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Down Syndrome - Extraordinary Stories. Share your story of how Down Syndrome has touched your life.
How it began. What you have learned.
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Name:
MAYRA SOSA E-Mail:
Comment:
526
Wednesday March 4, 2009 - 04:53am
I was 27 when i had desirae. I had no idea she was going to be born with downsyndrome, despite having taken all the tests during my pregnancy. Having her has changed my life but also everyone around her. She fills our hearts with joy and happiness. I thank God for bringing her into my life.
Name:
Ceci Gago E-Mail:
Comment:
525
Saturday January 31, 2009 - 03:35am
Rita has filled our hearts with joy! She is the proof that every child deserves a chance to live, no matter what the challenges are. She is now 6 years old and in Kindergarten. She speaks Spanish, English, signs, loves swimming, dancing, singing and Barney! She is the most beautiful girl any parents could ever wish for! Thank you God for the beautiful gift. Anyone who ever dares to say that children with Down Syndrome should not get a chance to live (9 out of 10 who have a prenatal diagnosis, kill them), should really see the faces of our beautiful, smart children!!!
Name:
Virginia Doyle E-Mail:
Comment:
524
Saturday January 24, 2009 - 04:49pm
I was 35 when I had my son Caden.We chose not to have any testing done during my pregnancy and didnt know he had down syndrome until the day he was born.It was devistating to find that out just because they give you the worst case scenerio,but let me tell you,he is 2 1/2 and is pretty much a "normal" kid.He has a 1 1/2 yr old sister and they play sooo well together.My advice to new parents is just love your child no matter what!
Name:
Samantha
Comment:
523
Monday January 19, 2009 - 03:00am
I have a big brother who's 13.He has Williams syndrum. Somtimes he can get on my last nerve,but he's family. it can get tough.he'll get mad over the sillyest things!
Name:
jessica E-Mail:
Comment:
522
Monday December 22, 2008 - 07:43pm
I was very shocked to find out that my afp and my amnio results had came back positive for downs...i am only 20 years old and it didnt run in my family...this was my 2nd pregnancy so i didnt really understand...but now that my daughter is here i am filled with joy and it isnt hard for me to except her...why wouldnt i except her shes my daughter...i am actually really excited for the challenges but i am strong and willing to take anything that comes my way....my husband loves her and my daughter Sara loves her and my whole entire family loves her
Name:
Marlene E-Mail:
Comment:
521
Monday December 1, 2008 - 05:35pm
Hello everyone. Im just very glad to tell you guys that my baby Daisy is going to be 1 on1/1/2009 . Im so excited. This year by far has been the hardest, longest and most life changing year of my life. I feel like if im living someone elses life. Its been so different than all of my other years. Lots of stuff have changed im now a stay at home mom because im unable to work. Daisy has to much therapy and drs. appointments. But, I look at the bright side im raising my children not a sitter i can be a 24 hour mom which is sometimes streesful but, rewarding. For everyone out there you should be proud to have a child with downs there beautiful. They were put here with us from god to teach us what life should be about love, no resentment and family. Im a proud parent of baby girl with down syndrome and i always will be proud of her. To everyone i wish u all a good Christmas and a happy new year.
Name:
charqueseclopton E-Mail:
Comment:
520
Wednesday November 5, 2008 - 02:53am
hi everyone i was searchen through the web on DS because i only know a lil about DS i have a lil boy who just turned 10 months on the 27 of this month he has DS i founded out the day after he was born it killed me inside all i could do was cry when i looked at him and jus ask GOD why me?? i cant handle this but my aunt whoes been there for me& him says GOD only give them to people who he know that is strong and can handle it im a teen mom who has been through alote all my life thats why im still confused on why GOD would give him to me but i know that he speacial to me not just cause he has DS but cause hes mine & i love him with all my heart my son has an heart murmor and he has acid reflex && doctors are still trying to see why this is happening to him after the surgery sometimes i site in my room & think about what if he didnt have DS would he be as speceal to me as he is to day somedays i want to give up cause ive been thru 2 much my whole life but i know i cant because of him i still just try not to think of it some days cause it hurts inside
Name:
elvie catipon lasquite E-Mail:
Comment:
519
Tuesday October 14, 2008 - 02:15am
good day to all the readers out there..just like you i have a son who has been diagnosed with DS..but this doesn't seem to hinder our dreams for our child..i got married at 33 and became pregnant at 36 and gave birth at 37..according to the doctors this was the main reason why my son is considered DS..but to my surprise as i read other emails here..the age of the mother when she had this pregnancy is not the actual cause of having a child with DS..so i refrain from being guilty..instead i help my son to be as he is now.. i just want to share my story as a very supportive mother to my son..the moment i heard the doctor's diagnosis that my child was DS..I cried and cried and cried.. but my pedia says: stop crying you can't help your child with those tears..let's do everything to help him grow as a normal child..so my pedia advised us to have "early intervention" procedures just to let my son be normal as he can be.. at the age of two months he was diagnosed with PDA..we as parents let him went under the knife though he was too young.. because his pediatric cardiologist told us that he can't reach his first birthday if he would not have that surgery..we prayed and prayed when he was there in the OR..successfully our son recovered too fast from that operation and soon after we watched him grow..monthly we went to his pedia for his immunization shots and the doctor continually advised us on how to improve our son's mental capabilities.. as a mother i followed what our pedia's advice just to give our son a chance to live a normal life.. surprisingly at the age of two he knows the alphabet and all the sounds that he can hear..he can recognized animals,shapes,and colors around him..truly my son has improved so much since he was born..and at that age also he learned to walk..he can imitate all the actions in nursery rhymes that he can watch(thanks to my sister gina who was his nanny at that time she taught all the nursery actions)but to our regret nielsen could hardly talk..at the age of four we enrolled him at a day care center near our place but that wouldn't help him either because he was not given a chance to recite at all..at five we decided to enroll him in KUMON..(a japanese program teaching children math and english) we just want our son to talk so he can at least communicate with us and maybe he can express himself well.. Mrs. Tarhata Trajano, the chief instructor of Kumon Cavite Cty Phils didn't promise me anything but she said Kumon would help my son read and at least talk..She gave him diagnosis test to know what level nielsen would be in..after two months in doing Kumon.. Teacher Tata (that's what mrs. Trajano fondly called by her students)asked nielsen to read in front of me..and miraculously and i said it was truly a miracle..to hear that our son can really read and talk without my assistance..now he's eleven years old and still he is in Kumon and doing Math , this time he's doing multiplication worksheets and trying to memorize the multiplication table..a very good speller and he is in level 4 in ACE(Accelerated Christian Education)the education curriculum that is very appropriate for him and continuously receiving more congratulation slips from his school supervisor for the paces that he finished with perfect scores or at least with grades. not below 90(i wonder why other parents do not discover that this ACE is much better than a standard school's curriculum) this was not written just to brag about my son's achievements.. i just want to tell other parents that children with DS are not a burden if we can only help them grow intellectually and let them be recognized and be independent on their own..of course this would not be our own success..the credits must be given also to all the people who, in one way or another helped us out in nurturing our child..to his aunts:Tita Zen and Tita Gina(they were the ones who took care of him while i was at work) Drs. Wilma Jimenez and Olimpia Malanyaon (his pediatrician and his pediatric cardiologist(you are a great help in improving nielsen's health condition..Mabuhay kayo!)Mrs. Tarhata Trajano and the Kumon staff( my thanks would not be enough to express my gratitude in supporting our son in doing his worksheets everyday)to my very own mother Mrs Maria Catipon (who's really a great mother of all times)and of course to all his classmates.teachers and to his personal tutor Teacher Ruth Rojo who patiently guides nielsen in doing his paces and most especially to Pastor Arnold Acon who's willingly accepted our son as his own..Of course to my ever supportive husband and nielsen's dad..CDR NELSON L LASQUITE PN (GSC) from the time that i conceived up to this very moment..I LOVE YOU DARLING..NIELSEN SAID YOU're the BEST DAD IN THE WORLD! AND TO ALL THE PEOPLE WHO INSPIRED AND CONTINUALLY INSPIRE US.. OUR THANKS.. AND HOW CAN WE FORGET THE LOVE AND ALL THE BLESSINGS FROM GOD..NIELSEN COMES FROM GOD..HE IS OUR ANSWERED PRAYER..THANK YOU LORD JESUS..
Name:
susan E-Mail:
Comment:
518
Friday September 19, 2008 - 05:15pm
my son was bon in 2000,diagonised with down syndrome and kleinfelter syndrome,i new there was a possibility about the downs because my blood work came back high as having a child with it,after all the ultra sounds i haved they told me they look for 10 things for kids with down and they are thicker skin in the back of the neck,middle diggit missing on the 5th finger ,hole in the heart and so on,well i my case they only found the missing diigit on the finger and would you believe it grew in on the last ultra sound i had,well of course to my suprise they talk with all other doctors and then came back into the room and said i have options,i asked what do you mean,they told me there was still a 50 to 50 chance he still would have it and that they suggested me to give it up for adoption or have a abortion,by thid time i was already 7 months preganant,my husband was mad and so was i that they even suggested such a thing and that they would give us a couple of days to think about it,we told them forget it i was looking at the ultra sounds and everything was normal no hole in the heart,no brain tumor any thing,anyway of course we kept our son and he is the love of my life,he is gods gift,my husband calls his angel,gods angel he has changed alot of peoples live he is very loving and caring,i love the huggs and kisses i get every morning and afternoon when he comes home from school he likes to help me cook and clean and go grocciery shopping,i couldnt even get my other kids to do that,the problem with today is people dont understand until they have a son/ daughter of there own to understand,i would not change a thing.god put these kids on this earth to show others that you should be kind and loving to everyone and not hate.
Name:
susan E-Mail:
Comment:
517
Friday September 19, 2008 - 04:56pm
hi, im new to this i have a beautiful son aged 8yrs old who was born with down syndrome and kleinfelter syndrome,i was told that it was not rare to have either or but very rare to have both off these,i have not been able to find much info abouth someone who has both,my son is our life and joy,he has 2 sisters and 2 brothers, he is the youngest and gets spoilt every day,he loves to give you hugs and kisses anyone in fact,he is very helpful loves to help me cook and clean,i also read on here about a sisters little brother who took of at night time and she found in the bush,when we moved into our new house my son kept doing the same thing,only he would do it in the early morning it use to make me freak out all the time we ended up putting dead bolts and chain bolts on all the outer door,if any one as any info for me please e-mail me.
Name:
Marilu E-Mail:
Comment:
516
Wednesday September 10, 2008 - 04:29am
Adrian was born on Feb. 9, 2008. He came two weeks early. He was born on MY birthday.God send me a beautiful baby boy as a gift on my 32 birthday. I remember a few hours after Adrian was born, I had just told my husband and my family that I felt so happy. Then the pediatrican came in and ask me if I notice anything different about Adrian. I said, No why. He said, this baby has Downs syndrome. The doctor went on saying things about this. I was looking and listening to him, but I was in shock. The moment he walk away I looked at my husband and started to cry. I felt so bad because we had struggle to get pregnant and after two misscarriges we finally had our baby and now this happen. I could not stop crying. The first thing that came to my mind was that noone would love my child and that he would suffer. My husband looked back at me and hold my hand telling me not to cry that we had to be strong that maybe the Doctor was wrong and if he is not, so what. Adrian is now 7 months old. I remember and appreciate every moment on these few months. Adrian is healthly as can be he does have a heart mummurr, but nothing bad. He is always in a good mood. He sleeps through the night. He is just a perfect baby. I cannot ask for anything in my life. Maybe he will have developemental delays and maybe it will be challanging to raise him and help him go though the milestones. Never the less he is the joy of our family. Hard times in life makes us stronger and makes us appreciate every aspect of it. I am thankful for my baby boy, and you know what I think everyone loves him, and I was worried. I think we will be fine and so we I.
Name:
Marlene Valdez E-Mail:
Comment:
515
Tuesday September 2, 2008 - 09:23pm
Im 21 i have an 8 month old baby girl with DS her name is Daisy. She was born on 1/1/08 by emergency c-section at 36wks because she was breech. i had no idea she had DS until the day she was born my husband and i were in shock. her heart thank god is perfect but she was born with congenital cataracts shes had 3 surgrys to correct that she wears contact lenses to see clearly but i thank god she has vision. regardless of how much my life has changed im thankful for having her she is so perfect, innocent and loving shell probably need much more help than my other 2 typical kids but she has a big loving family and well be here to help her and guid her throughout her life.
Name:
PATTI E-Mail:
Comment:
514
Saturday August 30, 2008 - 06:51am
MY WONDERFUL LITTLE GIRL'S NAME IS SIENNA. WE FOUND OUT THAT THERE WAS A POSSIBILITY THAT SHE MIGHT HAVE DS WHEN MY TRIPLE SCREEN CAME BACK AT A HIGHER POTENTIAL FOR DOWNS. MY DR. INFORMED ME THAT I COULD HAVE AN AMNIO TO BE 100% SURE, BUT I MIGHT RUN THE RISK OF MISCARRIAGE..TO WHICH I REPLIED NO THANKS. THEN, WE FOUND OUT THAT SHE WOULD BE BORN WITH A COMPLETE AV CANAL DEFECT THAT WOULD IN TIME HAVE TO BE FIXED. NEEDLESS TO SAY, THE FIRST SIX WEEKS AND THOSE UP UNTIL SHE HAD HER HEART SURGERY AT 4 AND 1/2 MONTHS I GUARDED HER WITH MY LIFE. I CAN HONESTLY SAY THAT I AM TRULY BLESSED WITH THIS ANGEL FROM GOD. SHE IS ALWAYS CHEERFUL, SHE NEVER HAS A BAD DAY UNLESS SHE IS SICK, SHE IS MY SUNSHINE. SHE WILL TURN 2 ON DECEMBER 14TH, AND I THANK GOD EVERY DAY FOR CHARGING ME WITH HER CARE.
Name:
Chris E-Mail:
Comment:
513
Saturday August 30, 2008 - 03:08am
I have been a lurker on this site for years. Just singed up to day. I have been married to Steve for 31+ years. We have 2 children Donnald 28 has Downs and Ginny 24. We adopted Donald, he came to live with us when he was 6 weeks old. I was on fertility pills for 2 years and finally got pregnant and had my daughter. I work for a company named OPARC it is a company that has programs for adults with disabilities. Our mission statement is Enabling Adults with disabilities to reach their full potential. We have Diversified Industries which is a workshop, supported employment and Individual placements. we also have 3 adult development centers, 1 soon to be 2 behavior programs,1 senior program and 1 medically fragile site. I work as a case manager at the medically fragile site.. Donald went to special day classes in school and was main streamed. He and his sister graduated from high school together in 2001. Ginny graduated from Upper Iowa University in Dec of 2006 with a degree in Athletic Training. She past her test to become a certificated Athletic Trainer. in March 2007 she went on a mission for the Church of Jesus Christ of Latterday Saints. She got home on 8-22-2008. She is now looking for a job. She is hoping for a grant assistanceship to go back to school for her Masters Degree. Donald went to work after high school at a sheltered workshop where he did piece rate work. After 6 months he went to his case manager and told him he was ready to go out into the community to work. His first job in the community was with a job coach and 3 peers they worked at an assisted Living Home cleaning residents rooms. He did that for 3 years. His group was employee of the month 6 times. Then they lost that contract. He went to another onclave where he has been for 3 1/2 years doing janitorial work. In California Our guys make sub minimum wage. Which means that they are time studied and make a a percentage of minimum wage. He was just time studied and he makes $ 5.16 an hour. His wages have gone up every time he is time studied. He brings home $299.85 every two weeks. He is looking forward to our move to Colorado next year. He has all ready been offered a job as a clerk bagging groceries at King Supper the Kroger market where he will start at minimum wage.
Name:
Hope Phillips E-Mail:
Comment:
512
Saturday August 23, 2008 - 04:47am
I have a 13 year old brother with DS,that I love dearly,but you never know what he going to do next.In the past he has went outside at night,but we thought that we had taken care of that by putting in dead bolt locks.We had recently put in patio doors in the back,and instead of the big sliding door,it has a regular size door in the middle and two doors on each side that opens up and has screens inside to let the air in. At 3:00 this morning mom went to go check on Gaylen,as she does every night.Cause you never know if he is going to be prowling the house or what.,He wasn't in his room,so mom woke me up and we searched the house in every room,under the beds,everywhere,but couldn't find him.Finally all the noise woke up dad,and he started helping us look for him.We had thought that he had went outside,but we knew that both doors were locked and that he couldn't have possibly gotten outside.We got dressed and was fixing to go to the Police Station when I thought about checking inside my car.I looked but he wasn't there,so I turned around(there's a 4 o'clock bush up against our hoise)and started whispering,"Gaylen,Gaylen?"I heard a faint noise saying,"Sissy,Sissy?" I walked over to the bush and looked in,there he was sitting down,wearing a tee-shirt,shorts,and no socks,it was cold last night. After we got him out,he said that he was cold.We gave him a bath,and went back to bed. The next morning we asked him how in the world he got outside,he showed us that he had pushed one of the screens out and climbed out that way! That little stink pot he will find some way to get what he wants.
Name:
paul lapke E-Mail:
Comment:
511
Thursday August 21, 2008 - 10:31pm
Paul Story I have Down syndrome born in maimi FL 1984 love form paul young life capernaum john koechler is my hero every thurday l want to go l wear a cowboy hat l love the paryers we do together l love the bible nale is somebody l to be like l feel so happy with my friends at young life capernuam lits like family and bothers l love nysnc songs and backstreetboys songs too l love being my friends there is no place else better there on earth l am move to assisi house love paul and john
Name:
Cassie E-Mail:
Comment:
510
Monday August 4, 2008 - 09:36am
Hello. I haven't been on this website in years. My little angel is 7. He changed my life in ways that I never would have dreamed. He led me to nursing school, taught me to love, and has become my hero. He is in a body cast right now. Bilateral hip dysplasia. However, it's coming off in two days!! Jacob has a younger brother and a younger sister. Jacob's dad and I didn't make it. A rather ... divorce. But, through it all, Jacob has been the strong one. He loves unconditionally, reminds me to enjoy life's simpler pleasures, and brightens the room with his smile. Someday, I'd like to know that he knows how much I love him. Same goes for all of my babies. If that could be true, this life would not have been futile. More later... Cassie, RN
Name:
paul lapke E-Mail:
Comment:
509
Sunday July 6, 2008 - 05:52pm
Paul, who has Down syndrome, a sense of independence and security.
Name:
Nickc E-Mail:
Comment:
508
Sunday June 22, 2008 - 02:42pm
My daughter Simone(age 6) and our family of live in Arizona. She is main streamed in the 1st grade next year. I would like to be in contact with other families or parents of Down Syndrome kids being I am having a heck of a trying to modify Simone's agressive behavior. I have tried everything to control her more positively but have failed. She will not listen or she will do it when she is ready. There has been several times that she would walk up to my fiance's kids and just scratch or hit them. We have a one year old and I am concerned her agression will turn on her. Is there anyone that has had the same problems or concerns with their little one that can give me some guidance. I would really apprecitate it. Please email. I have contacted a counselor that deals with "special needs" children and we are going to start that soon. I would welcome any and all suggestions.
Name:
polly E-Mail:
Comment:
507
Tuesday June 17, 2008 - 01:41am
hi , i hope that u would ineresting in to chat with me about ds everything who can tell me about your and mine too.. my daughter kimblery is 15 years old and she is in the wheelchair now she is 9 grade now but it will be 10 grade next fall ... we hop ethat to hear from u again thanks for your take time.
Name:
jackie E-Mail:
Comment:
506
Monday June 2, 2008 - 02:08pm
This is the only way I can get on at the moment...the board does not recognize my ID and password...so Hi to everyone and I will sit tight until we are back up and running. I wonder if we will all have to re register? But...since I am HERE...I will give an update on Emily who is 28 and lives with her oldest sister in a town 500 miles from home. The "yada yada yada" about Em most of you know...inclusive schooling, two years at Eastern New Mexico U in Roswell, and a year long job as a housemanager in Houston for a couple and ...then...not wanting to live at home anymore...3 years at her sister's. Our biggest challenge now is to find Em a job and get her wanting to move into independent living. She is getting a bit too comfortable at Katie's house and we think she needs to be moving along with her independence in this respect. There is an art program that the ARC is developing that will begin in August where she will be mentored by local artists in different mediums and also learn to work in a shop selling artwork and reproductions. This program has been pushed back almost a year but we have high hopes that it WILL launch in August. I hope we get Uno back up and running and who knows...by the time I submit this it might be back. Jackie
Name:
Yolannda Green E-Mail:
Comment:
505
Wednesday May 21, 2008 - 07:56am
I was the single mother of two one 16 year old girl and a 12 year old boy with ADHD, Dyslexia and mild to moderate mental retardation. I had gone to federal prison in 1993 and returned in 2000. Getting to know my children was a struggle for me and then at the age of 35 I found out I was expecting. Neiter the father nor I were thrilled but we went on. Because of my age is asked my doctor about testing the baby and he said there was no need. Had I known I would'nt have changed a thing anyway. My best friend in nursing school insisted that this baby would be born natural like the others so I suffered for what seemed like a lifetime only to have emergency surgery and they said it was a boy. I heard nothing but doors opening and closing with doctors and nurses running around while my friend looked me in the face with a half smile and tears in back of her eyes. I asked WHY ISN'T HE CRYING, WHY DON'T I HEAR HIM CRY. She lookd to me and said He's fine sweetie, he's fine the doctors are cleaning him up for you and she knew the moment she saw him, but months later is when I found out the whold story. My baby never did cry that day and the running around was because he wasn't breathing at all and his entire body was dark blue. When I first saw him he was being loaded into a hellicopter and transfurred hours away to another hosital and I didn't know why. Once the medication wore off I started going mad demanding to be moved to my sons location but I hadn't realized the surgery part of my delivery was as bad as it was. I had to walk and eat to leave so With tears in back of my eyes in more pain than I ever encountered I walked eating a hamburger right out the front door. I arrived to the next hospital to find my son in neonadle intensive care not eating, moving or much of anything. He was so small. I had never seen a baby that little. I wanted to breast feed but He didn't know how to nipple so I was off to walmart to buy baby doll cloh for him because everything I had even newborn was way too big and they had scheduled hours when I could go in to see him so for his milk while waiting I pumped and tried to feed him every two hours. After he maintained his body temperature and got to 5 pounds he was eating small amounts and we went home. That night he bent backards with his head resting on his tiny diaper circled like a ball and every time I moved him he did it again. I couldn't sleep so I just held him and watched him all night. First thing in the morning I was on my way to a doctors office. T first thing I could say was THIS BABY DOES SOME WIERD ... so I explained everything he had absolutely no muscle tone what so ever. It's like a dead body but its alive and I was scared to death. The doctor checked and assured me he was okay and they would call with results from the tests in a few days. The next morning they called and asked to see me and the father so I didn't even wait for him I called him from the car, I just took my son and went. She told me he had Down Syndrome and explined what it was. All I could ask was IS THAT THE ONE WHERE ALL OF THEM LOOK LIKE THEY HAVE THE DAME DADDY? She laughed and said yes. She even recomended THE NEW PARENTS GUIDE FOR BABIES WITH DOWN SYNDROME and it was (is ) great. I still use that book and Sedarion will be 4 this September. She also discused with me the options of giving him up and there was someone there to take him if I chose not to keep him. I went to cursing and crying and I left not knowing that many parents just leave the child there. I thought that was the worse thing I had ever heard of. I was determined to prove them wrong but I remember calling my little sister crying saying everyone would laugh at him because He would look different. She was so strong for me and she really made the trip home bearable. From that moment on I don't think my other kids got half the love Sedarion did because all I knew to do was love him as much as I could for as long as I could scared every day we went on. His dad just prayed and wouldnt read the book and didn't really want to hear much about it he acted as if Sedarion were just like any other kid and still does it today. He acepts it but the says he gave it to God and He was done with it. Me and my sister and my other kids attend the Buddy Walks here in Louisiana and everything. Sedarion has been crowned Mr Oberlin, Mr Allen Parish, Mr La Reign De Noel and Harvest Festival Prince. He's adorable and He really performes in pagents. Sedarion's heart is better than mine. The only medications he takes is if he's congested a litle and He only sees the doctors for his physicals. He started walking after two years and braces and walkers but He's walking. He doesn't say many words but he gets his point accross and he uses sound effects for everything. He's a Thomas the train guy and when he wants to watch it he gets the remote and presses 295 for sprout if its not on he comes to one of us and makes the sounds of the song and we know he wants on of his thomas DVD's in. He is the most amazing part of my life I can think of and I can't imagine life without him. I have to die first because I don't want to be in this world without him. I love my other kids and its even harder being a single mom with two disabled children a normal one and a two year old grandbaby but its okay. My grandbaby is bigger than Sedarion and she calls him the baby but he's okay with that they act like twins and every day is a joy. Where I live we are in a rent house because there arent any programs that will build me a house or let me buy one because of my income but we press on and though its hard it's okay. When I'm down I look at him and know that it's gonna be okay. He may be with me forever and there's no place Other than that I would want him to be. From the day I met him at the hospital I have never spent one night without him and I dont think I could. I don't want to. When I walk in the door His face is what I look for He is what I live for. I really do love my other kids but He's different. They act like normal kids although my other son struggles with learning and some behavior difficulties he's close to normal and believe it or not my daughter graduated high school last week and I think Sedarion is the smartest one in the house. I encourage anyone to give a Down Syndrome person a chance. Just one chance and your life will never be the same, I promise. No matter how you were, who you were or what you were, That one person with Down Syndrome will make you the one person you always wanted to be.
Name:
Charissa
Comment:
504
Tuesday May 20, 2008 - 03:16pm
Well where has the time gone? Benjamin is now 4 years old and doing great. We have moved twice and now we live in Illinois. He started school this year and he has done OK,as far as i am concerned. He has a little bit of trouble with his social interaction with other children which is a big concern of mine. He seems to be a little bit of aggressive towards other children. I am trying to get him into another preschool for the next school year with normal functioning children to see if that will help.
Name:
gloria Sr E-Mail:
Comment:
503
Wednesday May 7, 2008 - 09:22pm
Gloria Jr. is my 3Th and youngest daughter. Born May 5Th, 1982, 26 years ago today. The birth was complicated by a c-section. I had no idea she was going to be a Down syndrome child, as at twenty six years old I was too young to ever have that happen.....So they say. I awoke from surgery to find Tony (her dad) crying above my hospital bed. I ask him what was wrong and his replied was "The doctor will be coming in to talk with you" and walked out the door. At first I thought he was upset that she was a girl, as we already had 2 daughter's and he might have really wanted a son. We knew this would be our last child. When the doctor finally came to talk with me, he ask me "Do you know what Mongolism is?". I answered "yes" and then asked him, "isn't that called Down syndrome?" Well he gave me all the details and then finish up with other question for me. This one was before I even got to see her. "Do you want her?", "if not we will put her in a place where she can be taken care of". WHAT A QUESTION!!!! I would not have wanted anything else in my life at that moment. I knew that, right then and there, the second I saw her, it was instant.........LOVE!!What the doctor told me she would not be able to do.......SHE DID!!. I wanted to breast feed her even thought he told me she would have poor muscle tone in her mouth to eat right. Well let me tell you she proved them wrong.!!! I don't know where to start with all the things she has accomplished in her young life. Yes, her reading and writing won't be par with her peers, but she still tries very hard at this. She has grown up to be a very gifted child. I found her strength's and have made that her strong point in her life. Which is her love of dance, friend's, family. There are a lot of things that have happened in her life that have been hard for me to understand. Like why at 16 years old, while home alone from school due to menstrual cramps, she decides to call 911, they sent an ambulance to the house, they pick her up, and, she then gets a ride to the hospital in Petaluma...all by herself!!!!!Or why she goes completely numb when I am trying to correct her (like most teenagers)Or just when everything seems to be going well and she is learning more and more to not lean on me so, she does something that sets her back. At times like these I feel that we need to start all over again. And then we move on..........it's O.K. But for all the not so good times, there are so much, much more wonderful, special and even emotional times in our lives together. She has such a trust in everyone that comes in her circle of life. Her love of people out shines everything she can't do. She has no problem walking up to a man or woman and letting them know how handsome or beautiful they are.We were at a Mexican restaurant one evening, as we were eating and listening to a live Mariachi band, 4 young men came and sat down at the table next to us. Well low and behold she starts up a conversation with one of them and then the others join in. As the band starts to play again, Gloria goes and request a dance from one of these guys, (who by the way was about my age!!) and you know what....he did!!!! There she was in all her glory, as everyone else looked on, dancing and having fun!!!!. I would have never, ever have done that!!!! But that what make her so special. We had a wonderful time that night. Stuff like this happens all the time, when we are together. I have come to admire Gloria Jr. for who she is and not what I want her to become. She has taught me not to judge others by their appearance. She has shown me to be kinder to all I meet. She has given me a big lesson on forgiveness. And she has shown me to be happy everyday.For me I see Gloria Jr. as wearing her "spiritual soul" on the outside for all to see and you know what?
I want to be just like her. "Thank you Lord for giving me your gift of Love" My Daughter Gloria Patricia Jr.
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