to me on the phone though, they were really nice.Anyways, I appreciate the help on such short notice for those who posted and those who e-mailed! I told the girls at bedtime that we would go again on Thursday and they both looked at me and said "WHY?" I guess they thought it was a one shot deal, now their done! too funny-but are they ever excited now to go again!
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 21:29:53
Comments:
Hi!!!
Jackie, I have no idea about why your emails are undeliverable. But, we have another email address. You can always send emails there: Sixpaces@MultiPro.com Would love to hear from you!
Debbie, It was great to hear from you here!!! I didn't mention Ashleigh's name by accident really. I just couldn't fail to include her in my list of adorable kids. She is toooooooooo cute!!! And I was hoping you would post and tell everyone about her. I still hope to see her in person one of these days. Keep in touch!!!
Denise, I loved the letter from God. I am sooooo guilty of snatching things out of His hands, thinking that I can handle it. Is the pain patch called Duragesic (or Fentanyl?)? We use them frequently to maintain a constant level of pain control, rather than having to wait until the pain gets really bad. I really, really hope it works.
Shawna, I love your posts....the long ones and the shorter ones too! Sometimes I post away and then am surprised at how long it ended up. (I think this one will be one of those!) Anyway you just keep it up!
Patty, I talked to our ST about some of the comments the ST made to you about Kaila. She said that expecting Kaila at her age to be the least bit interested in dolls or anything that has to do with pretending is waaaaaaay off base. And....what in the world is wrong with clapping for herself? She suggested a few things: One of the first overall goals should be for her to learn about turn-taking. This helps to prepare her for the give and take of talking. I know that sounds strange, but she says (and I think the same idea is in Libby Kumin's book) it's a great first step. She used to do lots of little fun stuff with Emily and then say "your turn" and would let Emily do the same thing. Things like putting a wooden puzzle piece into place (a really easy one like a circle shape with a knob to hold onto). Games like Patty Cake and Peek-a-boo are great at this age, and I think you said you already do that. I highly recommend the book. I wish I could remember what I did with all the newsletters from Libby Kumin. They were FULL of ideas. Also, did the ST recommend any oral/motor exercises? I hope Kaila is feeling better.
Marie, Good luck with the IEP. Every single year I get all worked up about it...even lose sleep for a night or so before the meeting. But for the last several years, I couldn't have asked for them to have gone better. It's so good when they listen and then work together with you to do what your child needs. It's great that Jared's speech is improving so much right now. Let us know how the meeting goes.
Alissa, It was good to hear from you again. Hugs and prayers to Erin!
Mary L, ROFL!!!! When I asked you yesterday if you played in the ball pit, I was just trying to think of the one thing at Chuck E. Cheeses that would be funny for an adult to do. I didn't even think about the syringe scare from a while back. I did hear recently that the whole story was made up. Anyway, I hope you had fun. My favorite thing to do at Chuck E's place is to play Skee Ball.
Can I just take this moment to brag on Emily for the millionth time????? Today at her school, they had an awards ceremony. Unfortunately, I didn't know a thing about it at all and didn't go to it. I sure hope someone was there with a video camera..... BUT, Emily recieved TWO awards!!!! One was for "excellent behavior"!!! Honest!!! ( no one was more surprised than her mother. lol) The other one was for most improvement shown in PE.
A really scary thing happened today at Emily/Justin/Jordan's school. A 2nd grade boy brought a GUN to school!!!!! He is also in Emily's resource class and is a bit hyper, but I would never have expected this. He showed it to someone the minute he got to class this morning and thankfully it was NOT loaded and it was immediately taken away from him.
RO, I would give anything to go to Orlando to welcome Spencer and his family!!! We keep trying to find the perfect time to take our kids there. ( It's about a 12 hr drive). I want the kids to be old enough to remember it but not so old that they don't want to ride the rides with me, and I want to wait till it's not too hot and when we have plenty of money!!! I'd LOVE to meet Spencer, but I don't think we will manage that list before June 6th!!
Have a great time with Teddy!!
Radonna, I sure needed some pointers today on the fishing trip. Watching them bait the hook with a worm that looked more like a snake really grossed me out. The minute I put the line into the water, something took away nearly all of the bait in 1 quick bite! And missed the hook altogether. The funnest (is that a word????) part of the trip was that there is a huge swing (the old fashioned kind made with 2 ropes and a board seat) that goes out way up over the water. It was so much fun!!!! The patients enjoyed watching us "young-uns" swing. Pretty cool to get paid for a day like that! But my real work remained un-done and that was stressful. What is Kaden "into" these days???
On the topics of hamburgers: I was born and raised in Wichita Kansas. There is a local place there called the "Nu-Way". They make the BEST burgers, but they are really different. They cook the hamburger crumbled up...you know, like you were making sloppy joes? They cook lots of onions in the mixture and top it with pickles and mustard and put it on a steamed bun with melted cheese. My mom has even bought them and froze them and then took them back to California with her to share with the rest of my family who crave them!
Time for bed. (AFTER a snack!!!) Night to all! Susan
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Tuesday, May 16, 2000 at 20:11:30
Comments:Hello Peoples!!!!!Judi. I don't believe we have ever met. Tell me more about your family.
Jackie:) Another choice for a perfect Burgur. Bacon, Swiss, and mushroom patty melt. LUUUVV them.
Cindy:)Shawna:)Marie:) I am smiling at ya!!
Susan: Mikayla's Mom is Karen and her story is on the story board. I e-mailed her and asked her to post.
HIIIIIII SHERI. How is Jared?? Haven't heard from you in a while:(
To Everyone else I have to meet my Mom and I am so late, so SMILE be Happy and I will post more Later!!
This is the shortest Radonna post EVER
Radonna
Name: Jackie
Email:grannyjj@hotmail.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 19:22:35
Comments:
HELP......can someone tell me why my emails to Susan and Judi (and sometimes Shawna) all at Yahoo email addresses are always undeliverable...something I'm doing wrong????
Jackie
Name: Debbie/Ashleigh's mom
Email:purvis@btconline.net
Web Site:http://
Date: Tuesday, May 16, 2000 at 17:42:52
Comments:Hello Ro! It's very nice to meet you, too!!!!
Name: Denise
Email:DZeke@aol.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 17:41:22
Comments:Good evening all. Anybody miss me? It took me 24 hours to get myself admitted to the hospital and be given pain meds. I was in tears let me tell you. My docter and I came up with something new though. It's a narcotic patch that only has to be changed every 72 hours. I dont know if it's working yet or not but at least it's not making me tired so I don't have to worry about being home alone with Stevie.
Shawna-You don't post to much or too often. I look forward to your posts, keep it up please. You too Radonna, I like your long posts.
I don't remember who was writing about horse therapy but Stevie rides every week at school and he loves it. He just got to the point were he can tide by himself and nobody has to hold the reigns anymore.
Ro-I hope your visit with Teddy goes great. How long is he staying for?
Jackie- I too think it must be in the genes. Stevie loves loud music especially through his headphones. The T.V. volume also goes up as soon as I walk out of the room. As we speak, he is listening to one of his books on tape as he's watching a video on t.v. with the volume all the way up. He also loves to talk to himself and giggles hysrerically if I catch him
Susan-Hope Emily has fun at the zoo. Can't wait to see the pictures
Lisa-Hope alex is feeling better soon. Can totally relate with your having a migraine. I would definately call the docter if it's no better by the morning. Let us know how your feeling please.
Allissa- I'll be praying that all goes well with the heart surgery for Erin. Big hugs are coming your way from me and stevie.
Sorry if I forgot anybody but I'm getting tired out. I just got a letter in the mail that Stevie gets to participate in a challenger soap box derby race again this year. It was so cool. All the kids go really big trophies and Stevie had his picture in our local paper. (Cause of course he was the cutest kid there, lol:)
Okay one last thing before I really go. I got a letter from God in the mail that I wanted to share.
To:All those who believe in me
Good morning, I am God. Today I will be handling all of your problems. Please remember that I do not need your help. If life happens to deliver a situation to you that you cannot handle, do not attempt to resolve it. Kindly put it in the SFGTD (something for God to do)box. It will be addressed in My time, not yours.
Once the matter is placed into the box, do not hold on to it or remove it. Holding on or removal will delay the resolution of your problem. If it is a situation that you think you are capable of handling, please consult with me in prayer to be sure.
Because I do not sleep nor do I slumber, there is no need for you to lose any sleep
Rest my child. If you need to contact me, I am only a prayer away.
Love Forever,
God
Hope everyone has a good evening!
Name: Mary L.
Email:marylyons2@excite.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 17:22:55
Comments: Thanks for the birthday wishes everyone. We had a great time at Chuck E. Cheese. Luckily there was no birthday song from the Chucker himself and I avoided the tubes and ball pit. The boys had a blast. I had Patrick in a carrier where he could face the front and he even seemed to enjoy himself.
Have a great evening everyone!
Mary L.
Name: guess who? I don't want to say!!
Email:mrs_talk2much@yahoo.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 17:02:48
Comments:
OOOOOOPS!!"DID I DO THAT?"
Name: Shawna
Email:mrs_talk2much@yahoo.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 16:57:02
Comments:I'M BACK!!Just as soon as I check on Michael...
He's been really tired the last few days, and last night he was up until 10:00 PM! So, I kept him home, allegedly to sleep. I ran into some friends downtown this morning and had a coffee with them, and Michael started falling asleep in the restaurant. That's it, though. It sounds like he is trying to get into Janine's bedroom. He loves to go in there.. The bad part is, then he tends to trash her room! So I locked her door for her; what a good mom I must be!! LOL The way I figure it (when I'm not in my PMS mode and all depressed and anxious!) is that if I don't laugh at myself, then what will I have to laugh at? Don't I just sound so wise?? LOL So far from the truth, you ladies will never know how far, UNLESS .......you all decide to carpool or planepool and come up for a surprise visit to see if I really am like this! LOL We got room. I figure I can pack at least 200 bodies in my yard!! It'll be end-to-end, but I'll get you in! LOL So, to warp an old saying..."Come onnnn up! Or "over" if you are one of my fellow Canadians!LOL I'm glad that this bout of feeling pitiful is over! Right on! What do you mean.....menopause? That's not until I'm REALLY old, I think I'll be ready to face menopause when I'm.......about 150 years old! LOL
Michael's making noises about going outside, and generally acting bored, so I think I might have to go. I'll post this, and EVENTUALLY respond to you lovely-spirited ladies! That's for all the "little teapots, big teapots, toasters, and roasters. Me, I think I'm more in the JUMBO teapot category, but hope to go down to Micro teapot, you know, the one-cuppers!
Right now Michael is busy throwing all his stuffed animals BACK on the bed. These are the same animals he spent the morning throwing OFF the bed! LOL At least I know where he is. With every "thud" as Leonard, Bo, Bubba, Harold,Mitch, Miss Piggy, Winnie the Pooh, Susie....hit the wall, I know Michael is in his room. Then he Had to come out to the office with a toothbrush and toothpaste on it. Now he's playing in the kithchen sink "washing the dishes".
I just thought you'd all want to know EXACTLY what my son does on his day off from school. Now it's potty time, in the dark, no less! Don't ask me why no light. He's using a teaspoon as a mirror! That boy is SO INTO MIRRORS!! Now he wants a bath! Well, that should keep him for a few hours! Maybe I'll actually get to finish my post. But the other kids will be home in half an hour!! LOL
Ro, in case you couldn't tell from the length, I think a person could recongize my post from all the exclamation points I use!! See what I mean! LOL!!!!! I'm going crazy! Can't stop exclaiming!! Somebody, tell me, how do you stop this thing??(Oh, I forgot!)!!!
Finally, he's in the tub!! Now all I have to do is remember to turn off the water!
Radonna, about Doretta, that's ANOTHER thing we have in common! In MY church, there was a young woman named Doretta (ok, Angela) with DS. She passed away at the age of 21 (I think) a few years before we started attending!
Patty, I'm sorry to hear about Kaila's dehydration. I hope that she is doing better now. I'll keep praying for a full recovery for Will. I think God has plans for that boy! (Tell me one person He doesn't have plans for! LOL)
Jackie, thanks for the feedback about piano lessons. I wasn't planning on finding him a "special" teacher, I was just wondering what was the best way for him to learn. We'll just have to "play it by ear" LOL Some days, I'm just so sharp! I'd better not sit on myself! I hope that Emily does get married some day. I hope that for Michael too, I want him to do and be all that he can. I hope that you and Emily enjoy the hunt for the "perfect cheeseburger". I'm a mushroom burger lover, myself. Good luck on Emily getting her driver's license. Kinda a scary thought, her driving, I bet! I think that you might be right about Music Appreciation being on the 21st chromosome. Michael is the same way
too!! As I've been reading about Emily's Escapades, I've come up with a few chapter titles for you!!
1. Emily Goes To School (Leaving Jackie Sobbing At Home)
2.Emily Learns To Drive, and Jackie Looks For Hair Dye!!'
3. Emily and Mystery's Hair!
4 Emily and The Walking Hormone.
Okay, I'm not at my most inspired, but I thought up the title for your book! That should count for something! LOL Okay, okay, if you're going to make a big deal out of it, I'll let you use the title YOU made up for your book! Sheesh, you think people would welcome my unsolicited advice! ROFLMHO!!!!!!!
I forgot one thing - about self-talk. Michael's been doing it for two or three years now. He got some hand puppets to play with at playschool or kindergarten, and that started it. He also talks to and with his stuffed animals a lot. Sometimes if I want him to do something and he won't, I'll talk to the animal. The self-talk can be rather amusing at times. I'll say, "come and eat" He'll say "no", "michael, time to eat!" and come and eat.
HAPPY BIRTHDAY, MARY L!!!
I did have this in my post yesterday, but the computer ate my homework and I didn't get time to re-post. Did you enjoy your party at Chuck E. Cheese? LOL
Steff, I think your "correction" of Olivia's pronunciation was PERFECT! I'm not always that perfect! LOL If you happen to read this while you're still in Canada, if you e-mail me a phone number in Toronto where I can reach you in the evenings or the weekend, I can phone you. For me, it has to be after 6 PM, that would be 8 PM in Toronto! Just a thought! Wish I'd thought of it sooner.....
Your Bubble Bread sounds yummy, I'm going to try it!!
That reminds me...my recipe for Hungarian Bubble Ring is very similiar to Bubble Bread, except that you roll the balls of bread dough (or roll dough) in melted butter, then in a blend of brown sugar and cinnamon (to your own personal preference), then they are layered in a well-greased cake pan (I use an angel cake pan). I usually sprinkle some extra brown sugar/cinnamon on the bottom of the pan too. Then, I let the dough rise for about half an hour or so, until about doubled, I guess, and cook in the oven at 350F for about half an hour. Like I said, very similiar to Susan's recipe. Another thing I've done is sprinkled sliced almonds in this. This is our traditional Christmas Day breakfast!
Susan, don't you know that something has to be 100 years old before it's an antique? LOL I don't think you're QUITE there yet! LOL Or maybe you are, and you've been holding out, how you are the OLDEST MOM IN THE 20TH CENTURY!!
Adrienne, if you're reading this: HI!! HOPE THAT YOU AND THE BABY ARE DOING WELL. CAN'T WAIT FOR YOU TO GET A NEW MONITOR!
Annie, I'm sure that you're already counting the days, have you got to the point of counting the hours!! LOL Hope the little one's arrival is smooth and uncomplicated. I'd say painless, but for most people, that's just not the way it is!! LOL Congrats in advance!
Alissa, at least you don't have to wait too much longer for the surgery. I will be praying! You're correct, my husband is going to be gone for half-of-forever. It's been about two weeks now, and things are going pretty well, I think. No MAJOR crisis or catastrophes! There was the time I thought I'd killed Word, but I got it fixed (I was somehow deleting all my toolbars!) I'm slowly learning a bit more about the computer. LOL
Lisa, how's it going? You keeping busy "educating the educators"? Way to go, Alex, let's see "more" of that signing! I'm sorry to hear about your migraine! Hope you get relief soon. That must be tough, especially with an active toddler!
Mary T, Pretty soon we'll be on the same continent!! I'm just so excited. Then there'll only be about 3000 or 4000 miles in beween us! LOL
Info Goddess, I need your help. I don't want to make you think too hard with a migraine, but how far is it from the US/Canada border between Alberta/Montana down to Florida? LOL
Susan, post a pic for me, would ya? I tried to scan a
picture of Michael with our black and white scanner - I got a big black square, when I went to grayscale, I got a big black square with some white blobs in the middle!! Hey, I tried. Hafta try something else!
Mary T, you might be right about the bowling too! I took Michael bowling once and he loved it - the only problem came when he tried to chase the ball down the lane! LOL
Cindy, can I get the recipe for your raspberry breakfast cake, or whatever exactly you called it? I just remember Raspberry! About nose-blowing, good for you Kaylee! Isn't it amazing the things you learn are skills...How EXACTLY does she pick up her Cheerios?...Does she roll front to back or vice versa?...Does she crawl army style, straight-legged, or "normal"?...When she counts to three, does she include 2 1/2? LOL (It was supposed to be a joke)
AND, I HAVE REAL PRACTICAL ADVICE FOR YOU, CINDY. I ACTUALLY DID EXPERIENCE THIS!! I have so few "issues" that usually all I can offer is my opinion, but I KNOW about earplugs and swimming!! When Michael had tubes in his ears, the ENT suggested silicon plugs for his ears. They are just a ball of silicon that can be formed to perfectly fit their ears. They also sold a "headband" that fits over the head and ears. They do work, Michael used them for a number of months, until his tubes came out!
Ro, you'd better talk to that bus driver! Why are they on the bus, anyhow? You were wondering what happened to my novel? Well, beside being lost a few times, not much. Besides, I wanted to make sure you had a chance to catch up!! Hope you're caught up, 'cuz I'm coming!!
Radonna dear, you just keep a-folding your money! LOL
Marie, I hope that Jared's IEP goes well. I can totally relate to feeling down and discouraged, I do it every month or six weeks!
Judi, LOL. I'm laughing because when I color my hair, I color it red! (I use Color Casting by (I forget), color Redwood. My hair is that kind of mousey brown that's a pretty even mix of all colors, but when it's long, it ages out reddish. It looks okay red, but I don't dare wear pink. Someone told me that I actually could, but I don't think so. When it's colored, it's more like that dark red (I forget the name again!)or reddish brown. Auburn, that's word I was thinking of! Anyhow...I'm sorry you have such difficulties with coloring it. Did you ever try BLACK? Or are you trying to avoid the "Anne of Green Gables" look? I could chop it for you, but coloring is not my area of expertise. I think Lorena or (I forget who else) could help you. Someone knows about it, that's for sure.
Okay, now I sound like a real Dumb Canuck, I think I'll go. Besides, I want to see if anyone else had something to say in the last two hours!
Ciao for now.
Shawna
Name: INFO GODDESS
Email:lisahuppe@webtv.net
Web Site:http://
Date: Tuesday, May 16, 2000 at 16:43:39
Comments:Heather F. : Early Childhood Intervention
Name: Jackie/Emily D's Mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 16:29:13
Comments:
Still sitting at the plastic box instead of paying bills and cleaning up the house......sort of like the old lady in the wrinkled robe with her hair in curlers at the kitchen table with her newspaper, morning coffee and cigarette LOL....I am dressed...have been out....don't need curlers....don't smoke and drink teaLOL.
Oh dear, not sure I remember who I was replying to and if I look back I'll lose this...think maybe Heather.........
ECI is the wrong term...I think I meant ECE...early childhood education. ECI is the first three years or Early Childhood Intervention. All the silly acronyms have changed since we were there 17 years ago....I was referring to the preschool years in my post.....not sure in our case, too, that our regular preschool experiences weren't more valuable. Think the regular programs taught more to her Abilities and the intervention programs focused on her Disabilities.....of course that was in the "olden days" LOL
........you'll get used to alllllllllllll those initials before this is over...you'll never want anything monagrammmed again!
Jackie
Name: Diana
Email:hammer166@geneseo.net
Web Site:http://
Date: Tuesday, May 16, 2000 at 15:43:54
Comments:Hi everyone,
Cindy, I seen your post about ear plugs Jarrett has tubes
and we use water wax for swimming they come in a little ball and you just press
it in the ear and it forms to fit, I got Jarrett's at wal-mart.
Radonna...thanks for asking about Jarrett, we have him secured in baby jail there
is no getting out now,his crib turns into a toddler bed so we moved the mattress
to the toddler bed setting,its set so low that I cant even change him in his crib
anymore but a least we know he wont be able to excape.
I got alot of pictures of my little cowboy on the horse of course
he's crying in everyone but when I get them back I will post one
maybe this week when he goes he will like it and I can get
one of him smiling.
Ro...it was nice chating with you the other night,I was so
happy to find someone in there:)
I cant remember the little girls name but I see her in the picture
gallery this month, she had pigtails and who ever she belongs
to she is a little doll,love those pigtails:)
(((hugs)))
Diana/Jarrett's mom
Name: HeatherF
Email:flanagan@mail.burgoyne.com
Name:
Date: Tuesday, May 16, 2000 at 15:43:27
Comments:
Jackie - what is ECI???!!! I'm too new to this, I guess. I don't have all the lingo down yet!!
Name: Jackie/EmilyD's mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 15:15:01
Comments:Thanks all for telling me you like to hear about my Emily. I DO remember back all those years ago when I wondered what life would be like for her as a teenager and adult. The "adult" part is still largely a big???? but she did have a rich and lively teenage existence....and I'm happy to share it with you. I desparately hunted all those years for someone to have as a friend who had a daughter with DS and could only find people hundreds of miles away....too bad I waited so long to use the computer!
Emily and I do have a close relationship and we really do get along....most of the time. She does most of her complaining about me to her sisters on the phone (of course, they can't wait to tell me LOL) or she talks to herself in her room...any of you experiencing any of that "self talk" yet???!!!! I've always kidded Emily that she is her own best friend. Don't know what the experts theories are on kiddos with DS talking to themselves so much.... but my observation is that Emily often just doesn't have the ability to process internally so she simply thinks out loud. There is probably some really long detailed medical reason for this phenomenon with a hard to pronounce name....but I just don't need to know it. If she gets too
carried away in herself we simply laugh and say "Hey why don't you talk to us".....and then she does!
By the way, in case you haven't noticed yet.....a clue to my style on this board (besides...............'s)is my creative spelling. I just spell words they way I think they should look and if I'm not certain if it's right but it looks "pretty" I just leave it aloneLOL But....if I ever misspell anyone's name...please let me know...no excuse for that.
Just a quick kindergarten pointer to share.....Emily had a fairly high level last year in ECI. All of the kids in her class went into regular kindergartens so I felt like she would be really prepared. I related a few things to you about her having a full day of school since she was 6...but I didn't share her hardest battle. It was the "pace" of the day. Her ECI experience was more concerned that the kids learn things so they gave them all sorts of extra time. When Emily first entered kindergarten, she missed most of the breaks because by the time she slowly put on her hat and coat.......break was almost over. I related this to her ECI teacher who admitted she had not thought about that aspect. While individuals need more time in many things, socially this is what is going to set them apart from their peers and some things like dressing to go outside can certainly be speeded up with practice. I know I could have asked the teacher to assist her, too, but it was just one more thing that made Emily seem more needy and something she really needed to do for herself. This example is why I think it is good if the ECI experience can be in a regular preschool or grade school so parents and teachers as well remember that everyday life does have a certain pace to it.
The education "gurus" (and Info Goddess) are probably cringing at Jackie-who-is-not-a-teacher educational tips.
Didn't go to Arnold's for lunch...ate in the "Antiques" section of town on old Route 66 (for Mary UK) at The Golden Light Cafe...homemade fries. I even dragged Em into one or two shops with me :( I am on an eternal quest for 78rpm records for my old wind-up victrola. She always has fun, though, looking at "old-fashioned" things like dial princess telephones, typewriters, and Barbie dolls with short hair LOL
Jackie
Name: Judi
Email:judig2@yahoo.com
Web Site:http://www.snopes.com
Date: Tuesday, May 16, 2000 at 14:56:11
Comments:Heather/Susan: The info on the syringe in the ball pit is false. Whenever I get one of those e:mails warning me of something dire like killer spiders on airplane toilets, syringes in ballpits/pay-telephone's, forward this e:mail to 20 friends for a free trip to wherever, or asbestos in tampons, I always check the website posted above.
It is devoted to verifying or debunking the current e:mail "urban legends". It's pretty interesting, and I'm constantly amazed at what people will dream up and put on the internet as "true". I keep it bookmarked so that I can check when I get something to see if it's true or not so that I don't clog my friend's In-boxes with junk that's not true.
Hope helps you too!
Judi
Name: Shawna
Email:mrs_talk2much@yahoo.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 14:54:36
Comments:
Howdy, Folks!!
I am not very happy. I was just about to send my post (okay, my intro. post), and I accidentally wiped it out!
I just wanted to let you know that I am around, and in a few hours, you will get to read the latest installment of my novel.
I am serious about sometimes thinking that maybe I do post tooo much. It's pretty obvious that no one else is so long-winded. I worry sometimes that I am just being annoying or irritating. I think that maybe my introspection is due to "that time of the month" issues. I don't know about you, but I definitely have a phase when my anxiety and depression seem to raise up their ugly heads!! So, if I'm just being silly, well, that's okay. However, IF YOU THINK I AM WRITING TOOOO MUCH, LET ME KNOW AND I'LL TRY REALLY HARD TO QUIT. Keep in mind that I am NOT making any promises!
That was just my insecurity peeking out at you. One thing, it's okay to monopolize the conversation on paper! LOL
I was looking for a joke, and found this story. For those of you who are in the "emotional" phase, or even if you're not, better go get a Kleenex, this is a really touching story!
***************************************************
Value of Life
A store owner was tacking a sign above his door that read:
'Puppies for Sale.'
These signs had a weird way of attracting children.
And sure enough, a little boy appeared at the sign.
"How much are you gonna sell those puppies for?" he asked.
The store owner replied, "Anywhere from $30-$50."
The little boy reached into his pocket and pulled out some change.
"I have $2.37, can I have a look at them?"
The store owner smiled and whistled and out of the kennel came Lady, who ran down the aisle of his store followed by five teeny, tiny balls of fur.
One puppy was lagging considerably behind.
Immediately the little boy singled out the lagging, limping puppy and said "What's wrong with that little dog?"
The store owner explained that when the puppy was born, the vet had said that the puppy had no hip socket and would limp for the rest of its life.
The little boy got really excited and said "That's the puppy I wanna buy!"
The store owner replied "No, you don't wanna' buy that little dog.
If you really want him, I'll give him to you."
The little boy got quite upset.
He looked straight into the store owner's eyes, pointing his finger and said,
"I don't want you to give him to me. That little dog is worth every bit as much as the other dogs and I'll pay the full price.
In fact, I'll give you $2.37 now and 50 cents every month until I have him paid for."
The store owner countered, "You really don't want to buy this puppy.
He is never gonna be able to run, jump and play like other puppies!"
So with this the little boy reached down and rolled up his pant leg to reveal a badly twisted, crippled left leg supported by a big metal brace.
He looked up at the store owner and said softly,
"Well, I don't run so well myself, and the little puppy will need someone who understands."
***********************************************************
IN LIFE, IT DOESN'T MATTER WHO YOU ARE, BUT WHETHER SOMEONE APPRECIATES YOU FOR WHAT YOU ARE. A REAL FRIEND IS ONE WHO WALKS IN WHEN THE REST OF THE WORLD WALKS OUT!
********************************************************
CAR JACKING FOILED
An elderly lady did her shopping and upon return found 4 males in her
car. She dropped her shopping bags and drew her handgun, proceeding
to scream at them at the top of her voice that she knows how to use
it and that she will if required... so get out of the car!
The 4 men didn't wait around for a second invitation but got out and
ran like mad, where upon the lady proceeded to load her shopping bags
into the back of the car and got into the drivers seat.
Small problem: her key wouldn't fit the ignition. Her car was
identical and parked four or five spaces further down.
She reloaded her bags into her car and drove to the police station.
The sergeant that she told the story to nearly tore himself in two
with laughter and pointed to the other end of the counter where 4
pale white males were reporting a car jacking by a mad elderly white
woman...
no charges were filed.
****************************************************
Now you have something to read while I go write "The Post" LOL
Hope to see you soon! If not, "The Post" will likely turn into "The Novel" for real! LOL I just can't help myself, I have to say something! LOL
Ciao for now.
Shawna
Name: HeatherF
Email:flanagan@mail.burgoyne.com
Name:
Date: Tuesday, May 16, 2000 at 14:47:38
Comments:
Hi everyone (from Queen Lurker)!! Did everyone get to see the Hallmark commercial two Sunday's ago? Chris, his mom, my mom and I all bawled when we saw it. It was AWESOME!!!!Marie - please feel free to post whenever you are feeling down and are needing a "pick me up". We're here for you feeling good or not!!
Cindy - we haven't used them yet, but in the catalog "One Step Ahead" (they have a website too) there is a headband type of thing that goes over the ears to hold the plugs in place. Don't know how well it works, but this might be just the thing!!
Debbie - HEEEEELLLLLLLOOOOOOO to you too! It's wonderful to have such a warm "hello" posted, you made my day!!!!!
Allisa - Nicholas had heart surgery at age five months, so if you need to talk or ask questions I would love to help!! We took pictures of him the next morning after surgery, all hooked up and looking kindof scary. I would be happy to upload them for you if you think it would help with knowing what to expect Erin to sortof look like. I wish I would have seen someone's picture first, I bawled my head off when I first saw Nicholas.
Susan, and anyone else interested - I read your post about the "ball pit". I got sent an email a few months ago saying that ball pits have been taken out of places because people will put horrible stuff in there like: a syringe and a snake, just to name a few. THIS MIGHT BE TOTALLY FALSE, but then again, it might not be. Sorry, just want to protect our wonderful children!! If it is false, please someone let me know. I tend to believe anything!!!
Radonna - thanks for the warm "welcome back"!! It's good to be back (in ways I guess, vacations are always wonderful) and I always appreciate friends! (it's especially nice to be remembered since I am Queen Lurker!)
Michelle Mc - thank you for your post about how people generally are not mean. Nicholas is almost four and I am still TERRIFIED for him in life that people will be mean to him. We have already encountered that by a few different kids unfortunately. But I constantly need to be reminded that these rude children (and people) are the exception, not the rule! THANKS FOR LIFTING MY SPIRITS ABOUT THIS!!! And again, (well, it's been a few months) thank you so much for this site. You might not ever know how much it means to me and helps me!!!!!!!!!!!!
WHEW!!!! I don't think I've ever posted such a long message before!
Name: Judi
Email:judig2@yahoo.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 14:21:34
Comments:Jackie: You and Emily need to come to Dallas and go to a place in Deep Ellum called "Adairs" (Yup, owned and operated by a relative of the famous oil well fire figher Red Adair). They only have two things on their menu, CB's and HB's. I can personally vouch that you will find their CB's to be the best in Dallas!.
Ro: Yay! Give the Ted-ster a hug for me when he finally arrives. I don't know, he sounds pretty persuasive, I bet he just might be able to talk that bus driver into stopping and checking out them Louisiana 'gators!
Ok, completely off topic, but for all of you out there knowledgeable about hair coloring, help! What shampoo's won't strip color? Also, I have very long, coarse, dry hair. Use only conditioning shampoo/conditioners. I have an extremely hard time coloring my hair (and I have yet to find someone I trust to color it for me), and it's Red to boot! I need to find a color that won't leave me looking like Lucille Ball or Bozo the clown. Any suggestions? I'm going to try the developer creme if I can find a color that won't make me stand out in the dark. Thanks!
Judi
Name: Marie
Web Site:http://
Date: Tuesday, May 16, 2000 at 14:08:15
Comments:
Jareds IEP is tomorrow and i am planning on getting the extended summer school session in place, as well as more speech. Looking over last years, i realize that three 15 minutes sessions a week is NOT enough. Maybe it was for when he was younger but his speech is gorwing leaps and bounds and he needs more intense speech therapy. There is also going to be the issue of moving him out of his current placement and back into the school district which doesnt make me very happy, but i know it will come up and letting them know straight out that it's not going to happen, BUT if they can show me next year that it will vbe the best possible placement for him that i may consider it but the teacher he has now is so wonderful and experienced and he has one more year with her before moving onto the next teacher and i wont take that from him now. It's tomorrow at 11 am so wish us luck guys and i'll let you know how it goes!!:)
Marie
Name: cindy
Email:scottcindy@jps.net
Web Site:http://
Date: Tuesday, May 16, 2000 at 13:03:38
Comments:NEED SUGGESTIONS!QUICK!Kaylee and Emma are starting swimming lessons this afternoon for the first time ever. They are both Really! excited! My question is-what kind of ear plugs do you moms use-whose children have tubes in their ears? Seems like whatever kind we try they always fall out and it's a major pain!!! Kaylee gets really irritated with me if it takes more then once or twice to get them in. HELP! And, any of you whose kids took swimming lessons, how was it? They are both having individual one on one instruction-Kaylee because she's Kaylee and Emma because of her Erbs palsey in her right arm. So, I'm hoping it goes well.
Ro-did Lara take swimming lessons ever? How 'bout Teddy? Thought I'd ask you since I can see you've been checking the board today!! :)
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Tuesday, May 16, 2000 at 12:59:13
Comments:HELLO UNO MAS!!! Sure wish I had RO's capibilities to make this really LARGE!! NE-WAYZ Because I love each and every one of you sooooo Much I am going to share a Very BIG secret!!!Ya'll Ready????? I am going to tell ya'll How to double your money!!!!! YA FOLD IT!!!!!!LOL.
I will save my LONGGGGGG post for later till I have more to read!
Later Guys!
Radonna
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 12:41:35
Comments:Hey did Ya'll see that???????????????
Boy she sidestepped me easy as one ,two, three.
Didn't even mention my name:(
Deb this is Ro and as you see I shorten EVERYTHING:)
Nice to see ya posted today and It is nice to meet ya:)
Ro
Name: Debbie/Ashleigh's mom
Email:purvis@btconline.net
Web Site:http://
Date: Tuesday, May 16, 2000 at 12:18:38
Comments:Hello all!!! I don't post much, but I come here and read almost every day. I really love this site and think there are some wonderful people here! Susan ( silly ) I think you must have put Ashleigh's name in there on accident (about the pictures!). I know you know us!! Anyway, just wanted to say to Brenda H. that you have been in my thoughts and prayers. And HEEEEELLLLLLOOOOO to my two pals, Heather F. and Susan. I hope y'all all have a wonderful Tuesday!<>
Debbie
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 10:38:04
Comments:
Andrea how are you guys doing?
Kendall and Andrew alright?
Has the surgery been done or rescheduled?
I have been out of it haven't I the closes
one to me and I have a brain melt down:(
Post up when ya get home and let us know:)
Ro
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 10:31:44
Comments:Allisa,
Riding Therapy here is alot of little things
not just horses:) It has alot to do with sensory and
gross motor skills:)
The organization I have Lara and Teddy in use small
animals to help the child become accustom to the animals so
they can go for the big ones:)
It has alot to do with age when a child is introduced
at a younger age they MAY be less afraid of the animals.
No guarantees:)
They also use rings while on the horse to aide in
movement and playdoh for hand stimuilation.
It is really unreal on how a childs vocabulary picks up
when they deal with the animals:) They become JABBERWALKIES:)
I would suggest that you get her there as soon as health and
stamina allow:)
Lisa:)
I am glad Alex has the blowing thing down :) My kids
refused to blow and they DEFINATELY did not hand me a
kleenex:)LOL They RAN.
Hope she feels better real soon and your migrane
goes quickly. Can't have anything hindering our
INFO GODESS:)
Mary UK
"hair colour, number 10 Scandinavian lightest Blond"
I need to see a picture please:) LOL
I LMAO when I read this :)
Is there such a thing?????????
I for one will age NON GRACEFULLY:) I am afraid to dye
my hair not that it needs it yet:)LOL
Who do we have that lives near ORLANDO that can go meet
Mary, Bill, and Spencer:) Give them the United States
Greeting:) Wish it was me:)
Emily remind me not to bowl with ya'll:)LOL
Someone asked me where in Terxas I am:)
So many post I have scrolled past it aI guess:)LOL
I live just south of Houston on the Gulf of Mexico:)
Lake Jackson is the nearest "BIG" town:) but don't BLINK
Brenda H.
I Hope you feel better real soon and can keep us updated
on any damage that may have been done:)
Did I miss SHAWNA's NOVEL this morning????????
And once again where is Theresa???????????
and Brennen??????????????
If anyone knows anything let us know please.
Ro
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 09:58:01
Comments:EEEEEEEEEWWWWWWWWWWWWWWWWWWWWWWWWWWW
Cindy,
After your "BOOGER" post I hoped you washed your hands
BEFORE you made breakfast:)LOL
Ro
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 09:54:36
Comments:
I am screaming from roof tops cause the Tedster is
coming in tonight:)
Yes that is right TEDDY will be here tonight:)
He is a real character and He was very excited
this morning about riding the bus for so long:) Think
he will be so happy when he gets here???????
Probably not:)LOL
Ro always stops and sees the alligators in
Jennings, Louisanna and I don't think he can
talk the bus driver into doing it:)LOL The
passengers might like it but the driver has a deadline and
he will be in a hurry.
Well I have to finish reading and I am in a hurry right this second so I will be back later:)
Ro
Name: Cindy again
Email:scottcindy@jps.net
Web Site:http://
Date: Tuesday, May 16, 2000 at 09:36:50
Comments:Jackie- Your burger stories are making us want burgers every night-but you know the great thing about your posts is hearing what type of relationship you and Emily have! Tell us more!!
Susan-have fun at the Zoo!!!
Mary-we're thinking and will be praying for Spencer on the trip!
Lissa Huppe-blowing the nose is supposed to be a skill - didn't know this until Kaylee was a couple years old and they were all impressed that she could do it. Some kids in Kindergarten can't even do that-so WTG ALEX- you great booger blower you!!!
gotta run make breakfast...
Name: Mary from UK
Email:m.tutty@btinternet.com
Web Site:http://www.spencersite.net
Date: Tuesday, May 16, 2000 at 09:09:31
Comments:HI ALL again,
Jackie
I would like to confirm your theory about DS and loud music and bowls. Spencer is a real music addict (the louder the better) when he has his walkman on in his bedroom, we can hear the music above the TV. And his aim when he plays bowls is "spot on" he also loves to watch bowls when its on TV. And with us livings thousands of miles apart, it just has to be the chromosome 21 LOL
best wishes from Mary UK
Name: Jackie
Email:grannyjj@hotmail.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 08:52:46
Comments:
Mornin'
Well Genome Project People, I hope you are reading....I have had Emily home for 4 days and I want to be sure you found the genes for Bowling and Music (both loud and headphone variety)...Never met a person with DS who wasn't addicted to both...I've always maintained both these things are located on the 21st chromosome....if I could get in and fiddle around with those genes Emily would be a great bowler and maybe not end up deaf by age 30 LOL
Emily and her friend Theresa and I bowled all afternoon. Emily bowled over 100 every time which is a real improvement for her. At Special Olymics tournaments the athletes are subtley placed by averages with the ramp bowlers at one end and the big strapping pin crushers at the other end of the alley. Emily is often just a lane or two down from the wheel chair ramp bowlers. Oddly enough at tournaments she gets a shot of extreme ability (from Heaven Above, I guess) and usually gets a silver or gold. When we got home she told me it was fun and listed all the other activities she would like to do while home....then very nicely reminded me that she was 20 and she didn't need me to go with her...just take her please. LOL
Her Dad has told her he will let her try to drive the car....she has never even asked to do this....it is a real badge of honor now for older kids with DS to get their Drivers Liscense. I have no problem with getting the liscense....just one more challenge and chance to disprove myths of inability....but I do have problems with people who have slow reaction times and poor judgement out driving in public. Maybe I have been involved with the aging parents dilema for too long, but I doubt I'd just hand Emily the keys even if she got her liscense. She can take drivers ed at school in NM next fall if she wants to.
Susan........see I am a ........'er too.......thanks for the recipe......or was it someone else. Anyway thanks and as for Slim Fast it is still on the shelf. We haven't finished our rounds of perfect cheese burgers here yet. Today we are going to try and halt our quest with a trip to Arnolds....an absolute dive ....very popular with local truckers....but just a shack. Just the atmosphere should turn us off but it's sooooo popular I'm sure it is a high priority on the Health Dept list. I tried 2 years ago when the Oprah trial was here in Amarillo to psychologically turn myself off to beef......but the more I watched, the hungrier I got LOL
Radonna.....I just may have to come to TN and have that burger with you. One of my all time favorites clear back to my childhood in Kansas City is Winsteads. Lisa H. have you ever eatten there? My mother and my grandmother grew up eating Winstead Cheeseburgers and Frosties.
Well, I've now made myself nice and hungry and I haven't fixed breakfast yet. Have a good day all
Jackie
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 06:43:19
Comments:
Good morning! I remembered something that I forgot last night: I check the Uno Mas photo album every day and there are some BEAUTIFUL children on there! I would love to hear from their parents and know more about the children. I'm sure I will leave someone out, but the one's I can remember are: Raven, Ava Elizabeth, Noah, Lauren Joy, Mikayla, Sophia Jolie, Cassidy Rose, Austin, Ashleigh, Adam......If you are the proud parent of one of these little dolls, please post and let us know more about them. I would really love to hear about Mikayla's dance lessons. What age did she start? I have held back and haven't submitted any pictures of Emily for quite a while...(I think it's been a week!), but we are going to the zoo Thursday. A Kodak moment if there ever was one! And Tball pictures are sure to follow!
Have a wonderful day everyone. This time of year is my absolute favorite and today is going to be another gorgeous day!!!!!!!! Susan
Name: Mary from UK
Email:m.tutty@btinternet.com
Web Site:http://www.spencersite.net
Date: Tuesday, May 16, 2000 at 04:52:10
Comments:Hi, to you ALL,
Lisa
Your talk about the sign languish has got me curious. I wonder if it is the same one that Spencer was taught to use here in the UK 20 years ago? we call it "mak-a tow" (not sure how you spell that) its where the children talk and sign at the same time, it not only helps them to communicate with us parents, but with other disabled people too, although Spencer can talk plainly now, he has never forgotten the signs, and he still use's them at youth club to communicate with his more disabled friends (some non downs).
Its not the same signing that the deaf use. Is this the same signing that we were taught here in the UK??
Steff1
It wasn't me that asked about the hair colouring, it was Jackie Emily's mum. I always use "L'OREAL Recital preference" hair colour, number 10 Scandinavian lightest Blond LOL, its a lot milder than peroxide, and it looks more natural (for a woman of my age, that is still waiting for the HRT to work LOL)
Rodonna
We will be in Orlando on the 6th June and we will be staying there for three weeks. I hope you get ALL Kaden's medical problems sorted out once and for all, don't forget to kick up a fuss if you have to.
Tina
thanks for keeping us informed on Brenda H, its so scary ( my doctors have warned me that I am at a great risk of a heart attack if I don't quit smoking), I do hope she is feeling better. I hope ALL the girls are fine Tina
Ai Lay
I am so happy that every thing went well with little Shuxin's surgery "bless her"
One more thing Spencer says HI TO ALL OF YOU. And he is getting excited about going to Florida at last, but he is also getting nervous of the flight.
I hope I haven't missed any one out, I hope YOU ALL are doing well and also ((((hugs to your children)))))
Mary from UK
Name: Lisa Huppe
Email:lisahuppe@webtv.net
Web Site:http://
Date: Tuesday, May 16, 2000 at 01:08:05
Comments:Hey Girls!!!! I've been absent for a few days, but, after skimming down, I'm sure glad I was.
Alex has been a sicky-poo for 2 weeks now- nothing serious. kind of a tummy bug for a week, then an extremely runny nose for a week. Being my 1st child, I had no idea that a little nose could produce so much.LOL
Anyway, at first she hated the nose wiping (like all little ones) but today, she handed me kleenex, then turned her face up to me, she even blows for me (without my asking).Later, she sneezed, then raised her head to me again and pointed to her nose. Aren't kids usually alot older than 22 months before they do this?
She is usng the "more" sign on a regular basis now, although it seems she is usng it just about anytime she wants anything at all. The other night, she pointed to my ever present Diet Dr. Pepper, made the sign for more, then made the sign for drink, then whispered pop.pop.pop!!!!
Her eating is really picking up in the last few days. After sucha long struggle to get her to eat anything at all, now she has begun grazing all day and eating a bigger variety of food. She has always loved green veggies, even things like brocolli, asparagus and zuchinni (her favorite), finally, she is eating some stuff with calories, so maybe she'll gain weight.
Have had a migraine since Thursday. Actually ended up at the ER toget a shot Friday night. It helped till about noon Sat, and has been back ever since. Am even seeing stars periodically. I have never had it last this long, and it is really beginning to worry me. If it is still there come morning, I am going to call the DR. I am barely functionng and practically not sleeping at all. Been eating the pain killers with no relief at all
I know this post is unusually long for me, so I better stop before Shawna gets jealous-lol.
I'll be around if anyone needs anything from the INFO GODESS.
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Tuesday, May 16, 2000 at 00:28:43
Comments:I know!!!! It's me again. I was just so happy to hear from Alissa! I want to tell you that I will be thinking and praying very much for Erin to come through with flying colors. Kaden had his first surgury at 1 1/2 months on his left eye. The first one was the worst. Just wanted to tell you how much thought, love and prayer will be going your way on June 2.Radonna
Name: allisa / erin's mom
Email:allisa0@aol.com
Web Site:http://
Date: Tuesday, May 16, 2000 at 00:00:10
Comments:Hello to Everyone..... Happy Tuesday !!Radonna, thanks so much for missing me !!! I have just been real busy lately. The weather is turning so beautiful that we spend so much time outside then next thing I know it is dinner time, then the whole bedtime routine,and then I work at night and I run out of time !! When I do get back here, I have so many posts to catch up on. Appearantly, there was a LOT I missed, oh well, I don't have time to be negative so I never went back to read what happened.
All I can say it that I love this site.
Erin is doing great, thanks for asking. Her heart surgery is scheduled for June 2nd. Of course we are nervous, but will be relieved to have it behind us.
I saw a lot of new names I did not recognize.... hello to everyone !!
Like I said, there were a lot of old posts I missed, but in my skimming I saw these and wanted to respond:
Shawna, congrats on your daughters's music recitals. You must be very proud of all your kids. Did I read a LONG time ago that you said your husband travels for months at a time ? What a hard thing for both of you !! That must be hard to work back into a routine when he gets home. My husband used to work late into the night and I got so used to doing everything my own way, so that when he was home and tried to change anything in my schedule, I did not take it too kindly. It is so much easier when you don't have to compromise with anyone on decisions, "just do us all a favor and fo it MY way" hahaha
Ro, did you say that you have used the riding therapy? There is a farm right down the street from me that does it there and I was ienterested to know about it ( haha. my baby is only 3 months old and I am already signing her up for lessons !!)
Alice, Life Goes On is a TV show, not a movie. Sometimes they show the reruns on cable channels. I don't know if it is currently on a lineup now. After Erin was born, almost everyone we told about her DS brought up that show. It was kind of funny to us, we (my husband & I) made a little game out of predicting how long the conversation would go on until the person brought up the show, and we were very rarely disappointed, everyone used that as their example to say "it will be ok". I used to watch the show a lot when it was running. My husband and I both liked it.
Denise, I thought your story about Stevie @ Mcdonald's was cute. He must have been pretty proud of himself and I bet at the same time he was thinking to himself..."Sheesh, what's the big deal? I knew I could order it, why does Mom alwyas think she has to do it"
Well, it is nice to be back here at UnoMas. I missed you all !! I don't want to start naming names, because I will probably forget someone and then feel bad later, but I did really miss keeping in touch with the posts and hearing all the cute kid stories !
See you soon !!
Allisa (mom to Connor (6) Ty (2) and Erin (3 mos. DS)
Name: Lorena:Clark's Mom
Email:L719zecher@aol.com
Web Site:http://
Date: Monday, May 15, 2000 at 22:35:18
Comments:Happy Monday !!!
Happy Birthday MaryL !!!!
Steff: Business has been pretty good lately. This past week lots of Mother's day do's. I don't know about all the $$$$ but I do enjoy the work. Are you a hairstylist too...you know your stuff about haircolor, that is exactly what you would do for hair that is hard to color. The Prell, pert etc are just horrible on your hair....Laundry detergent will also take strip haircolor out incase you ever need to get rid of any unwanted color. I worked for a lady that loved prell becasue it made her hair nice and full. The sodium in prell swells the hair shaft and makes it fuller( and dryer)
I hope that Kayla( I am not sure how the spelling is) is feeling much better today!!! I am sorry that Mother's day was spent in the hospital!!!!
Hey Senior(Shawna) I will send you the monkey bread recipe...I have to find it in my recipe box. I will look tomorrow.I haven't made it in a long time. I know that it takes the pilsbury bisquits...It is real easy to make.
Had a long day today. Clark had PT at 8am. Then I went to the dentist to get a crown put on. Then I went to the school and picked up the boys...one is in one town and the older one is in another about 7 miles from the other school. Then we went to get pigs for the boys 4-H projects...a 2 hour drive to PA. We have 6 hogs in the back yard...cute little things. Clark loves them..he signs pig when he sees them. I am trying to get him to oink.
Well I am going to bed, I have to get moving in the morning. I have to go get pig feed for the little piggies. You all have a great day Tuesday !!
Hugs,
Lorena
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 15, 2000 at 22:19:29
Comments:Susan!!! Well if you catch a fish if your like me you feel real guilty and hurry and throw him back in the water. UNLESS you want to clean him and eat him. I wish I could make it to Cookesville for one of Emily's games. I have until June 18??BYE BYE for now
Radonna
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 15, 2000 at 22:08:26
Comments:Well I am posting AGAIN. If anyone gets exuasted by scrolling through my post. I am blameless. I am a UNOAHOLIC. If more people were posting I wouldn't have to talk to myself!LOLBrendaH: I believe I know who you are. I have been trying to call my grandfather all night to see if it was the same Greenhouse or not. My grandmother loved to go somewhere near coal city for flowers. She LOVED flowers and had a pretty impressive yard for awhile. I am praying for you and your family. You sure do have a beautiful one.
Mary from the UK: I LOVE your posts!! I expessially liked the part about Spencer telling the girl He had a new girlfriend. I don't know how I feel about Independent Living. I won't have to think about that for a while, but I guess I will just do what Kaden wants. Since the last time I e-mailed you Kaden has got some positive results from the Doctors, I have a guarentee that everything that needs attention will be done before school starts back in September. I usually enroll him Summer Programs, but Kaden's whole summer is filled with his Medical appointments. He will most likely have 2 surgury's one for sure and I am fighting over the eye's. When do you leave for Florida??
Patty: How is Kailia's dehydration? Is she feeling any better? I am sorry about your cat. I get so attached to animals that I cry for days if anything happens to them.
Issac's mother with a cat named Gunner:
am so sorry I forgot your name and not your cats. I just wanted to know how Issac's croup was and how he was feeling
MichelleMc: HI!!!
Where OH Where Has SUSAN GONE???? SUUUUUSSSSAAAANN!!! How are you???
Any one know How DENISE is doing???
Marie: How is Jared? Is he still throwing up? I am praying for you!!!!! Lorena...... I am putting you on my MIA list!!
NAHH you ain't been gone that long. Just long enough for me to miss you! How is the walking coming along??
Diana: How are things since Jarret gets out of his crib? Do you wake up with your house looking like it has been robbed??
Who's Baby is AVA??
Annie: How is Raven? Don't have much longer till the baby gets here do you? When I got this close I was sooooo miserable. I gained so much weight!! Did you have Raven C-section? When I had Jonathan I told them I wanted Drugs Epidural C-section whatever... NEVER did I plan on even trying natural child birth. GUESS HOW I HAD HIM...Boy was that a Suprise.. With Kaden he was so small that I hardly felt like I had a baby. I only had to push once!! With Jonathan OH HEAVENS that wasn't NATURAL AT ALL!!! Good Luck though. I remember how wonderful NEW BABY smells. Mine smells like cookies and all that now.
Alissa:WHERE ARE YOU HIDING?? ALISSA ERINS MOM OFFICIALLY ADDED TO RADONNA'S MIA LIST!! How is Erin??
Shawna: I am eating FUNYUN and enjoing them very much!! I don't have no jokes today:( No one has sent me any. I'll make up one
What do you get when you mix the worlds largest poster with her missing twin?
A:Shawonna.
I am pulling stuff out of the hat now because they are hardly any posts to answer and I am hoping if I post long enough by the time I get back to the board that they will be tons of posts!!
Jackie:I could write to you all day!!! Thank you for the nice post. Your posts are one of my favorites!! I love to hear about Mystery and the Walking Male Hormone Kenny. I have to tell ya though. My grandma use to listen to my phone calls up until I was 20!! I got caught in a lot of things. I guess all of us have a Walking Male Hormone in our pasts. How is the slim fast going? Never worked much for me. I love the choclate Shakes but I want a Burger and FRIES to go with it. In such for the perfect burgur, I wish you could go to Hohenwald TN to a little dinky grill called Crowell's HMMMMM thick juicy fried with green peppers and served with stuffed jalepino peppers. The dress that Emily has sounds beautiful. I want to say again how much I love your posts!!!
Well it is time for my Husband to get off work. I posted over the sink that no man has every been shot while doing the dishes I wonder if it will work?!!?
LOVE YOU GUYS!!!
Radonna
Name: Susan
Email:Sisfriend@Yahoo.com
Web Site:http://
Date: Monday, May 15, 2000 at 22:03:23
Comments:Hi everyone!
Ok, first the recipe for bubble bread. I think it probably is the same as monkey bread. You buy frozen roll dough in the freezer section. I think it comes in a bag of about 24. Put them into a bundt pan..or an angel food pan would probably work. Mix 1 stick butter, 1/2 cup brown sugar(packed) , 1 tsp cinnamon, and 1/2 cup pecan pieces and heat. Pour this mixture over the rolls and let them rise overnight. The next morning, cook for 30 minutes at 350 degrees. The fun part is flipping the pan onto a plate after they are cooked. The rolls pull apart and are really goood! (No, the FUN part is eating them!)
RO, I am so jealous of your big words! It does tend to be a good clue. My give-away is probably all the little......between sentences. Not sure why I do that. I just do.
Mary L, Happy, happy birthday! Actually, Chuck E. Cheeses is one of my favorite places! I'm sure you had a blast. Did you play inside the ball pit?
The tball game was too fun!!! Each player had a buddy to help them, but Emily ran off and left her buddy behind at first. You could tell she had watched plenty of tball games before. She made sure to tap the end of the bat on the ground before she considered herself "ready", then took 3 practice swings and WHACKED the ball and ran like crazy. The look on her face as she came across home plate was one I will never forget. She insisted on going to Dairy Queen after the game for ice cream. They will play every Sunday afternoon until June 18th.
Radonna, I sure wish you were here. Tomorrow we are taking a large group of patients from the nursing home on a fishing trip. You'd have a blast!!! They have a good time watching me TRY to fish. One of the elderly men told me the last time we went that I would never catch any fish because I talk tooooo much and scare the fish away! Can't argue with that...besides, what would I do with a fish if I DID catch it?
Shawna, I'm glad you brought up the piano lesson question. I took piano lessons for years and never really enjoyed it until much later. Now I love the fact that I can play. If I had only practiced more! I would love for Emily to learn. We have my old piano....I got it for my 7th birthday, so that makes it nearly an antique!
Patty, so sorry to hear that Kaila was dehydrated. Watching your child being so sick is not a good Mother's Day...not good any day! I hope she is feeling better now.
Good night everyone! Susan
Name: steff I
Email:steffilipton@hotmail.com
Web Site:http://
Date: Monday, May 15, 2000 at 20:19:57
Comments:Hi everyone!!!Getting ready to go but just had to say one more thing......I remember someone asking about coloring grey hair to blonde.Here's the deal.... Grey hair is a different texture and less porous than let's say "other hair". So when grey hair is colored I would recommend doing a presoftener first.It's real easy , first I would get a 20 vol. creme developer.Now I would mix let's say 3 oz developer to 3 oz. water(depending on your hairs length),leave on 5 minutes,then wet with water and shampoo making a nice mush,leave a couple more minutes,rinse.Let hair dry naturally and I'd say about an hour later or whenever your hairs dry apply your color as usual.I like to use crem developer on grey hair cuz it grabs better and doesn't slip off.Your color will grab better and last longer.Try to wash your hair with a non-stripping shampoo as well .Pert,prell are really good at taking color OUT of your hair. When I didn't like my hair color I'd give it a few shampoos with prell and poof it took a lot of the color out. I'm assuming that's NOT what you want so watch what shampoo you use.
Lorena I'm not trying to take any business away from you as I believe it was Mary from the UK who asked, no one from your neck of the woods. By the way how's biz? I hope your making lotz of $$$> It's a great biz to set your own hours though,eh?Is Clark on the move? I hope your doing well.
Happy b-day Mary L.Am I day late and a dollar short? Of cours the kids picked chuck e cheese. LOL.I wanna see you post a b-day snapshot from there with chucky sing his b-day song to you.LOL.PLEASE?
Anyways,I hope Shuxin is home and well and recovering nicely.Brenda your in my thoughts and prayers as well.See ya...
Name: Jackie/Emily D's mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Monday, May 15, 2000 at 20:14:55
Comments:
Radonna.....just read Your Story....what a beautiful one and what a lovely person you must be.
Jackie
Name: patty moore
Email:pattymm1@home.com
Web Site:http://
Date: Monday, May 15, 2000 at 16:04:36
Comments:Stef 1, I love your mother's day gift from Olivia. I'm going to do the same thing with Kaila's speech. I think that it is a wonderful and caring way to correct speech. Thanks for sharing:)
Jackie, I have a friend who has 2 sisters who are social workers for mentally challenged people that are married and have children. They are both advocates for the disabled. I think it's wonderful that you share in your daughter's dream of someday marrying. I have this dream for our Kaila, as well. I hope that she is able to get married and have...CHILDREN of her own. Who knows?
Name: MichelleMc
Web Site:http://
Date: Monday, May 15, 2000 at 16:03:54
Comments:
Oops, forgot to say "Hi Radonna!" I'm not spending much time on the computer today... I'm still cleaning up the mess in the kitchen from Dad & the kids cooking on Mother's Day. How in the world do they manage to use every utensil and pot in the house? It's comical.I laughed when I read Jackie's post about Mother's Day. It's so true.
Back to work, I guess.
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 15, 2000 at 15:35:18
Comments:THE BOARD IS SOOOOOO SLOOOOOOOOOW TODAY> ALL YOU LURKERS POST POST POSTI am very bored!! How are ya'll today?
ME? Well pretty board.
Susan: Did you take pictures of Emily playing T-ball?
Radonna
Name: steff I
Email:steffilipton@hotmail.com
Web Site:http://
Date: Monday, May 15, 2000 at 11:58:18
Comments:Hi everyone!!!Sounds like monkey bread. My ma used to make it for us when we were kids...Oh by the way, the recipe for the french bread I wrote was right but I forgot one thing.I listed half and half in the ingredients but neglected to say that you blend it along with eggs,syrup butter and pour that over bread. OOPS!!!!!!!
Olivia gave me a great mommas day present last night. Before bed Olivia said in a clear voice "I love Yewww."AWWWWWWW.She's always said "I yew". Made my night...One thing I must say that I've done with her is this.I've never corrected her on her speech by for example saying,"no Olivia you say it like this".I've always repeated what she said the correct way after she's said it the not so correct way. I've always felt that it shall be a challenge for her to form clear speech so I certainly didn't want people correcting her all the time(myself included).I don't want her to be discouraged to speak so my way of dealing with is just by saying it the right way and hope she eventually gets it.It seems to work with her.
We're flying to Detroit at 2 am and then driving from there to Toronto at10 am Tomorrow morn.HMMM>>> should be very interesting. Radonna you should go in my place as I'm not good sans sleep.I get INSANE!!!!!!.
Well this should be my last post for a week but I'll be lurking in Toronto.Talk to you all next week.BYE
Name: JACKIE
Email:grannyjj@hotmail.com
Web Site:http://
Date: Monday, May 15, 2000 at 10:50:51
Comments:
HAPPY BIRTHDAY..........MARY L :) :) :)
Name: Mary L.
Web Site:http://
Date: Monday, May 15, 2000 at 10:41:48
Comments: Hello everyone. I hope everyone had a great Mother's Day. We had a busy weekend celebrating Mother's Day, my birthday, my brother's birthday and my son's birthday! Not to mention various great nieces and nephews who have birthdays coming up. It is such a busy time of year for us.
I was going to try to catch up on all of the posts but I think there are just too many. I did catch that Kaila was in the hospital on Mother's Day and I hope that she is feeling better now.
Have a great day everyone - I have to get ready for a birthday luch with my hubby. My mom is watching the boys so it will be nice and relaxing. I let my boys decide what to do tonight and they picked Chuck E. Cheese - think I'll be the oldest person having a birthday there? LOL!
Bye for now - Mary L.
Name: Jackie/Emily D's mom
Email:grannyjj@hotmail.com
Web Site:http://
Date: Monday, May 15, 2000 at 10:41:12
Comments:Mornin"
Somebody please post the bubble bread recipe(sp?)....It sounds like the monkey bread I made many years ago and have lost the directions for.
YES to music lessons. I think they are great for any kid. You'll know after a year or so if you want to continue. We started Emily in 3 grade because we thought it might help her reading. The teacher was an older "traditional" piano teacher...but one modern enough in her thinking to eventually let Emily pick out easy pop music. She took for several years and can still read music a little. She perfomed in all the little recitals but always used her music...even when she had the piece memorized. The teacher discouraged this in her students but always let Emily do what made her most comfortable. I think we need to stop being so concerned about finding special people to do everyday things with our kids. People without disabilites have all sorts of idosyncricies that often present challenges. This has always been a soapbox for me with the school system. My son (now 25) who is a really bright individual but lacks motivation, spent all his school years in the honors program not living up to his potential. We many times suggested the ISD take him out and give his place to someone who was motivated, but they always said he had so much potential it would not be right. Well.....I tell you I was up at the school more times for David than I ever was for Emily. He has a sharp wit and was truly the class clown if there ever was one. He disrupted more classes than Emily ever did. His way of taking on the teachers was often so clever that the principal often cracked up when describing the incidents to me and asking me what to do. Oddly, no one much ever smiled about Emily's ordeals and little fiascos. By the way, David has turned out just fine....thanks to a 4 year stint in the US Marines and a lovely wife.
Emily has her best friend from high school spending the night....a mildly disabled girl that she met in her vocational classes. Theresa works at McDonalds and is going to be allowed soon to train other people! They are a really good combination...their individual strengths and weakness compliment each other beautifully. Unfortunately they are both quite attracted to Kenny (the walking male hormone) and I have a hard time resisting the urge to pick up the phone and moniter the conversations.....have to keep saying "Jackie, they are 20....they are 20".....)
Emily really does see herself someday married and I hope it does happen for her. I just hope HE has a nice caring family so we don't end up with 2 kids with disabilites. It would be nice to share. Her infant stimulation teacher in Denver has a daughter who is in her 30's with DS and she got married several years ago. Her social service support team helped her plan the wedding and it sounded sooooo cool.
Hopefully that's way down the pike for us.
RO...what part of Texas do you hail from? The Texas Panhandle is so unlike most of the rest of the State. Sometimes we feel like it would be better to be part of Oklahoma. We are sooooo isolated up here. All of the training and services that are Statewide hate to come all the way up here. They always want parents here to travel 400 miles away to Dallas for training. We have good regional ECI and everything but none of the speaking "gurus" ever come here....probably because all our teachers and professionals would rather have a trip to Dallas, San Antonio, or Austin. Unfortunately that short changes all us parents who are often invited to hear someone good when they do come.
Have a good day all and don't forget about the bubble bread!
Jackie
Name: Guess who I am:)
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Monday, May 15, 2000 at 09:14:53
Comments:You know something else that is a real give away for some
is the style in which they write:)
IF
I
WERE
TO
DO
THIS
It would be a big give away:) huh?:)
Have ya figured me out:)
Just because it is big is not mean it is always me but
It would eliminate the ones who haven't been doing it:)
Got to go :)
Love Ro
p.s. What is your give away????????LOL
Name: patty moore
Email:pattymm1@home.com
Web Site:http://
Date: Monday, May 15, 2000 at 08:48:58
Comments:Hi Everyone. My Mother's Day was spent in the ER. Poor little Kaila got dehydrated despite all our efforts to hydrate, and they did a spinal tap on her. She just had a bad virus, and she's expected to be better in a couple of days, and they let her come home to recover.
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Monday, May 15, 2000 at 04:37:26
Comments:Steff: Look at the time!!! I am still up:)
Shawna: Vaseline cannot be removed by ANY AMOUNT of scrubbing!!! You have to pour Coca~Cola (not pepsi too sticky) on the floor wait till it dry's and THEN mop it up. Repeat the process until grease is gone.(Thank God I had John put all linoleum floors down) Another thing about Michael and piano lessons. There was a girl named Doretta Scott in the church my Mom grew up in. She had Down Syndrome. She played the piano beautifully. And this was back 40 years ago. None of the programs we have today were avalible just a Mother who loved her and a church did too.When Kaden was born EVERYBODY was talking to me about Doretta I wish I could remember if she read music or not. I think she played by ear (that's the only way that I can play) I will have to talk to some people and find out. I still talk to Doretta's neice by E-mail. I love music too but my talent is limited to gospel. Kaden LOVES "This World is not my home" as loud and fast as I can play it! I always sit up front near the speakers at church so Kaden can hear GOOD and when songs I play him at home are sung He pokes his head up and just listens. I have a Electric keyboard that I turn up full blast at home for him and he loves that too.
G'Night EVERYONE FOR REAL!!!
Radonna
Name: Shawna
Email:mrs_talk2much@yahoo.com
Web Site:http://
Date: Monday, May 15, 2000 at 03:17:09
Comments:
Hi again!I want to add one to that "old is" list!
Old is when you forget to ask the ONE question you wanted to ask when you write The World's Longest Post!
Here's my question:
I'm thinking of putting Michael into piano lessons next year. I think he is probably quite musical, his parents are, his siblings are, and he loooves music! When I asked the girls' piano teacher if she would be willing to take Michael on, she asked me what kind of program would be best for him, as she usually doesn't start until the kids are in grade two or three. Have any of you had your DS child in piano lessons, and what type of program was used? I don't know if Michael could RIGHT NOW learnt to read sheet music! Anyhow,that's my big question!
Susan, when I read my post, I realized I had omitted something. Once the bubble ring is in the pan, I cover it with a tea towel and let it rise, then I bake it in the oven! (Duh!)
Lorena, What is Monkey Bread? Can you e-mail me the recipe, if it's not what I call Hungarian Bubble Ring?
Before I forget again, I want to brag up my kids. This time it'm my daughters. Janine is nearly 13,and Jennifer is 10. Last September they both started Piano lessons for the first time. Last week was the final concert,and they both did FABULOUS! Janine played the theme from Titanic as a duet with her teacher WITH NO SHEET MUSIC! Jennifer did very well also. I was just blown away at the talent God has blessed MY KIDS with!! The teacher had little presentations at the end with little prizes, and Janine was called up five different times, and Jennifer was called up at least three times. To me, I am really into music, as well as writing (maybe that's why I write songs!) and I think it is SO TOTALLY COOL that they can do this! Heck, they can read bass clef! I never did learn to do that!
Okay,I'm going to quit bragging. It's not QUITE like their child prodigies or anything, just quite musical.
This is pathetic. It's 2:00am, and I'm just getting revved up!! I should be ready to sleep, but I'm not. Dumb!
Ciao for now.
Shawna
Name: Shawna
Email:mrs_talk2much@yahoo.com
Web Site:http://
Date: Monday, May 15, 2000 at 02:41:20
Comments:
Okay everybody, now would be a good time to go get your coffee or tea or whatever, cause this will probably be one hum-dinger of a post. I have once again got 5, count 'em 5 pages of notes, after just two days! That doesn't include jokes, poems, songs.... LOL
I know Radonna likes my loooong posts, what about the rest of you? Do I talk too much? You can tell me "yes", if you really think that! LOL
Steff, you live close to the BEACH? That is so cool! Hey, do you get lots of mosquitoes, or are you far enough away? About Story Time, here the library does that for preschoolers. They will read them a story and then do a little craft and maybe play a few games. I think that Kyle will probably have a blast! Thanks for the recipe. It sounds really good. I'm going to try it! With Lawrence gone for half of forever, I will be trying lots of things we didn't have before, I think ( but no liver dishes, I can't stand liver! LOL AND I DON'T CARE HOW HEALTHY IT IS FOR YOU!) Olivia, what you need to do, dear, is go and ASK MOM for what you can have! Steff, I've had a few instances of waking up to find Michael in my room with the container of whatever got his fancy in his hand! Once, I went into the kitchen and he'd taken the leftover corn out and fed it to the cat! The worst part was that it overflowed the cat dish! LOL It never really got to the point where I thought about putting a lock on the fridge or anything. Maybe to keep the older kids from just helping themselves to everything in the fridge...LOL!
Marie, I'm glad that you're feeling better, and Jared too. It's too bad that he ended up missing the "Day in the Sun". It sounds like a really cool thing.
Mary L, all my notes say are "enjoy Patrick", but I'm sorry to say that I can't quite remeber what you'd originally posted, so I can't elaborate on that! LOL I think you said he's about 6 months old. I hope that I have it right. If he's like, 6 years old, or even worse (for me) 16, please forgive me. I'm thinking he's just starting to get to the age where they get "fun". I think that at six months was when Michael started rolling and reaching and really noticing and paying attention to what was going on around him. So, enjoy this time. Try not to be too distressed about what he's NOT doing and rejoice in your wonderful baby. Hey, did you get any prized for 5th place in the contest??
Radonna, I haven't heard about herbal remedies for ADD, sorry. I will try and remember to check with Robbie's counsellor and psychiatrist. I will send her a fax tomorrow. (That is my PLAN, at any rate!) As far as looking like a frog, our boys could have been twins. Also, it is always a real difficulty getting blood from Michael too. All his veins are so little and so far under the skin! One time, it took 4 or 5 tries to get an IV in hime! The last two times, it was the doctor. Then, he had a flu or something and was REALLY dehydrated, so they had to get him on IV for fluids! What was scary was that it was so bad before I realized it was getting to be something that needed medical attention! Thank you for the jokes. My kids came in and asked me what I was laughing at. Michael was having a bath, and every time I laughed, he'd say "What?" in an "I didn't do anything!" tone. Too funny. So how long do you think the new glasses will last? Oh yes, am I correct in thinking Kaden will be havin surgery on his ears? Can they do any kind of surgery or other procedure to help his vision? What about laser surgery? I mean, doesn't every mother want their kid zapped with about 10,000 volts of electricity to heal something or other? LOL I will continue to pray about the in-law situation. (That reminds me - it's 11:30pm, and I forgot to phone my stepmom and wish her a happy Mother's Day!)I can picture Kaden painting the walls with his juiceboxes. Michael used to do that, but I think he's over it now. Haven't had juice boxes for a while, so I might be wrong! (Besides, I have selective memory, I try not to remember the bad things!!) I'm glad that you like my poems. Don't worry, there'll be more, I might have to write them first though! LOL I was thinking about you Saturday, and I was thinking if Kaden's eyesight could be helped, then signing would be more of an option for communicating. I am astounded that someone SUPPOSEDLY trying to help Kaden would put him in a position where he could possibly choke! IF it were me, I would be LIVID!! Did I understand you correctly, did you actually HIT her? I don't know if I would have been "quite that livid"! So, you're more the "roaster" type, huh? Well, better move over and make room! I was a skinny person once too, when I was about 15, for about half an hour!! LOL Actually, I think I was a lot thinner as a teenager than what I thought at the time.
Susan, what a great Mother's Day present! What a great speech therapist you have! Way to go, Emily!
Patty, I'm sorry to hear about your cat! It's hard when you lose a pet. I think that it's a good idea for you to stick with Kaila's regular ST. That other ST sure was out of line!! I'm glad that Will's doing better, and will continue to pray that his recovery will continue quickly.
Jackie, yes, only five hours in the mall IS quick for finding the "Perfect" dress for Grad. The dress sounds quite lovely. As far as the shoe thing goes, I might be coming up to that! My husband wears 10EEEEE shoes, which are almost impossible to find! So, wide feet definitely run in the family! About your flowers being in full bloom....well, I COULD go out and get a bouquet of 6 violets and 3 pansies, but then all my flowers would be gone! Besides, I think that they look prettier outside! I'm dying of curiosity - DID you get a worm composter for your Mother's Day present? That is definitely a more unique gift idea!! My husband just took me out for supper Saturday night. What else could he do, he's working all day every day right now. I didn't even get breakfast in bed!! :(P LOL
Michelle Mc, THANK YOU for looking after this site. I know that lately things have been rather "interesting" here on the Board, but I want to encourage you to just ride out the storm. I still think that you have a great site and are doing the best you can. If you ask me, all the excitement lately is largely based on MISCOMMUNICATION. The other problem was that people forgot to RESPECT other people's opinions, and one another. It's okay to disagree. It's okay to violently disagree. It's not okay to be disrespectful of others on a public site. That's where it started to get ugly, if you ask me. I know that not everybody will always agree with or even like everything I say, I just ask that they disagree POLITELY! Anyhow, I can understand you feeling a bit discouraged about how something relatively insignificant got blown all out of proportion. Keep it up, Michelle. You are providing a good service here, at least as far as I am concerned. The motto for our company is "When a man's ways please the Lord, He makes even his enemies to live at peace with him." Proverbs 16:7 I had a reason for sharing that. Oh yes, if you have nothing to "fix" between you and God, then the rest will work itself out. Be encouraged, I THINK YOU ARE DOING A TERRIFIC JOB. I also wanted to respond to your post from a few days ago and say thanks for the encouraging post. I appreciate the way you work so hard to keep up on what's happening with everyone. I think that's it for now.
Lorena, Thank you for the compliment. I'm glad that you like my poems. I'm laughing about your comment about me having "so much faith". Most of the time, I feel like I have so very little faith, then God comes through one more time...He ALWAYS does, why is it an issue almost every time?? As far as my way with words being a gift from God, I totally, absolutely, unequivocably agree with you 100%. In my own efforts, my writing is rather boring, really it is. You had better watch the wisecracks, JUNIOR! Those 13 days bring a lot of maturity, I'll have you know! LOL LOL I'm so mature, yeah, right! LOL Clark's response to the baby sounded so cute (the licking,not the jealousy!) I haven't had a baby around too much, but I think that Michael would be trying to hold it and/or kiss it on the nose! (he's had this nose fetish for years!)
Ai Lay, I'm so happy that Shuxin will be home tomorrow (today now! LOL) It sures seems like she recovered quickly. That's such wonderful news!! I bet you're not a little relieved!
Alice, I'm glad that the EI person showed up. I bet when the OT and PT start coming, they'll be surprised to find out how much you were doing already ALL ON YOUR OWN. What about ST??
Kim Daly, hello. I don't think I've talked to you before. I have four kids, ranging in age from 15 - 8. My youngest, Michael, has DS, but thankfully has always been very healthy. He has gone through 4 sets of tubes in his ears. The first set was when he was about 18 months or so, and I don't remember the unstable vertabrae even being mentioned as a consideration.
Denise, you said EVERYBODY has the link to DR. Lan. sorry, girlfriend, I missed that one. Who is Dr. Lan, and why do I want the link to his website?? I hope that you are feeling better way sooner than six months from now. About being bald on one side - why don't you just get your head shaved, and let it all grow out again?? lol! It's easy for me to say, it's not me that would be bald, totally freaking out my kid! LOL How are things going with Stevie, anyhow? The thing about him reading what he wrote for your Mother's Day present is WAY COOL, MAN! I know - I'm a throwback to the Hippies! What can I say?
Tina, the Value of Life was such a great story!! I will be sending that one on! I'm going to have to start noting where my jokes and stories come from, or they will get lost!
Becky, I never dealt with a nutritionalist for Michael. If I had any questions, I just went to the family doctor. Maybe in the States, that's too expensive to do! Anyhow, I think that the nutritionalist was way out of line. It sounds to me like her attitude was "rather out there". I think that what I would do would be to talk to her supervisor, and if that doesn't work, talk to their supervisor...Do you NEED a nutritionalist, really? I just fed Michael regular food, with the exception that I nursed him longer. My family doctor wanted me to not start him on baby food until he was about a year, from what I remember. Or maybe it was that he didn't want Michael on cow's milk until then. I'm thinking it was more the milk thing, not the food. As far as food went, I just fed him normal baby food, and never had any problems with him not swallowing or anything like that. If he didn't really like it, that would make a few interesting, sometimes messy, moments! Anyhow, from what you told us, I don't like the nutritionalist at all. ps - sorry for not asking about you. My cheat sheet isn't good enough to track who ISN'T posting yet! I belatedly hope that everything has been going well for you.
Diana, I'm sorry that Jarrett didn't like the horseback riding! I hope that it's something he'll change his mind about. I love horses too, I'm just not that horse-compatible. I always seem to be falling off the stupid things. The first time I ever tried riding a horse alone, I ended falling off, hitting a stump sticking out of the ground, fracturing three of my ribs, and in the hospital for about 5 days!! I was 13 then, and I missed the week just before Finals, when all you do is study! The last time I tried riding, I also ended up falling off, but then all I damaged was my pride! LOL
Ro, Hey, how are you doing?? I haven't read much from you lately! Are you still recuperating from Easter, or what?? How is Lara doing? How is her back doing now? Did they ever determine what was Danny's problem and did he get back to work? Lawrence is away. I visited him this weekend and was how he basically works and sleeps. I feel so sorry for him! Well, he'll be home next weekend anyhow! Then later, he'll be working by Milk River, which is about 10 miles from the US Border!! Maybe we'll be able to slip over to the Yank side one day!! LOL I wonder if I could persuade him to just keep going until we hit Texas? LOL Got room for an extra 6 people (and a cat!) It would be an extended visit - couldn't travel THAT far and only stay a month! LOL I'm afraid even the aromatic deisel fumes wouldn't get rid of us. And those Texas mosquitoes are just the baby brothers of the ALBERTA BLOODSUCKING VAMPIRE MOSQUITOES!! LOL Anyhow, I hope all is well with you and yours. Did Delano ever get his cast off? Why is Danny going on the bus to pick up Teddy?? I think that the "grievance board" sounds like a good idea!
Radonna, I forgot something! Michael is a "cow" boy too. They are his favorite animal! I don't think he's ever touched one, and we DON'T have a herd of pet cows! That is just too funny!! We have a herd of cows that we don't want, but we can't get rid of them! You have such UNUSUAL dilemmas. I never heard of ANYONE ELSE having to scrub vaseline off the kitchen floor, or find homes for 10 cows! LOL
Brenda H, I'm really glad you are feeling better, and a bit guilty that I didn't remember you more often. It's almost like, if it isn't posted, it's not relevant! Almost! I bet you're glad to be finally getting out in your greenhouses again. About being weepy, I don't know, sound kinda strange to me. I mean, a woman has a near-death experience and is quite emotional after that, where's the connection?? LOL I'm glad that both mothers are wonderful. My own MIL was just wonderful. I really love her. I sure wish she didn't have Alzheimer's Disease. She's 82, and in wonderful health, just losing her memory! So tragic, and so hard to deal with.
Mary from UK, Thank you for sharing your life with us. I can tell it hasn't been easy for you. It sure sounds like your doctors didn't do Spencer or you any favors!! As far as HRT - when Bill gets his new wife, will he recognize her? LOL I have to ask this: SPENCER, ARE YOU READY TO COME TO FLORIDA!!!
Susan, you said that your husband was making "Bubble bread". Would that be anything like "Hungarian Bubble Ring"? That is made by taking small balls of bread dough, rolling them in melted butter, then in a mixture of brown sugar and cinnamon, then piling them in a greased angel-food cake pan. Or, bread pans or regular cake pans can be used. It seems the best when cooked in the angel-food cake pan, though. Anyhow, is that what you call bubble bread?? IF not, what is it??
Debnm, How are you? I sure hope you're not anywhere near the fires in New Mexico!!
Steff, Olivia is QUITE the little performer. She sounds so cute! The fair sounds like a blast. I'm glad that finally you've got the information that you need to help Olivia the most you can.
Cindy, what's raspberry breakfast cake? can you please e-mail me the recipe? It sounds really good! I can hear my arteries hardening just thinking about it! LOL
Denise, thanks for the "Real Mothers" piece. I thought that it was really good.
Now no post of mine would be complete without something added in from my archives. What will it be??
You'll have to wait and see!!
****************************************
Red Buttons, appearing on Dennis Miller's Show, announced he
was 80 years old but that 80 is not "old." Red explained:
"Old" is when your friends compliment you on your new
alligator shoes and you're barefoot.
"Old" is when the porn you bring home is "Debby Does Dialysis."
"Old" is when your doctor doesn't give you x-rays anymore
but just holds you up to the light.
"Old" is when a sexy babe catches your fancy and your pacemaker opens
the
garage door nearest your car.
"Old" is when you remember when the Dead Sea was only sick.
"Old" is when your wife says "let's go upstairs and make love,"
and you answer, "honey, I can't do both........"
*******************************************************
I guess that's about it for now.
God bless you all
Shawna
Name: Alice
Web Site:http://
Date: Sunday, May 14, 2000 at 23:57:10
Comments:Dear Mary from UK!
Thank you very much for the information you are giving to us. I am going to try that "towel" thing for my son.
And this is so nice to hear that some girl likes you Spencer. I am sorry for that girl too(oh parents..)
I will be very happy if some day Luke meets a girl(and they will love each other), I hope he will not be lonely.
Good luck to you(Mary and Bill you are great people!) and all UNO MOMS.
Name: ShannonQ
Email:Quarles6@home.com
Web Site:http://
Date: Sunday, May 14, 2000 at 23:50:01
Comments:I just got my baby's Uno Mas Romper Saturday, and he wore it with pride to visit his Grandma today! We got a ton of compliments on it ,adn I was able to tell a lot of people about this awesome site. He looks so cute in it, too!
Name: Lorena: Clark's Mom
Email:L719zecher@aol.com
Web Site:http://
Date: Sunday, May 14, 2000 at 23:30:51
Comments:Hey everyone !!!,
How are things ?????
Marilyn, I am going to lift your family up in prayer!!! Please know that I am thinking about you !!!!
Had a good day, The boys made me breakfast consisting of waffles with strawberries and whipped cream ( Bubble bread sounds wonderful too...is it like Monkey bread ???) I did get to clean up the mess in the kitchen though !!!! Wouldn't be Mother's DAy if I didn't get to clean !!!lol. Went to a late lunch with my parents....I ate so much I think that I cracked a rib( one of my Dad's sayings) It was so beautiful today....nice clear 75 degree day. Prefect Mother's Day weather !!!
Well I really must be going. Clark has PT at 8am tomorrow. Have a good Monday everyone !!!!!!
hugs to all,
Lorena
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Sunday, May 14, 2000 at 22:46:26
Comments:SHAWNA!!!!!!!! Loved it LOVED it LLLLLLLLLOOOOVVVED it BOY have I missed you!!Well Kaden's back with his new glasses They are exactly the same without the scratches(EVEN SCRATCH PROOF AIN'T GOOD ENOUGH FOR KADEN)He Is playing with my hair wanting some attention so... Probley wont be back on here tonight. LOVE YOU GUYS!!!
Radonna
Name: jimmie cricket
Email:warrenken@ftc-i.net
Web Site:http://
Date: Sunday, May 14, 2000 at 22:31:03
Comments:please pray for my nieces parents. my husbands brother and sister-inlaw.
my niece is 22 years old and has 2 children ages 6 and 4. she is lying in the
hospital not expected to live. thank you
marilyn
Name: Shawna
Email:mrs_talk2much@yahoo.com
Web Site:http://
Date: Sunday, May 14, 2000 at 22:21:14
Comments:
RADONNA AND ANYONE ELSE WHO NEEDS A LAUGH OR SOMETHING:I thought I better add the "or something" in case I DON'T send you a joke! I might want to make you think or something! LOL
Anyways, here goes...
*******************************************************
Final Exam!
These four friends were so confident that the weekend before finals,
they decided to go up to Dallas and party with some friends up there.
They had a great time. However, after all the partying, they slept
all day Sunday and didn't make it back to Austin until early Monday
morning. Rather than taking the final then, they decided to find
their professor after the final and explain to him why they missed
it.
They explained that they had gone to Dallas for the weekend with
the plan to come back and study but, unfortunately, they had a flat
tire on the way back, didn't have a spare, and couldn't get help for
a long time. As a result, they missed the final.
The Professor
thought it over and then agreed they could make up the final the
following day.
The guys were elated and relieved. They studied that
night and went in the next day at the time the professor had told
them.
He placed them in separate rooms and handed each of them a test
booklet, and told them to begin. They looked at the first problem,
worth 5 points. It was something simple about free radical formation.
"Cool," they thought at the same time, each one in his separate room.
"This is going to be easy." Each finished the problem and then turned
the page.
On the second page was written: (For 95 points): Which tire?
*****************************************************
NEW PROVERBS
If you're too open minded, your brains will fall out.
Age is a very high price to pay for maturity.
Before you criticize someone, walk a mile in his shoes. That way, if
he gets angry, he'll be a mile away - and barefoot.
Going to church doesn't make you a Christian any more than going to a
garage makes you a mechanic.
Artificial intelligence is no match for natural stupidity.
A clear conscience is usually the sign of a bad memory.
A closed mouth gathers no feet.
If you must choose between two evils, pick the one you've never tried
before.
My idea of housework is to sweep the room with a glance.
Not one shred of evidence supports the notion that life is serious.
It is easier to get forgiveness than permission.
I have found at my age going bra-less pulls all the wrinkles out of my
face.
For every action, there is an equal and opposite government program.
If you look like your passport picture, you probably need the trip.
Always yield to temptation, because it may not pass your way again.
Bills travel through the mail at twice the speed of checks.
A conscience is what hurts when all your other parts feel so good.
Eat well, stay fit, die anyway.
Men are from earth. Women are from earth. Deal with it.
No husband has ever been shot while doing the dishes.
*******************************************************
If corn oil comes from corn, where does baby oil come from?
If it's tourist season, why can't we shoot them?
Do blind Eskimos have seeing-eye sled dogs?
If you shoot a mime, should you use a silencer?
What was the best thing before sliced bread?
Why do Kamakazie pilots wear helmets?
Why do they sterlize needles for lethal injections?
What do they use to ship styrofoam?
Why is there an expiration date on sour cream?
*****************************************************
Things I learned from my children
1.A king sized waterbed holds enough water to fill a 2,ooo sq foot house 4 inches deep.
2.If you spray hair spray on dust bunnies and run over them with roller blades, they can ignite.
3.A 3 y.o. voice is louder than 200 adults in a crowded restaurant.
4.When you hear the toilet flush and the words, "uh-oh", it's already too late.
5.Brake fluid mixed with clorox makes smoke and lot's of it.
6.Certain legos will pass through the digestive tract of a 4 y.o.
7.Play dough and microwave should never be used in the same sentence.
8.Superglue is forever.
9.No matter how much jello you put in a swimming pool you still can't walk on water.
10.Pool filters do not like jello.
11.VCR's do not eject PB&J sandwiches even though T>V> commercial's show they do.
12.Garbage bags do not make good parachutes.
13.You probably do not want to know what that odor is.
14.Always look in the oven before you turn it on. Plastic toys do not like ovens.
15.The spin cycle on the washing machine does not make earth worms dizzy. It will however make cats dizzy and cats throw up twice their body weight when dizzy.
*******************************************************
Hope that will keep you for a few minutes! I have 5 pages of notes from just two days being gone!!
Ciao for now.
Shawna
Name: Debbie
Email:Sorry, I am on borrowed email
Web Site:http://
Date: Sunday, May 14, 2000 at 21:45:38
Comments:Hi everyone and Happy Mother's Day! I have missed visiting the sight but I have been so busy with Gabby who is now 6 months old. She is doing well and I am so happy to report that her AV Canal Heart surgery (emergency) went well and she is doing great! (we're up to 12 pounds!!!!) Oh! she is sooooo beautiful! Brothers, Andy and Jonathan just adore her, well, we all do! I spent several hours (according to my husband) replying to messages all the way back to December. I no longer have email in my home because I just don't have much time for it and cannot justify the cost. But I wanted to let you know that I think about all of you and pray that all is well. I am also finally going to get around to sending (by snail mail) pictures of my 3 angels as soon as they come back from the photographer. Take care and God Bless!
Name: Shawna
Email:mrs_talk2much@yahoo.com
Web Site:http://
Date: Sunday, May 14, 2000 at 20:07:19
Comments:
HI EVERYBODY!!I'M BACK! DID YOU MISS ME?
I know, it was only a few days, but it seems longer!
HAPPY MOTHER'S DAY!!
I hope that you all are having a wonderful Mother's Day. I saw my hubby off to work at 7:00 am, then I cleaned the motorhome, washed his laundry, bought a few groceries for Lawrence, as well as a few other things he needed for work, gassed up the van and headed home. I left at noon. I got home about 4:30, and spent the next 45 minutes collecting my brood. I WAS going to take them out for supper, but changed my mind when I saw the cost of the Smorg. That made unhappy Mama and kids! At home the kids had hotdogs, always a favorite, and I got to remind them to put all their stuff away. Now I'm here relaxing. I think I deserve a LONG bubble bath tonight! LOL
I haven't even read the posts yet - will be doing that right away. Wanted to make sure to wish you a happy Mother's Day, in case I get too tired and just post again tomorrow.
Ciao for now.
Shawna
Name: Steff
Web Site:http://
Date: Sunday, May 14, 2000 at 18:21:27
Comments:Hi!!! Thanks to all for responding to my post regarding refrigerator locks....BIG GIANT HELP. Thanks again........I see a couple of new pics in the gallery. Ava Elizabeth and a new really cool one of Casey.Now how long is Ava's hair? Geez for 16 months she's got some long hair.I'mm 33 and my hair never really grew long until I got preggers. Now my hair's totally different than it used to be and the longest its been. Kyle's hair grows way too fast and Olivia's too slow.Is Ava good about brushing it?I think Olivia and I will have a hair growing contest.Michelle, you take nice pic's. Where was it you went camping again. Casey's a blondie like my kids and I.Happy Mother's day by the way.
Lisa Huppe(info goddess) Thanks for all your help.I'll contact you when I get back from Toronto.Your great.. Thanks for your speedy reply.
Radonna what can I say, I love your attitude and the way you perceive things.
I've locked myself in the bedroom for fear of having to do one more thing today!!!HA...HA...HA...Like my boy says "if I can't see you, you can't see me."(a direct quote from grimace island,oh never mind)Take care and nighty night.
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Sunday, May 14, 2000 at 18:06:36
Comments:Denise: I will be praying very hard for you!!!!! I hope everything go's ok. HUG STEVIE real big for me. LOT'S OF LOVE and PRAYER coming your way!!BTY:) HAPPY MOTHERS DAY!!!!
Name: Radonna
Email:RHill@netease.net
Web Site:http://
Date: Sunday, May 14, 2000 at 18:01:13
Comments:Steff: I would give ANYTHING to see Olivia do that dance!!!
About the fridge thing, They have locks and stuff but for a quick fix until you can buy one We stuck a block of wood through our door, but we have the side by side type of fridge. Kaden can pull that out now and open any "childproof" lock I can find for cabinets. My mom had one of those "diet" alarm's that if you open the fridge it will squeal OINKKKK OINKKKKK that could let you know she is in there!Heather: I am so glad to see you posting again. I haven't seen ya regular since you went on Vacation. It is hard to get caught up on all the posts. WELL ANYWAYS GLAD YOUR BACK.
AiLay: I am so glad that Shuxin did Okay.
Michelle Mc: I wish you could read the paper's I have in front of me, from Kaden's Doctor and his teachers. The Progress that Kaden has made since I found UNO is Amazing!! I asked about Potty Training for kids with hearing/visual problems and I was swamped with E-mails detailing the process. and Kaden is still having some accidents but he is doing something I thought he wouldn't do for a while. Kaden is signing More, He has started talking some. This is only a few on the differences I see In my son. UNO MAS gave me the tools to open doors for Kaden that I DIDN'T Know how to open. For the first time in Kaden's life I have somewhere to go where there are people who understands the challeges and the joy of having a child with DS. I do not feel alone anymore. You couldn't possibly understand HOW Alone I was. Tina's letters to her school gave me the courage to make a fuss about Kaden not getting the services he needed. Shawna's jokes make me laugh so hard I forget anything that is bugging me. The FRIENDSHIPS I have made here give the world a much brighter look. That is what UNO means to me and to Kaden. So whatever blows you take remember that there is a family in TN that owes you an awful lot!!!
OH SHAWNA ARE YOU HOME YET!!!????? I HAVE MISSED YOU. I HAVEN'T LAUGHED SINCE YOU LEFT. THROW SOME OF YOUR FUNNIES OUT HERE!!
Radonna
Name: Denise
Email:DZeke@aol.com
Web Site:http://
Date: Sunday, May 14, 2000 at 17:30:25
Comments:Real Mothers
Real Mothers don't eat quiche, they don't have time to make it.
Real Mothers know that their kitchen utensils are probably in the sandbox.
Real Mothers often have sticky floors, filthy ovens and happy kids.
Real Mothers know that dried playdough doesn't come out of shag carpets.
Real Mothers dont want to know what the vacuum just sucked up.
Real Mothers sometimes ask "why me?" and get their answer when a little voice says, "Because I love you best."
Real Mothers know that a child's growth is not measured by height or years or grade... it is marked by the progression of Mama to Mommy to Mom.
Saw that and thought I would share it. We are all real moms. I hope everybody had a really happy mothers day.
I'm going icognito for a day or two. It's time to go back to the hospital I think tomorrow. My hair is starting to fall out from the radiation. Won't I look cute with only half a bald head,lol:) Have a good one all.
Name: Ro
Web Site:http://
Date: Sunday, May 14, 2000 at 17:29:07
Comments:
OOOPPPPPSSSSSS:)
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Sunday, May 14, 2000 at 17:28:17
Comments:Hey I'll be around:)
I have my e-mail up top for those who need me but right
now I have to TAKE A BREAK:)
Pray that my hubby has a great bus ride and he has to
sit near at least 5 children to and from getting Teddy so
he will feel right at home:)LOL
Ro
Name: Ro
Email:rrboykin@academicplanet.com
Web Site:http://
Date: Sunday, May 14, 2000 at 17:28:06
Comments:Hey I'll be around:)
I have my e-mail up top for those who need me but right
now I have to TAKE A BREAK:)
Pray that my hubby has a great bus ride and he has to
sit near at least 5 children to and from getting Teddy so
he will feel right at home:)LOL
Ro
Name: HeatherF
Email:flanagan@mail.burgoyne.com
Name:
Date: Sunday, May 14, 2000 at 15:30:12
Comments:
Steff - I have gotten refrigerator locks at "One Step Ahead" (a catalog, I can give you their ph# if you want it!), and at Toys 'R Us, and really any store like WalMart that carries baby stuff. We had a velcro one, but that was NOT Nicholas proof, so the one we have now is more of a latch one that is harder to open. Good luck and let me know if you need more info!!!!!
Name: Tina
Email:gbtg5@yahoo.com
Web Site:http://
Date: Sunday, May 14, 2000 at 13:33:48
Comments:Cindy,
hello darlin! I don't have much time to post right now, but wanted to tell ya that when Stevie had the T&A..she was 42 inches tall, and 42 pounds....my little 'square'..:-) I think she and Kaylee are close to the same size, actually, but she could have grown some since then...I can't keep up with them. LOL
She is not keeping her glasses on today at all, and actually acts as if she needs to take them off to see things up close..I am not sure yet, and since I have yet to get my degree in optometry, I will have to 'guess'..LOL
But, we may end up starting the whole thing over again..Since they did the test with her 'asleep', they were suppose to be extrememly accurate, but they sure do seem strong..it's a wonder she wasn't bumpin' into walls before..;-)Oh well, time will tell I suppose..
I hope EVERYONE here has a SUPER Mother's Day!!!!
Luv to ALL!!!!!!~Tina and Stevie-Marie....
Name: Ai Lay
Email:ailay@pacific.net.sg
Web Site:http://
Date: Sunday, May 14, 2000 at 11:21:09
Comments:Hi all. Shuxin is coming home tomorrow! Hurray!!! She's doing so well. She was walking since yesterday and the bandages and tubes were removed since the 2nd day. But she is still very upset that she's still in hospital and she did not forget to give mommy a big kick when she first saw me after she woke for bringing her into the op. room.
Thanks to all that prayed and gave well wishes... Radonna, Denise, Diana, Lorena, MichelleMc, Steff, Shawna, Jackie, Cindy, Susan, Judi, Heather, Terri, Wendy.... and all (pardon me if I left out any names). You're a great bunch, that's what I like about Unomas. You'll never feel alone when you are in need of friends, special thanks to MichelleMc for that. Hugs to all! Ai Lay
Name: Cindy
Email:scottcindy@jps.net
Web Site:http://www.jps.net/scottcindy
Date: Sunday, May 14, 2000 at 10:58:26
Comments:Happy Mothers Day!Tina- Great picture of Stevie-Marie and very cute glasses. She looks bigger then Kaylee, taller? She's such a cutie!
Mary, Spencer's mom,Thanks for sharing your life with us. Wish unomas could've been around when Spencer was younger too-and let us know when the "new woman"arrives hahahaha
SusanWhat in the world is "Bubble Bread"?sounds yummy. We're having lattes and raspberry breakfast cake.
Must be completely honest with you folks-Me and the girls are skipping church this morning and laying in my bed watching cartoons. That was my idea of a relaxing morning-we have lots of company coming this afternoon! :)
RADONNA-You crack me up! Pet COWS???I would've freaked out if I walked in on a therapist holding my kids mouth shut with a hot dog inside. Have they no brains??
Sorry must run, kids are needing more food!!Thanks all who posted regarding Kaylee's glasses. We're getting used to them now, just took a few days!
Name: steff
Web Site:http://
Date: Sunday, May 14, 2000 at 10:57:51
Comments:hi everyone!!!!HAPPY MOTHER'S DAY!!!!!!!!!!!!!!!!!!!!!!!!!
I can't say that mine's been great but that's another story that doesn't belong here.
Yesterday we went to our local regional center for a fair. It was really great I must say.A lot of organizations were there that offer services to our children were there to let us know that they are available to our chilren through the regional center.For example, gymnastics programs,therapeutic horse therapy,and so on.Basically what they told me is this, the regional center really can't tell us what all the programs there are to offer(don't ask me why) and that we must learn from other parents etc. and ask for these services.I guess maybe if they gave us all a list of things to offer our kids we might take advantage of these programs and cost the regional center too much money.I just found it odd that all these people were there to inform us of these programs on the regional center property, the same place which doesn't tell us of these programs and let's us find out for ourselves. LOL.Whatever the weirdness I don't care cuz I learned so much and that's all that matters.
Anyways to make a long story longer,we had a blast the kids did gymnastics, we dodged the clowns(for Kyles sake), went to storytime with some great storytellers and I for one learned a lot.Olivia looked darned cute she had on a new hawaiian sarong skort(bright blue), cute tank top and pigtails with daisies in her hair.(by the time we got home her hands were black ,face disgusting ,her clothes with dirt all over em so you can see she had FUN!!!)Kyle loved gymnastics and a man I know is the director of a gym here and offered to watch over Kyle cuz Olivia heard In Sync'c "bye,bye,bye"
